DMV64: reinstate Saphris?

[DMV64]

3 hours ago, Rosetta said:

cortisol

 Hey there. Yes I had to go to the office in the morning early for the test. It was a blood test. And then I had to go back in the afternoon. So I don’t know what it all means they’re so much stuff going on and with drawl it’s hard to tell. I do appreciate your hopefulness for her recovery. 

That really stinks about your cortisol spikes. I’m sorry to hear that and sorry for your suffering. Xoxo

[DMV64]

 Rosetta sometimes I can’t even believe what these doctors have done. 

[DMV64]

4 hours ago, manymoretodays said:

Have

I have not yet but I hope to when I can concentrate. 

[DMV64]

I have bronchitis and prescribed Z-pack. I see in interaction it has a major one with Geoden. I need the Z-pack. Not sure what to do. Z-pack always does make me feel a little racy.

[manymoretodays]

I think you need to talk to your Doctor(prescriber) on this one DMV.  As you know we can't give you medical advice.

Cipro, Levaquin, Azithromycin,(Z pack), and other antibiotics

^ this one is more about which ABX to avoid in W/D and even if not in W/D.  The fluoroquinolones, class of ABX(antibiotics) seem to have their own possible CNS effects so just be aware.

 

This is the danger of taking Azithromycin and Geodon, from Drugs.com:

Interactions between your drugs

Major

azithromycin ziprasidone

Applies to: Azithromycin Dose Pack (azithromycin), Geodon (ziprasidone)

Using ziprasidone together with azithromycin is not recommended. Combining these medications can increase the risk of an irregular heart rhythm that may be serious and potentially life-threatening, although it is a relatively rare side effect. You may be more susceptible if you have a heart condition called congenital long QT syndrome, other cardiac diseases, conduction abnormalities, or electrolyte disturbances (for example, magnesium or potassium loss due to severe or prolonged diarrhea or vomiting). Talk to your doctor if you have any questions or concerns. Your doctor may be able to prescribe alternatives that do not interact. You should seek immediate medical attention if you develop sudden dizziness, lightheadedness, fainting, shortness of breath, or heart palpitations during treatment with either of these medications. It is important to tell your doctor about all other medications you use, including vitamins and herbs. Do not stop using any medications without first talking to your doctor.

 

Lot's of other information regarding risks and adverse reactions, of the Z-pack (azithromycin) came up when I did a general search as well.

 

2 hours ago, DMV64 said:

I have bronchitis and prescribed Z-pack. I see in interaction it has a major one with Geoden. I need the Z-pack. Not sure what to do. Z-pack always does make me feel a little racy.

 

I'll just add that if it's a viral infection and not bacterial, then basic measures of self care for bronchitis are best.  Things like rest, humidifier, fluids.   You don't want to run the risk of over use of antibiotics, either. 

So.....all that being said and shared I think it best that you talk to your prescriber about this.  There might be an alternate ABX, that's less risky, given the interactions.......if you need an antibiotic. 

That's good if your doctor did not think it was pneumonia anyway.  Always look on the bright side?

 

I hope that's clear.

L, P, H, and growth,

mmt

 

 

[DMV64]

 Notes from two days this week. Some times have changed since my schedule has changed and is different everyday anyway. @manymoretodays

 

DAY 1

5:30am wake panic

6:30 meditate

7am .5 klonopin

9am 6mg geoden 

headache

9:30 100 gabapentin

11:30 lunch and 6mg Geoden also magnesium

230pm 100mg gabapentin

headache

7pm 6mg geoden

7:30pm .5 klonopin

8pm magnesium

8:30 pm .25 cogentin, 20mg omeprozole

9pm 0.010 saphris, 100 mg gabapentin

 

Day 2

2:30 am wake up sick (turns out brocnchitis)

5:30 am mild panic/cortisol?

7am .5 klonopin

8:30am 6mg Geoden

anxiety

9am 100 mg gabapentin

headache again

11am 6mg Geoden lunch

3pm 100 mg gabapentin

5pm magnesium

7:30 6mg geoden and .5 klonopin

8pm magnesium

8:30 pm .25 cogentin, 20mg omeprozole

9pm 0.010 saphris, 100 mg gabapentin

 

[Rosetta]

Hugs, DMV, and Happy Thanksgiving.  Hope you are feeling better. -R

[DMV64]

Hugsback to you! I am feeling a little bit better but unfortunately have bronchitis so I’m going to bed now!

[Rosetta]

Ah, good choice.  Sleep well.

[Rabe]

Hope you get better soon DMV!  Thats not fun!!  Take care!!  💜

[DMV64]

This sick is so deep. Ugh. My body feels like lead. Good thing for knitting. 

[Rosetta]

Hugs, DMV.  I'm sorry you feel so bad.  All my love, Rosetta

[DMV64]

I think also the antibiotics and steroids are not helping. Tomorrow is last day. 

[DMV64]

I spoke to a doc at iop yesterday. He was saying if the withdrawal doesn’t end then it is not withdrawal. It is a psychiatric condition. Talked about brain growing back connection, making more or less of what it needs overtime. I don’t know.  It was hard. He didn’t mention a timeline but I kind of felt it was probably a lot less time than what I am going through.  : (

[Rosetta]

I'm sorry, DMV.  Sending all my love, Rosetta

[DMV64]

Thanks Rosetta. It is hard to know who or what to believe sometimes!

[manymoretodays]

On 11/15/2018 at 12:46 PM, DMV64 said:

Notes from two days this week. Some times have changed since my schedule has changed and is different everyday anyway

Good job.  Important to keep your drug times the same each day, especially as your schedule is changing.

 

On 11/20/2018 at 9:04 AM, DMV64 said:

I spoke to a doc at iop yesterday. He was saying if the withdrawal doesn’t end then it is not withdrawal. It is a psychiatric condition. Talked about brain growing back connection, making more or less of what it needs overtime. I don’t know.  It was hard. He didn’t mention a timeline but I kind of felt it was probably a lot less time than what I am going through.  : (

Here's the latest on what a lot of doctors might refer to:

2010 American Psychiatric Association, APA Practice Guideline: About discontinuation

apparently this is still current, skip to the end parts.......I'm not getting the impression that "they" think there is any W/D after 2 months time.  And then you are  dealing with both, a complicated drug cocktail, and having W/D I think.

 

Are you doing okay post bronchitis.......generally 7- 14 days for that kind of stuff to clear, I believe.

Happy turkey and gratitude day DMV.

L, P, H, and G,

mmt

Edited November 22, 2018 by manymoretodays
grammar

[DMV64]

2 hours ago, manymoretodays said:

months

It does seem like the doctor’s thinking goes along this line. A limited time for discontinuation and then if it is still happening it is not discontinuation but a psychiatric condition.  

I don’t believe this. I never had any of these symptoms before I was on these drugs. I only had some anxiety and slight depression. 

How are you MMT? I am slowly recovering from my bronchitis. It really took a lot out of me. Xoxo

[DMV64]

I would just like to happily announce that my daughter has come off of her anti-depressant successfully so far.

[DMV64]

Also I’m going to be traveling to Florida over the holidays and I’m feeling really nervous about it trying to keep on the tapering schedule and all the stuff I have to bring with me.

[Rosetta]

1 hour ago, DMV64 said:

I would just like to happily announce that my daughter has come off of her anti-depressant successfully so far.

That's wonderful!

[DMV64]

Oh no. My bronchitis has progressed to pneumonia. More inhalers and antibiotics. : (

[DMV64]

The doc gave me Moxifloxacin and I am having a terrible reaction to it. I should have looked it up before I took it. All kinds of mental and nervous system side effects. I started feeling suicidal the paranoid then reacing heart. I called the on call doctor and she said stop it and go get a chest xray tomorrow and we will go from there. You guys, I feel afraid.

[Rosetta]

Hugs, DMV.  Try to remember to avoid second fear.  This may pass quickly.  You don't know yet.  I'm so sorry that your doctor didn't warn you.  

[DMV64]

Thank you. I hope so

[Rabe]

Oh DMV I am so sorry....I hope you feel better soon.  SOMEONE NEEDS TO WRITE A BOOK FOR DOCTORS RE MEDS>>>ALL MEDS!!!!  Will be thinking of you!!  TO feel so awful from the pneumonia and now the med for it...do take care!!!!💜

[Carmie]

10 hours ago, DMV64 said:

The doc gave me Moxifloxacin and I am having a terrible reaction to it. I should have looked it up before I took it. All kinds of mental and nervous system side effects. I started feeling suicidal the paranoid then reacing heart. I called the on call doctor and she said stop it and go get a chest xray tomorrow and we will go from there. You guys, I feel afraid.

 

Hi DMV, 

 

So sorry to hear this. Just remember even if we end up in waves because we have reacted to something the waves will eventually come to an end. 

 

As Rosetta said too, don’t add secondary fear to what you are going through because it will just make the symptoms worse. You will end up going into a downward spiral of fear.

 

If you do at any time feel your life is in danger n you’re suicidal ring 1800-273-8255. It’s a 24/7 crisis centre in your country as you no doubt already know. 

 

SkyBlue also said that a good place to ring with a toll free number is The Western Mass RLC. It has a toll free number: 888-407-4515. It’s a peer support line  but it’s only open Friday to Monday. 

 

Please listen to some of Claire Weekes recordings on YouTube n try n float through the symptoms n don’t fight them n scare yourself even more. Actually, she has such a calming soothing voice, like a gentle grandmother that wants to hug you n take care of you.

 

Take care n I hope you’re feeling a bit better soon💚

 

 

 

 

 

 

 

 

[DMV64]

Thank you.  I have to go get a chest x-ray today and then they’ll go from there and hopefully prescribe me a different antibiotic that won’t do that to me. 

[DMV64]

@manymoretodaysI accidentally took an extra dose of my Geoden in all the confusion last night. I am upset but this morning was the first morning in like a year I woke up with no panic. So I feel confused. Should I stay up on the higher dose? It would be really nice to not have severe panic every morning. Or should I just go back.

[manymoretodays]

On 11/29/2018 at 6:58 AM, DMV64 said:

@manymoretodaysI accidentally took an extra dose of my Geoden in all the confusion last night. I am upset but this morning was the first morning in like a year I woke up with no panic. So I feel confused. Should I stay up on the higher dose? It would be really nice to not have severe panic every morning. Or should I just go back.

 

No.  If I were you,  I would not consider going up, or doubling your dose of Geodon. 

And good Lord, on the fluoroquinolone!!!!!!!

And I see steroids.

 

If anything DMV,  I'll definitely be promoting a long HOLD for you........through the holidays and beyond.  Some things you can control, some things you can't.  You could not have controlled for this chest infection that you had/have.  Give yourself a hug and mug of something yummy, rest, and kind, kind comfort.

Are you decorating much for the holiday season?  Or just going to travel instead?

 

L, P, H, and growth,

mmt

[DMV64]

Hey. Thanks for your response. I am taking it all in, trying to make the best decisions I can. 

I’m not doing any decorating because we’re going to be going away. Plus I’m not much of a decorator.

 Right now I’m just really tired of the symptom of morning dread and continued anxiety throughout the day intermingled with depression. I am weary. I wish I felt like I saw more progress. My husband tells me he sees progress but I honestly don’t know if I believe him. 

[DMV64]

 Honestly part of my thinking is that I am almost off of the Saphris and if I went up on the Geoden, I could just start to work on the benzodiazepines. Eventually getting to the Geoden. 

[manymoretodays]

Still NO, from me.  And forgive my being the grinch today, DMV64.

You've been there, done that already.  Taken charge and mixed your own cocktails, as far as all this goes.  You must know that old quote......is it Einstein who said it.  Something along the lines of insanity........"when you keep on doing as you've always done" ........and then.......well........"you'll keep on getting what you've always gotten".

 

I'm so happy that your hubs reports your progress back to you.  Try and believe it.  And give your body a chance now to recover from this last illness.  And some of the drug changes that were thrown on in there as well.......the ABX( including unknown-to me, ingestion of a fluoroquinolone, despite my having given you information on this), steroids, and overzealous dosing of your Geodon(a mistake made).

I'm just glad you are alive today.

 

Happy Holidays and travel DMV.  Work on how to best package up your meds for travel and putting some joy into the lives of others, perhaps.  I become an elf tomorrow.

 

Peace.

mmt

[DMV64]

9 minutes ago, manymoretodays said:

information

Did you give me specific information on this? This particular antibiotic? I am blanking. 

As usual I am doing the best I can. I know the program saying well about always get what you’ve always gotten. 

However, in large part what happened to me was me listening to doctors not self medicating. Just really feel that needs to be said. I have not just decided to mix my own cocktails. 

Mom working on the travel package. : )

[DMV64]

I mean don’t get me wrong I take responsibility for my part in the situation I now find myself in, but I wasn’t alone.

[manymoretodays]

On 11/14/2018 at 9:16 AM, manymoretodays said:

I think you need to talk to your Doctor(prescriber) on this one DMV.  As you know we can't give you medical advice.

Cipro, Levaquin, Azithromycin,(Z pack), and other antibiotics

^ this one is more about which ABX to avoid in W/D and even if not in W/D.  The fluoroquinolones, class of ABX(antibiotics) seem to have their own possible CNS effects so just be aware.

 

On the 14th of November ^