neroli: is this benzo withdrawal, or other drugs interacting

[Rabe]

Im sorry Neroli...I must have whispered too loud!! I am glad you went home and did some self care!  You needed that.  

I found that the drops dont hit me right away but rather the second week...well with the Clonazepma..the Viibryd was much faster!

Thinking about you Neroli!! Take care!!💜

[neroli]

12 minutes ago, Rabe said:

I found that the drops dont hit me right away but rather the second week...well with the Clonazepma..the Viibryd was much faster!

Thinking about you Neroli!! Take care!!💜

Thank you, Rabe.  This was a drop in Diazepam, so maybe it does hit later.  I'm keeping a note of things so I can see if there is a pattern.  In my head, I'll get over this in the next week and then I'll start decreasing the Nortriptyline, which will all go sailingly well and I'll be walking and running and well down in my dosage by the end of the year!

 

We all know that what the head says and what the meds. say can be very different.

 

Thinking of you each day.

 

Neroli 💜

 

Oh and I think it was me who whispered too loud!

[Rabe]

13 minutes ago, neroli said:

But sometimes I do wonder if I should stop the reductions for a good while............

I understand this!!  Seems our systems so over react and take lots of time to settle!!💜

[neroli]

@Rabe

 

I've got my cup of tea and bread and butter and am resting watching You Tubes, I'm watching one where Matt Sanford is speaking - he was seriously injured in a car accident when he was 13 and has no physical ability or normal sensation in his lower body.  I'm watching it because he talks about "waking up" to what life is about as a result of his injuries,  don't know what it's all like yet as I've just started it, but it's at:

 

 

[wantrelief]

Hello my friend! I will have to watch the video you posted....thank you for sharing that.  I am glad you came home and took care of yourself.  It is so hard to know what to do when it comes to this tapering thing.  It is indeed a lot to think about.  But perhaps try not to think about all that for now and just get through this wave.  I very much hope it passes soon.  Thinking of you - WR. 💗

[Rabe]

1 hour ago, neroli said:

In my head, I'll get over this in the next week and then I'll start decreasing the Nortriptyline, which will all go sailingly well and I'll be walking and running and well down in my dosage by the end of the year!

 

Gosh THIS would be SO fabulous, huh?  Im rooting for ya Neroli!!! 🎉  

What I am really hoping for is that tomorrow brings you some relief, Neroli!  Hugs and love sailing your way across the pond!  💜

[neroli]

2 hours ago, Rabe said:

Seems our systems so over react and take lots of time to settle!!💜

yes, it's a dilemma.  I wonder if my system hasn't even settled from the long-term WD syndrome since 2014 and then the breakdown in 2017. and now on 2 serotonergic drugs, is that causing a bit of serotonin toxicity which is stiffening my muscles?  we are our own guinea pigs going through trial and learning.

 

I'm hoping your drop will be smoother for you.

 

Neroli 💜  

[neroli]

1 hour ago, wantrelief said:

But perhaps try not to think about all that for now and just get through this wave

Thank you Wantrelief, great wisdom .  Bring things back to the now and living with it and leave the "what next" step for later.

 

Thank you f-i-a

 

(I'm going to check the time difference between Seattle and Wellington - I'm just wondering if you ever get any sleep!, you were here this morning before I went to work and now this afternoon)

 

Neroli 💜

[Rabe]

Hi Neroli...well its been 3 years since I tapered too fast at home and my system hasn't settled though it was doing pretty well until it was hit with another drug and then the second rapid taper set the trend....so could be.  

When you are not feeling well and your muscles are so not right have you ever had a metabolic panel to check everything?  Just wondering what your electrolytes are doing at those times...they can wreak havoc in all sorts of ways if they are off.  Do you drink plenty of fluids...not just water but things with electrolytes so that it doesnt just go right through you?  Sometimes I mix coconut water with water or milk with water...they are good for hydration.

If this drop does not go smoother then I am going to stop for some time.  I have made that decision.  We will see.  But its less than 3% and the capsules can vary that much so Im hoping.  Kicker is that it affects the CLonazepam as well when I taper the Viibryd.  I went to the store today and bought things I haven't eaten in months...would be nice to be able to continue that.  

You take care Hibari!  Hope tomorrow is ok.  Thank you for the video.  Love and hugs to you!💜

[neroli]

 Hello @Rabe

 

I'm on a facebook group and have just read this article that was posted.  Below it are my comments on the FB page

 

http://www.psychiatrictimes.com/article/sorting-out-antidepressant-“withdrawal”-controversy?fbclid=IwAR3So-kUCuX4Pm3RD0kDVWxytgv16BCahQ5JxUO2rWI9XIWFT2mWv2QPu60

 

Someone on the FB page said it showed some hope that "professionals" were acknowledging a-d withdrawals, my response (which I think relates to both our stories of drug switching and withdrawal):

 

"there is some hope in there. It still downplays the very serious and long-term effects that can disrupt/destroy your life, for some people. For me, the protocol of swapping me over four different a-ds in six months is what left me on my knees (I can only think now that I was in WD from the first a-d with a quick taper and washout period of a few days, then another drug was layered on top, then another withdrawal and wash-out, etc...through the four which I believe caused cumulative WD/CNS kindling). And then the CT I did (didn't know about WD) certainly added to the mix that has had me in constant WD states since 2014, culminating in a breakdown in 2017. I may be one of the unlucky ones who can't tolerate this kind of prescribing or withdrawal protocol. I'm jealous of those who can sail through the protocols that are in the medical guidelines that my GP appeared to be using. It does cross my mind sometimes that maybe those of us suffering so much are in a tiny minority compared to others who take the drugs/taper off successfully, that we aren't statistically "important enough" to be listened to or taken into account. We, in our "lay communities", know the extent and duration that serious effects can persist - but are we but a drop in the billions of people on the earth who take the drugs and do absolutely fine? That's a rhetorical question, but just pondering....."

 

I haven't had a metabolic panel done.  I did go to the psychiatrist to ask him to explain what might be causing certain symptoms and and what interactions I need to be aware of.  He said he didn't know, that I was asking questions he couldn't answer because everyone's make up is unique and that he thought my questioning about tithe drugs and trying to taper was possibly hindering my work with the Acceptance and Commitment therapy.  So nothing useful there.

 

Are metabolic panels common procedures?  Do you get them through your GP?  How do you get to find out if your electrolytes are off kilter?  (The system may be different over here, of course).

 

Neroli 💜

[Carmie]

On 1/17/2019 at 4:56 PM, neroli said:

Hi Carmie

 

Just wondered if it helped at all with the aka and suicidality.  Only curious because the psych. I saw introduced the idea of ECT into about the third time I saw him - and I was in 24/7 and suicidal from the damage done by the drugs.

 

Hi Neroli, 

 

A lot of that part of my life is a blur. I don’t remember what did what. When I left the hospital after the first time I had a lot of ECT I think I wasn’t too bad, but I don’t know what else they did. I don’t know what meds I was put on and off. Not long after that, when I was back home, akathisia ended up becoming severe again, and it was back to the hospital, more ECT and on and off other meds.

 

I eventually stabilised, but I’m not sure how. I remember having severe stomach problems n nausea when I left the hospital that last time. I didn’t think it was going to end. 

 

I finally stabilised, but I don’t remember how long after that hospitalisation . The whole experience is just a big blur. I remember I took myself off one med straight after I left the hospital, don’t remember the name. It had really bad side effects.

 

Hope you’re doing okay, I can’t read much at the moment💚💚

 

 

 

[neroli]

8 minutes ago, Carmie said:

A lot of that part of my life is a blur. I don’t remember what did what. When I left the hospital after the first time I had a lot of ECT I think I wasn’t too bad, but I don’t know what else they did. I don’t know what meds I was put on and off. Not long after that, when I was back home, akathisia ended up becoming severe again, and it was back to the hospital, more ECT and on and off other meds.

 

I eventually stabilised, but I’m not sure how. I remember having severe stomach problems n nausea when I left the hospital that last time. I didn’t think it was going to end. 

 

I finally stabilised, but I don’t remember how long after that hospitalisation . The whole experience is just a big blur. I remember I took myself off one med straight after I left the hospital, don’t remember the name. It had really bad side effects.

Thank you so much for answering, I appreciate the effort it must have taken read and respond.

 

I'll keep this short.  Thank you for giving more detail of what sounds like a terribly hard part of your life. It's very generous of you.

 

I'm hoping your cross over continues to go smoothly.

 

Best of wishes

 

Neroli 💜

[Carmie]

Thanks so much Neroli, 

 

Going to start part two of the crosstaper tomorrow night, that’s half of the old and half of the new formula. Going to see Phil Collins tomorrow night: “ I can feel it coming in the air tonight.”🎼🎼🎼😀

 

Hope you’re doing okay at work💚

[neroli]

5 minutes ago, Carmie said:

Going to start part two of the crosstaper tomorrow night, that’s half of the old and half of the new formula. Going to see Phil Collins tomorrow night:

👏 💪 🙏 👍 💜

[wantrelief]

13 hours ago, neroli said:

Thank you Wantrelief, great wisdom .  Bring things back to the now and living with it and leave the "what next" step for later.

It is sometimes easier to give advice to others....really it is a good reminder for myself too as I find it very hard not to think ahead (usually worrying about what is ahead).  I hope today finds you feeling a bit better, Neroli.

 

[neroli]

1 hour ago, wantrelief said:

It is sometimes easier to give advice to others....really it is a good reminder for myself too as I find it very hard not to think ahead (usually worrying about what is ahead).

Hello my friend

 

So good to hear from you again.  Yes, worry is affecting me.  Still feeling shaky and fatigued today with an underlying hum of anxiety.  I've been tossing my coin to see if I will be all right again next week to go to work (we have a public holiday on Monday, so that gives me an extra day to, hopefully, pick up a bit) the coin is saying yes, no, yes, no..........really, tossing a coin is going to determine whether my condition improves or not?  where are my intellectual brain cells in all this?  I guess when in these states I just about grab on to anything for some hope.

 

I see you are at 11.10am - it's 8.10 am here.

 

I've got a massage booked for 10.30am and am worrying about being ok enough to go to that.  And filling in the time between then and now - Netflix, knitting, colouring, dozing if I can?  It'll be ok.

 

Tears not far away.  I'm going to have to re-think this reduction business.  I want to try to go down on the Nortriptyline in case there is any serotonin toxicity affecting my muscles but I think it's going to have to be tiny, tiny drops so that I can hand on to my work.

 

It's all a bit much.

 

I do hope you are having a good day so far.  I will imagine your presence here if I do have a good cry.

 

love to you f-i-a

 

Neroli 💜

[wantrelief]

3 hours ago, neroli said:

I will imagine your presence here if I do have a good cry

Oh my friend, I am always there in spirit by your side if you do have a good cry.  I think it is interesting you said "good cry" as I do find it helps to just get the tears out if possible so it does seem "good".  I hope you were able to make it to the massage and are now feeling a bit better than earlier.  I am thinking about you, my f-i-a.  Much love, WR. 

[neroli]

24 minutes ago, wantrelief said:

I hope you were able to make it to the massage and are now feeling a bit better than earlier.  I am thinking about you, my f-i-a.  Much love, WR. 

Thank you WR.. I've just been for the massage - feeling a bit wobblier at the moment.  I guess tomorrow will be the tester - see how it's affected my muscles.  I'm feeling more anxiety - how I struggle with that, it doesn't give much relief.  I know there are others on here that have to deal with it a lot and I feel for all of them - it pushes me right to my edge.

 

So, I will eat lunch in 5 minutes, then I think I'll try an autogenic relaxation to try to doze for an hour or so, then I think I can make to from there to dinner reasonably ok and then to bed again (relief!).

 

Sending lots of love (heaps of it - we SO need it in this state)

 

Neroli 💜

[Rosetta]

Hi Neroli.  A massage would be nice right about now.  I hope you were able to enjoy it.  I can be "in the moment" during a massage, ha ha.  I hope you rest well tonight. -Rosetta

[neroli]

Hi @Rosetta

 

Thanks for popping in.  I was just thinking of you about half an hour ago. I did kind of enjoy the massage - practiced being  "in the moment" and not worrying about whether my legs would be super wobbly after!

 

I'd like it if this apathy, anxiety, fatigue and "don't think I can carry on" thoughts (not quite SI but close to it), which I think are from the drop in the benzo, would ease up overnight.

 

I'm seriously wondering about tapering and how I go about it, or whether I leave it for a few months to see if I get some sense of stability.  Or I make the drops so small as to make this possibly a ten-year or so project (which would take me till I'm 72). It is so wearing to be facing the symptoms day in, day out - as you well know.   I was like you when I CT'd and was med.free for a good while - dealing with anxiety, insomnia, crowds and busy places overwhelming.   3 years of that, then a breakdown and now on 3 "psych." meds. and big dips when I reduce by what I think are tiny amounts.  Sheesh, enough to make a whirlwind fatigued!

 

I had three really good days (relative to what "good" is for me now) last week just after the reduction, then day 6 "It" hit and has gathered a bit more force each day since. 

 

Ah, well, back to the "living life through adversity" videos and adjusting my psyche. to Acceptance again.

 

Really appreciate you calling by - I'd love to be able to offer you a cup of tea and a chat.  Hope things are going ok for you.  Will check in to your thread at some point.

 

xx

 

Neroli 💜

[Rosetta]

You are welcome.  I would love to have tea and chat with you, too.  It would be so nice to have real human contact with some of the friends I have made here.  We have to imagine it when we can get the imagination working that is!

[Rabe]

On 1/18/2019 at 12:42 AM, neroli said:

I haven't had a metabolic panel done.  I did go to the psychiatrist to ask him to explain what might be causing certain symptoms and and what interactions I need to be aware of.  He said he didn't know, that I was asking questions he couldn't answer because everyone's make up is unique and that he thought my questioning about tithe drugs and trying to taper was possibly hindering my work with the Acceptance and Commitment therapy.  So nothing useful there.

 

Are metabolic panels common procedures?  Do you get them through your GP?  How do you get to find out if your electrolytes are off kilter?  (The system may be different over here, of course).

 

Hi Neroli..I liked your response on FB...good for you for getting this out there!

I am so trying to hang in there today. Not feeling well at all after the CLonazepam.  I am with you .... teary and crying and so so sad and scared about these meds.

Feeling lost and alone.

I saw my psych...he has never been of help.  I so wish to find some real help...but dont think it is out there.  I honestly thing the benzo is the biggest problem tho I dont want to taper it first.  It is the one I am fearful of taking because I never know what is going to happen.

In any case...I am sorry your psych was not helpful.  Yes!  Your GP can easily order a panel that kind of checks everything...kidneys, liver, glucose, electrolytes, blood cells.  You could ask him to order it at the lab and then on a day when you are feeling particularly not well with your weakness and weeing more and all you could go get it done and see how things are.  They are very common...just a blood test.  

Your doctor obviously doesnt understand when taking about acceptance!! Ugh!!  

I hope you feel better soon Neroli.  This is such a daunting journey.  I am grateful for my friends here..more than I can say!!  Let me know how you are doing my friend! Love and hugs to you!💜 

[wantrelief]

Hi Neroli - Thank you for your kind note on my thread.  I have been thinking about you too!  I am so glad you were able to do your grocery shopping....that is indeed a positive.  I have my fingers crossed that you are climbing out of the rabbit hole.  I think you had mentioned today is a holiday for you...I am glad you will have an extra day to recover before the work week starts up.  Stay strong, my brave friend.  💗

 

 

 

 

[neroli]

Hello @wantrelief, friend

 

Thank you for your message.  Close to tears again.  So fatigued and apathetic, legs of concrete.  I've been staring at the computer for about half an hour trying to get up the energy to write back to you.

 

Today is a public holiday, which is a blessing.  I was supposed to be seeing a friend for a walk but I've just txted her to let her know I'm in a hole, plus it's very windy outside, so not really up to walking (though I suppose it would be "good for me").  I don't even think I can pick up my knitting needles or colouring book, just so sick of all this and disinterested.  I hope it lifts and I can get my head around work tomorrow.

 

I've re-read your signature, again.  Boy, have you been through the wringer.  That you have had the strength to carry on helps me to think I can too.  I do so wish you all the best with your taper.  '

 

xxxxx

 

Neroli 💜

[neroli]

Hello again @wantrelief

 

Me again, if you're there.

 

Have you experienced extreme fatigue and apathy in your taper?  

 

I'm worried about it - hope it's not just battle fatigue taking me over.....

 

 

Neroli 💜

[wantrelief]

Hello Neroli,

 

Oh I am so sorry you are having a difficult day.  I am so glad you can be at home today and not worry about work.  I completely understand what you mean when you say you are sick of all of this.

 

2 hours ago, neroli said:

That you have had the strength to carry on helps me to think I can too.

 

That you have carried on despite everything you are going through helps me feel like I can do so as well, so it is mutual my friend.

 

13 minutes ago, neroli said:

Have you experienced extreme fatigue and apathy in your taper?  

 

I don't know how to describe what I am experiencing - fatigue, apathy, anhedonia or all of the above - but part of what I am going through is this immense desire to just lie down on the couch.  I don't want to do anything.  I feel like a part of my brain is missing or shut down, like I have no interest in things anymore or motivation to do things.  It really is an awful feeling.  I would describe it as extreme too. I don't really feel fatigued but maybe that is what it is?  I don't know.  I had this problem before I started tapering and so far the taper hasn't made it worse.  It sounds like we might be feeling similarly.  I am really sorry you have these symptoms too....it is really awful.

 

I am right beside you, my friend.  You are not alone.  💖

[neroli]

53 minutes ago, wantrelief said:

fatigue, apathy, anhedonia or all of the above - but part of what I am going through is this immense desire to just lie down on the couch.  I don't want to do anything.  I feel like a part of my brain is missing or shut down, like I have no interest in things anymore or motivation to do things.  It really is an awful feeling.

Oh, WR

 

This is SO what it feels like at the moment.  This is an increase in those sort of feelings - but I have had them before since I had the breakdown and got myself on to more drugs.  Bit scary to think that the drugs are causing it, as suggested by your having these symptoms before tapering.

 

Tiredness is always there for me, which I attribute to the meds. - I can manage, just, to keep some things going with that level of tiredness.

 

59 minutes ago, wantrelief said:

I am right beside you, my friend.  You are not alone.  💖

Thank you so much - it means a lot to me.

 

I've just had a friend visit and have cried and cried on her shoulder.  We talked about making a small re-instatement and taking wee baby steps.  I'll see how I go - I'd love to be able to tough this out but I have to be pragmatic as well, I can't deal with this and work.

 

I'm sorry you have these dreadful effects, too.

 

Well, we keep on keeping and I'm so grateful to have you and other friends here on SA>

 

lots of love

 

Neroli 💜

 

 

 

[wantrelief]

17 minutes ago, neroli said:

This is SO what it feels like at the moment.  This is an increase in those sort of feelings - but I have had them before since I had the breakdown and got myself on to more drugs.  Bit scary to think that the drugs are causing it, as suggested by your having these symptoms before tapering.

Ugh, I am really sorry this is an increase in those feelings.  Honestly I don't know what is going on with me for sure but I do think the drugs are causing these symptoms as I have had them before as well in other times I was experiencing withdrawal (or what I think was withdrawal) and when I was "stable" I was fine.  

 

20 minutes ago, neroli said:

I've just had a friend visit and have cried and cried on her shoulder.  We talked about making a small re-instatement and taking wee baby steps.  I'll see how I go - I'd love to be able to tough this out but I have to be pragmatic as well, I can't deal with this and work.

I am so very glad you had a friend visit and were able to cry on her shoulder....how wonderful to have a friend like that.  I am also so glad you can talk to her about what is going on with your taper, etc. It makes sense what you are thinking, see how you go but you always have the option of a small reinstatement if needed. 

 

You are doing great, Neroli.  Keep hanging on, my friend.  Lots of love back, WR  💗

[neroli]

Thank you @wantrelief

 

It has really helped to be able to talk with you.  And the crying on my friend's shoulder has relieved some of the tension.

 

I'll see how I go over the next few days and will force myself to go to the office tomorrow whatever I feel like.  By Saturday I will have been 2 weeks at the lower dose, so I should have a better idea of how it is going.  In future, though, it's going to be smaller drops.

 

For now, I'm going to have an extra cup of decaf. tea to comfort myself and have a go at distracting with colouring or knitting.

 

As I mention quite a few times, my next "pleasure stop" is 3.00pm for a real cup of tea and bread and butter.  From there I can get through the rest of the afternoon usually, to an early dinner and then bed.

 

Swinging life, eh?

 

xxxxxx

 

Neroli 💜

[Rabe]

Hi Neroli...I am so sorry you are dealing with so much right now.  I can say that the fatigue and apathy and all are so a part of all this for me as well.  I am here and I do nothing.  I feel that life just goes on and I am a lamp or something.  I have things I should do but I dont care which is awful.

I saw the doctor and I just can hardly stand it anymore....the ineptness of it all.  He asks me which drug is the biggest problem...I tell him..and he chooses to taper the other.  I am tired of being afraid take the benzo anymore.  It either makes me tire and then anxious or really dizzy and anxious and then tired and rarely kind of a nothing response...the afternoon.  I am tired with you two.  Hoping it will pass for all of us.  I too had lots of tears today.  Did force a walk in the cold and watched the eclipse...made some bread and muffins..thought of you Neroli the whole time...wishing you were there to have some tea and bread with!

Much love to you my friend!  💜

[neroli]

21 hours ago, Rabe said:

I can say that the fatigue and apathy and all are so a part of all this for me as well.  I am here and I do nothing.  I feel that life just goes on and I am a lamp or something.  I have things I should do but I dont care which is awful.

I saw the doctor and I just can hardly stand it anymore....the ineptness of it all.  He asks me which drug is the biggest problem...I tell him..and he chooses to taper the other.  I am tired of being afraid take the benzo anymore.  It either makes me tire and then anxious or really dizzy and anxious and then tired and rarely kind of a nothing response...the afternoon.  I am tired with you two.  Hoping it will pass for all of us.  I too had lots of tears today.  Did force a walk in the cold and watched the eclipse...made some bread and muffins..thought of you Neroli the whole time...wishing you were there to have some tea and bread with!

You've hit the nail on the head, Rabe.  Horrid apathy - not even the distraction things hold any interest.  I don't think I made it any better by not meditating and doing my yoga exercises.  Plus the weather was really windy yesterday and I think barometric pressure has an effect.

 

And your Dr. isn't sounding crash hot either - I wonder what his reasoning is that he decides to taper the drug that isn't causing the most problem?  Kind of baffling.

 

I'm glad you got to walk - and watched the eclipse, I'd completely missed that event happening, have only just seen it on YouTube - some guy in Louisiana was doing a live stream of it - it was four hours long and I only watched 20 minutes of it while I had dinner.  I think the shadow was just creeping up from the bottom at that point.  I will have another look for it on my laptop because I can fast-forward more easily on that than the smart TV.

 

And then you made muffins and bread!  Go Rabe!  In the middle of feeling so awful you managed to bake.  Oh, yes, it would be lovely to have tea and bread with you.

 

I made myself go in to the office today  - I just had to get out.  And it was ok, I didn't have major anxiety, I did have blubby tears with my friend-in-withdrawal when I thought he was siding with the psychologist I'm seeing, by saying that psychologists and therapists are there to challenge you.   I was referring back to the session where I"d got angry and walked out, and that later she had said that it was her difficult job to point things out to people she works with, not to be a friend who will just let things go.  There are many ways to challenge a person - and some of it can be useful - but I didn't see it as a challenge, I saw it as her giving me bad marks for not Accepting my situation fully and then living out my values to be a support to friends.  Oh, it's all a tangled story which I can't describe properly here, I think we all get tangled up in mistaken communication, not fully understanding what the other person is saying.  And it's heightened by our nervous systems being so compromised with drug damage.  At least I managed to pull round and got some work done and had nice chats with him later.

 

Maybe the worst of the cut is over?

 

So, I'm in bed now, 7.20pm, legs are at about 6.  A bit more emailing to do, then it'll be something on Netflix (well actually it's a streaming product called Lightbox and what I'm watching is the Harry Quebert Affair - it's a bit clunky but it's managed to hold my addled brain for the past few days!

 

Lovely to hear from you, Rabe.  We're in this together.

 

xxxxx

 

Neroli 💜

[wantrelief]

Hello f-i-a,

 

Thank you for popping by my thread earlier for a virtual cup of tea and chat!  

 

I am sorry it has been rocky since your last cut with the fatigue and lead legs but I am happy to hear there have been some better days.  And how wonderful you feel like you'll be able to ride this out and not updose...that sounds very positive, Neroli.  

 

I hope you enjoy your afternoon tea treat....always nice to have something like that to look forward to.

 

Thinking about you, my friend, as we plod along together.  I am sorry you are on this journey but I so appreciate your lovely company.

 

Love and hugs,

WR

 

[neroli]

This is one of my go-to videos.  I knew this woman briefly in the early 90s when we met at a Buddhist centre in Wellington.  I had no idea at that time that she was dealing with severe spinal injury.  This video talks about her 40 years of managing chronic and intense pain, of the losses she suffered from her injuries starting at age 16, how she has developed over the years (many years) to a place of acceptance and the tools she has used to accept and live with continued pain.  She even says she has a rich and fulfilling life now.

 

I watch it as a reminder that there are people who are dealing with serious "dysfunction" and chronic conditions, who have the courage to keep on keeping on.  Just like all of us in this community.  Love and best wishes to all.   💜 Neroli

 

 

[DMV64]

On 1/26/2019 at 2:07 AM, neroli said:

there are people who are dealing with serious "dysfunction" and chronic conditions, who have the courage to keep on keeping on

Thank you for this reminder Neroli. I really needed it today. xoxo

[neroli]

4 hours ago, DMV64 said:

Thank you for this reminder Neroli. I really needed it today. xoxo

Hello DMV64

 

Thank you for popping in to my thread.  I'm happy if those words gave you a moment of "breathing space".  I need them quite a lot, too!

 

I see from your signature that you have been on the not-so-merry-go-round of drugs - I hope you are doing reasonably ok.  Will pop over to your thread to get an idea.

 

Neroli 💜

 

 

[neroli]

@Rosetta

 

Hi there,  Just wanted to share that I am having similar anxiety inducing issues as you at the moment.  

 

There's a vine growing in my back yard which is sending roots under the paving slabs and lifting them.  I need to get someone to come and tell me how to resolve this, or take the vine out.  Plus, the gardener that I've got is not doing a heck of a lot from what I can see and it raises my anxiety levels to even think about talking to her about it.

 

I'm so, so annoyed and bothered by this damage nonsense which makes even little things that I used to do myself into a bigger task/project.

 

I very much empathise with you on your home management worries.

 

Neroli 💜