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Rabe: how to taper and adjust Viibryd while on Clonazepam

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Rosetta

Hi, sweetie,

I really wish you could use water to measure your doses.  I'm sorry your day was hard.  At some point maybe you could experiment with that.  I know it's really hard to imagine that when you feel so bad and yet getting those doses uniform is very important.  I'm hoping that they are uniform despite the difference in the filler contents and you are simply still stabilizing.  But using water to measure your doses would be something you could control and that would be nice.  Taking that worry away would be nice.

Rosetta

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DMV64

hey popping in to check in on you...how are you today? thinking of you....

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Rosetta

(((Rabe)). Hope you are doing ok.  All my love, R

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neroli

Thoughts are with you, Rabe.   We are still walking side by side with these most challenging symptoms.

 

much love

 

Neroli xxx 💜

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Carmie

Hi Rabe, 

 

Thinking of you and sending hugs🤗

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Rabe
On 3/16/2019 at 11:11 AM, manymoretodays said:

(oh p.s.  dilution of Viibryd, should you want to keep looking/ thinking about liquifying at some point can be found here:  Tips for tapering off Viibryd.  " Vilazodone has relatively high aqueous solubility (water: 32 mg/100 mL). "   I saw your question to brassmonkey regarding this.  So you could consider doing 10 mg of Viibryd in 30 mL of water.  But don't forget some form of crossover if you do that. 

Thank you for this MMT...I missed it before....mush mind.

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Rabe

@Rosetta @DMV64 @neroli @Carmie Love to all of you!  

I am up and down everyday and throughout the day.  Today was ok until I took the CLonazepam at 540...felt so not well after.  Just never know what anything is going to do be it food or meds or whatever.  Frustrating and makes me afraid.  But is what is.  Love you all!  💜

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RusTW

Rabe I'm hoping you'll get some stability soon with your system. Benzos suck.i have a emergency bottle that I never touch unless it goes south bad.

How is your GI symptoms?

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wantrelief
3 hours ago, Rabe said:

I am up and down everyday and throughout the day.  Today was ok until I took the CLonazepam at 540...felt so not well after.  Just never know what anything is going to do be it food or meds or whatever.  Frustrating and makes me afraid.

I am so sorry things are still so unpredictable; the not knowing what to expect would make anyone feel frustrated and afraid.  You are doing such an amazing job of hanging in there through all of this upheaval, my friend.  

 

Thank you for stopping by my thread and checking-in with me.  I will write an update soon but basically I am back to my not so good baseline after a bit of a rocky week last week.  

 

Oh Rabe, how I hope you get to a better place soon.  You have been so patient and brave.   I am thinking about you, WR.

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neroli

Hello dear Rabe

 

Thank you for your kind message on my thread.

 

Oh, it's so hard to hear that you are in such difficult times.  I do so hope you get a break in symptoms.

 

We are all here for you, Rabe.  We all know and love you for being you.

 

I am with you in spirit (and in symptoms!).

 

We just keep going the best we can.

 

Much love to you

 

Neroli xxxxx 💜

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Rosetta

I'm thinking of you, too.  You are so strong.  You will make it through this.  Holding you in my heart, Rosetta

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neroli

Still got you in my thoughts, Rabe.  Hope you've had some ok-ness at some point.

 

💜💜 Neroli

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neroli

Just sending some thoughts your way.

 

Neroli xxx 💜

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Carmie

Hi Rabe, 

 

Just wanted to let you know I’m thinking of you. Hope you’re coping okay.💚

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Rabe

@Rosetta @Carmie @neroli @RusTW @wantrelief

dont know why my R is green now instead of yellow but hmmm....

wanted to thank everyone for thoughts.  Things seem to be settling some...I hope so!! Love and hugs!💜

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Rabe

@manymoretodays 

Hi MMT....want4ed you to know the Viibryd dissolved very well in a T if water....sinks taste but dissolved good.

Talked to the pharmacist today and she is going to have one person do the compounding so if are issues they will better be able to address.  

I talked to her about doing a liquid there and she said the capsules are the most stable....I wanted to say something and shared some things but not a lot.

Will see how next batch is.  If things get some better guess I will drop .25 again in a bit.  Just when things are feeling better.  Not reacting so so badly tho everything and eating a bit better...but will see if stays.  I will also do a capsule but Um sure that will dissolve fine as well of either.

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neroli

Hello dear Rabe

 

I hope things are settling for you!  That would be so lovely and a bit of a reprieve, long time coming.

 

much love

 

Neroli 💜

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wantrelief
39 minutes ago, Rabe said:

Things seem to be settling some

Oh this is great news, Rabe!!

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RusTW

Glad to hear your getting better.did you try any of those supplements ?

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Rosetta

Hi Rabe, 

I hope you are seeing your system settle down!  I've been thinking of you.

Rosetta

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Rabe

had a day of feeling better which was nice.  My daughter cannot handle the 'drama' and 'uncertainty' etc...which is hard cause I do try so hard I think.  But I understand as I am surely nothing of the person I was .... and certainly not the mom I was.  I think these kinds of things are the hardest to live with and want to keep going with.

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manymoretodays
Posted (edited)
On 4/3/2019 at 2:30 PM, Rabe said:

@manymoretodays 

Hi MMT....want4ed you to know the Viibryd dissolved very well in a T if water....sinks taste but dissolved good.

Talked to the pharmacist today and she is going to have one person do the compounding so if are issues they will better be able to address.  

I talked to her about doing a liquid there and she said the capsules are the most stable....I wanted to say something and shared some things but not a lot.

Will see how next batch is.  If things get some better guess I will drop .25 again in a bit.  Just when things are feeling better.  Not reacting so so badly tho everything and eating a bit better...but will see if stays.  I will also do a capsule but Um sure that will dissolve fine as well of either.

 

Thanks Rabe for the update on dissolving.

I'm glad you are not reacting so badly to everything now, and getting more nutrition in.   Yay!!

 

This stuff is so hard on our kids and loved ones.  We "want and need" everyone to "get it" out in the real world, yet they so seldom do.

 

I'm having to limit time here, once again,  I'll be back when I'm back.  Nothing major has really happened, so that's the good news.  B)  Just an adjustment phase for me I hope.  Getting out of my cave more, which is good.......it just takes a lot out of me.  Hopefully it all gets more comfortable with practice.  Lot's of fears and........well, just adaptations.   I am organizing my junk drawer this weekend too!  It's a good place to start and can be accomplished.

 

Love, peace, healing, and growth,

mmt

We have some new software here that has changed our colors.  I am now a blue M.  I used to be green.  :rolleyes:

 

Edited by manymoretodays

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Rosetta

I'm glad you had that time with them, Rabe.

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neroli

Hello dear Rabe

 

I'm glad you've had some settled times.  

 

Wishing you more 

 

Neroli xxx 💜

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Rabe

@manymoretodays Thank you MMT.  Talked to the pharmacist who I deal with and she is going to have the same person do my compounding to try to keep it more uniform...more than the head pharmacist did so I am grateful.  Will see how it goes.  

Take care of yourself.💜

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Rabe

@neroli @Rosetta @wantrelief @RusTW

Thak you for thinking of me...I sure think about all of you!

Rus, I have not tried the supplements.  Reacting to too much...my meds and food and soaps etc...so will wait.  Just eating is interesting.

Wishing you all moments of peace. 💜

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neroli

Wishing you moments of peace, too, dear Rabe.  I hope you are still getting some.

 

Neroli xxx 💜

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Rabe

I had a couple better days and then feel off the cliff again.  My daughter is done with it all which is hard...she cannot grasp the being better...and then not.  She thinks it is my not wanting to hero etc and takes it personally which is sad and makes me sad...but I have to take care of me...though as a mom it breaks my heart to not be seeing my daughter and grand daughter as much as possible and helping etc.

7 minutes ago, neroli said:

Wishing you moments of peace, too, dear Rabe.

Bless you Neroli....I hope so!!!! Much love my dear PF! Glad you got some rest and a wee walk!! Yay!!💜

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neroli

So hard for families to understand.  I feel for you, Rabe.  Let's hope you get to see them as much as you can.

 

Am settling down to sleep now.  Hope your day/afternoon/evening goes ok, with no cliffhangers.

 

love PF xxxx

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RusTW

Hi Rabe Sorry about the family stuff.Hang in there.😊

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Gridley
8 hours ago, Rabe said:

though as a mom it breaks my heart to not be seeing my daughter and grand daughter as much as possible and helping etc.

Rabe,

 

So sorry about your family situation.  Others just don't understanding the severity of psychiatric drug withdrawal.  

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Rabe

Saw the psych doctor today who was not much help in the what to do next category...finding something to replace the blue clonazepam.  

Then saw my other doctor who is helping me with nutrition and diet and electrolytes etc who once again asked me why i am doing what i am doing...tpaering these medications when they are upending my body so severely.

I am wondering if should just go back to 10mg of the Viibryd and 1mg of the Ckonzepam and stay there for a very long time....

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neroli

Hello Rabe, dear friend

 

Oh dear, it sounds like you are having a rough time.  I'm so sorry, I know how you feel (well, if not exactly, I have a good near-enough understanding with the symptoms I have).  I really have to acknowledge your strength to keep going the way you have - if you are anything like me, it seems hopeless at times. And you manage to keep on keeping on.

 

If I'm in a particularly awful patch, I bring you to mind as companion on this rocky road and tell myself if you can deal with what you are, then I can hold on, too.  But oh, that vision of feeling well seems a long way off at times.  I do have some good days, though (good relative to the awful patches - not good as in back to my old self).

 

Regarding updosing, I am not an expert (who of us is?, its such trial and error) but when I've discussed updosing with a moderator, they have indicated that after 4 weeks on a lower dose of a benzo, the updose may not work and could de-stabilise, plus you are then on a higher dose again to climb down from.  Oh, I hope I'm not making things worse for you.  It is entirely your choice.  Just wonder if you could talk to the mods. about possible updosing.

 

Not sure how the Viibryd works re. updosing.

 

it's a catch-22, eh?  I know for me the drugs have not brought me back to "normal" since I crashed when I was drug-free and re-instated to 3 psychotropics, in fact I think my legs are getting worse and the side effects make me feel bad (fatigue, constant weeing, crying a lot, hungers......) yet to taper off them is a hard road to hoe as well.

 

Don't know if I've been of any comfort but know that I am thinking of you and wishing things even out for you - you are in my thoughts.  You've really done amazingly well considering how tough it's been.

 

love from your PF.  

 

Neroli xxx. 💜

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Carmie

Hi Rabe, 

 

Hope you are coping as best you can, sending hugs🤗

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Rabe

does anyone know of pomegranite juice interfering with the CYP2C9 or CYP3A4 enzymes?  

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Rabe

@neroli @RusTW @Gridley @Carmie

Wanted to thank you for stopping.  Means a great deal.  

I am ok...up and down through out each day...with some days better and others lots worse.  It gets tiring.

My daughter and I are essentially no longer communicating much.  She has gotten upset with the situation and just cannot deal with it anymore...I cant say that I blame her at all...I feel the same way about myself and my life too most of the time.  I have a couple ok days and am able to get over to see her and then she is asking me to babysit and all and I just cannot commit to that because I never know what a day for any part of a day will bring. 

Being in this apartment alone with no family or friends is a true nightmare.  My anxiety is too bad to try to get home and find a new home there.  It is all too much some days....and today is one.  I think the upcoming CLonazepam change and all surrounding that does not help either.  I am not planning an getting to her husbands parents house for Easter which is hard, but all is too much and keeping the stress down is so helpful albeit lonely and all.  

Just not feeling very good about who I have become.  In treatment the therapist had me write I may never be the person I was and I wondered why he would do that...no I know why.  I wish anyone there would have told me why they didnt taper me there and what it involved rather than putting me on another med to 'help' with tapering.  I would rather be on the CLonazepam and have a semblance of life than doing what I am doing now.  

My son in NJ and other in WA asked me to come visit....no one does understand and I get that...doesnt make it all any easier.  

Sorry....just feeling so sad today and feeling I will never have the life I did.  Hard to think about.  

I did find a white CLonazepam pill for compounding as just this week the pharmacist told me the powder would be yellow....knowing I have the allergy to yellow dye.  I could not believe it.  SO I had this week to try to find something and make a decision as to what to do.  I have no idea now the Actavis will go...new fillers and all and new generic and will have no time for a crossover by the time I get them the pills and get the compounded ones back.  The doctor was going to check into the liquid vs pills and which pill and get back to me at end day Wed but he never did.  Not lots of white options...Solco, Actavis, Accord, and Teva...though I know the Teva was bought out by seomthing so that will probably not be around long.  

Hope you all are doing well...think about you daily.💜

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