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Rosetta: cold switch May 2011 & too fast taper Feb 2017


Rosetta

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Phoenixmama

@Rosettajust wanted to let you know that your in my thoughts and prayers , I woke up today thinking about you hoping that your getting on well after your vaccination, I to need mine but waiting it out a bit , sending you love ❤️ light 🌞and  strength 💪🏻 

 

 

started celexa 10mg feb 2nd 

feb 25th took my last 10g

feb 26th took 5mg

feb 27th took 5mg 

feb 28th cold turkey 

currently taking mag

 

 

 

 

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Londoner,   You haven’t lived yet if you are 30 and you have been battling these drugs for 11 years.  There is so much out there in the world that is awe-inspiring. You can’t appreciate it b

You are welcome, Mimi.  Thanks you for being here, too.  Too bad we had to meet under such circumstances, but I’m glad we did. @Mimi79   Well, last night was a night of insomnia.  I was awak

My Dear Friend, I have been reading your posts.  I am so sorry things have been so rocky of late....made my heart ache to read it all. Then I got to your most recent posts and was so so grateful

Rosetta

Thanks @Phoenixmama  So far, so good.  The swelling in my arm went down, and yesterday, It started to hurt when I moved it, but now it doesn’t.  So, 48 hours after the shot, the reaction is starting to resolve.  I slept fine last night.  There was a bit of restlessness before bed, but it wasn’t even as bad as it has been recently.  
 

I may not get the next shot in 3 weeks.  I might wait longer with the hope that I will have a milder reaction.
 

My right eye still itches, but not as often nor as intensely.  We kept one of the caterpillars, and it became a moth.  A make moth came to visit yesterday.  Our moth has now laid eggs.  Next year in May, there will be 100 baby caterpillars (all with the potential to grow up and cause skin reactions.)  I’m thinking we should release them very far away.

https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25

2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period

May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born)

2012-2016 - Doctors raised dose of Zoloft up to 150 mg

2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction)

2016 - Stopped Xanax

Late 2016- Began (too fast) taper of Zoloft

Early 2017 - Trazodone prescribed for bedtime (doseage unknown)

Feb 2017 - Completed taper/stopped Trazodone

Drug free since Feb 2017

2017 - Unisom otc very rarely for sleep

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Phoenixmama

I’m so happy to hear you are ok and I think it’s a good idea to space the doses as far out as possible.... 

 

 

started celexa 10mg feb 2nd 

feb 25th took my last 10g

feb 26th took 5mg

feb 27th took 5mg 

feb 28th cold turkey 

currently taking mag

 

 

 

 

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Rosetta

I wrote this to someone.  I think it is a very good way to help yourself get through the days with WD.
 

My suggestion is that you Create soothing rituals and do not give up on them if they don’t work.  Establishing a routine takes a couple of months.  Do a sequence of things in order— One for when you wake up, one for when you feel overwhelmed and one for when it is bedtime.  For instance, if you feel overwhelmed, 1. drink some water, 2. eat some protein, 3. go for a walk or do a moving meditation, 4. take an Epsom salt bath,  5. drink more water amd eat a bit more including protein, 6. paint or color or read (whatever you can do).  If you keep doing these things in a particular order you will come to find solace in that ritual.  

 

Do the same when you wake up and at “bedtime” which you could call “evening” if you don’t sleep.  You will start to feel comfort in these rituals.  They will make you feel in control and as if you know what is going to happen for the periods of times you are doing them. Waking up amd going to bed or having your normal bedtime arrive probably cause you a lot of anxiety.  Practice your ritual for anxiety at those times.


I used to play violin when I felt overwhelmed.  I started to realize that I did that at a particular time of day.  However, having some protein and water when one feels anxious and overwhelmed is important.  So, doing that first before you start the activity is a good idea.  Your blood sugar levels will stabilize while you are doing the distracting activity.  Eating after the activity will help to prolong the blood sugar level.

https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25

2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period

May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born)

2012-2016 - Doctors raised dose of Zoloft up to 150 mg

2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction)

2016 - Stopped Xanax

Late 2016- Began (too fast) taper of Zoloft

Early 2017 - Trazodone prescribed for bedtime (doseage unknown)

Feb 2017 - Completed taper/stopped Trazodone

Drug free since Feb 2017

2017 - Unisom otc very rarely for sleep

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HealthHopeHappiness

Hi @Rosettai just wondered how you are doing? I have read through your introduction post and see you have had a terrible time with TD. I just wondered how this affected your feet/hands? I am wondering if this is what I am suffering from but not sure. X

Mid-August 2020 - started 15mg Mirtazapine, increased to 30mg 2 weeks later. Late-September 2020 - switched to 20mg Paroxetine as Mirtazapine exacerbated RLS. October 2020 - stopped Paroxetine because of worsening RLS, muscle twitching and general restlessness.

Mid-October 2020 - Switched to 50mg Sertraline. Restlessness, muscle twitching and other symptoms even worse. Stopped taking it on 18 November following advice from GP - took every other day for a week before stopping completely. Mid-November 2020 - GP prescribed Propranolol to take as and when required for anxiety. Have only taken a few times as it makes me very light headed. January 2020 - currently taking magnesium citrate powder in evenings to help with RLS. Also taking high strength omega-3 fish oil. 
 

 

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Rosetta

I have been anxious, irritable and angry for the last 5 years of my daughter’s life.  It has had an impact on her.  It’s probably the worst thing about WD and having small child.  The guilt I feel is out of this world.  
 

I wasn’t very successful at keeping it from affecting my daughter, my relationship with her (and my relationship with my husband.)  I tried to counteract the problem by telling her I loved her, SHOWING her I loved her in as many different ways as possible, and apologizing to her when I had been irritable.  
 

This I know from experience: Do not expect a child to care for her own stuff, or do chores, or clean her room or make her bed.  It’s not going to happen and you are going to feel angry too often.  Teaching a child to take care of stuff can be a years long project from 3-18 or it can be a years long project from 10-18.  It does not matter under your circumstances.  She is not going to learn it when you are angry, and dealing with neuro-emotions.  She will simply shut down and avoid you and think that everyone who is a bit grumpy is very angry at her personally.  She will develop anxiety, avoidance coping mechanisms, become a procrastinator, and Yet she will not learn to take care of anything.  
 

How I am going to correct the damage I have done while in WD, I do not know.  I only know how I could have avoided it.  Maybe I would have created other problems, but either way, they have to be fixed now with helping her learn new coping mechanisms.

 

Simplifying your life and your child’s life to reduce stress is very important.  There were so many things I could not simplify.  So, do so when you can.  
 

For instance, I bought her plain, white socks and navy blue socks from Land’s End.  Nothing else.  No random socks to find.  In fact, I bought almost all of her clothes from Land’s End online.  No clothes shopping, trying things on, etc.  I bought a lot of navy, black, purple or dark green clothes to reduce worries about treating stains.  Land’s End has many navy and dark green sweaters, sweatshirts, t-shirts, polos, etc because it provides school uniforms.  I would put those with other clothes from the non-uniform section so that she didn’t look like she was wearing a uniform — jeans, skorts and leggings. There are purple, dark purple, and dark pink clothes in that section.
 

I regret throwing big birthday parties.  They stressed me out a lot.  She would have been just as happy with 3 little friends as with every friend invited.  I think that the negative memories she has from the time leading up to the big party was not worth it at all.  I know my negative memories were not worth it.  If I were feeling quite bad, making a birthday a time to do something big like taking one friend to the zoo or an amusement park and getting ice cream would have been better than any party at all.
 

Give up on teaching your child to be self sufficient right now.  All the chores and making the bed and earning her allowance — enforcing all of that is extra stress for people in withdrawal.  You cannot do all of that at this time.  Ignore your family’s criticisms.  Asking a child to do something for the 15th time is another way to make you feel irritable and angry and out of control.  Brushing her teeth is absolutely non- negotiatable.  Saying please and thank you are required.  Pretty much everything else — trying to enforce rules on those things — is just going to be an opportunity for you to get upset and frustrated and lose your temper.  
 

Kids can bathe 3 times a week and do just fine as long as you change their clothes once or twice every day.  Braid her hair and keep it braided or cut it short.  (Cut it short if at all possible.  I wish I had - oh, how I wish I had.  Give her some giant toy in exchange for her hair.  Save it in a zip lock forever.  Whatever you have to do, but don’t try to de-tangle her hair in your condition.)  I could not convince my daughter to give up her hair.  So, I braid it, but when I’m in wave, it turns into a rat’s nest.  It was literally torture to brush it out for her when I had akathisia.  Every sound from her increased the level of alertness in my body and brain and by the time I was done I had to retreat for hours and hours, unable to do anything at all.
 

Set out her clothes for her, keep track of her shoes for her, keep track of her backpack and homework, etc.  Do not try to teach her to be responsible right now (unless she is naturally that kind of kid and does it on her own.) Buy a lot of extra jackets and accept that she will not have any one of them for more than about 3 weeks, if that.  Buy extra shoes, too.  They will disappear.  Let it go.  Have two or three on hand at a time.  Extra lunch boxes.  You may need about 3 or 4 at a time.  You may lose one per week!  Let it go.  Taking the risk that you are going to yell at her for these things is just not worth it.  

You are not a normal parent who can discipline your child in a normal tone of voice.  Accept that.  I don’t mean yell all you need to.  I mean choose very carefully what you are going to be concerned about.  Reduce the number of times you say anything at all about something you did not like or want to correct.  The child’s reaction to being corrected is likely to make you even more irritated.  Take that into account.  Let as much as possible go.  Try to talk about things when you are feeling better - not at the time.  Yes, this may be a very ineffective way to discipline a child.  Oh, well.  You want to take a harm reduction approach.  
 

When it comes to material stuff, put away everything that is precious to you, buy stuff you don’t care about and budget to buy more stuff when it’s lost.  The fewer reasons you have to criticize her or correct her or discipline her the better.
 

When you get over this horrible experience, there will be plenty of time to teach her to do all of that and her maturity level will be higher.  Years of getting angry and losing your temper because she lost her shoes again is just NOT worth it.  That is far more damaging than having her be behind in the self sufficiency department.  

https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25

2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period

May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born)

2012-2016 - Doctors raised dose of Zoloft up to 150 mg

2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction)

2016 - Stopped Xanax

Late 2016- Began (too fast) taper of Zoloft

Early 2017 - Trazodone prescribed for bedtime (doseage unknown)

Feb 2017 - Completed taper/stopped Trazodone

Drug free since Feb 2017

2017 - Unisom otc very rarely for sleep

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Phoenixmama

Thank you so much @Rosettayou really should write a self help book , specially for parents of young children, it would be so much help them a lot 

 

 

started celexa 10mg feb 2nd 

feb 25th took my last 10g

feb 26th took 5mg

feb 27th took 5mg 

feb 28th cold turkey 

currently taking mag

 

 

 

 

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  • Moderator Emeritus
Carmie

Hi Rosetta, 

 

Thanks for dropping around to my thread, how have you been doing? Sending hugs🤗

Been on antipsychotics, benzos, antidepressants and painkillers for chronic pain. 

Been cold turkeyed and put on and off all sorts of things. Was suicidal n ended up in a psych ward because I had akathisia from withdrawals. Can’t remember what I was put on but when I was released was in the same predicament with severe akathisia n was suicidal again.

Back to the ward and was given different meds. Tapered off one and have been trying to taper off Seroquel since. It’s been many, many years of tapering so far.

I’ve  tapered from 300mg of Seroquel to 7.5mg./ March 10 2019=7.25mg / 17th of April=7 mg / June 5th=6.75mg/ July 14th=6.50mg/ August 28=6.25mg/ 10th of Oct= 6.20mg/ October 21=6mg/ December 16=5.80mg/.   January 21 2020=5.60mg/April 2=5.40g/ May 29=5.20mg/ August 14= 5mg/ September 29=4.80mg/ Jan 31, 2021=4.60 mg/ April 24=4.40mg

 

I AM NOT A MEDICAL PROFESSIONAL. These are my own views based on what I’ve experienced myself.

 

 

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Hi Rosetta, i was just searching on SA about akathisia and came across one of your updates a couple of years ago talking about being 'completely sane in the middle on insanity' and that just resonated me so much. It's like your mind is experiencing this unbearable emotion pain and tension, and you, the experiencer are aware you're grounded safely in reality yet helpless to feel it anyway.

 

It truly feels like my brain has been hijacked by some outside force. Anyway, probably a throwback for you but wanted to thank you for such a brilliant description of the experience

 

 

Started Lexapro 5mg Mid March 2020

 

Increased to 10mg April 2020

Increased to 15mg June 2020

Decreased back down to 10mg July 2020

Decreased down to 5mg August 2020

Came off Completely September 2020

 

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  • Mentor
ShiningLight
On 5/31/2021 at 12:45 PM, Rosetta said:

I wrote this to someone.  I think it is a very good way to help yourself get through the days with WD.
 

My suggestion is that you Create soothing rituals and do not give up on them if they don’t work.  

 

Exactly. I have come to understand that it is the nature of things that they don't always work. Sometimes nothing helps. That's just part of being human. But it's important to try. 

 

It's not a formula--do this and then that will go away. That is a very western--dare I say capitalist?--slant on things. I think it's an immature way to look at it. It's about the experience. It's about being with.

 

I also agree with you that over time, rituals themselves can create comfort and help!

Now: 150 mg Zoloft am since 2004, 50 mg Trazodone bedtime.  Daily drug burden decreased from 2050 mg to 200 mg 🐢🐢

🌞 Feb 28, 2021 0 mg Gapapentin 🌞 yaaaaaaaaaaaaaassssssss!!!

2021 Gaba each dose 4x/day: Feb 27 7 mg (one dose only), Feb 10, 7 mg, Jan 14 10 mg 2020 Current taper schedule from Aug 30-present: drop 8 mg every 2-3 weeks. Aug 20 31 mg, Aug 18, 33 mg, July 29, 35 mg, July 23 38 mg, July 22 40 mg Jun 24 42 mg, Jun 15 44 mg, Jun 9 48 mg, May 22 50 mg, May 14 54 mg, May 7 56 mg, Apr 16 58 mg, Mar 28 60 mg, Mar 18 62 mg. Feb 26 64 mg. Feb 19, 66 mg. Jan 23, 70 mg.

2019 Dec 19, 72 mg. Nov 14 ,76 mg. Aug 8, 80 mg. Aug 6, 85 mg. Jul 26, 90 mg. Jul 11, 95 mg.

Jul 16 trazodone from 100 to 50 mg.

Jun 17-July 10 Slowly changed gab fr pill to liquid at same dose 100 mg 4x/d.

Apr 24 Stopped klon!!! 🌞 Apr 4  Decreased gaba to 400 mg (100 mg 4x/day)-Apr 4, 2019   0.25 klon March 11  Klonopin .5 mg twice daily, varied dose til Apr 15. Started Klon fast taper 25%, short use

Mar 16, 450 mg gaba 3x/day cut 600 mg--not exact!--updose after learning w/d

Feb 20, 2019 1800 mg gabapentin; MD taper; off 3 days=mvt disorder & autonomic instability. July 2018 temazepam 15 mg 1-2; prn several x/wk til Jan/Feb 2019 when cold turkey, flu illness for months

July 2018 started gabapentin 100 3x/day; titrated up to 1800 mg (600 3x/day)

Buspar, I forget how much, 2 pills a day Jan 2017-July 2018 cold turkey

*I speak from my experience. Nothing I say is medical advice. I'm not a doctor.

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Rosetta

@mva96 @ShiningLight  Thanks for dropping by.  I’m glad you found something useful in my musings.

 

Day before yesterday I had 2 cortisol awakenings, fear upon awakening, on the same morning several hours apart.  I had hot flashes after I awoke and then felt cold.  I was able to go back to sleep.  Last night, I felt activated at bedtime and didn’t fall asleep until late — about midnight.  This morning, I woke up at about 5:30.    I did not have a feeling of fear at that time.  I have had no problem sleeping late after I fell back asleep either morning.
 

Dystonia has not been much of a problem lately.  Tonight, I have a feeling of having a sore throat on my right side — the Dystonia side.  This has been happening off and on for months or years.  It always goes away.  
 

Other than feeling tired and low energy, I have been feeling pretty good the last few days.  Life is very quite right now.  No drama or big problems.  I’m lethargic most of the time.  My house is still a wreck, but Covid keeps everyone away at least.  It bothers me less, but I would like it to be fixed.  I hope I will find the energy soon.

 

Over the long weekend we went to stay at my mother in law’s guest house.  It was relatively easy to get packed to go.  I didn’t get stressed and freak out.  I felt quite irritated as we were trying to pack to go home.  I was tired.  That was on Sunday — about a week ago.

 

My husband says I am always worse February through May and by June, I am doing better.

https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25

2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period

May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born)

2012-2016 - Doctors raised dose of Zoloft up to 150 mg

2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction)

2016 - Stopped Xanax

Late 2016- Began (too fast) taper of Zoloft

Early 2017 - Trazodone prescribed for bedtime (doseage unknown)

Feb 2017 - Completed taper/stopped Trazodone

Drug free since Feb 2017

2017 - Unisom otc very rarely for sleep

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Fightinghard

Hey Rosetta-  I wanted to drop in on your thread and let you know how much i appreciate the support you’ve given to everyone.  I’m about 11 months off lexapro and a few other things, all short term, and I’ve recently hit a wave that i believe May be aka.  As I’ve learned more about it, i might have had a less severe case of it from the beginning.  I’m reaching out Because I’ve seen you have managed it for awhile.  My current systems which leads me to believe i am dealing with it is I’ve hard that feeling of inner restlessness (really throughout this, especially in my legs), I’m very jumpy (I’ve called it my startle reflex), i don’t handle crowds or things like that well, and now recently I’ve been waking with a feeling of fear or terror, gloom like i might die.  The reason I’m reaching out is trying to get thoughts on how to manage it.  Last night was very intense.  In fact my body just feels spent this morning. A small amount of that fear is left and my body is just off now. I’ve really backed off activities lately, especially driving.  I had been driving 3 days a week up to 5 hours a day plus working.  Up until about a month ago or so, i managed this okay.  I also was busy with my 3 kids doing all kinds of activities with them.  Again, i had symptoms but nothing like this.  So i backed off at the first inclination of it causing problems. I did drive 3 hours on Thursday last week and i feel like Friday this started to ramp up and last night was the peak.  My question is when you have your flare ups, do you just totally back away?  Right now i don’t feel like i could do anything but I’ll go for a very short light walk in nature because in know that is helpful.  Otherwise I’ll sit back today which is hard with 3 kids and a wife. Any suggestions or insight is greatly appreciated.  And thanks again for being a shining star for us all here. 

2003-2006-  Zoloft then Wellbutrin, Ritalin, concerta , Adderall.  Don’t remember dosage, tapers or timeframes. ADD treatment. I think I had some WD?  Definitely PSSD which resolved over time. 

Zoloft  100 MG April18-april 22, 2020

Buspirone 20 mg from April 18-May 18

10 mg from May 18 - May 27 2020

Lexapro 5 mg from April 22 through May 1st

10 mg from May 1 through June 1

5 mg from June 1 though june 18

2.5 mg from June 18 through June 25

1.25 mg from June 25 through July 4 2020

Ambien -  2.5 mg  April 21 and 26 2020

Trazodone 50 mg-  3 times late April and 4 days the first week in June 2020

Supplements:  Omega 3’s 1000 mg 3 X a day,  Magnesium Glycinate 400 mg (now 4 times a day), Melatonin 1 mg, Vitamin C 1000 mg, probiotics.

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Fightinghard

By the way, I’m sorry.  I should have tagged you on my thread.  I’m not the best with these things!  

2003-2006-  Zoloft then Wellbutrin, Ritalin, concerta , Adderall.  Don’t remember dosage, tapers or timeframes. ADD treatment. I think I had some WD?  Definitely PSSD which resolved over time. 

Zoloft  100 MG April18-april 22, 2020

Buspirone 20 mg from April 18-May 18

10 mg from May 18 - May 27 2020

Lexapro 5 mg from April 22 through May 1st

10 mg from May 1 through June 1

5 mg from June 1 though june 18

2.5 mg from June 18 through June 25

1.25 mg from June 25 through July 4 2020

Ambien -  2.5 mg  April 21 and 26 2020

Trazodone 50 mg-  3 times late April and 4 days the first week in June 2020

Supplements:  Omega 3’s 1000 mg 3 X a day,  Magnesium Glycinate 400 mg (now 4 times a day), Melatonin 1 mg, Vitamin C 1000 mg, probiotics.

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dadtobe

@Rosetta I'm finally having a small window today (I call a window feeling 50% right now haha) and was able to read through your story. Your symptoms and mine line up so well. I felt like I was reading my own journal sometimes. I actually just developed dystonia after 3 months off. I called it inner vibrations, so now I know what that is. My back starts shaking while I'm just sitting on my laptop laying down. It's very weird. I almost feel like it's making me motion sick sometimes. Anyway, thanks again for all the well written posts. 

5/24 - Started .5mg - 1 Klonopin as needed - 7/20 - Started Lexapro 5mg (still on Klonopin) - 7/27 - Lexapro 10mg - 8/5 - Started tapering Klonopin stabilizing on a daily dose of .25mg - 8/17 - Jumped at .065 (fast taper... but it seemed to work)

8/17 - Lexapro to 9mg (time to get rid of the next drug..) - 8/29 - Lexapro to 6.5mg from 9mg (probably too fast but I had only been on Lexapro for a month so I felt like I could get away with it), 9/8-9/13 - Had alcohol all week sporadically (1 to 2 drinks) because I was feeling so much better. I tested with 1 drink, got away with it, and just kind of got excited.. ugh 

9/13 - Lexapro was down to 2.78mg (so 8/29-9/13 6.5 to 2.78mg) way too fast I know. 9/14 - Had a dentist appointment, received probably Lidocaine - Had mild anxiety in the afternoon after Novocaine wore off - 9/15 - Feels like I'm starting back into acute benzo withdrawal, 9/16 - Definitely very back into acute something, feels like Benzo withdrawal with severe burning sensation on skin, doing laps around the house. 

9/17 - Updosed Lexapro to 3.9mg 

9/19 - Updosed Lexapro more to 4.46mg

9/21-9/22 - reinstated Klonopin for 2 days .03125 mg 

9/26-10/16 - reinstated Klonopin again .03125 mg-.046875mg 

9/29-12/1 - reinstated Klonopin again - 03215mg-.065mg Klonopin

12/1 - 0 Klonopin

3/2 - .67mg Lexapro - Having a terrible month

3/12 - 0 Lexapro - advised it may actually be causing adverse side effects

 

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Rosetta

@Fightinghard

I’m responding to your post on my thread about akathisia.  Maybe you have a mild to moderate case of aka or maybe you have pretty extreme anxiety that increases and decreases with waves. 
 

Where the line is for aka vs. garden variety severe anxiety I don’t know.  I’m not sure I could say where it is for another person, but unless I have a restless leg feeling or an intense “need to do something” feeling along side anxiety, I don’t consider myself to have aka.

 

What is important for you to know either way is that: 1. It will resolve in a windows and waves pattern, and over time, it will lessen to a degree that you can tolerate it long before it goes away. 2. Drugs, lots of different drugs, and supplements, cause it or make it worse.  3. Withdrawal from various drugs or supplements can make it worse. 4. If you have aka, the way out is to let the episode peak and pass and to remember that it cannot hurt you unless you panic and act during the build up to the peak.  Usually, once a person knows what aka is and that it will go away, he finds it more tolerable.  
 

It always causes me distress to see someone with severe anxiety from SSRI withdrawal trying to treat it with drugs that cause aka.  Doctors prescribe SSRIs to people in benzo withdrawal and I cringe.  It makes me furious.  
 

It’s been my experience that akathisia can be very mild to severe.  Most people who have a mild case would not seek out a diagnosis.  They feel uncomfortable and uneasy.  They might feel as if they had had too much coffee.  They don’t think they have a medical condition, but rather a mental condition.  It is a medical condition, and it will heal.   People with severe cases may be so distressed that they feel as if they are on a high floor in a burning building with no safe way out.  People who have no idea akathisia is a condition that will resolve are most at risk, of course.  
 

Akathisia does not always present with pacing, inability to sit still, or restless legs.  I felt that I wanted to jump out of my skin, but I sat on the couch paralyzed by a feeling of terror.  Sometimes, it was even worse than that.  I thought I had PTSD.  Aka (and regular anxiety) is exacerbated by anything that would irritate the nervous system such as a scare, an argument, or a loud noise.  Sensitivity to light, sound, and touch may be present.  I could not stand a breeze on my skin.  I could not drive.  I could not be alone, but riding in a car was stimulation that I did not need.  Walking through crowds was awful, and I did not want anyone to touch me or even get close.  I had an exaggerated startle reflex.   Aka causes irritability, anger, and explosions of fury.  
 

In an extreme form, aka can cause paranoia.  In that case, the drive to figure out who or what is making one feel so threatened, both mentally and physically, is strong.  It is easy to start to wonder who is untrustworthy and plotting against one.  God forbid someone expressed a wish to harm a person who had severe aka!  You seem very reasonable and sane to me.  I only mention that for other people who are reading here.  It’s really important to put off confrontations and arguments because things are said that can’t be taken back.  It’s best to disengage completely until the aka is gone.

 

Aka doesn’t always resolve immediately after the drug is removed.  In fact, it can get worse when the drug is removed as it did for me.  However, it will resolve if one avoids adding further drugs and carefully, slowly tapers a drug.  People who taper may have it, and they suffer through knowing it will ease and resolve after each reduction.
 

The degree of aka waxes and wanes just like the degree of anxiety waxes and wanes for other people who do not have aka.  It peaks during an episode of it.  There can be more than one episode of it during a wave.  I have heard it said that aka involves anxiety, but anxiety is not aka.  That’s somewhat true except that anxiety isn’t a good description for the mental distress of aka.  It’s something more involved.  There aren’t any good words to describe aka except that burning building analogy, and that is for extremely severe cases.  
 

The terrors are gone, and the “need to jump out of my skin feeling” is gone or it’s very mild.  Before I became very ill, I had a propensity to address my severe discomfort by finding a problem in my life and anxiously pouring energy into attacking it with no regard for how doing so might affect anything or anyone else.  That is quite under control now.  I wish had the energy and drive that I used to have when aka was new and mild, but not debilitating, but I think I will get that back.

 

See these websites:  

 

https://missd.co

 

https://rxisk.org/akathisia/

https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25

2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period

May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born)

2012-2016 - Doctors raised dose of Zoloft up to 150 mg

2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction)

2016 - Stopped Xanax

Late 2016- Began (too fast) taper of Zoloft

Early 2017 - Trazodone prescribed for bedtime (doseage unknown)

Feb 2017 - Completed taper/stopped Trazodone

Drug free since Feb 2017

2017 - Unisom otc very rarely for sleep

Link to post
Fightinghard

Thank you so much for your thorough thoughts on this!  I think i have a mild case that was made moderate by all the stimulation. I also learned that melatonin may not be great for aka.  About 3 weeks ago i started reducing it by half;  i was taking .3 so i emptied half of a pill and took them. One night i forgot to take one. Anyway between driving and those changes I’m not sure but my symptoms ramped way up. They are settling down.   Today was ok for me.  Very low symptom overall.  i now take .27 mg of melatonin and I’ll reduce that over the next few months until I’m off all together.  I’m not taking any chances with big changes. I’m also avoiding driving outside of maybe a trip to the store. At least until it settles down.  I’ve noticed the windows and waves.  One day my startle is intense, next it’s my fear, then my legs. Each day is a new challenge. But all have dropped off the past day and I’m hoping it continues. 
 

thanks again!  I hope you are well!  

2003-2006-  Zoloft then Wellbutrin, Ritalin, concerta , Adderall.  Don’t remember dosage, tapers or timeframes. ADD treatment. I think I had some WD?  Definitely PSSD which resolved over time. 

Zoloft  100 MG April18-april 22, 2020

Buspirone 20 mg from April 18-May 18

10 mg from May 18 - May 27 2020

Lexapro 5 mg from April 22 through May 1st

10 mg from May 1 through June 1

5 mg from June 1 though june 18

2.5 mg from June 18 through June 25

1.25 mg from June 25 through July 4 2020

Ambien -  2.5 mg  April 21 and 26 2020

Trazodone 50 mg-  3 times late April and 4 days the first week in June 2020

Supplements:  Omega 3’s 1000 mg 3 X a day,  Magnesium Glycinate 400 mg (now 4 times a day), Melatonin 1 mg, Vitamin C 1000 mg, probiotics.

Link to post
Rosetta

I had adverse reactions to each AD.  I think my system was sensitive from having emergency surgery when I was 18.  I tried nortriptyline the next year.  I did not like it, and so, I never took it regularly, and I gave up very quickly, but I remember being very angry at the psychiatrist and having an ugly conversation with him and the therapist.  I became suicidal.  It was awful.  
 

The next time I tried one was when I was about 25.  I took only a few doses.  I was having trouble because I had cracked a vertebrae, and I had been given a barbiturate for pain, also when I was 25.  I got depressed.  Duh!  So, a few weeks later I had some sort of AD.  I don’t remember which. I took only a few doses.
 

Then, a few weeks later I was given one dose of some sort of benzo one day at the clinic, and that was not good, probably because I had decided to quit the barbiturate, and that caused WD, but no one explained that to me.  No one told me to taper.  Not one word was said.  
 

I did quit the barbiturate CT when I was 26.  After that I could not sleep, and a doctor gave me Ambien.  I took maybe 5 of those.  They did work, but the doctor did not want to give me too many more.  That scared me, and I decided to not ask a third time.  
 

Then, I was given Paxil which literally made me slam my head against a fence.  SSRIs were supposed to be safe.  I was not expecting to lose my mind.  So, I quit that right away, but the barbiturate withdrawal — that I did not know was happening — I did not crave it, I did not seek it, I just spent thousands of dollars on a physical therapist for pain, and eventually the pain was tolerable.
 

Eventually, I had Celexa when I was about 30 or so.  I think I never came out of withdrawal because I drank socially.  Somehow, I became suicidal again when I was 30.  I probably had some adverse reaction to alcohol that made it worse.  Shortly after I started Celexa, I was burned in a fire, and I had a short course of oxycodone.  
 

Celexa seemed to work, and I took it for 10 years, but my husband said it was bad for me, and I should quit.  He saw the changes.  When I had my baby, the cold switch to Zoloft made me very sick.  I got through that, but the Zoloft dose was raised over and over because I was unwittingly in wd from the Celexa.  That went on for 5 years.  Every raise of the dose kindled me.  Adverse reaction after adverse reaction.  Xanax was added when the anxiety was too much.

 

After I quit Zoloft and Xanax, I took Trazodone for a few weeks.  Here I am, 4 years after I quit Zoloft.  I have dystonia.  I have lost a lot of muscle tone.  I feel lethargic, but the akathisia is so mild that it barely bothers me now.  I’m more traumatized emotionally than anything.

https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25

2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period

May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born)

2012-2016 - Doctors raised dose of Zoloft up to 150 mg

2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction)

2016 - Stopped Xanax

Late 2016- Began (too fast) taper of Zoloft

Early 2017 - Trazodone prescribed for bedtime (doseage unknown)

Feb 2017 - Completed taper/stopped Trazodone

Drug free since Feb 2017

2017 - Unisom otc very rarely for sleep

Link to post
Phoenixmama

💔 

 

 

started celexa 10mg feb 2nd 

feb 25th took my last 10g

feb 26th took 5mg

feb 27th took 5mg 

feb 28th cold turkey 

currently taking mag

 

 

 

 

Link to post
Fightinghard

Hey Rosetta-  just want you to know I’m appreciative of your support and I’m definitely rooting for you.  It sounds like you’ve made progress over the years and you’re getting closer?  I hope so. 
 

 

2003-2006-  Zoloft then Wellbutrin, Ritalin, concerta , Adderall.  Don’t remember dosage, tapers or timeframes. ADD treatment. I think I had some WD?  Definitely PSSD which resolved over time. 

Zoloft  100 MG April18-april 22, 2020

Buspirone 20 mg from April 18-May 18

10 mg from May 18 - May 27 2020

Lexapro 5 mg from April 22 through May 1st

10 mg from May 1 through June 1

5 mg from June 1 though june 18

2.5 mg from June 18 through June 25

1.25 mg from June 25 through July 4 2020

Ambien -  2.5 mg  April 21 and 26 2020

Trazodone 50 mg-  3 times late April and 4 days the first week in June 2020

Supplements:  Omega 3’s 1000 mg 3 X a day,  Magnesium Glycinate 400 mg (now 4 times a day), Melatonin 1 mg, Vitamin C 1000 mg, probiotics.

Link to post
Rosetta

Oh, yes.  Much progress @Fightinghard  I seem to be in the home stretch.  Who knows how long that will take, but I can relax a lot of the time.  Tension and fight or flight mode are no longer the default.  Evenings continue to be better.  The cortisol wake ups are still happening, but they are milder, and the effect fades away faster.  The startle reflex is less likely to occur.  If I am startled or scared, the hormones are not released for as long a period of time as before.  My system can correct itself and calm down on its own much of the time.  I’m still having trouble with my monthly hormone changes.  They stir things up.  

https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25

2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period

May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born)

2012-2016 - Doctors raised dose of Zoloft up to 150 mg

2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction)

2016 - Stopped Xanax

Late 2016- Began (too fast) taper of Zoloft

Early 2017 - Trazodone prescribed for bedtime (doseage unknown)

Feb 2017 - Completed taper/stopped Trazodone

Drug free since Feb 2017

2017 - Unisom otc very rarely for sleep

Link to post
Fightinghard

Great to hear!  Hopefully things will just continue to melt away.  I’m sure they will soon.  
 

Things are a little better here. Well much better than a few days ago but still in the wave that started 2-3 weeks ago.  My instincts tell me the melatonin change started this since it does affect dopamine and serotonin.  So I’m going to slowly taper off with really small cuts. Maybe in 4-5 months I’ll be done. 
 

when you’re in a wave, do you completely avoid activity?  Today I’m home and I’ve done some small chores because I’m bored. Nothing exhausting just wiping things down.  I also do a walk early in the morning. Its so hard when you feel a little better to know whether you should do this or not.  I’m always debating this. I basically stay home orders otherwise. 
 

keep up the fight!  I bet you’re success story  is coming soon!

 

2003-2006-  Zoloft then Wellbutrin, Ritalin, concerta , Adderall.  Don’t remember dosage, tapers or timeframes. ADD treatment. I think I had some WD?  Definitely PSSD which resolved over time. 

Zoloft  100 MG April18-april 22, 2020

Buspirone 20 mg from April 18-May 18

10 mg from May 18 - May 27 2020

Lexapro 5 mg from April 22 through May 1st

10 mg from May 1 through June 1

5 mg from June 1 though june 18

2.5 mg from June 18 through June 25

1.25 mg from June 25 through July 4 2020

Ambien -  2.5 mg  April 21 and 26 2020

Trazodone 50 mg-  3 times late April and 4 days the first week in June 2020

Supplements:  Omega 3’s 1000 mg 3 X a day,  Magnesium Glycinate 400 mg (now 4 times a day), Melatonin 1 mg, Vitamin C 1000 mg, probiotics.

Link to post
  • Mentor
On 6/10/2021 at 3:59 PM, Rosetta said:

I’m more traumatized emotionally than anything.

Well put, @Rosetta.

  • Prozac | late 2004-mid-2005 | CT WD in a couple months, mostly emotional
  • Sertraline 50-100mg | 11/2011-3/2014, 10/2014-3/2017
  • Sertraline fast taper March 2017, 4 weeks, OFF sertraline April 1, 2017
  • Quit alcohol May 20, 2017
  • Lifestyle changes: AA, kundalini yoga

 

"If you've seen a monster, even if it's horrible, that's evidence of divinity." – Damien Echols

 

Link to post

@Rosetta I’m so happy to hear this 💕💕💕💕🥰🥰🥰🥰🥰

 

 

started celexa 10mg feb 2nd 

feb 25th took my last 10g

feb 26th took 5mg

feb 27th took 5mg 

feb 28th cold turkey 

currently taking mag

 

 

 

 

Link to post

@FarmGirlWorks  I don’t want to give the impression that I’m not seething with anger over the dystonia.  It’s a real problem.  When I sleep, it ramps up, and I wake up with seizing muscles in my jaw, my face, my eye.  Heck of a way to wake up in the night or every morning.  Once in a while, I wake up without that sensation.  Not very often.  I cannot read as much as I would like.  I can’t use my right arm as much as I would like or the dystonia in my arm and hand increases as does the dystonia in my back, leg, foot and toes.

 

Supposedly, dystonia can last permanently, but mine has improved so much that I don’t worry about that too much.  I don’t think that there has been enough research done on people who quit the drugs and never went back to them.  There is a theory that there is damage to the basal ganglia in people with dystonia.  Perhaps this is caused by the drugs and results in dystonia.  That dystonia can heal, there is no doubt as I no longer have the same degree of dystonia as I did.  I don’t know how much longer healing will take or if it will be complete.  
 

I believe that the severe sleep apnea that I have is caused by dystonia.  As you can imagine I’m furious that when I was diagnosed with sleep apnea, there was no discussion of Celexa or it’s effects on my body.  To have gone on taking Celexa after that diagnosis, and then take Zoloft for over 5 years . . . I am livid.  I had no idea the two were linked, but it is unconscionable that no investigation into the cause of dystonia was done.  There was no easy explanation such as being overweight at the time.

 

However, the sense of emotional trauma I feel outweighs that physical issue.  It’s that intense, the emotional trauma that I live with, and having my trust in doctors destroyed affects me, also, but it affects my husband, as well.  Neither of us feel that we can get treatment for anything without undisclosed risks.  We don’t feel we can get treatment for our daughter or our mothers without undisclosed risks.  The attitude of the doctors when we question them or when we decline drugs is very concerning.  Some of them take it well, but not all.  What a failure that profession has become.  I can hardly believe it.

 

https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25

2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period

May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born)

2012-2016 - Doctors raised dose of Zoloft up to 150 mg

2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction)

2016 - Stopped Xanax

Late 2016- Began (too fast) taper of Zoloft

Early 2017 - Trazodone prescribed for bedtime (doseage unknown)

Feb 2017 - Completed taper/stopped Trazodone

Drug free since Feb 2017

2017 - Unisom otc very rarely for sleep

Link to post

Hi Rosetta, thank you so much for reading this. Im a mother to 4 great kids. For the past 2,5 months I've been suffering with something that could be delayed AD WD precipitated by vigorous exercise (running). Im almost certain exercise caused this, but I'm not sure if AD has to do with it or not (I've been off of it for 3 months by then without any problems). Anyway, my symptoms are mainly awful anxiety, panic attacks, cortisol nights/mornings, and what could be a mild akathisia. I've been put back on 2 ADs that made things way worse. I've been off of them, and off of trazodone, for close to 2 weeks now. In fact, I've been off of all psych meds and I feel better. Last week was so good, I truly felt as if I was recovering a lot of the time. And then I did something stupid. I started getting a drink some days with dinner. I usually feel better most evenings so I relaxed and allowed myself a glass of wine. It goes wonderful in the evening but I notice the next day suffers. Every night I drink, the next day is worse and worse. I'm wondering if I can be kindling my nervous system? Should I completely abstain from alcohol, you think? Did I do a lot of damage to myself by drinking? 

 

Also I wanted to ask you, could it be that an episode of WD symptoms completely clears up after something as simple as talking to someone? I went to see my primary care in the midst of my usual "episode" and after talking to her for 20min I felt completely back to myself. This lasted the remainder of the day and even most of the next day. Is this possible to change things so dramatically just by talking to someone?

 

Thank you so much for reading my message. Im just trying to figure out what's going on with me. Im scared, lost, frustrated, and feel completely alone. I was labeled "anxiety episode" by everyone and noone would believe a word i say about anything else. Im not sure if its AD WD, or even if its a WD at all. All I know is that something has destabilized my nervous system and now my life has been turned upside down. It is not just anxiety that's for sure. I read a lot of info on this forum and I can identify with many things and symptoms voiced here, including the waves and windows pattern. So I decided to reach out and see if I can get some insights. You are a great Mom and such a courageous warrior. Im wishing you all the best in your recovery!

2016-2017: sertraline for approx. 1.5 years for anxiety and OCD outbreak following birth of my son (all the way from 2mg to 200mg), rapid tapered from 150mg for about 6 weeks without issues. Approximately 2 years psych drug free.

Nov 2019 - Feb 2020: fluvoxamine to prevent anxiety/OCD outbreak following birth of my daughter. Had to go off due to constant somnolence.

Feb 2020 - Dec 2020: started escitalopram while rapid tapering fluvoxamine. After 9 months decided to get off due to weight gain, rapid tapered from [I think] 15mg for about 6 weeks without immediate issues.

March-April 2021: started excessive strenuous exercise and dieting regimen for weight loss. Was doing great (or so I thought) for 3 weeks until early April 2021 when out of nowhere massive panic attacks, other dysautonomia symptoms. AWFUL CRASH.   

Mid-April 2021: fluoxetine 10mg for 1 week then 20mg for 1 week. Massive side effects, suicidality. Was told to go CT. Side effects gradually started resolving.

Mid-Late May 2021: sertraline for 11 days, fine at low doses but same side effects as prozac at 25 to 50mg. Was told to either drop CT or hold at 1/4 of a 25mg pill. 

April-May 2021: trazodone 50mg PRN for sleep. Do not take every day, the only side effect I noticed is dry mouth.

June 8, 2021: stopped all psych meds. Truing to trust that with God's help, my body will heal on its own. 

Other: Hashimoto thyroiditis for 11 years (on levothyroxine 125mcg), history of anxiety/GAD including health anxiety, OCD. History of autonomic dysfunction (migraines, vasovagal episodes).

Link to post

@Rosetta, sorry forgot to tag you, im very new to this. Thank you 

2016-2017: sertraline for approx. 1.5 years for anxiety and OCD outbreak following birth of my son (all the way from 2mg to 200mg), rapid tapered from 150mg for about 6 weeks without issues. Approximately 2 years psych drug free.

Nov 2019 - Feb 2020: fluvoxamine to prevent anxiety/OCD outbreak following birth of my daughter. Had to go off due to constant somnolence.

Feb 2020 - Dec 2020: started escitalopram while rapid tapering fluvoxamine. After 9 months decided to get off due to weight gain, rapid tapered from [I think] 15mg for about 6 weeks without immediate issues.

March-April 2021: started excessive strenuous exercise and dieting regimen for weight loss. Was doing great (or so I thought) for 3 weeks until early April 2021 when out of nowhere massive panic attacks, other dysautonomia symptoms. AWFUL CRASH.   

Mid-April 2021: fluoxetine 10mg for 1 week then 20mg for 1 week. Massive side effects, suicidality. Was told to go CT. Side effects gradually started resolving.

Mid-Late May 2021: sertraline for 11 days, fine at low doses but same side effects as prozac at 25 to 50mg. Was told to either drop CT or hold at 1/4 of a 25mg pill. 

April-May 2021: trazodone 50mg PRN for sleep. Do not take every day, the only side effect I noticed is dry mouth.

June 8, 2021: stopped all psych meds. Truing to trust that with God's help, my body will heal on its own. 

Other: Hashimoto thyroiditis for 11 years (on levothyroxine 125mcg), history of anxiety/GAD including health anxiety, OCD. History of autonomic dysfunction (migraines, vasovagal episodes).

Link to post

I’m having that allergic reaction again.  It started last night.  Both of my eyelids are swollen and itchy, and my lips hurt all around the edges.  Last time, it took over 8 days for my eyelids to stop itching.  My lips healed before that. It got worse before it got better.  The skin cracked and peeled even on my eyelids.  I can feel it on the roof of my mouth and inside my nose, too.  
 

I think I’m allergic to mangoes.  They have an oil in them that is similar to the oil in poison ivy and oak.  Some people have contact allergies with their skin and some people have allergies from eating them, too.   I have had no grapefruit since this happened last time, but yesterday, I had less than 1/4 of a mango. I’ve never had a problem with mangoes before.  
 

I touched the skin, and then I touched my eyes I guess.  The mango itself touched my lips. When I woke up with this allergy reaction again today, I took 1/2 a dose of Benadryl.  The Benadryl isn’t taking the allergic reaction away entirely.  

 

For the last 3 days I have had cortisol awakenings in the morning.  They aren’t mild.  They aren't the worst type either. This morning I had one.   I’m scared when I wake up and then I worry.  I’ve been worrying about my daughters teeth this morning.  She has to have two pulled so that her permanent teeth will come in to those spots.  I should have scheduled it by now.
 

I went back to sleep after the Benadryl.  I had been up from about 3:30 to about 6:00 am.  At around 9 I woke up because my husband woke me up.  I’m very anxious and upset because I wanted to do something special with my daughter today.  She’s going to a lesson this morning.  I feel too uncomfortable in my eyes to go out in the sun and the car.  So, my husband took her, and I’m here at home.

https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25

2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period

May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born)

2012-2016 - Doctors raised dose of Zoloft up to 150 mg

2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction)

2016 - Stopped Xanax

Late 2016- Began (too fast) taper of Zoloft

Early 2017 - Trazodone prescribed for bedtime (doseage unknown)

Feb 2017 - Completed taper/stopped Trazodone

Drug free since Feb 2017

2017 - Unisom otc very rarely for sleep

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