Rabe Posted November 19, 2019 Share Posted November 19, 2019 Hi Neroli...I have actually been diagnosed with Raynauds on and off along the way. Very strange yes. I too am so hoping as you taper the symptoms will improve!! My latest is a very positive SIBO test. Think has probably been there for very long time. SO am looking at antibiotic or something to deal with that. I guess getting rid of the bacteria can bring on some really awful symptoms. Not looking forward to this...less than the tapering I think. I really feel a good part of what has been going on has been the electrolytes as well as these food issues...some r/t the SIBO and some not. I dont know enough about it. It does often seem like one thing after another as you know, Neroli. But I also have to feel I am being led in some kind of right direction. I certainly hope so for us!! Blessings and love to you!!💜 -Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016 -Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. -November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17, -20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day -Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17 -Feb '18 Amiloride .25mg 5/18 off Amiloride d/t react. Clonaz compounded -4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19 -July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, -7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25 -1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg, 1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit 1/week,Reacted Mag prn Link to comment
neroli Posted November 19, 2019 Author Share Posted November 19, 2019 Hello dear Rabe 16 hours ago, Rabe said: Blessings and love to you!!💜 and to you, too. You are keeping on keeping on so bravely. Neroli 💜 2006 Citalopram 20mg on and off to 2013. April 2013 - July 2014 Sertraline, Venlafaxine, Fluoxetine, Mirtazapine v. bad reactions. July 2014 - CT Mirtazapine. July 2014 - February 2016 Medication free, long term w/d. February - July 2016 Fluoxetine. Medication free, long term w/d syndrome. 2017 Jan physical breakdown. 2017 February - March Escitalopram, Nortriptyline instated. Lorazepam, Zopiclone PRN. April 2017 Lithium Carbonate 250mg 1 wk. 14 August 2017 finish cross to Diazepam 22.5mg daily, stop Zopiclone Tapers: Diazepam 2017 21 August - 30 Dec 21.25mg to 14.5mg 2018 6 Jan - 11 May to 12mg. 2 June updose to 12.25mg - hold. 2019 (0.5mg cuts) 12 Jan - 28 Dec 12mg to 10mg 2020 (0.25mg cuts) - 25 Jan - 29 Dec 9.75mg to 6.25mg 2021 *May have bungled dose and accidentally took 1mg more for about a month (7.25mg), so 4 Jan started again at 6.5mg; 19 Jan 6.25mg; 1 Feb 6.0mg; 23 Feb 5.75mg; 9 Mar 5.5mg; 23 Mar 5.25mg; 9 Apr 5.0mg; 6 May 4.75mg; 13 May 4.5mg; 6 Jun 4mg; 12 July 3.5mg; 2 sep 3.0mg; 15 Sep 2.5mg; 1 Nov 2mg; 15 Nov 1.5mg; 16 Dec 1mg; 26 Dec 0.5mg; 2022 1 Jan - OFF Escitalopram - 2022 1 Mar to 9mg; 29 Mar 8mg; 24 May 7mg; 21 Jun 5mg; 19 Jul 4mg; 1 Sep 3mg; 23 Sep 2.5mg; 31 Oct 1.5mg; 22 Nov 0.5mg; 2023 1 Jan 0.25mg; 1 Mar OFF Nortriptyline 2018 90mg to 2020 1 Dec down to 72.5mg; 2021 20 May 70mg; 8 Jun 67.5mg; 24 Jun 65mg; 31 July 60mg; 12 Oct 55mg; 23 Oct 50mg; 2022 13 Jan 40mg; 22 Jan 30mg; 29 Mar 20mg; 26 Apr 10mg; 3 Aug 5mg; 23 Sep 2.5mg; 2023 1 Jan - OFF 1 March 2023 - off all drugs - 6-year taper off three drugs. Link to comment
Rabe Posted December 5, 2019 Share Posted December 5, 2019 Hi Neroli...thinking about you so much and wanted you to know!! Hoping the caregivers are still with you, that the meals are going ok, and that you legs are at the very least stable...perhaps some better? Love and hugs my dear friend!!💜 -Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016 -Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. -November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17, -20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day -Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17 -Feb '18 Amiloride .25mg 5/18 off Amiloride d/t react. Clonaz compounded -4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19 -July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, -7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25 -1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg, 1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit 1/week,Reacted Mag prn Link to comment
neroli Posted December 5, 2019 Author Share Posted December 5, 2019 Hello dear @Rabe Yes, caregivers still here and meals going ok. Legs are giving me grief. Sending best wishes and love Neroli 💜 2006 Citalopram 20mg on and off to 2013. April 2013 - July 2014 Sertraline, Venlafaxine, Fluoxetine, Mirtazapine v. bad reactions. July 2014 - CT Mirtazapine. July 2014 - February 2016 Medication free, long term w/d. February - July 2016 Fluoxetine. Medication free, long term w/d syndrome. 2017 Jan physical breakdown. 2017 February - March Escitalopram, Nortriptyline instated. Lorazepam, Zopiclone PRN. April 2017 Lithium Carbonate 250mg 1 wk. 14 August 2017 finish cross to Diazepam 22.5mg daily, stop Zopiclone Tapers: Diazepam 2017 21 August - 30 Dec 21.25mg to 14.5mg 2018 6 Jan - 11 May to 12mg. 2 June updose to 12.25mg - hold. 2019 (0.5mg cuts) 12 Jan - 28 Dec 12mg to 10mg 2020 (0.25mg cuts) - 25 Jan - 29 Dec 9.75mg to 6.25mg 2021 *May have bungled dose and accidentally took 1mg more for about a month (7.25mg), so 4 Jan started again at 6.5mg; 19 Jan 6.25mg; 1 Feb 6.0mg; 23 Feb 5.75mg; 9 Mar 5.5mg; 23 Mar 5.25mg; 9 Apr 5.0mg; 6 May 4.75mg; 13 May 4.5mg; 6 Jun 4mg; 12 July 3.5mg; 2 sep 3.0mg; 15 Sep 2.5mg; 1 Nov 2mg; 15 Nov 1.5mg; 16 Dec 1mg; 26 Dec 0.5mg; 2022 1 Jan - OFF Escitalopram - 2022 1 Mar to 9mg; 29 Mar 8mg; 24 May 7mg; 21 Jun 5mg; 19 Jul 4mg; 1 Sep 3mg; 23 Sep 2.5mg; 31 Oct 1.5mg; 22 Nov 0.5mg; 2023 1 Jan 0.25mg; 1 Mar OFF Nortriptyline 2018 90mg to 2020 1 Dec down to 72.5mg; 2021 20 May 70mg; 8 Jun 67.5mg; 24 Jun 65mg; 31 July 60mg; 12 Oct 55mg; 23 Oct 50mg; 2022 13 Jan 40mg; 22 Jan 30mg; 29 Mar 20mg; 26 Apr 10mg; 3 Aug 5mg; 23 Sep 2.5mg; 2023 1 Jan - OFF 1 March 2023 - off all drugs - 6-year taper off three drugs. Link to comment
Rabe Posted December 5, 2019 Share Posted December 5, 2019 I think I posted to you on my site! Ugh!! I will check. Brain fog!! -Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016 -Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. -November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17, -20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day -Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17 -Feb '18 Amiloride .25mg 5/18 off Amiloride d/t react. Clonaz compounded -4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19 -July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, -7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25 -1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg, 1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit 1/week,Reacted Mag prn Link to comment
Rosetta Posted January 11, 2020 Share Posted January 11, 2020 How are you, Neroli. Thanking of you. All my love, Rosetta https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25 2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born) 2012-2016 - Doctors raised dose of Zoloft up to 150 mg 2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction) 2016 - Stopped Xanax Late 2016- Began (too fast) taper of Zoloft Early 2017 - Trazodone prescribed for bedtime (doseage unknown) Feb 2017 - Completed taper/stopped Trazodone Drug free since Feb 2017 2017 - Unisom otc very rarely for sleep Link to comment
neroli Posted January 12, 2020 Author Share Posted January 12, 2020 Hi @Rosetta Thank you for dropping by and your kind thoughts. I hope you are ok - I'm just not getting round to read up how people are at the moment. Legs are very heavy and go into a "seize" mode with intense aching (up to 19, on a scale of 1-10). Fatigued most of the time. Unable to get out of the house. Carers come in to prep. and bring me meals. Finding ways to spend my days that give me mental, emotional and spiritual sustenance. Love back to you Neroli 💜 2006 Citalopram 20mg on and off to 2013. April 2013 - July 2014 Sertraline, Venlafaxine, Fluoxetine, Mirtazapine v. bad reactions. July 2014 - CT Mirtazapine. July 2014 - February 2016 Medication free, long term w/d. February - July 2016 Fluoxetine. Medication free, long term w/d syndrome. 2017 Jan physical breakdown. 2017 February - March Escitalopram, Nortriptyline instated. Lorazepam, Zopiclone PRN. April 2017 Lithium Carbonate 250mg 1 wk. 14 August 2017 finish cross to Diazepam 22.5mg daily, stop Zopiclone Tapers: Diazepam 2017 21 August - 30 Dec 21.25mg to 14.5mg 2018 6 Jan - 11 May to 12mg. 2 June updose to 12.25mg - hold. 2019 (0.5mg cuts) 12 Jan - 28 Dec 12mg to 10mg 2020 (0.25mg cuts) - 25 Jan - 29 Dec 9.75mg to 6.25mg 2021 *May have bungled dose and accidentally took 1mg more for about a month (7.25mg), so 4 Jan started again at 6.5mg; 19 Jan 6.25mg; 1 Feb 6.0mg; 23 Feb 5.75mg; 9 Mar 5.5mg; 23 Mar 5.25mg; 9 Apr 5.0mg; 6 May 4.75mg; 13 May 4.5mg; 6 Jun 4mg; 12 July 3.5mg; 2 sep 3.0mg; 15 Sep 2.5mg; 1 Nov 2mg; 15 Nov 1.5mg; 16 Dec 1mg; 26 Dec 0.5mg; 2022 1 Jan - OFF Escitalopram - 2022 1 Mar to 9mg; 29 Mar 8mg; 24 May 7mg; 21 Jun 5mg; 19 Jul 4mg; 1 Sep 3mg; 23 Sep 2.5mg; 31 Oct 1.5mg; 22 Nov 0.5mg; 2023 1 Jan 0.25mg; 1 Mar OFF Nortriptyline 2018 90mg to 2020 1 Dec down to 72.5mg; 2021 20 May 70mg; 8 Jun 67.5mg; 24 Jun 65mg; 31 July 60mg; 12 Oct 55mg; 23 Oct 50mg; 2022 13 Jan 40mg; 22 Jan 30mg; 29 Mar 20mg; 26 Apr 10mg; 3 Aug 5mg; 23 Sep 2.5mg; 2023 1 Jan - OFF 1 March 2023 - off all drugs - 6-year taper off three drugs. Link to comment
Administrator Altostrata Posted July 16, 2021 Administrator Share Posted July 16, 2021 Hello, @neroli, how are you? This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. "It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein All postings © copyrighted. Link to comment
neroli Posted July 16, 2021 Author Share Posted July 16, 2021 Hello @Altostrata Thank you for checking in. I'm in much the same position as my last post. Except the legs have been more heavy and concrete-like and the "fatigue" is higher. Recently, there have been some times in the day when they appear to lighten up a bit and walking is easier. Also, recently, I have been able to shower more days. And cope with human interaction more, eg. able to deal with tradespeople for household repairs rather than having to have a friend do it for me. Still housebound (though I have managed to get myself out to the mailbox or sit in a patio area a few times). Bed-bound in the sense that I spend my days on the bed because it is too much energy and too uncomfortable to sit in the lounge. I knit and play online scrabble, listen to podcasts and YouTube videos, write to a WD buddy, keep in contact by messages with friends as much as I can and have started to re-learn the piano after 30-odd years. Still have carers for meal prep, cleaning and other house chores. I have reduced the Daizepam by 6.5mg over the last 18 months. This seems like extremely slow progress to me but I held for a while when Covid hit because I was worried my legs would give up on me and medical services may not have been available, and I've held when I've been too scared to take the next step. I am somewhat used to my legs being as they are and have more confidence that they will keep working somehow (and I can therefore still do small things for myself). I've also reduced the Nortriptyline by 7.5mg in the last six months. I take cuts when I feel I might be able to cope. It's higgledy piggledy. I have wanted to try reducing the Escitalopram but I inferred from the drug interaction notes that, as Escitalopram was using all three metabolic enzymes mentioned, if I reduce the Escitalopram it could mean that the Diazepam is metabolised faster and that the Diazepam is, in effect, reduced too and may cause a big uptick in symptoms (particularly anxiety which is a big fear having experienced severe anxiety at the beginning of 2017 from a CT). I am grateful that so far I have not had terrifically frightening symptoms to cope with. The Dr, while wanting me to get off the benzo and not touch the ADs, appears to not be monitoring me closely (if at all) and once asked if I would be comfortable to get to 4mg and stay there. So I don't feel pressured to complete the taper in a fixed timeframe. Of course I would like to be off as soon as is safely possible so that I can get on with healing from that and then address the other drugs. This is turning out to be a longer and more debilitating process than I had thought and has needed a great deal of practise in acceptance and patience. 2006 Citalopram 20mg on and off to 2013. April 2013 - July 2014 Sertraline, Venlafaxine, Fluoxetine, Mirtazapine v. bad reactions. July 2014 - CT Mirtazapine. July 2014 - February 2016 Medication free, long term w/d. February - July 2016 Fluoxetine. Medication free, long term w/d syndrome. 2017 Jan physical breakdown. 2017 February - March Escitalopram, Nortriptyline instated. Lorazepam, Zopiclone PRN. April 2017 Lithium Carbonate 250mg 1 wk. 14 August 2017 finish cross to Diazepam 22.5mg daily, stop Zopiclone Tapers: Diazepam 2017 21 August - 30 Dec 21.25mg to 14.5mg 2018 6 Jan - 11 May to 12mg. 2 June updose to 12.25mg - hold. 2019 (0.5mg cuts) 12 Jan - 28 Dec 12mg to 10mg 2020 (0.25mg cuts) - 25 Jan - 29 Dec 9.75mg to 6.25mg 2021 *May have bungled dose and accidentally took 1mg more for about a month (7.25mg), so 4 Jan started again at 6.5mg; 19 Jan 6.25mg; 1 Feb 6.0mg; 23 Feb 5.75mg; 9 Mar 5.5mg; 23 Mar 5.25mg; 9 Apr 5.0mg; 6 May 4.75mg; 13 May 4.5mg; 6 Jun 4mg; 12 July 3.5mg; 2 sep 3.0mg; 15 Sep 2.5mg; 1 Nov 2mg; 15 Nov 1.5mg; 16 Dec 1mg; 26 Dec 0.5mg; 2022 1 Jan - OFF Escitalopram - 2022 1 Mar to 9mg; 29 Mar 8mg; 24 May 7mg; 21 Jun 5mg; 19 Jul 4mg; 1 Sep 3mg; 23 Sep 2.5mg; 31 Oct 1.5mg; 22 Nov 0.5mg; 2023 1 Jan 0.25mg; 1 Mar OFF Nortriptyline 2018 90mg to 2020 1 Dec down to 72.5mg; 2021 20 May 70mg; 8 Jun 67.5mg; 24 Jun 65mg; 31 July 60mg; 12 Oct 55mg; 23 Oct 50mg; 2022 13 Jan 40mg; 22 Jan 30mg; 29 Mar 20mg; 26 Apr 10mg; 3 Aug 5mg; 23 Sep 2.5mg; 2023 1 Jan - OFF 1 March 2023 - off all drugs - 6-year taper off three drugs. Link to comment
Administrator Altostrata Posted July 18, 2021 Administrator Share Posted July 18, 2021 It does sound like you're seeing a little improvement. What drugs are you taking now, with their dosages? Whatever your tapering strategy, I urge you to keep notes about your reductions. Please let us know how you're doing! This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. "It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein All postings © copyrighted. Link to comment
neroli Posted July 18, 2021 Author Share Posted July 18, 2021 43 minutes ago, Altostrata said: What drugs are you taking now, with their dosages? Whatever your tapering strategy, I urge you to keep notes about your reductions. Drugs: Diazepam - 3.5mg (2mg 5.20am, 1.5mg 6pm) Escitalopram - 10mg (9.30am) Nortriptyline - 65mg (8.30pm) I do keep notes and have for many years. Lately I've been making them less detailed as it is basically more of the same, except for really tough patches which I note down (and also note on occasion when I've had ok periods). Thank you for asking after my progress. 2006 Citalopram 20mg on and off to 2013. April 2013 - July 2014 Sertraline, Venlafaxine, Fluoxetine, Mirtazapine v. bad reactions. July 2014 - CT Mirtazapine. July 2014 - February 2016 Medication free, long term w/d. February - July 2016 Fluoxetine. Medication free, long term w/d syndrome. 2017 Jan physical breakdown. 2017 February - March Escitalopram, Nortriptyline instated. Lorazepam, Zopiclone PRN. April 2017 Lithium Carbonate 250mg 1 wk. 14 August 2017 finish cross to Diazepam 22.5mg daily, stop Zopiclone Tapers: Diazepam 2017 21 August - 30 Dec 21.25mg to 14.5mg 2018 6 Jan - 11 May to 12mg. 2 June updose to 12.25mg - hold. 2019 (0.5mg cuts) 12 Jan - 28 Dec 12mg to 10mg 2020 (0.25mg cuts) - 25 Jan - 29 Dec 9.75mg to 6.25mg 2021 *May have bungled dose and accidentally took 1mg more for about a month (7.25mg), so 4 Jan started again at 6.5mg; 19 Jan 6.25mg; 1 Feb 6.0mg; 23 Feb 5.75mg; 9 Mar 5.5mg; 23 Mar 5.25mg; 9 Apr 5.0mg; 6 May 4.75mg; 13 May 4.5mg; 6 Jun 4mg; 12 July 3.5mg; 2 sep 3.0mg; 15 Sep 2.5mg; 1 Nov 2mg; 15 Nov 1.5mg; 16 Dec 1mg; 26 Dec 0.5mg; 2022 1 Jan - OFF Escitalopram - 2022 1 Mar to 9mg; 29 Mar 8mg; 24 May 7mg; 21 Jun 5mg; 19 Jul 4mg; 1 Sep 3mg; 23 Sep 2.5mg; 31 Oct 1.5mg; 22 Nov 0.5mg; 2023 1 Jan 0.25mg; 1 Mar OFF Nortriptyline 2018 90mg to 2020 1 Dec down to 72.5mg; 2021 20 May 70mg; 8 Jun 67.5mg; 24 Jun 65mg; 31 July 60mg; 12 Oct 55mg; 23 Oct 50mg; 2022 13 Jan 40mg; 22 Jan 30mg; 29 Mar 20mg; 26 Apr 10mg; 3 Aug 5mg; 23 Sep 2.5mg; 2023 1 Jan - OFF 1 March 2023 - off all drugs - 6-year taper off three drugs. Link to comment
Administrator Altostrata Posted July 19, 2021 Administrator Share Posted July 19, 2021 What are you doing for exercise? You are still taking a pretty good amount of brakes -- both the diazepam and nortriptyline can cause fatigue and heaviness. This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. "It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein All postings © copyrighted. Link to comment
neroli Posted July 19, 2021 Author Share Posted July 19, 2021 1 hour ago, Altostrata said: What are you doing for exercise? Walking around as much as possible. Cardio exercises with upper body muscles. 2006 Citalopram 20mg on and off to 2013. April 2013 - July 2014 Sertraline, Venlafaxine, Fluoxetine, Mirtazapine v. bad reactions. July 2014 - CT Mirtazapine. July 2014 - February 2016 Medication free, long term w/d. February - July 2016 Fluoxetine. Medication free, long term w/d syndrome. 2017 Jan physical breakdown. 2017 February - March Escitalopram, Nortriptyline instated. Lorazepam, Zopiclone PRN. April 2017 Lithium Carbonate 250mg 1 wk. 14 August 2017 finish cross to Diazepam 22.5mg daily, stop Zopiclone Tapers: Diazepam 2017 21 August - 30 Dec 21.25mg to 14.5mg 2018 6 Jan - 11 May to 12mg. 2 June updose to 12.25mg - hold. 2019 (0.5mg cuts) 12 Jan - 28 Dec 12mg to 10mg 2020 (0.25mg cuts) - 25 Jan - 29 Dec 9.75mg to 6.25mg 2021 *May have bungled dose and accidentally took 1mg more for about a month (7.25mg), so 4 Jan started again at 6.5mg; 19 Jan 6.25mg; 1 Feb 6.0mg; 23 Feb 5.75mg; 9 Mar 5.5mg; 23 Mar 5.25mg; 9 Apr 5.0mg; 6 May 4.75mg; 13 May 4.5mg; 6 Jun 4mg; 12 July 3.5mg; 2 sep 3.0mg; 15 Sep 2.5mg; 1 Nov 2mg; 15 Nov 1.5mg; 16 Dec 1mg; 26 Dec 0.5mg; 2022 1 Jan - OFF Escitalopram - 2022 1 Mar to 9mg; 29 Mar 8mg; 24 May 7mg; 21 Jun 5mg; 19 Jul 4mg; 1 Sep 3mg; 23 Sep 2.5mg; 31 Oct 1.5mg; 22 Nov 0.5mg; 2023 1 Jan 0.25mg; 1 Mar OFF Nortriptyline 2018 90mg to 2020 1 Dec down to 72.5mg; 2021 20 May 70mg; 8 Jun 67.5mg; 24 Jun 65mg; 31 July 60mg; 12 Oct 55mg; 23 Oct 50mg; 2022 13 Jan 40mg; 22 Jan 30mg; 29 Mar 20mg; 26 Apr 10mg; 3 Aug 5mg; 23 Sep 2.5mg; 2023 1 Jan - OFF 1 March 2023 - off all drugs - 6-year taper off three drugs. Link to comment
Administrator Altostrata Posted July 19, 2021 Administrator Share Posted July 19, 2021 What happens when you reduce nortriptyline? This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. "It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein All postings © copyrighted. Link to comment
neroli Posted July 19, 2021 Author Share Posted July 19, 2021 1 hour ago, Altostrata said: What happens when you reduce nortriptyline? I'm not sure as I reduce Diaz as well at the same time. 2006 Citalopram 20mg on and off to 2013. April 2013 - July 2014 Sertraline, Venlafaxine, Fluoxetine, Mirtazapine v. bad reactions. July 2014 - CT Mirtazapine. July 2014 - February 2016 Medication free, long term w/d. February - July 2016 Fluoxetine. Medication free, long term w/d syndrome. 2017 Jan physical breakdown. 2017 February - March Escitalopram, Nortriptyline instated. Lorazepam, Zopiclone PRN. April 2017 Lithium Carbonate 250mg 1 wk. 14 August 2017 finish cross to Diazepam 22.5mg daily, stop Zopiclone Tapers: Diazepam 2017 21 August - 30 Dec 21.25mg to 14.5mg 2018 6 Jan - 11 May to 12mg. 2 June updose to 12.25mg - hold. 2019 (0.5mg cuts) 12 Jan - 28 Dec 12mg to 10mg 2020 (0.25mg cuts) - 25 Jan - 29 Dec 9.75mg to 6.25mg 2021 *May have bungled dose and accidentally took 1mg more for about a month (7.25mg), so 4 Jan started again at 6.5mg; 19 Jan 6.25mg; 1 Feb 6.0mg; 23 Feb 5.75mg; 9 Mar 5.5mg; 23 Mar 5.25mg; 9 Apr 5.0mg; 6 May 4.75mg; 13 May 4.5mg; 6 Jun 4mg; 12 July 3.5mg; 2 sep 3.0mg; 15 Sep 2.5mg; 1 Nov 2mg; 15 Nov 1.5mg; 16 Dec 1mg; 26 Dec 0.5mg; 2022 1 Jan - OFF Escitalopram - 2022 1 Mar to 9mg; 29 Mar 8mg; 24 May 7mg; 21 Jun 5mg; 19 Jul 4mg; 1 Sep 3mg; 23 Sep 2.5mg; 31 Oct 1.5mg; 22 Nov 0.5mg; 2023 1 Jan 0.25mg; 1 Mar OFF Nortriptyline 2018 90mg to 2020 1 Dec down to 72.5mg; 2021 20 May 70mg; 8 Jun 67.5mg; 24 Jun 65mg; 31 July 60mg; 12 Oct 55mg; 23 Oct 50mg; 2022 13 Jan 40mg; 22 Jan 30mg; 29 Mar 20mg; 26 Apr 10mg; 3 Aug 5mg; 23 Sep 2.5mg; 2023 1 Jan - OFF 1 March 2023 - off all drugs - 6-year taper off three drugs. Link to comment
Moderator Emeritus Carmie Posted August 8, 2021 Moderator Emeritus Share Posted August 8, 2021 Hi Neroli, So sorry to hear that you’re still struggling with your legs. How are you coping? I’m glad to see that you’re able to do a few more things🧡 Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️ 2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor. Link to comment
neroli Posted August 8, 2021 Author Share Posted August 8, 2021 On 7/17/2021 at 10:36 AM, neroli said: I knit and play online scrabble, listen to podcasts and YouTube videos, write to a WD buddy, keep in contact by messages with friends as much as I can and have started to re-learn the piano after 30-odd years. Hello @Carmie Thank you for asking - above is how I cope. Hope you are getting some ok days. Best of wishes x 2006 Citalopram 20mg on and off to 2013. April 2013 - July 2014 Sertraline, Venlafaxine, Fluoxetine, Mirtazapine v. bad reactions. July 2014 - CT Mirtazapine. July 2014 - February 2016 Medication free, long term w/d. February - July 2016 Fluoxetine. Medication free, long term w/d syndrome. 2017 Jan physical breakdown. 2017 February - March Escitalopram, Nortriptyline instated. Lorazepam, Zopiclone PRN. April 2017 Lithium Carbonate 250mg 1 wk. 14 August 2017 finish cross to Diazepam 22.5mg daily, stop Zopiclone Tapers: Diazepam 2017 21 August - 30 Dec 21.25mg to 14.5mg 2018 6 Jan - 11 May to 12mg. 2 June updose to 12.25mg - hold. 2019 (0.5mg cuts) 12 Jan - 28 Dec 12mg to 10mg 2020 (0.25mg cuts) - 25 Jan - 29 Dec 9.75mg to 6.25mg 2021 *May have bungled dose and accidentally took 1mg more for about a month (7.25mg), so 4 Jan started again at 6.5mg; 19 Jan 6.25mg; 1 Feb 6.0mg; 23 Feb 5.75mg; 9 Mar 5.5mg; 23 Mar 5.25mg; 9 Apr 5.0mg; 6 May 4.75mg; 13 May 4.5mg; 6 Jun 4mg; 12 July 3.5mg; 2 sep 3.0mg; 15 Sep 2.5mg; 1 Nov 2mg; 15 Nov 1.5mg; 16 Dec 1mg; 26 Dec 0.5mg; 2022 1 Jan - OFF Escitalopram - 2022 1 Mar to 9mg; 29 Mar 8mg; 24 May 7mg; 21 Jun 5mg; 19 Jul 4mg; 1 Sep 3mg; 23 Sep 2.5mg; 31 Oct 1.5mg; 22 Nov 0.5mg; 2023 1 Jan 0.25mg; 1 Mar OFF Nortriptyline 2018 90mg to 2020 1 Dec down to 72.5mg; 2021 20 May 70mg; 8 Jun 67.5mg; 24 Jun 65mg; 31 July 60mg; 12 Oct 55mg; 23 Oct 50mg; 2022 13 Jan 40mg; 22 Jan 30mg; 29 Mar 20mg; 26 Apr 10mg; 3 Aug 5mg; 23 Sep 2.5mg; 2023 1 Jan - OFF 1 March 2023 - off all drugs - 6-year taper off three drugs. Link to comment
Moderator Emeritus Carmie Posted October 9, 2021 Moderator Emeritus Share Posted October 9, 2021 On 8/9/2021 at 7:49 AM, neroli said: Hello @Carmie Thank you for asking - above is how I cope. Hope you are getting some ok days. Best of wishes x Hi Neroli, How’s your piano playing going?🧡 Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️ 2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor. Link to comment
neroli Posted November 3, 2021 Author Share Posted November 3, 2021 On 10/9/2021 at 9:05 PM, Carmie said: How’s your piano playing going? It's going ok - have got a few pieces on the go now and am finding my fingers again. It is providing a distraction and a sense of purpose in this isolated and challenging process. 2006 Citalopram 20mg on and off to 2013. April 2013 - July 2014 Sertraline, Venlafaxine, Fluoxetine, Mirtazapine v. bad reactions. July 2014 - CT Mirtazapine. July 2014 - February 2016 Medication free, long term w/d. February - July 2016 Fluoxetine. Medication free, long term w/d syndrome. 2017 Jan physical breakdown. 2017 February - March Escitalopram, Nortriptyline instated. Lorazepam, Zopiclone PRN. April 2017 Lithium Carbonate 250mg 1 wk. 14 August 2017 finish cross to Diazepam 22.5mg daily, stop Zopiclone Tapers: Diazepam 2017 21 August - 30 Dec 21.25mg to 14.5mg 2018 6 Jan - 11 May to 12mg. 2 June updose to 12.25mg - hold. 2019 (0.5mg cuts) 12 Jan - 28 Dec 12mg to 10mg 2020 (0.25mg cuts) - 25 Jan - 29 Dec 9.75mg to 6.25mg 2021 *May have bungled dose and accidentally took 1mg more for about a month (7.25mg), so 4 Jan started again at 6.5mg; 19 Jan 6.25mg; 1 Feb 6.0mg; 23 Feb 5.75mg; 9 Mar 5.5mg; 23 Mar 5.25mg; 9 Apr 5.0mg; 6 May 4.75mg; 13 May 4.5mg; 6 Jun 4mg; 12 July 3.5mg; 2 sep 3.0mg; 15 Sep 2.5mg; 1 Nov 2mg; 15 Nov 1.5mg; 16 Dec 1mg; 26 Dec 0.5mg; 2022 1 Jan - OFF Escitalopram - 2022 1 Mar to 9mg; 29 Mar 8mg; 24 May 7mg; 21 Jun 5mg; 19 Jul 4mg; 1 Sep 3mg; 23 Sep 2.5mg; 31 Oct 1.5mg; 22 Nov 0.5mg; 2023 1 Jan 0.25mg; 1 Mar OFF Nortriptyline 2018 90mg to 2020 1 Dec down to 72.5mg; 2021 20 May 70mg; 8 Jun 67.5mg; 24 Jun 65mg; 31 July 60mg; 12 Oct 55mg; 23 Oct 50mg; 2022 13 Jan 40mg; 22 Jan 30mg; 29 Mar 20mg; 26 Apr 10mg; 3 Aug 5mg; 23 Sep 2.5mg; 2023 1 Jan - OFF 1 March 2023 - off all drugs - 6-year taper off three drugs. Link to comment
Vasherr Posted September 9, 2022 Share Posted September 9, 2022 Hi, @neroli, how are You doing lately? Some time has passed from Your last update. Hope it is getting better. Wishing You a lifelong window! V. Duloxetine 2016/17 - 30/60mg/30mg, c/t, light WD. Sertraline June 2019 50mg ADR Clorazepate June 2019 20-15-10mg for 3 weeks then sparsely until 2022, 2 times per month max and very low dose (5mg) Clorazepate Jan2022 10mg 5 days 2,5mg 2 days then off Venlafaxine June 2019 75mg ADR, 17,5mg, titrated to 37,5mg Venlafaxine Jan 2022 Covid, hard ADR on 37,5mg, reduced to 20mg ADR, tried ct, crash, Venlafaxine 22Jan22 reinstated 9,4mg, too low/ 01Feb22- 12mg/ 12Feb- 11,25mg/ 16Feb- 11mg/ 20Feb- 10,8mg/ 24Feb22-10,575mg/ 16Mar22- 10,46mg/ 26Mar22- 10,35mg/ 26Apr22- 10mg/ 01Oct- 9,9mg/ 13Nov- 9,7mg 01Jan24-7,5mg MAR24 Due to another sudden intolerance had to fast taper venlafaxine to 1,14mg Seems like all of this time I was in benzo withdrawal, because when I took it now in desperation to help it made me feel worse, tried reinstatement first 1mg, then 0,05mg both made me feel worse. Link to comment
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