Jump to content
neroli

neroli: is this benzo withdrawal, or other drugs interacting

Recommended Posts

Rosetta

HI Neroli,

Just reading your list of gratitude made me feel a bit better.  I hope today is better -- for everyone.  These long waves have end sometime.  

Love, Rosetta

Share this post


Link to post
neroli
On 7/22/2019 at 1:40 AM, Rosetta said:

Just reading your list of gratitude made me feel a bit better.

 

Thank you, Rosetta.  I"m glad it made you feel a bit better, I've looked back at your thread a wee bit and you have been through so much - you have to give yourself credit for hanging in there with all of that.  It feels like an age, I know, but you are getting there (to being better).  You've had some tough days of late so I hope things have turned round for you a little.

 

Yesterday was just yuck for me, barely walkable legs anxiety flush, fatigue.  Today is a better day, since about midday.  Fluid, fluctuating, frustrating and at times frightening. these flipping iatrogenic features.

 

love to you, too and warmest wishes

 

Neroli 💜

Share this post


Link to post
neroli

Notes:

 

My legs are worsening again - now I have muscle aches throughout and in the past couple of days my hips and knee and a foot have started to ache to the point of low level pain.  

 

Fatigue is up, as is tremor.

 

I have been lucky enough to be able to work from home but now I am finding I cannot bring myself to do even that - so much fatigue and lack of energy.

 

Anxiety has hit more in the past couple of days - find that symptom so hard to cope with.

 

Thinking about  tapering diazepam as I read that it could cause increased muscle tone and somewhere I heard it can cause aches and pains, too.  Also to try alleviate the fatigue. (Although WD effects of diazepam can also include muscle pain and fatigue, so it's catch 22).

 

Just wish I had more in-person support around me to cope with all this.  Walking is minimal now.  Haven't been able to go round the supermarket for two weeks, have had to ask others to do shopping for me.  Can just about make it through the day at home.  Got some wooziness, too, which makes me feel very vulnerable to less ability to look after myself in case I fall.

 

Just hanging in.

 

 

Share this post


Link to post
Rosetta

Oh, I'm sorry to hear that.  I don't know what you should do.  I do hope you can work tomorrow and do your shopping.  I'm really glad someone is doing that for you. -Rosetta

Share this post


Link to post
neroli

Moderators if you see this, can you give me some guidance please?

 

It's 9 days since I tapered 5mg of Nortriptyline.  My legs have got much worse, as well as the leaden feeling I already had, I am now having quite significant muscle aches, stiffness and almost-cramping.  Dr. Glenmullen lists muscle stiffness and cramps on his withdrawal list (found on this site).  As I live alone and there is no assistance from the health bodies, I worry that I will not be able to function.  Would you suggest I updose again (sigh - I really don't want to) as I may have cut too much to cause these increased symptoms?

 

(Note: a bit after I wrote this message, I decided to updose by 2.5mg Nortrip. to see if it relieves symptoms).

Share this post


Link to post
Rosetta

Neroli,

Just wanted to let you know I'm here.  You must be scared.  It's going to be ok.  It may take a while to settle out.  You can get through this.  We are all here for you, you know.  -Rosetta

Share this post


Link to post
neroli

Thank you Rosetta

 

10 hours ago, Rosetta said:

You must be scared

I am.  Scared, exhausted, "depressed".  

 

Thank you for rooting for me, I know we are all here for each other.  Which is such a support - 'cos there isn't any out here in real life!

 

10 hours ago, Rosetta said:

You can get through this.

 

I do hope so.  I do hope I stabilise out.  Can barely walk.

 

much love to you as you continue to cope with your symptoms 

 

Neroli 💜

Share this post


Link to post
Shebon

Hi Neroli:

 

I see you are taking Celexa (citalopram-10mg) and Noritipyline, 75 mg.  Have you looked at the symptoms of serotonin syndrome?  Muscle rigidity and stiffness, with fatigue, anxiety bigtime comprise this syndrome.  Doctors who have patients taking more than 1 AD should be aware of this possibility.  It may not be related to your reduction and more to accumulation of the two ADs that you are taking.  

 

Altostrata addressed this earlier in her posts...she may be spot on.

 

I hope you look into this...get better.

Shebon

Share this post


Link to post
neroli

Hi @Shebon

 

Thank you - I did go to the Dr last weekend as I was having such difficulty and asked about serotonin toxicity - he tested my reflexes and eye movements etc.  and said there was no serotonin toxicity.  Whether he is right or not is a different question.  But it's not easy getting down to the bottom of what causes what - and WD can bring on fatigue and muscle stiffness, too.

 

I am just trying to work the best I can with these damned drugs.

 

Thanks for popping in.  Hope you are doing ok.

 

Neroli 

 

oh, just for accuracy, it's Escitalopram (brand name Lexapro) that I am on as well as the Nortriptyline.

Share this post


Link to post
bubble

Oh Neroli, so sorry to hear things got so tough for you! I hope the updose will help.

 

It seems it happened some 10 days after the cut? I find WD symptoms easier to deal with when I remind myself they are WD symptoms and seeing them as a sign of brain repairing itself. That means that after reaching a peak they start subsiding and soon there is a return to WD normal. Of course, if the cut was too much and the brain is not ready for tapering those symptoms will be unbearable and going up makes sense. Not easy to tell. Unfortunately if we can't deal with tapering one drug we won't be able to reduce other either at this time. So that leaves us with holding. 

 

Is leg stiffness and weakness still your major symptom or this WD episode involved others? 

Share this post


Link to post
Rabe

Thank you Neroli....so hope you are feeling some better.  I am going to stop the Claritin and see how things go.  Seems nothing is as it was in WD.

Take good care!!  Thinking about you!💜

Share this post


Link to post
neroli
On 7/26/2019 at 1:07 AM, bubble said:

Is leg stiffness and weakness still your major symptom or this WD episode involved others? 

 

Hello Bubble

 

as well as the legs going up to about 10+++ stiffness, aches and leadedness at times, there was/is a significant increase in fatigue, anxiety, wooziness and I'm noting more tremor/inner shakiness.

 

Today I can barely walk and feel close to fainting.

 

I hope you are doing ok,  I just haven't got round to people's threads.

 

Neroli 💜

Share this post


Link to post
Rabe

Thinking about you Nerili....always.  I so hope the legs get better!  I am so sorry you are struggling so!  Much love and may hugs to you my dear PF!!💜

Share this post


Link to post
neroli

Hello dear @Rabe

 

Thank you for dropping by.  I've got even more lax at visiting people's threads - I've gone into a bit of a battle fatigue syndrome I think, where I find it difficult to be as supportive as I would like to be to others on here.

 

I hope you are doing as well as can be and thank you for your kind thoughts, my PF

 

All good wishes and love to you

 

Neroli 💜

Share this post


Link to post
JackieDecides
On 7/30/2019 at 1:12 AM, neroli said:

I've got even more lax at visiting people's threads - I've gone into a bit of a battle fatigue syndrome I think, where I find it difficult to be as supportive as I would like to be to others on here.

 

 

I think that happens to all of us - the more we struggle, the less we have the ability to listen to and respond to others. 

we can just do our best. 

Share this post


Link to post
bubble

How have things been for you since Tuesday? Wishing you all the strength you need to endure this difficult stretch xxx

Share this post


Link to post
neroli

Hello @bubble

 

Thanks for popping in.

 

Been feeling pretty yucky.   Fed up with it all - getting worse in the legs.  But started working from home again this week and managed 19 hours - feel wiped out after but if I take a doze I wake up with worse legs and some very tricky thoughts to cope with.  Not in a wonderful place.

 

Grateful that I can still manage to walk some and look after myself, get my meals, shower, dress etc.  Grateful that a cup of tea still pleases me.  Grateful that I'm not nauseous all the time.  Grateful that I'm not in panic attack-mode generally.  Grateful I have a good bed to get into and for the sleep I do get.

 

Grateful that you have come to ask how I'm doing.

 

Im really hoping you have stabilised more and are feeling generally somewhat better.  You'll be on leave now, so I hope that is helping.

 

Warmest wishes, dear Bubble, thoughts are with you

 

Neroli 💜

 

 

Share this post


Link to post
neroli
15 hours ago, JackieDecides said:

I think that happens to all of us - the more we struggle, the less we have the ability to listen to and respond to others. 

we can just do our best. 

 

 

Thank you JD.  Lovely of you to drop by.  Hope you're doing ok with your move/job hunting etc.

 

The best of wishes to you

 

Neroli 💜

Share this post


Link to post
Rabe

Neroli I dont even know what to say...this has been such a difficult stretch for you.  I often tell myself there must be more to this puzzle....but then I also tell myself that if there were someone would have discovered it by now?  IDK.  I do know how much I care, how I think about you daily, and how I SO am hoping you will feel better soon.  This has been a very long wave....time for some dry land and sunshine!!!! Love and hugs dear Neroli!  

I am happy that you have been working from home and able to do that...please continue to take your best care of you!💜

Share this post


Link to post
DMV64
On 8/2/2019 at 3:20 AM, neroli said:

Grateful

So amazing you can find gratitude and so important...thinking of you..

xo

D

Share this post


Link to post
neroli

Notes:

 

Felt very unstable on my legs today and had a weird wave of a kind of empty sensation through my arms and hands, almost like I wouldn't be able to use them.  Could barely walk and was concerned I was going to pass out if I did.  I called emergency services who sent paramedics, all vitals ok, including ECG (didn't really expect them to be not ok).  I have previously been told by my physio that if I feel I'm not going to be able to function, calling 111 is that way to get a district nurse involved if needs be, and possibly some help with getting meals etc.  Well, that didn't happen but at least I have let the "system" know that I am struggling.  Paramedics wonderfully dispassionate and compassionate, listened to my whole story.

 

Must also add that my neighbour was a mega-support, coming round to sit with me while this went on.

 

Am in bed now and have managed to look after myself - still feeling wobbly and very tired.

 

But, the "interesting" part of the story is that when the nurse called to triage me, prior to sending the ambulance, and I told her my story of the drug damage and my CNS being hacked about by the A-D drugs, she said that electrical therapy is something that might be a thing to consider to treat me.  I asked her if, by electrical therapy, she meant ECT and she said yes, as a way of "resetting my brain".........I asked if she was aware of the risks associated with it, she said yes, there could be but for some people it works.....

 

Having had this levelled at me by the Psychiatrist in the mental "health" system and saving no to it (and thankfully not being sectioned and forced), I never thought I would encounter it in the ordinary "health" system...I am appalled and scared that encounters with the health system are so dangerously hazardous.....

Share this post


Link to post
Rosetta

(((Neroli))).  Oh, my heart breaks.  Try to remember that this is temporary.  That's what gets me through.  Eventually, you will heal.

 

Of course, you need not feel bad that you can't visit threads.  Take care of yourself first.  This is a give and take situation.  Now is the time to give yourself a break and accept support.  

 

Ect sounds like a terrible idea to me.  Definitely not what a brain that is struggling would need.  Time will heal you.  

 

All my love, R 

Share this post


Link to post
wantrelief

Hello my f-i-a,

 

I am saddened you had that experience yesterday.  And then in the midst of feeling so terrible, and most likely very scared, you had that nurse suggest ECT....no doubt that did not help how you were feeling.  

 

You are so very brave, Neroli.  Thinking about you - WR 💗

 

Share this post


Link to post
bubble

Oh Neroli! So sorry things were so rough. But what a blessing that neighbour is.

 

I completely understand that feeling when the health system becomes a source of threat to our wellbeing instead of something we can turn to to be helped in times of horrible crisis. When we are at our worst we need to do it on our own and on top of everything hide it from professionals because they will harm us even more. People who have more disturbing symptoms that cause the system to react call that being caught out.

 

What were you expecting them to do? The problem is they want to fix us and make us better and not provide a supportive environment in which we will be able to let natural healing processes take time... This is indeed scary. I hope you start feeling better soon. Xxxx

Share this post


Link to post
Rabe

Holding you in my thoughts and my heart Neroli.  SO hope you are feeling some better in some way.  Care about you SO much!  Love and hugs to you my most special PF!💜

Share this post


Link to post
DMV64
On 8/4/2019 at 3:23 AM, neroli said:

Am in bed now and have managed to look after myself - still feeling wobbly and very tired.

Oh wow. So Sorry, this sounds really challenging. I hope you can continue to remember to take good care of yourself....xoxo

Share this post


Link to post
Rosetta

Hi Neroli.  Are you doing ok?  I hope so.  All my love, -R

Share this post


Link to post
neroli

Hi @Rosetta

 

Thanks for popping in.

 

Struggling - some ok days but most quite difficult.

 

Legs, fatigue, tremors, anxiety.  Usual story but less energy to post in the forum.

 

Hope you are doing ok.

 

love to you

 

Neroli 💜

Share this post


Link to post
Rosetta

I wish I could make it stop.  Sending you all my warmest thoughts, R

Share this post


Link to post
Rabe

Hi Neroli...thank you so much for your post on my thread...always means so much...I know how much you are dealing with!!  Praying you feel some better somehow Neroli!!!  Think about you daily!!  Love and hugs to you my dear PF!!  💜

Share this post


Link to post
neroli

Hello @DMV64 @bubble @Rabe @Rosetta

 

Thank you for coming by with messages of support.

 

I do appreciate your kindness.

 

Got a bad case of exhaustion and hopelessness on me at the moment.  I keep trying to remember that everyone is dealing with difficult symptoms/life circumstances and that you are all keeping on keeping on, so I should, too.  Because we are all in this together.

 

I hope you are all getting by as best you can.

 

You have my heartfelt wishes

 

Neroli 💜

Share this post


Link to post
DMV64
On 8/16/2019 at 3:17 AM, neroli said:

Because we are all in this together.

I love that you wrote this. Sometimes I feel like the only weirdo out there. Like everyone else can cope, make it through, not have to deal with all this.

Much love to you!

Share this post


Link to post

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

×
×
  • Create New...