UnfoldingSky Posted February 10, 2018 Share Posted February 10, 2018 Nikki, checking in to see what's going on, hoping like bheb you have managed to get some improvements. Thinking of you. xxx I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions. Link to comment
Nikki74 Posted April 10, 2018 Author Share Posted April 10, 2018 (edited) Hi I’d like to reduce and get off the lexapro. Akathisia very bad. Should I go for 10%? Have been posting symptoms on benzo thread. But will copy here: Sleep 8 hours 8am wake up 8.05 heart starts pounding Feel panic about my situation Urgent need for bathroom, loose stools (everyday) 8.30 lexapro, quite sleepy 9am heart pounding, some agitation rising, legs starting to move in bed (twisting and rubbing together), stomach growling Compelled to get up, restlessness rising, diarrhoea Eat, shaking, legs moving as I sit 9.15 clon .5 Must have fallen asleep around 9.45 after agitation calmed down, different to Thursday and Friday when the clon didn’t do anything but rev symptoms up.9.45, woke up 10.45 with a start and panic, can feel agitation rising though drowsy. As with everyday, dread the future and hate the situation I’m in. 11.15 thankfully no pacing so far like yesterday. Just the Internal akathisia discomfort and feeling of dread. Always acidic feeling in stomach. Phoned benzo charity for support as I do daily (mon-thur). Suggested I make another 1/8 cut to get dose down more. 11.40 internal agitation in stomach increasing, some intrusive thoughts, 2.30pm inner agitation continuing with no break, all over body. V restless and extreme discomfort. Some shakiness. 3-4.30 intermittent pacing but constant need to tap feet when not. Surges of extreme agitation/ panic in chest 4.30-5 buzzing and pacing died down 5pm .375 clon Symptoms of agitation eased a bit, depression heavy, tearfulness 7pm feel drowsy and unsteady but agitation in my core 7.15 all over agitation, some nausea which I get quite often even before cutting the clon. Think it’s the agitation. 7.45 extreme agitation 8pm go to bed to feel safe as overwhelmed by all this, lie in bed uncomfortable but still. 8.30-10 high agitation throughout body and shakiness. Deep panic in chest (typical akathisia). Today: sleep 8 hours (15mg Mirtazipine at 11pm every night) 7am wake feed dog Diarrhoea Doze 8.30 lex 9am all symptoms of akathisia rising, gut churning, shaking 9am .5 clon 9.50 writhing around in bed with akathisia 10am shaking, twitching thumb, intense restlessness and internal agitation, nausea 10.30 feel hyper and doing things quickly, head racing Edited April 10, 2018 by Nikki74 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
Moderator Emeritus Shep Posted April 11, 2018 Moderator Emeritus Share Posted April 11, 2018 22 hours ago, Nikki74 said: Sleep 8 hours Nikki, I asked the other mods for feedback and they said that holding is your best way forward right now. As Alto put it, "Sleeping is good. Don't break something that's working." Please hold and continue to post your drug and symptoms journal. Link to comment
Nikki74 Posted April 13, 2018 Author Share Posted April 13, 2018 8 hours sleep wake 7.30 feed dog doze in bed til 8.30 8.30 98% of 5mg lexapro akathisia rising shortly after ( by this I mean all the awful inner sensations, agitation in my chest and gut, legs needing to move) 9am .5 clon, eventually eases symptoms and I drop off to sleep 11.30am wake with intense internal akathisia get up, eat breakfast, v uncomfortable with akathisia under skin and in gut, restlessness Continues until 3pm when able to lie down and inner akathisia reduces but still present just not uncomfortable 5pm .375 clon drowsy evening spent restless but minimal inner akathisia, able to watch some tv whilst keeping busy on phone; ocd symptoms 11pm 15mg Mirtazipine, eventually sleep about midnight. 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
Nikki74 Posted April 15, 2018 Author Share Posted April 15, 2018 As before but 12 noon pacing needed due to intensity of akathisia. If lying down I need to kick my legs. Seated I need to rock. High distress and tears. This continued until 3.30pm when the need to move eases off and am left with agitation and restlessness of akathisia. 5pm .375 clon depression akathisia symptoms ease slightly but dark thoughts restless all evening 9.30pm agitation rises again and need to rub feet together 11pm 15mg mirt sleep 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
Nikki74 Posted April 15, 2018 Author Share Posted April 15, 2018 8 hours sleep wake 8am feed dog, feel anxious and depressed, some dark intrusive thoughts 8.30 take lexapro, feel like I don’t want to take another pill of this stuff pricking feelings under skin soon after inner agitation rising especially in chest, 9 am feel drowsy but need to rub legs together, still tickles/ prickles under skin in different places, some buzzing in ears, heart rate increasing, agitation rising take .5 clon will continue... 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
Nikki74 Posted April 15, 2018 Author Share Posted April 15, 2018 Eventually fall asleep and wake up 11am with looping thoughts, fear of the future and depression 12 eat, agitation rising inside, typical discomfort under skin 1pm massive surge in agitation, hard to breath, nausea probably due to agitation. 1pm panic attack. able to lie in bed and breath. Depression and fear. 3pm lowered agitation 3.20 agitation up again tbc 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
Nikki74 Posted April 15, 2018 Author Share Posted April 15, 2018 Restless all the time. Head going round in circles. 5pm .375 clon initially drowsy 6pm panicky and dark thoughts and feelings. 7pm depression, able to sit, but always a level of agitation and restlessness 8pm akathisia more intense and terrible sense of doom. Unbearable discomfort all over body. Tears. 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
Nikki74 Posted April 15, 2018 Author Share Posted April 15, 2018 Restless all the time. Head going round in circles. 5pm .375 clon initially drowsy 6pm panicky and dark thoughts and feelings. 7pm depression, able to sit, but always a level of agitation and restlessness 8pm akathisia more intense and terrible sense of doom. Unbearable discomfort all over body. Tears. Needing to rub legs together because of intense akathisia. 9pm legs stop, very anxious and exhausted by it all. Able to sit with heat pad on my legs. Agitation lowered. 10.30 go to bed, will take 15mg mirt at 11. sorry for the duplicate above. 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
Nikki74 Posted April 16, 2018 Author Share Posted April 16, 2018 7 hours sleep due to earlier start with term starting completely drowsy and exhausted 8.30 lexapro, made me drowsy 9am .5 clon, surge of akathisia and panic attack within ten minutes then drowsy and slept til 10.30 11 shaking all over, need to rock, lie down and kick/ march legs pacing shaking tears deep breathing listening to soothing music 1pm get dressed 1.30 get a can to visit mum rocking, marching legs while sitting down 3.30 dies down but still internal agitation 4.30 return home better mood but restless 5pm .375 clon, eases symptoms a bit restless all evening as usual but able to sit as long as keeping busy 10pm migraine starting in general ocd is more pronounced. 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
bheb Posted April 16, 2018 Share Posted April 16, 2018 Hey Nikki I know it feels like little consolation but you've got what seems like tiny tiny good breaks. Always a good sign. Hope they get longer Aug-Dec 2015 Prozac 20mg / Dec 2015-Feb 2016 Prozac 15mg / Feb 2016-May2016 Prozac 20mg May 2016-June 2016 15mg June 2016-August 2016 10mg October 2016-January 2017 15mg, alternating agitation/akathisia sets in --> cold turkey January 2017 Clonazepam .5mg February 2017 Clonazepam 1mg (for a week) then .5mg morning and .25mg evening for about a month. Came down to .25mg morning and evening. May 1, 2017 Clonazepam .25mg morning and .125mg evening. // May 20, 2017 Clonazepam .25mg morning and .0625 evening (.3125 total). early June .28125 // early mid june .25mg // mid june .21875 // late june .1875 // early july .15625 // early mid july .125 mid july .09375mg // late july .0625 //early August 2017 down to .03125mg once a day, hopped off in mid August reinstated at .0625mg late August // Oct 16 - updose to .07mg and switch to oral Rosemont solution Nov 17 2017 reinstate Prozac .5mg // Nov 21 2017 prozac 1.6mg // Dec 18 2017 3mg prozac / fast taper off the reinstatement -- probably completely off early Oct 2018 June 2019 begin tapering off .07mg Clonazepam, Finish taper December 2019 Link to comment
UnfoldingSky Posted April 16, 2018 Share Posted April 16, 2018 Hi Nik, good to hear you were able to get out to see your Mom, but I wish it was under better circumstances. bheb hope you are doing okay. USxx I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions. Link to comment
Nikki74 Posted April 17, 2018 Author Share Posted April 17, 2018 8 hours ago, bheb said: Hey Nikki I know it feels like little consolation but you've got what seems like tiny tiny good breaks. Always a good sign. Hope they get longer Thank you Bheb it never goes. I think all along the use of benzos has caused a yo yo effect with it. I wish I could get off the benzo. thank you for your positivity x 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
Nikki74 Posted April 18, 2018 Author Share Posted April 18, 2018 7 hours sleep 7am wake up with akathisia already quite evident 8.15 lexapro made me drowsy 9am clon, panic attack and feeling of aka within ten minutes eventually fell asleep 10.30 woke up in panic internal akathisia quite bad ongoing panic level high 2pm severe panic attack, so bad it caused dr, extreme dizziness and inability to walk, felt I was going to pass out, did mindfulness exercise talking out loud, breathing, eased fear, panic, agitation high all day 5pm clon some easing in symptoms but then deep depression and fear cried a lot during evening feeling of doom really tough day 11pm Mirtazipine Slept 7 hours 7am wake up v drowsy get son off to school 8.15 lexapro made me sleepy 9am clon absolutely no sedation but akathisia symptoms kicked right up within ten minutes pacing, high agitation hardly any mental symptoms today, relief, just odd spells of fear 12 sat down but agitated after lunch, bed, exhausted, having to squirm legs and generally restless but numb feelings 4pm usual aka on edge feeling but managed to chat to my son 5pm clon I can feel it hitting my brain, not nice, agitation a bit lower Restless all evening but internal all over akathisia lower mood generally ok 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
UnfoldingSky Posted April 19, 2018 Share Posted April 19, 2018 Hi Nik, sending you hugs, sounds like a hard couple of days. xx Warm wishes as always, US I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions. Link to comment
Nikki74 Posted April 19, 2018 Author Share Posted April 19, 2018 2 hours ago, UnfoldingSky said: Hi Nik, sending you hugs, sounds like a hard couple of days. xx Warm wishes as always, US Thank you US To be honest, it’s been like this for so long now I don’t know how it’ll ever change. I need to get off these drugs I know that. X 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
Nikki74 Posted April 19, 2018 Author Share Posted April 19, 2018 The clonazepam is now kicking up the akathisia badly when I take morning dose. I feel very stuck and scared. 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
Nikki74 Posted April 22, 2018 Author Share Posted April 22, 2018 7 hours sleep low level aka upset tummy as everyday in the morning 8.30 lex, dozy afterwards 9am clon akathisia, terror and depression all day, pacing and rocking when needed 4pm things cleared and aka lowered 5pm clon slight surge in aka and ocd stuff through the evening but mood better and able to feel almost normal apart from restlessness 11pm mirt 8 hours’ sleep 8.30 lex akathisia not too bad i took the clon later to see if it made any difference 10.30 was more sedating, had to lie down until 1pm aka present but low, able to do a few things in the garden in short bursts took clon 6pm as had taken it later on the morning. Some surge in aka after taking dose and ocd as usual in the evening but generally better with the aka as evening went on First day in weeks I’ve not had the churny akathisia in my stomach No pacing or rocking today 9pm surge in mental symptoms (flashbacks, intrusive memories, moderate panic)and akathisia up 10pm go to bed and able to lie still 11pm mirt slept until 4am woke up with a start and sweating, nightmare, went back to sleep until 7am when woken by dog able to doze a bit but feeling panicky 8.30 lexapro, akathisia gradually increases 9am clon, akathisia up more and agitated, tearful, panicky, depressed all morning, deep breathing helped a bit,now 11.30am 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
Nikki74 Posted April 22, 2018 Author Share Posted April 22, 2018 (edited) I’m wondering if I can get any input/ advice from mods please? i realise after having had akathisia since the cts last June, and knowing now I definitely experienced it when on the lexapro with the pregabalin, that it’s not going to go until I’m off some or most or all of these drugs. I have a big question mark over the lexapro as a potential major contributor to it. But I also see the benzo has mixed effects and is no doubt contributing too. And I wonder if even when on the diazepam it was preventing it improving. Will keep posting Edited April 22, 2018 by Nikki74 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
Moderator Emeritus Shep Posted April 22, 2018 Moderator Emeritus Share Posted April 22, 2018 2 hours ago, Nikki74 said: First day in weeks I’ve not had the churny akathisia in my stomach No pacing or rocking today Sounds like you had a better day in this latest post. I would keep holding for a couple more weeks and see if you can build on this type of improvement, especially since you're still sleeping about 8 hours a night, which is a HUGE improvement from when you first came to the forum. Link to comment
Nikki74 Posted April 22, 2018 Author Share Posted April 22, 2018 36 minutes ago, Shep said: Sounds like you had a better day in this latest post. I would keep holding for a couple more weeks and see if you can build on this type of improvement, especially since you're still sleeping about 8 hours a night, which is a HUGE improvement from when you first came to the forum. Ok Shep, thanks. Back to intense akathisia today but no pacing, ‘just’ the horrendous inner agitation and legs needing to rub together. As I’ve never reached stability, I’m guessing I’ll have to taper from a pretty uncomfortable point eventually. But holding out for some more ‘less bad’ days! 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
Moderator Emeritus Shep Posted April 22, 2018 Moderator Emeritus Share Posted April 22, 2018 24 minutes ago, Nikki74 said: As I’ve never reached stability, I’m guessing I’ll have to taper from a pretty uncomfortable point eventually. But holding out for some more ‘less bad’ days! Exactly. This is the perfect statement for your situation. You may not completely stabilize, but if you can at least gain enough stability to handle the uptick in symptoms when you do start to taper again, you'll be in a much better place going forward. Link to comment
Nikki74 Posted April 22, 2018 Author Share Posted April 22, 2018 20 minutes ago, Shep said: Exactly. This is the perfect statement for your situation. You may not completely stabilize, but if you can at least gain enough stability to handle the uptick in symptoms when you do start to taper again, you'll be in a much better place going forward. Ok yes. I’m learning to deal with extreme adversity everyday (well, I crawl through and do what I can coping wise!) and need the hope that one day I will be off these drugs. Or at least the lexapro and clonazepam, the Mirtazipine I’m shelving for now! You’re pretty experienced on this site, Shep. Have you seen someone get through tapers with intense symptoms and especially akathisia the whole time and make it to healing? I do read success stories particularly on B.B. as there are some extreme stories there! Really appreciate your comments today. 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
Moderator Emeritus Shep Posted April 22, 2018 Moderator Emeritus Share Posted April 22, 2018 4 hours ago, Nikki74 said: Have you seen someone get through tapers with intense symptoms and especially akathisia the whole time and make it to healing? Akathisia is really common and many people go onto heal. This is from Aria's Success Story: On 6/25/2015 at 4:48 PM, Aria said: The worst one was Akathisia and it made me pace for days unable to lay down or sleep without suddenly having to jump up again. If you're guessing the psychiatrist drugged me more thinking this was all me you are right. I had no idea I had Akathisia till a chance consultation with a neurologist. He told me in no uncertain terms the psychiatric drugs were killing me (his words). Drug free ALL of the above are gone. And Pug mentions it in his success story, too. On 6/5/2017 at 6:09 PM, pug said: During the worst of my recovery, when I was dealing with extreme anxiety, akathisia, and I feared going to bed to try and sleep. And Pug is healed and happy now. Please take some time and read these success stories. Right now, you don't know what your withdrawal symptoms are separate from the side effects because you're still on the drugs. I had severe akathisia in 2013 after I cold turkeyed the very last AD I would ever take. And then I had it reappear again in various times after doing cold turkeys off the z-drug and one of the benzos and then after a rapid taper off Klonopin. But I rarely get akathisia now that I'm almost three years off. It's been over a year since it really was a problem. I have other issues, but that one is gone. And that was after multiple cold turkeys. Try not to focus so intently on your symptoms right now because it's not a true picture of where you're going to be - or even who you're going to be - when you heal. The journey through withdrawal makes us all warriors with a bit of the Buddha in us. You'll get there, too. 1 Link to comment
Nikki74 Posted April 23, 2018 Author Share Posted April 23, 2018 7am woke up not feeling too bad, no depression, usual restlessness of akathisia but no other symptoms 8.15 lexapro 9am agitation up, legs rubbing together 9.50 some muscle twitching. I hate this drug! 10pm taking clon a bit later to see what reaction is further away from lex dose. made me drowsy until 11pm but lots of ‘toxic nap’ type experiences and intrusive memories. Plus despair at how my life is. 11.30 up and restless and low agitation but so far none of the buzzing/bugs under skin from the akathisia. tbc... 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
Nikki74 Posted April 23, 2018 Author Share Posted April 23, 2018 (edited) 15 hours ago, Shep said: Akathisia is really common and many people go onto heal. This is from Aria's Success Story: And Pug mentions it in his success story, too. And Pug is healed and happy now. Please take some time and read these success stories. Right now, you don't know what your withdrawal symptoms are separate from the side effects because you're still on the drugs. I had severe akathisia in 2013 after I cold turkeyed the very last AD I would ever take. And then I had it reappear again in various times after doing cold turkeys off the z-drug and one of the benzos and then after a rapid taper off Klonopin. But I rarely get akathisia now that I'm almost three years off. It's been over a year since it really was a problem. I have other issues, but that one is gone. And that was after multiple cold turkeys. Try not to focus so intently on your symptoms right now because it's not a true picture of where you're going to be - or even who you're going to be - when you heal. The journey through withdrawal makes us all warriors with a bit of the Buddha in us. You'll get there, too. Thanks Shep. I appreciated reading Aria’s story in particular. Though I’m sorry she has a long term nerve condition. I seem to be alternating between awful and reasonable days the last few days. The akathisia is always here but lower intensity Sat and today so far. Will post and keep holding for a couple more weeks and see where to go from there. I have some wish to get the benzo dose down to half and see what to do from there. But it is so hard to tell what’s what. I made that tiny 2% lexapro reduction in February and fear that one could be a real tough one. Always that question about how it might be a big issue with the akathisia. I love the idea idea of becoming a warrior through this. And a bit Buddha. Though I think if I wasn’t smoking 20 a day I’d feel a bit more Buddha! Lol. I wish I could cut the ciggies. Ive thought a lot on when things went so severe in January (like nothing I’d experienced even after the cts) and wonder if it was a delayed hit from the cts months prior? Either that or the diazepam turned on me. Anyway. Thanks for the encouraging words. Good to hear your akathisia has been gone for a good bit of time. Edited April 23, 2018 by Nikki74 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
Nikki74 Posted April 23, 2018 Author Share Posted April 23, 2018 Symptoms cont... 1pm agitation rising, strange numb but tingly feeling in my left leg. 2pm agitation increasing, really as always, need to move my feet when sitting down, strange tingly numb feeling in right leg continues. 3pm depression and tears and hopelessness about the years ahead. 4.30pm things lowered again, awfully restless but generally lower symptoms again. 5pm due clon dose but going to take it slightly later as did so this morning. I really don’t feel like I want to take as I’m actually feeling quite drowsy and sedated in my head. slight headache starting, had same last night but forgot to log. Went to sleep last night with a cold cloth over my eyes. 5.30 clon 6.15 panic attack, ocd, dark thoughts, tears 7pm easing off, agitation low but feet needing to move 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
Nikki74 Posted April 24, 2018 Author Share Posted April 24, 2018 Last night severe depression hit me about 8pm until bedtime. Headache came to nothing. Akathisia as always. slept 7 hours V depressed on waking 8.15 lex made me drowsy, awful intrusive thoughts and head looping 9.30 clon, twitching face, surge in akathisia, major depression. Agitated all morning and into the afternoon, very restless. 1pm mainly akathisia, no pacing but intense restlessness and agitation. 1.30-3pm friend took me out, staggered along the seafront a bit in dr and agitation but good to get out. Fatigue due to CFS and symptoms. 3.30-4.30 restless but not high agitation 5pm tears and depression 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
Nikki74 Posted April 24, 2018 Author Share Posted April 24, 2018 So it seems to me that the best chance of healing from akathisia is to get off all the drugs. It has been constantly with me since June when I’d ct’d the lexapro and pregabalin and was made worse with every change after that. But I know I definitely experienced it when on pregabalin with the lexapro just not constant or like it is now. I also know I experienced shaking, muscle twitches and extreme anxiety suddenly on the lexapro in 2016. Then trazodone was added and the lexapro reduced from 22.5 to 20 and a couple months later it seemed I had a mild case of serotonin syndrome with over reactive reflexes and a myriad of other symptoms. Also extreme anxiety. Not sure if any of this were hints of akathisia. i have squeezed my hands and rubbed my feet together but without feeling distress as I do now doing it because of the aka, for years. But was this drugs or alcohol ie gaba stuff? I really want to get off the benzo but also the lexapro. Feeling very trapped and scared I will be stuck with this thing. I see Aria came off many drugs in one go? 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
UnfoldingSky Posted April 25, 2018 Share Posted April 25, 2018 Hi Nikki, wished to see how you are. Lovely to hear you got out with your friend, by the sea. Getting out to natural areas always helped me, and when it was warm enough walking through water helped too, made me feel more grounded. I wish you weren't so fatigued so you could get out more. Thinking of you, USxxx I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions. Link to comment
Nikki74 Posted April 26, 2018 Author Share Posted April 26, 2018 Yesterday woke 6.30, severe depression, low agitation 8.15 lex drowsy, depressed and tearful, low agitation 9 clon Tears and severe depression continued until about 11am Restless as always migraine 1pm severe depression and tears 1.30 Sister took me to Dartmoor. Helped to be in nature, even managed a laugh 3pm home and absolutely exhausted, bed, dozing, toxic naps, then shivering like flu, could barely move though usual akathisia inside, confusion and restlessness on trying to get up to make dinner 5pm clon Restless, tearful 6pm symptoms ease, but migraine kind of pounding in waves,able to make dinner but usual restlessness evening no more depression or tears, restless but ok ish 10.30 bed - migraine, cold cloth over eyes 11 Mirtazipine slept til 6.30 woke up highly agitated, heart pounding 8.15 lexapro able to lie down til 9 but akathisia ramped up and rocking, breathless, tearful, depressed, despair, 9 clon, lying in bed as overwhelmed, having to rub legs together due to agitation. Intrusive memories. Very low. Anxiety. 10.30 same continues, legs moving constantly 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
Nikki74 Posted April 26, 2018 Author Share Posted April 26, 2018 Very high agitation all day so far and now having to pace or lie down and kick or bounce legs 2pm I’m so sick of these drugs! 3pm total exhaustion like yesterday same time, in bed shivering, feel nauseous, eyes keep closing but jolt back open due to weird images or memories that make me feel like I’m there. Crying and depression 5pm clon 6pm sedated and depressed 7pm mood lifts and generally improved, able to function, cook, be with family, watch tv. Underlying restlessness. 8.15 sudden depression and tearfulness again 9pm ok ish, restless but better than during the day by a long way. 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
Nikki74 Posted April 26, 2018 Author Share Posted April 26, 2018 Is cutting some lexapro and some benzo possible? Not at the same time but somehow to get both doses down a bit? 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
Administrator Altostrata Posted April 26, 2018 Administrator Share Posted April 26, 2018 Nikki, you're going to have to think about balancing out the benzo throughout the day. Please discuss in benzo forum. This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. "It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein All postings © copyrighted. Link to comment
Nikki74 Posted April 26, 2018 Author Share Posted April 26, 2018 11 minutes ago, Altostrata said: Nikki, you're going to have to think about balancing out the benzo throughout the day. Please discuss in benzo forum. Ok thank you. I was wondering that myself. Will do. 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
Nikki74 Posted April 27, 2018 Author Share Posted April 27, 2018 Severe akathisia today. After taking lexapro it shot right up and clonazepam dose has done nothing. I’m really despairing. I cope best I can but barely able to function. 2009-2011 mirtazapine 45mg plus clonaz as needed. Start Lexapro Nov 2011. June 2016 Zopiclone, July-Sept Trazodone 50mg, adverse reaction, ct, started pregabalin, reduced Lexapro from 20 to 15mg Start of 2017 on 15mg lexapro, 100mg pregablin. April added 15mg mirtazapine. End May. Start June stop pregablin after two week taper. End June. Stopped Lexapro 15mg 3 wk taper. Start July Mirt 30mg + Diaz daily 2-4mg End July returned to mirtaz 15mg + lexapro at 10mg reinstated. 4th Aug - 19 Sept Zopiclone (3.75 then 7.5 then 3.75 at the end) diazepam 7-8mg day since then. 16 Sept cut lex to 5mg. 5-6 Oct swapped 5mg lex to 8.15am and 15mg mirtazipine to 11pm 8 Oct onwards sticking to 6mg diazepam p/day 3 doses/ 2 Feb start 1mg clonazepam, stop Diaz. 21 Feb 2% cut lex. 8 March 12.5% clon cut. Now take .5 clon 9am, .375 5pm(0.875 mg daily clonazepam) 16 May @8% clon reduction so 9am dose .43(0.805 mg daily clonazepam) 2 July 10% Lexapro reduction to 4.5mg. 9 Aug .25mg lex cut to 4.25mg/ 13 Aug 4.5mg 2018 October Lexapro 4.5 to 4.25 mg clonazepam 0.80 mg mirtazapine 15 mg 2019 October present drugs: Lexapro 2.75 mg(tapers of 0.25 increments in last year at 5 -9 week intervals), clonazepam 0.78 mg(taper of .02 mg November 2018), mirtazapine 15 mg 2020 January 5th Lexapro taper to 2.57 mg(2%drop), total clonazepam 0.78 mg, mirtazapine 15 mg previous signature here recent dosing and symptom logs here Link to comment
Recommended Posts
Please sign in to comment
You will be able to leave a comment after signing in
Sign In Now