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URGENT request : Make a submission to the Scottish government re: harm done, dependance and withdrawal. You don't even have to be from Scotland.

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Vanora

Yesterday, the 25th October, the petition on Prescribed Drug Dependence and Withdrawal was discussed at the Scottish parliament. Tune in around 10.08.03.

 

https://www.scottishparliament.tv/meeting/public-petitions-committee-october-25-2018?clip_start=10%3A07%3A27&clip_end=10%3A21%3A48 

 

They decided to return to the Scottish government on the issue of a 24 hour helpline - which is supported by the BMA - but noted it shouldn't be a substitute for support from prescribers. They also acknowledged that the government is looking to initiate a Scottish focused review which would run parallel with Public Health England's review into medications that cause dependence and withdrawal but a plea was made not to wait for the findings of the PHE review. Johann Lamont the convener recognised that any review would have to show it's independence given the lack of trust and the degree of suspicion evident in the submissions concerning prescribed drug dependence and withdrawal.

 

Included in the recent submissions was a Patient Analysis with patient journey maps as researched and written by Dr Anne Guy, Scottish petitioner Marion Brown and Welsh petitioner Stevie Lewis.

 

http://prescribeddrug.org/wp-content/uploads/2018/10/Voice-of-the-Patient-Petition-Analysis-Report.pdf      

 

If there are still people who haven't as yet sent in a submission please do consider it. This petition has really caught the attention of the committee with unprecedented levels of submissions and we are hoping that it may eventually be debated within the Scottish parliament itself.  

 

 


1979 put on Clomipramine.
Failed attempt to withdraw from Clomipramine started on Seroxat 1992.
1997 Effexor replaces Seroxat after failed withdrawal.
2011 fail to withdraw from Effexor despite combined use of Prozac and Seroquel. Started on Cymbalta.
Anxiety not resolved by Cymbalta so taper off by 28th March 2012. Left on 10mg Buspirone and 1 quarter of 5mg Diazepam.
Anxiety at times very severe. 19th May take my first half of a 5mg Lamictal.

As of 5/11/2013, off all psychiatric drugs. Doing better but hope for more healing yet.

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Altostrata

Thanks, Vanora. That Patient Analysis report is brilliant!


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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Vanora
11 hours ago, Altostrata said:

Thanks, Vanora. That Patient Analysis report is brilliant!

 

Thank you Altostrata, I'm very impressed with this document too and it provides a compelling picture of patient experience. Overall, we are making progress albeit slow progress. 


1979 put on Clomipramine.
Failed attempt to withdraw from Clomipramine started on Seroxat 1992.
1997 Effexor replaces Seroxat after failed withdrawal.
2011 fail to withdraw from Effexor despite combined use of Prozac and Seroquel. Started on Cymbalta.
Anxiety not resolved by Cymbalta so taper off by 28th March 2012. Left on 10mg Buspirone and 1 quarter of 5mg Diazepam.
Anxiety at times very severe. 19th May take my first half of a 5mg Lamictal.

As of 5/11/2013, off all psychiatric drugs. Doing better but hope for more healing yet.

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Vanora

Yesterday, the 7th of March, our petition was again discussed at the Scottish parliament. I have to tell you that there isn't much further progress to report. Johann Lamont the convener noted that because of the sheer volume of submissions not everything has been posted onto their website. If any of you find that your submission is missing I suggest you contact the clerks via petitions@parliament.scot quoting the petition's reference PE01651 just to ensure it hasn't been mislaid.

 

http://www.parliament.scot/GettingInvolved/Petitions/PE01651    

 

https://www.scottishparliament.tv/meeting/public-petitions-committee-march-7-2019?clip_start=11%3A20%3A12 

 

We expect the committee will meet probably once they've heard from the Public Health England review into medicines that cause dependence and withdrawal (benzodiazepines, antidepressants, z-drugs, gaba-ergic drugs and opioid painkillers) which is due to report in the second half of this year. Likewise, the Scottish government has set up a Short Life Working Group on prescription medicine dependence and withdrawal in Scotland with the aim of working in close tandem with the PHE review. We have asked that the evidence from this petition be considered as part of their focus on Experts by Experience.   


1979 put on Clomipramine.
Failed attempt to withdraw from Clomipramine started on Seroxat 1992.
1997 Effexor replaces Seroxat after failed withdrawal.
2011 fail to withdraw from Effexor despite combined use of Prozac and Seroquel. Started on Cymbalta.
Anxiety not resolved by Cymbalta so taper off by 28th March 2012. Left on 10mg Buspirone and 1 quarter of 5mg Diazepam.
Anxiety at times very severe. 19th May take my first half of a 5mg Lamictal.

As of 5/11/2013, off all psychiatric drugs. Doing better but hope for more healing yet.

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ChessieCat

Thank you for updating us.  It is much appreciated.


Being very patient.  I'll get there - slowly.  ETA mid 2021

ADs:  25 years - 1 unknown, Prozac (caused muscle weakness), Zoloft/sertraline; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after)

Pristiq:  50mg 2012, 100mg beg 2013 (mild Serotonin Toxicity)

Began tapering Oct 2015  Current from 17 Oct 2020:  Pristiq 0.56 mg (compounded + liquid)

My tapering program

My Intro (goes to my tapering graph)

My website - includes my brief history + links to videos & information on the web

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

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Vanora

It's the least I can do in appreciation for the amazing support our petition has had from the members of this forum ChessieCat. 


1979 put on Clomipramine.
Failed attempt to withdraw from Clomipramine started on Seroxat 1992.
1997 Effexor replaces Seroxat after failed withdrawal.
2011 fail to withdraw from Effexor despite combined use of Prozac and Seroquel. Started on Cymbalta.
Anxiety not resolved by Cymbalta so taper off by 28th March 2012. Left on 10mg Buspirone and 1 quarter of 5mg Diazepam.
Anxiety at times very severe. 19th May take my first half of a 5mg Lamictal.

As of 5/11/2013, off all psychiatric drugs. Doing better but hope for more healing yet.

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Vanora

Some recent updates. The Welsh Assembly published their report today in response to the petition on prescribed drug dependence and withdrawal to the Welsh Assembly. Stevie Lewis who is the petitioner gave an interview to BBC Radio Wales.

 

https://www.bbc.co.uk/news/uk-wales-politics-47643985 

 

See also James Moore who writes about the report on his "Let's Talk Withdrawal" website: "Among the ten specific recommendations is the need for a greater recognition to be given to prescription drug dependence at a national level in both policy and strategy. In addition, they commit to investigate, as a priority, the potential for national rollout of a Prescribed Medication Support Service in order to ensure that specific advice and support is available for people who require assistance with prescription medication."

 

http://www.letstalkwithdrawal.com/governments-debate-psychiatric-drug-withdrawal/ 

 

The Scottish Government has as yet to produce their report but we hope it will be this year.


1979 put on Clomipramine.
Failed attempt to withdraw from Clomipramine started on Seroxat 1992.
1997 Effexor replaces Seroxat after failed withdrawal.
2011 fail to withdraw from Effexor despite combined use of Prozac and Seroquel. Started on Cymbalta.
Anxiety not resolved by Cymbalta so taper off by 28th March 2012. Left on 10mg Buspirone and 1 quarter of 5mg Diazepam.
Anxiety at times very severe. 19th May take my first half of a 5mg Lamictal.

As of 5/11/2013, off all psychiatric drugs. Doing better but hope for more healing yet.

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Vanora

This should by rights be posted as an update to the Welsh petition but given the importance of this I felt it deserves to be posted here. The Welsh government has accepted no less than 9 of the 10 recommendations brought forward by Stevie Lewis's petition.

 

https://past.wales/positive-response-from-welsh-gov-to-the-issues-of-dependency-with-prescribed-medication 

 

Important paragraph: "It is important we distinguish between substance misuse, as the harmful use of substances such as drugs and alcohol; and dependence arising from the therapeutic use of medication whether they are prescribed or purchased." 

 

Unfortunately recommendation 6 was rejected.

"The Welsh Government should determine whether SSRI and SNRI antidepressants should be added to the list of drugs targeted for reduction, and should introduce a national prescribing indicator to support closer monitoring of prescribing volumes and patterns across Wales. This indicator should be used to identify areas where further investigation or intervention may be required."  


1979 put on Clomipramine.
Failed attempt to withdraw from Clomipramine started on Seroxat 1992.
1997 Effexor replaces Seroxat after failed withdrawal.
2011 fail to withdraw from Effexor despite combined use of Prozac and Seroquel. Started on Cymbalta.
Anxiety not resolved by Cymbalta so taper off by 28th March 2012. Left on 10mg Buspirone and 1 quarter of 5mg Diazepam.
Anxiety at times very severe. 19th May take my first half of a 5mg Lamictal.

As of 5/11/2013, off all psychiatric drugs. Doing better but hope for more healing yet.

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Altostrata

Hurray! It's a step forward.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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Vanora

It sure is!


1979 put on Clomipramine.
Failed attempt to withdraw from Clomipramine started on Seroxat 1992.
1997 Effexor replaces Seroxat after failed withdrawal.
2011 fail to withdraw from Effexor despite combined use of Prozac and Seroquel. Started on Cymbalta.
Anxiety not resolved by Cymbalta so taper off by 28th March 2012. Left on 10mg Buspirone and 1 quarter of 5mg Diazepam.
Anxiety at times very severe. 19th May take my first half of a 5mg Lamictal.

As of 5/11/2013, off all psychiatric drugs. Doing better but hope for more healing yet.

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ChessieCat

Thanks for the update Vanora.

 

I think this is the one you referred to:

 

petition-to-welsh-government-on-prescribed-drug-dependence-please-sign

 

Please add the update to that topic as well.  Thanks.

 

 


Being very patient.  I'll get there - slowly.  ETA mid 2021

ADs:  25 years - 1 unknown, Prozac (caused muscle weakness), Zoloft/sertraline; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after)

Pristiq:  50mg 2012, 100mg beg 2013 (mild Serotonin Toxicity)

Began tapering Oct 2015  Current from 17 Oct 2020:  Pristiq 0.56 mg (compounded + liquid)

My tapering program

My Intro (goes to my tapering graph)

My website - includes my brief history + links to videos & information on the web

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

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Vanora

I've done just that ChessieCat.


1979 put on Clomipramine.
Failed attempt to withdraw from Clomipramine started on Seroxat 1992.
1997 Effexor replaces Seroxat after failed withdrawal.
2011 fail to withdraw from Effexor despite combined use of Prozac and Seroquel. Started on Cymbalta.
Anxiety not resolved by Cymbalta so taper off by 28th March 2012. Left on 10mg Buspirone and 1 quarter of 5mg Diazepam.
Anxiety at times very severe. 19th May take my first half of a 5mg Lamictal.

As of 5/11/2013, off all psychiatric drugs. Doing better but hope for more healing yet.

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NaturalBorn

Glad to see people taking action...


(i'm brazlian so please, ignore spelling mistakes) 2015 the beggining of the year started with effexor xr 37,5

went up to 300mgs

in october of 2015 quitted COLD TURKEY/took olanzapine 5mgs for 2 weeks around november/ reinstated effexor in january of 2016

in march of 2016 was at 300mg again

in may tappered effexor xr and added trazodone 150mgs, seroquel 50mgs and abilify 10 mgs/in july cold turkey from abilify (no big deal)

in september tried reducing trazadone to 50mg

after 2 weeks went back to 150mgs of trazadone and 50 mgs of seroquel and added 2 mgs of klonopin to use WHEN NEEDEED

currently taking 150mgs of trazadone and 50 mgs of seroquel at night

 

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Vanora

Thank you NaturalBorn, we're doing what we can. We'd rather hoped that after this length of time  - the petition was lodged in May of 2017 - we might have reached an end point but what with Covid-19 and the sheer number of submissions that seems some distance away. One thing's for sure, we've brought a greater awareness to the issue of prescribed drug dependence and withdrawal. It's not so easy to ignore a petition with this level of submissions, unprecedented for the Scottish parliament.   

 

And if you haven't made a submission you still can. You don't even have to be from Scotland and if you wish you can remain anonymous. Follow the instructions at the beginning of the thread.    


1979 put on Clomipramine.
Failed attempt to withdraw from Clomipramine started on Seroxat 1992.
1997 Effexor replaces Seroxat after failed withdrawal.
2011 fail to withdraw from Effexor despite combined use of Prozac and Seroquel. Started on Cymbalta.
Anxiety not resolved by Cymbalta so taper off by 28th March 2012. Left on 10mg Buspirone and 1 quarter of 5mg Diazepam.
Anxiety at times very severe. 19th May take my first half of a 5mg Lamictal.

As of 5/11/2013, off all psychiatric drugs. Doing better but hope for more healing yet.

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ChessieCat
Posted (edited)

The Spanish Petition now has its own topic.  It is pinned in the Controversies, Actions, Events Forum.  Please note that the title may be changed to include more details.

 

You can find it here:

 

 

 

Edited by ChessieCat

Being very patient.  I'll get there - slowly.  ETA mid 2021

ADs:  25 years - 1 unknown, Prozac (caused muscle weakness), Zoloft/sertraline; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after)

Pristiq:  50mg 2012, 100mg beg 2013 (mild Serotonin Toxicity)

Began tapering Oct 2015  Current from 17 Oct 2020:  Pristiq 0.56 mg (compounded + liquid)

My tapering program

My Intro (goes to my tapering graph)

My website - includes my brief history + links to videos & information on the web

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

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Pilar

Thanks !!!


Had at almost the same time the following medications: 

amitriptyline 10mg : On = 10th of March 2018, Off=  20th May 2018

cipralex 5mg ( escitolopram) : On = 25th April 2018, Off= 20th May 2018

Had to stop them abruptly due to side effects, now I'm  suffering withdrawal

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