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Carmie: accidently doubling up on Seroquel one day while tapering


Carmie

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Hi Carmie, im so sorry to hear that you hit by terrible CFS again.....im know its not easy and frustrated.  You always got your own way to keep going through and do alots distraction. Even you are now hit by hard waves ......you always coming back to helps others here. Eat healthy and take more rest, keep yourself busy with your flavourite artwork,music,photo or everything to distract your discomfort. Im believe you will get well sooner and more good windows. Take care. Sending my sunshine and big big hugs from me.🌞

Mid December 16 lorezapam 1mg and lexapro 5mg

Early April17 updosed lorezapam 2mg, mid Apr17 taper 1.5mg, mid May17-1.25mg, early Jun17- 1mg, mid Jun17-0.75mg, mid July17-0.5mg, End July 17 reduce from 0.4mg, 0.3mg,0.2mg until 0.1mg.lorezapam free on 9 August 2017.

Early Mar17 updosed to Lexapro 10mg , end Mar17 reduced 7.5mg, mid May17 reduced 0.5mg, End Aug17 reduced 2.5mg, early Sep17 -1.5mg, Mid Sept-1mg, End Sept - 0.5mg .lexapro free on 26 September 2017

 

Supplement- omega fish oil and magnesium citrate only.

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Hello Carmie

 

Here's hoping your battery gets charged soon and you can get by looking after yourself.

 

Warm wishes

 

Neroli 💜

2006 Citalopram 20mg on and off to 2013.  April 2013 - July 2014  Sertraline, Venlafaxine, Fluoxetine, Mirtazapine v. bad reactions. July 2014 - CT Mirtazapine.  July 2014 - February 2016 Medication free, long term w/d.  February - July 2016 Fluoxetine.  Medication free, long term w/d syndrome.  2017 Jan physical breakdown.

2017 February - March Escitalopram, Nortriptyline instated.  Lorazepam, Zopiclone PRN.  April 2017 Lithium Carbonate 250mg 1 wk. 14 August 2017 finish cross to Diazepam 22.5mg daily, stop Zopiclone

Tapers:

Diazepam 

2017 21 August - 30 Dec 21.25mg to 14.5mg 2018 6 Jan - 11 May to 12mg.  2 June updose to 12.25mg - hold. 2019 (0.5mg cuts) 12 Jan - 28 Dec 12mg to 10mg 2020 (0.25mg cuts) - 25 Jan - 29 Dec 9.75mg to 6.25mg 2021 *May have bungled dose and accidentally took 1mg more for about a month (7.25mg), so 4 Jan started again at 6.5mg; 19 Jan 6.25mg; 1 Feb 6.0mg; 23 Feb 5.75mg; 9 Mar 5.5mg; 23 Mar 5.25mg; 9 Apr 5.0mg; 6 May 4.75mg; 13 May 4.5mg; 6 Jun 4mg; 12 July 3.5mg; 2 sep 3.0mg; 15 Sep 2.5mg; 1 Nov 2mg; 15 Nov 1.5mg; 16 Dec 1mg; 26 Dec 0.5mg; 2022 1 Jan - OFF

Escitalopram - 2022 1 Mar to 9mg; 29 Mar 8mg; 24 May 7mg; 21 Jun 5mg; 19 Jul 4mg; 1 Sep 3mg; 23 Sep 2.5mg; 31 Oct 1.5mg; 22 Nov 0.5mg; 2023 1 Jan 0.25mg; 1 Mar OFF

Nortriptyline  2018 90mg to 2020 1 Dec down to 72.5mg; 2021 20 May 70mg; 8 Jun 67.5mg; 24 Jun 65mg; 31 July 60mg; 12 Oct 55mg; 23 Oct 50mg; 2022 13 Jan 40mg; 22 Jan 30mg; 29 Mar 20mg; 26 Apr 10mg; 3 Aug 5mg; 23 Sep 2.5mg; 2023 1 Jan - OFF

 

1 March 2023 - off all drugs - 6-year taper off three drugs.

 

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Rest up and recharge your battery.  (((HUGS)))

2001–2002 paroxetine

2003  citalopram

2004-2008  paroxetine (various failed tapers) 
2008  paroxetine slow taper down to

2016  Aug off paroxetine
2016  citalopram May 20mg  Oct 15mg … slow taper down
2018  citalopram 13 Feb 4.6mg 15 Mar 4.4mg 29 Apr 4.2mg 6 Jul 4.1mg 17 Aug 4.0mg  18 Nov 3.8mg
2019  15 Mar 3.6mg  21 May 3.4mg  26 Dec 3.2mg 

2020  19 Feb 3.0mg 19 Jul 2.9mg 16 Sep 2.8mg 25 Oct 2.7mg 23 Oct 2.6mg 24 Dec 2.5mg

2021   29 Aug 2.4mg   15 Nov 2.3mg

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thinking of you, @Carmie

hoping you feel better soon.

sending healing thoughts to you.

 

big hugs,ds.

🤗☀️❤️

went on Prozac 1994-99,60mg.poopout ct  back on 2001-2002,prozac weekly 2002,not working,Effexor 75 mg.?2003-mar.2004 gaining weight 8wk. taper,wellbutrin 150 mg.mar. -may 2004 ctmedfree til july 2005 back to Prozac gaining weight again,back on wellbutrin jan.2006150-300 mg.bad constipation.also was taking aygestin(hormone)perimenopausal irregular bleeding.back on Prozac around sept,?2006,hysterectomy jan30.2007(adenomyosis)off&on Prozac til 2009,citalopram about 1 mo, April 2010 no effect,Effexor again may -mar, 2011.ct,Prozac aug,-dec, 2011 &sept-nov 2012,paroxetine oct,23 2013-may 4 2014 20 mgs.tapered 6 wks.-failed RI in Oct.2014-in protracted WD.started 10 mgs. Fluoxetine May 25 2021 .Stopped fluoxetine May 2022 at 5 mgs.

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Hi Carmie...just wanted you to know that I am thinking about you and hoping you are feeling some better with the CFS....blessings!!!💜

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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Dear carmie and all akathisia survivors, 

 

I also have akathisia specially due to withdrawls. 

I wonder how I will survive this still being on 250 mg seroquel and other medication. 

 

I also have to decide wether microtapering is good for me. 

Specially after I read how successful you were with a slow cut and hold.

Akathisia is terrible. I don't even know if withdrawl is the cause. Yet I think the lower I get with seroquel or diazepam the worse it gets. But I have to see. 

 

I am in a psychiatric hospital in Germany for 8 months now. Life is not really happening 

 

how are you now?

 

I wonder if you finished seroquel and how things developed afterwards. 

tanha 

Edited by Carmie
Deleted quotes ( too long )

2010-2018 sertralin, venlafaxin, cymbalta 120 mg, march bupropio, Lorazepam 4 to 0,5 mg qetiapine 200-400 mg Apr mirtazapin 30 - 45 mg, lo tapered, to 0; Apr switch to diazepam 3 mg; jun/jul 15mg, taper to approx. 4,5 mg, Aug: 200 to 400 mg q, 50 mg levomepromazine, m 45 to 30 mg; since tapered q 400-230 mg, m 30 to 15 mg, 1dez m to 16 mg, 4dez 250 mg q, 31. dec 200 mg q

March 1, 2019 - 200 mg quetiapine, 4,5 mg diazepam, 16 mg mirtazapine

March 3, 2019 - 200 mg quetiapine, 4,0 mg diazepam, 16 mg mirtazapine

March 4, 2019 - 200 mg quetiapine, 4,2 mg diazepam,16 mg mirtazapine, 

june 5, 2019 - 100 mg quetiapine, 3 mg Diazepam, 12,185 mg mirtazapine 

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Any experience with akathisia during withdrawl is welcome. 

How does one deal with it/surviving it practically, 

especially if the cause is difficult to find or if it is withdrawl akathisia which is happening to a lot of sa members I guess?

 

Akathisia is a medications induced problem. 

It can also happen as withdrawl akathisia when dosechanges cause it. 

Antidepressants as well as neuroleptics, benzodiazepines and other can cause it. 

 

At at the same time ad's like mirtazapin, diazepam or e.g. Quetiapine can help cover or sooth it as far as i know.

 

having akathisia and taking several drugs that can cause or sooth it at the same time makes it difficult to find the cause. 

 

I guess only a successful withdrawl of each of the above mentioned can at least eliminate the cause but symptoms may last much longer. 

 

But if one can only taper one medication at a time and this takes very long, often months and years. So how can one find out which is the cause in such polytox settings? 

 

does anybody know a better way then tapering each for long months without knowing if it is the cause or the cover/protection against Symptoms?

 

is e.g. Quetiapine as a neuroleptic more likely to cause akathisia?

 

how can one sooth withdrawl akathisia where every dosechangeevent makes it worse?

 

is microtapering a good strategy to minimize impact of a dosechange 

By only reducing tiny bits and hoping that this won't worsen akathisia

 

or 

 

is it favorable to have bigger cuts with longer holds so that akathisia shows up but can reside before the next cut in 4 weeks or more?

 

any experience is welcome!

2010-2018 sertralin, venlafaxin, cymbalta 120 mg, march bupropio, Lorazepam 4 to 0,5 mg qetiapine 200-400 mg Apr mirtazapin 30 - 45 mg, lo tapered, to 0; Apr switch to diazepam 3 mg; jun/jul 15mg, taper to approx. 4,5 mg, Aug: 200 to 400 mg q, 50 mg levomepromazine, m 45 to 30 mg; since tapered q 400-230 mg, m 30 to 15 mg, 1dez m to 16 mg, 4dez 250 mg q, 31. dec 200 mg q

March 1, 2019 - 200 mg quetiapine, 4,5 mg diazepam, 16 mg mirtazapine

March 3, 2019 - 200 mg quetiapine, 4,0 mg diazepam, 16 mg mirtazapine

March 4, 2019 - 200 mg quetiapine, 4,2 mg diazepam,16 mg mirtazapine, 

june 5, 2019 - 100 mg quetiapine, 3 mg Diazepam, 12,185 mg mirtazapine 

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On 12/11/2018 at 2:47 PM, Rabe said:

Hi Carmie..I am so sorry you have been dealing with this!!!  I think about you so much!  You are so strong and the things that you do inspite of it is incredible!!  Blessings to you Carmie!  I thought of you when I hauled out my needlepoint!!! :) You inspired me...to distract!!!! And it has been good.....thank you so very very much!!  HUGS!!! 💜

 

On 12/14/2018 at 1:29 PM, Rabe said:

Hi Carmie...just wanted you to know that I am thinking about you and hoping you are feeling some better with the CFS....blessings!!!💜

 

Hi Rabe, 

 

Thanks for your messages. I’m glad you’re doing needlepoint, we all need some good distractions. I’ve been really sick with CFS n have been mainly distracting myself with DVDS n Netflix. Yesterday I put some string on a ton of bookmarks, and I’ve also been crocheting as it takes no brain power just doing the same stitch over n over again to make a blanket. 

 

My brain is still in lala land. Haven’t done much this morning, pretty much in bed, but getting up every now n again to do a little housework. I’m watching DVDs n crocheting. I wanted to catch up with friends this morning but don’t have the strength. Another friend wants to catch up with me tomorrow. Not sure if I’ll have the strength as yet. Let’s see what tomorrow brings. 

 

Sendng hugs🤗

 

Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️
2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor.

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On 12/11/2018 at 4:23 PM, Miracle123 said:

Hi Carmie, im so sorry to hear that you hit by terrible CFS again.....im know its not easy and frustrated.  You always got your own way to keep going through and do alots distraction. Even you are now hit by hard waves ......you always coming back to helps others here. Eat healthy and take more rest, keep yourself busy with your flavourite artwork,music,photo or everything to distract your discomfort. Im believe you will get well sooner and more good windows. Take care. Sending my sunshine and big big hugs from me.🌞

 

On 12/12/2018 at 1:21 AM, direstraits said:

thinking of you, @Carmie

hoping you feel better soon.

sending healing thoughts to you.

 

big hugs,ds.

🤗☀️❤️

 

On 12/11/2018 at 4:53 PM, Songbird said:

Rest up and recharge your battery.  (((HUGS)))

 

On 12/11/2018 at 4:45 PM, neroli said:

Hello Carmie

 

Here's hoping your battery gets charged soon and you can get by looking after yourself.

 

Warm wishes

 

Neroli 💜

 

Hi everyone, 

 

Thank you for your kind thoughts. I’m still really struggling with CFS. Cognition is not too good at all. My strength n energy is still so low. Spending a lot of time in bed, though I was able to get out n run a couple of errands the other day. 

 

I finished another diamond painting, which I put on my happy wall. I put some colourful flowers on my wall too. Today I’m lying in bed watching DVDs that I got from the library. I own a million DVDs too, plus I have Netflix. Only the tv in the loungeroom is connected to Netflix though. I’m watching a The Truman Show at the moment, but I’ve also got Murdoch Mysteries n Columbo dvds from the library too. 

 

Take care everyone, sending lots of hugs🤗🤗🤗🤗

 

 

 

 

Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️
2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor.

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Hi @Tanha

 

Thanks for your message on my thread. I hope you are doing okay n I’m so sorry that you are going through this horror we call withdrawals. I will come to your thread at some time n interact with you there. It’s best to keep your questions on your own thread so that you can get more support from different ones. 

 

My cognition is really bad at the moment but when I’m able to I’ll pop over to your thread. Again, I’m really sorry that you are going through this. 

 

Sending hugs🤗

Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️
2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor.

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With you in spirit, Carmie.  You inspire resilience with your own.

 

Neroli 💜

2006 Citalopram 20mg on and off to 2013.  April 2013 - July 2014  Sertraline, Venlafaxine, Fluoxetine, Mirtazapine v. bad reactions. July 2014 - CT Mirtazapine.  July 2014 - February 2016 Medication free, long term w/d.  February - July 2016 Fluoxetine.  Medication free, long term w/d syndrome.  2017 Jan physical breakdown.

2017 February - March Escitalopram, Nortriptyline instated.  Lorazepam, Zopiclone PRN.  April 2017 Lithium Carbonate 250mg 1 wk. 14 August 2017 finish cross to Diazepam 22.5mg daily, stop Zopiclone

Tapers:

Diazepam 

2017 21 August - 30 Dec 21.25mg to 14.5mg 2018 6 Jan - 11 May to 12mg.  2 June updose to 12.25mg - hold. 2019 (0.5mg cuts) 12 Jan - 28 Dec 12mg to 10mg 2020 (0.25mg cuts) - 25 Jan - 29 Dec 9.75mg to 6.25mg 2021 *May have bungled dose and accidentally took 1mg more for about a month (7.25mg), so 4 Jan started again at 6.5mg; 19 Jan 6.25mg; 1 Feb 6.0mg; 23 Feb 5.75mg; 9 Mar 5.5mg; 23 Mar 5.25mg; 9 Apr 5.0mg; 6 May 4.75mg; 13 May 4.5mg; 6 Jun 4mg; 12 July 3.5mg; 2 sep 3.0mg; 15 Sep 2.5mg; 1 Nov 2mg; 15 Nov 1.5mg; 16 Dec 1mg; 26 Dec 0.5mg; 2022 1 Jan - OFF

Escitalopram - 2022 1 Mar to 9mg; 29 Mar 8mg; 24 May 7mg; 21 Jun 5mg; 19 Jul 4mg; 1 Sep 3mg; 23 Sep 2.5mg; 31 Oct 1.5mg; 22 Nov 0.5mg; 2023 1 Jan 0.25mg; 1 Mar OFF

Nortriptyline  2018 90mg to 2020 1 Dec down to 72.5mg; 2021 20 May 70mg; 8 Jun 67.5mg; 24 Jun 65mg; 31 July 60mg; 12 Oct 55mg; 23 Oct 50mg; 2022 13 Jan 40mg; 22 Jan 30mg; 29 Mar 20mg; 26 Apr 10mg; 3 Aug 5mg; 23 Sep 2.5mg; 2023 1 Jan - OFF

 

1 March 2023 - off all drugs - 6-year taper off three drugs.

 

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Hi Carmie, Hope you will be well sooner and able to go out enjoy your lovely sunshine beach.Love and hugs from me🤗

Mid December 16 lorezapam 1mg and lexapro 5mg

Early April17 updosed lorezapam 2mg, mid Apr17 taper 1.5mg, mid May17-1.25mg, early Jun17- 1mg, mid Jun17-0.75mg, mid July17-0.5mg, End July 17 reduce from 0.4mg, 0.3mg,0.2mg until 0.1mg.lorezapam free on 9 August 2017.

Early Mar17 updosed to Lexapro 10mg , end Mar17 reduced 7.5mg, mid May17 reduced 0.5mg, End Aug17 reduced 2.5mg, early Sep17 -1.5mg, Mid Sept-1mg, End Sept - 0.5mg .lexapro free on 26 September 2017

 

Supplement- omega fish oil and magnesium citrate only.

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Hi Carmie...Im so sorry you are struggling so with the CFS!  You are so strong, so giving, so creative, so lovely in every way!!  Know that I am keeping you in my heart and prayers for healing!!  Take care Carmie!!💜

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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@CarmieThinking of you Carmie. You have helped me so much over the months with messages of encouragement. Just wanted to say thanks and hopefully if we support each other , we will be okay and get through these wd’s.

Take care

Steve x

Quote

Dosulepin 75 mgs per night since 1993.           Dosulepin March 16  2018   75mgs and 50 mgs alternate nights.             Dosulepin. March 30. 2018.  50 mgs per night

Dosulepin. May 2. 2018. 50mgs and 25 mgs alternate nights

Dosulepin. May 27 2018. 50 mgs per night ( increased )

Dosulepin. July 11 2018. 45 mgs per night

Dosulepin. August 13 2018  40 mgs per night

Dosulepin  October 10 2018. 37.5 mgs per night

Dosulepin. October. 24 2018. 35 mgs per night

Dosulepin. December 5 2018. 32.5 mgs per night

Dosulepin.  January 2. 2018  30mgs per night   February 14 2018  29 mgs per night

Dosulepin February 27  28 mgs per night

 

 

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13 hours ago, Carmie said:

Hi @Tanha

 

Thanks for your message on my thread. I hope you are doing okay n I’m so sorry that you are going through this horror we call withdrawals. I will come to your thread at some time n interact with you there. It’s best to keep your questions on your own thread so that you can get more support from different ones. 

 

My cognition is really bad at the moment but when I’m able to I’ll pop over to your thread. Again, I’m really sorry that you are going through this. 

 

Sending hugs🤗

Hi carmie,

Bad  issues here, too.

i stumbled upon your thread because you also have and endure akathisia in withdrawl. 

I had it so bad and still have that it frightens me. Whenni read that you go through the same sh.... i felt a bit better because you are alive and enduring it longer than i do. 

Your post are very positive. That is really helpful.

thanx

2010-2018 sertralin, venlafaxin, cymbalta 120 mg, march bupropio, Lorazepam 4 to 0,5 mg qetiapine 200-400 mg Apr mirtazapin 30 - 45 mg, lo tapered, to 0; Apr switch to diazepam 3 mg; jun/jul 15mg, taper to approx. 4,5 mg, Aug: 200 to 400 mg q, 50 mg levomepromazine, m 45 to 30 mg; since tapered q 400-230 mg, m 30 to 15 mg, 1dez m to 16 mg, 4dez 250 mg q, 31. dec 200 mg q

March 1, 2019 - 200 mg quetiapine, 4,5 mg diazepam, 16 mg mirtazapine

March 3, 2019 - 200 mg quetiapine, 4,0 mg diazepam, 16 mg mirtazapine

March 4, 2019 - 200 mg quetiapine, 4,2 mg diazepam,16 mg mirtazapine, 

june 5, 2019 - 100 mg quetiapine, 3 mg Diazepam, 12,185 mg mirtazapine 

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23 hours ago, neroli said:

With you in spirit, Carmie.  You inspire resilience with your own.

 

Neroli 💜

 

Hi Neroli, 

 

Hope you’re coping okay. I’m still really struggling to think. Just distracting myself with DVDs, Netflix, music n crocheting. Hope you continue to find some good distractions. 

 

Sending hugs🤗💚

Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️
2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor.

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22 hours ago, Miracle123 said:

Hi Carmie, Hope you will be well sooner and able to go out enjoy your lovely sunshine beach.Love and hugs from me🤗

 

Hi Miracle, 

 

Thanks, I can’t wait to be well enough to get to the beach again. I hope you’re starting to stabilise from the injection you got. We are so sensitive to everything, aren’t we? 

 

Sending hugs🤗💚

21 hours ago, Rabe said:

Hi Carmie...Im so sorry you are struggling so with the CFS!  You are so strong, so giving, so creative, so lovely in every way!!  Know that I am keeping you in my heart and prayers for healing!!  Take care Carmie!!💜

 

Hi Rabe, 

 

Thanks for popping by. I hope you’re doing okay n have worked out your meds. 

 

Sending hugs🤗💚

10 hours ago, Tanha said:

Hi carmie,

Bad  issues here, too.

i stumbled upon your thread because you also have and endure akathisia in withdrawl. 

I had it so bad and still have that it frightens me. Whenni read that you go through the same sh.... i felt a bit better because you are alive and enduring it longer than i do. 

Your post are very positive. That is really helpful.

thanx

Hi Tanha, 

 

Thanks for your kind words. Yes, akathisia is certainly the worst thing any of us can go through. I’ve never experienced such torture. I’m okay at the moment though. 

 

Sometimes the meds themselves can cause akathisia. That happened to me with one med I was on, I’m not on it anymore and I don’t  even remember the name of it. The doctors put me in n off meds n it was torture and at the time I thought there was something mentally wrong with me, which wasn’t the case at all, it was withdrawals. I ended on this roller coaster of meds because of chronic pain.

 

I get severe akathisia now if I taper too quickly from the Seroquel. Even when I taper slowly I can still get it, Just not so severe. Before I knew how to taper safely I tapered really quickly once n I felt I was being electrocuted!! It was horrific.

 

Take care, sending hugs🤗🤗

 

 

 

 

14 hours ago, Steve61 said:

@CarmieThinking of you Carmie. You have helped me so much over the months with messages of encouragement. Just wanted to say thanks and hopefully if we support each other , we will be okay and get through these wd’s.

Take care

Steve x

 

Thanks Steve for your lovely message. My CFS is really bad at the moment n I’m struggling to read or think. Yes, we certainly will get through these withdrawals. Slow n steady does it,we will get there in the end. I don’t have the cognitive power at the moment to check out people’s threads but when I’m able to I’ll see how you’re doing in your thread. 

 

Thanks for the encouragement.

 

I’ve got the music cranked up at the moment for distraction. 

 

Sending sunshne your way☀️☀️☀️

Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️
2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor.

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HI Carmie,

 

I'm glad to read that you think you are stabilizing. I know it's been a bit rough these last few days.  You are doing a great job.  Thanks for better so encouraging to the rest of us.

 

Rosetta

https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25

2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period

May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born)

2012-2016 - Doctors raised dose of Zoloft up to 150 mg

2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction)

2016 - Stopped Xanax

Late 2016- Began (too fast) taper of Zoloft

Early 2017 - Trazodone prescribed for bedtime (doseage unknown)

Feb 2017 - Completed taper/stopped Trazodone

Drug free since Feb 2017

2017 - Unisom otc very rarely for sleep

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4 hours ago, Carmie said:

Hope you’re coping okay. I’m still really struggling to think. Just distracting myself with DVDs, Netflix, music n crocheting. Hope you continue to find some good distractions. 

Thank you, Carmie.  You are a distraction expert - I am learning from you.  Hope you're gradually building up strength again.  Thinking of you.  Downs and little ups for me.

 

Warmest wishes

 

Neroli 💜

2006 Citalopram 20mg on and off to 2013.  April 2013 - July 2014  Sertraline, Venlafaxine, Fluoxetine, Mirtazapine v. bad reactions. July 2014 - CT Mirtazapine.  July 2014 - February 2016 Medication free, long term w/d.  February - July 2016 Fluoxetine.  Medication free, long term w/d syndrome.  2017 Jan physical breakdown.

2017 February - March Escitalopram, Nortriptyline instated.  Lorazepam, Zopiclone PRN.  April 2017 Lithium Carbonate 250mg 1 wk. 14 August 2017 finish cross to Diazepam 22.5mg daily, stop Zopiclone

Tapers:

Diazepam 

2017 21 August - 30 Dec 21.25mg to 14.5mg 2018 6 Jan - 11 May to 12mg.  2 June updose to 12.25mg - hold. 2019 (0.5mg cuts) 12 Jan - 28 Dec 12mg to 10mg 2020 (0.25mg cuts) - 25 Jan - 29 Dec 9.75mg to 6.25mg 2021 *May have bungled dose and accidentally took 1mg more for about a month (7.25mg), so 4 Jan started again at 6.5mg; 19 Jan 6.25mg; 1 Feb 6.0mg; 23 Feb 5.75mg; 9 Mar 5.5mg; 23 Mar 5.25mg; 9 Apr 5.0mg; 6 May 4.75mg; 13 May 4.5mg; 6 Jun 4mg; 12 July 3.5mg; 2 sep 3.0mg; 15 Sep 2.5mg; 1 Nov 2mg; 15 Nov 1.5mg; 16 Dec 1mg; 26 Dec 0.5mg; 2022 1 Jan - OFF

Escitalopram - 2022 1 Mar to 9mg; 29 Mar 8mg; 24 May 7mg; 21 Jun 5mg; 19 Jul 4mg; 1 Sep 3mg; 23 Sep 2.5mg; 31 Oct 1.5mg; 22 Nov 0.5mg; 2023 1 Jan 0.25mg; 1 Mar OFF

Nortriptyline  2018 90mg to 2020 1 Dec down to 72.5mg; 2021 20 May 70mg; 8 Jun 67.5mg; 24 Jun 65mg; 31 July 60mg; 12 Oct 55mg; 23 Oct 50mg; 2022 13 Jan 40mg; 22 Jan 30mg; 29 Mar 20mg; 26 Apr 10mg; 3 Aug 5mg; 23 Sep 2.5mg; 2023 1 Jan - OFF

 

1 March 2023 - off all drugs - 6-year taper off three drugs.

 

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  • Moderator Emeritus
On 12/17/2018 at 12:28 PM, Rosetta said:

HI Carmie,

 

I'm glad to read that you think you are stabilizing. I know it's been a bit rough these last few days.  You are doing a great job.  Thanks for better so encouraging to the rest of us.

 

Rosetta

 

On 12/17/2018 at 4:25 PM, neroli said:

Thank you, Carmie.  You are a distraction expert - I am learning from you.  Hope you're gradually building up strength again.  Thinking of you.  Downs and little ups for me.

 

Warmest wishes

 

Neroli 💜

 

Hi Rosetta n Neroli, 

 

Thanks for dropping by and your kind words, much appreciated. Yes, it’s been a bad week or so. Major CFS crash! Been in bed most of the time, could barely move a lot of the time, and my brain wasn’t even on this planet. I couldn’t think to save my life. I have a little bit of brain again this morning. 

 

I just kept distracting myself with dvds, Netflix and music. Also did crocheting which I can do without thinking, it’s automatic. 

 

Let’s see what today will bring. It’s an hour at a time, or a moment at a time sometimes. I don’t know how I’ll be from one second to the next. That’s the story with all of us on this site though.

 

Sending hugs to both of you🤗🤗💚

Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️
2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor.

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  • Moderator Emeritus

Hi everyone, 

 

Hope you are all coping as best you can. I actually had some brain again today after around a week or so of hardly being able to think or read. I’ve read a lot of threads and I’m so sorry about everything you are all going through. This really is one tough journey. I feel sad that one person cold turkeyed after they knew how to taper properly. Why would someone do that??? I can’t comprehend it. 

 

I read your threads and the struggles you’re all going through and how you all keep fighting on and that brings joy to my heart. We will win this fight!!

 

Hang in there everyone, sending lots of hugs🤗🤗🤗

 

 

Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️
2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor.

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6 minutes ago, Carmie said:

I read your threads and the struggles you’re all going through and how you all keep fighting on and that brings joy to my heart. We will win this fight!!

Carmie, You're such a generous person - you feel joy in your heart for others who are keeping on keeping on.  And you are doing that, too.

 

💜💜

2006 Citalopram 20mg on and off to 2013.  April 2013 - July 2014  Sertraline, Venlafaxine, Fluoxetine, Mirtazapine v. bad reactions. July 2014 - CT Mirtazapine.  July 2014 - February 2016 Medication free, long term w/d.  February - July 2016 Fluoxetine.  Medication free, long term w/d syndrome.  2017 Jan physical breakdown.

2017 February - March Escitalopram, Nortriptyline instated.  Lorazepam, Zopiclone PRN.  April 2017 Lithium Carbonate 250mg 1 wk. 14 August 2017 finish cross to Diazepam 22.5mg daily, stop Zopiclone

Tapers:

Diazepam 

2017 21 August - 30 Dec 21.25mg to 14.5mg 2018 6 Jan - 11 May to 12mg.  2 June updose to 12.25mg - hold. 2019 (0.5mg cuts) 12 Jan - 28 Dec 12mg to 10mg 2020 (0.25mg cuts) - 25 Jan - 29 Dec 9.75mg to 6.25mg 2021 *May have bungled dose and accidentally took 1mg more for about a month (7.25mg), so 4 Jan started again at 6.5mg; 19 Jan 6.25mg; 1 Feb 6.0mg; 23 Feb 5.75mg; 9 Mar 5.5mg; 23 Mar 5.25mg; 9 Apr 5.0mg; 6 May 4.75mg; 13 May 4.5mg; 6 Jun 4mg; 12 July 3.5mg; 2 sep 3.0mg; 15 Sep 2.5mg; 1 Nov 2mg; 15 Nov 1.5mg; 16 Dec 1mg; 26 Dec 0.5mg; 2022 1 Jan - OFF

Escitalopram - 2022 1 Mar to 9mg; 29 Mar 8mg; 24 May 7mg; 21 Jun 5mg; 19 Jul 4mg; 1 Sep 3mg; 23 Sep 2.5mg; 31 Oct 1.5mg; 22 Nov 0.5mg; 2023 1 Jan 0.25mg; 1 Mar OFF

Nortriptyline  2018 90mg to 2020 1 Dec down to 72.5mg; 2021 20 May 70mg; 8 Jun 67.5mg; 24 Jun 65mg; 31 July 60mg; 12 Oct 55mg; 23 Oct 50mg; 2022 13 Jan 40mg; 22 Jan 30mg; 29 Mar 20mg; 26 Apr 10mg; 3 Aug 5mg; 23 Sep 2.5mg; 2023 1 Jan - OFF

 

1 March 2023 - off all drugs - 6-year taper off three drugs.

 

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  • Moderator Emeritus

Hi everyone, 

 

I’m struggling to think again today, bad cog fog, but I was happy to be be able to chat to a lot of you yesterday. I will be back to you again when I’m able. 

 

I’m pretty much spending the day in bed again, though two friends popped around before and gave me a lovely top and cardigan. It’s been quite warm in sunny Queensland so I’ve got the aircon on in the bedroom. My puddy tat is asleep on the bed next to me. 

 

I’ve got my fairy lights twinkling on my happy wall and I’ve been watching Columbo. What a cool dude! I always love how this show is different from other crime shows. You see the crime first and then how he works it out. I’m also crocheting a blue blanket, no brain power needed for that. I might watch Murdoch Mysteries next. 

 

A friend of mine gave me water colour pencils yesterday, I’ve never used them before. Can’t wait to use them. I find doing creative things a great distraction when withdrawals are bad. 

 

Well it’s back to Columbo. Love how he always walks away when questioning someone, but then turns around and asks one last question. Cracks me up!🤣 He will get you, he’s smarter than he looks, never underestimate him you silly criminals!! 

 

Take care everyone💚

 

 

23 hours ago, neroli said:

Carmie, You're such a generous person - you feel joy in your heart for others who are keeping on keeping on.  And you are doing that, too.

 

💜💜

 

Hi Neroli, 

 

Thank you for your kind words, you’re such a sweetheart. Hope you’re coping okay today. Now it’s back to figuring out how Columbo solves this next crime.😄

 

Sending hugs🤗

Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️
2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor.

Link to comment

A distraction attraction! 😃  Gosh I so wish that CFS would rein itself in a bit!!  😡  It will eventually...it is hard to have than and taper as I think one affects the other sometimes.  SO thinking about you Carmie!!  You are such a special light!!!  Hugs back to you!!!💜

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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Hi Carmie....just thinking about you today and tonight and wanted to let you know!  💜💜

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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Hello Carmie

 

I'm glad you can find distraction and take care of yourself the way you do, with your fairy lights and the cat nearby.  I hope you will lift from the CFS again in the near future and the withdrawals.

 

Keep resting and recovering

 

Neroli. 💜

2006 Citalopram 20mg on and off to 2013.  April 2013 - July 2014  Sertraline, Venlafaxine, Fluoxetine, Mirtazapine v. bad reactions. July 2014 - CT Mirtazapine.  July 2014 - February 2016 Medication free, long term w/d.  February - July 2016 Fluoxetine.  Medication free, long term w/d syndrome.  2017 Jan physical breakdown.

2017 February - March Escitalopram, Nortriptyline instated.  Lorazepam, Zopiclone PRN.  April 2017 Lithium Carbonate 250mg 1 wk. 14 August 2017 finish cross to Diazepam 22.5mg daily, stop Zopiclone

Tapers:

Diazepam 

2017 21 August - 30 Dec 21.25mg to 14.5mg 2018 6 Jan - 11 May to 12mg.  2 June updose to 12.25mg - hold. 2019 (0.5mg cuts) 12 Jan - 28 Dec 12mg to 10mg 2020 (0.25mg cuts) - 25 Jan - 29 Dec 9.75mg to 6.25mg 2021 *May have bungled dose and accidentally took 1mg more for about a month (7.25mg), so 4 Jan started again at 6.5mg; 19 Jan 6.25mg; 1 Feb 6.0mg; 23 Feb 5.75mg; 9 Mar 5.5mg; 23 Mar 5.25mg; 9 Apr 5.0mg; 6 May 4.75mg; 13 May 4.5mg; 6 Jun 4mg; 12 July 3.5mg; 2 sep 3.0mg; 15 Sep 2.5mg; 1 Nov 2mg; 15 Nov 1.5mg; 16 Dec 1mg; 26 Dec 0.5mg; 2022 1 Jan - OFF

Escitalopram - 2022 1 Mar to 9mg; 29 Mar 8mg; 24 May 7mg; 21 Jun 5mg; 19 Jul 4mg; 1 Sep 3mg; 23 Sep 2.5mg; 31 Oct 1.5mg; 22 Nov 0.5mg; 2023 1 Jan 0.25mg; 1 Mar OFF

Nortriptyline  2018 90mg to 2020 1 Dec down to 72.5mg; 2021 20 May 70mg; 8 Jun 67.5mg; 24 Jun 65mg; 31 July 60mg; 12 Oct 55mg; 23 Oct 50mg; 2022 13 Jan 40mg; 22 Jan 30mg; 29 Mar 20mg; 26 Apr 10mg; 3 Aug 5mg; 23 Sep 2.5mg; 2023 1 Jan - OFF

 

1 March 2023 - off all drugs - 6-year taper off three drugs.

 

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I had to tell you Carmie that this morning I had  a red headed woodpecker at my feeder...and a cardinal!!  I so love them!!  I was so happy!  And then all the little scavenger sparrows that are so fat and pudgy..and the squirrels too.  The bluejays come around and crab at me if I dont have the food where they want it or how they want it...havent figured out how to please them yet.  I asked for a window feeder for Christmas...they might like that better I am thinking.  They do bring me joy.

I always felt like a caged bird the many may years I dealt with the panic attacks...and then I had 30 years or so of 'flying' in all ways....felt so free, and confident and happy.  I am back to feeling grounded and I think thats why the birds bring me such pleasure...a reminder of my hope to fly once again.

Thinking about you in the cross to the pills...would one think this would be such a deal?  After the pills at the pharmacy are gone that is it for those...so will have to change to something else...will be interesting.  Will talk to the dr about it tomorrow.  Take care Carmie!!  Hugs!!💜

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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  • Moderator Emeritus

Hi @neroli @Rabe  Thanks for dropping by, 

 

I’m still in bed this morning, but I have a bit more energy today, so hopefully I’ll be able to get out and about later on in the day.  

ChessieCat was mentioning she’s listening to Don Spencer, he’s Australian and sings kid’s songs about Australia and it’s wildlife etc. She’s finding it very relaxing. I’ve never heard of him. I’m listening to him at the moment on Spotify since she mentioned it and I must say it is very relaxing and some of the lyrics are really making me smile. Aussies will relate to them. Fun for all ages!! I really am smiling listening to it. Looks like I’ll be listening to more of it. 😄

 

 

How lovely you have seen so many beautiful birds Rabe. Don’t they just make your day. Yes, it’s nice to be able to fly free. One of these days we will all be flying free, away from these dreaded meds. 

 

I hope you both have a happy day💚

 

 

 

Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️
2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor.

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Hello Carmie

 

Hope your day has gone ok - and maybe you've been able to get up for a bit.  You've got new music to relax to, that's good.

 

My day has been ok - I worked at home in the morning - and knitted this afternoon while watching Tara Brach videos.   Well, I don't really watch them, they are soothing background noise and occasionally I pick up bits about "being with the present moment" and not trying to push the "fear body" away - acceptance I guess and not increasing anxiety and worry by spiralling into un-useful thought patterns.  I figure the more I can hear this stuff, the more I will take it on board, subliminally.  I did do a meditation this morning, Vidyamala Burch, just 10 minutes to try to calm myself down, I was winding up in anxiety.  It kind of helped.

 

Another thing I think I need to change is black tea - go to the decaf. variety or Rooibos.  See if it helps keep the anxiety down, and the irritated bladder.  There were a number of years where I drank nothing but Rooibos, no caffeine whatsoever and was fine with that.  Now, I 'm feeling miffed that I might need to give up a good strong cup of ordinary tea!  Ah, well.  I will start tomorrow with Rooibos, I have some in stock.

 

Oh and. did a bit of piano as well.  I'm treating it very gently - and do short stints at it, the last thing I want is to turn it into another anxiety-producing project, so short stints seems to work.  I get tired pretty quick;y and then if I make mistakes I get wound up.

 

In my garden I can see honey bees on the lavender and some bumble bees - good to see there are still some bees around.

 

Neroli 💜

2006 Citalopram 20mg on and off to 2013.  April 2013 - July 2014  Sertraline, Venlafaxine, Fluoxetine, Mirtazapine v. bad reactions. July 2014 - CT Mirtazapine.  July 2014 - February 2016 Medication free, long term w/d.  February - July 2016 Fluoxetine.  Medication free, long term w/d syndrome.  2017 Jan physical breakdown.

2017 February - March Escitalopram, Nortriptyline instated.  Lorazepam, Zopiclone PRN.  April 2017 Lithium Carbonate 250mg 1 wk. 14 August 2017 finish cross to Diazepam 22.5mg daily, stop Zopiclone

Tapers:

Diazepam 

2017 21 August - 30 Dec 21.25mg to 14.5mg 2018 6 Jan - 11 May to 12mg.  2 June updose to 12.25mg - hold. 2019 (0.5mg cuts) 12 Jan - 28 Dec 12mg to 10mg 2020 (0.25mg cuts) - 25 Jan - 29 Dec 9.75mg to 6.25mg 2021 *May have bungled dose and accidentally took 1mg more for about a month (7.25mg), so 4 Jan started again at 6.5mg; 19 Jan 6.25mg; 1 Feb 6.0mg; 23 Feb 5.75mg; 9 Mar 5.5mg; 23 Mar 5.25mg; 9 Apr 5.0mg; 6 May 4.75mg; 13 May 4.5mg; 6 Jun 4mg; 12 July 3.5mg; 2 sep 3.0mg; 15 Sep 2.5mg; 1 Nov 2mg; 15 Nov 1.5mg; 16 Dec 1mg; 26 Dec 0.5mg; 2022 1 Jan - OFF

Escitalopram - 2022 1 Mar to 9mg; 29 Mar 8mg; 24 May 7mg; 21 Jun 5mg; 19 Jul 4mg; 1 Sep 3mg; 23 Sep 2.5mg; 31 Oct 1.5mg; 22 Nov 0.5mg; 2023 1 Jan 0.25mg; 1 Mar OFF

Nortriptyline  2018 90mg to 2020 1 Dec down to 72.5mg; 2021 20 May 70mg; 8 Jun 67.5mg; 24 Jun 65mg; 31 July 60mg; 12 Oct 55mg; 23 Oct 50mg; 2022 13 Jan 40mg; 22 Jan 30mg; 29 Mar 20mg; 26 Apr 10mg; 3 Aug 5mg; 23 Sep 2.5mg; 2023 1 Jan - OFF

 

1 March 2023 - off all drugs - 6-year taper off three drugs.

 

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  • Moderator Emeritus

Hi @neroli

 

Thanks for dropping by. I did have a little more energy today, but not enough to go out. 

 

I’m sorry you have to give up your black tea, but it’s probably for the best if it’s affecting you. De caffeinated sounds like an idea. I think Liptons makes a decaffeinated English tea. The speciality tea shops have decaffeinated tea as well. I drink herb teas, though have an occasional decaffeinated tea. I haven’t drunk coffee in over thirty years so I really have no craving for caffeine. I was actually thinking of buying some rooibus as well. 

 

Piano playing sounds like fun. I can’t play a musical instrument. I can play the radio 📻😁. Actually I don’t play the radio either, I prefer CDs and Spotify. 

 

How cool you have bees in your garden.🐝🐝 I’d be out there taking photos. I went to the Botanic Gardens one day, and they had all different coloured hibiscus flowers and there were bees on them. So lovely. I took photos. Snap! Snap! Snap! Snap! 📸 You should dry some of that lavender too. 

 

I’m going to have dinner now, I have meat and steamed veggies. Yummy! I eat really healthy. I had a smoothie before with coconut water and berries. 

 

Enjoy your eve. It’s really hot here in Queensland today, I’ve got the aircon on in the bedroom. Time for dinner, I’m hungry!🤤 (Okay, I have to laugh now. When I wrote down hungry autocorrect changed it to ungrounded. What??????🤣

 

Sending hugs🤗💚

 

 

 

Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️
2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor.

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Hope you are back on your feet soon i smiled when yoy you mentioned the aircon im freezing here in the UK but i must say i prefer cold weather at Christmas 😎😨

Jan 2016 SertralineJuly 2016 stopped

Feb 2017 sertraline 50mg

Aug 2017 Sertraline 150mg

Sep 2017 Sertraline 100mg

Nov 2017 Sertraline 50mg 

Feb 2018 Sertraline 25mg

March 2018 Sertraline 12.5 mg 

Jan 2019 to May 2019 Miirtazepine 7.5mg

May 2019 for 3 weeks Citalopram 20mg 

August 2019 Sertraline 100mg

June 2021 off Setraline last dose 6mg

 

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Hello Carmie

 

You are such a dear.  Ever willing and able to see the good things.

 

I've been and done my grocery shopping, 7am, I go early so I can miss the crowds but today with xmas round the corner it was quite busy.  Still, not too bad and it's done now.  These legs are wobbly.

 

I have a friend coming after lunch and we'll see if I can get out for a walk - legs and heat will be the test.

 

I got decaf. tea - Bell brand, don't know if you have that over in Oz.

 

Take care and hope today is a good one for you.

 

Neroli 💜

2006 Citalopram 20mg on and off to 2013.  April 2013 - July 2014  Sertraline, Venlafaxine, Fluoxetine, Mirtazapine v. bad reactions. July 2014 - CT Mirtazapine.  July 2014 - February 2016 Medication free, long term w/d.  February - July 2016 Fluoxetine.  Medication free, long term w/d syndrome.  2017 Jan physical breakdown.

2017 February - March Escitalopram, Nortriptyline instated.  Lorazepam, Zopiclone PRN.  April 2017 Lithium Carbonate 250mg 1 wk. 14 August 2017 finish cross to Diazepam 22.5mg daily, stop Zopiclone

Tapers:

Diazepam 

2017 21 August - 30 Dec 21.25mg to 14.5mg 2018 6 Jan - 11 May to 12mg.  2 June updose to 12.25mg - hold. 2019 (0.5mg cuts) 12 Jan - 28 Dec 12mg to 10mg 2020 (0.25mg cuts) - 25 Jan - 29 Dec 9.75mg to 6.25mg 2021 *May have bungled dose and accidentally took 1mg more for about a month (7.25mg), so 4 Jan started again at 6.5mg; 19 Jan 6.25mg; 1 Feb 6.0mg; 23 Feb 5.75mg; 9 Mar 5.5mg; 23 Mar 5.25mg; 9 Apr 5.0mg; 6 May 4.75mg; 13 May 4.5mg; 6 Jun 4mg; 12 July 3.5mg; 2 sep 3.0mg; 15 Sep 2.5mg; 1 Nov 2mg; 15 Nov 1.5mg; 16 Dec 1mg; 26 Dec 0.5mg; 2022 1 Jan - OFF

Escitalopram - 2022 1 Mar to 9mg; 29 Mar 8mg; 24 May 7mg; 21 Jun 5mg; 19 Jul 4mg; 1 Sep 3mg; 23 Sep 2.5mg; 31 Oct 1.5mg; 22 Nov 0.5mg; 2023 1 Jan 0.25mg; 1 Mar OFF

Nortriptyline  2018 90mg to 2020 1 Dec down to 72.5mg; 2021 20 May 70mg; 8 Jun 67.5mg; 24 Jun 65mg; 31 July 60mg; 12 Oct 55mg; 23 Oct 50mg; 2022 13 Jan 40mg; 22 Jan 30mg; 29 Mar 20mg; 26 Apr 10mg; 3 Aug 5mg; 23 Sep 2.5mg; 2023 1 Jan - OFF

 

1 March 2023 - off all drugs - 6-year taper off three drugs.

 

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  • Moderator Emeritus

Hi @Aquarius @neroli

 

Thanks for your lovely messages. I just got out of bed and had a shower. I keep hearing about different ones having cold showers or cold water dips to stimulate the vagus nerve. I ended my shower this morning with cold water, but because it’s been so warm in Queensland the cold water isn’t really all that cold.🚿😄 You’d probably have really cold water Aquarius. Brrrr!! 

 

Enjoy your tea and lunch with your friend Neroli. I’m actually going to get out and about today at last. Yay!!!!!!🎉

 

Had a good laugh this morning. I sent friends cards with yellow smiley face balloons in them ( major balloon freak here) and one of them just sent me photos of the smiley faces in trees and plants. Cracked me up! It was nice having a laugh first thing in the morning. I’m glad the balloons are enjoying nature as much as I do.🌳😜

 

I’m going out and about in a second. Hope you both have a lovely day💚💚

 

 

 

 

Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️
2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor.

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  • Moderator Emeritus

Hi everyone, how are we all coping  today?

 

I think it’s really important to keep on finding some good distractions while going through withdrawals. 

 

A friend of mine asked me to go up the Coast with her today but I didn’t have the strength. I did get out and about though for a couple of hours. I’m not much of a shopper, but I hit quite a few opshops today, got a few cool summer dresses.

 

There’s an op shop with a cat cuddle cafe next door. You have to pay something to cuddle and play with the cats. It helps raise money for the cats that they are keeping while they are trying to find owners for them. The money from the op shop also goes towards the cats. I only learnt about it recently, and it was too far for me to go, but it’s moving a bit closer to where I live soon. I might go and cuddle cats one day, they need affection. My cat won’t be happy though if it smells other cats on me.😼 

 

Animals make the heart glad. Such a good distraction when going through withdrawals. Yesterday, one of the birds we feed on the balcony walked inside the unit again, he’s really tame, he walks inside all the time like he owns the place. Love him so much, he eats out of my hand.

 

My heart was so warmed when I saw him feeding his baby with the food I gave him. Maybe it’s a her, not a him? I knew he/she was taking food for the babies because of the amount of food taken. Yesterday I saw the feeding on the balcony though. Awww!!!! It warmed my heart so much. I must google if it’s the female or male magpie that feeds its young. 

 

Well, I’m in bed again, I expended the bit of energy I had. I’m going to watch Murdoch Mysteries in a second. I want to wash my opshop clothes too so I can wear them. I tell you what, some of the opshops now are just as expensive as the normal stores. I like though how there are so many eclectic things at opshops though, and if the money goes to a good cause like puddy tats that makes my heart glad. 

 

Take care everyone, one of these days we will all be success stories.

 

Sending love n hugs🤗🤗💚💚

 

Edited by Carmie
Left a long space of nothing at the end before 🤷‍♀️😂

Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️
2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor.

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P.s. Okay, lost the concentration to watch DVDs. Might crank up the music now. One must keep finding distractions to help oneself no matter how we’re feeling. I wonder if I’m on a tangent again today, n will end up doing the p.s.s. and then  the p.s.s.s. even though there is no such thing 🤣🤣.

 

Hang in there everyone. Now what shall I crank up???? 🎤🎤🎼🎼🎼🎹🎹🥁🥁🎷🎷🎸🎸

 

Sending hugs

Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️
2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor.

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  • Moderator Emeritus

P.s.s. Okay, I am on tangent, stop me someone! 🤣 Please listen to music n crank it up if you’re not noise sensitive. What an AMAZING distraction music is. I’m listening to Adam and the Ants now. Don’t laugh, are you laughing??? It was the first concert I ever went to a million years ago in my teens. I’m in my fifties now. The second concert ever was Devo: Whip it good!😄

 

My taste in music is so diverse, I love everything from before I was born to modern music now. I don’t really listen to the radio because I know the kind of music I like and I find it on YouTube n Spotify and then buy CDs. I’ve gone to a million concerts. I would really love to see Tom Chaplin from Keane though as I’ve never seen him, ( Keane are no longer together) but he never comes to Australia, and Muse ( as long as they don’t sing the song with severe swearing in it, I’m not into swearing). The instrumentals that Muse do though are incredible, so intense and Matt Belamy’s voice is amazing. Also, I can’t wait for the Phil Collin’s concert next year. Woohoo! 

 

Hope you’re all finding good distractions 💚💚💚

 

Edited by Carmie
I always leave long spaces at the end🤷‍♀️😂

Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️
2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor.

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