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Rabe: how to taper and adjust Viibryd while on Clonazepam


Rabe

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@wantrelief Hi..thank you so much.  Yes I will get it settled...sometimes there seem to be too many things in the pile to sort through with my mushy brain and feelings an thoughts.    

I got angry at all this today and drove back to my daughters but stayed only about an hour and then left before the most difficult time of the day.  I had 

a nice hour and that is enough and is ok.  I needed to confront those demons...I start to believe I am not good enough and then I doubt myself and fear that how I am wont be 'good enough' and will be upsetting to my daughter...which it is...and then I am leery of going because of that...things can change from minute to minute so I cant know really.  

I am working on getting more samples and capsules so that we can get going on the taper...just need an answer about changing capsules of one drug and that should do it...things will come together.  

The dehydration affects everything and my emotions and thinking, already not the best, get really turned upside down.  

Take care WR...Ill go to your thread and see how things are💜 

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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@brassmonkey@manymoretodays  I know I am often not clear...sorry.  I am just needing my clonazepam compounded capsules refilled along with the Viibryd I am getting so we will have at least 30 capsules of that.  Am wondering if can go back to Clonazepam .1 capsules and take 2 in afternoon and 7 in evening as those seemed to be better than the .2 capsule and .7 capsule....or if that is a dose change?  Though seems every refill is a dose change!  🙄

Also the doctors office got back to me and they need to get some more samples in...will have them this week though...will have at least 30 of the sample tablets as well.  Getting there!!

Noticed that when I weigh things sometimes I weigh it, when reweigh it is not the same or different the next time on the scale.  Hoping that is normal...or perhaps I am not doing it right.  Ill reread the information.  I think I am doing things right.  Thanks.

 

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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1 hour ago, Rabe said:

@wantrelief Hi..thank you so much.  Yes I will get it settled...sometimes there seem to be too many things in the pile to sort through with my mushy brain and feelings an thoughts.    

I got angry at all this today and drove back to my daughters but stayed only about an hour and then left before the most difficult time of the day.  I had 

a nice hour and that is enough and is ok.  I needed to confront those demons...I start to believe I am not good enough and then I doubt myself and fear that how I am wont be 'good enough' and will be upsetting to my daughter...which it is...and then I am leery of going because of that...things can change from minute to minute so I cant know really.  

I am working on getting more samples and capsules so that we can get going on the taper...just need an answer about changing capsules of one drug and that should do it...things will come together.  

The dehydration affects everything and my emotions and thinking, already not the best, get really turned upside down.  

Take care WR...Ill go to your thread and see how things are💜 

Hi Rabe,

 

I know that dehydration feeling and I experience it too. I am not a big water fan so I try to drink juice, seltzer and natural gingerale. The meds really dry us out. 

 

I empathize with what you have written above regarding your emotions. My self esteem has taken a huge hit  during all this and is even worse when symptoms are high.  For me it's the meds and what they do to my brain that heightens everything. 

 

I saw this excerpt from Baylissa Fredrick's book on the beyond meds website.  I wanted to pass it on to you.  I found it comforting today.  

 

https://beyondmeds.com/2010/08/24/positivesaboutwithdrawal/

 

Thinking of you and please know you are not alone.  

9/2013-4/2014:  After moms death, was prescribed a series of meds for short periods of time that didn't work. Zoloft, Lexapro,  Nortriptyline, Liquid Prozac, Cymbalta. 

1/2014-9/2014. Clonzapam: Given Lamictal, stopped Clonzapam at .125mgs  

1/2015-4 2017 Remeron: 41.25 -0.025mgs

7/2015-11/2018 Lamictal: 200mgs-0.05 mgs Had paradoxical reaction to Lamictal wd, broke my heart to take a benzo but wasn't sleeping. 

3/28/2019 -2/5/ 2021  Clonazapam: 0.625mgs-.00115 Med Free 

July 27th, 2022**Severe Setback due to surgery/ anesthesia. 

9/7/22-10/4/22 Trazadone 50-100mgs for sleep, 10/13/22-11/13/22 Trazadone 1 mg to stabilize

10/4/22-11/20/22 Remeron 7.5mgs (for sleep doesn't work) 11/20/22 7.3 - 12/31/22 6.3 

2023: 1/18/23 6.1 - 6/6/23 3.6  6/16 3.4  6/28 3.0 7/12 2.7  7/28 2.5 8/11 2.2 8/23 2.0  9/5 1.8  9/16 1.6  9/30 1.4  10/13 1.2  10/26 1.0  11/9 0.8  11/22 0.6  12/6 0.4  12/23 0.2.

2024 1/4/24  Remeron/Mirtazapine free 

Additional Support:  Armour Thyroid 75mgs, Magnesium Glycinate 300-500mgs,  L-theanine 

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@manymoretodays  Hi sorry this is late.  Have called pharmacy for new Viibryd compounded capsules and doctor for sample tabs of Viibryd...they are out of samples but will get both capsules and tablets this week.  Will also be getting new Clonazepam this week as well. SO getting there!

On 11/24/2018 at 3:04 PM, manymoretodays said:

Rabe,

If you remember back in April, May, and June.  Do you think the 1 p.m. symptoms are better or worse since you lowered your dose of Viibryd?  Your answer to Alto's second question is a little unclear.

Im sorry it is unclear...I looked back in my journal...

2/17 felt pretty good out of treatment when on 20 of Viibryd and 2.0 of Clonazepam

3/17 and 4/17 tapering Viibryd and Clonazepam...agitate, anxious, depressed, GI bad.  

8/17 depressed after tapered 50% Viibryd to 10mg and 7.5% Clonazepam to 1.85mg

9/17 put in hospital and tapered from 1.85 to 1.0mg Clonazepam....2 weeks later crashed with electrolyte issues

2/18 started AMiloride

2/22/18 Switched from CLonazepam tablets to compounded capsules (wonder if problems with Amiloride was it or change in CLonazepam)

4/18 hard trauma work session

4/27/18 went from Viibryd tablets to Viibryd compounded capsules for taper to 9.5mg 

5/18 stopped Amiloride cause not feeling well

6/11/18 Viibryd compounded 9.0mg capsules for taper ... found did not feel well couple hours after VIibryd with symptoms like tapering CLonazepam

7/9/18 went from .1mg Clonazepam compounded capsules to .7mg (instead of 7 of the .1mg)

7/16/18 went from 2 of .1mg Clonazepam compounded capsules to .2mg compounded capsules...stomach and GI a mess

CHANGING TO THESE SEEMED TO MAKE HUGE DIFFERENCE...reacting to food and meds and feeling pretty awful..though other things caused symptoms as well...not like this

8/8/18 burned mouth and throat on hot food

8/28/18 doctor talking about readmit for rapid taper...SO anxious

9/7/18 fell out of bed and hurt head

9/25/18 hurt toe badly with infection resulting

10/6/18 started new batch of compounded Viibryd, Clonazepam .2 and .7mg capsules..the ones that were all so off as far as weights

THIS ALSO MADE A BIG DIFFERENCE.  Called pharmacist and she said were ok...maybe less filler used.

10/12/18 therapist talking about getting off meds by christmas!!  VERY anxious.  Had to take car in and felt so nervous and trapped without it

11/2/18 called pharmacy again re capsules...will send some back to be checked

Have really not been good since the 7/16 change, but when look at all this it explains a lot.  It is hard for me to say if I was better or not after decreased Viibryd....it just seemed I was up and down so much..and the CLonazepam was lowered as well so which is which?  

I did remember that in treatment I would get anxious in afternoon and doctor said was withdrawing from CLonazepam...dont think was on Viibryd then...but could have been on lower dose.  Ill try to remember.

I always got nervous after the Viibryd...things seem worse since lowering it and Clonaz in that I am more nervous more often....all afternoon essentially.

Only times am not is in AM (except around 1030 that passes), brief break mid afternoon sometimes...2 or so...about 5ish and about 11ish...rarely that is not the case. 

I will post some daily logs if that is ok...might help???  I put this list together for all of you as well as for myself..once I started reading it and putting git with what I have learned here, it said a lot to me.  

Please let me know what I can answer MMT....I probably went way off track but when started reading journal re if Viibryd is better all this was there.

 

 

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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@Altostrata

On 11/22/2018 at 12:00 PM, Altostrata said:

Rabe, do you feel better or worse after taking Viibryd each day?

worse...

 

On 11/22/2018 at 12:00 PM, Altostrata said:

you've lowered the Viibryd dosage, have the symptoms you feel around 1 p.m. gotten better, worse, or the same?

worse...the early afternoon, later afternoon and early evening anxiety are all worse

 

On 11/22/2018 at 12:00 PM, Altostrata said:

Please keep the clonazepam dosing very regular, same dosages at the same times each day.

I will continue to do that, Alto, as best able with compounded capsules as know it does make difference.  Was better taking a tablet for sure. Was thinking about going back to the .1mg compounded capsules instead of the .2 and .7 as seemed better taking 2 and 7 of those?  Thank you again. Sorry I wasnt clear...mush mind...and anxiety.  Take care!

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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11/22

0730 woke hot and sweating

0900 tired and stiff 

1115 yoga

1140 Viibryd with food

1245 not feel well...anxious, head hot..not feeling well passed but anxiety continued on and off

230 better except for headache

330 drove to see daughter, very very anxious

430 food, depressed, head hot, anxious, ears ringing, feel feverish

540 Clonazepam with food, headache

630 head hot, burns, tired, irritable, agitated

840 premarin with food

930 headache so bad  

1115 better

1140 clonazepam with food and milk

 

11/23

0730 woke..so hot, sweaty

0900 woke tired and headache

1030 increase anxiety - passed

1100 yoga

1115 walked a block

1145 Viibryd with food

1230 heart pounds, increase headache and ears ringing

100 increase anxiety  

200 walk - better

345 rapid increase in anxiety

500 better

540 .2 Clonazepam with food

610 dizzy, headache 

840 premarin with food,  headache worse

1115 headache better, feel better

1140 .7 Clonazepma with food

 

11/24

0900 good AM

1140 Viibryd with food

400 increased anxiety 

500 better

550 Clonazepam with food

605 headache, dizzy, head so hot, really not feel well...got short of breath, depressed, anxious

till later evening

840 premarin with food

1145 Clonazepam with milk

 

11/25 

0915 ok

1015 short walk

1115 yoga

1145 viibryd with food

1215 or so just not feel well, anxious

430 started to feel better

540 Clonazepam with food

610 off balance/dizzy, headache

845 Premarin with food

1145 Clonazepam with food, ears ringing so loud, still not feeling well, headache, head hot

1240 feel so dry, frequency of urine

 

11/26

0900 felt good

1130 to daughters, felt ok one second and next was anxious 

1140 viibryd on way with food

145 felt worse, more anxious, weak, dizzy, short of breath

330 drove back

540 Clonazepam with food, still not feel well

840 premarin with food, still ot feel well

1000 started feeling better

1140 clonazepam with foof

 

 

 

 

 

 

 

 

 

 

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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@Hibari Oh thank you SO much for sharing that Hibari...that was so thoughtful.  I have listened to some of her things and I like her...very compassionate and knows this journey...no judgement which is wonderful!  Very encouraging!  

Will be keeping you in my heart and thoughts, Hibari.  Hope sleep can be yours tonight!💜

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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@Hibari Yes..the dehydration is so frustrating!!! Drink drink and all just passes through.  SO DRY!!  My doctor told me not to just drink liquids but ot add electrolytes so I add my coconut water and that has helped some, though still somedays and some times of days it just is not going to work.  But is better gratefully.  

I dont really have any self esteem left anymore...or not much...not what had by any means.  But hoping it may return slowly as things move forward.  I sure hope so.  Just so wish the I love could in any way understand or even WANT to understand what this journey is at all.  But that is not my concern...just have to try to accept.  I keep wanting to love those I love...but it takes away from loving myself and doing what I need to do for me.  Im not good at that at all and I find I have difficulty making decisions on what is best for me because i did that automatically along way as I took care of everyone else...have to learn.  Take care and thank you again Hibari!!

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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  • Administrator
3 hours ago, Rabe said:

I will continue to do that, Alto, as best able with compounded capsules as know it does make difference.  Was better taking a tablet for sure. Was thinking about going back to the .1mg compounded capsules instead of the .2 and .7 as seemed better taking 2 and 7 of those?  Thank you again. Sorry I wasnt clear...mush mind...and anxiety.  Take care!

 

I don't understand what you want to take here. Please do NOT change your clonazepam dosing.

 

You've said your symptoms got worse when you decreased Viibryd?

 

Thank you for those good daily notes. In those notes, please include the DOSAGE of each drug every time you take one. This is crucial.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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2 minutes ago, Altostrata said:

You've said your symptoms got worse when you decreased Viibryd?

yes..they seem worse...come earlier and last later...seem to be no/few breaks except am before meds...about 5...and then later at night.

 

4 minutes ago, Altostrata said:

I don't understand what you want to take here. Please do NOT change your clonazepam dosing.

Sorry Alto..just wondered.  When took 2 of the .1mg compounded capsules at 540 and 7 of the .1mg at 1140 I seemed better than when switched to the .2mg and .7mg capsules.  The dose is same but the thought is that taking more of the capsules makes up for some of variance which there has been a lot of in the capsules.  Whatever you say...did want to call the pharmacy tomorrow as they will be sending the viibryd capsules as well....so starting new batches of all.  

 

11 minutes ago, Altostrata said:

Thank you for those good daily notes. In those notes, please include the DOSAGE of each drug every time you take one. This is crucial.

Thank you for that reminder to my mush mind.....will do that from here on. Know you are so busy and am grateful for your time!  Take care Alto.

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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11/27

0700 hot and sweaty

1030 anxiety

1100 better

1115 yoga

1140 .9mg Viibryd with food

1240 heart fast, anxious

100 better

145 until 4 anxious

500 anxious, depressed

540 .2mg Clonazepam with food

600 chills

615 dizzy, head hot

830 more dizzy, short of breath, cold, 

850 .3mg Premarin with food, increased anxiety

915 dizzy, head hot, vision off (often forget this as well as chills cause happens so often)

1030, anxious, short of breath, dizzy, vision off

1115 some better

1140 clonazepam with food

1200 much better

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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whoops .... forgot to add the night clonazepam dose!  Fixed now.  Please ignore the above.  

11/27

0700 hot and sweaty

1030 anxiety

1100 better

1115 yoga

1140  9mg Viibryd with food

1240 heart fast, anxious

100 better

145 until 4 anxious

500 anxious, depressed

540  .2mg Clonazepam with food

600 chills

615 dizzy, head hot

830 more dizzy, short of breath, cold, 

850  .3mg Premarin with food, increased anxiety

915 dizzy, head hot, vision off (often forget this as well as chills cause happens so often)

1030, anxious, short of breath, dizzy, vision off

1115 some better

1140  .7mg Clonazepam with food

1200 much better

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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  • Moderator Emeritus
9 hours ago, Rabe said:

 I know I am often not clear...sorry.  I am just needing my clonazepam compounded capsules refilled along with the Viibryd I am getting so we will have at least 30 capsules of that.  Am wondering if can go back to Clonazepam .1 capsules and take 2 in afternoon and 7 in evening as those seemed to be better than the .2 capsule and .7 capsule....or if that is a dose change?  Though seems every refill is a dose change!  🙄

 

Rabe, I'm confused. I thought you were going to weigh your clonazepam instead of using the compounded pills. From your benzo thread:

 

On 11/3/2018 at 11:51 AM, Rabe said:

You mean switching over to regular pills and either weighing or water titrating the Clonazepam...correct?  That decision has been made.  Gel caps should

arrive today and a 'spoon'...and then i guess I am ready.  

 

Because you reported problems with the compounded clonazepam:

 

On 10/24/2018 at 1:51 PM, Rabe said:

I had one of former batch of the .7 Clonazepam that I thought I should not waste so took that last weekend and actually slept well and woke up feeling pretty good.  I have noticed, which have never noticed before, that many of the capsules are not filled all the way...that is new.

 

 

Please add the numbers of hours you are sleeping in your drug and symptoms journal. 

 

 

 

 

 

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On 11/22/2018 at 2:15 PM, manymoretodays said:

Meantime, best to stick with your compounded clonazepam and the same dosages.

 

Hi Shep...nice to 'see' you.  I thought I was going to do that as well Shep...I have been confused pretty much lately which Im sure is obvious and I apologize.  I have felt one person says one thing and then I read something else....but it is probably my not understanding.

I thought would be weighing both the meds and could use the capsules or tablets.  Wanted to use the capsules. Then needed pills as well...somewhere here totally missed the crossover.  I have had the scale, spoon and capsules here for quite awhile.

 

 I thought Brass said capsules could be used to taper and he just needed me to get the weight of the capsule filler? 

 Then I was to get tablets to crush so have been trying to find the Sandoz blue 1mg Clonazepam cause dont react to it.  It is out of stock everywhere.  Asked the compounding pharmacist if could get it there as they use it for my capsules and she said no but that Sandoz sold out to Northstar...so to look for that as the manufacturer now. 

Then needed both the tablets and capsules for a crossover which I didnt understand though makes sense.

 

Again Im sorry....I could go back and pull all the posts I got my thoughts from but there is no point in that.  I just need to know what you all need from me.

I will be getting the Viibryd capsules and tablet samples.  I will be ordering more of the CLonazepam capsules but have not yet as I wondered about going back to the .1mg capsules instead of the .2 and .7 as they seemed to cause way less issues for me...didtn know if that in itself is a dose change or not.  Seems every capsule order is a dose change anyway.  Taking more of the .1's was less problematic...Rosetta said probably cause more capsules covers some of the variances which pharmacist says makes sense.

 

I dont know what to say really...you all work so hard and i am grateful.  I have gotten lost a lot though this and apologize.  I dont know who to ask things of so I put more than one name but fear hurting someone by doing that.  I sometimes am not sure which thread to post things on.  And then it all makes me quite nervous when I have not been able to get this right.  What am I missing or where did I misunderstand?  Again, I apologize to you all and appreciate your patience in moving forward.  

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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6 hours ago, Shep said:

Because you reported problems with the compounded clonazepam:

 

Yes!!!  Viibryd was off as well.  But CLonazepam with 2 capsule doses off and then the drugs interacting....lots changed after switched from .1s to .2 and .7 of CLonazepam and with last new batch of compounded Viibryd and CLonazepam that started in Oct I was feeling so bad.  Called pharmacist within days .... then noticed capsule contents visually varied...then the weights were so off.

7 hours ago, Shep said:

Please add the numbers of hours you are sleeping in your drug and symptoms journal. 

 

I will do that....had not put doses and Alto caught that...so thank you. 5 hours last night with one wake up to bathroom.

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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I really was smart and incredibly organized and on top of everything once....hard to believe I kow....😳🤪

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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  • Moderator Emeritus

Hi Rabe,

You are doing fine.

I just need weights, or average weights of both capsule contents, and tablets of Viibryd only right now.  And keep on getting comfortable using your scale.  Just for the Viibryd only now.

The crossover to clonazepam tablets, will come after you have completed the Viibryd crossover.

 

Do keep doing the daily logs though(those are always helpful to all of us) and I noted also your history summary, and read through it.  That way, if something stands out, in your daily notes.......we can address when we see it.  I think the notes will also, help you feel on top of it all again too.  More organized, smart, etc.  Empowered.  Keep using and developing your coping skills too.

 

Thanks for your support on my introduction.  Much appreciated.  It's going okay......I'm just a bit slammed here the next couple of days with offline work and responsibilities.  I'll be back, more regular, in a couple of days.

 

Best, Love, peace, healing, and growth,

mmt

 

Late 2023- gone to emeritus status, inactive, don't @ me, I can check who I've posted on, and I'm not really here like I used to be......thanks.

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016.  And.....I quit smoking 11/2021. Lapsed.  Redo of quit smoking 9/28/2022.  Can you say Hallelujah?(took me long enough)💜

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider.  My success story:  Blue skies ahead, clear sailing

 

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  • Administrator
On 10/24/2018 at 10:51 AM, Rabe said:

had one of former batch of the .7 Clonazepam that I thought I should not waste so took that last weekend and actually slept well and woke up feeling pretty good.  I have noticed, which have never noticed before, that many of the capsules are not filled all the way...that is new.  I m sure I would have noticed that before.  I called the pharmacist on it and cannot even remember what she said because it made no sense...something about the fillers etc...but what does that have to do with how much is in each capsule if they are to be the same dose.

 

Rabe, please understand that when you get a drug compounded, the pharmacist is making up custom capsules for you. They will put in fillers because the active ingredient is a very small amount of powder. Without the filler, the capsule may appear to be empty! The capsules may not be entirely filled up, that's normal for a handmade custom capsule.

 

If you think you are reacting to the fillers, you can ask for a non-reactive filler (I think they use rice powder).

 

Is there any reason you think the compounding pharmacy is not accurate? Do you feel you can more accurately weigh your clonazepam dose yourself?

 

Back to the dehydration and other symptoms -- when was the last time you had an electrolyte panel? This is a general blood test. Are you drinking water throughout the day? Are you urinating unusually frequently? Could you have low potassium or hypokalemia? Have all other medical conditions been ruled out?

 

Why are you taking Premarin? Here are side effects.

 

 

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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47 minutes ago, Altostrata said:

Rabe, please understand that when you get a drug compounded, the pharmacist is making up custom capsules for you. They will put in fillers because the active ingredient is a very small amount of powder. Without the filler, the capsule may appear to be empty! The capsules may not be entirely filled up, that's normal for a handmade custom capsule.

 

If you think you are reacting to the fillers, you can ask for a non-reactive filler (I think they use rice powder).

 

Is there any reason you think the compounding pharmacy is not accurate? Do you feel you can more accurately weigh your clonazepam dose yourself

 

Yes...capsules were not always full but did not have some nearly full and others half full like last ones....so weighed them and there was a wide variance.  I've never done that before but I was feeling so bad after starting this new order of all three.  Sent weights to brass who said could be a problem.  He took average and then gave me an acceptable range for all 3 capsules.  I sent the others back to the pharmacy for review.  Would like to go back to the .1mg compounded Clonazepam rather than the .2mg and .7mg because I did better with them...would that be ok?  These were the weights of capsules...wondering what you think?   

                Viibryd  .221 to .256

             .2  Clonazepam .213 to .271

             .7  Clonazepam .234 to .268

 

No reaction to the brown rice filler.

 

My body told me there was a problem and then the above is reason felt they were not real accurate...but I know this scale varies as well. Understand things will not be all equal but I knew something was really not right when I started those capsules...unlike others I have gotten there for months.

I dont know that my weighing would be more accurate and would like to try one thing first and see how goes...if goes well I could do all.

Thank you Alto..appreciate your help. 

 

 

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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1 hour ago, Altostrata said:

Back to the dehydration and other symptoms -- when was the last time you had an electrolyte panel? This is a general blood test. Are you drinking water throughout the day? Are you urinating unusually frequently? Could you have low potassium or hypokalemia? Have all other medical conditions been ruled out?

 

Why are you taking Premarin? Here are side effects.

 

 

I had electrolytes checked beginning and middle of November....all ok.  My PCP said I was dehydrated and said to add my electrolytes (coconut water) to the water I drink so does not just run through me and draw more electrolytes out.  That has helped some.  I think the meds dry me out a lot...notice that after taking them.  

Some days I am urinating frequently and others not as much...bladder gets irritated too...think from meds.  The frequency started when tapering the CLonazpam at home...up a lot at night and urine so concentrated, bladder burned.  My PCP referred me to an endocrinologist just to see...so will do that in March...first appt.  But yes more fluids helps, and less anxiety.

Started premarin after my hysterectomy in 2000...the doctor said to stay on it.  I tapered half the dose and then had a fall I think...cant remember what interrupted it but had to stop, and then the events of past few years happened.  I tried to taper it at home with the CLonazepam but it was not possible.  I want to be off it and doctors want me off it but dont know...have thoughts on doing that right now?  I guess I thought it could wait in line but maybe it should go first. 

Thank you again! Take care

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

Link to comment
4 hours ago, Rabe said:

 

Yes...capsules were not always full but did not have some nearly full and others half full like last ones....so weighed them and there was a wide variance.

 

It may have been that the fillers were different and the active ingredient was correct, but I did have a compounding pharmacy make a calculation error (drastic drop in dose), so it does happen. :(

2005 St John's Wort / 2006-2012 Lexapro 20mg, 2 failed attempts to stop, tapered over 4.5 months in early 2012

January 2013 started Sertraline, over time worked up to 100mg

July 2014 Sertraline dropped from 100mg to 75mg, held for six months, slower tapering until 2019 22 Dec 3.2mg

2020 Sertraline 19 Jan 3.1mg, 26 Jan 3.0mg; 1 Mar 2.9, 7 Mar 2.8, May (some drops here) 24 May 2.5, May 29 2.4, June 21 2.3, June 28 2.2mg,  July 4 2.1mg, July 24 (or maybe a bit before) 2mg, early Nov switched to home made suspension; 29 Nov 1.8mg; approx 25 Dec 1.6mg)

2021 Some time in about Jan/Feb realised probably on more like 1.8mg and poss mixing error in making suspension; doses after 10 Feb accurate; 10 Feb 1.6mg; 7 Mar 1.4, continued monthly

10% drops until 1mg, then dropped 0.1mg monthly.

May 2022,0.1mg, now dropping 0.01mg per week

29 August 2022 - first day of zero!

My thread here at SA: https://www.survivingantidepressants.org/topic/1775-bubbles/page/21/

Current: Armour Thyroid

 

 

Link to comment

@bubbles Hi...hope you are doing ok??  The filler is always the same...brown rice.  I never had the problems I did with the last round of pills...dont know what was what but know something was not right.  Hope the next round goes better!  Take care bubbles!!💜

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

Link to comment
1 minute ago, Rabe said:

@bubbles Hi...hope you are doing ok??  The filler is always the same...brown rice.  I never had the problems I did with the last round of pills...dont know what was what but know something was not right.  Hope the next round goes better!  Take care bubbles!!💜

 

Oh yes, that was a while ago. Oddly, I didn't notice the drastic down except that side effects were better; I did notice the ramping up of side effects with the up that followed. It was meant to be 29, 27, 25, but it was 29, 12ish, 25...

2005 St John's Wort / 2006-2012 Lexapro 20mg, 2 failed attempts to stop, tapered over 4.5 months in early 2012

January 2013 started Sertraline, over time worked up to 100mg

July 2014 Sertraline dropped from 100mg to 75mg, held for six months, slower tapering until 2019 22 Dec 3.2mg

2020 Sertraline 19 Jan 3.1mg, 26 Jan 3.0mg; 1 Mar 2.9, 7 Mar 2.8, May (some drops here) 24 May 2.5, May 29 2.4, June 21 2.3, June 28 2.2mg,  July 4 2.1mg, July 24 (or maybe a bit before) 2mg, early Nov switched to home made suspension; 29 Nov 1.8mg; approx 25 Dec 1.6mg)

2021 Some time in about Jan/Feb realised probably on more like 1.8mg and poss mixing error in making suspension; doses after 10 Feb accurate; 10 Feb 1.6mg; 7 Mar 1.4, continued monthly

10% drops until 1mg, then dropped 0.1mg monthly.

May 2022,0.1mg, now dropping 0.01mg per week

29 August 2022 - first day of zero!

My thread here at SA: https://www.survivingantidepressants.org/topic/1775-bubbles/page/21/

Current: Armour Thyroid

 

 

Link to comment

And thats the thing bubbles...if you are one more than one then how do you know what is going on?  You had two that were ok and one that was less than half what it should have been.  That alot.

Two of the three of mine were not as off as the one Clonazepam dose...that was really out of line.  If you would take the lowest weight and then the highest, or vice versa, it would be a 30% change.  I was kind of taken aback when saw that.

The pharmacist I talked to first said they try to be in 3% range...then when I talked to the head pharmacist he said that they can be off by 10% and still be within guidelines...thats what FDA standards are.  And the doctor took me from pills to compounding to get on a stable dose.  Hmmmm.... 

Im beginning to believe there is no 'stable' dose while getting off these meds...most stable maybe...but not stable unless you have a liquid from the manufacturer....maybe that goes better.  But IDK.  

I wonder what people think the MOST stable way to taper is....

Sometimes it makes me just want to get off them faster as all this wreaks such havoc anyway...but then I remember what last year has been like...

Take care bubbles!💜

 

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

Link to comment

@manymoretodays  I will be picking up the samples tomorrow, and as soon as I get an answer here on whether it is ok to go back to the .1mg compounded CLonazepam capsules and take 2 and 7 of them rather than taking a .2 and a .7 I will order those so that they can send them all along with the Viibryd.  Thank you MMT for you help!

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

Link to comment
2 hours ago, Rabe said:

And thats the thing bubbles...if you are one more than one then how do you know what is going on?  You had two that were ok and one that was less than half what it should have been.  That alot.

Two of the three of mine were not as off as the one Clonazepam dose...that was really out of line.  If you would take the lowest weight and then the highest, or vice versa, it would be a 30% change.  I was kind of taken aback when saw that.

The pharmacist I talked to first said they try to be in 3% range...then when I talked to the head pharmacist he said that they can be off by 10% and still be within guidelines...thats what FDA standards are.  And the doctor took me from pills to compounding to get on a stable dose. 

 

The 12 might have been wrong (like, maybe it was 11 or 14), but it was a drastic drop in that sort of range. Like I said, weird that I didn't notice much for the down, but did notice the up. The 25 was was half a 50 tablet per day - no sense paying for compounding for that - so it was likely pretty accurate. The error was a calculation mistake, not an allowed margin. They were horrified and gave me my money back.

 

I had liquid escitalopram at one point years ago but now I'm tapering sertraline and that proprietary liquid doesn't exist in my country.

 

Slower is always better IMO - more stable, fewer symptoms, more likely to get off safely. Yes, probably proprietary liquid would be the best, and all manufacturers should be forced to make them, but that's not the case. (And the liquid isn't intended for us for tapering anyway, it's for young children. :()

 

 

2005 St John's Wort / 2006-2012 Lexapro 20mg, 2 failed attempts to stop, tapered over 4.5 months in early 2012

January 2013 started Sertraline, over time worked up to 100mg

July 2014 Sertraline dropped from 100mg to 75mg, held for six months, slower tapering until 2019 22 Dec 3.2mg

2020 Sertraline 19 Jan 3.1mg, 26 Jan 3.0mg; 1 Mar 2.9, 7 Mar 2.8, May (some drops here) 24 May 2.5, May 29 2.4, June 21 2.3, June 28 2.2mg,  July 4 2.1mg, July 24 (or maybe a bit before) 2mg, early Nov switched to home made suspension; 29 Nov 1.8mg; approx 25 Dec 1.6mg)

2021 Some time in about Jan/Feb realised probably on more like 1.8mg and poss mixing error in making suspension; doses after 10 Feb accurate; 10 Feb 1.6mg; 7 Mar 1.4, continued monthly

10% drops until 1mg, then dropped 0.1mg monthly.

May 2022,0.1mg, now dropping 0.01mg per week

29 August 2022 - first day of zero!

My thread here at SA: https://www.survivingantidepressants.org/topic/1775-bubbles/page/21/

Current: Armour Thyroid

 

 

Link to comment

Rabe,

 

You said getting all the capsules made with 0.1 in them was more expensive, right?  If you can afford it then you have to decide whether it's better to have all 0.1 capsules available for your 0.2 and 0.7 doses.  My theory that 0.1 was possibly better may not hold up given that a 10% variance is allowed by the head pharmacist.

 

The Mods want to focus on reducing the V, of course, before making changes to the C.  I'm assuming that you will get used to using the scale with the Viibryd and will eventually be comfortable measuring the C.  Until then, you want to get the C compounded into capsules AND you are essentially required to continue getting compounded C capsules because that's the only way you can get Sandoz Clonazapam, right?

 

Most people feel that that anytime you get a new batch of C capsules you are undergoing a change in dose.  Maybe a Mod would disagree, but I'm not entirely sure that it's a change that actually matters if you decide to get all 0.1 capsules this time and take 2 of them (or 7 of them) for three reasons: 1) it's a change either way to get a new batch; 2) this pharmacy isn't trying very hard to make the capsule content consistent; 3) measuring 0.1 isn't that much harder to get right than measuring 0.2 so the variance will be an issue with both types.

 

With that said when you do decide to empty the capsules and make your own capsules (or a liquid) it is going to be A LOT more work to empty 7 or 8 of the 0.1 capsules to get your dose on the scale!. It would be much easier to empty out the 0.7 capsule and then try to make new capsules that are consistently holding 0.7.  So, I think you may want to consider how long the new batch will last perhaps?  Will it last very long past the time you decide to start making your own C capsules?  Are you going to get the hang of measuring earlier than you expected and decide that you want the C capsules to be made by yourself so that they are more consistent?  That seems to me to be an important consideration -- more important than a change from getting 0.2s and 0.7s -- because your C dose seems to be undergoing a change that you can't avoid with the new capsules being made.

 

Heres another reason to get the 0.7s:. Some people dissolve the capsule content in water and then drink only part of the water in order to reduce the dose.  It's more work to have to open 7 capsules in order to take your dose.  

 

Hugs, R

https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25

2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period

May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born)

2012-2016 - Doctors raised dose of Zoloft up to 150 mg

2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction)

2016 - Stopped Xanax

Late 2016- Began (too fast) taper of Zoloft

Early 2017 - Trazodone prescribed for bedtime (doseage unknown)

Feb 2017 - Completed taper/stopped Trazodone

Drug free since Feb 2017

2017 - Unisom otc very rarely for sleep

Link to comment

Hi Rosetta...I talked to the pharmacist and she said that the allowed variance on a .1mg tablet is going to be much smaller than on a .7 which makes sense....that up to 10% of .1 is going to be much less than on .7...so IDK...your points are all well taken.  I am just overwhelmed still and find it very hard to commit or make decisions.  Think it is fear and lack of trust at this point because of all the issues with doctors and pills etc along the way.

Sometimes just getting off them quicker seems more humane...but I know that is not true either.  Take care and thank you so much for your thoughts.  For feeling you do not think clearly you surely are very wise and insightful and very clear to me!  Thank you so so much!  Love and hugs!!!💜

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

Link to comment

Hmm, well, she did NOT say the percentage of variance allowed for the 0.1 capsules was a lesser percent, correct?  (It should be!).  She said that the actual amount of missing or extra C in the capsule would be different because 10% represents a tinier amount of C in the 0.1 capsules. So, each capsule of a set of 7 would still have a theorectical total of up to 10% difference.  Some capsules would have more and some less and maybe on the 0.7 dose they would possibly even out to something closer to 0.7.  It's unlikely that all capsules would be "short" or all would be "long, " I suppose.  

 

I know, Rabe.  This is just Hell for you right now.  Of course, the problem is surviving a CT.  It worked out for me, but not by chance.  I had 24 hour supervision at crucial points.  It's also a very traumatic experience.  I haven't forgotten the very worst parts.  I hope my daughter has.  My husband hasn't.  I know you know this, but it must be hard to see people here who survived CTs and are recovering.  We don't see those who didn't survive except when we stumble upon them after an "unfortunate event."

 

I hope the Mods chime in.  If not, I think I would get the 0.1 capsules.  I doubt you will need to taper C by the time you run out and if you do, you will be emptying lots of capsules.  Oh, well.  There is no way to know for sure whether the variance in the 0.7 capsule is that much of a problem or whether the Viibryd tapering and the way it affects the C in your system is the real problem.

 

I hope you can get some stability soon, Rabe. -- Rosetta

https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25

2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period

May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born)

2012-2016 - Doctors raised dose of Zoloft up to 150 mg

2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction)

2016 - Stopped Xanax

Late 2016- Began (too fast) taper of Zoloft

Early 2017 - Trazodone prescribed for bedtime (doseage unknown)

Feb 2017 - Completed taper/stopped Trazodone

Drug free since Feb 2017

2017 - Unisom otc very rarely for sleep

Link to comment
1 hour ago, Rabe said:

Hi Rosetta...I talked to the pharmacist and she said that the allowed variance on a .1mg tablet is going to be much smaller than on a .7 which makes sense....that up to 10% of .1 is going to be much less than on .7...so IDK...your points are all well taken.  I am just overwhelmed still and find it very hard to commit or make decisions.  Think it is fear and lack of trust at this point because of all the issues with doctors and pills etc along the way.

Sometimes just getting off them quicker seems more humane...but I know that is not true either.  Take care and thank you so much for your thoughts.  For feeling you do not think clearly you surely are very wise and insightful and very clear to me!  Thank you so so much!  Love and hugs!!!💜

 

Hi @Rabe I don't think that getting off quicker is more humane, though it was in the back of my mind when I did my rapid taper, and I'm glad you know that it isn't the case. :) 

 

2005 St John's Wort / 2006-2012 Lexapro 20mg, 2 failed attempts to stop, tapered over 4.5 months in early 2012

January 2013 started Sertraline, over time worked up to 100mg

July 2014 Sertraline dropped from 100mg to 75mg, held for six months, slower tapering until 2019 22 Dec 3.2mg

2020 Sertraline 19 Jan 3.1mg, 26 Jan 3.0mg; 1 Mar 2.9, 7 Mar 2.8, May (some drops here) 24 May 2.5, May 29 2.4, June 21 2.3, June 28 2.2mg,  July 4 2.1mg, July 24 (or maybe a bit before) 2mg, early Nov switched to home made suspension; 29 Nov 1.8mg; approx 25 Dec 1.6mg)

2021 Some time in about Jan/Feb realised probably on more like 1.8mg and poss mixing error in making suspension; doses after 10 Feb accurate; 10 Feb 1.6mg; 7 Mar 1.4, continued monthly

10% drops until 1mg, then dropped 0.1mg monthly.

May 2022,0.1mg, now dropping 0.01mg per week

29 August 2022 - first day of zero!

My thread here at SA: https://www.survivingantidepressants.org/topic/1775-bubbles/page/21/

Current: Armour Thyroid

 

 

Link to comment

Hi Rabe,

 

I just want to say I hear the stress you are under trying to get everything straight while in wd.  

 

I see the effort you are making to do all this while answering technical, (at least to me), questions from numerous people who are trying to help. 

 

I know I have struggled at times to answer questions while my brain is not operating at its best.  And to have to make adjustments to medications that can cause reactions is so frustrating.  

 

Be gentle with yourself, I can feel how hard you are trying to get through this and you will.  

 

 

9/2013-4/2014:  After moms death, was prescribed a series of meds for short periods of time that didn't work. Zoloft, Lexapro,  Nortriptyline, Liquid Prozac, Cymbalta. 

1/2014-9/2014. Clonzapam: Given Lamictal, stopped Clonzapam at .125mgs  

1/2015-4 2017 Remeron: 41.25 -0.025mgs

7/2015-11/2018 Lamictal: 200mgs-0.05 mgs Had paradoxical reaction to Lamictal wd, broke my heart to take a benzo but wasn't sleeping. 

3/28/2019 -2/5/ 2021  Clonazapam: 0.625mgs-.00115 Med Free 

July 27th, 2022**Severe Setback due to surgery/ anesthesia. 

9/7/22-10/4/22 Trazadone 50-100mgs for sleep, 10/13/22-11/13/22 Trazadone 1 mg to stabilize

10/4/22-11/20/22 Remeron 7.5mgs (for sleep doesn't work) 11/20/22 7.3 - 12/31/22 6.3 

2023: 1/18/23 6.1 - 6/6/23 3.6  6/16 3.4  6/28 3.0 7/12 2.7  7/28 2.5 8/11 2.2 8/23 2.0  9/5 1.8  9/16 1.6  9/30 1.4  10/13 1.2  10/26 1.0  11/9 0.8  11/22 0.6  12/6 0.4  12/23 0.2.

2024 1/4/24  Remeron/Mirtazapine free 

Additional Support:  Armour Thyroid 75mgs, Magnesium Glycinate 300-500mgs,  L-theanine 

Link to comment

@Rosetta @bubbles @Hibari 

Thank you all so much for you thoughts and support.  I am more than grateful!  I just want to get going as it seems as time goes on I seem to react worse and worse to these meds.  I feel ok and then I take a med and I dot feel well.  I got a haircut today and looked good when went in at 100 (Viibryd at 1145)

and I could see the change in the mirror...I was pale and didnt feel well...looked and time was about 145. Tonight I got my color back and some energy...took Clonazepam at 1140 and at 1210 was pale and SOB...what the heck is going on????  Getting scary. Heart skips...not right.

Bless you all!!! 💜

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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@Rosetta She actually did say the variance would be smaller because the dose is smaller..but you are right..the variance could still be 10% even though it is monetarily smaller...so that really doesnt make sense but it sounded good.  IDK...Ill talk to her again tomorrow. 

Am trying desperately to find the Sandoz 1mg Clonazepam tablets that are now manufactured by Northstar....wondering where I can get them.

The Viibryd capsules should come tomorrow or Saturday along with the ones I sent to be checked...of course the are all up to code. 🙄

Im just tired of feeling sick.....and concerned about things getting worse...dont like the pallor and dizziness and SOB after taking these meds....did not have all this before.  I used to take the CLonazepam and would look and feel better....not anymore. The Viibryd ramps up my system and my heart races and then the Clonazepam does the opposite and it seems to be trying hard to beat at all and compensate.  Crazy. Just tired. Sometimes I wonder if I ought not get rid of some of the CLonazepam first....sscaring me more than the Viibryd.

Thanks again...hope you have had a better day today....and that tonight is better as well than last night!  Love and hugs! 💜

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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@manymoretodays  

11/28

To bed late but got about 7 hours of sleep.  Woke once hot and another to use bathroom

1030 increased anxiety - yoga 

1100 better

1145 9mg Viibryd with food

1245 heart fast and pound, slight increase in anxiety

140 increased anxiety - walk

200 went to get groceries

235 increased anxiety, headache on and off but ran errands

515 finally better

545  .2 Clonazepam with food

700 increased anxiety, headache

630 chills and need to urinate

710 very tired/sleepy/drowsy

730 anxious

750 chilled and cold and need to urinate, very pale, heart flutters

800 better...getting food

845  .3mg Premarin with food

1000 headache, anxiety, not feel well

1145 .7mg Clonazepam with milk...ok but get pale

1200 felt better and then tried to sleep and could not...finally to bed at 215 not feeling well

 

 

 

 

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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@manymoretodays

11/29

5 hours sleep ... up to bathroom x 1 and up too warm once

800 woke

slept to 1000 again

1030or so increased anxiety

1045 breathing and then yoga

1150 9mg Viibryd with food

100 haircut, felt good, chatting

145 anxiety, pale, short of breath/feel unable to get air

200 or so - better - food

330  out for errands

400 increased anxiety

500 pale, not feel well

530 better

545 .2mg Clonazepam with food

645 dizzy/off balance, ears ringing, dont feel well, chills, urgency, cold, heart skips

725 still off balance, headache, anxious, vision funny, head hot

815 better

845 .3mg Premarin with food

915 head hot, feel feverish, ears ringing

945 better

1030 good

1120 anxiety, ears ring loud

1140 .7 Clonazepam with milk and snack

1210 anxious, feel cant get air

1225 off balance, urgency, heart skips

1250 better

115 tired, quick short bath and to bed

 

 

 

 

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

Link to comment
  • Moderator Emeritus

 

Hi Rabe,

I'm just guessing, but I think you might be "barking up the wrong tree", so to speak.  As far as another switcharoo to the  0.1 mg compounded clonazepam.

20 hours ago, Rabe said:

Hi Rosetta...I talked to the pharmacist and she said that the allowed variance on a .1mg tablet is going to be much smaller than on a .7 which makes sense....that up to 10% of .1 is going to be much less than on .7...so IDK...your points are all well taken.  I am just overwhelmed still and find it very hard to commit or make decisions.  

A 10% variance in a 0.1  compounded clonazepam capsule(ccc) is .01.  When you take 7 of those, for your 23:30 dose.......well then, add up .01 seven times. 

.01+.01+.01+.01+.01+.01+.01= .07

And then.......a 10% variance of a 0.7 mg ccc also equals .07.

So.......I don't get it? 

 

I thought we were going to work on some tapering of Viibryd soon.......or sometime soon.  As we haven't even begun crossing over to tablet on that yet.

And I'm good, if, when the time comes, you would still like to cross over to clonazepam tablets too........before tapering commences on Viibryd.

The pharmacist may think you are tapering clonazepam now.......I don't know.  Good answer from the pharmacist, just the same.

 

Could some of your symptoms be related to

  • continued benzo withdrawal......after all, you ended up cutting that dose in half, back in the fall of 2017
  • then began Viibryd.......from what I can gather, that didn't do much for the benzo W/D and may have sent you into some other physical concerns due to adverse reactions
  • Cut Viibryd dosage in half, which from what I can gather........you did seem to get a bit more stability, if not from W/D symptoms, from some of the other medical issues that had seemed to arise or adverse reactions to it

Meantime, you've tried to rely on this ? treatment center, and then treatment team for all manner of healing........while feeling rushed, not feeling well.  While also in high anxiety/fears.  I always attribute that part.......my own PTS(at times) to my amygdala.  And have to continue to work hard on coping skills, whenever any manner of stressor comes up.  Been trying to do that for a couple of days......mainly up my self care priorities and social.  As isolation is so.....not good, for me.  Beyond a day.  Yet, if that day, my mind is all squirrly.......not even a day is good.  Do you have opportunities to interact with others online or off, where tapering and W/D and symptoms, are not the topic of the moment?

 

General safety for me, however, has not been an issue.......with the expection of finding myself stopping at a green light last week.  Perceptually,  I'm still off with adjusting to my new glasses.  It seems the vision changes(correction) have effected my responses a bit and perception right now.  I just tried another adjustment in them.......hope it goes well.  No traffic, no one behind me........man, I am grateful for the Great Mystery of this Universe......and that it is surely most protective of me.  Not that I take chances anymore, with much of anything.  I slowly, methodically, ponder and then let go.  Sometimes.......I don't even have to make decisions that once seemed hard.  They get made for me........I hope that makes sense.  Might be a bit deep.

 

And as you know, what these medications do, for many of us.......while on them, and then when coming off them......while in W/D.........can throw off so many systems, hormonal included.  Any thoughts from you, as to the side effects of Premarin, that Alto alerted you to?  You've been on the same dose now since a hysterectormy, back in 2000?  Is this correct?  And then, if so.........I/we can make no suggestions on that.  If I were you, I'd probably just book an OB/Gyn appointment or if you have a GP, who is unaffiliated with the treatment center.......you might even consider getting their input on that issue now.  That generally means an appointment with a doctor.  Input.   Sometimes labs.  Same with the dehydration and/or electrolyte issues.

 

Can we keep going with the scale measurements.....the ones I asked for?  And get on with the cross over of Viibryd?  Or would you rather wait on this?

 

S'okay.  Love and peace, healing, and growth,

mmt

Good notes Rabe.......I'm not seeing anything I can suggest you change now.  Baylissa stuff is a great idea......or even a listen to some of her calming.  And just today.  Just setting my own day up now.  My priorities and hopes for it.  I usually only get about 1/2 of said priorities done anyway.  B)

Edited by manymoretodays
electrolyes issues, medical doctor

Late 2023- gone to emeritus status, inactive, don't @ me, I can check who I've posted on, and I'm not really here like I used to be......thanks.

Started with psycho meds/psychiatric care circa 1988.  In retrospect, and on contemplation, situational overwhelm.

Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time).

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!  Tapered @ 10% every 4 weeks, sometimes 2 weeks to

2016 Dec 16 medication free!!

Longer signature post here, with current supplements.

Herb and alcohol free since 5/15/2016.  And.....I quit smoking 11/2021. Lapsed.  Redo of quit smoking 9/28/2022.  Can you say Hallelujah?(took me long enough)💜

None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider.  My success story:  Blue skies ahead, clear sailing

 

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