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RubyJ

RubyJ: tapering off Abilify

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RubyJ

It's been a super long time without an update, but for a good reason; my tapering has been going relatively smoothly.  Some mild symptoms on a few of the steps (recorded in my journal) but nothing serious.  I'm now at 0.10 mg/mL as my signature shows and have been there for over two months because I'm thinking of trying to stop completely soon.  Any symptoms I've had in the last year have been manageable so I think it might go okay.  Thoughts would be appreciated.  Am I jumping the gun?  Should I keep going down to 0.01 where my syringe ends?  Admittedly I feel very ready to be done with this but that's not always the best reason to do something.  Whatever I do, either stop or taper down, I was planning on doing Feb. 1 to get back to easily remembered days again.  Thanks everyone!


Dextroamphetamine 30 mg, started 2011 -- still taking

Paxil 2004-2005

Wellbutrin/Bupropion 300 mg, started 2005 -- still taking

Prozac/Fluoxetine 40 mg, started 2006 -- still taking

Abilify/Aripiprazole 5 mg, started 2014 -- trying to stop starting 2017

  • At 0.5 mg February 2018
  • At 0.2 mg/mL September 2018
  • At 0.18mg/mL October 30, 2018
  • At 0.17mg/mL December 20, 2018
  • At 0.16mg/mL January 10, 2019
  • At 0.15mg/mL February 19, 2019
  • At 0.14mg/mL April 25, 2019
  • At 0.13mg/mL June 22, 2019
  • At 0.12mg/mL August 5, 2019
  • At 0.11mg/mL September 5, 2019
  • At 0.10 mg/mL November 7, 2019
  • At 0.05 mg/mL February 1, 2020
  • Jumped off March 23, 2020

 

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Cleerity

Hi Ruby,

 

It’s very good to read that you made it down to .10 on the Abilify.  Good work!

 

You know that I am not a moderator here, but, like you, when I get to that low of a dose, I will not be inclined to drag it out overly long by continuing 10% reductions of such a very small remaining amount.  
 

I wish you success in what you decide for yourself!  

Best,

 

Cleerity


4/2001 - Clonazepam, .5mg (at bed); 5/2010: 1 mg; Sep. 19, 2018 - .5 mg; Oct. 20, 2018 - .47 mg; Oct 24, 2018 - .5 mg (at bed) and holding

4/2002 - Alprazolam, .25 mg (PRN), up to 2x/day.  Only ever used ~3-5 x/month. Discontinued Alprazolam 10/21/2018
5/2010 - Mirtazapine - 15 mg (at bed)
3/2012 - Aripiprazole - 2 mg (in A.M.) - Began reducing Dec. 30, 2018.  Daily micro-taper by liquid prep.; @ .33 mg/ml as of Aug 20, 2020.

6/2012 - 500 mg  Metformin ER, 2 tabs, 2x/day (currently only taking 1 tab/day, with dinner, as it is all I need to manage my A1C)

Supplements: Multi Vit Calcium / D3, 5000 IU / Vit C, 1000 mg Fish Oil, 1000 IU Magnesium, 200 mg / Probiotic

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Glosmom

Hi Ruby J,

 

We went from .1 to .06 to .025 and jumped to zero for Glo.  You are managing your symptoms well so you might be fine. Glo had withdrawal symptoms at each decrease and for many months after zero....but we were not nearly as careful as you have been.  You could try a decrease to .05 and see how that goes?  If you feel that jump but it settles then you might be good to jump from there??  Best wishes for whatever you decide!! Glosmom


2016 - Oct -Daughter started Risperdal (for steroid induced psychosis that never went away after stopping prednisone)

Nov - dose increases stopped at 1.5mg in Dec

2017 - Jan- weaned from 1.5 to 1.0 in 2 weeks then 1.0 to .5 in two weeks and then off. Feb. 3 weeks of increased psychosis, pacing, insomnia, other awful symptoms so late Feb  - Back on 1.5 mg Risperdal. May  - decrease to 1.25mg, two weeks later 1.0mg - symptoms started again. June - held steady at 1.25mg for 6 weeks and switched to liquid (3 ml syringe). July - started 10% taper every 3 weeks, October -  .8 mg, December - .7 mg .

2018 -Jan- 0.65 mg,  Feb- 0.59,  Mar-0.50, late April - .40mg, July- .36 mg, Aug - switched from 3 mL syringe to 1 mL syringe for more accuracy (her dad and i were not sure we were giving her the same dose when in between the 'dashes' on the 3 mL syringe.) Aug -.30 mg (3mL syr)/.44 mg (1 mL syr) difference due to med in the tip of both syringes). Sept- .28 mg (3mL syr)/.42 mg (1 mL syr). Oct - .16 mg (3 mL syr)/.30 mg (1 mL syr). Nov.- .06mg (3mL syr)/.20 mg (1mLsyr). Dec. - tip only/unmeasurable (3mL syr)/.10 mg (1mLsyr)

2019- Jan -.06 mg (1 mL syr), Feb- .025 mg (1 mL syr), Feb 27, 2019 - jumped to zero!!

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RubyJ
On ‎1‎/‎30‎/‎2020 at 6:27 AM, Cleerity said:

It’s very good to read that you made it down to .10 on the Abilify.  Good work!

 

Thanks <3

 

On ‎1‎/‎30‎/‎2020 at 6:41 AM, Glosmom said:

You could try a decrease to .05 and see how that goes? 

 

That was a great suggestion and it is what I ended up doing. 

 

I went to .05 on the first of February and any side effects have been mild so far.  Today my eye is twitching, which hasn't happened to me since college.  It was a stress thing then, and I wonder if the withdrawal triggers stress symptoms?  One taper down my acid reflux suddenly returned, and that was also initially caused by stress.  *shrug* 


Dextroamphetamine 30 mg, started 2011 -- still taking

Paxil 2004-2005

Wellbutrin/Bupropion 300 mg, started 2005 -- still taking

Prozac/Fluoxetine 40 mg, started 2006 -- still taking

Abilify/Aripiprazole 5 mg, started 2014 -- trying to stop starting 2017

  • At 0.5 mg February 2018
  • At 0.2 mg/mL September 2018
  • At 0.18mg/mL October 30, 2018
  • At 0.17mg/mL December 20, 2018
  • At 0.16mg/mL January 10, 2019
  • At 0.15mg/mL February 19, 2019
  • At 0.14mg/mL April 25, 2019
  • At 0.13mg/mL June 22, 2019
  • At 0.12mg/mL August 5, 2019
  • At 0.11mg/mL September 5, 2019
  • At 0.10 mg/mL November 7, 2019
  • At 0.05 mg/mL February 1, 2020
  • Jumped off March 23, 2020

 

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RubyJ

Quick update:  I'm feeling a bit discouraged because the symptoms have slowly been accumulating, but nothing hugely disruptive yet.  Randomly, my stomach muscles are sore apparently due to stress, which is new and weird.  My emotional symptoms have been much more muted this time, which is also interesting . . . I'm hoping in a few days things will start to subside instead of build.


Dextroamphetamine 30 mg, started 2011 -- still taking

Paxil 2004-2005

Wellbutrin/Bupropion 300 mg, started 2005 -- still taking

Prozac/Fluoxetine 40 mg, started 2006 -- still taking

Abilify/Aripiprazole 5 mg, started 2014 -- trying to stop starting 2017

  • At 0.5 mg February 2018
  • At 0.2 mg/mL September 2018
  • At 0.18mg/mL October 30, 2018
  • At 0.17mg/mL December 20, 2018
  • At 0.16mg/mL January 10, 2019
  • At 0.15mg/mL February 19, 2019
  • At 0.14mg/mL April 25, 2019
  • At 0.13mg/mL June 22, 2019
  • At 0.12mg/mL August 5, 2019
  • At 0.11mg/mL September 5, 2019
  • At 0.10 mg/mL November 7, 2019
  • At 0.05 mg/mL February 1, 2020
  • Jumped off March 23, 2020

 

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Glosmom

Hi @RubyJ I am sorry to hear about the symptoms.  As it has been said often times on this site; it is unreal how, even at the tiniest of dose changes, symptoms can be felt.  Probably a very good thing you are still on your med and didn't jump to zero from .10.  You could consider a small up dose maybe, if they become unbearable?  Or just holding as long as you need to discover how long It takes to all settle out.  When you finally do jump to zero from whatever dose, you will have a good idea of what to expect.  

 

I want to add that when Glo did her drop from .1 to .06 different symptoms seemed to pop up.  She started to have increased issues with nausea and inability to urinate as she had been.  Also her temperature started to fluctuate again.  It seemed that different receptors were being affected or something?  Not sure, but just wanted to send encouragement and healing thoughts your way. Glosmom


2016 - Oct -Daughter started Risperdal (for steroid induced psychosis that never went away after stopping prednisone)

Nov - dose increases stopped at 1.5mg in Dec

2017 - Jan- weaned from 1.5 to 1.0 in 2 weeks then 1.0 to .5 in two weeks and then off. Feb. 3 weeks of increased psychosis, pacing, insomnia, other awful symptoms so late Feb  - Back on 1.5 mg Risperdal. May  - decrease to 1.25mg, two weeks later 1.0mg - symptoms started again. June - held steady at 1.25mg for 6 weeks and switched to liquid (3 ml syringe). July - started 10% taper every 3 weeks, October -  .8 mg, December - .7 mg .

2018 -Jan- 0.65 mg,  Feb- 0.59,  Mar-0.50, late April - .40mg, July- .36 mg, Aug - switched from 3 mL syringe to 1 mL syringe for more accuracy (her dad and i were not sure we were giving her the same dose when in between the 'dashes' on the 3 mL syringe.) Aug -.30 mg (3mL syr)/.44 mg (1 mL syr) difference due to med in the tip of both syringes). Sept- .28 mg (3mL syr)/.42 mg (1 mL syr). Oct - .16 mg (3 mL syr)/.30 mg (1 mL syr). Nov.- .06mg (3mL syr)/.20 mg (1mLsyr). Dec. - tip only/unmeasurable (3mL syr)/.10 mg (1mLsyr)

2019- Jan -.06 mg (1 mL syr), Feb- .025 mg (1 mL syr), Feb 27, 2019 - jumped to zero!!

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RubyJ
On ‎2‎/‎14‎/‎2020 at 2:58 PM, Glosmom said:

Not sure, but just wanted to send encouragement and healing thoughts your way. Glosmom

 

Thank you, that meant a lot :)  The symptoms seemed to have died down now.  I'm going to hold for several more weeks and then I'll have to decide where to go from there. 

 

On ‎2‎/‎14‎/‎2020 at 2:58 PM, Glosmom said:

I want to add that when Glo did her drop from .1 to .06 different symptoms seemed to pop up. 

 

It's really strange how that is.  Almost all my symptoms this time were physical and the emotional side effects were mild or not present.  Very very bizarre.  Maybe different receptors indeed!


Dextroamphetamine 30 mg, started 2011 -- still taking

Paxil 2004-2005

Wellbutrin/Bupropion 300 mg, started 2005 -- still taking

Prozac/Fluoxetine 40 mg, started 2006 -- still taking

Abilify/Aripiprazole 5 mg, started 2014 -- trying to stop starting 2017

  • At 0.5 mg February 2018
  • At 0.2 mg/mL September 2018
  • At 0.18mg/mL October 30, 2018
  • At 0.17mg/mL December 20, 2018
  • At 0.16mg/mL January 10, 2019
  • At 0.15mg/mL February 19, 2019
  • At 0.14mg/mL April 25, 2019
  • At 0.13mg/mL June 22, 2019
  • At 0.12mg/mL August 5, 2019
  • At 0.11mg/mL September 5, 2019
  • At 0.10 mg/mL November 7, 2019
  • At 0.05 mg/mL February 1, 2020
  • Jumped off March 23, 2020

 

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RubyJ

I will admit that one reason I've been thinking of jumping off now is that my bottle of Abilify has expired and I don't want to buy another one; not because of the cost to me, but the cost overall.  The bottles are stupidly expensive (although the pills aren't cheap by any means) and I feel resistant to paying the pharmaceutical company for more of the drug . . . it feels like rewarding them for bad behavior, I guess?  The woman at Walgreen's last fall told me that the reason she couldn't give me any liquid to bridge while the pre-auth was pending was that the bottle cost $1,100 and they couldn't cover that cost.  I shudder to think what the brand name liquid cost if the generic is that much.  It just feels wrong to refill it.

 

I also felt that the physical symptoms I got from the 0.10 mL to 0.05 mL jump were uncomfortable but manageable.  I'm thinking that I might be okay to try jumping off in a couple weeks. 

 

Am I being irrational about refilling the liquid?  I can't really tell since they're my own thought processes.


Dextroamphetamine 30 mg, started 2011 -- still taking

Paxil 2004-2005

Wellbutrin/Bupropion 300 mg, started 2005 -- still taking

Prozac/Fluoxetine 40 mg, started 2006 -- still taking

Abilify/Aripiprazole 5 mg, started 2014 -- trying to stop starting 2017

  • At 0.5 mg February 2018
  • At 0.2 mg/mL September 2018
  • At 0.18mg/mL October 30, 2018
  • At 0.17mg/mL December 20, 2018
  • At 0.16mg/mL January 10, 2019
  • At 0.15mg/mL February 19, 2019
  • At 0.14mg/mL April 25, 2019
  • At 0.13mg/mL June 22, 2019
  • At 0.12mg/mL August 5, 2019
  • At 0.11mg/mL September 5, 2019
  • At 0.10 mg/mL November 7, 2019
  • At 0.05 mg/mL February 1, 2020
  • Jumped off March 23, 2020

 

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RubyJ

Been three weeks since I jumped off.  No symptoms as severe as when I tried to quit at the full dose, but I am still somewhat of an emotional mess.  I'm hoping it will pass within the next week.


Dextroamphetamine 30 mg, started 2011 -- still taking

Paxil 2004-2005

Wellbutrin/Bupropion 300 mg, started 2005 -- still taking

Prozac/Fluoxetine 40 mg, started 2006 -- still taking

Abilify/Aripiprazole 5 mg, started 2014 -- trying to stop starting 2017

  • At 0.5 mg February 2018
  • At 0.2 mg/mL September 2018
  • At 0.18mg/mL October 30, 2018
  • At 0.17mg/mL December 20, 2018
  • At 0.16mg/mL January 10, 2019
  • At 0.15mg/mL February 19, 2019
  • At 0.14mg/mL April 25, 2019
  • At 0.13mg/mL June 22, 2019
  • At 0.12mg/mL August 5, 2019
  • At 0.11mg/mL September 5, 2019
  • At 0.10 mg/mL November 7, 2019
  • At 0.05 mg/mL February 1, 2020
  • Jumped off March 23, 2020

 

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Glosmom

Congratulations @RubyJ!!  Hang in there.  You will have symptoms but hopefully you will find them manageable.  I encourage you to read @rupa taper at the very end.  She jumped to zero a couple times in a month's timeframe due to not tolerating the symptoms after zero well. She up-dosed to a smaller dose than what she jumped off at each time, for a little while (it was days or a week or 2) until she jumped for good finally.  She had symptoms for several months but continued to feel better and better overall.  She was such an inspiration for me to know what to expect for Glo, when she jumped to zero.  

 

You can do this!  Glosmom 

 


2016 - Oct -Daughter started Risperdal (for steroid induced psychosis that never went away after stopping prednisone)

Nov - dose increases stopped at 1.5mg in Dec

2017 - Jan- weaned from 1.5 to 1.0 in 2 weeks then 1.0 to .5 in two weeks and then off. Feb. 3 weeks of increased psychosis, pacing, insomnia, other awful symptoms so late Feb  - Back on 1.5 mg Risperdal. May  - decrease to 1.25mg, two weeks later 1.0mg - symptoms started again. June - held steady at 1.25mg for 6 weeks and switched to liquid (3 ml syringe). July - started 10% taper every 3 weeks, October -  .8 mg, December - .7 mg .

2018 -Jan- 0.65 mg,  Feb- 0.59,  Mar-0.50, late April - .40mg, July- .36 mg, Aug - switched from 3 mL syringe to 1 mL syringe for more accuracy (her dad and i were not sure we were giving her the same dose when in between the 'dashes' on the 3 mL syringe.) Aug -.30 mg (3mL syr)/.44 mg (1 mL syr) difference due to med in the tip of both syringes). Sept- .28 mg (3mL syr)/.42 mg (1 mL syr). Oct - .16 mg (3 mL syr)/.30 mg (1 mL syr). Nov.- .06mg (3mL syr)/.20 mg (1mLsyr). Dec. - tip only/unmeasurable (3mL syr)/.10 mg (1mLsyr)

2019- Jan -.06 mg (1 mL syr), Feb- .025 mg (1 mL syr), Feb 27, 2019 - jumped to zero!!

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rupa

👍

Patience is the key.


Cold turkeyed risperidone (1m.g)and trihexyphenidyl combination drug out of ignorance,In August 2016 after one month use.

Withdrawal symptoms settled at dreamful,disturbing sleep.

Thus introduced to olanzapine for sleep.Started using olanzapine out of ignorance.

Tapering olanzapine 10 m.g from February 2017.

May 2018 :Still suffering dreams,Still tapering olanzapine at 0.625.100ml water+2.5 mg olanzapine. June 2018 22.5ml=0.57mg.July 2018 20ml,August 2018-17.5ml,September 2018-15ml,October 2018 10 ml,December 2018 7 ml, BrassMonkey slide method so far at lower doses.2 nd December cold turkeyed , only to reach minure doses as reinstatement to cutshort endless tapering process.4rth December started 1ml.

Almost no symptoms and sleep is better,So started 0.5 ml from 17-12-2018.

"0"from31-12-18.Re birth would happen from 2020,as rejuvenation would take 2019.

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Cleerity

Sending wishes for peace to you, Ruby!  
 

I’m present at .53 mg with the Aripiprazole now...and, while manageable, I have increasingly noticed a return of feelings/emotions and some anxiety on some days.  Going slow enables me to work on reintegrating the emotions (and other faculties)  that were blunted for the past several years. 
 

I like  Rupa’s advice.  Patience and nurturing  self-compassion are so important for us!  This is always true, but most especially needed when we are riding an emotional roller coaster. 
 

Very best wishes for your wellness,

Cleerity


4/2001 - Clonazepam, .5mg (at bed); 5/2010: 1 mg; Sep. 19, 2018 - .5 mg; Oct. 20, 2018 - .47 mg; Oct 24, 2018 - .5 mg (at bed) and holding

4/2002 - Alprazolam, .25 mg (PRN), up to 2x/day.  Only ever used ~3-5 x/month. Discontinued Alprazolam 10/21/2018
5/2010 - Mirtazapine - 15 mg (at bed)
3/2012 - Aripiprazole - 2 mg (in A.M.) - Began reducing Dec. 30, 2018.  Daily micro-taper by liquid prep.; @ .33 mg/ml as of Aug 20, 2020.

6/2012 - 500 mg  Metformin ER, 2 tabs, 2x/day (currently only taking 1 tab/day, with dinner, as it is all I need to manage my A1C)

Supplements: Multi Vit Calcium / D3, 5000 IU / Vit C, 1000 mg Fish Oil, 1000 IU Magnesium, 200 mg / Probiotic

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RubyJ

Thank you everyone for your support.  It means a lot.

 

On ‎4‎/‎13‎/‎2020 at 1:56 PM, Glosmom said:

You can do this!  Glosmom 

 

I think I finally can let myself believe that!  Thank you <3

 

On ‎4‎/‎14‎/‎2020 at 11:50 PM, rupa said:

Patience is the key.

 

Although I tell myself that again and again, it's so helpful to have that reinforced by others, thank you!

 

On ‎4‎/‎15‎/‎2020 at 1:05 PM, Cleerity said:

Sending wishes for peace to you, Ruby!  
 

I’m present at .53 mg with the Aripiprazole now...and, while manageable, I have increasingly noticed a return of feelings/emotions and some anxiety on some days.

 

Thank you, Cleerity!  I hope you are still having manageable symptoms, and your progress may be slow, but you're so getting there!  Sending you healing wishes as well.

 

---

 

I haven't posted since things have been mostly quiet.  The symptoms have gradually dissipated to where there are times when I have none.  I feel like I will have short periods of time where they recur, though.  I need to re-read about windows and waves because perhaps that's what is going on.  I am hopeful that I am truly almost free of the Abilify!  It's hard for me to truly accept, actually.

 

Now, do I want to try to taper to a lower dose of my other anti-depressants?  Even if I can't get a doctor to agree to take me off completely, I doubt I need the heightened doses I'm on now.  Maybe at my well woman visit in September I'll ask my GP if she knows any psychiatrists she'd recommend that aren't prescription-happy . . .


Dextroamphetamine 30 mg, started 2011 -- still taking

Paxil 2004-2005

Wellbutrin/Bupropion 300 mg, started 2005 -- still taking

Prozac/Fluoxetine 40 mg, started 2006 -- still taking

Abilify/Aripiprazole 5 mg, started 2014 -- trying to stop starting 2017

  • At 0.5 mg February 2018
  • At 0.2 mg/mL September 2018
  • At 0.18mg/mL October 30, 2018
  • At 0.17mg/mL December 20, 2018
  • At 0.16mg/mL January 10, 2019
  • At 0.15mg/mL February 19, 2019
  • At 0.14mg/mL April 25, 2019
  • At 0.13mg/mL June 22, 2019
  • At 0.12mg/mL August 5, 2019
  • At 0.11mg/mL September 5, 2019
  • At 0.10 mg/mL November 7, 2019
  • At 0.05 mg/mL February 1, 2020
  • Jumped off March 23, 2020

 

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Cleerity

 

On 6/24/2020 at 11:56 AM, RubyJ said:

Thank you, Cleerity!  I hope you are still having manageable symptoms, and your progress may be slow, but you're so getting there! 

You are welcome.  Yes, slowly but surely, I am getting there.

 

On 6/24/2020 at 11:56 AM, RubyJ said:

The symptoms have gradually dissipated to where there are times when I have none.

It's great to read this, Ruby!!  Good for you!

 

Best wishes,

Cleerity

 


4/2001 - Clonazepam, .5mg (at bed); 5/2010: 1 mg; Sep. 19, 2018 - .5 mg; Oct. 20, 2018 - .47 mg; Oct 24, 2018 - .5 mg (at bed) and holding

4/2002 - Alprazolam, .25 mg (PRN), up to 2x/day.  Only ever used ~3-5 x/month. Discontinued Alprazolam 10/21/2018
5/2010 - Mirtazapine - 15 mg (at bed)
3/2012 - Aripiprazole - 2 mg (in A.M.) - Began reducing Dec. 30, 2018.  Daily micro-taper by liquid prep.; @ .33 mg/ml as of Aug 20, 2020.

6/2012 - 500 mg  Metformin ER, 2 tabs, 2x/day (currently only taking 1 tab/day, with dinner, as it is all I need to manage my A1C)

Supplements: Multi Vit Calcium / D3, 5000 IU / Vit C, 1000 mg Fish Oil, 1000 IU Magnesium, 200 mg / Probiotic

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