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☼ RealMe: fighting depression/withdrawal from Abilify, Trintellix now on Prozac

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nz11
3 hours ago, RealMe said:

I couldn't figure out how to do it.  Sorry.

 

Write a brief my psych drug harm story on a word document then email it as an attachment to the email address:

petitions@parliament.scot and quote PE01651 in the subject heading

No pressure though.

 

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RealMe

I went to my gp today for my checkup, and he wrote a prescription for 10mg. fluoxetine tablets.  I just have to wait for the drug store to call me.  This is something like how it went:

RM:  May I please have my 10mg. prescription in liquid form so that I can taper down to the lowest effective dose?

GP:  You are already on a low, geriatric dose.  With your history of alcohol ...

RM:  42 years ago!

GP:  ...and depression, I don't want to change what you are on.  Why do you want to lower your dose if you are feeling better.

RM:  I feel I am stable and want to see what the lowest effective dose would be.

GP:   What do you feel has caused the improvement?  Medication or circumstances in your life?

RM:  I'm not sure, but I am feeling better.

GP:  Are you seeing a therapist?  What does he think?

RM:  Yes.  He is supportive.  (I didn't mention anything about the psychiatrist or former meds, Abilify & Trintellix, etc. or that I've only been seeing this new therapist for a couple of weeks.  He apparently forgot he had sent me to both the psychiatrist and therapist I just fired.)

GP:  Tell your therapist to give me a call, and maybe we can reduce it to 5mg.

RM:  ok.

 

Tomorrow I see the therapist.  What do I say to him?

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Littlegrandma

Wow. I don’t get it. Maybe he cares about your well being and is doing what he thinks is best for you, but I think he’s treating you like a child. It is your body after all. He sounds more like a control freak.  My GP would never talk to me like that. He gives his opinion, but let’s me make my own choices when it comes to my body and health. 

 

Tell your therapist that you are going down in dose and to call your dr and tell him the same. Tell him to give you the dam$ liquid. It’s your right!

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Littlegrandma

PS   I wish I could give you a hug!!

Lg

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nz11

Gee these doctor test our patience don't they.

Is it possible to talk to the pharmacist and say ive a got prescription for 10mg can i have it in liquid please.

Maybe you are saying to the doctor i want liquid but as doctors only have the listening skills of a child as they do he is only hearing the last few words of your sentence ..would like to taper.

Many people are not telling their doctor they are tapering i think BM's doctor still thinks he is on 40mg paxil and he has been drug free for nearly a year now having tapered covertly for 5.5 yrs.

 

Maybe tell the therapist to tell the doctor that he should give you liquid as switching to the liquid gives you greater control over reducing the dosage slowly and that a drop to 5mg will be too much for you. Especially as you are integrating his excellent and beneficial therapy strategies and want to be able to have minimal  interruption as possible  by wdl symptoms while you are having so much success and improvement. ;)

 

Maybe just concentrate on getting the liquid and not mention the tapering bit. Perhaps the therapist could say he has many clients currently taking liquid and they have found it helpful to set up the tapering platform while integrating self soothing and coping skills from which you are seeing great improvements.:)

 

Let us know how it goes.

Good luck

 

 

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Downbutnotout

Sorry about that. 

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Downbutnotout
40 minutes ago, Downbutnotout said:

Sorry about that. Sorry about repeating myself. I hope you get what you want. It’s not helpful when there is no support aside from this site. People on here are very brave. 

 

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samanthaelizabeth

My doctor is on board with my tapering Mirtazipine.  But, I don't think he will be for my Zoloft so I'm just not going to tell him! I'll have to figure out a way to do it on my own!

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RealMe
4 hours ago, Littlegrandma said:

PS   I wish I could give you a hug!!

Lg

Thank you, LG!  I can sure use one.  I actually felt pretty good about myself that I didn't cry or give too much information that would cause him to want to updose!!!!  I really don't know what my therapist will say since I've only seen him twice!  I didn't mention that to the GP.  I'm sure he assumed I was seeing the same therapist I had been seeing.  She was definitely anti-tapering.  I'm not sure about the current therapist.  I had no idea he would be involved in my meds whatsoever.  Plus, the doctor gave me capsules, not tablets.  Now I have to buy a digital scale to do my 10% tapers in cranberry juice!

 

I also got over the hurdle of the GP throwing me back to the psychiatrist in order to get my script.  I am completely finished with the psychiatrist. Yay.

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RealMe
37 minutes ago, samanthaelizabeth said:

My doctor is on board with my tapering Mirtazipine.  But, I don't think he will be for my Zoloft so I'm just not going to tell him! I'll have to figure out a way to do it on my own!

Everything I know about tapering I am learning here.  If I hadn't been on this forum, I would have taken my GP's opinion as gospel that I would have to be on at least 10mg of prozac presently with increases and add-ons looming in my future.  I am certainly feeling empowered.

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RealMe
1 hour ago, Downbutnotout said:

Sorry about that...

Thanks for responding, DBNO!  How are you today?

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RealMe
3 hours ago, nz11 said:

Is it possible to talk to the pharmacist and say ive a got prescription for 10mg can i have it in liquid please.

I asked for liquid or a tablet, and not a capsule; but they wouldn't do it.  

3 hours ago, nz11 said:

Maybe just concentrate on getting the liquid and not mention the tapering bit. Perhaps the therapist could say he has many clients currently taking liquid and they have found it helpful to set up the tapering platform while integrating self soothing and coping skills from which you are seeing great improvements.

I like this approach.  I will read it several times before I see the therapist tomorrow.  Actually, I'm thinking of just working with the capsules and not telling the therapist to call the doctor at all at this point.  Such a tangled web of ganglia in the mental health world.

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Downbutnotout

I thought I did a little better today, but I  wouldn’t have gotten out of bed if my husband hadn’t shoved me out. We went to lunch, and of course I didn’t want to eat it, but I did. I thought okay, I’m feeling a little better, maybe there’s some hope. We went to see my 95 yo aunt, and I realized she’s in much better shape than I am and she has advanced  Alzheimer’s.  You are a real strong individual, standing up to the medical establishment, and knowing what’s good for you.  A “geriatric dose”. How insulting. 

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RealMe
54 minutes ago, Downbutnotout said:

I thought I did a little better today, but I  wouldn’t have gotten out of bed if my husband hadn’t shoved me out. We went to lunch, and of course I didn’t want to eat it, but I did. I thought okay, I’m feeling a little better, maybe there’s some hope. We went to see my 95 yo aunt, and I realized she’s in much better shape than I am and she has advanced  Alzheimer’s.  You are a real strong individual, standing up to the medical establishment, and knowing what’s good for you.  A “geriatric dose”. How insulting. 

Thanks, DBNO.  Glad you went out on a lunch date with your husband.  Good for you!  Yes, there is hope.  Good and kind of you to visit your Aunt.  Thank you for calling me strong.  What a contrast--let's see-- Strong??? or Geriatric???-- hmmm!  I think I'll take the dose of strong instead of the geriatric. :)

 

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RealMe

Today was both good and difficult.  Difficult because tinnitus is ramped up and driving me up a wall.  Can't stand it, no escape.  My physician told me yesterday that I need to exercise even if the tinnitus acts up, so I did today; and I guess that is why it is ramped up.  Don't know.  Difficult because he called me today that my cholesterol is up and I need to take meds which, of course, I hate to even think about.  I have been sedentary and not watching my diet for weeks now.  I didn't load up on carbs at all, but too much fat, I think.  I will see if watching diet and exercise will help.

 

Good because my new therapist is on board with helping me get the physician to prescribe liquid prozac so I can taper slowly.  He is new to the idea, but he is accepting my goal.

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RealMe

I hope I get tired enough to go to sleep soon so I can escape.  SI setting in again.

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Littlegrandma

RM hang in there. 

Sorry about the cholesterol diag. 

Youre stuck between a rock and a hard place.  Anything besides gentle walking ramps up my tinnitus. It’s not just the noise though. It comes with ear and brain pressure. Do you get that?

 Are you going to try and control with diet and exercise before you take the meds? I wouldn’t be surprised if the wd is causing your cholesterol level to rise.  Why not?  It effects everything else. 

 

I hope you have a peaceful sleep!!

lg

 

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RealMe
32 minutes ago, Littlegrandma said:

RM hang in there. 

Sorry about the cholesterol diag. 

Youre stuck between a rock and a hard place.  Anything besides gentle walking ramps up my tinnitus. It’s not just the noise though. It comes with ear and brain pressure. Do you get that?

 Are you going to try and control with diet and exercise before you take the meds? I wouldn’t be surprised if the wd is causing your cholesterol level to rise.  Why not?  It effects everything else. 

 

I hope you have a peaceful sleep!!

lg

 

I've just recently been feeling ear pressure.  I thought it was just because I focus so much on my ears--even though the sound is only in my head, not actually in my ears.  I haven't experienced brain pressure.

I am definitely going to try to control with diet and exercise because I can't even consider the side effects those cholesterol meds cause me.  The last time I took them I could hardly walk with the pain and stiffness they caused.

Thank you for hanging out with me, Littlegrandma!  I feel like never waking up again, but it's just a feeling.  Hopefully, tomorrow will be better, and I will be stronger (like Scarlet O'Hara would say, "after all, tomorrow is another day").

 

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Littlegrandma

I am so tired at night, I can’t wait to get in bed. But I toss and turn and go in and out of sleep. I finally put a few hours together. I take Ativan and lunesta. You’d think that would knock me out for a good 8. But I fear the morning. I wake at 4 with trembling anxiety. And the nighttime drug combo causes a hangover that is hard to shake. 

 

Glad you’re not taking the cholesterol med just yet. If you can control it by diet and exercise, I’d definitely start there first. Gentle walking. Do you drink smoothies? I usually have one for breakfast and lunch. I’ve gotten real good at not grabbing the chips, ice cream, and other junk food that my husband still enjoys  

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RealMe
6 hours ago, Littlegrandma said:

I am so tired at night, I can’t wait to get in bed. But I toss and turn and go in and out of sleep. I finally put a few hours together. I take Ativan and lunesta. You’d think that would knock me out for a good 8. But I fear the morning. I wake at 4 with trembling anxiety. And the nighttime drug combo causes a hangover that is hard to shake. 

 

Glad you’re not taking the cholesterol med just yet. If you can control it by diet and exercise, I’d definitely start there first. Gentle walking. Do you drink smoothies? I usually have one for breakfast and lunch. I’ve gotten real good at not grabbing the chips, ice cream, and other junk food that my husband still enjoys  

I dread the mornings.  I wake up a few times or more during the night but always go right back to sleep.  In the morning, it is very hard to rouse myself.  At 7:30 I fix my granddaughters' hair, my husband drives them to school, and I go back to bed till around 9:30.  Today, it was 11:00 before I got up, and I've been on the computer all morning, just escaping.  That to me is more of a character problem than depression, but I can remember when I wasn't just wanting to escape the sounds and anxiety.  So I'm hoping that as I recover from withdrawal, I will return to homeostasis--whatever that is for me.  Back in the day, in my twenties, I was taking Valium "as needed" for panic attacks on the advice of my doctor and developed quite an awful addiction.  I CT'd off them without medical assistance when I realized they were not "medicine" for me, just horrible addiction with no benefits.  I have never been tempted to take benzos or sleeping aids since then.  I have never forgotten that terrible withdrawal, but I was assured by my psychiatrists and doctors that ADs were not addictive.  When side effects occurred, I was advised to "just stop taking them" or add another one!  We all know how that worked for us.

 

I don't eat sugar or flour at all, sometimes a little breading on my meat.  I avoid salt and fat as well.  Now I find that tomatoes and nitrates ramp up the tinnitus, so I don't eat them anymore.  I think I need to eat less meat and more vegetables and fruits.  I've never had a smoothie and don't own a blender.  I don't eat any junk food.

 

 

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Littlegrandma

I swore off benzos too, as I was inpatient for 5 weeks getting off of xanax. That was 30 yrs ago. Funny thing is, that was at Mayo Clinic and they’re the ones that put me on a steady dose of Ativan last August.  I didn’t fight it that hard because I had akathasia for 2 months and hadn’t slept. Stupid pdoc that I was lucky enough to have on my team, and her other 2 stupid sidekicks, don’t believe in wd. I was too sick to argue with her. She was a 30 something that treated me like a child. Don’t wish this feeling on anybody, but man if she could have it for 15 min just for an attitude adjustment, that would be great. 

 

Do your grandkids kids live with you? Or they just come early?  My daughter has always worked 2nd shift. She was working ER in Chicago and commuting, so my days started much earlier. She’s recently transferred to an urgent care 15 min from my house. I don’t have them til noon now. I’m thankful for that. My mornings are rough. Can hardly take care of myself. 

 

I had a piece of candy at my moms house yesterday. It was wonderful. I gave up sugar and caffeine just before I started tapering. Don’t miss it. I do have an occasional ice cream cone when I go out with one of my girlfriends. We used to go to a bar. How times have changed!

 

having a tough day today with nausea and headache and blah. My kids and grandkids are coming for dinner tonight. We decided it’s going to be carry out. My husband worked all day yesterday and went back in at 9 til 8 this morning. I sure can’t put a meal together these days. They were looking forward to dad’s grilling. Oh well. 

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RealMe
3 hours ago, Littlegrandma said:

Do your grandkids kids live with you? Or they just come early?  My daughter has always worked 2nd shift. She was working ER in Chicago and commuting, so my days started much earlier. She’s recently transferred to an urgent care 15 min from my house. I don’t have them til noon now. I’m thankful for that. My mornings are rough. Can hardly take care of myself. 

 

I had a piece of candy at my moms house yesterday. It was wonderful. I gave up sugar and caffeine just before I started tapering. Don’t miss it. I do have an occasional ice cream cone when I go out with one of my girlfriends. We used to go to a bar. How times have changed!

Their father drops them off at 6 or 6:30 on his way to work.  They go to Catholic school near us.  Our daughter, their mother, works near their home.  Two or three days a week we pick them up from school and keep them until our son-in-law gets here on his way home from work about 5:30.  Then we also run errands for three other granddaughters who live a few blocks away--piano lessons, softball, etc.  We have two other grandchildren who live in New Jersey that we don't see enough.  Their ages are from 16 to 6.  I miss having babies, so comforting to cuddle them.

 

I haven't had a piece of candy or any ice cream in two years.  I haven't had alcohol for over 40 years.  It's easier for me to stay away from sugar  than try to control it once I start.  I still drink coffee, but only instant.  Sometimes I drink decaf tea.

 

Today I was so sedentary, afraid to ramp up the tinnitus.  Just tried to escape all day on the computer, a little on the telephone.  Made dinner.  Went to the doctor's office to sign a release so my therapist can talk to him about getting me my liquid prozac so I can taper.  I have to learn to habituate and stop reacting emotionally to my symptoms and lingering side effects if I am going to have a good outcome.

 

I hope you are feeling better and that you have a nice dinner with your family tonight.  Thanks for spending time with me.

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RealMe

The therapist called my physician, and the physician just called me.  This is what he wants me to do:

 

Pick up a 20 mg. solution with dispenser.

Week 1:  2.5 ml alternate with 1.25 ml

Week 2:  1.25 ml

Week 3:  1.25 ml every other day

Week 4:  Discontinue & go to dr. office visit

 

If depression or anxiety surface, call the office.

 

Moderators, please help me.  I think I'm on my own or I'm s_____d.

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samanthaelizabeth
2 minutes ago, RealMe said:

The therapist called my physician, and the physician just called me.  This is what he wants me to do:

 

Pick up a 20 mg. solution with dispenser.

Week 1:  2.5 ml alternate with 1.25 ml

Week 2:  1.25 ml

Week 3:  1.25 ml every other day

Week 4:  Discontinue & go to dr. office visit

 

If depression or anxiety surface, call the office.

 

Moderators, please help me.

Hello, I hope the MODS come to your rescue soon!  I just can't believe these doctors, Unbelievable!

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Littlegrandma
17 minutes ago, samanthaelizabeth said:

Hello, I hope the MODS come to your rescue soon!  I just can't believe these doctors, Unbelievable!

Ditto

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Kristine
35 minutes ago, RealMe said:

The therapist called my physician, and the physician just called me.  This is what he wants me to do:

 

Pick up a 20 mg. solution with dispenser.

Week 1:  2.5 ml alternate with 1.25 ml

Week 2:  1.25 ml

Week 3:  1.25 ml every other day

Week 4:  Discontinue & go to dr. office visit

 

If depression or anxiety surface, call the office.

 

Moderators, please help me.  I think I'm on my own or I'm s_____d.

Hey RM, oh Lord..I'm currently shaking my head :angry: I've noticed many doctors advising these alternating doses.  I'm wondering what their rational is.  Is it that fluoxetine has a long half life? Who knows.  You are not on your own RM, you have us! Love to you. K xo

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RealMe
2 minutes ago, Kristine said:

Hey RM, oh Lord..I'm currently shaking my head :angry: I've noticed many doctors advising these alternating doses.  I'm wondering what their rational is.  Is it that fluoxetine has a long half life? Who knows.  You are not on your own RM, you have us! Love to you. K xo

All I wanted to do was slowly titrate down.  For someone who didn't think I should stop taking 10mg, why he decided with the therapist that I should completely withdraw in one month is beyond me.

 

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Kristine
1 minute ago, RealMe said:

All I wanted to do was slowly titrate down.  For someone who didn't think I should stop taking 10mg, why he decided with the therapist that I should completely withdraw in one month is beyond me.

They are ill informed.  This is your life and your body.  It is your choice how to titrate...no one else's.  It will be okay. Love K xo

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Littlegrandma
17 minutes ago, Kristine said:

They are ill informed.  This is your life and your body.  It is your choice how to titrate...no one else's.  It will be okay. Love K xo

Agreed!! I don’t understand what difference it makes to him how fast or slow you come off these meds. You’re paying him. He works for you. Everything you read about these drugs say you should taper slowly. I’m flabbergasted. 

He is an arrogant, controlling human. 

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RealMe

I've already figured out that I have to figure out what I need, then figure out how to get it.  I can't count on convincing anybody of anything, especially doctors.  In spite of what happened with my doctor, I can't waste my energy.  I know he thinks he is doing right by me.  And, of course, he believes he knows better than I. (ha!)

 

So, what's left to do?  I have 30 days of fluoxetine capsules and a 20 mg. bottle of liquid fluoxetine.  What do I do with that to get the slow taper I'm looking for?

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Kristine
7 minutes ago, RealMe said:

So, what's left to do?  I have 30 days of fluoxetine capsules and a 20 mg. bottle of liquid fluoxetine.  What do I do with that to get the slow taper I'm looking for?

Hey RM....what is the concentration of the liquid fluoxetine? Eg..20mg in how many mls?  Hopefully a mod will drop by soon...thinking of you K xo

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RealMe
Just now, Kristine said:

Hey RM....what is the concentration of the liquid fluoxetine? Eg..20mg in how many mls?  Hopefully a mod will drop by soon...thinking of you K xo

I have a problem with numbers to begin with.  I don't know how to figure out the mls!  I still have a few of the 20 mg. tablets left.  What I have been doing to get my 9 mg. is to cut the 20 mg. scored pill in half with a pill cutter, then shave a smidgeon off of the 10 mg. half tablet.  I feel like I could probably go down another mg. but not go off completely in a month.

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Downbutnotout
6 hours ago, Littlegrandma said:

I swore off benzos too, as I was inpatient for 5 weeks getting off of xanax. That was 30 yrs ago. Funny thing is, that was at Mayo Clinic and they’re the ones that put me on a steady dose of Ativan last August.  I didn’t fight it that hard because I had akathasia for 2 months and hadn’t slept. Stupid pdoc that I was lucky enough to have on my team, and her other 2 stupid sidekicks, don’t believe in wd. I was too sick to argue with her. She was a 30 something that treated me like a child. Don’t wish this feeling on anybody, but man if she could have it for 15 min just for an attitude adjustment, that would be great. 

 

Do your grandkids kids live with you? Or they just come early?  My daughter has always worked 2nd shift. She was working ER in Chicago and commuting, so my days started much earlier. She’s recently transferred to an urgent care 15 min from my house. I don’t have them til noon now. I’m thankful for that. My mornings are rough. Can hardly take care of myself. 

 

I had a piece of candy at my moms house yesterday. It was wonderful. I gave up sugar and caffeine just before I started tapering. Don’t miss it. I do have an occasional ice cream cone when I go out with one of my girlfriends. We used to go to a bar. How times have changed!

 

having a tough day today with nausea and headache and blah. My kids and grandkids are coming for dinner tonight. We decided it’s going to be carry out. My husband worked all day yesterday and went back in at 9 til 8 this morning. I sure can’t put a meal together these days. They were looking forward to dad’s grilling. Oh well. 

I  thought the Mayo Clinic was a premier place. So none of them know what they’re doing? I’m wondering if I should cancel my tms try out on Tuesday. I’ m afraid it’s going to shake up my brain too much. I want to sue them all or get a cat scan before they shake up my brain. It just feels unsteady. 

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Kristine
1 minute ago, RealMe said:

I have a problem with numbers to begin with.  I don't know how to figure out the mls!  I still have a few of the 20 mg. tablets left.  What I have been doing to get my 9 mg. is to cut the 20 mg. scored pill in half with a pill cutter, then shave a smidgeon off of the 10 mg. half tablet.  I feel like I could probably go down another mg. but not go off completely in a month.

It's okay RM, there is no need to do any math.  The solution will written on the label.  For example 20mg/5ml. I just realise you may not have it yet.  In a few days time I'm going to be crossing over my fluoxetine (by making my own liquid) with my left over capsules to a dispersible fluoxetine.  A tablet designed to dissolve in water. It is expained on my thread.  A month is way to fast. That psyc is an idiot. I'm hoping you can get a prescription elsewhere but I'm sure I've read that this is an issue.  Sorry I'm not  able to think or read very well today.  Love K xo

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RealMe
3 minutes ago, Kristine said:

It's okay RM, there is no need to do any math.  The solution will written on the label.  For example 20mg/5ml. I just realise you may not have it yet.  In a few days time I'm going to be crossing over my fluoxetine (by making my own liquid) with my left over capsules to a dispersible fluoxetine.  A tablet designed to dissolve in water. It is expained on my thread.  A month is way to fast. That psyc is an idiot. I'm hoping you can get a prescription elsewhere but I'm sure I've read that this is an issue.  Sorry I'm not  able to think or read very well today.  Love K xo

I'll check your thread to see what you will be doing to make your own liquid.  Thanks, Kristine! xo

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Kristine
2 minutes ago, RealMe said:

'll check your thread to see what you will be doing to make your own liquid.  Thanks, Kristine! xo

Haven't quite got that far yet but will.  I haven't been able to pick up the new script...feeling not so good.  But I'll let you know when I do.  Prob Monday or Tuesday xo

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