Carmie: accidently doubling up on Seroquel one day while tapering

[Altostrata]

😊

[Rabe]

Thinking about you SO much Carmie...hope things continue to improve.  You are truly special and truly amazing and I know you will explore your way through this 'suburb' (cant say Id want to live in it for too long! 😉) and find special things to share.  Hoping there are 🎈's along the way!!!💜

 

I never knew what I had was 'akathisia'  and that it had a name until I came here.....Im sorry it brought back those memories.  Here are some more balloons for good measure!!!  🎈🎈🎈🎈🎈🎈🎈💜

[Rabe]

Yes, how fortunate everyone tapering here is to have the incredible kindness, guidance, knowledge and support of the moderators and others who have journeyed similar paths....bless you all!💜

[Carmie]

2 hours ago, Rabe said:

Thinking about you SO much Carmie...hope things continue to improve.  You are truly special and truly amazing and I know you will explore your way through this 'suburb' (cant say Id want to live in it for too long! 😉) and find special things to share.  Hoping there are 🎈's along the way!!!💜

 

I never knew what I had was 'akathisia'  and that it had a name until I came here.....Im sorry it brought back those memories.  Here are some more balloons for good measure!!!  🎈🎈🎈🎈🎈🎈🎈💜

 

 

Thank u Rabe, 

 

You are such a darling, thank u for all your kind words though I don’t feel worthy. You do know I like balloons. I can’t believe how long the air stays in them. I’ve still got the same balloons on my bedroom wall from a fortnight ago. 

 

Yes, akathisia certainly is a horror. There are degrees of it though from being bearable like it is at the moment to feeling like your body is being electrocuted n it’s going to explode to not being able to sit still. It is really the worse symptom ever! I’m okay at the moment though, nothing too drastic. I’m so sorry you get it too, 

 

Sending balloons right back at u😄🎈🎈🎈🎈

 

 

2 hours ago, Rabe said:

Yes, how fortunate everyone tapering here is to have the incredible kindness, guidance, knowledge and support of the moderators and others who have journeyed similar paths....bless you all!💜

 

Yes,this site is amazing. You really do learn a lot. I’m in awe of everything I’ve learn on here n how much everyone helps one another💚

[Miracle123]

Hi Carmie, Thanks for you to coming into my thread and im really appreciated it. How are you? I dont know how to say.....but you are such a wonderful, amazing and cheerful person. You always find solution or happy memories to keep yourself going with your routine life to combat your withdrawal or your emotional as well. This is really inspiration and positive energy needed so much. I love song so much too but got limitation concerts here especially popular singers. I hope this FasterEft can help you in your emotional way. About akathisia.....i know this uncomfortable ,especially leg and hand you will feel like want to keep moving and feeling itching or something crawling into your leg or hand. This really not good feeling and dislike sometimes but will be over and not permanent. Even now i still have it the akathisia and inner shaking but they not so extreme now and i no longer bother them anymore. Hang in there Carmie. Over time passed this should be better and you will feel it no longer disturb you. Love and hugs.😍

 

[Carmie]

23 minutes ago, Miracle123 said:

Hi Carmie, Thanks for you to coming into my thread and im really appreciated it. How are you? I dont know how to say.....but you are such a wonderful, amazing and cheerful person. You always find solution or happy memories to keep yourself going with your routine life to combat your withdrawal or your emotional as well. This is really inspiration and positive energy needed so much. I love song so much too but got limitation concerts here especially popular singers. I hope this FasterEft can help you in your emotional way. About akathisia.....i know this uncomfortable ,especially leg and hand you will feel like want to keep moving and feeling itching or something crawling into your leg or hand. This really not good feeling and dislike sometimes but will be over and not permanent. Even now i still have it the akathisia and inner shaking but they not so extreme now and i no longer bother them anymore. Hang in there Carmie. Over time passed this should be better and you will feel it no longer disturb you. Love and hugs.😍

 

 

Hi Miracle, Thanks for dropping by, 

 

I’m not too bad today thank you, bad night last night though. Just taking each day as it comes like everyone. 

 

Yes, I’m a very solution oriented person, sometimes it takes me forever to find a solution but I seem to somehow get there in the end. And, yes, I do like making my happy memories. Very important when in windows so you have fun things to look back on in waves n you also know that there will be more happy times. 

 

Even in waves it’s still important to do things you enjoy even if your too numb to enjoy them. They make for good distractions. 

 

I’m glad to hear your akathisia isn’t too bad now. A lot of days I can’t read much because of the severe brain fog due to chronic fatigue syndrome. I still have brain fog, it never goes away, but I’m amazed at how much I’ve been able to read today.

 

Take care💚

 

[Carmie]

Okay, I’ve finally made decisions about my tapering. I’m going to continue to taper with 20ml of water as I’ve done for years as I seem to do okay with that n I haven’t confused myself so far despite not being great at math. 

 

That being said, I’m still going to microtaper. 

 

Firstly I’m going to let my body stabilise from the change of water titrating my tablet to now water titrating a capsule as the change over has caused withdrawals.

 

I can taper down small doses now anyway in 20ml of water as I’m no longer using a 25mg tablet but a 7.5mg capsule.

 

I’ve already worked out my first month’s titration after I stabilise. Here goes:

 

7.5mg  divided by 20ml equals 0.375mg per ml. 

 

I can only taper by 5% so 5% of 7.5mg is also 0.375 so I have to go down by one ml for the month. 

 

Im going to microtaper so I will go down by 0.09375 each week for the first month.

 

So I will be taking 19ml at the end of the first month. 

 

After that I will hold for ten days to two weeks n then start the next lot of tapering n my math will come into play again. Miracles still happen😂.

 

Take care everyone 💚💚💚

Edited September 2, 2018 by manymoretodays
none

[manymoretodays]

Hi Carmie,

 

5 hours ago, Carmie said:

I’m going to let my body stabilise from the change of water titrating my tablet to now water titrating a capsule as the change over has caused withdrawals.

 

Sounds good Carmie.

 

Like Alto said, be sure to keep good notes.   Include changes in your dilutions in your notes as well.

 

Here's the format that makes it easy for us to see more clearly if this adjustment is working:  daily drug and symptom pattern notes

 

 

Did  you already go from 7.5 mg in 300 mL(your present dilution)  to 7.5 mg in 20 mL today(or when taking your dose)?   

If I were you I think I would consider diluting with 60 mL or even 90 mL, eventually........so you could avoid having to do really small measurements with a oral syringe. 

 

The microtapering is a great plan.

And I do follow the math.  You want to do 1.25% of a decrease each week, for a total of a 5% decrease in a month.  

 

 

Edited September 2, 2018 by manymoretodays
notes link

[Carmie]

8 hours ago, manymoretodays said:

Hi Carmie,

 

 

Sounds good Carmie.

 

Like Alto said, be sure to keep good notes.   Include changes in your dilutions in your notes as well.

 

Here's the format that makes it easy for us to see more clearly if this adjustment is working:  daily drug and symptom pattern notes

 

 

Did  you already go from 7.5 mg in 300 mL(your present dilution)  to 7.5 mg in 20 mL today(or when taking your dose)?   

If I were you I think I would consider diluting with 60 mL or even 90 mL, eventually........so you could avoid having to do really small measurements with a oral syringe. 

 

The microtapering is a great plan.

And I do follow the math.  You want to do 1.25% of a decrease each week, for a total of a 5% decrease in a month.  

 

 

 

Hi mmt, 

 

Yes, I took the 7.5mg capsule in 20ml of water last night. Later down the line when the measurements get teeny tiny I will probably add more water, that’s a good idea. 

 

Yes, my tapering calculations are at 1.25% a week n then a two week hold as per the brassmonkey slide. 

 

I will keep good notes. 

 

I was okay last night compared to the night before, the akathisia wasn’t severe at all, no movement problems. Phew! I hardly have any strength this morning, I can barely move but has a lot to do with CFS. I’m still in bed, though I am going out to lunch with friends today, I’m being picked up. This is giving me something happy to look forward to. 

 

I will just chill in my bed this morning n watch DVDs n crochet n get up every now n again n do a bit of housework.

 

I still have withdrawals from going from tablet to capsule water titration but they are bearable. I will hold for a long time until I stabilise n then start the microtapering. Tonight will be the seventh night on capsule titration. 

 

I did my journaling last night, that was very beneficial. Just getting all my thoughts down. I use my computer n I can type quickly n get all those ruminating thoughts out of my head. One feels better after doing that. I kept wondering after last night’s dose too whether I would get severe akathisia that night like I did the night before but it didn’t come. Going to do more journaling today.

 

Have a happy day n thanks for dropping by☀️☀️☀️☀️

 

 

 

 

 

 

 

 

[direstraits]

Hi, @Carmie

glad the aka let up for you,sounds like you're doing better,😊

hope you enjoy your lunch out w/friends.

good luck w/ your taper and journaling.

 

ds🤗❤️

[Carmie]

Tonight will be day seven of going from titrating my tablet to capsule. This morning I woke up not so great, lots of inner restlessness n akathisia n vibrations. I’ve had this many times in the past but always got through it by distracting myself. 

 

Yesterday was a good day, just goes to show how this journey definitely isn’t linear.

 

I remember in the past before I knew anything about tapering that once I spent many months not being able to leave my home, the withdrawals combined with my CFS just made it impossible. I got through it though. Even though I knew nothing about the windows n waves pattern I knew I would always eventually stabilise again.

 

When I was stuck at home for those many months though I did think though that I wouldn’t stabilise until the meds were completely out of my system. I did stabilise again though after that n continued to taper. 

 

I have learnt so much on this site too. It’s not just a matter of getting the meds out of your system either, one’s brain still has to heal when the meds are gone. It is a really long process so patience is the key. 

 

The last few nights I’ve been journaling. I’m finding this very beneficial. Putting your thoughts down really helps. When I woke up this morning in withdrawals I did the same thing n it has helped me to get all of my ruminations into perspective. I would highly recommend it. When you make things habits start off small otherwise you become overwhelmed n don’t do nothing at all. I started my journaling with doing it in the evening n now I might add doing it first thing in the morning too.

 

Well today it looks like it will be a day of distractions again, DVDs and crocheting will definitely be a part of that.

 

Distract! Distract! Distract!

 

19 hours ago, direstraits said:

Hi, @Carmie

glad the aka let up for you,sounds like you're doing better,😊

hope you enjoy your lunch out w/friends.

good luck w/ your taper and journaling.

 

ds🤗❤️

 

 

Hi direstraits, 

 

Thanks for popping by. Yes, I had a lovely time with friends yesterday. I got a surprise in the morning when a friend from out of town popped in, she was visiting relatives. Good timing, she joined us out for lunch too. 

 

I had a yummy Thai curry, the yellow one. I’ve never had the yellow one but it didn’t have a very different distinct flavour, I found it very similar to the red one. I usually make the red one at home. The green one tastes quite different.

 

After lunch one of my friends n I went tea tasting at T2 and The Tea Centre. I usually drink herbal teas but tried a couple of the black teas. I won’t be buying any of the black teas though because of the caffeine.

 

When I got home I had a look at the tea list n found they make a decaffeinated black tea so I might go back n buy that one. Just the thought of a cup of tea in a pretty cup gives one the image of chilling n unwinding. Hard to do in the midst of withdrawals but one can visualise the image. 

 

I really need to buy a few of those pretty cups too for a little pampering. I’m using a mug at the moment. Might get a pretty teapot one day too. I love seeing all the pretty cups n teapots in the tea stores. 

 

Hope u are doing okay💚💚💚

 

 

 

 

[direstraits]

Hi, @Carmie

glad you had anice lunch with friends,the Thai curry sounds good.

I have a detox tea I bought,it has turmeric,cinnamon,lemon and ginger,it's a green tea.

I always find drinking tea soothing and comforting.

 

sorry you're feeling worse again,I hope it passes soon.

I felt pretty good today,we drove to the shore and got our favorite sausage sandwich,took a short walk on the boardwalk but it was so hot we left early.

 

hope your distractions help you today,you're in my thoughts.

🤗❤️

 

[Carmie]

9 hours ago, direstraits said:

Hi, @Carmie

glad you had anice lunch with friends,the Thai curry sounds good.

I have a detox tea I bought,it has turmeric,cinnamon,lemon and ginger,it's a green tea.

I always find drinking tea soothing and comforting.

 

sorry you're feeling worse again,I hope it passes soon.

I felt pretty good today,we drove to the shore and got our favorite sausage sandwich,took a short walk on the boardwalk but it was so hot we left early.

 

hope your distractions help you today,you're in my thoughts.

🤗❤️

 

 

Hi Direstraits, 

 

I’m so happy to hear you’re having a good day. How wonderful you got to go to the beach. I looove the beach, sorry it got too hot. There really is nothing like being in nature, it’s so soothing. I would love to live somewhere near the beach. We have a man made beach in the middle of the city next to the river. It’s got sand n everthing but there are no waves. I love the sound of waves, there’s just something so relaxing about listening to waves crash. Also no chlorine in the water at the beach. 

 

Yes, isn’t it relaxing chilling with a cup of tea. I’m definitely going to get that decaffinated black tea. I’m going to get a few other herb teas too. Time for another tea tasting😄. At T2 where I went they will brew you a bit of whatever tea you would like to try. It’s really cool! 

 

I got some more balloons too in the mail today. I’m a big kid at heart n I love my balloons. I put them on my “happy wall” in the bedroom so when I wake up I have lots of happy things to look at. The air stays in balloons such a long time. I popped two of them just now so I could put new ones up. I got yellow ones that have smiley faces on them n I got some long spirally ones. The smiley balloon is smiling at me right now😄.

 

Im getting windows n waves all day long so im doing okay as im getting little breaks inbetween. I ended up watching lots of YouTube videos today. Boy, you can learn a lot on pretty much any subject. Watched a bit of Heartland and The Gilmore Girls too. Heartland has such beautiful scenery, Canada looks so beautiful.

 

Well, I’m going to do some crocheting now n watch some DVDs n then later on I willjournal again. I’m finding journaling really great. I used to do it all the time, it gets my thoughts in perspective. During the day when particular thoughts came up today that I would like to ponder in my journal I just wrote a short sentence about the thought n then later in when I do the journaling I will ponder on in-depth. 

 

I hope you have some more lovely times at the beach n it gets a bit cooler for you. 

 

Sending hugs your way, would u like a balloon too😂😂🎈

 

 

 

 

 

 

 

 

 

 

[direstraits]

Hi @Carmie

your happy wall sounds wonderful,you're so creative.

not feeling too good this morning,maybe yesterday was too much,after we got home from the shore,we went for ice cream  then took another drive listening to the countdown of the  top 100 Beatle songs.had anice time though.

hope to feel better as the day goes on.😊

 

thanks for the hugs and balloon!

ds🤗❤️

 

[Carmie]

Today is day eight since changing from water titrating a tablet to doing it with a capsule. Woke up without the internal restlessness n akathisia this morning, though I do have really watery eyes which is no big deal. That happened once the other week too. 

 

Yesterday was a windows n waves pattern all day so let’s see what happens today. I was going to journal again last night but my brain fog was too bad to do so. I couldn’t focus on it. I did journal in the morning though, n boy does it help. I’m going to journal this morning again.  I’ll do it at least once a day, twice if I’m able. I’ve been doing it for a few days now n I’m finding it extremely beneficial.

 

I took notes throughout the day on paper yesterday about things I want to ponder on when I journal. I guess that’s mini journaling. It’s still getting thoughts out of one’s brain n stops it from ruminating so much.

 

I still dont have the stength to get out of bed due to my illness this morning, so I’m not sure as yet if today will be a day spent in bed or not. Time will tell. 

 

Yesterday morning when the withdrawals were bad I put my headphones on n listened to Bach, his music is very soothing. Someone on YouTube suggested it. I love my music but I don’t listen to much classical, I think I will be listening to more. I did see Andre Rieu in concert, that was amazing. I don’t know much about classical music but I do love Bolero, the crescendo at the end is amazing. Andre played it n was just so intense, I love how that piece build n builds n builds. 

 

I’ll probably close my eyes for a few moments longer now n then I’ll figure out what to do with my day whether I’m stuck in bed or not.

7 hours ago, direstraits said:

Hi @Carmie

your happy wall sounds wonderful,you're so creative.

not feeling too good this morning,maybe yesterday was too much,after we got home from the shore,we went for ice cream  then took another drive listening to the countdown of the  top 100 Beatle songs.had anice time though.

hope to feel better as the day goes on.😊

 

thanks for the hugs and balloon!

ds🤗❤️

 

 

Hi Direstraits, 

 

Sorry you’re not feeling so great today. Yes, when we push ourselves too much it can certainly ramp up the symptoms. Your drive while cranking up Beatles songs sounds amazing. I went to a show one night where they were singing Beatles songs. I did a little bit of dancing with my friends. Paul McCartney came to town one day too but I didn’t have the money to go at the time so missed out. A friend of mine went though. 

 

Rest up today n hopefully your symptoms will settle down a bit again soon. Well it’s time for me to shut my eyes a little while longer. I can’t sleep anymore but I’m just going to rest. Maybe I’ll put on some Bach. 

 

Have a happy day☀️☀️☀️

 

 

 

 

[Rabe]

💜🎈💜🎈💜🎈💜🎈 Thinking of you Carmie!

[direstraits]

I saw Paul in concert 25 years ago.it was a once in a lifetime experience.

I enjoy classical music,too.

today was pretty rough but I made it through,hope tomorrow is better.

hope you're able to get out of bed.

 

big hugs,ds

xx

 

[Miracle123]

Hi Carmie, Hang in there. You will be better and stable soon. im understand well when each time dose drop, withdrawals will rise a bit and brain need time to readjust the dose changed. Hope you will be better soon back to your baseline. Take care and hugs from me.🤗

[Carmie]

Very braindead at the moment, had a good day withdrawal wise yesterday, today it was windows n waves. Woke up in a slight wave, nothing major. 

 

Went to acupuncture today n have booked appointments two months ahead. Haven’t been in months. There was a flower n cake show in one of the beautiful old arcades in the City today. Great photo opportunities. Snap! Snap! Snap! Just been editing. Too braindead at the moment to read or write much though. 

 

Have done my journaling earlier on too, that’s slowly becoming a very beneficial habit. Journal✔️ Acupuncture ✔️. Haven’t started FasterEft as yet, but that’s next in the agenda. I fooled myself thinking I could everything at once. It’s best to make one thing a habit at a time or else you feel overwhelmed n do nothing at all. One foot in front of another n slowly add new things. Journaling has been great!!

 

Let’s see what tomorrow brings. I do like not having to crush my tablets anymore, much easier just to open a capsule.

 

On 9/5/2018 at 9:49 AM, Rabe said:

💜🎈💜🎈💜🎈💜🎈 Thinking of you Carmie!

 

Thanks Rabe, I’m thinking of u too n hope you’ve had a good day, well as best as it can be when going through withdrawals 💚💚

 

On 9/5/2018 at 9:55 AM, direstraits said:

I saw Paul in concert 25 years ago.it was a once in a lifetime experience.

I enjoy classical music,too.

today was pretty rough but I made it through,hope tomorrow is better.

hope you're able to get out of bed.

 

big hugs,ds

xx

 

 

That cool you saw Paul in concert direstraits, 

 

Im sorry you had a rough day, hope today was better. I payed for my Phil Collin’s concert today. A friend just got us tickets to Belinda Carlisle and 1927. They are both playing on the same nite. 80’s singers, Yes I’m old😆. I’ve seen 1927 twice before, both times they played with Pseudo Echo. Won’t you take me to a funky town!😄 Now to put the pennies together for this next concerts. It helps keep my spirits up knowing I have fun things to look forward to. I love music. 

 

Hope you’re coping okay n have had a bit of rest after your big outings💚

 

On 9/5/2018 at 12:36 PM, Miracle123 said:

Hi Carmie, Hang in there. You will be better and stable soon. im understand well when each time dose drop, withdrawals will rise a bit and brain need time to readjust the dose changed. Hope you will be better soon back to your baseline. Take care and hugs from me.🤗

 

Hi Miracle, 

Thanks for dropping by. Yes, that’s certainly the way. Every time we taper our brains have to find equilibrium again. We will get there in the end. 

 

Hope you’ve had a good day💚

[Rabe]

Hi Carmie...thinking about you and so happy to hear things seem to be going pretty well!  That is wonderful!! 💜

[Carmie]

1 hour ago, Rabe said:

Hi Carmie...thinking about you and so happy to hear things seem to be going pretty well!  That is wonderful!! 💜

 

Hi Rabe, 

 

Thanks for dropping by. Today n yesterday it was windows n waves all day. I keep doing things to distract myself though. Went to the City today n to the library there . Also sat n watched a band playing on the Mall n had lunch. There were such pretty flowers in the flower bed on the Mall, they are always changing the flowers. Even when I’m feeling numb I still look out for the beauty around me. 

 

I think it might take a while still to stabilize due to going from tablets to capsules. I’m not tapering again until I stabilize. 

 

Bad brain fog at the moment (CFS) so I’m watching dvds n crocheting. Doesn’t take much brainpower. 

 

Hope you stabilise soon too💚💚💚

 

Feeling anhedonic today but i keep doing things anyway. If I’m well enough tomorrow I’ll be catching up with friends in the morning

 

 

[Carmie]

Today is day twelve since changing from water titrating a tablet to capsule, there have been windows n waves throughout the twelve days. Usually it’s been windows n waves all on the same day but today I had a day with a full window. I had another day like that this week too. Who knows what tomorrow will bring, one moment at a time does it. 

 

Had a nice morning with friends, also finished crocheting a blanket for a friend n watched DVDs. Have been watching The House Of Elliot, love period dramas. I just ordered series one of Larkrise To Candleford, another great period drama. It’s good to have lots of things to watch when you’re not well enough to do much else. I have Netflix too though but I still but DVDs. Dvds and Netflix have gotten me through some big waves. 

 

Well I’m off to bed, good nite Zzzzzzz

 

 

 

 

 

 

 

 

[manymoretodays]

Good morning here mate! 

Yes, movies!!!

 

2 full window days is great, Carmie. 

[Carmie]

7 hours ago, manymoretodays said:

Good morning here mate! 

Yes, movies!!!

 

2 full window days is great, Carmie. 

 

Good morning Manymoretodays, 

 

Well now it’s nighttime where you are😄. I woke up in a window again today, we will see what the rest of the day will bring. Today is day thirteen since changing from water titrating a tablet to doing it with a capsule. Even if I get lots of windows this week n feel like I’m stabilising a bit I won’t be tapering again for at least a few weeks. I will see the swapover as a taper n give it at least a month to stabilise properly. 

 

I think the the holds are just as important as the amount we taper. Slow n steady does it. It sure beats the opposite of horrendous acute withdrawals. 

 

Today I’m spending the day at home, though I may get the urge to go for a little walk later. I have so many projects on the go n I will do whatever I’m in the mood in at the time, I love reading, art n crafts, my DVDs etc etc. Might even do a bit of spring cleaning.  I’m always spring cleaning, I don’t like lots of clutter, I’m always getting rid of things. 

 

A friend of mine sent me cards that she makes. She’s really ill and in a lot of pain and making cards is what distracts her and makes her happy. I’ve made cards in the past too and did scrapbooking. Anyway, I’m going to send these cards to friends today, well I’m going to write in them today anyway. 

 

I’m going to put yellow smiley face balloons in them n tell people to have a happy day. I love balloons, I’ve always got some blown up in the bedroom, I’ve got a smiley face one on my wall at the moment too. It makes me happy to put smiles on people’s faces. It’s good when one is going through withdrawals too to do nice things for others as it brings joy to our hearts. It’s nice to receive something in the mail from friends, instead of electronically. If you want to send people letters or cards you can put all sorts of little treats in there, like tea bags, stickers, bookmarks etc etc. 

 

I’m looking forward to watching some more of The House Of Elliot today. It’s all about two sisters who open up their fashion business at the turn of the century some time. Watching it has made me want to sew something. I haven’t made clothes in such a long time. So many things one can do. 

 

Hope you have a happy day ☀️☀️☀️

 

 

 

 

[Rabe]

SO happy for your window Carmie!!! 💜

[Miracle123]

Im so happy to hear you got a good window, its great carmie. 😄 Take care and hugs.

[DMV64]

Yay! Windows! So happy for you!

[Hopefull]

On 9/10/2018 at 8:20 AM, Carmie said:

 

Good morning Manymoretodays, 

 

Well now it’s nighttime where you are😄. I woke up in a window again today, we will see what the rest of the day will bring. Today is day thirteen since changing from water titrating a tablet to doing it with a capsule. Even if I get lots of windows this week n feel like I’m stabilising a bit I won’t be tapering again for at least a few weeks. I will see the swapover as a taper n give it at least a month to stabilise properly. 

 

I think the the holds are just as important as the amount we taper. Slow n steady does it. It sure beats the opposite of horrendous acute withdrawals. 

 

Today I’m spending the day at home, though I may get the urge to go for a little walk later. I have so many projects on the go n I will do whatever I’m in the mood in at the time, I love reading, art n crafts, my DVDs etc etc. Might even do a bit of spring cleaning.  I’m always spring cleaning, I don’t like lots of clutter, I’m always getting rid of things. 

 

A friend of mine sent me cards that she makes. She’s really ill and in a lot of pain and making cards is what distracts her and makes her happy. I’ve made cards in the past too and did scrapbooking. Anyway, I’m going to send these cards to friends today, well I’m going to write in them today anyway. 

 

I’m going to put yellow smiley face balloons in them n tell people to have a happy day. I love balloons, I’ve always got some blown up in the bedroom, I’ve got a smiley face one on my wall at the moment too. It makes me happy to put smiles on people’s faces. It’s good when one is going through withdrawals too to do nice things for others as it brings joy to our hearts. It’s nice to receive something in the mail from friends, instead of electronically. If you want to send people letters or cards you can put all sorts of little treats in there, like tea bags, stickers, bookmarks etc etc. 

 

I’m looking forward to watching some more of The House Of Elliot today. It’s all about two sisters who open up their fashion business at the turn of the century some time. Watching it has made me want to sew something. I haven’t made clothes in such a long time. So many things one can do. 

 

Hope you have a happy day ☀️☀️☀️

 

 

 

 

 

Hi Carmie,

Your kindness and joyfulness shines through your last post.

I am really happy for you that you are feeling better. 

Your positive outlook and nature will get you to the finish line.

I have to say that it was a glorious, sunny, warm, Spring day today.

It is days like this that make me feel happy and somewhat normal.

Take care my friend,  Hopefull.

 

[Carmie]

Hi @brassmonkey

 

Im thinking of doing the brassmonkey slide. I have been doing water titration from a 25mg tablet n I’ve gotten down to 7.5mg. I just changed to a 7.5mg capsule two weeks ago and it’s put me in withdrawals. I realised that all measurements aren’t the same as I measured syringes against each other and they were different, so when changing to capsule there may have been a difference in measurement.

 

When I stabilise I want to continue water titrating the capsule. 

 

I though I’d get the capsule as it’s easier to do smaller amounts with 7.5mg rather than 25mg. I saw on Rabe’s thread though that you said it’s better to use the original tablet. When I stabilise do you think I should go back to the original tablet and stabilise on that again n go from there? Or is it okay to continue with the compounded formula?

 

Would appreciate your input, thank you.

 

Sending hugs🤗

[Carmie]

@brassmonkey

 

P.s. I only take one capsule in the evening. 

 

Thanks again

[Carmie]

On 9/10/2018 at 12:43 PM, Rabe said:

SO happy for your window Carmie!!! 💜

 

On 9/10/2018 at 7:30 PM, Miracle123 said:

Im so happy to hear you got a good window, its great carmie. 😄 Take care and hugs.

 

On 9/10/2018 at 10:18 PM, DMV64 said:

Yay! Windows! So happy for you!

 

Hi Rabe, Miracle and DMV, 

 

Yes, aren’t windows great when they come. A great YAY for those windows. 

 

Yesterday was a windows and waves day, though mainly windows. Having windows on the same day as waves certainly makes the waves easier to deal with. I haven’t been too bad. It’s one day at a time though as you never know what the next moment will bring. 

 

Wishing you all lots of windows💚💚💚

 

 

11 hours ago, Hopefull said:

 

Hi Carmie,

Your kindness and joyfulness shines through your last post.

I am really happy for you that you are feeling better. 

Your positive outlook and nature will get you to the finish line.

I have to say that it was a glorious, sunny, warm, Spring day today.

It is days like this that make me feel happy and somewhat normal.

Take care my friend,  Hopefull.

 

 

Hi Hopefull, 

 

Thank you for your lovely message. I’m so glad you enjoyed a glorious spring day. I think it’s so important to still look at the blessings and beauty around us no matter how we’re feeling. I think nature is one of the best things ever. No matter how bad one is feeling being in nature seems to lift the spirits.

 

I remember once being so ill and I got someone to drive me to the beach and I got my emotional equilibrium back while there. I waded through the water, looked at shells, sat in the sand and enjoyed the sea breeze. I would love to live near the water. 

 

I’m off to the acupuncturist today in the City. I started acupuncture again last week. They have farmers markets in the City on a Wednesday too so I’ll get a few goodies. It is overcast today but there is sunshine in my heart😄☀️. We get lots of sunshine here in Queensland. 

 

I hope you have many more “normal” days. Our normal is quite different from those not going through withdrawals.

 

Sending hugs to you🤗

[brassmonkey]

Hi Carmie-- it looks like you got caught between changes in measuring and delivery system.  With each one being just a little different it's pretty easy for symptoms to take an upswing.  Give it a few weeks and things should be back to normal.

 

Using the 7.5mgai compounded capsules shouldn't cause any problems.  The compounding just throws another variable into the mix that might at some point cause some problems.  I'm a big fan of working with the original medication.  It has better consistency than compounded capsules, the source material is more predictable to get and it usually costs less.  Currently you'd be getting just over three doses from one tablet, so you would be getting a "free dose" about every three tablets.  This would accelerate as you decrease further saving more money.

[Carmie]

Hi @brassmonkey

 

Thank you so much for replying. I’m in a bit of a dilemma as to what to do now. I’ve got six months worth of compounded 7.5mg capsules. Maybe I should just keep using those for now. I’m still deciding. If I go back to the original tablet after I stabilise from the compounded capsule I will go back into withdrawals again because as you said different measuring n delivery systems. I’m worried changing so much so close will destabilise me and make me go into a major wave. 

 

Another thing i ponder though is when i when I get my next batch of 7.5mg in six months time will they be the same as this last batch? At least the delivery system is still the same I guess. 

 

Maybe I should just continue with the compounding formula n if I decide to do so somewhere down the track I can go back to the tablets. You said the compounding formula shouldn’t cause too many problems. I just don’t want to skip back n forth so close together as it might play havoc with my brain. 

 

Thanks again 💚

 

 

 

 

[Carmie]

Just documenting that I had a day of windows and waves, quite a lot of waves but they were bearable. Today is day 15 since changing from tablet to capsule. 

 

Went to acupuncture, that was really relaxing. He put a needle on the top of my head, a couple around my wrists n a couple around my ankle area, nothing stimulating or detoxing. He is such a nice acupuncturist, will do whatever I ask. Going again tomorrow.

 

I’ve done my journaling for the day, been doing that for a couple of weeks now too, it really helps with ruminating thoughts. Journaling is starting to become a habit again, I’m finding I have to do it now, I miss it if I don’t.

 

Hope everyone is coping as best they can 💚

 

 

 

 

 

[brassmonkey]

Hi Carmie-- I'm just here to add to the confusion by pointing out things that could be a factor and need to be taken into consideration. BTW you're doing a great job of understanding.  If you already have six months worth, by all means use them, no need to spend money on others.  The next batch could be just a little different (5% from what you've been saying) so it might be a good idea to plan for a cross taper between the two batches, when the time comes.  That will minimize the chances of having an upswing in symptoms. It's not a given fact that there will be problems when starting the new batch but adding secondary anxiety by worrying about it is a sure way to make it happen. When it comes down to it, stability and consistency are the two most important parts of a good taper plan.  How you get there is just adjusting the details.

 

Brassmonkey

[Carmie]

Thanks for your message @brassmonkey

 

Well I’ll just keep taking the capsules for now. When I stabilise I’ll start tapering them, it may be a little while yet. 

 

No hurry as it will be five or six months or so before I get my next bunch of meds but how do you cross taper between two batches? As you said though there probably won’t be any problems. I might just take the new batch n hold it for a while before tapering just in case. 

 

Don’t our minds do weird things when new things are thrown into the equation of tapering! Okay time to tame the secondary anxiety. 

 

I hope you’re doing well, have a happy day☀️☀️☀️