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swammi01 Tommy wants his life back


swammi01

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i everyone:

I have been tapering from a benzodiazepine for almost a year and now am ready to undertake the antidepressants. I guess some people say do the antidepressants first but its too late for that now. I am almost done with my benzo taper.

 

I am copying my first entry from Benzo buddies here because the history is the same

 

Current cocktail: 60 mg Cymbalta, 150 mg Wellbutrin SR, and .090 mg of Klonopin (Benzo).


I won't bore you with too many details but I think an abridged version is in order.

     I was first put on a cocktail of Klonopin, Wellbutrin, and Cymbalta over 12 years ago. I had been on SSRI's for 15 years at this point. The Pdoc said this would help with anxiety and never mentioned a word about dependence, addiction or withdrawal. He continued to prescribe for the next three years till he fired me for missing appointments.
     
My next three pdocs said nothing other than it was hard to get off but it had no negative side effects. One said I might need to stay on the rest of my life, after all it's cheap! My GP refused to offer opinions and would not prescribe psychotropic meds.

Meanwhile my marriage was falling apart and it was getting harder and harder to do my job.

In June 2014, a friend referred me to a Lyme doctor who had a great rep. He spent an hour talking to me and then said he wanted to do about $1200 worth of testing. Result? I definitely had Lyme disease and I spent the next 2-1/2 years doing antibiotics and herbal protocols to kill the Lyme. 

At the end of this, I still had most of symptoms and had almost been fired and then went on Long Term disability in late 2015. SSA denied me but my company had a private plan (I know I am blessed here).

 To the Lyme Doctors credit he had said initially that I should try to get off Benzos and he took me from 1 mg down to .75 mg in one cut.  I then started seeing a number of homeopaths, naturopaths and other quacks. I got a new Pdoc and asked him to help me taper off K. I just had this feeling.....

Fine, he said. Why don't you go from .75 mg down to .5 mg, the tablets are hard to cut more than that. Yes sir, I said in my most humble voice. 

 Well, I am sure you all know how that went. I reinstated to .6875 mg (or therabouts) after 3 weeks of hell. By this time, I had found the ashton manual, and benzobuddies. When I asked him to slow the taper, he said he didn't know how. I finally found an oral K pill on my own that was .125 mg. He graciously gave me one month's worth.  I begged for Valium. And, no way, he said, through his assistant. I have quit him and have another appointment with somehow who actually is familiar with Ashton in Late June.

It is now over 2 months later. I am have ordered supplies for a liquid taper. My major symptoms haven't changed much and are brain fog, memory issues, severe fatigue, unrefreshing sleep, and muscle spasms (which got better after reinstating). I am also grouchy which explains why I am alone a lot. I try to be pleasant and avoid the topic of Benzos, but it is hard.

I did two dry cuts and am now down to .53125 mg. (or therabouts). Symptoms have been simply outrageous and I have been holding for 1-1/2 months.

I have no idea what the new Pdoc will do, so I am going to try very small cuts using water titration next. Still with K. What a wonder drug! It worked for all of 4 weeks back in 2005.

Well, thats my story and I am sticking to it. Would love to get to know some of you. I listen well and I actually have other interests. I just don't get out as much anymore.

Blessings,
 

Edited by Altostrata
added screen name to title
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Welcome, swammi.

 

You seem to the in the midst of a benzo taper. What symptoms are you experiencing? What benzo are you taking now, and at what dosage?

 

Are you still taking 60mg Cymbalta and 150mg Wellbutrin SR? What kind of information are you looking for here?

 

 

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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On 12/10/2017 at 9:06 PM, Altostrata said:

Welcome, swammi.

 

You seem to the in the midst of a benzo taper. What symptoms are you experiencing? What benzo are you taking now, and at what dosage?

 

Are you still taking 60mg Cymbalta and 150mg Wellbutrin SR? What kind of information are you looking for here?

 

 

Alostrata:

I will finish my Benzo taper next month. My next goal is to taper Cymbalta next. My original post was meant as an introduction only.

 Do I need another approval to access.the "surving" forums?

Thanks

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You can access all forums now.

 

On 12/9/2017 at 6:34 PM, swammi01 said:

My major symptoms haven't changed much and are brain fog, memory issues, severe fatigue, unrefreshing sleep, and muscle spasms (which got better after reinstating). I am also grouchy which explains why I am alone a lot. I try to be pleasant and avoid the topic of Benzos, but it is hard.

 

Have your benzo withdrawal symptoms changed at all?

 

We don't recommend starting a Cymbalta taper if you already feel poorly from going off a benzo. In fact, we'd encourage you to stop tapering the benzo right now and let your nervous system settle down. More tapering does not help withdrawal symptoms.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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Hi Swammi,  I'm sorry you have been suffering so terribly.  Welcome to sa 😊 You have found the right place.  You have mentioned your isolation which I think many of us can relate to.  The side effects of these drugs and the withdrawal has a domino effect on every aspect of our lives.  Just letting you know you are not alone.  K.

  • Citalopram 20mg - 40mg ~ approx 2010 - October 2015 (stopped over one week)
  • Parnate  20mg - 50mg and olazapine 5mg ~ Jan 2016 - May 2016 (ceased over 2 days) 
  • Lithium 450mg-900 mg and Thyroxin ~May 2016 - May 2017
  • Diazepam various doses (including PRN) ~ 2015 - 2017
  • Oxazepam various doses (including PRN) ~ May 2016 - June 2016
  • Lurasidone 20mg ~Mid May 2016 - Mid June 2016
  • Vortioxetine 10mg - 20mg ~ 6th June 2016 - 20th July 2016 (abruptly ceased)
  • Amitriptyline 200mg ~July 2016 - September 2016 (ceased over 1 week)
  • Nortriptyline  (dose ?) ~October 2016 ~ November 2016 (abruptly ceased)
  • Seroquel XR 100mg - 300mg ~ May 2016 - August 2017 (ceased over 3 weeks)
  • Escitalopram 10mg - 30mg ~ August 2016 - March 2017 (ceased over 2 weeks)
  • Bupropion 300mg ~ December 2016 - May 2017 (ceased over 1 week)
  • Clonazepam 1.5mg daily ~ July 2016 (started tapering May 2017 - September 2017 currently on 0.375mg..ie 0.125mg TDS) 27th May 2018 5% 0.357mg (possible paradoxical reaction - see benzo thread)  28th June 5% 0.337mg, 28th July 10% 0.303mg, 12th September10% 0.272mg, 18th September reinstated 10% due to intolerable WD 0.303mg, 1st October-11th Oct 10% (1% reduction over 10 days) 0.272mg, 22nd October clonazepam ceased crossed over 10mg diazepam
  •  Dexamphatamine 20mg ~ December 2016 (started tapering October 2017 - tapered 1.25mg 4th Dec 2017, 1.25mg 19th Dec 2017 6.25mg, Speed up decrease due to major interaction between Dex and fluoxetine- ref to thread 10% 17th Feb 2018 5.63mg, 10% 21st Feb 2018 5.1mg, 10% 26th Feb 2018 4.5mg 10% 28th Feb 4.1mg, 10% 1st March 3.7mg, 10% 5th March 3.3mg, 10% 8th March 3mg, 10% 10th March 2.7mg, 10% 12th March 2.4mg, 10% 14th March 2.16mg, 10% 16th March 1.94mg, 10% 18th March 1.74mg, 10% 20th March 1.57mg, 10% 21st March 1.41mg, 10% 22nd March 1.26mg, 10% 23rd March 1.13mg, 10% 24th March 1.01mg, 10% 25th March 0.9mg, 10% 27th March 0.81mg, 10% 29th March 0.73mg, 10% 31st March 0.66mg, 10% 2nd April 0.59mg , 10% 4th April 0.53mg, 10% 6th April 0.47mg, 10% 8th April 0.42mg, 10%10th April 0.37mg, 11th April 0.2mg, 12th April 0.1mg (last dose) OFF! 
  • Fluoxetine 40mg ~December 2016 - 31 Jan 2018 reduced to 20mg (probable serotonin toxicity) 10th March 2020 10mg (1:1 ratio), 7th April 9mg, 1st May 8.5mg, 15th May 8.0mg, 27th May 7.5mg, 8th Sept 7.2mg, 2nd Oct 7mg, 19th Oct 6.8mg, 28th Oct 6.6mg, 5th Nov 6.4mg, 26th Nov 6mg, 2nd April 2021 5.9mg, 9th April 5.8mg, 19th April 5.75mg, 22nd April 5.7mg, 26th April 5.65mg,28th April 5.6mg, 1st May 5.5mg, 4th May 5.45mg, 7th May 5.4mg, 10th May 5.35mg, 12th May 5.3mg, 15th May 5.25mg, 18th May 5.2mg, 20th May 5.15mg, 22nd May 5mg, 10th July 4.5mg, 9th Aug 4.48mg (switched from syringe to pipette method), 12th Aug 4.46mg, 14th Aug 4.4mg, 18th Aug 4.38mg, 19th Aug 4.36mg, 20th Aug 4.34, 21st 4.32mg, 22nd 4.3mg, 23rd Aug 4mg (hold), (micro-taper) 12th Oct 2021 3.98mg, 14th Oct 3.96mg, 15th Oct 3.94mg, 16th Oct 3.92mg, 17th Oct 3.9mg, 18th Oct 3.88mg, 19th Oct 3.86mg, 21st Oct 3.84mg, 22nd Oct 3.82mg, 23rd Oct 3.8mg, 24th Oct 3.78mg, 25th Oct 3.76mg, 26th Oct 3.74mg, 27th Oct 3.72mg, (WD reached intolerable level, reinstated 0.06mg) 28th Oct 3.8mg, 7th March 2022 3.7mg, 21st March 3.6mg, 4th April 3.5mg, 18th April 3.4mg, 2nd May 3.3mg, 16th May 3.2mg, 20th June 3.1mg, 4th July 3mg, 18th July 2.9mg, 12th September 2.7mg, 18th October 2.5mg, 14th Nov 2.3mg, 12th December 2.1mg, 18th January 2023 1.9mg, 9th July 2023 1.88mg, 16th July 1.86mg, 23rd July 1.84mg, 30th July 1.82mg, 6th Aug 1.80mg, 10th Sept 1.7mg, 12th Oct 1.68mg, 23rd Oct 1.66mg, 30th Oct 1.64mg, 6th Nov 1.62mg, 13th Nov 1.60mg, (2:1 ratio) 30th Dec 1.597mg, 7th Jan 2024 1.595mg, 8th 1.592mg,  10th 1.589, 11th 1.587, 12th 1.585, 13th 1.583, 14th 1.58 cont… 5th Feb 1.56mg, 11th Feb 1.55mg, 19th Feb 1.54mg, 26th Feb 1.53mg, 4th March 1.52mg, 11th March 1.51mg, 25th March 1.50mg, 1st April 1.49mg, 8th April 1.48mg, 15th April 1.47mg, 22nd April 1.46mg, 29th April 1.45mg
  • Diazepam 10mg ~ 22nd Oct 2018, 10th November 8mg, 14th Nov 7mg, 8th December 6mg, 30th December 5mg (Nocte), 7th March 2019 4.5mg,14th March 4mg, 5th April 3.5mg, 9th April 3mg, 18th April 2.5mg,1st May 2mg, 17th May 1.75mg, 25th May 1.6mg, 4th June 1.59mg, 5th June 1.58mg, 6th June 1.57mg, 7th June 1.56mg, 8th June 1.55mg, 22nd June 1.4mg, 4th July 1.2mg, 16th July 1mg, 30th July 0.8mg, 13th Aug 0.6mg, 28th Aug 0.4mg, 10th Sept 0.2mg, 23rd Sept Off! 
  • SR Circadin 2mg (melatonin) 25th May - 20th June 
  • Zolpidem 10mg 25th May (7 tablets)
  • Supplements: Magnesium glycinate (soluble - sip throughout the day) 

 

"Whenever you feel yourself doubting how far you can go,  just remember how far you have come.  Remember everything you have faced, all the battles you have won, and all the fears you have overcome"    Unknown 

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