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Kristine
20 hours ago, FarmGirlWorks said:

I'll add "sticking my head in a bucket of peanut butter" to "dog's breakfast" which I still use. Ah, WD sucks lemons (I'd say something else but trying to keep it PG). Good vibes being sent your way across a few continents and a bit of water.

Just make sure it's crunchy :D it sure does "suck lemons"..yeah, I've got a few choice words myself. Sending you good vibes as well FGW. Much Love and (((hugs))) K xo

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Kristine
On 25/04/2018 at 1:20 PM, Downbutnotout said:
On 25/04/2018 at 12:56 PM, Rosetta said:

Dear Kristine, you are so kind to everyone.  Thank you for being there for me when you are suffering so.  I wish you much more than 3 hours of sleep tonight.  And a nap, too!

Yes, I agree. With all of it.a truly unselfish person. I hope your suffering diminishes.

Hey D, thank you for stopping by and for your kind words. You have been in my thoughts and I'm also hoping your suffering has eased. Much Love and (((hugs))) K xo

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Kristine

Hey All,  The ongoing insomnia is taking its toll. i have increased the magnisium to 150mg daily divided into 4 doses. I am considering reintroducing fish oil tomorrow. I do have a natural supplement for insomnia containing "ziziphus, hops and lactium"...or should I consider melatonin? Aspirin? To be honest I don't know what to do. My resolve to "ride it out" is cracking but I know I have no choice. Any advise would be welcome. 

 

Love to you All. K xo

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SkyBlue
7 minutes ago, Kristine said:

Hey All,  The ongoing insomnia is taking its toll. i have increased the magnisium to 150mg daily divided into 4 doses. I am considering reintroducing fish oil tomorrow. I do have a natural supplement for insomnia containing "ziziphus, hops and lactium"...or should I consider melatonin? 

 

 

Hi Kristine,

 

Insomnia can be brutal for sure. 

 

Fish oil definitely sounds worth a try. There is a thread here: http://survivingantidepressants.org/topic/36-king-of-supplements-omega-3-fatty-acids-fish-oil/

 

*(Most of the info you'll need is in the first post)

 

Magnesium can be really good for insomnia...As long as you're tolerating the 150mg/day, maybe you could try increasing very, very gradually?

I personally take 500mg/day because I worked out that I do best on that amount. I'm not suggesting that you take 500mg!, but just that there's possible wiggle room for improvement with magnesium.

 

Are you able to practice good sleep hygiene (no screens [computer etc] for a while before bed; having a regular bedtime routine, etc.), as that can help too.

 

I hope it gets better soon for you.

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Kristine

Thank you so very much SkyBlue, I have tolerated 150mg of magnesium so I'm sure I can increase it a ltttle more and introduce the fish oil as well. 

11 minutes ago, SkyBlue said:

Are you able to practice good sleep hygiene (no screens [computer etc] for a while before bed; having a regular bedtime routine, etc.), as that can help too.

I have tried everything...however, I've found I am unable to sleep prior to 2am. The following is a recent post which describes what happens....

On 27/04/2018 at 10:21 AM, Kristine said:

Update:  The main issue for me is ongoing insomnia. The sleep deprivation is exacerbating all my other symptoms. Insomnia started to get bad in August 2017 when I ceased the Seroquel...so it has been an ongoing problem. However, currently im only getting a maximum of 4 hours sleep. At worst one hour. I find it extremely difficult getting to sleep. I never fall asleep prior to 2am. I feel agitated, restless, can't keep my legs still. I have to get up and walk around. I rub magnesium oil into my legs but this doesn't help. My skin is hot and itchy. Sometimes I feel like I want to rip my skin off. When I do eventually fall asleep it is always a broken sleep. I often have nightmares and wake gasping for air. Or I just wake from a light sleep which doesn't feel like I was asleep in the first place.

 

I introduced 75mg of magnesium on the 21st of April. I don't think is helping or making anything worse. I've read that aspirin might help, I think Alto wrote that somewhere. 

I think I'm suffering from mild to moderate akathisia. Trouble is this has all been going on for so long I am no doubt suffering from battle fatigue. I ordered a weighted blanket online two days ago, hopefully it will arrive next week.

Much Love K xo

 

 

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Rabe

Im so sorry Kristine...I so hope the weighted blanket is a help!  So hard to function without sleep...thinking about you!!

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Rabe

Skyblue,  is it possible for either the magnesium or fish oil to cause issues?  I read it so often how good they are but also how we are so sensitive...

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Kristine
2 hours ago, Rabe said:

Im so sorry Kristine...I so hope the weighted blanket is a help!  So hard to function without sleep...thinking about you!!

Thank you for stopping by Rabe...I'm hoping the weighted blanket helps as well. I've been thinking of you as well and hoping your issues with potassium have settled...I'll drop by your thread when I'm able. Much Love K xo

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SkyBlue
11 hours ago, Rabe said:

Skyblue,  is it possible for either the magnesium or fish oil to cause issues?  I read it so often how good they are but also how we are so sensitive...

 

Hi Rabe,

Yes, while magnesium and fish oil/omega3s tend to be beneficial for a lot of people, either can cause issues in withdrawal because our systems are so sensitive.

So going slow when trying them out is always really important. 

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SkyBlue
14 hours ago, Kristine said:

Thank you so very much SkyBlue, 

 

 

   On 4/26/2018 at 7:21 PM,  Kristine said: 

I often have nightmares and wake gasping for air. Or I just wake from a light sleep which doesn't feel like I was asleep in the first place.

 

 

Hi Kristine, 

You're very welcome.

I can imagine that you certainly would be having battle fatigue. And like you said, insomnia will certainly exacerbate other symptoms.

You're being really proactive (magnesium oil, weighted blanket, other strategies), which I think bodes very well for eventually resolving this.   

 

Please let us know how the weighted blanket goes. Maybe that will calm your legs as well as your entire nervous system. 

 

Hang in there.... ❤️

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Rosetta

K, 

I think the magnesium might need time to begin to work?  Maybe the body needs to get used to having enough.  

 

I'm so sad that you are struggling like this.  The feeling that you have not been asleep and the gasping for air -- I have experienced both.  It's torture, I know.  

 

I'm not keen on the idea of trying a supplement with 3 ingredients.  Have you tried warm milk?  That started working for me at some point.

 

All my love, R

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Fightingawar
On 2/19/2018 at 10:45 PM, Kristine said:

Just to add ...http://www.ourmed.org/wiki/Dextroamphetamine_and_Amphetamine

 

A quote from this page:  this information is backed up by various journal articles...at this point I can't access them without paying for them...just the Abstract

  • Antidepressant substrates of 2D6 such as amitriptyline (Elavil), amoxapine (Ascendin), clomipramine (Anafranil), desipramine (Norpramin), imipramine (Tofranil), or nortriptyline (Pamelor) may interact through competitive inhibition of Cytochrome p450 2D6
  • Use special caution: Antidepressant blockers of 2D6 such as fluoxetine (Prozac), paroxetine (Paxil), will significantly block 2D6 over time and create accumulation of AMP with significant toxic implications

It is therefore my hypothesis, from what I have read so far, that since the introduction of dexamphetamine (20mg) December 2016 my body has slowly built up a level of dexamphetamine (amp)Toxicity due to the fluoxetine  being a substrate of 2D6...my plan is to taper the dexamphetamine more rapidly..perhaps 5% - 10% every 3 days (part of me is tempted to CT the remaining Dex) ..any thoughts are welcome. K 

Kristine can you explain what this means? I was on Anafranil and had to pretty much cold turkey and I just ran across this. I wanted to reinstate my Anafranil at a very low dose but my psychiatrist will not let me because they think I had serotonin syndrome so I was looking into something else similar to reinstate and I seen Norpramine but that’s on this list too so I was wondering what this meant. They want to try a low dose of Trintellix but I’m to scared so even though that’s what they gave me I haven’t started it but I’m suffering so bad I have literally been trying to call psychiatrist all over the US trying to get one on the phone for someone to give me direction. I guess they don’t want to do the Anafranil because it has a higher rate of producing serotonin from what I understand.

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wantrelief
20 hours ago, Kristine said:

Hey All,  The ongoing insomnia is taking its toll. i have increased the magnisium to 150mg daily divided into 4 doses. I am considering reintroducing fish oil tomorrow. I do have a natural supplement for insomnia containing "ziziphus, hops and lactium"...or should I consider melatonin? Aspirin? To be honest I don't know what to do. My resolve to "ride it out" is cracking but I know I have no choice. Any advise would be welcome. 

 

Love to you All. K xo

I am so sorry you are going through this, Kristine.  I have read somewhere on here that a low dose of melatonin may be helpful with sleep onset so it might be worth trying it for that.  Oh how I wish you weren't going through this.  I am thinking about you and sending big hugs - WR. 

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Scorpio

Hi Kristine 

insomnia is awful and I really feel for you. If it’s any help I take 1mg melatonin before bed and read when in bed for about 30 minutes then generally fall asleep. I when lucky sleep for about 6 to 6.5 hours when going through a bad wave it is a much shorter sleep but sleep nevertheless. 

 

It doesnt make make me feel hungover in the mornings either so no side effects from it. 

 

Hugs

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Kristine
7 hours ago, SkyBlue said:

Hi Kristine, 

You're very welcome.

I can imagine that you certainly would be having battle fatigue. And like you said, insomnia will certainly exacerbate other symptoms.

You're being really proactive (magnesium oil, weighted blanket, other strategies), which I think bodes very well for eventually resolving this.   

 

Please let us know how the weighted blanket goes. Maybe that will calm your legs as well as your entire nervous system. 

 

Hang in there.... ❤️

Thank you SkyBlue for your kind words. I will definitely write a review of my weighted blanket experience when it arrives. Much Love K xo

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SkyBlue
7 minutes ago, Kristine said:

Thank you SkyBlue for your kind words. I will definitely write a review of my weighted blanket experience when it arrives. Much Love K xo

 

You're very welcome . : ) 

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Kristine
7 hours ago, Rosetta said:

K, 

I think the magnesium might need time to begin to work?  Maybe the body needs to get used to having enough.  

 

I'm so sad that you are struggling like this.  The feeling that you have not been asleep and the gasping for air -- I have experienced both.  It's torture, I know.  

 

I'm not keen on the idea of trying a supplement with 3 ingredients.  Have you tried warm milk?  That started working for me at some point.

 

All my love, R

Thank you Rosetta,  I appreciate your support so much. Last night I must have got up about 10 times just to pace the hallway. I can't be still in bed. Maybe got 2 hours broken sleep last night.  I'm going to just keep taking the magnesium and ride this beast till it eventually runs out of steam. The supplement is something I took about 2 years ago for insomnia. It's an expired box I found in my draw. Don't even know why I didn't throw it out. I was reading about Lactium on SA which made me think of it. I do drink warm milk...usually with 1/2 teaspoon of honey. I've stopped doing this on a regular basis...I'll reintroduce this as a sleep hygiene routine. Thank you for mentioning it...I seem to be forgetting how to deal with this in a practical way. My toolkit is a disorganised shambles. Thinking of you and sending you hugs. K xo

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Kristine
2 hours ago, Fightingawar said:

Kristine can you explain what this means? I was on Anafranil and had to pretty much cold turkey and I just ran across this. I wanted to reinstate my Anafranil at a very low dose but my psychiatrist will not let me because they think I had serotonin syndrome so I was looking into something else similar to reinstate and I seen Norpramine but that’s on this list too so I was wondering what this meant. They want to try a low dose of Trintellix but I’m to scared so even though that’s what they gave me I haven’t started it but I’m suffering so bad I have literally been trying to call psychiatrist all over the US trying to get one on the phone for someone to give me direction. I guess they don’t want to do the Anafranil because it has a higher rate of producing serotonin from what I understand.

Please don't concern yourself with this FAW. Some medications have a major drug interaction when taken together. I wanted to know why. Put very simply each medication is metabolised by a different liver enzyme. If taking more than one medication which is metabolised by the same liver enzyme...such as CYP2D6, there can be complications. This is why it is important to put all ones drugs into a drug interaction checker. I am unable to go into more detail at the moment due to chronic sleep deprivation.i just can't think properly. It would be a good idea to post this on your thread so you have a record and some get some advice. Much Love K xo

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Kristine
2 hours ago, wantrelief said:

I am so sorry you are going through this, Kristine.  I have read somewhere on here that a low dose of melatonin may be helpful with sleep onset so it might be worth trying it for that.  Oh how I wish you weren't going through this.  I am thinking about you and sending big hugs - WR. 

Thank you so much for your support WR, it means so much to me. It helps to have a little boost over the next hurdle. As I wrote to Rosetta I think I'm just going to have to ride this beast until it runs out of steam. Im going to keep on with the magnesium and I think I'll make sure I have a Epsom salt bath just prior to bed. Try to Ease this akathisia. Thinking of you and sending you (((hugs))) K xo

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Kristine
1 hour ago, Scorpio said:

Hi Kristine 

insomnia is awful and I really feel for you. If it’s any help I take 1mg melatonin before bed and read when in bed for about 30 minutes then generally fall asleep. I when lucky sleep for about 6 to 6.5 hours when going through a bad wave it is a much shorter sleep but sleep nevertheless. 

 

It doesnt make make me feel hungover in the mornings either so no side effects from it. 

 

Hey Scorpio, I really appreciate you stopping by and sharing your experience. Insomnia is so debilitating and makes everything else so much more difficult.  I'm so sorry you suffer from insomnia as well. However, do seem to have some control of it.   Thank you for sharing your knowledge regarding melatonin. I'm going to stick with the basics at the moment and hopefully the weighted blanket will help. If not, I'll definitely consider melatonin. I may need to ask you a few questions in the not to distant future, if that's ok?  Thinking of you and sending you hugs. K xo

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Downbutnotout

Where do you get your strength? Hope you figure this out. 

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Altostrata

Kristine, 75mg magnesium is not very much. You might want to take 75mg every few hours.

 

Do you get off the computer in the early evening and turn off the lights? If your family will accept it, candlelight can be very calming.

 

Have you tried acupuncture?

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FarmGirlWorks
4 hours ago, Kristine said:

have a Epsom salt bath just prior to bed.

Hey Kristine, this always seems to help me ease down before bed. Hang in there, friend! Good vibes across the pond.

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Rabe

Oh Kristine I am so keeping you in my thoughts!!!  Hoping the blanket is a help and that it arrives soon!!  

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Rabe

I do light yoga and special breathing for stress before bed and it has helped me sleep a bit longer before waking...or could just try the breathing...just a thought. HUGS!

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Rabe

Thank you SkyBlue....I may try some but definitely not a lot.  I'm not even able to eat foods I did before or meds I tolerated before for reflux i.e.  May wait a bit until

system settles a bit more.  Any thoughts of a good place to start with them as I have not taken them and really know nothing about them.  Thank you again.

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bheb

Hey Kristine so sorry you're getting restlessness and insomnia -- I'm there with you. I've found having a multi step plan helps get things under control or at least distracts me long enough to make the time pass.

 

This is mine:

take hot shower

diffuse lavender oil 

mag lotion

get under weighted blanket if I can stay still 

 

I hope the weighted blanket works for you!

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Kristine

Hey Alto, 

1 hour ago, Altostrata said:

Kristine, 75mg magnesium is not very much. You might want to take 75mg every few hours.

I increased to 150mg on the 28th of April..I'm tolerating it well so I'll start to take 75mg every few hours as you suggested. Maybe not exceed 300mg at this point. 

1 hour ago, Altostrata said:

Do you get off the computer in the early evening and turn off the lights? If your family will accept it, candlelight can be very calming.

No, I'm not doing well in that department.  I use my iPad with the light turned down and the night setting on to eliminate blue light.  So, your right, I need ditch using it after a certain time.  This is going to take some will power because it is a vice I've been relying on heavily to distract me from my symptoms.  I like the sound of lighting some candles, the family won't mind 🙂

1 hour ago, Altostrata said:

Have you tried acupuncture?

Back in December 2015 I began weekly acupuncture after I was CTed off citalopram. I remember both positive and negative outcomes. However, it may be worth revisiting in the not to distant future because my understanding about my symptoms back then was very different compared to now. Back then I thought I was having a relapse of my "mental illness" 😕 

 

Thank you for your time Alto

Much Love. K xo

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Kristine
58 minutes ago, FarmGirlWorks said:
5 hours ago, Kristine said:

have a Epsom salt bath just prior to bed.

Hey Kristine, this always seems to help me ease down before bed. Hang in there, friend! Good vibes across the pond.

Hey FGW, thank you, this is very good to know...I'm slowly getting a more rigid 'sleep hygiene' plan together. Gotta be a little more discip😳lined. Let's hang in there together...good vibes to you as well. Much Love K xo

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Kristine
1 hour ago, Rabe said:

 

 Oh Kristine I am so keeping you in my thoughts!!!  Hoping the blanket is a help and that it arrives soon!!  

 

 

1 hour ago, Rabe said:

I do light yoga and special breathing for stress before bed and it has helped me sleep a bit longer before waking...or could just try the breathing...just a thought. HUGS!

Oh thank you Rabe, you are so kind...thank you for your suggestions! Much Love K xo

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Kristine
15 minutes ago, bheb said:

Hey Kristine so sorry you're getting restlessness and insomnia -- I'm there with you. I've found having a multi step plan helps get things under control or at least distracts me long enough to make the time pass.

 

This is mine:

take hot shower

diffuse lavender oil 

 mag lotion

get under weighted blanket if I can stay still 

 

I hope the weighted blanket works for you!

Hey Bheb, Thank you for stopping by. I'm so sorry you are suffering similar symtoms...it is so cruel. I appreciate you sharing your multi step plan. You are very wise 🙂 I like it. I was thinking of adding lavender oil to my Mag bath tonight. I have a diffuser and I'll  add lavender oil...the blanket couldn't arrive soon enough. The company make them to order so I'm hoping the wait isn't too long. Fingers crossed. I hope you are able to sleep tonight Bheb. Much Love. K xo

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DMV64
On 4/28/2018 at 9:34 AM, Kristine said:

Just make sure it's crunchy

You made me laugh! Which is a good thing!

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Rosetta

All my love, K.  I hope the extra magnesium makes a difference.

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SkyBlue
11 hours ago, Kristine said:

I'm slowly getting a more rigid 'sleep hygiene' plan together. Gotta be a little more discip😳lined. Let's hang in there together...good vibes to you as well. 

 

Hi Kristine,

 

That sounds like a really good idea. I find that when I'm in a wave, reigning in the sleep hygiene can be helpful. 

Have you seen any of these? It is a collection of threads that talk about sleep, insomnia, etc. 

 

SLEEP PROBLEMS

 

Tips to help sleep -- so many of us have that awful withdrawal insomnia

 

Waking with panic or anxiety -- managing cortisol spikes

 

What is the sleep cycle?

 

TV or computer use in evening can disrupt sleep: Bright light signals the brain that it's daytime

 

Nightmare While Awake? Sleep Paralysis, Hypnogogic Hallucinations, etc.

 

White noise devices for sleep

 

 

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Kristine
6 hours ago, SkyBlue said:

Hi Kristine,

 

That sounds like a really good idea. I find that when I'm in a wave, reigning in the sleep hygiene can be helpful. 

Have you seen any of these? It is a collection of threads that talk about sleep, insomnia, etc. 

 

Thank you SkyBlue, I increased the magnesium to 300mg yesterday, split into 4 doses. Had a Epsom salt bath with a few drops of lavender oil (Tip: mix oil with a little milk then add to bath...this disperses the oil evenly), Turned off electronics devices at 11pm. Drank a mug of warm milk with honey and Managed to go to sleep at about midnight (much better than 2am!) Woke at 3am but managed to go back to sleep till 4am. Not great but I noticed a small improvement. Not as agitated. Thank you for the links on sleep/insomnia. I have read them before but it is useful to read them again. I'm finding that in my sleep deprived state that I'm forgetting the basics and have not been as proactive as usual. 

I really appreciate your time SkyBlue 💜

Much Love. K xo

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wantrelief

I am happy to hear you noticed a small improvement in your sleep with less agitation, Kristine.  I will keep my fingers crossed more improvements will come soon.  Big hugs - WR.

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