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☼ Callie: venlafaxine XR or Effexor XR - hoping to be well someday


Callie

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  • Moderator Emeritus

I've just done some searching.  I couldn't find anything about gums, but found this and wondered if it may be related:  saliva-problems-dry-mouth-xerostomia-or-increased-salivation-drooling

 

And this in particular:

 

On 03/09/2015 at 4:42 PM, Petunia said:

...a constantly dry mouth can lead to dental problems...

 

 

 

 

* NO LONGER ACTIVE on SA *

MISSION ACCOMPLISHED:  (6 year taper)      0mg Pristiq  on 13th November 2021

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

Post 0 updates start here    My tapering program     My Intro (goes to tapering graph)

 VIDEO:   Antidepressant Withdrawal Syndrome and its Management

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  • 3 weeks later...

Hope to get an answer on this one...

 

For the last three months I've been having full body uncontrollable shaking/jerking episodes. I've only had about 10 of them now, only happen when laying down. They last about 5 or 10 minutes. I don't lose consciousness, so I don't think they are seizures. They always happened while awake except for last night. An episode began while I was asleep and woke me up. Do these happen to anyone else? Could this be akathisia or something else?

 

Callie

Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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  • Moderator Emeritus

Many members have reported shaking as a WD symptom.  Some suggestions, with mixed results, have been acupuncture, fish oil and magnesium.

tremors, shaking, body vibration, internal trembling - Symptoms and ...

Gridley Introduction

 

Lexapro 20 mg since 2004.  Begin Brassmonkey Slide Taper Jan. 2017.   

End 2017 year 1 of taper at 9.25mg 

End 2018 year 2 of taper at 4.1mg

End 2019 year 3 of taper at 1.0mg  

Oct. 30, 2020  Jump to zero from 0.025mg.  Current dose: 0.000mg

3 year, 10 month taper is 100% complete.

 

Ativan 1 mg to 1.875mg 1986-2020, two CT's and reinstatements

Nov. 2020, 7-week Ativan-Valium crossover to 18.75mg Valium

Feb. 2021, begin 10%/4 week taper of 18.75mg Valium 

End 2021  year 1 of Valium taper at 6mg

End 2022 year 2 of Valium taper at 2.75mg 

End 2023 year 3 of Valium taper at 1mg

Jan. 24, 2024: Hold at 1mg and shift to Imipramine taper.

Taper is 95% complete.

 

Imipramine 75 mg daily since 1986.  Jan.-Sept. 2016 tapered to 14.4mg  

March 22, 2022: Begin 10%/4 week taper

Aug. 5, 2022: hold at 9.5mg and shift to Valium taper

Jan. 24, 2024: Resume Imipramine taper.  Current dose as of Feb. 22: 7.6mg

Taper is 90% complete.  

  

Supplements: multiple, quercetin, omega-3, vitamins C, E and D3, magnesium glycinate, probiotics, zinc, melatonin .3mg, anti-candida, iron, serrapeptase, nattokinase


I am not a medical professional and this is not medical advice but simply information based on my own experience, as well as other members who have survived these drugs.

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Thanks, Gridley,

 

I take 360 mg fish oil and ~65 mg magnesium oxide per day. Maybe that's not enough magnesium and the wrong kind. I'll be switching over to magnesium glycinate soon. How much of that do most people take per day or what would be the initial dosage?

 

I'm glad you sent me the link. I always have a hard time finding appropriate links when I search SA.

 

Thanks again for answering. Means a lot.

 

Callie

Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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  • Moderator Emeritus

You might want to try increasing the magnesium little by little, monitoring its effect on you.  Magnesium glycinate is the most calming form and most easily absorbed.

 

I take around 1200mg fish oil in three doses.  You could try increasing that slowly as well.  

Gridley Introduction

 

Lexapro 20 mg since 2004.  Begin Brassmonkey Slide Taper Jan. 2017.   

End 2017 year 1 of taper at 9.25mg 

End 2018 year 2 of taper at 4.1mg

End 2019 year 3 of taper at 1.0mg  

Oct. 30, 2020  Jump to zero from 0.025mg.  Current dose: 0.000mg

3 year, 10 month taper is 100% complete.

 

Ativan 1 mg to 1.875mg 1986-2020, two CT's and reinstatements

Nov. 2020, 7-week Ativan-Valium crossover to 18.75mg Valium

Feb. 2021, begin 10%/4 week taper of 18.75mg Valium 

End 2021  year 1 of Valium taper at 6mg

End 2022 year 2 of Valium taper at 2.75mg 

End 2023 year 3 of Valium taper at 1mg

Jan. 24, 2024: Hold at 1mg and shift to Imipramine taper.

Taper is 95% complete.

 

Imipramine 75 mg daily since 1986.  Jan.-Sept. 2016 tapered to 14.4mg  

March 22, 2022: Begin 10%/4 week taper

Aug. 5, 2022: hold at 9.5mg and shift to Valium taper

Jan. 24, 2024: Resume Imipramine taper.  Current dose as of Feb. 22: 7.6mg

Taper is 90% complete.  

  

Supplements: multiple, quercetin, omega-3, vitamins C, E and D3, magnesium glycinate, probiotics, zinc, melatonin .3mg, anti-candida, iron, serrapeptase, nattokinase


I am not a medical professional and this is not medical advice but simply information based on my own experience, as well as other members who have survived these drugs.

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Okay, thank you, Gridley.

Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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I can recommend magnesium glycinate or malate.  I am prone to gastric upset and have found they give no trouble.  (Citrate did seem to, and oxide/hydroxide can be a bit too laxative IMO).

 

Currently I take 3 X 100mg capsules Magnesium Glycinate (about 75% RDA) and a probiotic for the benefit of digestion.

 

I also take the other stalwart, recommended supplement of omega 3 oil in capsules.

 

You have taken a huge jump without a parachute from your powerful drugs, Callie.  I am not a dr, but it will be clear to many of us fellow sufferers with the lived experience that you are having bad withdrawal.

 

Love, best wishes and strength.  Thinking of you.

Born 1945. 

1999 - First Effexor/Venlafaxine

2016 Withdrawal research. Effexor.  13Jul - 212.5mg;  6Aug - 200.0mg;  24Aug - 187.5mg;  13Sep - 175.0mg;  3Oct - 162.5mg;  26Oct - 150mg 

2017  9Jan - 150.00mg;  23Mar - 137.50mg;  24Apr - 125.00mg;  31May - 112.50mg holding;  3Sep - 100.00mg;  20Sep - 93.75mg;  20Oct - 87.5mg;  12Nov - 81.25mg;  13 Dec - 75.00mg

2018  18Jan - 69.1mg; 16Feb - 62.5mg; 16March - 57.5mg (-8%); 22Apr - 56.3mg(-2%); CRASHED - Updose 29May - 62.5mg; Updose - 1Jul - 75.0mg. Updose - 2Aug - 87.5mg. Updose - 27Aug - 100.0mg. Updose - 11Oct 112.5mg. Updose - 6Nov 125.00mg

2019 Updoses 19 Jan - 150.0mg. 1April - 162.5mg. 24 April - Feeling better - doing tasks, getting outside.  7 May - usual depression questionnaire gives "probably no depression" result.

Supps/Vits  Omega 3;  Chelated Magnesium;  Prebiotics/Probiotics, Vit D3. 

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Hello, Peng,

 

Thanks for your input. Once I make the switch to glycinate, I'll slowly increase it. I'll look into what stalwart does, too.

 

When you say you are not a doctor, don't sell yourself short. You are much wiser and well informed than they are! I'll have to share my recent office visit experience to a new doctor I saw last week. I'll write about sometime next week.

 

Prayers,

 

Callie

 

 

Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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In searching for a doctor, I thought I finally found one that could help me. Before I even made the appointment with this internist, I wanted to know if he had experience treating patients with AD WD syndrome. The receptionist said she'd find out and call me back. When she did, she assured me that he had the experience and could certainly help me. Well, someone was dishonest there because when I went to the appointment, this internist told me there was no such thing as AD WD syndrome. Antidepressants do not affect the brain in any way to change it. He saw many patients who just stopped taking the meds with no problems whatsoever. He further said that the Internet is all lies. I couldn't believe it!!! He also refused to put in my medical record that I do not want any psychotropic meds ever again.

 

I had given him my tapering schedule from a year ago and a list of symptoms with approximate dates each began. Instead of focusing on my symptoms and doing a thorough exam, he became preoccupied with giving me the third degree about my psychiatric history. What was the diagnosis? (Anxiety and unipolar depression). Why so many drugs? (Don't know. Doctor prescribed them.) Why did you see four psychiatrists over a period of 14 years? (They kept leaving the facility I went to until they finally closed, and I went somewhere else.) Then he asked me the same questions over and over. He then went to the waiting room, got my husband, brought him back to the exam room where I was, and started interrogating him. My husband told him the same things I did.

 

Finally, he listened to my heart and lungs and felt my right collar bone, and that was it for the exam. I did manage to tell him I was freezing all the time and losing my hair, so he ordered a full thyroid panel, CBC, and vitamin levels tests.  He said he thinks it's a thyroid problem. If not, his next step will be to test me for Lyme disease.

 

Never in my life was I ever treated this way be a doctor. I'm quite upset. My husband said to give him a chance, but I'm terrified of this man and do not want to go back to see him. He was supposed to call me the end of last week with test results, but I never heard from him and still haven't. I don't want to call his office for I fear he might force me to come back there to get the lab results, do more testing, or who knows what else. Has anyone ever had an experience like this? Do I have a right to the lab test results without going back to see him? Help, anyone?

 

I so regret not having walked out of his office when I discovered I was lied to, but I have no courage.

 

Callie

 

 

Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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7 minutes ago, Callie said:

Antidepressants do not affect the brain in any way to change it.

 

What?! The whole reason they are claimed to "work" is precisely because they change the brain. This person sounds awful -- I'm so sorry. I've got a great psych but was dismissed by an internist and told I had BPD when I mentioned my drug-induced physical agitation/akathisia. It's a terrible feeling to be invalidated. Doctors have massive ego issues it seems. It's infuriating. 

 

You absolutely have a right to your test results without having to speak to him again. I would call the office and ask for them. Under HIPAA, you're entitled to copies of your medical records.

Aug-Dec 2015 Prozac 20mg / Dec 2015-Feb 2016 Prozac 15mg / Feb 2016-May2016 Prozac 20mg

May 2016-June 2016 15mg

June 2016-August 2016 10mg

October 2016-January 2017 15mg, alternating agitation/akathisia sets in --> cold turkey

January 2017 Clonazepam .5mg 

February 2017 Clonazepam 1mg (for a week) then .5mg morning and .25mg evening for about a month. Came down to .25mg morning and evening. 

May 1, 2017 Clonazepam .25mg morning and .125mg evening. // May 20, 2017 Clonazepam .25mg morning and .0625 evening (.3125 total).

early June .28125 // early mid june .25mg // mid june .21875 // late june .1875 // early july .15625 // early mid july .125 

mid july .09375mg // late july .0625 //early August 2017 down to .03125mg once a day, hopped off in mid August

reinstated at .0625mg late August // Oct 16 - updose to .07mg and switch to oral Rosemont solution

Nov 17 2017 reinstate Prozac .5mg // Nov 21 2017 prozac 1.6mg // Dec 18 2017  3mg prozac / fast taper off the reinstatement -- probably completely off early Oct 2018

June 2019 begin tapering off .07mg Clonazepam, Finish taper December 2019

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Thanks, bheb,

 

It helps to know I'm not alone. I'll try to build up the courage and call. Thanks for mentioning HIPAA. I'll look it up on the Internet and be ready to quote it in case they give me a hard time.

 

The medical community is even more scary to me now, so I don't know what I'll do if something bad shows in my labs.

 

Callie

Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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This is a follow up to my doctor visit posting.

 

I called the doctor's office the other day to request my lab results and to say I am not going to be a patient there after all. To my surprise, the doctor called me back a little while ago to tell me that my lab results were fine (whew! no thyroid disease) and that I am not going to find a single doctor who treats AD WD. He reiterated that people don't have problems going off the meds. They just stop, and they're just fine. I agree with not being able to find a doctor to help me, so I give up. I wholeheartedly disagree with him, however, about people not having problems stopping the meds.

 

This doctor knows I am not going to go see him again. He said though that he thinks I either have Lyme disease, lupus, or rheumatoid arthritis; but what I have is AD WD disorder.

 

Thank you everyone for your support so far.

 

Prayers,

 

Callie

Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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2 minutes ago, Callie said:

This is a follow up to my doctor visit posting.

 

I called the doctor's office the other day to request my lab results and to say I am not going to be a patient there after all. To my surprise, the doctor called me back a little while ago to tell me that my lab results were fine (whew! no thyroid disease) and that I am not going to find a single doctor who treats AD WD. He reiterated that people don't have problems going off the meds. They just stop, and they're just fine. I agree with not being able to find a doctor to help me, so I give up. I wholeheartedly disagree with him, however, about people not having problems stopping the meds.

 

This doctor knows I am not going to go see him again. He said though that he thinks I either have Lyme disease, lupus, or rheumatoid arthritis; but what I have is AD WD disorder.

 

Thank you everyone for your support so far.

 

Prayers,

 

Callie

Oh What an ignoramus this doctor is ,sadly only time will prove this person wrong ,they are giving meds that are very sketchy with proof if any at all to an "illness that cant be tested correctly and then they claim there isn't withdrawl ,perfect situation for this field of "medicine"  .no proof and then put all the onus on the patient .I'm sick to my stomach with this hierarchy of contempt  that has gone on for way to long .

Everything he thinks you mite have are brought on by withdrawl.

People will discontinue meds for what ever reason and have problems and they would not even attribute there issues or connect it to the meds ,there that good of a spell .

 

Good on you Callie taking  the power back and never stop learning for yourself and about yourself .

Be safe .

Alcohol free since February 2015 

1MG diazepam

4.5MG PROZAC.

 

 

 

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Today marks one year since the end of my rapid taper off of psychotropic drugs. I began experiencing withdrawal symptoms way back while I was tapering, and they have continued till today. Unfortunately, I didn't find SA or know anything about proper tapering until it was too late. My psychiatrist pretended to know but actually knew nothing about how to taper, denied that I was having withdrawal symptoms, and then abandoned me. My regular doctor at the time confirmed the symptoms as being withdrawal; but unknown to me back then--his advice to drink water, sleep, and exercise and it would all quickly go away--was not going to work. I know now that reinstatement and a snail's pace tapering schedule would have been the way to go.

 

I've been keeping a daily record of my symptoms and rating how I feel each day.  I see that I am indeed following the waves and windows pattern finally. Windows for me are just when some symptoms quiet down entirely and the others just minimize. I haven't been symptom free yet, just that some days are a bit more tolerable than most. Over the past year, some symptoms have gone away but were replaced by other ones. Here are my current predominant ones:

 

  • Hypersensitive to touch (everywhere, but intensity is greatest on arms, hands, and fingers)
  • Stinging and nettles sensation on arms (Burning is going away but is being replaced by a sensation that an IV needle is being inserted in my forearms. This sensation is intermittent and brief, thank goodness.)
  • Sensation that my arms, hands, and fingers are blocks of ice
  • Cold intolerance (feel freezing cold most always)
  • Hot flash attacks (These are horrid and often very painful. I have roughly 20 episodes per day.)
  • Sensations in head (pressure with electrical buzzing, can feel in mouth and teeth too, lasts for hours or days, brain zaps perhaps?)
  • Throbbing, pounding head
  • Sensations in torso and legs (creepy, weird, unnerving, burning, tense, tickly, just very hard to describe, akathisia perhaps at times?)
  • Emaciated, skin and bones, maybe loss of adipose tissue (can feel bones, especially tailbone, rubbing inside skin when laying down)
  • Excessive hair shedding
  • Constipation (Probiotics help a little with this.)
  • Severe pain upper right arm
  • Middle back muscles ache
  • Chest pressure and pounding heart
  • Anhedonia

At times, I get severe attacks (wave) of above symptoms hitting simultaneously and intensely causing me to become immobile where I have to sit or lay down and then can't get back up for quite a while. Very painful. Can't even open my eyes.

 

I just keep on hoping that I heal. I'm 64 years old and want my normal pre-medication self back or something close to it. Sometimes I feel it's not going to happen though, but I can't give up.

 

Prayers,

 

Callie

 

 

 

Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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  • Mentor

Wow, Callie: you've been thru the ringer this past year. My one-year anniversary was yesterday and I was so hoping this would be behind me. Glad to hear that at least the symptoms are tolerable sometimes. Hang in there, we will all get better, it just takes a lot longer than ever expected.

  • Prozac | late 2004-mid-2005 | CT WD in a couple months, mostly emotional
  • Sertraline 50-100mg | 11/2011-3/2014, 10/2014-3/2017
  • Sertraline fast taper March 2017, 4 weeks, OFF sertraline April 1, 2017
  • Quit alcohol May 20, 2017
  • Lifestyle changes: AA, kundalini yoga

 

"If you've seen a monster, even if it's horrible, that's evidence of divinity." – Damien Echols

 

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FarmGirlWorks:

 

Congratulations to you on being off of the dreadful drugs for a year, too. We made it this far. We just have to keep on going, and we'll be well someday.

 

Healing thoughts come your way,

 

Callie

Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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  • 2 weeks later...

I have been experiencing a really bad wave for the last couple of days. The pain in my right shoulder and arm is excruciating and is exacerbating my wave.

 

I just want to share with everyone what I found on the Net about arm pain, and I truly believe that this is my problem. It's called "shoulder mouse," and it's from poor mousing ergonomics. When I looked at my setup for mousing, I found that I am guilty of mousing incorrectly. If you're experiencing pain in your mousing-side arm, shoulder, or neck, this can definitely be the cause. I believe that in my case, perhaps not yours, being in such an intense hypersensitive state from a rapid taper off of multiple drugs, any incidental pain I have is off the charts.

 

Anyway, don't put up with mousing shoulder (arm, neck) if you think you have it. There are many sites on the Net that have an inordinate amount of information about. Get your egonomics corrected and heal thy arm pain!

 

Prayers to all,

 

Callie

Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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Back in January I addressed my unintentional weight loss issue here and did get an answer. However, I'm going downhill fast with losing weight. I just lost another pound overnight. My BMI is 17. I need help desperately from someone who has experienced emaciation or pretty close to it from withdrawal. I already checked out the topic on weight gain/loss and didn't find anything. I'm not anxious or depressed either.

 

I'm in bad shape. I can wrap my hand around my entire sacrum as there is nothing but skin and bone there. When laying down, my spine and tailbone rub and roll around inside on my skin, very creepy. Sitting hurts. All my ribs show. Skin is just hanging off my body. I have an appetite and eat well.

 

Help!

 

Callie

 

 

Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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28 minutes ago, Callie said:

Back in January I addressed my unintentional weight loss issue here and did get an answer. However, I'm going downhill fast with losing weight. I just lost another pound overnight. My BMI is 17. I need help desperately from someone who has experienced emaciation or pretty close to it from withdrawal. I already checked out the topic on weight gain/loss and didn't find anything. I'm not anxious or depressed either.

 

I'm in bad shape. I can wrap my hand around my entire sacrum as there is nothing but skin and bone there. When laying down, my spine and tailbone rub and roll around inside on my skin, very creepy. Sitting hurts. All my ribs show. Skin is just hanging off my body. I have an appetite and eat well.

 

Help!

 

Callie

 

 

Hi Callie,

I don't have any answers for you but I want you to know you are in my prayers. There has to be a solution to the weight loss!

Dalalea xx

Dalalea's Introduction

Off All SSRI Medications: Effexor 2010 one month
Sertraline 50 mg. but only took 25 mg. daily because of dizziness. 2010 to July 2017

Tapered over 2 months beginning the 1st of June 2017 -- Off Sertraline by July 30, 2017

Current Medication: Losartan (blood pressure), Albuterol (for asthma- only as needed)
Current Symptoms: tinnitus, hearing loss in one ear, allergies

My Plan: Prayer, Scripture, Walk, Yoga, Encourage Others, Healthy Eating
Generic SSRI Withdrawal Symptom and Plan Checklists and Graph.xlsx

Current Supplements: Magnesium Threonate, Fish Oil, probiotic, B-12, C, D-3

Current Essential Oils: Frankincense, Bergamot, Orange, Lemon, Lavender, Peppermint, Clove
Current Essential Oil Blends: Brain Power, Clarity, Stress Away

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Thanks, Dalalea, for being so thoughtful.

Callie

Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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  • Moderator Emeritus

Callie,

 

I'm sorry you're going through this.  I too have lost a lot of weight due to withdrawal.  I don't have any suggestions but wanted you to know I'm thinking of you and you're not alone in this symptom.

Gridley Introduction

 

Lexapro 20 mg since 2004.  Begin Brassmonkey Slide Taper Jan. 2017.   

End 2017 year 1 of taper at 9.25mg 

End 2018 year 2 of taper at 4.1mg

End 2019 year 3 of taper at 1.0mg  

Oct. 30, 2020  Jump to zero from 0.025mg.  Current dose: 0.000mg

3 year, 10 month taper is 100% complete.

 

Ativan 1 mg to 1.875mg 1986-2020, two CT's and reinstatements

Nov. 2020, 7-week Ativan-Valium crossover to 18.75mg Valium

Feb. 2021, begin 10%/4 week taper of 18.75mg Valium 

End 2021  year 1 of Valium taper at 6mg

End 2022 year 2 of Valium taper at 2.75mg 

End 2023 year 3 of Valium taper at 1mg

Jan. 24, 2024: Hold at 1mg and shift to Imipramine taper.

Taper is 95% complete.

 

Imipramine 75 mg daily since 1986.  Jan.-Sept. 2016 tapered to 14.4mg  

March 22, 2022: Begin 10%/4 week taper

Aug. 5, 2022: hold at 9.5mg and shift to Valium taper

Jan. 24, 2024: Resume Imipramine taper.  Current dose as of Feb. 22: 7.6mg

Taper is 90% complete.  

  

Supplements: multiple, quercetin, omega-3, vitamins C, E and D3, magnesium glycinate, probiotics, zinc, melatonin .3mg, anti-candida, iron, serrapeptase, nattokinase


I am not a medical professional and this is not medical advice but simply information based on my own experience, as well as other members who have survived these drugs.

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  • 4 weeks later...

Help! Help! Help!

 

It doesn't seem as most people in WD experience the emaciation that I am experiencing, so I broke down and went to a gastroenterologist today about my severe weight loss. The doctor told me that the reason I feel cold all the time is because I am so underweight and that it is also causing my hair loss. SIBO and Candida overgrowth were ruled out as my symptoms are not indicative of those illnesses. She wants me to go for a CT abdomen/pelvis w/po & IV contrast. I was okay with that until I got home and started looking into reactions from the contrast dye. It's not recommended for people with histamine issues.

 

One of the drugs I was taking was venlafaxine (effexor). It's widely known that that drug targets histamine receptors, acts like an antihistamine. When one goes off of it, histamine receptors go wild causing one to itch insanely. Boy! Do I know about that first hand. In fact, I still experience mild itching every day. So what it all this boils down to now is that I am terrified of contrast dye. I can barely tolerate the hell I'm in now, and I'd figuratively, if not literally die from a reaction. Yes, among the many reactions, anaphylaxis could occur.

 

What I'd like to know is this:  Has anyone with a histamine issue successfully had a CT scan with contrast? Any other options/insights? I need more information.

 

Thank you,

 

Callie

Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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  • Moderator Emeritus

Callie,

 

I can't for some reason pick up the link but Google     survivingantidepressants.org contrast dye     There's some information there that I hope helps.

 

I did want to let you know that I have experienced emaciation and weight loss since my taper got underway.  I eat pretty well and really as much as I can but it doesn't seem to help.  I don't see so much about in on SA, but it is definitely a WD symptom.

 

Gridley

Gridley Introduction

 

Lexapro 20 mg since 2004.  Begin Brassmonkey Slide Taper Jan. 2017.   

End 2017 year 1 of taper at 9.25mg 

End 2018 year 2 of taper at 4.1mg

End 2019 year 3 of taper at 1.0mg  

Oct. 30, 2020  Jump to zero from 0.025mg.  Current dose: 0.000mg

3 year, 10 month taper is 100% complete.

 

Ativan 1 mg to 1.875mg 1986-2020, two CT's and reinstatements

Nov. 2020, 7-week Ativan-Valium crossover to 18.75mg Valium

Feb. 2021, begin 10%/4 week taper of 18.75mg Valium 

End 2021  year 1 of Valium taper at 6mg

End 2022 year 2 of Valium taper at 2.75mg 

End 2023 year 3 of Valium taper at 1mg

Jan. 24, 2024: Hold at 1mg and shift to Imipramine taper.

Taper is 95% complete.

 

Imipramine 75 mg daily since 1986.  Jan.-Sept. 2016 tapered to 14.4mg  

March 22, 2022: Begin 10%/4 week taper

Aug. 5, 2022: hold at 9.5mg and shift to Valium taper

Jan. 24, 2024: Resume Imipramine taper.  Current dose as of Feb. 22: 7.6mg

Taper is 90% complete.  

  

Supplements: multiple, quercetin, omega-3, vitamins C, E and D3, magnesium glycinate, probiotics, zinc, melatonin .3mg, anti-candida, iron, serrapeptase, nattokinase


I am not a medical professional and this is not medical advice but simply information based on my own experience, as well as other members who have survived these drugs.

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Thanks for responding, Gridley.

 

I tried the link, but no luck with it. I'll try a search. I'm also going to ask the doctor if the CT scan can be done without contrast dye. That might be an option.

 

I just need to confirm with you what I mean by emaciation. I literally have little to no body fat. I look like a person who is dying of starvation. Is this the same for you? Also, a new symptom has arisen in the last week or so. It feels as if the nerves in my body, entwined in my muscles, are tightening up or constricting. Stretching is very painful. In fact, I don't even have to move and suddenly I get excruciating nerve pain in my neck, upper back, arms, and legs, mostly on my right side. It's been 13.5 months since my fast taper ended. Shouldn't I be improving instead of worsening? I'm losing hope fast.

 

Callie

Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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  • Moderator Emeritus

Callie,

 

I am very thin with little body fat, but not to the extent of looking like I'm dying of starvation.  I have had a very tight neck and neck pain, which gets better then worse.  

 

Unfortunately, there is no way to tell when you will improve.  The members' stories here indicate that you will improve but we don't know when.  AD withdrawal is a topsy-turvy situation.  If it were normal, then you "should" be improving, but there are no should in AD withdrawal.  These drugs are strong, they change the architecture of the brain, and the time until you return to homeostasis can't be predicted.  Do not lose hope.  As I said, you will improve.  I wish I could tell you how soon, but I can't.

 

The following was written by Apace, one of our moderators, and I have found it helpful when thinking about how long it takes to heal:

 

"I think the best answer anyone can give you is that over time the brain will return to homeostasis and healing will occur.  How long that will take  and what that means when taking a healing brain along with the passage of time and mixing it all up is anyone's guess.  The success stories, while they did take more time (in most cases) than any of us would like, seem to indicate that there is substantial healing and a lot of people come out "on the other side" feeling better about life and themselves than they did either before or during the use of the drugs.

 

"It would be misleading and, frankly, unethical for me to tell you "don't worry -- you'll be fine in x months."  The reality, as you already know, is frequently different.   My personal experience, however, is that most of the people that find their way to SA have been hit harder than that and are in a situation that is going to take time to repair. 

 

"But, at the end of the day, the people who have been doing this for a long time tell us that healing will happen and we have no reason to doubt that.  The Success Stories bear that out as well and they also indicate that even those among us who are really sick and dealing with hellacious symptoms will, in the long run, see healing and recovery."
 
(end of quote)

 

You may have already read this information but I'm attaching it as it is helpful in understanding what you're going through:

 
 

 

When we take medications, the CNS (central nervous system) responds by making changes over the months and years we take the drug(s). When the medication is discontinued, the CNS has to undo all the changes it made. Rebuilding the neurotransmitter production and reactivating the receptor and transporter cells takes time -- during that rebuilding process symptoms occur.  

Youtube video, 4 minutes: Healing from antidepressants
 
Best,
Gridley
 
 
 

 

Edited by Gridley

Gridley Introduction

 

Lexapro 20 mg since 2004.  Begin Brassmonkey Slide Taper Jan. 2017.   

End 2017 year 1 of taper at 9.25mg 

End 2018 year 2 of taper at 4.1mg

End 2019 year 3 of taper at 1.0mg  

Oct. 30, 2020  Jump to zero from 0.025mg.  Current dose: 0.000mg

3 year, 10 month taper is 100% complete.

 

Ativan 1 mg to 1.875mg 1986-2020, two CT's and reinstatements

Nov. 2020, 7-week Ativan-Valium crossover to 18.75mg Valium

Feb. 2021, begin 10%/4 week taper of 18.75mg Valium 

End 2021  year 1 of Valium taper at 6mg

End 2022 year 2 of Valium taper at 2.75mg 

End 2023 year 3 of Valium taper at 1mg

Jan. 24, 2024: Hold at 1mg and shift to Imipramine taper.

Taper is 95% complete.

 

Imipramine 75 mg daily since 1986.  Jan.-Sept. 2016 tapered to 14.4mg  

March 22, 2022: Begin 10%/4 week taper

Aug. 5, 2022: hold at 9.5mg and shift to Valium taper

Jan. 24, 2024: Resume Imipramine taper.  Current dose as of Feb. 22: 7.6mg

Taper is 90% complete.  

  

Supplements: multiple, quercetin, omega-3, vitamins C, E and D3, magnesium glycinate, probiotics, zinc, melatonin .3mg, anti-candida, iron, serrapeptase, nattokinase


I am not a medical professional and this is not medical advice but simply information based on my own experience, as well as other members who have survived these drugs.

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5 hours ago, Callie said:

Thanks for responding, Gridley.

 

I tried the link, but no luck with it. I'll try a search. I'm also going to ask the doctor if the CT scan can be done without contrast dye. That might be an option.

 

I just need to confirm with you what I mean by emaciation. I literally have little to no body fat. I look like a person who is dying of starvation. Is this the same for you? Also, a new symptom has arisen in the last week or so. It feels as if the nerves in my body, entwined in my muscles, are tightening up or constricting. Stretching is very painful. In fact, I don't even have to move and suddenly I get excruciating nerve pain in my neck, upper back, arms, and legs, mostly on my right side. It's been 13.5 months since my fast taper ended. Shouldn't I be improving instead of worsening? I'm losing hope fast.

 

Callie

Hi callie you need to up your healthy fat intake considerably ,slowly let your body adjust because it will make you nauseous putting lots of fats in at first ,google dense nutrition and healthy fats and  see  what comes up .its one thing eating but the other thing is our body's ability to absorb the nutrients .Avacado ,coconut milk/cream ,organic salmon ,  are just a few ,buy full fat because low fat is a con that is just pumped full of sugar .up the fats and hopefully they stay in your system ,if there passing through you cut back because your just wasting money then .

If your this thin you need to obsess healthily about learning nutrition .I'm shocked at what I've learned  ,we haven't a clue how much our body needs .

I'm no expert but I'm learning from them and this is the silver lining in this nightmare of withdrawl for me ,it forced me to wake up to the fuel my body needs not what is just tasty .

Maybe even do this under the supervision of a GP or nutrionist .

Im  on the poison venlafax 😡.

Take care 

Alcohol free since February 2015 

1MG diazepam

4.5MG PROZAC.

 

 

 

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Omg, callie, just read through your topic and I am so sorry you are suffering so much still after 13 months. I share with you many painful symptoms especially those from parathesia and strange various head sensations.

 

I am now 8 months off lexapro after 4.5 year taper, still suffering badly like you without any windows. 

 

I just had a mri for my back and it knocked me off completely for 10 min or so. I had xray without problems.

 

I hope you will see windows soon, this is too much for too long. Only that now you know you are not alone.

 

Lex

Drug free Sep. 23 2017

2009 Mar.: lexapro 10mg for headache for 2 weeks.

2009-2012: on and off 1/4 to 1/3 of 10mg

2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain

2013 Jan-Mar: 10 mg generic. severe jaw and head pain;

2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain

2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg,

2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on

2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks.

2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR

2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg

2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg,

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Hello Gridley, Powerback, and LexAnger:

 

I've been away from my computer for a few days, so that's why I haven't gotten back to you sooner.

 

You need to know how much I appreciate all of your support. I will look into everything you suggest. Thank you! Thank you!

 

I can't say much more than that right now as I am in a ton of pain and discomfort. Got to go. I'll catch all of you again on another day.

 

Prayers,

 

Callie

Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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  • Administrator

Callie, what do you mean by your "histamine issues"?

 

It could be your emaciation is causing a lot of symptoms.

 

Not to alarm you further, but we had a member here, alexjuice, who became emaciated. It turned out he had severe intestinal parasites (as well as mold exposure). Once this was resolved, he recovered.

 

If I were you, I would be eating lots of bread and butter -- anything to get calories into you. You should be eating everything high-calorie you can get your hands on, as long as it doesn't cause any bad reactions.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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Altostrata:

 

By histamine issues, I had severe itching when I first went off of the drugs. I still have some itching on occasion, but not so bad.

 

I was thinking that I might have something intestinal, so that's why I went to see a GI doctor. She wants me to have a CT scan with contrast. She probably thinks I have cancer. I decided not to do it as the reactions from the contrast dye could be quite severe, not willing to take that chance, plus the test is cost prohibitive at $7000. I have very poor insurance coverage and on a fixed income.

 

I'm going to look into the parasites issue you mentioned and see what testing is needed for that. I'm also considering going to a doctor who specializes in Lyme disease to hopefully rule that out. Many of my symptoms match that disorder, especially the head pressure, which is almost constant.

 

Thanks for the suggestion of increasing caloric intake. Powerback also suggested same. Thank you, too, Powerback.

 

Callie

 

Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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Your more than welcome callie,get watching all them cooking shows to wet your appetite .maybe your gut microbiome is decimated and needs replenishing .

Take care.

Alcohol free since February 2015 

1MG diazepam

4.5MG PROZAC.

 

 

 

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I also lost a weight suddenly . I got Lyme diagnosis. I am treated with herbs and antibiotics.
Also I am struggling with WD symthoms or this comes from Lyme and coinfection.
Best Regards,
 
 

2012 March- low anxiety, I started sertraline and I got adverse reaction. -.I got depression, ss thoughts and other bad symptoms 2012 May I was put on Clonozepam & paroxetine- it helped. I stopped clonozepam after 4 months with no issue. 2012- 2016 paroxetine 20 mg/ 30 mg

10/2016-02/2017 I tappered paroxetine and during this I was feeling wonderfull. 3 months without paroxetine and withdrawal syndrome appeared. I went back to paroxetine but I couldn't stabilise. CRASH
01/08/2016--Bridge to fluoxetine. fluoxetine 20 mg , triticco / trazadone 75 mg , clonozepam 0,5mg
September 2016 I was diagnosed with Lyme disease. I did test in two different laboratories- both positive 04.03.2017. from 20.11.2017 I started tapper from 0.5 to 0.125 mg- when I got some relief from Lyme treatment. I crashed on 01.02.2018, I slowed down tappering.
20/03/2019-  clonozepam 0,0062 mg,  fluoxetine 20 mg, trazadone 75 mg
28/06/2019- clonozepam 0,0023 mg, trazadone 75 mg, fluoxetine 20 mg
29/07/2019- clonozepam 0,0012 mg trazadone 75 mg, fluo-20 mg
13/08/2019 clonozepam 0,0006 mg I cut trazadone to 50 mg bcs of terrible fatique- big MISTAKE- 21.08.2019 updosed trazadone to 62 mg-still WD- 28.08.2019 oryginal dosage 75 mg
26/09/2019 OFF clonozepam, fluoxetine 20 mg, trazadone 75 mg
06/05/2023 OFF clonozepam, fluoxetine 17 mg, trazadone 25 mg HOLD from 20.11.2021
 
FROM WD of paroxetine 2017 I have not recovered. I was diagnosed with Lyme, Bartonella , mold, I have low dao (Diamine oxidase). I don't know why but I have some relief from resweratrol, ginger, famotidine (Pepcid)
 
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Hello, LadyBartonella:

 

Thank you for your response.

 

I am sorry to hear that you are experiencing both WD and Lyme. It's got to be very difficult for you.

 

I had the ELISA Lyme test done, which came back negative. My one doctor (naprapath) is not happy with my other doctor who ordered it. He should have done the Western Blot instead. I'll probably have to go back for that one. I am learning that doctors know very little about Lyme disease, too, not to mention AD WD.

 

I have something eating away at my body; this can't just be from AD WD. That's what my naprapath believes. I have a low grade fever most of the day, swollen lymph nodes, extreme body fat loss and most likely collagen loss, and extremely super hypersensitive skin. This all indicates an infection of some type. I also think that I am experiencing herxing quite often. I've seen a couple of videos online about it, and I look just like those people much of the time.

 

I wondered, too, if detoxing from ADs might cause herxing. Anybody know?

 

I'll be thinking of you, LadyBartonella, and wishing you well.

 

Take care,

 

Callie

Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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I heard from my doctor's office. He will not order a Western Blot for me and told me flat out that I do not have Lyme. He told me to see an infectious disease doctor. I'll wait to see what my naprapath says.

 

While I'm here, does anyone experience waves like this: You actually look like someone who is dying. You can hardly move. You do move eventually because you're having a seizure-like episode of some sort. You can only open your eyes half way no matter how hard you try to open them all the way. Your mouth stays open because you cannot keep it closed. Your breath is rapid and shallow and even stops completely at times. You moan constantly. You can only get up with help from someone and can only walk by holding on to something. You cannot straighten up. You walk slower than a snail's pace. You believe you are speaking loudly and clearly, but those around you can only hear you mumbling softly. You feel overwhelmed by indescribable, unrelenting, and unbearable full body sensations, pain, and discomfort. This all can last from a half hour to week.

 

Anybody? Please tell me. I'm thinking this is a herxheimer reaction. Or am I dying? My mother once told me that some people die very slowly, in stages. Does anyone know? If it is herxing, then I must have a bacterial infection of some sort. I was also thinking that if this only has to do with AD WD, is the body trying to rid itself of some type of chemical residue from the drugs and mimics herxing, if that's what it is?

 

I don't feel as if I have windows at all. It's like going from bad wave, which I'm in now, to really bad wave or do I have AD WD + infection. I don't even know if I'm making any sense here at all. My mind is becoming a massive ball of confusion.

 

Help!

 

Callie

Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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Apparently, no one saw my May 31 post above. Here's part of it:

 

On 5/31/2018 at 12:17 PM, Callie said:

While I'm here, does anyone experience waves like this: You actually look like someone who is dying. You can hardly move. You do move eventually because you're having a seizure-like episode of some sort. You can only open your eyes half way no matter how hard you try to open them all the way. Your mouth stays open because you cannot keep it closed. Your breath is rapid and shallow and even stops completely at times. You moan constantly. You can only get up with help from someone and can only walk by holding on to something. You cannot straighten up. You walk slower than a snail's pace. You believe you are speaking loudly and clearly, but those around you can only hear you mumbling softly. You feel overwhelmed by indescribable, unrelenting, and unbearable full body sensations, pain, and discomfort. This all can last from a half hour to week.

 

I guess the better way to describe this is having a stupor-like episode. Does this happen to anyone else? I'd really like to know.

 

Thanks,

 

Callie

Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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I have not had a "stupor" episode now in 10 days. Knock on wood. I don't know if it's because I stopped taking probiotics or if it's because I found out I have myofascial pain syndrome and have been working on getting the knots out of my muscles--neck, back, and arm. The head pressure I experienced for eight months has gone away which seemed to be associated with the stupors I was having. My mouth still feels strange, however, like it's swollen. I still have chest and throat pressure occasionally as well. Also, for now, I'm going to accept the ELISA Lyme test negative result as I have no choice. I'm back to believing then that all my symptoms are from AD WD.

 

I'm still concerned about my severe muscle loss, and I just discovered something. I was taking venlafaxine HCL XR. HCL stands for hydrochloric acid. I think my use of it and fast taper off of it messed up my stomach lining cells that naturally excrete HCL. It's complicated, but HCL affects proteins in the body. Proteins sustain muscle tissue. I'm beginning to believe then that my HCL cells aren't working, and, of course, I'm not getting HCL from the drug that I stopped taking. This deficiency then might be causing both my muscle and weight loss. That's the only thing I can conclude. Also, I found that many antidepressants contain HCL, not just venlafaxine.

 

I've been to two doctors now who only zero in on my weight loss and don't take any of my other symptoms into consideration. Of course, they know nothing about adverse effects of AD WD. Both of them think I have cancer, but I sincerely doubt that.

 

Anyway, I'm going to buy dual PH strips to find out what my body's PH level is. If it's not where it should be, I'll find out how to self-treat. Besides, doctors in my area no longer do physical exams. They only chit-chat with patients and meagerly attempt to figure out things that way. Gone are the days when they listen to your heart or lungs, check your eyes, ears, reflexes, abdomen, lymph nodes, etc. I think they're using what I refer to as ESP medicine.

 

I don't think anyone here reads my posts anymore; but if by chance someone does, I'd like your opinion on HCL.

 

Healing thoughts,

 

Callie

Lexapro: 2004-2010; Effexor XR 225 mg.: May 2010 - April 2017

Abilify 5 mg.: May 2010 - April 2017; Buspirone 60 mg.: 2004 - April 2017; Trazadone 100 mg.: 2004 - April 2017; Xanax: as needed; Fast taper

 

 

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