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Carmie: accidently doubling up on Seroquel one day while tapering


Carmie

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  • Moderator Emeritus
6 hours ago, Bee5 said:

Hi Carmie,

Just checking in on you. How long since you changed over to liquid? Sorry to hear that you are in a wave. Did you have similar waves after all your dose changes, or is this a particularly bad wave? 

Bee

 

Hi Bee, 

 

Today is day 34 since changing formulation. I’ve been water titrating for years. What I did change was water titrating a manufactured tablet to water titrating a compounded tablet. There was more than likely discrepancies in the measurements between the two. I noticed once that different syringes were quite different in measurements so what I used to what the compounding pharmacy uses can be different. Also when you change from one formulation to another you can go into withdrawals too.

 

I got a 25mg tablet down to 7.5mg. I now use a 7.5mg compounded tablet. I’m just trying to stabilise on it n when I do I’ll will start tapering it. 

 

And yes, I’ve had similar waves after all my doses changes, it’s nothing different.

 

Hope you are doing ok🤗

 

Been on APs, benzos, ADs and opiates, for chronic pain. Had Akathisia in the past that made me suicidal. Still on Seroquel. 2019:➡️ March10=7.25mg ✔️ April17=7.0✔️ June5=6.75✔️ July14=6.50✔️ Aug28=6.25✔️ Oct10=6.20  ✔️ Oct21=6.0✔️ Dec16=5.80 ✔️ 2020➡️ Jan 21=5.60 ✔️ April2=5.40 ✔️ May29=5.20 ✔️ Aug14= 5.0 ✔️Sep29=4.80✔️2021➡️ Jan31=4.60 mg✔️ April24=4.40mg✔️Jul17=4.30mg ✔️ Aug 28=4.20 ✔️ Oct 11=4.15✔️Nov1=4.10 ✔️ Nov21= 4.05✔️ Dec13= 4mg ✔️2022 ➡️ Jan8=3.95✔️ Jan31=3.90✔️ March2=3.85 ✔️ April4=3.80 ✔️ June16=3.75✔️ July26=3.70✔️ Sep2=3.65✔️ Oct21=3.60 ✔️ Dec8=3.55✔️2023➡️ Jan 26=3.50✔️ March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️This is NOT medical advice.Consult your doctor.

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Ok, good to get some validation of my own symptoms. Please keep us updated on when you reach stability.

Sending hugs.

Bee

7 months of prescribed polypharmacy in 2015-2016, including several classes of psych meds.

1st attempt at taper was too fast. 2nd attempt is underway.

1 Mar 2018: 37.5 mg paroxetine, 150 mg lamotrigine, 300 mg quetiapine

1 Oct 2020: 30 mg paroxetine, 150 mg lamotrigine, 37.5 mg quetiapine

15 May 2022: 25 mg paroxetine, 150 mg lamotrigine, 0 mg quetiapine

11 Jan 2024: 20 mg paroxetine, 118.75 mg lamotrigine 

Supplements: Iron, Vit D magnesium glycinate, omega 3

I am not a medical professional. All my posts are my opinions only, based on my experiences.

 

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Hi Carmie, Sorry to hear you got some waves.....but you have such a good attidue and positive thinking. This will be over by time passed and keep distraction with the naturals beach and cute animals to forget all those withdrawals. Hope today is your sunny good day. Take care and hugs.🤗

Mid December 16 lorezapam 1mg and lexapro 5mg

Early April17 updosed lorezapam 2mg, mid Apr17 taper 1.5mg, mid May17-1.25mg, early Jun17- 1mg, mid Jun17-0.75mg, mid July17-0.5mg, End July 17 reduce from 0.4mg, 0.3mg,0.2mg until 0.1mg.lorezapam free on 9 August 2017.

Early Mar17 updosed to Lexapro 10mg , end Mar17 reduced 7.5mg, mid May17 reduced 0.5mg, End Aug17 reduced 2.5mg, early Sep17 -1.5mg, Mid Sept-1mg, End Sept - 0.5mg .lexapro free on 26 September 2017

 

Supplement- omega fish oil and magnesium citrate only.

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  • Moderator Emeritus
2 hours ago, Miracle123 said:

Hi Carmie, Sorry to hear you got some waves.....but you have such a good attidue and positive thinking. This will be over by time passed and keep distraction with the naturals beach and cute animals to forget all those withdrawals. Hope today is your sunny good day. Take care and hugs.🤗

 

Hi Miracle, 

Thanks  for dropping by. Yes, I’m keeping my chin n up today n enjoying looking at the beautiful sunshine n trees. Tomorrow I’m hoping to go to the beach. 

 

Thank u for your kind words, yes I do try my best to stay positive. I don’t have much strength today due to cfs so have been resting most of the day. What brought me great joy today was listening to music. I’m a major music fan too. I’ve got three concerts booked for the future with beautiful friends. 

 

Ive been listening to a lot of Josh Groban today. He’s got an amazing voice n is such a sweet person n he’s really funny too. I’ve seen him concert. I’ve also been watching watching The Good Cop on Netflix with him in it. I’m enjoying that too. He’s so talented, plus super humble.

 

When going through withdrawals i think music, nature and movies/tv shows are amazing things that help me. 

 

Thanks again for dropping by Miracle, you have a real sunshine about you too☀️💚

21 hours ago, Bee5 said:

Ok, good to get some validation of my own symptoms. Please keep us updated on when you reach stability.

Sending hugs.

Bee

 

Hi Bee, 

 

I’ll definitely let you know when I stabilise again. Yes, it’s good to get validation on symptoms. Sometimes we may feel we are the only ones going through what we’re going through but that is not the case. 

 

Sending hugs right back at you🤗

Been on APs, benzos, ADs and opiates, for chronic pain. Had Akathisia in the past that made me suicidal. Still on Seroquel. 2019:➡️ March10=7.25mg ✔️ April17=7.0✔️ June5=6.75✔️ July14=6.50✔️ Aug28=6.25✔️ Oct10=6.20  ✔️ Oct21=6.0✔️ Dec16=5.80 ✔️ 2020➡️ Jan 21=5.60 ✔️ April2=5.40 ✔️ May29=5.20 ✔️ Aug14= 5.0 ✔️Sep29=4.80✔️2021➡️ Jan31=4.60 mg✔️ April24=4.40mg✔️Jul17=4.30mg ✔️ Aug 28=4.20 ✔️ Oct 11=4.15✔️Nov1=4.10 ✔️ Nov21= 4.05✔️ Dec13= 4mg ✔️2022 ➡️ Jan8=3.95✔️ Jan31=3.90✔️ March2=3.85 ✔️ April4=3.80 ✔️ June16=3.75✔️ July26=3.70✔️ Sep2=3.65✔️ Oct21=3.60 ✔️ Dec8=3.55✔️2023➡️ Jan 26=3.50✔️ March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️This is NOT medical advice.Consult your doctor.

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Hi Carmie...yes, those dose changes do make a difference...something that Im sure contributed to my WD issues when the doctor tapered as we used pills and parts of pills and liquid and compounded.

I am getting a new batch of capsules this week...the viibryd and both clonazepam doses so will stabilize on those and then think about a very small taper to see where we are.  

Think about you often as you change doses and taper...take care!💜

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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22 hours ago, Carmie said:

Ive been listening to a lot of Josh Groban today. He’s got an amazing voice n is such a sweet person n he’s really funny too. I’ve seen him concert. I’ve also been watching watching The Good Cop on Netflix with him in it. I’m enjoying that too. He’s so talented, plus super humble.

 

When going through withdrawals i think music, nature and movies/tv shows are amazing things that help

Wooww look like your schedule is fully booking with alots concert with a lots of fun....thats was great and awesome. i hope you enjoyed it and coming back to share with us. Take care and big big hugs from me. 🤗

Mid December 16 lorezapam 1mg and lexapro 5mg

Early April17 updosed lorezapam 2mg, mid Apr17 taper 1.5mg, mid May17-1.25mg, early Jun17- 1mg, mid Jun17-0.75mg, mid July17-0.5mg, End July 17 reduce from 0.4mg, 0.3mg,0.2mg until 0.1mg.lorezapam free on 9 August 2017.

Early Mar17 updosed to Lexapro 10mg , end Mar17 reduced 7.5mg, mid May17 reduced 0.5mg, End Aug17 reduced 2.5mg, early Sep17 -1.5mg, Mid Sept-1mg, End Sept - 0.5mg .lexapro free on 26 September 2017

 

Supplement- omega fish oil and magnesium citrate only.

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  • Moderator Emeritus
8 hours ago, Rabe said:

Hi Carmie...yes, those dose changes do make a difference...something that Im sure contributed to my WD issues when the doctor tapered as we used pills and parts of pills and liquid and compounded.

I am getting a new batch of capsules this week...the viibryd and both clonazepam doses so will stabilize on those and then think about a very small taper to see where we are.  

Think about you often as you change doses and taper...take care!💜

 

Hi Rabe, 

 

Thanks for thinking of me, much appreciated.

 

Hope all goes well with your next batch of compounded tablets. Yes, definitely stabilise on them first before tapering. It must be hard doing it with two different meds at the same time.

 

I only take one medication once a day. I’m going to keep using a 7.5mg compounded capsule n taper that. When I get a script I get it for six months at a time so I will be getting new compounded capsules every six months. I haven’t stabilised yet since changing from water titrating the tablet to doing it with a capsule. Today is day 36 since I changed over. Once I do stabilise I will start tapering again.

 

Let me know how you go with your new batch of compounded capsules, Take care💚

 

5 hours ago, Miracle123 said:

Wooww look like your schedule is fully booking with alots concert with a lots of fun....thats was great and awesome. i hope you enjoyed it and coming back to share with us. Take care and big big hugs from me. 🤗

 

Hi Miracle, 

 

Yes, love my concerts, it helps to have fun things to look forward to when going through withdrawals. I’m still down the Coast at my sister’s place. I’m feeling so numb n anhedonic today but I got on a tram anyway and went to the beach n some other places. It’s weird when you feel really numb. Nevertheless, I still do things, it’s a good distraction.

 

Take care n I hope you found some good distractions too💚

 

 

 

 

Been on APs, benzos, ADs and opiates, for chronic pain. Had Akathisia in the past that made me suicidal. Still on Seroquel. 2019:➡️ March10=7.25mg ✔️ April17=7.0✔️ June5=6.75✔️ July14=6.50✔️ Aug28=6.25✔️ Oct10=6.20  ✔️ Oct21=6.0✔️ Dec16=5.80 ✔️ 2020➡️ Jan 21=5.60 ✔️ April2=5.40 ✔️ May29=5.20 ✔️ Aug14= 5.0 ✔️Sep29=4.80✔️2021➡️ Jan31=4.60 mg✔️ April24=4.40mg✔️Jul17=4.30mg ✔️ Aug 28=4.20 ✔️ Oct 11=4.15✔️Nov1=4.10 ✔️ Nov21= 4.05✔️ Dec13= 4mg ✔️2022 ➡️ Jan8=3.95✔️ Jan31=3.90✔️ March2=3.85 ✔️ April4=3.80 ✔️ June16=3.75✔️ July26=3.70✔️ Sep2=3.65✔️ Oct21=3.60 ✔️ Dec8=3.55✔️2023➡️ Jan 26=3.50✔️ March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️This is NOT medical advice.Consult your doctor.

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  • Moderator Emeritus

Hi everyone, 

 

I’m struggling to think or read much at the moment due to cfs plus withdrawals but I just wanted to say anhedonia n feeling numb during withdrawals really is totally opposite to my personality. I know a lot of you can relate. 

 

I just spent a week down the coast at my sister’s place. I went to the beach which is my happy place n I also did a lot of exploring down the Coast but I was totally numb. So not me. 

 

I love photography n I took some photos but the artistic side of me wasn’t there. It disappeared due to the anhedonia. 

 

I want me to come back. I an extremely creative by nature n it upset me so much that I couldn’t use my creativity. I’m in tears thinking about it.

 

Sending love n hugs to all 💚🤗

Been on APs, benzos, ADs and opiates, for chronic pain. Had Akathisia in the past that made me suicidal. Still on Seroquel. 2019:➡️ March10=7.25mg ✔️ April17=7.0✔️ June5=6.75✔️ July14=6.50✔️ Aug28=6.25✔️ Oct10=6.20  ✔️ Oct21=6.0✔️ Dec16=5.80 ✔️ 2020➡️ Jan 21=5.60 ✔️ April2=5.40 ✔️ May29=5.20 ✔️ Aug14= 5.0 ✔️Sep29=4.80✔️2021➡️ Jan31=4.60 mg✔️ April24=4.40mg✔️Jul17=4.30mg ✔️ Aug 28=4.20 ✔️ Oct 11=4.15✔️Nov1=4.10 ✔️ Nov21= 4.05✔️ Dec13= 4mg ✔️2022 ➡️ Jan8=3.95✔️ Jan31=3.90✔️ March2=3.85 ✔️ April4=3.80 ✔️ June16=3.75✔️ July26=3.70✔️ Sep2=3.65✔️ Oct21=3.60 ✔️ Dec8=3.55✔️2023➡️ Jan 26=3.50✔️ March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️This is NOT medical advice.Consult your doctor.

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P.s. I just wanted to say pleeeease don’t believe that it’s the real you being on meds. I am a real quirky n creative person n I don’t like fitting into a mould, though I have high morals n believe in a Creator.  My belief in a Creator n my faith is one of the things that really keeps me going. I don’t know how I would have survived without my faith. I don’t mention it much here but the one thing that really keeps me going is my faith in my Creator.

 

The last week chilling at my sister’s place helped me to see that anhedonia isn’t me. I looove creation n nature around me but when withdrawals hit with a vengeance I go through severe anxiety to total anhedonia. It made me happy though to be able to play with a python. I looove snakes. I was sad to hear Steve Irwin died. I love his zoo. I remember when his father ran it n it only had snakes n lizards. This year I saw Bindi feed the crocodiles. She’s a sweetheart too.

 

pleeease don’t believe that withdrawals are really you. They aren’t!!!!  Major exclamation marks here !!!!!💚💚💚

 

 

 

 

 

 

 

 

 

Been on APs, benzos, ADs and opiates, for chronic pain. Had Akathisia in the past that made me suicidal. Still on Seroquel. 2019:➡️ March10=7.25mg ✔️ April17=7.0✔️ June5=6.75✔️ July14=6.50✔️ Aug28=6.25✔️ Oct10=6.20  ✔️ Oct21=6.0✔️ Dec16=5.80 ✔️ 2020➡️ Jan 21=5.60 ✔️ April2=5.40 ✔️ May29=5.20 ✔️ Aug14= 5.0 ✔️Sep29=4.80✔️2021➡️ Jan31=4.60 mg✔️ April24=4.40mg✔️Jul17=4.30mg ✔️ Aug 28=4.20 ✔️ Oct 11=4.15✔️Nov1=4.10 ✔️ Nov21= 4.05✔️ Dec13= 4mg ✔️2022 ➡️ Jan8=3.95✔️ Jan31=3.90✔️ March2=3.85 ✔️ April4=3.80 ✔️ June16=3.75✔️ July26=3.70✔️ Sep2=3.65✔️ Oct21=3.60 ✔️ Dec8=3.55✔️2023➡️ Jan 26=3.50✔️ March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️This is NOT medical advice.Consult your doctor.

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4 hours ago, Carmie said:

I’m struggling to think or read much at the moment due to cfs plus withdrawals but I just wanted to say anhedonia n feeling numb during withdrawals really is totally opposite to my personality. I know a lot of you can relate. 

Hi Carmie....Hang in there ...This is just temporary as we all know...but sometimes this really upset me to feel not like a real myself . About the numbness i also faced it the same with whole body numbness or either hands or legs for a while this can related to our nervous system irritability and sensitive. Believe we can do it and reach our goal one day...i feel your pain and suffering. Love and my warmest hugs. 😘 🌞

Mid December 16 lorezapam 1mg and lexapro 5mg

Early April17 updosed lorezapam 2mg, mid Apr17 taper 1.5mg, mid May17-1.25mg, early Jun17- 1mg, mid Jun17-0.75mg, mid July17-0.5mg, End July 17 reduce from 0.4mg, 0.3mg,0.2mg until 0.1mg.lorezapam free on 9 August 2017.

Early Mar17 updosed to Lexapro 10mg , end Mar17 reduced 7.5mg, mid May17 reduced 0.5mg, End Aug17 reduced 2.5mg, early Sep17 -1.5mg, Mid Sept-1mg, End Sept - 0.5mg .lexapro free on 26 September 2017

 

Supplement- omega fish oil and magnesium citrate only.

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  • Moderator Emeritus

Just journaling. Today was another day with feeling numb n anhedonic most of the day. When I woke up I felt a glimpse of joy, though it didn’t last long. 

 

I made myself hop on a bus n I went into the city to run a few errands. I was watching a musician on the Mall for quite a while. He was really good, he was drumming on plumbing pipes n sang. Very entertaining. I find music a great distraction when going through withdrawals. I went to the library too n got a bunch of DVDs. I finished watching The Good Cop on Netflix, enjoyed it. 

 

Pretty braindead. I might just put on a mind numbing DVDs. Good old DVDs n Netflix. Almost finished crocheting a blanket in a friend’s footy colours. 

 

Take care everyone💚

 

 

 

 

Been on APs, benzos, ADs and opiates, for chronic pain. Had Akathisia in the past that made me suicidal. Still on Seroquel. 2019:➡️ March10=7.25mg ✔️ April17=7.0✔️ June5=6.75✔️ July14=6.50✔️ Aug28=6.25✔️ Oct10=6.20  ✔️ Oct21=6.0✔️ Dec16=5.80 ✔️ 2020➡️ Jan 21=5.60 ✔️ April2=5.40 ✔️ May29=5.20 ✔️ Aug14= 5.0 ✔️Sep29=4.80✔️2021➡️ Jan31=4.60 mg✔️ April24=4.40mg✔️Jul17=4.30mg ✔️ Aug 28=4.20 ✔️ Oct 11=4.15✔️Nov1=4.10 ✔️ Nov21= 4.05✔️ Dec13= 4mg ✔️2022 ➡️ Jan8=3.95✔️ Jan31=3.90✔️ March2=3.85 ✔️ April4=3.80 ✔️ June16=3.75✔️ July26=3.70✔️ Sep2=3.65✔️ Oct21=3.60 ✔️ Dec8=3.55✔️2023➡️ Jan 26=3.50✔️ March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️This is NOT medical advice.Consult your doctor.

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  • Moderator Emeritus

Boy withdrawals are weird. I spent a week down the Coast at my sister’s place n I felt totally numb. Nevertheless I went to the beach n I explored around the place. I took photos because I’m a major photoholic n I love photography but felt numb doing it. I did it anyway because photography has been part of my life since way before the digital age. 

 

The weird thing is tonight im looking at some of the photos n can actually feel emotions connected to my photos. Just as well I kept taking them because at the time I was just going through the motions. Yep, coming in n out of anhedonia is very strange. 

 

Good night everyone💚

Been on APs, benzos, ADs and opiates, for chronic pain. Had Akathisia in the past that made me suicidal. Still on Seroquel. 2019:➡️ March10=7.25mg ✔️ April17=7.0✔️ June5=6.75✔️ July14=6.50✔️ Aug28=6.25✔️ Oct10=6.20  ✔️ Oct21=6.0✔️ Dec16=5.80 ✔️ 2020➡️ Jan 21=5.60 ✔️ April2=5.40 ✔️ May29=5.20 ✔️ Aug14= 5.0 ✔️Sep29=4.80✔️2021➡️ Jan31=4.60 mg✔️ April24=4.40mg✔️Jul17=4.30mg ✔️ Aug 28=4.20 ✔️ Oct 11=4.15✔️Nov1=4.10 ✔️ Nov21= 4.05✔️ Dec13= 4mg ✔️2022 ➡️ Jan8=3.95✔️ Jan31=3.90✔️ March2=3.85 ✔️ April4=3.80 ✔️ June16=3.75✔️ July26=3.70✔️ Sep2=3.65✔️ Oct21=3.60 ✔️ Dec8=3.55✔️2023➡️ Jan 26=3.50✔️ March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️This is NOT medical advice.Consult your doctor.

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Hi Carmie, I was searching about anhedonia because mine is killing me right now and I'm having a hard time knowing who I am. Normally I am creative and sensitive to nature and life in general , I used to love drawing and now all that is gone. I'm also having a few hours/minutes of a very distant glimpse of my old self now and then. Thanks so much for posting this words, I needed to hear them so much. 

On 10/4/2018 at 12:21 AM, Carmie said:


pleeease don’t believe that withdrawals are really you. They aren’t!!!!  Major exclamation marks here !!!!!

Wish you can keep feeling better! 

  • Started Taking Cymbalta on Dec 31 2015. Went from 30 mg, up to 120 mg until Oct 2016
  • Oct 2016:  fast tapered per doctor's instructions,  in just 2 weeks went from 120 to 90 to 60 mg 
  • CT from 60 mg to 0 and then reinstated after 3 days, then found the 10% method.
  • Tapering since October 2016, lowering by 10% of dose reductions (of original dose which was too fast)
  • May 2017: 7.2 mg/day
  • Nov 2017: 2.7 mg/day  tapered to fast, took a rest
  • Jan 2018: started reducing 2 pellets per month (took more than a month if needed)
  • August 2018: 1.8 mg/day  (10 pellets left)
  • September 2018: 9 pellets left
  • January 2019: 5 pellets left(reducing 1 pellet per month)
  • June 25 2019: last bead taken
  • Forever Free!!!
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6 hours ago, PapayaShake said:

Hi Carmie, I was searching about anhedonia because mine is killing me right now and I'm having a hard time knowing who I am. Normally I am creative and sensitive to nature and life in general , I used to love drawing and now all that is gone. I'm also having a few hours/minutes of a very distant glimpse of my old self now and then. Thanks so much for posting this words, I needed to hear them so much. 

Wish you can keep feeling better! 

 

Hi Papaya, 

 

Yes, anhedonia certainly is no fun, but I remember someone writing on here that it is a defence mechanism. Please don’t stop doing your art n the things you love. I still keep doing the things I love even when I’m totally numb. 

 

Continue to go out in nature n keep drawing. I’m creative like you, n if nothing else, continuing to be creative is a good distraction when going through waves. I have a “happy wall” in my bedroom where I put my art n anything that makes me smile. I love balloons so they are always there as well. Continue to make art n put it somewhere you can look at it. It is nice when I wake up in the morning to see my wall. I have got positive sayings on there too.

 

Take care n be creative anyway💚

 

 

 

 

Been on APs, benzos, ADs and opiates, for chronic pain. Had Akathisia in the past that made me suicidal. Still on Seroquel. 2019:➡️ March10=7.25mg ✔️ April17=7.0✔️ June5=6.75✔️ July14=6.50✔️ Aug28=6.25✔️ Oct10=6.20  ✔️ Oct21=6.0✔️ Dec16=5.80 ✔️ 2020➡️ Jan 21=5.60 ✔️ April2=5.40 ✔️ May29=5.20 ✔️ Aug14= 5.0 ✔️Sep29=4.80✔️2021➡️ Jan31=4.60 mg✔️ April24=4.40mg✔️Jul17=4.30mg ✔️ Aug 28=4.20 ✔️ Oct 11=4.15✔️Nov1=4.10 ✔️ Nov21= 4.05✔️ Dec13= 4mg ✔️2022 ➡️ Jan8=3.95✔️ Jan31=3.90✔️ March2=3.85 ✔️ April4=3.80 ✔️ June16=3.75✔️ July26=3.70✔️ Sep2=3.65✔️ Oct21=3.60 ✔️ Dec8=3.55✔️2023➡️ Jan 26=3.50✔️ March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️This is NOT medical advice.Consult your doctor.

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Hi one n all, How are we all doing today?

 

Was just pondering that when our nervous systems are so wrecked, being on the Internet all the time isn’t good for them, though at the same time when waves are bad it can be a good distraction. I love watching YouTube videos. 

 

I remember playing hours of Words With Friends. My eyesight got worse during that time though. Myopia is reversible though, a lot of people have reversed it, check out Jake Steiner. I need to start doing things for my eyesight. 

 

I got rid of Facebook but I still have Instagram as I love photography but only connect with friends there. I don’t understand why people have millions of followers they don’t even know???? I read that a lot of people get extremely stressed with social media but the friends I connect with on Instagram actually brighten my day. I see them in real life too. 

 

If social media stresses you get rid of it, you have enough stress in your life with withdrawals.

 

I think I still spend too much time on my iPad doing different things. Balance is the key. 

 

Thinking of you all in this horrendous struggle called withdrawals. No one understands unless they’re going through it. 

 

Sending hugs🤗🤗🤗

 

 

Been on APs, benzos, ADs and opiates, for chronic pain. Had Akathisia in the past that made me suicidal. Still on Seroquel. 2019:➡️ March10=7.25mg ✔️ April17=7.0✔️ June5=6.75✔️ July14=6.50✔️ Aug28=6.25✔️ Oct10=6.20  ✔️ Oct21=6.0✔️ Dec16=5.80 ✔️ 2020➡️ Jan 21=5.60 ✔️ April2=5.40 ✔️ May29=5.20 ✔️ Aug14= 5.0 ✔️Sep29=4.80✔️2021➡️ Jan31=4.60 mg✔️ April24=4.40mg✔️Jul17=4.30mg ✔️ Aug 28=4.20 ✔️ Oct 11=4.15✔️Nov1=4.10 ✔️ Nov21= 4.05✔️ Dec13= 4mg ✔️2022 ➡️ Jan8=3.95✔️ Jan31=3.90✔️ March2=3.85 ✔️ April4=3.80 ✔️ June16=3.75✔️ July26=3.70✔️ Sep2=3.65✔️ Oct21=3.60 ✔️ Dec8=3.55✔️2023➡️ Jan 26=3.50✔️ March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️This is NOT medical advice.Consult your doctor.

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Okay, I’m on a roll today. I just really wanted to say pleeeeeease continue to do the things you love even if you’re anhedonic or numb or are in high anxiety. You may not enjoy these things at the moment but just continue to do them anyway, at best they are a distraction.

 

Okay, time for me to stay off the Internet for the rest of the day. The Internet is a great distraction but also not good for the nervous system. How does one find balance??? I’m still working it out. 

 

Sending everyone big, big hugs🤗🤗🤗🤗🤗

 

Been on APs, benzos, ADs and opiates, for chronic pain. Had Akathisia in the past that made me suicidal. Still on Seroquel. 2019:➡️ March10=7.25mg ✔️ April17=7.0✔️ June5=6.75✔️ July14=6.50✔️ Aug28=6.25✔️ Oct10=6.20  ✔️ Oct21=6.0✔️ Dec16=5.80 ✔️ 2020➡️ Jan 21=5.60 ✔️ April2=5.40 ✔️ May29=5.20 ✔️ Aug14= 5.0 ✔️Sep29=4.80✔️2021➡️ Jan31=4.60 mg✔️ April24=4.40mg✔️Jul17=4.30mg ✔️ Aug 28=4.20 ✔️ Oct 11=4.15✔️Nov1=4.10 ✔️ Nov21= 4.05✔️ Dec13= 4mg ✔️2022 ➡️ Jan8=3.95✔️ Jan31=3.90✔️ March2=3.85 ✔️ April4=3.80 ✔️ June16=3.75✔️ July26=3.70✔️ Sep2=3.65✔️ Oct21=3.60 ✔️ Dec8=3.55✔️2023➡️ Jan 26=3.50✔️ March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️This is NOT medical advice.Consult your doctor.

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15 minutes ago, Carmie said:

Okay, I’m on a roll today. I just really wanted to say pleeeeeease continue to do the things you love even if you’re anhedonic or numb or are in high anxiety. You may not enjoy these things at the moment but just continue to do them anyway, at best they are a distraction.

 

Okay, time for me to stay off the Internet for the rest of the day. The Internet is a great distraction but also not good for the nervous system. How does one find balance??? I’m still working it out. 

 

Sending everyone big, big hugs🤗🤗🤗🤗🤗

 

 

I'm happy to hear you are doing well Carmie. Can you post some creative photos you took? 🙂

2010 to 2011 : Seroquel XR 400

2011 to 2017 : Seroquel XR 350
July 2017 to September 2017: Seroquel XR 300
September 2017 To January 2018: Bouncing Between Seroquel XR 300 to 200 XR
January 2018 to June 2018: Stabilized on Seroquel 200 XR

20/6/2018 - Switching from Seroquel XR to Seroquel 200 IR in order to continue the tapering. didn't work well, back to 200mg XR after a few days

8/2018 - Changed my dose to Seroquel 150mg XR +50mg IR

9/2018 - Tapered my dose to Seroquel 100mg XR +75mg IR

10/2018 - Tapered my dose to Seroquel 50mg XR +100mg IR

15/10/2018 Seroquel IR 125 mg at 9PM and 25 mg IR  at 9AM

11/2018 Seroquel IR 125 mg at 9PM and 12.5 mg IR at 9AM

12/2018 Seroquel 50mg XR +100mg IR At night

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9 minutes ago, quetiapineAddict said:

 

I'm happy to hear you are doing well Carmie. Can you post some creative photos you took? 🙂

 

Hi QA, 

 

 I’m not computer savvy enough to figure out how to show my photography on here. 

 

Im struggling like everyone on here but somehow I keep taking photos even when I’m totally anhedonic or have high anxiety. 

 

Okay, time now to get off the  Internet for the eve. Thanks for dropping by QA. I struggle to figure out how much time to spend  on the Internet. It’s a good distraction but at the same time not great for my nervous system. Here’s to figuring out balance. 

 

Hope youre coping okay n will chat soon, bye for now, sending hugs🤗🤗🤗

Been on APs, benzos, ADs and opiates, for chronic pain. Had Akathisia in the past that made me suicidal. Still on Seroquel. 2019:➡️ March10=7.25mg ✔️ April17=7.0✔️ June5=6.75✔️ July14=6.50✔️ Aug28=6.25✔️ Oct10=6.20  ✔️ Oct21=6.0✔️ Dec16=5.80 ✔️ 2020➡️ Jan 21=5.60 ✔️ April2=5.40 ✔️ May29=5.20 ✔️ Aug14= 5.0 ✔️Sep29=4.80✔️2021➡️ Jan31=4.60 mg✔️ April24=4.40mg✔️Jul17=4.30mg ✔️ Aug 28=4.20 ✔️ Oct 11=4.15✔️Nov1=4.10 ✔️ Nov21= 4.05✔️ Dec13= 4mg ✔️2022 ➡️ Jan8=3.95✔️ Jan31=3.90✔️ March2=3.85 ✔️ April4=3.80 ✔️ June16=3.75✔️ July26=3.70✔️ Sep2=3.65✔️ Oct21=3.60 ✔️ Dec8=3.55✔️2023➡️ Jan 26=3.50✔️ March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️This is NOT medical advice.Consult your doctor.

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Just documenting that today is day 40 since changing from water titrating a tablet to water titrating a compounded capsule. Still in a windows n waves situation. 

 

Spent the day distracting myself, knitting, reading n watching YouTube videos. 

 

Tomorrow is yet another day. 

 

Hang in there everyone💚

 

 

Been on APs, benzos, ADs and opiates, for chronic pain. Had Akathisia in the past that made me suicidal. Still on Seroquel. 2019:➡️ March10=7.25mg ✔️ April17=7.0✔️ June5=6.75✔️ July14=6.50✔️ Aug28=6.25✔️ Oct10=6.20  ✔️ Oct21=6.0✔️ Dec16=5.80 ✔️ 2020➡️ Jan 21=5.60 ✔️ April2=5.40 ✔️ May29=5.20 ✔️ Aug14= 5.0 ✔️Sep29=4.80✔️2021➡️ Jan31=4.60 mg✔️ April24=4.40mg✔️Jul17=4.30mg ✔️ Aug 28=4.20 ✔️ Oct 11=4.15✔️Nov1=4.10 ✔️ Nov21= 4.05✔️ Dec13= 4mg ✔️2022 ➡️ Jan8=3.95✔️ Jan31=3.90✔️ March2=3.85 ✔️ April4=3.80 ✔️ June16=3.75✔️ July26=3.70✔️ Sep2=3.65✔️ Oct21=3.60 ✔️ Dec8=3.55✔️2023➡️ Jan 26=3.50✔️ March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️This is NOT medical advice.Consult your doctor.

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On 10/4/2018 at 7:20 PM, Miracle123 said:

 

Hi Carmie....Hang in there ...This is just temporary as we all know...but sometimes this really upset me to feel not like a real myself . About the numbness i also faced it the same with whole body numbness or either hands or legs for a while this can related to our nervous system irritability and sensitive. Believe we can do it and reach our goal one day...i feel your pain and suffering. Love and my warmest hugs. 😘 🌞

 

Hi Miracle, 

 

I just realised I didn’t reply to your message. Thanks for popping by. I’m sorry you get numbness in your hands n legs. I don’t get numbness in my extremities as such but I get tingling n vibrations n when I’m real bad I get akathisia. Fortunately I don’t have akathisia at the moment even though I’m in a windows n waves situation. Akathisia makes you want to die. 

 

Our symptoms change all the time though n numbness in my extremities might be another symptom I can get in the future😀. I don’t know why I’m laughing but this journey is soooo ridiculous. We don’t know what will hit from one second to the next. 

 

Yes, it feels weird when one has anhedonia. I have had depersonalisation for nearly 24 years due to cfs, everything around me seems surreal, like I’m not really here. Nevertheless, I could still experience some joy a lot of the time. The whole week down my sister’s place I was totally numb. Today I actually have some emotion back. Let’s see what tomorrow brings. This is quite a journey, isn’t it Miracle. 

 

Wishing you lots of Sunshine☀️☀️☀️☀️

Been on APs, benzos, ADs and opiates, for chronic pain. Had Akathisia in the past that made me suicidal. Still on Seroquel. 2019:➡️ March10=7.25mg ✔️ April17=7.0✔️ June5=6.75✔️ July14=6.50✔️ Aug28=6.25✔️ Oct10=6.20  ✔️ Oct21=6.0✔️ Dec16=5.80 ✔️ 2020➡️ Jan 21=5.60 ✔️ April2=5.40 ✔️ May29=5.20 ✔️ Aug14= 5.0 ✔️Sep29=4.80✔️2021➡️ Jan31=4.60 mg✔️ April24=4.40mg✔️Jul17=4.30mg ✔️ Aug 28=4.20 ✔️ Oct 11=4.15✔️Nov1=4.10 ✔️ Nov21= 4.05✔️ Dec13= 4mg ✔️2022 ➡️ Jan8=3.95✔️ Jan31=3.90✔️ March2=3.85 ✔️ April4=3.80 ✔️ June16=3.75✔️ July26=3.70✔️ Sep2=3.65✔️ Oct21=3.60 ✔️ Dec8=3.55✔️2023➡️ Jan 26=3.50✔️ March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️This is NOT medical advice.Consult your doctor.

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On 10/6/2018 at 12:06 AM, PapayaShake said:

Hi Carmie, I was searching about anhedonia because mine is killing me right now and I'm having a hard time knowing who I am. Normally I am creative and sensitive to nature and life in general , I used to love drawing and now all that is gone. I'm also having a few hours/minutes of a very distant glimpse of my old self now and then. Thanks so much for posting this words, I needed to hear them so much. 

Wish you can keep feeling better! 

 

Hi Papaya, 

 

Thanks for dropping by, yes anhedonia is a horrible symptom but it is a bit of a protection from what I’ve read. Our brains are trying hard to heal n if we are feeling anhedonic it is better than being in severe anxiety. I go from one extreme to the next. Today I’ve felt a bit a joy but my anxiety was sky high this morning, I was in a wave most of the morning but I’m not too bad tonight. 

 

As I mentioned to Miracle above, I have had depersonalisation for nearly twenty four years due to my illness, so everything around me feels surreal, it’s like I’m looking through Vaseline, like I’m not really here. I could never explain that to other people, except to friends that have CFS as well. I’m thinking that some people that go through withdrawals have the same thing from what I’ve read. 

 

How have you been dong Papaya? I’m soooo sorry you have anhedonia most of the time. You will heal. It may take a long time, but it will go in the end. All symptoms of withdrawals will go in the end. 

 

Sending you big hugs🤗

 

 

Been on APs, benzos, ADs and opiates, for chronic pain. Had Akathisia in the past that made me suicidal. Still on Seroquel. 2019:➡️ March10=7.25mg ✔️ April17=7.0✔️ June5=6.75✔️ July14=6.50✔️ Aug28=6.25✔️ Oct10=6.20  ✔️ Oct21=6.0✔️ Dec16=5.80 ✔️ 2020➡️ Jan 21=5.60 ✔️ April2=5.40 ✔️ May29=5.20 ✔️ Aug14= 5.0 ✔️Sep29=4.80✔️2021➡️ Jan31=4.60 mg✔️ April24=4.40mg✔️Jul17=4.30mg ✔️ Aug 28=4.20 ✔️ Oct 11=4.15✔️Nov1=4.10 ✔️ Nov21= 4.05✔️ Dec13= 4mg ✔️2022 ➡️ Jan8=3.95✔️ Jan31=3.90✔️ March2=3.85 ✔️ April4=3.80 ✔️ June16=3.75✔️ July26=3.70✔️ Sep2=3.65✔️ Oct21=3.60 ✔️ Dec8=3.55✔️2023➡️ Jan 26=3.50✔️ March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️This is NOT medical advice.Consult your doctor.

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25 minutes ago, Carmie said:

Our symptoms change all the time though n numbness in my extremities might be another symptom I can get in the future😀. I don’t know why I’m laughing but this journey is soooo ridiculous. We don’t know what will hit from one second to the next. 

Hi Carmie, its ok....not a big deal. These 2 days i never log in SA because busy with my daily work and some small matter. Even though im in waves...i feel uncomfortable or moody....i have to going my daily task without much thinking about it.

im agreed and understand much.....so ridiculous about this crazy journey really wanna made me laughing unbelievable....

34 minutes ago, Carmie said:

Today I actually have some emotion back. Let’s see what tomorrow brings. This is quite a journey, isn’t it Miracle. 

im so happy you have your emotional back....and i really love to talk with you when im really in moody. You such a warm caring person.We all understand well about this journey and waiting inside tunnel to hope to see a light one day. Love and wishing you too a lots of sunshine.☀️☀️🤗

Mid December 16 lorezapam 1mg and lexapro 5mg

Early April17 updosed lorezapam 2mg, mid Apr17 taper 1.5mg, mid May17-1.25mg, early Jun17- 1mg, mid Jun17-0.75mg, mid July17-0.5mg, End July 17 reduce from 0.4mg, 0.3mg,0.2mg until 0.1mg.lorezapam free on 9 August 2017.

Early Mar17 updosed to Lexapro 10mg , end Mar17 reduced 7.5mg, mid May17 reduced 0.5mg, End Aug17 reduced 2.5mg, early Sep17 -1.5mg, Mid Sept-1mg, End Sept - 0.5mg .lexapro free on 26 September 2017

 

Supplement- omega fish oil and magnesium citrate only.

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3 minutes ago, Miracle123 said:

Hi Carmie, its ok....not a big deal. These 2 days i never log in SA because busy with my daily work and some small matter. Even though im in waves...i feel uncomfortable or moody....i have to going my daily task without much thinking about it.

im agreed and understand much.....so ridiculous about this crazy journey really wanna made me laughing unbelievable....

im so happy you have your emotional back....and i really love to talk with you when im really in moody. You such a warm caring person.We all understand well about this journey and waiting inside tunnel to hope to see a light one day. Love and wishing you too a lots of sunshine.☀️☀️🤗

 

Hi again Miracle, 

 

Im sorry you’re feeling moody but I’m glad you’re keeping occupied as it’s a good distraction. Thank you for your kind words too, you are a sweetheart. 

 

Yes, it’s nice when one feels some emotions popping through the anhedonia. I’m off to bed in a minute. Goodnight, and here’s to dreaming of seeing the end of that tunnel😀💚😴😴

Been on APs, benzos, ADs and opiates, for chronic pain. Had Akathisia in the past that made me suicidal. Still on Seroquel. 2019:➡️ March10=7.25mg ✔️ April17=7.0✔️ June5=6.75✔️ July14=6.50✔️ Aug28=6.25✔️ Oct10=6.20  ✔️ Oct21=6.0✔️ Dec16=5.80 ✔️ 2020➡️ Jan 21=5.60 ✔️ April2=5.40 ✔️ May29=5.20 ✔️ Aug14= 5.0 ✔️Sep29=4.80✔️2021➡️ Jan31=4.60 mg✔️ April24=4.40mg✔️Jul17=4.30mg ✔️ Aug 28=4.20 ✔️ Oct 11=4.15✔️Nov1=4.10 ✔️ Nov21= 4.05✔️ Dec13= 4mg ✔️2022 ➡️ Jan8=3.95✔️ Jan31=3.90✔️ March2=3.85 ✔️ April4=3.80 ✔️ June16=3.75✔️ July26=3.70✔️ Sep2=3.65✔️ Oct21=3.60 ✔️ Dec8=3.55✔️2023➡️ Jan 26=3.50✔️ March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️This is NOT medical advice.Consult your doctor.

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2 minutes ago, Carmie said:

 

Hi again Miracle, 

 

Im sorry you’re feeling moody but I’m glad you’re keeping occupied as it’s a good distraction. Thank you for your kind words too, you are a sweetheart. 

 

Yes, it’s nice when one feels some emotions popping through the anhedonia. I’m off to bed in a minute. Goodnight, and here’s to dreaming of seeing the end of that tunnel😀💚😴😴

Yup....Goodnite and have a sweet dream.. 😪

Mid December 16 lorezapam 1mg and lexapro 5mg

Early April17 updosed lorezapam 2mg, mid Apr17 taper 1.5mg, mid May17-1.25mg, early Jun17- 1mg, mid Jun17-0.75mg, mid July17-0.5mg, End July 17 reduce from 0.4mg, 0.3mg,0.2mg until 0.1mg.lorezapam free on 9 August 2017.

Early Mar17 updosed to Lexapro 10mg , end Mar17 reduced 7.5mg, mid May17 reduced 0.5mg, End Aug17 reduced 2.5mg, early Sep17 -1.5mg, Mid Sept-1mg, End Sept - 0.5mg .lexapro free on 26 September 2017

 

Supplement- omega fish oil and magnesium citrate only.

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Hi Carmie,

 

I feel like you and I are riding out this change together: you your quetiapine formulation change and me my paroxetine formulation change. It is so frustrating to hold, because I don't know when I will stabilise. I am on 6 weeks since the formulation change, and holding. In your experience, how many weeks does it usually take you to stabilise?

Glad you went to the sea, it is also my happy place. 

 

Hugs,

Bee

7 months of prescribed polypharmacy in 2015-2016, including several classes of psych meds.

1st attempt at taper was too fast. 2nd attempt is underway.

1 Mar 2018: 37.5 mg paroxetine, 150 mg lamotrigine, 300 mg quetiapine

1 Oct 2020: 30 mg paroxetine, 150 mg lamotrigine, 37.5 mg quetiapine

15 May 2022: 25 mg paroxetine, 150 mg lamotrigine, 0 mg quetiapine

11 Jan 2024: 20 mg paroxetine, 118.75 mg lamotrigine 

Supplements: Iron, Vit D magnesium glycinate, omega 3

I am not a medical professional. All my posts are my opinions only, based on my experiences.

 

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18 hours ago, Bee5 said:

Hi Carmie,

 

I feel like you and I are riding out this change together: you your quetiapine formulation change and me my paroxetine formulation change. It is so frustrating to hold, because I don't know when I will stabilise. I am on 6 weeks since the formulation change, and holding. In your experience, how many weeks does it usually take you to stabilise?

Glad you went to the sea, it is also my happy place. 

 

Hugs,

Bee

 

Hi Bee, 

 

Yes, it does look like we are riding out this change together🙃. There is never any way of knowing when one stabilises, withdrawals aren’t linear, they are all over the place n everyone is different n every taper and change is different.

 

We all want to know when we will stabilise after each change but there is no way of knowing. Just take a moment at a time n distract yourself. Don’t keep thinking according to a calendar. Live a moment at a time n try n find things that you like to do even if you feel shocking or anhedonic. 

 

Stressing about when one is going to stabilise just adds more stress. We all get stressed in waves but it’s best to just keep distracting oneself n know that eventually a window will come again. They always do, we just don’t know when.

 

It’s not easy but here’s to taking a moment at a time. 

 

Take care💚

Been on APs, benzos, ADs and opiates, for chronic pain. Had Akathisia in the past that made me suicidal. Still on Seroquel. 2019:➡️ March10=7.25mg ✔️ April17=7.0✔️ June5=6.75✔️ July14=6.50✔️ Aug28=6.25✔️ Oct10=6.20  ✔️ Oct21=6.0✔️ Dec16=5.80 ✔️ 2020➡️ Jan 21=5.60 ✔️ April2=5.40 ✔️ May29=5.20 ✔️ Aug14= 5.0 ✔️Sep29=4.80✔️2021➡️ Jan31=4.60 mg✔️ April24=4.40mg✔️Jul17=4.30mg ✔️ Aug 28=4.20 ✔️ Oct 11=4.15✔️Nov1=4.10 ✔️ Nov21= 4.05✔️ Dec13= 4mg ✔️2022 ➡️ Jan8=3.95✔️ Jan31=3.90✔️ March2=3.85 ✔️ April4=3.80 ✔️ June16=3.75✔️ July26=3.70✔️ Sep2=3.65✔️ Oct21=3.60 ✔️ Dec8=3.55✔️2023➡️ Jan 26=3.50✔️ March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️This is NOT medical advice.Consult your doctor.

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13 hours ago, Carmie said:

withdrawals aren’t linear,

Oh my GOD! Today was and still is crazy. You said it. Not linear.

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg 

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg. Dec 2022 - Taper complete!

2011- Gabapentin 300 mg to present- 2020. Increase 2023 to 400mg.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg. Increase August 2022 20mg

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

2021 - Hydroxyzine 30mg. Holding.

Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

 

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Hi Carmie...switched two of my three meds to the new compounded capsules as I had run out of the others...tonight has been quite awful.  I was pretty depressed last night and tired, but today hit hard.  So frustrating!!!  Wish there was a more exact way to do this!!!  Thinking about you.  Said I would let you know how it goes.  New viibryd last time were ok...perhaps it is switching more than one at a time...and will be switching the last in couple days.  Take care!💜

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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Hi Carmie, How are you today? Hope you still enjoy with your sister at beach🌞. Take care and hugs.🤗

 

 

Mid December 16 lorezapam 1mg and lexapro 5mg

Early April17 updosed lorezapam 2mg, mid Apr17 taper 1.5mg, mid May17-1.25mg, early Jun17- 1mg, mid Jun17-0.75mg, mid July17-0.5mg, End July 17 reduce from 0.4mg, 0.3mg,0.2mg until 0.1mg.lorezapam free on 9 August 2017.

Early Mar17 updosed to Lexapro 10mg , end Mar17 reduced 7.5mg, mid May17 reduced 0.5mg, End Aug17 reduced 2.5mg, early Sep17 -1.5mg, Mid Sept-1mg, End Sept - 0.5mg .lexapro free on 26 September 2017

 

Supplement- omega fish oil and magnesium citrate only.

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2 hours ago, Rabe said:

Hi Carmie...switched two of my three meds to the new compounded capsules as I had run out of the others...tonight has been quite awful.  I was pretty depressed last night and tired, but today hit hard.  So frustrating!!!  Wish there was a more exact way to do this!!!  Thinking about you.  Said I would let you know how it goes.  New viibryd last time were ok...perhaps it is switching more than one at a time...and will be switching the last in couple days.  Take care!💜

 

Hi Rabe, 

 

Im so sorry to hear that changing to a new batch has caused you problems again. I hope you stabilise soon. Please keep me updated. I’ll be changing to new capsules every six months. I still haven’t stabilised from going from my tablet to capsule. I’ll keep getting the 7.5mg compounded capsule though n just keep tapering down from that. 

 

With my changing over there was no doubt a difference in measurements as well as a different formula. As I’ve mentioned I once noticed that different brands of syringes were very different in measurement so my measurements n the compounding pharmacists measurements were probably different. I’m sorry you have to switch another one soon too. 

 

Every little thing affects us n I’m sure getting the new batch of capsules would have affected you, especially seeing you got  new capsules for two different meds. I’m so sorry. It sounds like you’re okay just switching one over by two may be too much. 

 

Im not too good today but am distracting myself by reading n writing. Good old distractions, hey. 

 

Sending you hugs🤗

8 hours ago, DMV64 said:

Oh my GOD! Today was and still is crazy. You said it. Not linear.

 

Yes, DMV, there’s definitely nothing at all linear about this ride. Hang in there💚

 

2 hours ago, Miracle123 said:

Hi Carmie, How are you today? Hope you still enjoy with your sister at beach🌞. Take care and hugs.🤗

 

 

 

Hi Miracle, 

 

Thanks for dropping by. I’m still in a windows n waves situation at the moment. More waves than windows today though. Been keeping myself occupied, I’ve been doing lots of reading n writing. Will probably watch movies later. I might read some more. I’ve also listened to some YouTube videos. Feel shocking but I continue to ride the waves. It’s not just withdrawals though, it’s the chronic fatigue syndrome as well. When withdrawals are bad my illness gets worse too n I get stuck in bed a lot.

 

CFS is a CNS illness as well so it gets ramped up even more when I’m in waves. I’m doing okay though. Still keeping my chin up. Been reading lots of positive things today. We can only live one moment at a time. I continue to keep looking at the blessings in each moment too. 

 

Here’s to taking a moment at a time💚

Been on APs, benzos, ADs and opiates, for chronic pain. Had Akathisia in the past that made me suicidal. Still on Seroquel. 2019:➡️ March10=7.25mg ✔️ April17=7.0✔️ June5=6.75✔️ July14=6.50✔️ Aug28=6.25✔️ Oct10=6.20  ✔️ Oct21=6.0✔️ Dec16=5.80 ✔️ 2020➡️ Jan 21=5.60 ✔️ April2=5.40 ✔️ May29=5.20 ✔️ Aug14= 5.0 ✔️Sep29=4.80✔️2021➡️ Jan31=4.60 mg✔️ April24=4.40mg✔️Jul17=4.30mg ✔️ Aug 28=4.20 ✔️ Oct 11=4.15✔️Nov1=4.10 ✔️ Nov21= 4.05✔️ Dec13= 4mg ✔️2022 ➡️ Jan8=3.95✔️ Jan31=3.90✔️ March2=3.85 ✔️ April4=3.80 ✔️ June16=3.75✔️ July26=3.70✔️ Sep2=3.65✔️ Oct21=3.60 ✔️ Dec8=3.55✔️2023➡️ Jan 26=3.50✔️ March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️This is NOT medical advice.Consult your doctor.

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Just journaling. All the stress of withdrawals n other extreme stress that I won’t mention here has made me put on another four kilos. I’m not overweight by any means, I weigh 65kg. I find losing weight really easy n I don’t need to exercise to do it, I just have to be in a positive frame of mind n get my head around it. 

 

Im a really easy going person n find all the toxic people of the world drain me soooo much. Ahhhhh!! Toxic narcissists n withdrawals cause so much pain, plus I’m really ill with a chronic illness that has me bedbound a lot of the time. 

 

That being said, I’m still really positive deep down. I have an adventurous soul n love nature n adventures n new experiences. I’ve got the music cranked up at the moment. Don’t laugh but I’m listening to the Bay City Rollers, my favourite band when I was about eight. 

 

Everyone, I know that this horrible world can crush you but don’t forget to have fun n be silly sometimes. Everything is so serious. Be a kid sometimes. 

 

Sending love n hugs to everyone 💚💚🤗🤗

Been on APs, benzos, ADs and opiates, for chronic pain. Had Akathisia in the past that made me suicidal. Still on Seroquel. 2019:➡️ March10=7.25mg ✔️ April17=7.0✔️ June5=6.75✔️ July14=6.50✔️ Aug28=6.25✔️ Oct10=6.20  ✔️ Oct21=6.0✔️ Dec16=5.80 ✔️ 2020➡️ Jan 21=5.60 ✔️ April2=5.40 ✔️ May29=5.20 ✔️ Aug14= 5.0 ✔️Sep29=4.80✔️2021➡️ Jan31=4.60 mg✔️ April24=4.40mg✔️Jul17=4.30mg ✔️ Aug 28=4.20 ✔️ Oct 11=4.15✔️Nov1=4.10 ✔️ Nov21= 4.05✔️ Dec13= 4mg ✔️2022 ➡️ Jan8=3.95✔️ Jan31=3.90✔️ March2=3.85 ✔️ April4=3.80 ✔️ June16=3.75✔️ July26=3.70✔️ Sep2=3.65✔️ Oct21=3.60 ✔️ Dec8=3.55✔️2023➡️ Jan 26=3.50✔️ March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️This is NOT medical advice.Consult your doctor.

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P.s. Now I’m cranking up The Sweet. I have to say my favourite song when I was about eight or nine was Ballroom Blitz by The Sweet. Pleeeeeease let yourselves be kids sometimes no matter how old you are. I’ve got another six years until I’m sixty but I still love all kinds of music n one of my best friends is a teenager. Music is so great when going through withdrawals. 

 

I have to say it warms my heart so much that I have friends of all ages. I’m a kid at heart. I can’t stand superficial people, people who pretend they are someone they’re not. 

 

I went to see Imagine Dragons n Twenty One Pilots with my teenage friend. I’m a major fan of both bands. I have their CDs n listen to them in Spotify as well. Twenty One Pilots really understand what it’s like to go through pain, they are young but they understand anxiety n depression. I was okay before these meds but these meds have definitely changed my brain chemistry. It all started off with chronic pain. 

 

I want to hate doctors n the pharmaceutical companies but what would that do? It doesn’t change anything. We just have to get through each moment as best as we can. 

 

I wish I could take everyone’s pain away but it’s not possible. I’m struggling myself but I know there is an end to this. 

 

Wishing everyone one the best in their healing. Now it’s back to my music🎼🎧🎤💚

Been on APs, benzos, ADs and opiates, for chronic pain. Had Akathisia in the past that made me suicidal. Still on Seroquel. 2019:➡️ March10=7.25mg ✔️ April17=7.0✔️ June5=6.75✔️ July14=6.50✔️ Aug28=6.25✔️ Oct10=6.20  ✔️ Oct21=6.0✔️ Dec16=5.80 ✔️ 2020➡️ Jan 21=5.60 ✔️ April2=5.40 ✔️ May29=5.20 ✔️ Aug14= 5.0 ✔️Sep29=4.80✔️2021➡️ Jan31=4.60 mg✔️ April24=4.40mg✔️Jul17=4.30mg ✔️ Aug 28=4.20 ✔️ Oct 11=4.15✔️Nov1=4.10 ✔️ Nov21= 4.05✔️ Dec13= 4mg ✔️2022 ➡️ Jan8=3.95✔️ Jan31=3.90✔️ March2=3.85 ✔️ April4=3.80 ✔️ June16=3.75✔️ July26=3.70✔️ Sep2=3.65✔️ Oct21=3.60 ✔️ Dec8=3.55✔️2023➡️ Jan 26=3.50✔️ March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️This is NOT medical advice.Consult your doctor.

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P.s.s. I know there is no such thing as p.s means postcript. What does p.s.s. mean? Post script post script? 😃 I just wanted to say pleeease hang in there everyone . Recently we have lost a couple of members that has made me sooooooo sad😞. I don’t think they checked in a lot so what I wanted to say is please get encouragement from your peers. This is the fight of our lives n we can’t do it alone. 

 

Sending hugs🤗

Been on APs, benzos, ADs and opiates, for chronic pain. Had Akathisia in the past that made me suicidal. Still on Seroquel. 2019:➡️ March10=7.25mg ✔️ April17=7.0✔️ June5=6.75✔️ July14=6.50✔️ Aug28=6.25✔️ Oct10=6.20  ✔️ Oct21=6.0✔️ Dec16=5.80 ✔️ 2020➡️ Jan 21=5.60 ✔️ April2=5.40 ✔️ May29=5.20 ✔️ Aug14= 5.0 ✔️Sep29=4.80✔️2021➡️ Jan31=4.60 mg✔️ April24=4.40mg✔️Jul17=4.30mg ✔️ Aug 28=4.20 ✔️ Oct 11=4.15✔️Nov1=4.10 ✔️ Nov21= 4.05✔️ Dec13= 4mg ✔️2022 ➡️ Jan8=3.95✔️ Jan31=3.90✔️ March2=3.85 ✔️ April4=3.80 ✔️ June16=3.75✔️ July26=3.70✔️ Sep2=3.65✔️ Oct21=3.60 ✔️ Dec8=3.55✔️2023➡️ Jan 26=3.50✔️ March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️This is NOT medical advice.Consult your doctor.

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P.s.s.s. Now I know there’s no such thing. I just wanted to say even though I am positive by nature I’m feeling a little sad at the moment because after nearly 24 years of chronic fatigue syndrome in the last couple of years there was a glimpse of hope when I learnt that it’s a CNS illness n joined Toby Morrison’s course in Australia. The sad thing is I have no chance of getting over this dreaded illness until I get off these meds as they affect the CNS severely n it may take another ten years to get off these meds n more after that to upregulate my receptors. 

 

I was just just listening to Toby now n I was thinking people with cfs have nothing on people going through withdrawals. Cfs is such a horrific illness, there were times I couldn’t get out of bed for months n I still have lots of times I can’t get out of bed. Unless you have this illness you have no clue. Having this illness plus withdrawals is horrific.

 

I try n be positive n I’m so fortunate that none of my friends have deserted me through withdrawals. I couldn’t wish for better friends, yesterday I had four friends contact me. Three of them were making arrangements to catch up with me. I can never make definite arrangements but they don’t care, they will catch up with me whenever I’m able. What an absolute blessing!! One must look at one’s blessings. 

 

Just wanted to say im feeling sad that I can’t get over the illness I’ve had for nearly 24years until these meds have stopped destroying my brain. It’s sooooo sadbut at the same time I’m taking an hour at a time n still looking at the blessings I have. 

 

Feeling sad🙁 but still looking at my blessings too. Such a conundrum 💚

 

 

Been on APs, benzos, ADs and opiates, for chronic pain. Had Akathisia in the past that made me suicidal. Still on Seroquel. 2019:➡️ March10=7.25mg ✔️ April17=7.0✔️ June5=6.75✔️ July14=6.50✔️ Aug28=6.25✔️ Oct10=6.20  ✔️ Oct21=6.0✔️ Dec16=5.80 ✔️ 2020➡️ Jan 21=5.60 ✔️ April2=5.40 ✔️ May29=5.20 ✔️ Aug14= 5.0 ✔️Sep29=4.80✔️2021➡️ Jan31=4.60 mg✔️ April24=4.40mg✔️Jul17=4.30mg ✔️ Aug 28=4.20 ✔️ Oct 11=4.15✔️Nov1=4.10 ✔️ Nov21= 4.05✔️ Dec13= 4mg ✔️2022 ➡️ Jan8=3.95✔️ Jan31=3.90✔️ March2=3.85 ✔️ April4=3.80 ✔️ June16=3.75✔️ July26=3.70✔️ Sep2=3.65✔️ Oct21=3.60 ✔️ Dec8=3.55✔️2023➡️ Jan 26=3.50✔️ March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️This is NOT medical advice.Consult your doctor.

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@Carmie Sorry to hear that you are having so many problems Carmie. The last few weeks, I have been struggling with fatigue so I have a little glimpse of what you are going through. Getting out of a chair is a big task at the moment for me !  I envy your ability to listen to and get inspiration from music. It’s something that I find difficult to do. More often than not , I cannot stand to listen to music. Don’t know why . It just grates on my nerves. I remember Sweet though. Ballroom Blitz , Little Willy, Wig Wam Bam etc. My drinking days !!  

I think that you are right not to hate, Carmie. I think that just eats always at us, taking even more energy. Robbing us of positivity. I wish you well Carmie. You stopped by and wished me well, gave me encouragement. I was grateful for that. I am returning the favour. We can do this, together. One day we will be drug free.

 

Steve

 

 

Quote

Dosulepin 75 mgs per night since 1993.           Dosulepin March 16  2018   75mgs and 50 mgs alternate nights.             Dosulepin. March 30. 2018.  50 mgs per night

Dosulepin. May 2. 2018. 50mgs and 25 mgs alternate nights

Dosulepin. May 27 2018. 50 mgs per night ( increased )

Dosulepin. July 11 2018. 45 mgs per night

Dosulepin. August 13 2018  40 mgs per night

Dosulepin  October 10 2018. 37.5 mgs per night

Dosulepin. October. 24 2018. 35 mgs per night

Dosulepin. December 5 2018. 32.5 mgs per night

Dosulepin.  January 2. 2018  30mgs per night   February 14 2018  29 mgs per night

Dosulepin February 27  28 mgs per night

 

 

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3 hours ago, Carmie said:

Now I know there’s no such thing. I just wanted to say even though I am positive by nature I’m feeling a little sad at the moment because after nearly 24 years of chronic fatigue syndrome in the last couple of years there was a glimpse of hope when I learnt that it’s a CNS illness n joined Toby Morrison’s course in Australia. The sad thing is I have no chance of getting over this dreaded illness until I get off these meds as they affect the CNS severely n it may take another ten years to get off these meds n more after that to upregulate my receptors. 

Hi Carmie, So sad im hear this, this is really suffering journey with both nervous illness,so sorry i cant help but understand how painful and torture. Be strong, im willing to listening. Luckily you are such a positive minded and good attidute person and im believe you can get ride through the waves and cfs. Im really hope you can healing and live more joyful happily. Wishing your waves will be over and windows come more frequently. Hang in there. Love and my big big hugs. 🤗💚

Mid December 16 lorezapam 1mg and lexapro 5mg

Early April17 updosed lorezapam 2mg, mid Apr17 taper 1.5mg, mid May17-1.25mg, early Jun17- 1mg, mid Jun17-0.75mg, mid July17-0.5mg, End July 17 reduce from 0.4mg, 0.3mg,0.2mg until 0.1mg.lorezapam free on 9 August 2017.

Early Mar17 updosed to Lexapro 10mg , end Mar17 reduced 7.5mg, mid May17 reduced 0.5mg, End Aug17 reduced 2.5mg, early Sep17 -1.5mg, Mid Sept-1mg, End Sept - 0.5mg .lexapro free on 26 September 2017

 

Supplement- omega fish oil and magnesium citrate only.

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