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Tootsieroll

Where are all the success stories? Does nobody ever heal?

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Tootsieroll

ADMIN NOTE To answer the questions in the topic title, see the Success Stories in this forum.

 

Also see reports of progress in the Introductions forum. Use search there if you're looking for a particular drug.

 

Related topics in the Symptoms and Self-Care forum

 

The Windows and Waves Pattern of Stabilization

 

"Is it always going to be like this?"

 

The importance of feeling good

 

Creating a new self after withdrawal

 

Protracted Withdrawal or PAWS (post-acute withdrawal syndrome)

 

What does healing from withdrawal syndrome feel like?

 

Withdrawal dialogues & encouragement

 

Neuro-emotions

 

Non-drug techniques to cope with emotional symptoms

 

Deep emotional pain and crying spells, spontaneous weeping

 

Health anxiety, hypochondria, and obsession with symptoms 

 

Dealing With Emotional Spirals

 

For those who are feeling desperate or suicidal

 

 

Why this topic has been closed to comments.

 


The rate the success stories are cranking out just goes to show how long it takes to heal :(. I hope it's due to people healing and never looking back.

Edited by Altostrata
Added admin note

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Altostrata

Why don't you go back to the Intro forum, look up the inactive topics on the last pages, and send pms to the many people we haven't heard from for years?

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Tootsieroll

That's a good way of finding out but I have a feeling replies won't come through. And plus I don't want to intrude and be a reminder of a period they probably want behind them.

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Mort81

No a bad idea Alto. But I guess tootsie os right, these people probably never want to think about it ever again. I think once they see the start of recovery they can't get far enough from this experience. I know when I recover Ill write my story. The hope that these provide is huge. I have tons saved on my phone.

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Wowzers

I hope and pray to be one of those people one day. I know i will be but argh!!!!!!!!!!!!!!!!

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DLB

I actually did just what Alto said a month ago with a PM to someone and she Pm me back with great news and then did her success story. It works.

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Tootsieroll

I'm going to PM as many as I can then lol.  Sigh..I just wished that they would come back regardless because we have no clue how many there are out there in the 'verse. The more, the merrier! It would help collectively.

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Mort81

wow DLB thats awesome!!!

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Mort81

The more succes stories we get , the more hope we have :) :)

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Hudgens

I got through it and I'm still fine a year and a half later.

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Tootsieroll

Hudgens thanks for adding to the hope!!! At this point I can't even imagine what 'fine' feels like. I have days where I feel better but symptoms are always rustling in the back and it takes slight exertion or stress to bring it forth. So its good to be reminded that it does end.

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compsports

This may not be what you want to hear but I don't provide updates because I am not doing well.   And to be honest, if you PM me for an update, all you are doing is opening up wounds unintentionally.

 

I have had too many people do what you are doing expecting me to give a glowing report only to be very disappointed when I didn't.  A few people actually argued with my account initially but did come around when I set the record straight.

 

Personally, I would be very cautious about what you are doing.   

 

CS

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Tootsieroll

I haven't done anything yet as I was on the fence and needed to decide if it was the best move. The fact I haven't yet means that i still respect that people need their space away from this. I remain feeling like i initially did, the hope that people come back willingly to share their recovery so that we, the unrecovered, don't have to dig up old grounds that we don't need to. Thanks for letting us know your side of the story.

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Altostrata

But we cannot assume people are not posting because they are doing badly. We simply do not know.

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compsports

I haven't done anything yet as I was on the fence and needed to decide if it was the best move. The fact I haven't yet means that i still respect that people need their space away from this. I remain feeling like i initially did, the hope that people come back willingly to share their recovery so that we, the unrecovered, don't have to dig up old grounds that we don't need to. Thanks for letting us know your side of the story.

Thanks for understanding Tootsieroll.

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compsports

But we cannot assume people are not posting because they are doing badly. We simply do not know.

Correct but my point still stands that if one writes people about how they are doing to be very sensitive to the fact that they might not be doing well.   

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Utahgal

I've been gone a few years because I very successfully got off gabapentin. I just wanted to forget about the whole traumatic experience.

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btdt

 

But we cannot assume people are not posting because they are doing badly. We simply do not know.

Correct but my point still stands that if one writes people about how they are doing to be very sensitive to the fact that they might not be doing well.   

 

I have people how they are in pms many did get back to me I only asked people who had been in wd more then 5-6 years who we had not heard from.  I think they take a look at my signature and when they reply at all they get I have been trying a long time to recover... some kept in touch for a time they say they don't come here too often as they can't find a reason to.  If we find a magic bullet cure I am to send them pms... I hope I can find them again. This is to the people who were not doing well the ones who did reply to me were gracious. There were only 3-4 replies and they were not done healing yet.. maybe the ones who were done were in the South of France with Stan sipping wine and enjoying the sun... imagine... that would be nice... I searched her site trying to find how long the longest person was in protracted I could not find it ... I think it is different if your done in 3 years you have not missed too much of life and bouncing back in may be easier.. but after 3xs that amount it is a different story I think it is at least. Before I hit the wall at 18 months off I would have expected to be one of her success stories it was going just like that in 3 years I surely would have been done had it not been for that wall whatever it was. 

peace all

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Tootsieroll

Thanks for that link! It was so soothing to hear her speak those words. I love her calming voice!

 

Btdt-we will all surely heal but when is so individual. Were the ones 5-6 years out functional in society?

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Christian

I have people how they are in pms many did get back to me I only asked people who had been in wd more then 5-6 years who we had not heard from. I think they take a look at my signature and when they reply at all they get I have been trying a long time to recover... some kept in touch for a time they say they don't come here too often as they can't find a reason to. If we find a magic bullet cure I am to send them pms... I hope I can find them again. This is to the people who were not doing well the ones who did reply to me were gracious. There were only 3-4 replies and they were not done healing yet.. maybe the ones who were done were in the South of France with Stan sipping wine and enjoying the sun... imagine... that would be nice... I searched her site trying to find how long the longest person was in protracted I could not find it ... I think it is different if your done in 3 years you have not missed too much of life and bouncing back in may be easier.. but after 3xs that amount it is a different story I think it is at least. Before I hit the wall at 18 months off I would have expected to be one of her success stories it was going just like that in 3 years I surely would have been done had it not been for that wall whatever it was.

peace all

 

Hey BTDT,

You should try and get a hold of Pug. His thread is impressive.

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btdt

Thanks for that link! It was so soothing to hear her speak those words. I love her calming voice!

 

Btdt-we will all surely heal but when is so individual. Were the ones 5-6 years out functional in society?

 

Define functional?  Working no.  Feeding themselves yes having other problems with money and where are they going to live now they have depleted their resources were common themes. Still struggling with wd symptoms and waves some had health issues they thought were part of taking ADs ... not too cheery but we talked and did our best to keep up a good face.. that time may be the factor.. and it just had not been enough time yet.  They just don't see a reason to be here period. Once in a blue moon one will send me a pm.. it happens less and less. 

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btdt

I just asked  him for an update on his thread.  Why do you think I should contact him?  

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Christian

Read his thread when you have time. He spent 2015 in bad WD while working and improved slowly over the course of the year updating us along the way. I exchanged emails with him in January and he was even doing better. I consider him a success. Piscesrising is another. Uncomfortably Numb is back to work and also doing well. Angie07 I believe is also doing well I think. Just trying to help the cause. Not sure what the criteria is for a success story.

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btdt

Anybody working is a success story to me... 

 

If I could get well enough to do that I would not have time or energy likely to be .. to work you have to be consistently well long enough to get there each day... 

 

I know there are many other things digestion sex happiness but we have to start with a low bar I think and hope for the rest if you can't work the rest is going to be a problem as we all need money to start with. 

 

I will look at them too. 

 

I guess you answering my enquiry about people who had been drugged a long time... maybe... in Pugs case at least. I will check the others.... I am looking for some one like me. 

 

It could be a case of definition... I don't think anybody in bad withdrawal is working.  My definition is can't get up can't walk falling down or feeling like you will from dizziness can't keep food down crapping vomiting the bed tinfoil on the windows.. not moving your eyes cause of brain zaps... ear plugs ... liquid diet for the most part ...easier to clean up too... sweating profusely ... changing the sheets at least once a night no sleep or wake schedule... which improves to 3-4 day runs without any sleep.. going psychotic... that is the bad withdrawal .. we need some terms defined perhaps. Working in bad wd was the last thing on my mind staying alive was what I cared about easing the suffering .. finding out what was wrong with me.. as I was sure I was dying. 

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Christian

Oh I was confused. I thought you wanted folks to write up successes. Those are the ones off the top of my head that did it without meds. I know several that reinstated with other meds to get out of their WD but that's not really a success.

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btdt

Now that I have written down what bad withdrawal was like for me... 

 

it is easy to see improvement for sure.. it has also taken 8 years to get to where I am an inconsistent place of still having some wave like ups and downs. 

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btdt

Oh I was confused. I thought you wanted folks to write up successes. Those are the ones off the top of my head that did it without meds. I know several that reinstated with other meds to get out of their WD but that's not really a success.

 

With meds without meds ... standing on a teeter totter juggling monkeys I don't care.. a success is having your life completely back working is part of that...whatever gets you drug free and free is all fine with me. 

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Christian

BTDT,

 

8 years ? I'm very sorry. May I ask what your lingering symptoms are at this point? What I consider bad WD is when the CNS is effected. Insomnia, crushing fatigue, thick brain fog, tinnitus, akasithia, etc. Some heroically still work (I.e. Shep). When I was in acute WD I had vertigo for 6 months with some increased anxiety. I worked and did OK. I don't consider my acute bad WD. it got much much worse after 6 months and now I consider myself in that category.

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btdt

 Insomnia, crushing fatigue, thick brain fog, tinnitus, akasithia, etc

 

I can have any or all of these at the drop of a hat...even now I would never say newer....

 

 For me this came later in wd...  second year of wd... the first part which likely is CNS disruption to a different degree.... is what I posted as bad wd above... that for me was a solid 3 months with 6 months almost the same... what you consider bad wd is not what I consider bad wd. 

second stage... still after one year

akasithia severe psychotic features... breaks seeing hearing things constant brain zaps... 3-4 days not sleeping ... food reactions... med reactions paradoxical and otherwise.... all bad... supplement reaction especially Bs... wild thoughts... still got dizzy but not as much I could walk all the time not just some times... I would not venture to run but walking became a solid pass time to deal with akasithia

Third year could walk ... brain zaps were more for being startled or if I got sick it would all come back... tooth pain body pain memory problems extreme... still comes now... 

 

we don't have near the same experience is what I can see

 

see my thread.. I came here in 2011... I stopped drugs in 2007 

2008 2009 were write offs.... 2010 was not so hot either... I was 4 years into this when I came here to SA

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Christian

Oh no I wasn't comparing you and I (comparing scars). I didn't list all my symptoms. Just the ones I think are the worst. I don't even have tinnitus and akasithia. I have a dozen or so symptoms. I haven't mentioned on my thread the symptoms that keep me from feeling human. The fatigue, insomnia, fog, and the feeling there is a lack of oxygen flowing to my brain keep me are the constant ones that keep me from working. I'm very sorry you have suffered for so long. This month is my one year anniversary of the horrific decision to quit Lexapro CT. If I could drink alcohol, I would open some champagne. But then again the pop of the bottle would probably jolt my unstable system into a panic attack.

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Christian

I want to emphasize that all symptoms are bad!

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btdt

Oh no I wasn't comparing you and I (comparing scars). I didn't list all my symptoms. Just the ones I think are the worst. I don't even have tinnitus and akasithia. I have a dozen or so symptoms. I haven't mentioned on my thread the symptoms that keep me from feeling human. The fatigue, insomnia, fog, and the feeling there is a lack of oxygen flowing to my brain keep me are the constant ones that keep me from working. I'm very sorry you have suffered for so long. This month is my one year anniversary of the horrific decision to quit Lexapro CT. If I could drink alcohol, I would open some champagne. But then again the pop of the bottle would probably jolt my unstable system into a panic attack.

 

I was not trying to out suffer you not at all I do think we need to have a standard of terms so when we speak to all here it is with some understanding so we don't have to keep going over the terms of what is bad wd.. silly energy sucking things like that. 

 

A year is a good long time... if I could drink I would raise a glass you to you!  Since I can't we can toast with some magnesium supplements.. and an epsom salt bath... ;) I am going to have a bath now. Congratulations on getting to the one year mark this year will be better than the last one. 

 

peace to you

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blazesboylan

Anybody working is a success story to me... 

 

 

I have been working full-time since I started tapering two years ago. I have hardly taken any time off work as a result. Apart from that, I am taking on some post-graduate studies part-time in the autumn. I don't know if I would be considered a success story yet since I am not drug free yet. However, I am definitely going in the right direction. Slowly but surely.

 

I have quite a long way to go I suppose and from what I have been reading here there can be a host of withdrawal issues for a long time after discontinuing completely.  I am feeling quite a bit of fatigue since my last Effexor cut actually. That and more anxiety/depression than usual. However, I think that it may be passing.

 

Ireland are playing Belgium in the European Football Championships today by the way. We need a win!

 

:)  :)  :)

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zandro

Hello,

is there any general belief or scientific proof that once you start taking antidepressants you actually damage the brain and you can't recover form it once you stop?
I don't mean that you will never be OK again but that you actually change how your brain works and you will never be the same person again (if worse or better I don't know ;) )

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Mark

Purhaps... But it seems, brain have a big recovery capabilities.

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