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Tinnitus: What does all that noise mean?

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RealMe
4 hours ago, Survivor1 said:

Hi, I too developed this after dropping off 2.4 mirtazepine (most people taper this amount over 6-12 months).  This was almost 7 months ago.  For me, I had been discontinuing, reinstating, adding drugs in a short amount of time, and I believe this created CNS sensitivity.

 

It has been unremitting, even gotten louder over the last few months.  I am just hoping for the best at this point.

 

James, I do find that I am able to somewhat tune it out as you said above although with the volume increasing, I am finding that harder and harder to do.  In a kind of perverse move, I try not to drown it out with white noise.  I use noise-cancelling headphones sometimes to drown the ambient sounds just to "listen" to it, lol.

 

I do know of others who have seen improvement (freespirit, kara100), so I am hopeful.  It's a horrible symptom for sure. 

 

I hope others who experience it, past or present, chime in with their experience.

 

All the best

I developed tinnitus after upping my dose of Wellbutrin from 150 to 300 mg.  It happened almost immediately.  At the time i was in withdrawal from Abilify and Trintellix and was on a number of different medications prescribed by my psychiatrist.  I have been having some relief by wearing hearing aids, distracting, and telling myself over and over that the noise is not life-threatening or anything to be frightened of.  I cut my coffee down to 3 cups of instant per day.  Too vigorous exercise ramps it up, so I have been trying to take gentle walks in the sun.  As opposed to what I did in the beginning, I now avoid reading anything on the subject except success stories.   When someone tells me it will get better, I try to believe them.

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RealMe
On 12/12/2017 at 6:40 PM, Remeron88 said:

Late last year I went off zoloft completely for around 2 months and reinstated after some insomnia.  I also added remeron for sleep.  I believe going off zoloft sensitized me to substances because after drinking coffee and smoking in march I developed tinnitus, which worsened to random beeping after I again smoked/drank coffee.  I'm barely sleeping/tolerating it and can't afford for it to get worse.  However, I have numerous things I want to do: fish oil, magnesium, running, occasional caffeinated soft drink, spicy food, etc. which I'm afraid made my tinnitus worse recently after months of doing them. Fish oil, magnesium, soft drinks, spicy food affect dopamine and serotonin which is why I'm hesitant to keep doing them (even though it is significantly less so than smoking and coffee).  I also would like to go off remeron and/or risperidone but I think my tinnitus would only worsen.  Among those who have developed tinnitus, have you noticed that any of the above things (fish oil magnesium etc.) made your tinnitus worse?  I'm even hesitant to eat chocolate because it contains caffeine.  Anyone with similar experiences?

 I developed tinnitus in October after upping my dose of Wellbutrin from 150 to 300 mg.  It happened almost immediately.  At the time i was in withdrawal from Abilify and Trintellix and was on a number of different medications prescribed by my psychiatrist.  I have been having some relief by wearing hearing aids, distracting, and telling myself over and over that the noise is not life-threatening or anything to be frightened of.  I cut my coffee down to 3 cups of instant per day.  Too vigorous exercise ramps it up, so I have been trying to take gentle walks in the sun.  As opposed to what I did in the beginning, I now avoid reading anything on the subject except success stories.   When someone tells me it will get better, I try to believe them.

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Survivor1

RealMe,

 

I agree that reading everything about tinnitus is counterproductive.  So many do not find relief and I do not want to know about that, so like you I only read the positive ones.  I hope we eventually find relief as it is a nasty symptom.

 

Best

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Survivor1

Hello Remeron88,

 

To answer your question, I do not have triggers for my tinnitus.  It started immediately after dropping mirtazepine, and continues unabated.  I have used fish oil and mag and did not notice any effects from them.  

 

Unfortunately, I think only time will bring relief ...

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Remeron88

My tinnitus is really harrowing because it involves a sporadic beeping that is very hard to ignore/mask and therefore threatens to prevent me from sleeping.  I wish I just had the ringing alone, but I have both the ringing and the beeping...

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Foggyhead

I have had tinnitus since stopping Lexapro 13 months ago. It waxes and wanes. Lack of sleep and stress makes it worse. Try not to think about it. I have habituated to it for the most part. It gets worse when you are cued into it and start worrying about it. In our cases from what I read is the tinnitus is related to a neurochemical imbalance caused by the drugs that with time will subside. 

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Junglechicken

Yes have it all the time to greater or lesser degree for over 2 yrs now. 

 

It was triggered by Lexapro WD.

 

Stress makes it worse.

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Scorpio

I got tinnitus after a month of taking cipralex/lexapro. I had to increase my dose every three days from 1 drop to 20. I only got to 12 drops as the side effects were too bad. I have had tinnitus ever since. Mine is similar to ships whistles continuously. As others have said it is worse when the anxiety is high, which since w/d and reinstating in July 2017 , has been constant. Fortunately the past few weeks I have some better days when the anxiety lessens and the tinnitus reduces. I try to just ignore it and wear ear plugs at night. 

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cathyfrench

Dear all,

 

I  have constant tinnitus for 8 months now since I stopped Sertraline. I was only 2 weeks on the drug when I got a lot of side effects ( feeling suicidal, agitation, tremors). I had been on several benzos (Xanax, lysanxia, bromazepan and back to xanax) for only 4 months prior to take Sertraline. I had never taken an antidepressant before. A psychiatrist in a psychiatric hospital made me stop Xanax cold turkey and put me on Sertraline so I don't know if my tinnitus is a withdrawal symptom from stopping Xanax cold turkey or stopping sertraline. I got so many side effects from Sertraline that I brought down my dose from 50 mg to 25 mg and then I got plenty of withdrawal effects (hyperacusis, sensitivity to smells, depression,agitation) and my last withdrawal symptoms were PGAD (persistent genital arousal disorder) and tinnitus.  8 months later,  I am off Sertraline and on Xanax during the day and zopiclone at night. I still have tinnitus and PGAD, these symptoms make my life very difficult. 

 

What helps : 

I listen to white noise on  Yutube to help me sleep at night and during the day I avoid to be in silence (I keep my windows open, the sound of nature helps).

I take homeopathy

I see a great  behavioural psychologist who also have tinnitus  and he is teaching me how to cope with it.

I notice that when I am in a wave my tinnitus gets louder (my PGAD also gets worse). So I keep repeating to myself that there will be less and less waves and more and more windows. 

I think acupuncture helps

I see a chiropractor also and she seems to help (for PGAD also). I spoke to a lot of people with tinnitus who assure me that you learn to cope with it with time then you don't really notice it anymore.

Something not to do is to take benzos to help you cope with tinnitus, it will make your withdrawal worse and as a result your tinnitus will spike.

And I keep repeating to myself the wise words from my pharmacist: " It is a  medication side effect, your hearing nerve is not damage, it will go when you will be off all your drugs !"

 

We need to have hope but it is true that tinnitus is really a pain in the ear ! (mine sounds like an old TV and it is in my left ear but it travels Inside the left side of my brain, when I am in a wave,Ialso get ears pains and migraines)

 

I wish you a lot of courage.

 

Take good care 

 

Cathy 

 

 

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RealMe
3 hours ago, cathyfrench said:

I think acupuncture helps

Hi Cathyfrench,

Have you tried acupuncture for your tinnitus?

I've heard that it does not help.

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Remeron88

Yesterday I tried fish oil and my tinnitus worsened in bed.  Is this likely coincidental and have you noticed that tinnitus usually ebbs and flows on its own?  It seems every substance I add to my body has an impact.

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RealMe
21 minutes ago, Remeron88 said:

Yesterday I tried fish oil and my tinnitus worsened in bed.  Is this likely coincidental and have you noticed that tinnitus usually ebbs and flows on its own?  It seems every substance I add to my body has an impact.

Hi Remeron88,

I take magnesium, vitamin d, and fish oil every night around 10 p.m., and I never notice any difference in T afterward.  My T also ebbs and flows, and I cannot seem to correlate anything causative except that heavy exercise and very loud environments definitely spike it.  My ENT said, "some people claim lipo-flavinoids help," but I cannot offer any experience of my own on those.  I tried them briefly but stopped because one of the moderators suggested limiting supplements to magnesium and fish oil.  Like you, I find I am also very sensitive to substances.  That's why I am limiting them while I try to stabilize on the AD.  I know what you are going through, and I can testify that I am definitely coping better than I was at first.  Right now I'm reading Claire Weekes' book, Self Help For Your Nerves.  I am trying to learn how to accept my symptoms as temporary and not react with fearful emotions.  Sometimes, it's like whistling in the dark, hoping somebody comes by with a candle.  I Google success stories, and I go to them for encouragement and coping strategies. I hope and pray you find relief.

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TedDykle

I have the tinnitus after CT lexapro 14 months ago.  Constant from the time I wake up. Diet stress, etc., has no real effect on it.

 

I've learned to live with it and consider it to be one of the more benign WD symptoms.

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BrainDead

Psychiatric drugs are OTOTOXIC, meaning they damage ear cells and parts of the ear and it can effect your hearing and balance.

 

I was on a psych drug cocktail from from January until the end of February.

 

A week after I went off of my cocktail, I started noticing my ears ringing when I would lay down.

 

Then suddenly one morning I woke up a few days later, and I felt this weird dizzy type of feeling where the painting on the wall looked like they were floating around and moving.

 

Ever since that day 9 months ago, I have been experiencing dizziness and vertigo. 

 

I get a sensation as if the whole room is rocking either up and down or side to side when I walk. I get a feeling as if I am on a boat, and sometimes when I lay down or sit it even feels like there is an earthquake if the vertigo becomes intense. also everything always looks like they are moving side to side slightly, as if they are waving side to side slowly..

 

As far as I know, there is no cure for ototoxicity. Just be glad you are not experiencing dizziness and vertigo, because that will leave you disabled and will change your life forever.

 

But I definitely know how annoying Tinnitus is. I've had tinnitus since 2014, and it disappeared in 2016 and started again in March 2017 after stopping psychiatric drugs.

 

I thought it was just tinnitus coming back but unfortunately I developed a balance disorder and can only blame the psyche drugs for it because everything was fine before I took them. 

 

 

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RealMe
On 12/16/2017 at 7:36 PM, Remeron88 said:

Yesterday I tried fish oil and my tinnitus worsened in bed.  Is this likely coincidental and have you noticed that tinnitus usually ebbs and flows on its own?  It seems every substance I add to my body has an impact.

How are you doing?

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Petunia

I've had tinnitus since I stopped taking Lexapro in 2010. I have two separate tones. A medium pitch ringing in the top of my head and a hissing in my right ear. The ringing started first and is constant. The hissing comes and goes.

 

Either the volume has decreased, or I've got used to it. It gets worse at times, but mostly these days I hardly notice it. For me, one of the easier symptoms to deal with, but still annoying at times.

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RealMe
2 hours ago, Petunia said:

I've had tinnitus since I stopped taking Lexapro in 2010. I have two separate tones. A medium pitch ringing in the top of my head and a hissing in my right ear. The ringing started first and is constant. The hissing comes and goes.

 

Either the volume has decreased, or I've got used to it. It gets worse at times, but mostly these days I hardly notice it. For me, one of the easier symptoms to deal with, but still annoying at times.

Dear Petunia,

Can you remember when you started to feel some relief or when you started not noticing it?  I feel so desperate.  It has been non-stop since October, and I need some courage to keep on.

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Bobo32

My tinnitus gets much louder when i lay down to go to sleep or when i wake up in the morning.  Its been like this since i used xanax and lexapro. Is it ear damage ? Does it ever heal ?

anyone knows ? Thank you

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RealMe
On 2/20/2017 at 7:33 PM, Mimi11 said:

I have head noise and tinnitus. The tinnitus comes and goes and mostly notice at night, but the head noise (hard to describe other than that) has been a pretty much constant companion throughout WD. Interestingly enough, it has really lessened in the last couple of weeks, almost imperceptible. I wake up in the morning and my head (brain) is quiet. First time in 16 months. 

Hi Mimi. Is ur tinnitus still gone?  Hope u r well. 

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Mimi11

Hey RealMe,  the tinnitus still comes and goes. It seems worse when I'm tired or stressed I think. And it's honestly more of a head noise than ringing in the ear if that makes any sense at all. How are you doing?

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RealMe
2 hours ago, Mimi11 said:

Hey RealMe,  the tinnitus still comes and goes. It seems worse when I'm tired or stressed I think. And it's honestly more of a head noise than ringing in the ear if that makes any sense at all. How are you doing?

Hi Mimi11,

Mine is still godawful, but sometimes worse than others.  Best in the morning.  Fortunately, I am able to sleep.  Mine is also a head noise although I find loud noises bother me as well.  I have some hearing loss in high frequencies, but the hearing aids make everything louder.  Has your tinnitus improved as you said in your post last year or has it gotten worse since then.  I believe it had been improving?  Thank you for getting back to me.  I can use any support you can give me from your experience.  Congratulations on being drug free for ten months.  That's wonderful, and I hope to be able to do the same at some point. :)

 

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Dalalea
On 11/13/2017 at 9:24 PM, RealMe said:

I wish someone would report success or improvement in tinnitus.

Tinnitus is my constant companion and has gotten worse this month with the flu! I've had a little bit of success with an essential oil blend I created but if I don't use it 3 times a day, it's stays loud and annoying! I sleep with noise from an app at night to distract myself from it. I've had two sets of ear tubes put in in the last eight years so some of it may be structural, but it's really hard to ignore!

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RealMe
12 hours ago, Dalalea said:

Tinnitus is my constant companion and has gotten worse this month with the flu! I've had a little bit of success with an essential oil blend I created but if I don't use it 3 times a day, it's stays loud and annoying! I sleep with noise from an app at night to distract myself from it. I've had two sets of ear tubes put in in the last eight years so some of it may be structural, but it's really hard to ignore!

So sorry you have tinnitus and the flu!  I have become phobic about getting the flu because it's taking all my nerves to cope with tinnitus and my other symptoms.  Lately I've been drinking 2 teaspoons of organic vinegar in a half glass of water three times a day.  I'll try anything but drugs!  What is the oil blend you use that helps?  I try to tell myself that it won't kill me and that I will learn to habituate to it, but so far it's a nightmare.

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Dalalea
1 hour ago, RealMe said:

organic vinegar in a half glass of water three times a day.  I'll try anything but drugs!  What is the oil blend you use that helps?

Hi RealMe!

I have quite a collection of oils that I use with success for different things so if I'm not too foggy, I research and try blends I find in my books or online. I found lavender, patchouli, and helichrysum recommended. The thing I'm not sure of is if part of my tinnitus may be due to fluid in my ears from being sick. I made a little blend of the oils and rub it on my earlobes about 3 times a day and it has helped a bit. I don't notice the ringing as much. I actually have had some ringing for a few years but it got really bad in January when I was sick and hadn't gotten better as I started to recover. It really is maddening!

I always think natural is better, also! I'm very distrustful of medication even though I'm still on some.

Do you use the organic apple cider vinegar like Bragg's? I have some in my cabinet but haven't started using it.

I hope you can find relief!

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RealMe
2 hours ago, Dalalea said:

Do you use the organic apple cider vinegar like Bragg's? I have some in my cabinet but haven't started using it.

I hope you can find relief!

Yes, Braggs is what I use.  I haven't noticed any difference, but I'll keep trying for a while.  I've never done anything with oils.  Don't know how to begin.

 

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Dalalea

I've used oils for lots of other things. I signed up as a distributor for Young Living oils simply so I can get them at a discount, because the good quality ones are more expensive. I don't concentrate on selling them. They have helped me with several other struggles and conditions. I use some to help with depression, allergies, and lots of other things. Recently, I started thinking I could use some of them for my WD symptoms. Now I'm trying to research what I could do to help with that. I was too foggy to have that idea earlier!

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Remeron88

I believe that I acquired tinnitus as a result of going off my SSRI (zoloft) in late 2016.  It didn't occur until a few months later when I was drinking coffee and smoking cigarettes. I had also reinstated my zoloft after 2 months of being off it completely. I believe going off it sensitized my serotonin receptors such that any serotonergic substance (e.g. caffeine and nicotine) set the tinnitus off and again worsened when I smoked/drank coffee again later.  I am also on 2 different serotonin antagonists, risperidone and mirtazapine, when combined with a full dose of zoloft may yield an excess of serotonin in my brain, leading to continual damage over time. 

I have cut out all serotonergic behavior except light exercise and occasional spicy food, yet my tinnitus continues to fluctuate, but has been on a downward trajectory, with the bad to good day ratio growing. 

I have ringing as well as beeping, and I am afraid the latter will soon keep me awake at night.  I am clueless as to whether to reduce my meds to reduce the serotonin in my system, which may indeed worsen my tinnitus rather than improve it.  I am really lost and scared and any advice or support is greatly appreciated. Thank you so much.

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Bobo32

a year since i stopped xanax and ascitalopram.

 

Still tinnitus dont go away.

 

Any supplements that help? 

 

Last blood check i found homocysteine very high in the 20s could it be the cause? Im thinking of supplementing with B vitamins in hope to lower homocysteine and maybe tinnitus will go away

 

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RealMe
On 2/1/2018 at 8:07 PM, Mimi11 said:

Hey RealMe,  the tinnitus still comes and goes. It seems worse when I'm tired or stressed I think. And it's honestly more of a head noise than ringing in the ear if that makes any sense at all. How are you doing?

Not so good today, Mimi11; but I have had a few windows.  Hoping tomorrow will be better.  Hope you are well.  What kind of WD symptoms are you having or hopefully not having anymore of?

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Dalalea
On 2/2/2018 at 9:54 PM, Remeron88 said:

ringing as well as beeping, and I am afraid the latter will soon keep me awake at night.

I sleep best if I keep some sound going in the room from an app on my phone. I let it run all night and it helps me ignore the tinnitus. I hope you can find some relief!

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WackoSirJacko

I've had tinnitus from 2011, it progressively gets worse as hearing degrades as I get older. Sometimes it gets bad and is even louder than the TV. It doesn't really matter whether it was caused by my paroxetine, more likely my djing.

 

What everyone with Tinnitus needs to do is - ACCEPT. Just like we have to with the withdrawal symptoms. 

 

There is no cure and it will go up. down, left, right, squeek, fizz, pop, change tone. But as soon as you stop fearing it, genuinely say in your mind that 'I accept this as part of me and I do not fear it', then it will then gradually cease to be a problem. It's horrendous as long as you fear it and make attempts to quieten, treat, pay attention or give it attention. Don't do anything, don't change diet, don't take anything to help it at all. Go out and enjoy music! Tinnitus, like any other mental issue is disabled by your front brain consciousness telling your subconscious that it isn't a problem. Once that message gets through, your brain WILL sort itself out and ignore it, it then becomes background noise that you pay no or very little attention to.

 

I see my time dealing with Tinnitus as good training for what I'm having to do now to get over this withdrawal. It's all very simply controlling emotions, fears, physical unpleasantness etc.

 

Honestly, once you get it, tinnitus becomes absolutely nothing to you in your life, no matter how loud or obtrusive it gets.

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robcbar1

For you T sufferers, is it possible that the low dose Lamictal I am trying could be making it worse?  I've been taking 5 mg for about 30 days and my T has been increasing week by week.  Or is this just part of my current 3-month WD wave which will get worse before it gets better?   

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JanCarol

Most of what I read about tinnitus talks about "drug induced" as the major cause.  

 

I have been off the drugs now for 2 years, so the toxicity should be gone.

 

I just posted on my thread about tinnitus, here:

4 minutes ago, JanCarol said:

 Unrelenting Tinnitus

 

There are probably a number of contributing factors to my unrelenting tinnitus, which varies from high pitched tones (one in each ear, and a third one in between) and the sound of crickets,  including:

  • an accident as a child which left me nerve damage in my ears - with more damage in my right ear than my left.
  • decades of drugs
  • decades of allergies and sinus troubles
  • heavy metal toxicity?
  • damage to my nervous system?
  • lithium toxicity - damage to liver and/or kidneys?
  • The ever increasing radio waves and EMF that are closing in on my nervous system.  It used to be that a town might have a few cell towers - now we all have smart meters that do stuff all the time, wifi in the house, bluetooth, devices, etc.
  • Noise pollution  

 

Thus far, I have been unable to tie it to events like stress or diet.

 

So when I went to Tasmania recently, I was dismayed to find that the tinnitus was unrelenting in a place where the EMF was better.  There were places where we got out of the car - and there was no sound.  No traffic.  Just the sound of birds.  And my unrelenting tinnitus.  So - maybe it's not about the EMF at home.

 

So - I'm always talking about being curious about symptoms.

 

I confess - this is one symptom that I prefer to distract from, to ignore.  How can I be curious?  It's always there.

 

Then I read this:  Psychology Today - Is Tinnitus Really God?

 

Now there's something to be curious about.

 

Some spiritual teachers see tinnitus as a message from The Greater Self (God, Angels, Spirits, whatever you want to call it) that the receiver is too stubborn to heed.  

 

There is that element of "ignoring," that I mentioned earlier.  One teacher suggested that the Greater Self is surrounding one tightly when there is tinnitus, that there are messages there, lessons, support, teachings.  Others suggest that our lives are so noisy, that we rarely get quiet enough to hear the Voice of God.  Native American teachings suggest that God is only heard in Silence (and that can be confirmed by other teachings, too, such as "The Still, Small Voice").

There are traditions which teach about this symptom as a spiritual call, a need to surrender (oh that's a hard one!), a need for stillness and retreat.

 

So I'm developing a relationship with my tinnitus.  I'm learning to be curious.  When do I notice it most?  Are there messages I need to heed?  How can I adapt to it, what is it asking of me?

 

I've been watching a video series by Michael A. Singer about how our mind is a dangerous place, a big bully, and how we tend to adjust outer things when our mind is bothering us, instead of learning about the inner things to address when our mind is bothering us.  The mind is an inner thing - and yet, we so often address it by looking at outer things (maybe I need to move, or this relationship or job isn't good for me, or maybe a pet would help, or maybe there's a supplement I should try, etc. etc.) - when the real solution lies in addressing the inner distress, not the outer situation.  I'm still learning on this one - but I'm looking at the tinnitus in a new light, with a new angle, a curious perspective.  I'm hoping that it will bring me to a place of compassion for myself, for my ears, for my head - and for those around me.  By having this conversation with my tinnitus, I hope to learn and grow.

 

This has not improved the tinnitus, and it is as unrelenting as ever.  So far, in the conversation, I haven't gotten any answers, but I will be patient and keep asking questions.

 

If anyone else gets into a conversation with their tinnitus, please share what you "hear" and come up with!

 

I'll try and keep y'all posted as well, but this is a process, not an event (and it may be months before my tinnitus engages with me!).

 

 

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ikam

Yes, Jan, curiosity helps. My tinnitus is louder when I cannot deal with the outside related matters. It seems that this is my autonomous nervous system in a type of alert response, but I cannot get it out onto others... It turns inwards... 

So with me I do need to address outside rather than inner turmoil, or both... 

In the Gestalt theory, the anger that cannot be discharged outside, turns against oneself, this is called retroflection... 

Good luck with your approach... 

 

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Ather

Vitamin B-Complex (Neurobion tablets) increases my tinnitus to at least 2X, any other person who faces the same ?

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