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Tips for tapering off Seroquel (quetiapine)

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ang

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ang

During clinical trials, seizures occurred in 0.5% (20/3490) of patients treated with quetiapine fumarate compared to 0.2% (2/954) on placebo   (That was only one of a lot of other things).  Has woken me up from my drug induced brain coma.  Isn't that one in 200 had seizures??  

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ang

I am having more problems than I thought, now all the other drugs are out of my system seroquol is having a confusing effect on me.  Had to go to 50mg, to sleep, but wake up with a sort of rebounding anxiety.  25 mg was no good, woke up after 4 hours with panic attack.  Will try and stabilize on the 50mg.  Today I can actually get out of the house.  A good day.

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Altostrata

Zuca, I moved your post to start your topic in the Introductions forum

 

 

On 12/18/2014 at 8:23 PM, ang said:
I am having more problems than I thought, now all the other drugs are out of my system seroquol is having a confusing effect on me.  Had to go to 50mg, to sleep, but wake up with a sort of rebounding anxiety.  25 mg was no good, woke up after 4 hours with panic attack.  Will try and stabilize on the 50mg.  Today I can actually get out of the house.  A good day.

 

 

ang, it sounds like you, too, are having a paradoxical reaction to 50mg Seroquel and 25mg Seroquel. Please take this up in your Intro topic.

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Altostrata

ang, I moved your personal discussion to your Intro topic so this topic doesn't go off-track.

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robina

i am on seroquel too. and was on 100mg and cut down to 50mg. i did it luckily at the begining of getting the tablets and cut down by a whole tablet at a time. i was already withdrawing of zyprexia so wouldnt notice the difference as the withdrawels were horrendous. however i'v been stuck on 50mg for months and decided to cut down by a quarter of a tablet per day. i did this for 25day. and went into withdrawel. the pharmacist told me the the seroqel are covered by an enteric coating and by cutting that the tablet was disolving in my upper stomach and i wasnt getting the correct dose.and thats is seemingly why i went into withdrawl. i also had terrible pains in my face and lips. they were burning and felt as if on fire. so i am now on the liquid. i am getting stable agaiin and taking 2.5ml of liquid twice per day as this is equal to 50mg in tablet form. then when i feel stabel again i will stat to cut down to 2ml in the morning and 2.5ml at night for a month and if this goes well i will cut down again. hope this helps. robina.x

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mammaP

Hi Robina, thank you for sharing your experience with us, perhaps you would like to start a topin in introductions 

so we can get to know you?  When you start to taper again we recommend tapering 10% of the current dose

every 4 weeks to avoid withdrawal symptoms. I am glad that you are able to get the liquid as it makes tapering

much easier. 

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RubyTuesday

REQUEST

hi. I am having the devil of a time relocating a page about how to use a digital scale to cut up TABLETS that I saw on here a few seconds ago. i don't know but just maybe the lamictal & seroquel have impaired my brain. would it be possible to put all the info about the techno side of dose reduction on one page? how to use a scale, etc? I am ready to taper off but my pills are too small to cut up any smaller than quarters.

THANK YOU

Ruby

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Satch

Robina. Were you cutting the ir pills. I just truce and got the same thing. Thought it was tardive dyskinesia. Are you in the uk where you got the liquid or was it compounded.

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Cheeky

Hi everyone,

I want to start to reduce my Seraquel , Ive been taking it for 6 months and would like your advice on weather it's okay to drop more then 10% considering I've only been on it for a short time. I was going to reduce the Seraquel to 25mg and then start with my Paxil tappering.

Your advice is appreciated, thanks

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Songbird

Hi everyone,

I want to start to reduce my Seraquel , Ive been taking it for 6 months and would like your advice on weather it's okay to drop more then 10% considering I've only been on it for a short time. I was going to reduce the Seraquel to 25mg and then start with my Paxil tappering.

Your advice is appreciated, thanks

 

Hi Cheeky, I was on Seroquel for a few months back in 2008 and was able to taper off it quite quickly.  I was on 200mg for sleep (unfortunately lower doses did not work for me initially) and switched to the 25mg pills as my dose got lower.  I would cut off about an eighth of one pill, wait a few days until my sleep stabilised, then make another cut.  I think the key is to listen to your body, and adjust your taper accordingly.  I would recommend tapering off the Seroquel completely before beginning your Paxil taper, for two reasons - one, you have not been on it for long, so it will be easier to get off now than when you've been on longer - and two, it is a really nasty drug - don't stay on it longer than you have to.  Seroquel gave me muscle twitches in the legs that lasted for over a year after I was off it.

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Cheeky

Thanks songbird I will give a go and see what happens , when will I know, in a couple of days ?

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Songbird

I noticed a reduction in sleep quality immediately, which improved again after a few days.  The drop was small enough that I could still sleep, it just wasn't such good quality of sleep.  You will need to observe and find your own pattern.  Getting off a drug after only a few months is different to getting off after a long term of use, so the timings and drops needed will vary between individuals. 

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Altostrata

We recommend a 10% decrease per month for anyone taking a drug for more than a month. You might be able to go faster -- you'll have to negotiate that with your own nervous system.

 

If you want to go faster with 10% drops, we suggest intervals of no less than 2 weeks, as withdrawal symptoms have a way of sneaking up on you.

 

If you wish to try smaller decreases more frequently, that might work -- see Micro-taper instead of 10% or 5% decreases

 

You will still need to do this systematically, so you can get a sense of what you can tolerate, as Songbird did.

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Marco

I been on a 1000 mg of Deprakine(Depakote)and 400mg of Seroquel.

I tapered Deprakine successfully by dry cutting to 500mg. Started with Seroquel liquid titration 1mg a day. 120days and 120mg was away smoothly- then whole family got stomach flu and I got to put it back up, after a week tried to take 20mg away and hold but WD was bad and I had to put it back again.

 

Could you please send me a spreed sheet of the best form of tapering?

Is 10% easier than even smaler reductions, something like 5ml per 2 weeks?

Is there recomended amout of time I shoul wait before trying again?

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RubyTuesday

Do you think this 10% rule applies to 25mg of seroquel too?

From my knowledge, at a dose so low it works as an antihistamine as opposed to anti psychotic properties

I tapered faster than 10% from 37.5 mg Seroquel to 12.5. it was rough, very rough.I do NOT recommend it.

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primrose

 

Do you think this 10% rule applies to 25mg of seroquel too?

From my knowledge, at a dose so low it works as an antihistamine as opposed to anti psychotic properties

I tapered faster than 10% from 37.5 mg Seroquel to 12.5. it was rough, very rough.I do NOT recommend it.

 

Hi RubyTuesday

 

What was your starting dose?

How long did you take to taper?

 

My starting dose was 200mg, but I had to come down to 100mg in one go, because my feet and ankles swelled so badly with water retention that i found it difficult to walk.

I hadn't been on 200mg long, so the jump was easy, but i tapered the rest over a good few months, and jumped off at a quarter of a 25mg pill. It didn't feel rough physically, but I think I had a one-off psychotic episode, because, shortly afterwards, I was convinced I owed over £20,000 in taxes as I had not submitted my paperwork for a long time. I got really paranoid and made my self ill over it.

When I eventually did submit my paperwork, I owed something like £20.

My seroquel dose was not an anti-psychotic dose, so I am not sure if this episode was down to the pills. Not even sure if it was psychosis, but psychotic delusion is the only way I can explain being convinced i owed thousands when I didnt.

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RubyTuesday

top dose of Seroquel was 50 mg on an as-needed basis. prescribed for insomnia. (it was really AD wd, undiagnosed.) 2 tabs, 25 mg each. never took less than 25 mg Seroquel every night since Fall 2011. am now taking half that since September 2014. started cutting tabs in quarters, so was essentially reducing by either 1/8th or 1/4 of the dose. had severe depersonalization hitting me like a whack on the head out of nowhere, anxiety, the shakes, lights going on and off, mostly off, etc. Whenever I taper off the remaining 1/2 of a 25 mg tab, I plan to reduce by 5% of the dose at a time. right now working on reducing Lamictal.

hit AD wd, menopause, and mom dying all at once, as well as empty nest syndrome. just didn't understand the WD issue. still have severe morning anxiety and bouts of crying, but over all I feel much better, more clear in the head, am back in school and heading for renewed career plans.

lots of love and hugs to you!!!

Ruby

Edited by Altostrata
deleted table that was unreadable

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RubyTuesday

oops, my table did not copy, I will have to re-do this later.

short version: cut low dose of Seroquel in quarters, making it 1/8 or 1/4 of the dose, over a period of about a year.

back at ya later today..

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Altostrata

Ruby, you may wish to insert your table as a graphic.

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RubyTuesday

ok, no idea how to do that. my son the tech guy has class tonight.

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ang

How is everyone going with their seroquol tapers?  I am finding mine hard to reduce..............

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BipolarNoMo

Hi Ang, I have just started tapering off of my Seroquel.  I was on 50mg for 7 or 8 years, and cut the pill in half a month ago.  I updosed to 47mg two days ago because the anxiety/panic was unmanageable at my job.  We will get through this!  We just need to go really slowly...

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RubyTuesday

I tapered off the lower doses of Seroquel successfully. It took a long time. I used a digital scale, (found a link on this site), my son who was studying chemistry helped me figure out how to use it, I cut into crumbs then weighed them. I found a vitamin supplement program called The Road Back by Jim Harper. I got acupuncture. Even with all of that I still had to wait at least a month in between reductions. But keep the faith, it is worth it. I feel your pain.Seriously. You can do it. It is very difficult, but if I can do it,then you can too.

love & support

RubyTuesday

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lanah

Can I ask to the ones who tapered seroquel at which dosage you jumped? (I know it's different for everyone) But I would like to have an idea. 
Thank you!

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RubyTuesday

I was at 1/2 of 25 mg for about a year, or 12.5 mg. Then I cut it in half to about 6.25 mg for about a month? or 2 or 3? then I cut it in half to approx 3.12 & change for 2 weeks? and then I jumped off. I was using a digital scale at this point.  I knew this was too fast but I was getting severe episodes of muscle cramping and they were increasing so I jumped off. 3 months out I had a bad attack of dystonia and got into the dyskinisia/dystonia from Seroquel lawsuit page on Facebook. It just so happened that I googled "severe muscle cramping from psych meds" the same day that the guy posted the class action lawsuit. He is trying to get enough folks for a class action lawsuit, so go check it out.

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RubyTuesday

I was at 1/2 of 25 mg for about a year, or 12.5 mg. Then I cut it in half to about 6.25 mg for about a month? or 2 or 3? then I cut it in half to approx 3.12 & change for 2 weeks? and then I jumped off. I was using a digital scale at this point.  I knew this was too fast but I was getting severe episodes of muscle cramping and they were increasing so I jumped off. 3 months out I had a bad attack of dystonia and got into the dyskinisia/dystonia from Seroquel lawsuit page on Facebook. It just so happened that I googled "severe muscle cramping from psych meds" the same day that the guy posted the class action lawsuit. He is trying to get enough folks for a class action lawsuit, so go check it out.

Sorry, actually I cut off 1/3 of half the tab to approx 8 mg for a few weeks, then to approx 4 mg, then off. I can go look up the exact schedule in my journals if you want.

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lanah

I'm at 17mgs now, scared of running out off pills because the doctor thinks i'm tapering too slow (and he prescribes monthly have to go back every month) 
I already have a lot of muscle problems and I was a dancer too :( hate what these doctors have done to us. 

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RubyTuesday

so sorry your doc thinks you are tapering too slow, I admit I kind of stockpiled by not telling him/her I was tapering until long after I was, so I had enough

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lanah

So your muscle problems actually got better after quitting the seroquel?  How are you now? 

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RubyTuesday

They did get a lot better initially, as I had had a left joint hip cramp that had become chronic, it cleared up immediately and I was able to take about 30 ballet classes without a recurrence, however I had also had several acupuncture sessions for the hip.

However about 2.5 months out I had a minor fall on the sidewalk and later that day my entire right hip seized up and I was unable to move for about 2 days. Upon reflection I traced every dystonic episode back to some sort of strain that I used to be able to handle, such as pulling weeds, moving furniture, etc. I have now concluded that I have a mild case of episodic dystonia related to such formerly normal demands on my muscles.

I have not bothered to discuss any of this with my doctors. I have absolutely no faith in such people. And absolutely no interest in further meds. Although actually one lady did prescribe magnesium supplements which seem to be helping. Otherwise i do acupuncture, chiropractic and other alternative treatments, and I am doubling up my yoga and meditation practices with the aim of being very careful in my demands on my body unless and until I am completely re-trained and warmed up.

When I take ballet classes I only do the barre exercises and not at all to my former capacity. I have not yet trusted my balance enough to re-engage in the floor work to any degree. The most unfortunate part is that I do not trust my body to re-engage in my former profession of kidcare full time, as the demands on my body can be sudden and urgent in that line of work.

So I am disabled by psych meds and receiving disability for so-called mental illness which I see as disabling me only because of the meds. A real paradox.

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Altostrata

Folks, please take discussions of your particular situations to the Intro forum so this topic will be easier to read for those who want Tips for Tapering off Seroquel. Thank you.

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lanah

Then i make a seroquel topic in the intro forum? I find this a very difficult type of lay out. I thought the intro forum was for intro's? 

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