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Rabe: how to taper and adjust Viibryd while on Clonazepam

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Rabe
39 minutes ago, manymoretodays said:

Did she write that off as just due to "anxiety"?

Yes I think so because of no absolute allergies.  I knew that...just wanted help with the histamine and all and how and what to eat.  

40 minutes ago, manymoretodays said:

And then also look for some of ChessieCats posts to others where she put's together a whole package of coping skills for fears.

 

If you find any let me know...I will look...

 

41 minutes ago, manymoretodays said:

I'm so glad your daughter is coming to visit you too Rabe!  That's great really.  Just enjoy the company.  Hopefully she's pretty excited now about her pregnancy. 

She may not come as the massage she scheduled was canceled for some reason.  She is not pregnant....her baby is now almost 2...hard to believe...thnak you again MMT

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manymoretodays
Posted (edited)

Whoops.  Sorry bout that. 😧  I could have sworn.......

I must have mixed you up with someone else.

Anyway.......just enjoy her visit.  IF she makes it.

 

And will do.  I have a collection somewhere.......I just need to run now.

(pretty awestruck day today as it's my 3rd AA bday!)

Edited by manymoretodays
proofed and edited!

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Rosetta

Mmmm . . . Was your face swollen when you saw the allergist?  That must be an allergy.  Even if your system is sensitive because of benzo tapering and kindling from taking Viibryd and that's WHY you are allergic.  Maybe there was no swelling when you saw her?  Did it appear that she believed you?  Or did she say your face swelled because you are anxious?  

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manymoretodays
Posted (edited)

Ha, found one as far as more on coping with "anxiety" and fears Rabe. 

Posted to another member awhile back.  Some or all might be helpful for you too, Rabe.

Click on the arrow on the top right hand side in the quote box below and it will take you right to the post itself that I'm sharing.

 

(with thanks to ChessieCat)

Edited by manymoretodays
explaining how to get to post

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Rabe
On 5/13/2019 at 11:27 PM, manymoretodays said:

Okay.  That may be due to the clonazepam too.  Once you get all crossed over, it might be a good idea to address that with Shep.  If it's still a daily issue, like it has been.    You have an unusual split to your clonazepam dosages AND timing both. 

I do think it is an issue...dont know which med is bigger issue.  I do think there is too much CLonazepam in early evening and late evening.  I have such hard time getting going in AM and generally dont do much until 2 or later.  I will post some logs.  Thank you MMT.

I am having quite a difficult time with this crossover.  I dont think those Actavis are at all the same as the Sandoz...thank you again.

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Rabe

@Rosetta  She said I have no actual allergies that showed up on the foods tested, but that have intolerances.  Since I dont have hives or asthma or?  Cant remember.  Then she asked me about anxiety..perhaps because histamine reaction was high...IDK actually.  I think they see the meds you are on and go from there and everything else is left behind.  I was really discouraged, but will just keep trying my best.  

The kidney doctor said I dont have to see him anymore...that things are stable...they aren't but he is so busy and my issues are not a kidney disease like others have and I understand.  I can call if problems and follow up with PCP.  Could see nutritionist allergist said but would be very expensive.

My eyes and all got swollen after the tests .... I pointed it out but I dont know what she thought.  Think unless you have the hives etc...which I have had in the past..its is not a big deal even if you feel awful.  

I tried to talk to her about the meds and my system being so affected...just not interested.  It is discouraging.  Each doctor has a bubble that they cant step beyond seems.  

This cross over is pretty challenging...this Actavis is nothing like the Sandoz...but perhaps there is a reason to it all.  Hope things are ok Rosetta.  Take care.  Love and hugs.  Thank you for stopping!!💜

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manymoretodays
Posted (edited)

Hi Rabe, 

I found a good  anxiety package, for you that I posted above. 

And Rosetta had a post for you above too.

 

12 minutes ago, Rabe said:

I do think it is an issue...dont know which med is bigger issue.  I do think there is too much CLonazepam in early evening and late evening.  I have such hard time getting going in AM and generally dont do much until 2 or later.  I will post some logs.  Thank you MMT.

I am having quite a difficult time with this crossover.  I dont think those Actavis are at all the same as the Sandoz...thank you again.

 

I was more thinking you might need to get some clonazepam in earlier in the day, and split the doses more evenly(the amounts) as you had mentioned the consistent anxiety all morning and up through the afternoon.  I think we might be thinking the same thing Rabe.

 

Something to look at and discuss(with Shep on your benzo thread).  You might bring the issue on over there now.  And get a couple days of notes posted there too.

I'm thinking it's best to get the crossover done before any other changes.

Best to check with Shep, of course.

 

Nighty nite,

Love, peace, healing, and growth,

mmt

 

And okay, looks like you saw the other posts.  We double posted.  Good luck sign, for sure!  🙂

Edited by manymoretodays

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Rabe

@Rosetta The swelling initially started at home when I was tapering and reacted to the ODT.  Told the doctor and he said to try it again...I had nothing else so I did and had a terrible reaction and my eyes were very red, lips and eyes swollen, skin a mess.  I was awful.  Not the same since.

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manymoretodays
Posted (edited)

?  What does ODT stand for.  And when did you try it again?

 

Oh, and don't forget to look at the other link I gave you too.......Claire Weekes on the sensitized nervous system.

 

Nite, nite again!  B)  For me, anyway.

Edited by manymoretodays

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Rabe

I will MMT...thank you.  The oral disintegrating tablet was one they gabe me at home to taper slower off CLonazepam...it was .125mg.  But I reacted to it and told them but the assistants said to try it again.  When I did I had a very bad reaction...thats when the puffy lip and eyes and rash and all started.  Its never really gone away.

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neroli

Hello dear Rabe

 

My thoughts are with you as always.  Keep on going, we are all here with you.

 

best of wishes, PF

 

Neroli 💜

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manymoretodays
14 hours ago, Rabe said:

I will MMT...thank you.  The oral disintegrating tablet was one they gabe me at home to taper slower off CLonazepam...it was .125mg.  But I reacted to it and told them but the assistants said to try it again.  When I did I had a very bad reaction...thats when the puffy lip and eyes and rash and all started.  Its never really gone away.

 

And when was this?

So that seemed to precipitate the puffy lip and eyes, and rash allergic stuff?

 

And were you able to share that with the allergist when you saw her?

 

Thanks Rabe.

L, P, H, and G as always....

mmt

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brassmonkey

I found this on WebWD.com that would indicate that you are having an allergic reaction to the the mediation.  Although rare the symptoms fit so you need to discuss this with your doctor.

 

 https://www.webmd.com/drugs/2/drug-14403-4005/clonazepam-oral/clonazepam-disintegrating-tablet-oral/details

 

"A very serious allergic reaction to this drug is rare. However, get medical help right away if you notice any symptoms of a serious allergic reaction, including: rash, itching/swelling (especially of the face/tongue/throat), severe dizziness, trouble breathing."

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Rabe

@brassmonkey Hi...hope you are still having a good time. Think you are still traveling?  And hope your stint pain has settled.

I'm not on the Clonazepam ODT....stopped it and never went back to the doctor at home after the second reaction...but was brought here.  Allergic type reactions never really went away completely though did settle better when in treatement...after initial Viibryd reaction...maybe cause was not tapering?. But there were environmental issues there for me (gas leaks) which I reported and got punished for.   Wish another med   

When I came out I actually felt pretty good, looked some better and was eating lots and getting out and about much better.  

Then the psych doctor tapered had the Viibryd and started on the Clonazepam...and then pit me back in for that rapid Clonazepam taper and was like had been at home after that.

IDK if you mean reacting to the Clonazepam in general or just the ODT?  Thank you for your thoughts and help.  I appreciate it so much!!  

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Rabe

@brassmonkey I can say that when I reacted to the CL ODT I also reacted badly to the Prevacid ODT I had been on for years....and then was reacting to 

all the meds and had trouble eating.  Ended up in ER Wheezing and all after the Klonopin ODT...they told me cant be allergic to it after all these years.

 

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Rabe
On 5/16/2019 at 2:36 PM, manymoretodays said:

And when was this?

So that seemed to precipitate the puffy lip and eyes, and rash allergic stuff?

 

And were you able to share that with the allergist when you saw her?

 

That was on 2016...August I think.  Yes....after that I got the red, puffy eyes, the eczema, the fluid filled looking lower lip swelling and reactions to lots. Came here in November of 2016.

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Rabe

@manymoretodays Sorry...not I did not share that with her.  They all believe I need to address anxiety and cant think beyond the allergy tests being negative but someone reacting to things in general.

The only thing I have mulled about is that I took the Viibryd after the GI procedure when I woke up sneezing and reacting to something they used...thinking the lidocaine they gave me without asking.  Need to use pure form as react to ingredients in other forms of numbing agents.  My dentist at home came upon that and I never had a problem with it after used the pure form.

SO the Viibryd was taken with toast and peanut butter and an apple after the procedure while sneezing and all...used apple juice in the prep that finished that morning.  Not long after I could not use peanut butter or apples and I thought what the heck???  But perhaps the body makes a connection...I have no idea but its a best guess....just like it reacted to the other ODT at home.  Its all interesting if nothing else. Thank you again.

 

 

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Rabe

@manymoretodays I will post some of my days if thats ok...perhaps that will help all of you in some way?  Or no?

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manymoretodays

Hi Rabe!

We've been discussing your allergic reactions........Shep, brassmonkey, and I.

Brassmonkey also found this informations on Viibryd:

 

5 hours ago, brassmonkey said:

I was just checking up on the Viibryd  and this was the first thing to come up:

 

Our Viibryd Side Effects Drug Center provides a comprehensive view of available drug information on the potential side effects when taking this medication. Get emergency medical help if you have signs of an allergic reaction: skin rash or hives; difficulty breathing; swelling of your face, lips, tongue, or throat.

Common Side Effects of Viibryd (Vilazodone Hydrochloride) Drug ... 

 

https://www.rxlist.com/viibryd-side-effects-drug-center.htm

 

I think an epi pen might be a good idea because the longer the "minor allergic reactions" go on the more likely they are to turn acute with out warning.  With both medications causing the same  symptoms things could compound and spiral very quickly.  My mother was a bee keeper and got stung on a regular basis for years with no problems, then one morning, one sting and a quick ambulance ride to A&E because she couldn't breath. Always had a pen available after that. 

 

Between the clonazepam and the Viibryd.......and not being totally sure which causes the eye and lip swelling,  I agree that you should contact your prescribing doctor as soon as possible, and consider getting an epi pen.

 

The ODT clonazepam might have started an allergic reaction to the clonazepam.   I think that reflects brassmonkey's thoughts on the matter.

And the Viibryd might also be a culprit.

 

Also you might ask your prescribing doctor if his reasoning behind getting you off the clonazepam first had/has anything to do with your allergic reactions.

 

Not to scare you here.  Just to make sure you stay safe.

Hope your daughter visited or you had a nice Skype visit with her.

And I'm sure brassmonkey will be by when he is back on too to update you on his present status and locations.  B)

 

Best, Love, peace, healing, and growth,

mmt

 

I don't need you to post your daily logs just yet.  Just be sure to contact your doctor first thing on Monday.

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Rabe

@manymoretodays Ok...that is scary.  But yes I will contact him on Monday...doesnt mean he will care or get back to me but I will let him now.  I could also let the PCP know that I like.  Thanks to you all!  Actually I have wondered the same things myself.....

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Rabe

@manymoretodays Thing is I dont do well with epinephrine either...but I can ask what to do.

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manymoretodays
Posted (edited)

Yes.  Good ideas. 

Not a bad idea to have an epi pen available.  But perhaps you could use benadryl or something first?  Let one of your doctors make that call.

 

Edited by manymoretodays
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ChessieCat
2 hours ago, manymoretodays said:

Not a bad idea to have an epi pen available.

 

I agree.  You need to have it if a worst case scenario happens, ie if your throat/mouth start swelling and you have difficulty breathing because of that.

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Rabe

@ChessieCat thing is I am now very afraid...and my mind is on all this which isnt going to help the reactions at all.  I am feeling really afraid to take any of these

now....not the best place to be.  

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manymoretodays
Posted (edited)

Hi Rabe,

If I were you, I'd take your medications at the usual times so you don't get thrown off any further.

I just did a general search(off site)  using the terms "developing allergies in adulthood".  And this was a good article that came up:  The Truth About Adult- Onset Allergies

Very informative.  Some other great articles came up as well.  Hopefully that helps with your understanding a bit more.  That one does mention the environmental toxins and a lot of the stuff that you have mentioned historically in your individual situation.

It might help when you talk to your doctor(s).

 

Do your best with meditations, and take a look at some practices, and links that I've given you,  that you might use/adopt to reduce fears. 

 

I'm not big on the diag- nonsense that you have some basic anxiety disease that can be fixed with drugs.......rather, that your prolonged usage of benzo's has backfired a bit.......in causing a lot of rebound anxiety from poop-out/tolerance, etc.

 

Do you still have a Big Book?  Sounds a bit weird, I know.......but turn to page 355-357(edition 4) and you might find something that helps with what that writer referred to as "obsession of the mind".  Your worst fears CAN be overcome with help......and sometimes that help, comes from the beyond.  (sorry, I don't want to risk proselytizing) B)😧

 

Stay in today- that old day at a time adage. 

You have a phone and can call for assistance, if needed. 

What's the likelihood that you will have a bad allergic reaction to food or drugs today?  I mean it's unknown but probably much less likely than you imagine.

 

I think you are going to be okay Rabe.  I do.  And I'm glad that you've been able to get to some of the issues that keep causing you further distress, at this time.

 

Why don't you go ahead and post todays logs/notes for us tomorrow.  Make sure and note the time on the left, drugs, dosage, food intake, symptoms on the right.  Keep it fairly simple.  If you want to elaborate further on symptoms and such......you can post that seperately.

 

Okay thanks.

And have a great Sunday today.

It's been so beautiful here lately with lot's of weather changes and I am so very much enjoying this Spring!

 

Love, peace, healing, and growth,

mmt

Edited by manymoretodays

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neroli

Hello dear Rabe

 

Thinking of you and hoping you get through the allergy issues.

 

Keep on keeping on, PF

 

Neroli 💜

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DMV64

Rabe

So sorry to hear about your allergic reaction. I know a lot about this subject since my son is anaphylactic to several foods and medications. Happy to share if you want. Also I think the whole tolerance/poop out thing is what I am experiencing now. Thinking of you.

xo

D

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Rosetta

HI, Rabe,

 

I'm thinking (worrying) about you!  I hope you are getting some breaks from feeling bad throughout the day.  ((((Rabe))))

 

I wish I had more to say.  

 

Rosetta

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Kristine

I’m thinking of you too ((((Rabe)))) Much Love and hugs, K 💕

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Rabe

@brassmonkey @ChessieCat @manymoretodays Thank you so much for you thoughts and help.  I am very grateful.  The doctor never got back to me.  I will get a hold of my PCP in here.  And I will pull my notes together and get some symptoms journals to you.  

I think it is a combination of toxin exposure, med reactions, stress, food reactions, this cross over...the whole thing... and my immune system just has had  no time to settle down and regroup for any period of time. 

But the facial swelling has never gone away completely since it started at home after the ODT...and I had and have trouble with the Viibryd as well.  Just odd cause some days one is better or worse and another day another is and another everything is and some its better.   

Today I started out to Ninas even though my electrolytes seemed off...headache, thirsty....took Viibryd on way and after that felt worse and muscles started cramping up and facial swelling.  I think it affects my hydration. IDK.  

Thank you again.  Take care!💜

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Rabe

@neroli @Rosetta @DMV64 @Kristine Thank you for stopping.  I so appreciate your thoughts and support.  This is a particularly challenging time seems...

I will catch up soon.  Love and hugs to you all.  Just trying my best to eat and get meds in with minimal reactions.  Doctors have nothing to offer if you are a square peg in round hole which has been me my whole life....my son as well.   The kidney doctor said I dont have to come back but I know my electrolytes are not stable....they just are not.  But I am tired of arguing.  Is what it is.  We all just have to try to do our best ... and we do that here.

MY system needs to settle but I also need to keep going...how to do that is the questions.  Big stress once or a few times or keep jabbing it in smaller ways for longer....IDK...see the doctor in couple weeks or less.  

Hoping to get to my grand daughters 2nd birthday party ... but I accept whatever comes.  Too tired to argue anymore.  Just getting there today takes so much out of me.  But it was her birthday and it was nice.  Party is June1.  Hoping...

Again thank you.  I hope you are all doing ok...keep you in my hearts thoughts and prayers daily!! 💜

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Rabe

Wondering re Claritin?  Used to take it but am very leery to add anything.

I also think issues are related to upended GI system...took a real dive after that procedure and not being able to take anything for the GI issues is not helping 

immune system I know. 

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neroli

Hello dear Rabe

 

I'm sorry to hear you are still so affected by everything and feeling unbalanced.

 

Sounds like you managed to get to your daughter's today to see your granddaughter?  Such an achievement if you did, I know it is hard when in particularly tough times.

 

Let's hope you are able to go along on 1 June - but if not:

57 minutes ago, Rabe said:

I accept whatever comes.

 

is the best way to cope with it - and be tender with yourself.

 

much love, your PF

 

Neroli 💜

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wantrelief

Oh Rabe, I am so sorry you have continued to struggle.  You are so very brave.  I am really hoping you get some relief soon.  I am thinking about you, WR.💗

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RusTW

Hi rabe I seen you post on Rosetta's thread about the histamine and I wanted to let you know I've been using quarcitin 500mg per day to help with the histamines and it seems to be working pretty good. This is a natural product I can't say there's no side effects but I haven't seen any yet

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Carmie

Hi Rabe, 

 

I’m really sorry you’re struggling so much, sending hugs your way🤗

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