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Carmie: accidently doubling up on seroquel one day while tapering

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Carmie

 

3 hours ago, manymoretodays said:

My feet and balance and coping are all pretty steady.  You can just call me mmt.  🤓

 

Hahaha mmt, 

 

Glad to hear you are steady. 😂 Actually That emoji you used with the glasses is one of my favs.

 

Hope you have a lovely day, it looks like another day in bed for me. Still deciding what distractions to use to get me through it. So many ideas. 

 

Sending hugs to you🤗💚💚

 

 

 

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direstraits

sorry another bad day, @Carmie

you're not alone...I feel so sick, wondering how much more I can stand.

Thank God for the support on here,don't know where I'd be right now.😒

 

hang in there,it's got to get better.

❤️

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Rabe

Thinking about you Carmie....you need a surfboard in your room to decorate!  You are so good at all that!  It would be lovely Im sure!  Blessings and love to you Carmie!!  💜

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Carmie
9 hours ago, direstraits said:

sorry another bad day, @Carmie

you're not alone...I feel so sick, wondering how much more I can stand.

Thank God for the support on here,don't know where I'd be right now.😒

 

hang in there,it's got to get better.

❤️

 

Hi Direstraits, 

 

Thanks for popping in. I won’t go into details but I ended up spending most of the morning trying to fix up technological problems. Someone tried to hack into my phone and I’m not really all that technologically minded. I only use my phone for smsing n the occasional phone call. I do everything else on my iPad. Anyway, that pretty much took all my brain power for most of the day. 

 

I’m so sorry you’re not doing so great. I’m actually getting a few windows today. Yay!! About time!😁 Let’s see what tomorrow brings. If I haven’t stabilised by the end of the year I’m going to do a cross-taper back to the original tablets anyway as I think the formula may be the problem then. I will do the cross-taper slowly though. I can’t wait to get back to the original tablets because then I’ll feel like I’ve got some forward movement happening again. 

 

I started doing some more of the cute diamond painting with the owl wearing a beanie n a scarf first thing this morning. It makes me go “Awwww” when I look at it. I received another diamond painting yesterday, so after I finish this one I’m all set for the next one. 

 

I’m going to watch DVDs now. Hope you’re finding some good distractions. 

 

Take care and remember that it’s one day closer to recovery💚

 

 

1 hour ago, Rabe said:

Thinking about you Carmie....you need a surfboard in your room to decorate!  You are so good at all that!  It would be lovely Im sure!  Blessings and love to you Carmie!!  💜

 

Thanks Rabe, 

 

Actually that surfboard idea is great. I just went onto eBay n they’ve got teeny tiny wooden surfboards one can paint. Look what you’ve done! Now I’ve got another art project to add to the millions of projects I want to do.😂

 

I’m going to try my hand at watercolours too. A friend of mine rang me yesterday n she said we could get together n experiment with watercolours. She showed me a lovely picture she did with watercolour pencils.

 

It was so funny though as she had these pencils for ages but didn’t know how to use them. She went on YouTube n figured it out recently. She was dipping the pencils in water n wondering why it wasn’t giving her the effect she wanted. You have to draw with them n then use a paintbrush with water n paint over them. I’m imagining her dipping the pencils in water n wondering why on earth aren’t they working?? It makes me laugh thinking about it.🤣 I wouldn’t have been any help, I haven’t used them either.

 

The other thing that made me laugh yesterday too is she said when I come around to do watercolour painting she’s going to play me some songs on the piano. Again, I couldn’t stop laughing. It wasn’t because of the painting n piano playing as I would absolutely love that. The thing was, my mind went straight to Jane Austen.🤣

 

I’m laughing about it now while I’m typing this. I can imagine us painting n listening to the piano forte, all we need is some embroidery and the long gowns they wore in that century n we will be in an Austen novel.🤣

 

I was in such a bad wave yesterday n my friend cheered me up so much. I was in hysterical laughter. Here’s to all our wonderful friends who keep us going in these perilous time, and to enjoying a good belly laugh occasionally.

 

Take care💚

 

 

Edited by Carmie
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Carmie
On 11/27/2018 at 7:08 PM, Songbird said:

I hope your brain continues to work.  I had bad brain fog for a while, but it's been a little better lately.  I still find it hard to focus on anything very difficult (like maths problems).  Keep looking after yourself, and I hope things ease off for you soon.

 

Hi Songbird, 

 

Thanks for your kind words. Yes, I’m looking after myself. I’ve been in bed pretty much all day but I was comfy with the aircon on. It was quite warm n windy today. I just had a bit of drama as I mentioned above. 

 

I’m still smiling n thinking about my friend n I doing watercolour painting one day n her playing the piano, as I said to Rabe. My mind keeps conjuring up us being in an Austen novel.🤣 I must get something to embroider n we will be all set. We just need Darcy, Wickham, Bingley, Collins, Elizabeth, Jane, Wentworth, Anne, Emma n the rest of the gang. We might as well include characters from all the novels.

 

I’m sorry you’ve had brain fog. I’ve had brain fog 24/7 for about 24 years due to CFS. It’s always there, so is depersonalisation. I never feel like I’m really here. Sometimes I can think through the fog n at other times the fog is so thick that I forget what I had planned to do a minute ago n I constantly lose things all day long. I laugh now at the silly things I do all day long. I can’t change it so I’ve learnt to live with it. 

 

Well at least today I had a few windows, that was a major blessing. It’s a day at a time, an hour at a time, a minute at a time. We never know what’s around the corner, we don’t even know how we will feel an hour from now. 

 

I’ve just been watching lala land, I saw it when it came out at the movies. It’s okay, but I don’t love it. It’s definitely no Singing In The Rain or An American In Paris. Love Gene Kelly and also Fred Astaire. Now, they can dance!💃 I actually saw a live theatre production of Singing In The Rain. The people in the first few rows were given raincoats as they were all getting wet.💦 I wanted to get wet but I couldn’t afford the front row.☹️

 

Last night I started watching Star Trek again, I’m going to do a marathon again soon. I opted for Star Trek Voyager, but once I’ve gone through that I’ll go to The Next Generation. Love my Star Trek. Yep, I’m a nerd!😜

 

I have so many, many, many distractions to help me get through this horror we call withdrawals. I hope you’re finding some good distractions too. 

 

Good night Songbird Zzzzzzz💚

 

 

 

 

 

 

 

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Carmie

Just documenting: Today is day 93 since changing to compounded capsules and day 36 since the accidental double dose. 

 

I still haven’t stabilised, though I’ve had some windows again today. Yay! Those breakthrough windows feel amazing! 

 

I’m going to change back to water titrating tablets at the end of the year even if I haven’t stabilised, as then the problem is probably the compounding formula itself anyway. I’m going to do a slow cross- taper back to the tablets. 

 

Bad brain fog today, can’t read much. I’m watching the DVDs I got from the library a while ago. Want to watch them before I have to take them back. Also doing a bit of the cute diamond painting I have at the moment. 

 

Have been in bed all day, nothing new. 

 

Well, it’s back to my DVDs. Tonight I might watch some Star Trek on Netflix. I don’t own Star Trek on DVD, I must buy the DVDs when I can afford them. There are a million of them. I used to always get the DVDs from the Blockbuster video store in the past. Well the video stores are now old relics! 

 

Live long n prosper! 🤣😜💚💚💚

 

P.s. I just realised they had a Star Trek emoji, well that’s made my day🖖

 

 

 

 

 

Edited by Carmie
Added postscript

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Sunnyday

Hi Carmie! Your posts telling us about your friends, arts and crafting makes me so happy to read. Makes me smile. I've been painting with oil a lot lately, if you've never tried it I can recommend. It's one thing that gets me through my waves too. It's strange to say but sometimes I find I create better art when I'm down. Maybe because feelings are more intense. Something positive in a very negative situation, I suppose.

 

I'm very sorry to hear that you've had a lot of waves lately, hopefully Star Trek can be a good escape for you, I agree that sci-fi is a great escape when we need it. Really hope you will feel better soon. Take care, and lots of hugs to you.

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Carmie
10 hours ago, Sunnyday said:

Hi Carmie! Your posts telling us about your friends, arts and crafting makes me so happy to read. Makes me smile. I've been painting with oil a lot lately, if you've never tried it I can recommend. It's one thing that gets me through my waves too. It's strange to say but sometimes I find I create better art when I'm down. Maybe because feelings are more intense. Something positive in a very negative situation, I suppose.

 

I'm very sorry to hear that you've had a lot of waves lately, hopefully Star Trek can be a good escape for you, I agree that sci-fi is a great escape when we need it. Really hope you will feel better soon. Take care, and lots of hugs to you.

 

Hi Sunnyday, 

 

Thanks for dropping by, nice to hear from you. I’m glad I’m keeping you entertained.😂

 

I haven’t been able to get out of bed yet again today. I really hope I get some strength later on as I want to go out n get some craft stuff. Thanks for the recommendation about the oil painting. I’ve never done it before, I’ve mainly dabbled in acrylics.

 

As regards your art being better when you’re feeling down, a long of songwriters seem to find more inspiration when they’re down n out too, as well as other artists. Some of the best songs come from people’s sadness. When my brain fog is really thick I struggle to think through it.

 

I’m struggling to think at the moment due to brain fog, but that may change throughout the day. Maybe not. Who knows? I’ve been watching DVDs this morning as I haven’t been able to focus on anything else much. I’m going to watch Fly Away Home now. You may have seen it, I’ve never seen it. It’s based on a true story about a fourteen year old girl who helps a family of orphaned geese who are lost to get back home. It looks really cute.

 

Nature n animals I find are amazing too when going through withdrawals. Can’t wait until I’m mobile again so I can go out. In the meantime I have my cat n a million birds that come to feed on the balcony every day. I only have two big trees on my balcony, I must get some more plants for out there. Let’s hope I don’t kill them.😃

 

Take care n have fun with your oil paintings. Yes art n crafts can be the most amazing distraction when going through withdrawals, as well Dvds and Netflix. I’m still getting through a bunch of DVDs I got from the library. After that I’m going to do some Star Trek marathons. Bring on the popcorn!🍿 Well, I don’t actually eat popcorn as I don’t usually eat any grains. I make rare exceptions when I’m out n about though, especially as I love sushi. I never eat gluten.

 

I’ve got a whole season of Murdoch Mysteries from the library to get through as well. Seeing I’m stuck in bed so much I don’t think that will take long. I love how they keep throwing in new inventions in that show, things that we take so for granted now. 

 

Anyway, it looks like another day of Distractions! Distractions! Distractions! Definitely my motto. I’m an expert!😜

 

Take care, Hope you’re doing okay💚

 

Edited by Carmie

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Gridley

Carmie, you are doing great!  

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Miracle123

Hi Carmie....you are such a positive attidue and good distraction. Hope everything going better and well to you. Take care and hugs.🌞🤗

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Carmie
8 hours ago, Gridley said:

Carmie, you are doing great!  

 

6 hours ago, Miracle123 said:

Hi Carmie....you are such a positive attidue and good distraction. Hope everything going better and well to you. Take care and hugs.🌞🤗

 

Hi Gridley n Miracle, 

 

Thanks for dropping by. Hope you’re both coping okay today. I managed to get out of bed n go to the craft shop. Yay! When I got home it was straight onto my bed again. Plonk!😄

 

At least my bedroom is cosy n I have my TV and DVD player in there as well. The movie Fly Away Home was soooo cute. All the little geese following the young girl wherever she went. Awwww!

 

I don’t watch TV, I don’t like it. It gives me a restless energy. I only watch Netflix, DVDs or YouTube. 

 

I have battery operated fairy lights which makes the bedroom a delight too, plus a ton of artwork, positive sayings etc on my “happy wall”. Just as well I love my bedroom because it seems to have me captured a lot lately. Oh, yes, and I have aircon in my bedroom which one definitely needs here in Queensland, the Sunshine State. It’s on at the moment. 

 

Well it’s time to continue the DVD watching. I might gift wrap some of the bookmarks I’ve made too. 

 

Take care 💚

 

 

 

 

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Gridley

Very cozy!

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Survivor1

Hi Carmie,  thanks for posting in my thread.  I'm hanging in there, as I see you are too.  Hope the brain fog lifts soon. Take care.

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Miracle123

so cool and nice bedroom.....😍

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Carmie
15 hours ago, Gridley said:

Very cozy!

 

56 minutes ago, Miracle123 said:

so cool and nice bedroom.....😍

 

2 hours ago, Survivor1 said:

Hi Carmie,  thanks for posting in my thread.  I'm hanging in there, as I see you are too.  Hope the brain fog lifts soon. Take care.

 

Hi Gridley, Miracle and Survivor, 

 

Thanks so much for dropping by. I really appreciate it. It means a lot.

 

I’m listening to music videos on my iPad with headphones on at the moment as my cognition won’t even let me watch DVDs. Love my music, what a beautiful voice George Ezra has n what a beautiful soul he is. I just listened to Panic At The Disco singing Bohemiun Rhapsody too. Pretty good! 

 

I don’t put the headphones on very often as I don’t want to get tinnitus. 

 

I have a concert tomorrow afternoon with quite a few acts. The highlight for me will be John Farnham. I’ve always wanted to see him. It’s at an outdoor venue n we will be sitting on the grass. I can lie down if I need to which I probably will need to. One of my friends just told me to rest up n take it easy before the concert. 

 

I can’t believe that I have such amazing friends. All through this journey of withdrawals not one has deserted me. If I’m too ill to go to something, they will continue to ask me to the next event anyway. 

 

Survivor, I always have cog fog, it doesn’t go away as it’s part of CFS. The intensity changes all the time but I always have depersonalisation, like I’m not really here. 

 

Thanks again for dropping by beautiful people, now it’s back to my music. 

 

Sending lots of hugs🤗🤗🤗

 

 

 

 

 

 

 

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Songbird

I hope you have a great time at the concert. I love John Farnham, what a great voice.

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Carmie
59 minutes ago, Songbird said:

I hope you have a great time at the concert. I love John Farnham, what a great voice.

 

Thank Songbird,

 

I can’t wait for the concert no matter how horrible I’m feeling. My friends have my back. I’ve wanted to see John Farnham for a long time, I go to millions of concerts but never managed to see him. I did go to a John Farnham night one night where a singer sang his songs. He was pretty good actually. 

 

One of the other other acts tomorrow is Richard Marx. I’m hoping he will sing Hazard. Such a sad song. I think I’m going to put it on my WALLOW playlist.  

 

Can’t wait for tomorrow. I don’t know how I’ll manage but I’ll manage somehow. 

 

Can’t do much on this site today as my brain is in outer space again. 

 

Sending hugs🤗

 

 

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neroli

Hello there Carmie

 

Been thinking of you all day and wanted to get on SA but didn't have the energy.  Well done you, getting through another day of wave.  No small feat.  I'm glad that you have sci-fi interests that really take your attention, that must be such a blessing.  I have just come to bed (7pm here) and feel gratefulness that I've got through another day and can put my legs up.

 

I did try meditating to a guided Autogenics meditation this afternoon in one of those desperate periods - it was on YouTube and an hour long.  I do feel I managed to relax a wee bit during it and dozed off a couple of times - waking with a bit of a benzo-jolt each time.  I think it gave me a bit of energy and a calmer mind-set to get through the rest of the afternoon.  I don't know if I missed out 2mg of Diaz. yesterday - somehow my carefully counted out and pill-bottled dose didn't add up right.  I decided to not take an extra tablet "just in case".  Today has been a lot more anxiety infused and my legs have been wobblier, so maybe I did miss a tablet - boy if one tablet does that they are powerful and my system is very fragile.

 

So, I have managed to do a couple of things.  1) I phoned the telco again and said I was a bit miffed that it hadn't been made clear to me that my landline would be an extra cost on top of internet.  I got a concession - not as much as I'd wanted but something.  And I can always swap provider if I want, they've given me three to four days to break the deal if I want.  2) I knitted and un-knitted some premature baby bootees - when I realised I didn't have enough wool to complete the larger size.  I started the smaller size.  With my anxiety being as it is at the moment, I'm pleased that I managed to tackle both of these as I can get quite ramped up if there are glitches or mistakes I have to get over.

 

Enjoy your Star Trek, I'll be continuing Homeland.

 

Hanging in with you 💜

 

Neroli

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Rabe

Hi Carmie...have a wonderful concert!!  Lucky you!  You DO have such wonderful friends and support...that is a true blessing!!!  As are you!!💜

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Songbird
1 hour ago, Carmie said:

One of the other other acts tomorrow is Richard Marx. I’m hoping he will sing Hazard. Such a sad song. I think I’m going to put it on my WALLOW playlist.  

 

 

Ooh, that's one of my favourites too!

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manymoretodays
On 11/26/2018 at 4:36 PM, Carmie said:

Withdrawals are so bad at the moment. It’s been over three months since I changed to compounding n I haven’t stabilised as yet. I did accidentally double dose a month or so though. 

 

I hope I eventually stabilise on this formula, but if I don’t I won’t have a choice but to slowly cross taper to my original tablet even if I’m not stable. Scary thought! I don’t know if it’s the actual formula that has put me in waves or it’s just the usual withdrawals that we get with tapering or changing to a different formula. 

 

I need to figure out the math for the cross taper when I eventually do it. I usually use 20ml of water with a 25mg tablet n I’m down

to  7.5mg which is 6ml. Each ml is 1.25mg. 

 

As regards the tablet part of the cross taper which I really want to go back to again, the first one will be 1.5ml of the tablet, which is a quarter of the 7.5mg.

 

Next, is 3ml of the tablet, which is half. 

 

Then 4.5ml, which is three quarters. 

 

Then it’s over to just the tablet.

 

As regards the capsule I’m using at the moment, it’s a 7.5mg capsule. I’m going to put that in 20ml of water too when I cross taper.

 

Could you please check if this is correct. Maths isn’t my forte, though by some miraculous event I have managed to get myself down to 7.5mg from 300mg. 

 

If I put the 7.5mg capsule in 20ml of water, to start of with three quarters off course would be 15ml, half would be 10ml and a quarter would be 5ml. Is my malfunctioning brain calculating all of this correctly? 😃

 

I hope you have a lovely day MMT and enjoy your tea and honey🍯💚💚

 

Hi Carmie,

And apologies.......my 24 hours often winds up being........hmmmm.........6 days!!!!!!

First concern you stated above, was.......3 months now since you switched to the compounded capsule(cc) of 7.5mgai(this stands for milligram of active ingredient which is in what you are using now). 

And you are dissolving this in how much water at present?

Any recent changes to the amount of water that you dissolve it in?

Have you been in one major wave since the switch over?  I mean comparatively.......to the previous 3 months, before you switched?

 

I see you want to just go back to using your old tablet, that was 25 mgai, dissolved in 20 mL of water.

Before you do that......let's just see what you think, in review.......

 

I don't want to see you make a major dilution change in your present formulation( seroquel 7.5 mgai in unknown, to me amount of water) right at the time of the crossover.  That's what I am thinking so far.  And then we may do better, if you decide to cross over by doing it in thirds.

Usually......a cross over looks something like this:

Keeping the total daily dose the same, in your case, it's 7.5mgai of Seroquel.

1/4 new formulation and 3/4 old formulation, hold for at least 3 days

1/2 new formulation and 1/2 old formulation, hold for at least 3 days

3/4 new and 1/4 old, hold for at least 3 days

Then to total dose in the new formulation

 

So.....I'm proposing you do

1/3 new formulation and 2/3 old formulation, then hold for 4-7 days

2/3 new formulation and 1/3 old formulation,  then hold for 4-7 days

Then to total dose in new formulation

 

I just think this would be a whole lot easier with the math, and your wanting to get back to using your old tablet of 25 mgai dissolved in 20 mL of water. 

2.5mgai: 2mL

7.5mgai: 6mL

^ with what you had been doing 3 months ago

 

I don't know what you are diluting in, mL(millileters) of your present formulation.

So......let me know your thoughts as well.  Hopefully I can respond then before 6 days have past.  I hope so.

Doing okay here.......loving the snow.......the freezing temperatures are a bit dicey though as far as road conditions go.  I've got to get me a snowmobile or something I think.  B)  Kidding.  I've got good tires and a fair degree of sensibility.

Love, peace, healing, and growth,

mmt

 

Edited by manymoretodays
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DMV64

Hi Carmie,

Thinking about you. Wondering how you are doing today (and yesterday)...

Hugs DMV

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Sheera

Carmie—I read you’ve had some windows—that’s great!! You have such a great attitude!!  Thinking about you!

Hugs—Sheera

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Carmie

Hi everyone, 

 

Thanks for all your lovely messages. Not able to reply at the moment as I have severe brain fog. I have to say though, I’m starting to get some long windows! Yay!!! Looks like I may eventually stabilise on this compounded formula, and then I’ll switch back to tablet. Off course, then I’ll have to try n stabilise again when I do that before I taper again. 

 

As regards my brain at the moment, it seems to be on another planet. I don’t think it’s earth!!!! 🌏😃

 

Hang in there everyone 💚💚

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Carmie

Hi again everyone, 

 

I’m still struggling to think due to severe brain fog (CFS) but I just wanted to share a positive thought. 

 

When we are in the midst of waves we feel the windows will never come but they ALWAYS do!!!!!!!!!!!!!!!! Lots of emphasis there😂.

 

Over the last few days I’ve had a lot of really long windows even though the majority of the last three months has been waves. I went to an amazing concert on Sunday that lasted eight hours n I was in a window for most of that time n enjoyed it immensely. It’s called A Day On The Green n it consisted of about six different acts. We sat on our folding chairs n chilled outdoors to the most amazing singers. 

 

@Songbird Yes, Richard Marx sang Hazard. It was AMAZING! And John Farnham singing The Voice, well that was something else! He really is The Voice! The bagpipes are incredible in that song too. Daryl Braithwaite sang Howzat which was soooo cool! I think I was about ten or eleven when that song came out. And of course he sang Horses n that was a big hit with the crowd. I tell you what Songbird, Richard Marx doesn’t seem to age. What’s with that??😃

 

@neroli You are such a sweetheart n I’ll be in contact with you soon. I’m so glad this site helps you to keep going. Unless people have gone through withdrawals they don’t really understand.

 

@Sheera @DMV64@Rabe Thanks for all your kind words n for checking in.

 

@manymoretodays Thanks for your thoughts. I’ll get back to you, just don’t have the brain power at the moment. 

 

Sending much love to everyone 💚💚💚💚💚💚💚💚

 

 

 

 

 

 

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Carmie

A1866C87-9309-4903-9D42-08C50AF955B3.jpeg

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Songbird

:lol:  So true!

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Carmie

Hi everyone, 

 

Just wanted to pop in briefly. I am still struggling with severe brain fog due to my illness but I wanted to say I’ve been in a window pretty much all day so far. I think I’m stabilising. We will see what the rest of the week brings. Please remember windows always come eventually. It really doesn’t feel like it when waves go on for months n months but windows ALWAYS come. 

 

If you look at the above illustration that is what our recovery path looks like. We feel like we’re going backwards a lot of the time, but we are actually moving forward. 

 

Hang in there everyone💚

 

3 hours ago, Songbird said:

:lol:  So true!

 

Yep, definitely true Songbird, 

 

We feel like we’re going forward but then we crash again. Nevertheless even the crashes are part of the forward movement. Sometimes the lows are soooooo low but we are still on the path to recovery. 

 

Sending hugs🤗

 

 

 

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Carmie

P.s. brain fog has been so bad that when I went to get my speaker with the flashing lights (the lights pulsate to whatever I’m playing on my ipad) from the loungeroom I went to the kitchen instead n opened the fridge. I don’t think the speaker is in there🤣🤣🤣

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Rabe

Would have been really funny if they had been!!! :)  Hope you are hanging in there Carmie! Glad to hear you feel you are stabilizing!  And thank you for your pictures of WD!!💜

 

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Carmie

P.s.s. I’m on a roll again. I do this occasionally 😂. I’m struggling to think but I just want to say to everyone please look at the illustration above. It was an illustration looking at the recovery of CFS, which I have, but it really applies to withdrawals as well.

 

I’ve only learnt in the last couple of years that I can get over CFS even though I’ve had it for 24 years. It’s a CNS illness. So is withdrawals. I don’t have a chance of recovering from my illness until these dreaded meds are out of my system and I stabilise,  which may be another ten years or more. 

 

That being said, I continue to be positive despite the pain I’m going through. I’ve had major waves for over three months but I seem to be stabilising now again. There have been tears, there have been times where I just couldn’t go on, but somehow I keep going. Who knows how. I have the most amazing friends though n I have my faith. 

 

I want to do a crossover back to my tablet from the compounding formula every since @brassmonkey said it’s better to stick to the original tablets as they are more accurate.

 

I WILL DO THIS! I CAN DO THIS!!!

 

I’m not sure when I’ll do the crossover yet as my friends keep inviting me to things n I want to be well enough to go to them. Am especially looking forward to going to an aqua park with friends in January. Another friend just asked me to stay with her for a few days, she also lives near the water. Looooove water!! Okay, I can’t stop laughing now as every time I try to type water autocorrect keeps changing it to Walter! 🤣 I don’t even know anyone called Walter. 

 

I wish the best for each n everyone of you going through withdrawals. I really wish I could take all your pain away. 

 

Sending lots of hugs🤗🤗🤗🤗🤗

 

 

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Rabe

You too Carmie!  I hear you on wanting to be ok for things..I have so wanted a nice Christmas this year but seems like any stress really upends me....SHep helped me put that together some today.  Yes, you can get better from the CFS....I did...and then with stress it would return and my immune system would be a mess...so no wonder Im such a huge mess right now!!😳🙄  

You take care!!  Didnt know that was for the CFW...thoguht it was the WD...but it sure is accurate for both!  Hugs to you!💜

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Sheera

Carmie—you have such a good perspective which makes me know you will make it through all of this. Thank you for making me that keeping a light heart and laughing at this nonsense is a good way to get through WD just a little bit easier. 

 

Hugs to you

 

Sheera

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Carmie
19 hours ago, Rabe said:

Would have been really funny if they had been!!! :)  Hope you are hanging in there Carmie! Glad to hear you feel you are stabilizing!  And thank you for your pictures of WD!!💜

 

 

Hi Rabe, 

 

Yes, that would have been quite something if my speaker was in the fridge! I do the silliest things, but at least I can laugh at them.  

It’s a wonder I manage to clothe myself, get myself fed n get through the day🤣.

 

Here’s to finding some humour in these perilous times. 

 

Yes, I’m in window again so far today. Looks I may be heading back to my baseline. Well, let’s hope so anyway. 

 

Hope you’re doing okay💚

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Carmie
10 hours ago, Sheera said:

Carmie—you have such a good perspective which makes me know you will make it through all of this. Thank you for making me that keeping a light heart and laughing at this nonsense is a good way to get through WD just a little bit easier. 

 

Hugs to you

 

Sheera

 

Hi Sheera, 

 

Thanks for dropping by.  Yes, I totally agree we need to find the humour in this whole nonsense when we can, otherwise we would go crazy!🤪😃

 

I’m hoping to get out in nature today, somewhere near the water ( wow! Autocorrect hasn’t changed water to Walter this time. It’s done in quite a number of times??). 🌊

 

Hope you cope okay today💚

 

 

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Carmie

Hi everyone, 

 

How are we all coping? I’ve had another day with pretty much all windows. Not sure when I’ll cross-taper to the original tablets again, though I hope soon. 

 

Had a wonderful time in nature today, went for a walk through the wetlands. It’s a boardwalk that goes through the mangroves and rivers n past the beach. Sooo beautiful n relaxing. 

 

Took lots of photos. Nature is AMAZING!! Pleeeeease get out in nature as much as you can. There really isn’t anything better, our Creator knows what we need .

 

I’d love to share photos but I don’t want to take too much space on this forum. I just figured out how to post photos here😂😂😂

 

Hang in there everyone. WE WILL WIN THIS FIGHT!!!💚💚💚💚

 

P.s. Can’t download photos, takes too much data.

Edited by Carmie
Clarification

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