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Carmie: accidently doubling up on seroquel one day while tapering


Carmie

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Sending you hugs right back Carmie🤗

Zoloft 50 mg Fall 2003-October 2016

I went up to 150 mg for several months during the winter of 2016 after going through a tough time trying to stabilize.

Lexapro 5 mg and then 10 mg October 2016-December 2016

Paxil December 2016 to present.  Started at 10 mg went up to 20 mg for three weeks and started reducing by 5mg every 2 weeks per doctors orders.  Got down to 7.5 mg and ran into trouble, found this website and updosed to 10 mg.

 9mg paroxetine June 18-6.5 mg in am 2.5 mg pm.  

July 20 began switch to Citalopram-9 mg Paxil and 5 mg citalopram

July 24-7.5mg paroxetine and 7.5mg Citalopram 

July 27-5mg paroxetine and 10 citalopram 

July 30-2.5 paroxetine and 10 of Citalopram 

August 2-2mg paroxetine and 10mg Citalopram, dropped paroxetine Aug. 3

August 8 increased to 15 mg citalopram

Take 1mg lorazepam as needed and 3mg melatonin at night.

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Hi carmie, 

thank you so much for stopping by multiple times to my thread and providing your kindest support!

i want you know now you are in my thoughts and prayer too! 

 

Also so interstingly jus saw your post about knitting. I was thinking about it this morning as I found it always brings my sxs down even the physical ones like burning, needling, stiffness etc,  it's truly the best technique to cope both mental and physical sxs.

 

i hope I can get it started soon when I feel a bit better. I tried this morning but was too sick to do it, still in bed ridden status.

 

send you healing vibes and love!

 

lex

Drug free Sep. 23 2017

2009 Mar.: lexapro 10mg for headache for 2 weeks.

2009-2012: on and off 1/4 to 1/3 of 10mg

2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain

2013 Jan-Mar: 10 mg generic. severe jaw and head pain;

2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain

2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg,

2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on

2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks.

2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR

2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg

2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg,

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3 hours ago, LexAnger said:

Hi carmie, 

thank you so much for stopping by multiple times to my thread and providing your kindest support!

i want you know now you are in my thoughts and prayer too! 

 

Also so interstingly jus saw your post about knitting. I was thinking about it this morning as I found it always brings my sxs down even the physical ones like burning, needling, stiffness etc,  it's truly the best technique to cope both mental and physical sxs.

 

i hope I can get it started soon when I feel a bit better. I tried this morning but was too sick to do it, still in bed ridden status.

 

send you healing vibes and love!

 

lex

 

Hi Lex, thanks so much for dropping by today, 

 

It’s much appreciated. I’m glad knitting helps you too. Definitely something to get into to help cope with withdrawals. That or crocheting both have the same effect. It’s good that it brings down some of your symptoms too.

 

I find I can’t just sit and watch Netflix or DVDs. I need to be doing something with my hands as well. 

 

I’m bed ridden a lot of the time too like you but it’s not always from withdrawals, it’s the CFS too. I’m lying down all day today.

 

My brain is all over the place today though and I’m feeling numb at the same time so I can’t seem to settle on what I want to watch. I’ve been watching a bit of Gilmore Girls ( my favourite show ever!) and some of Murder She Wrote. I have them on DVD. I watch DVDs in the bedroom and Netflix in the loungeroom. I’ve just gone to lie on the lounge to watch Netflix.

 

Don’t have much concentration so I have to watch something lighthearted or else just watch something and not care whether I take all the info in as I can always watch it again. 

 

I love sci fi, it’s great escapism. I really hope Lost In Space season two comes out soon on Netflix. Actually I might watch a bit of Star Trek Voyager now. 

 

Hope you find find some good distractions too. 

 

Take care Lex and thanks again for dropping by💚

 

 

Been on antipsychotics, benzos, ADs and opiates for chronic pain. 

Was cold turkeyed and put on and off lots of things.Was suicidal n ended up in a psych ward because of akathisia from WDs. Can’t remember what I was put on but when I was released still had severe akathisia n was suicidal again. Back to the ward and more meds. Tapered off one and have been trying to taper off Seroquel since. It’s been many years of tapering. .

Tapered from 300mg of Seroquel to 7.5mg./2019:➡️ March 10=7.25mg ✔️  
April 17=7.0✔️ June 5th=6.75✔️ July 14th=6.50✔️Aug 28=6.25✔️

Oct 10=6.20 ✔️ Oct21=6.0✔️Dec16=5.80 ✔️                                
 2020➡️Jan 21=5.60✔️April 2=5.40✔️May 29=5.20✔️Aug14= 5.0 ✔️Sep 29=4.80✔️
 2021➡️ Jan 31=4.60 mg✔️April 24=4.40mg✔️Jul17=4.30mg ✔️Sep 8=4.20✔️ Oct 11=4.15✔️

 

I AM NOT A MEDICAL PROFESSIONAL. These are my own views based on what I’ve experienced myself.

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  • Moderator Emeritus
On 5/9/2018 at 5:34 AM, Hazel said:

Sending you hugs right back Carmie🤗

 

Hi Hazel, 

 

Missed your hugs from the other day, thank u. 

 

Im glad you’re getting some not too bad times now. It’s good to get a little reprieve here and there. Even if it’s not a lot it helps us to see that there will eventually be windows.

 

I’m still in a windows n waves situation but there are many more windows. 

 

My husband went to get my script for seroquel yesterday but they gave me the seroquel brand instead of the generic. I’m going to take it back n get the generic. I’ve always used the generic n I know there can be discrepancies between brands so I don’t want to risk it. 

 

If anyone else else is reading this, have u found the same thing?

 

Well, I’ve been lying down most of the day, no strength, though I did do some housework. The birds on my balcony are chirping. We feed them every day, we get kookaburras, magpies, mynas etc. Nature is good in this healing process. I wish I lived near the beach, how great would it be to have a beach in walking distance. There’s something soothing about the sound of the waves crashing. 

 

Take care Hazel💚

 

 

 

Been on antipsychotics, benzos, ADs and opiates for chronic pain. 

Was cold turkeyed and put on and off lots of things.Was suicidal n ended up in a psych ward because of akathisia from WDs. Can’t remember what I was put on but when I was released still had severe akathisia n was suicidal again. Back to the ward and more meds. Tapered off one and have been trying to taper off Seroquel since. It’s been many years of tapering. .

Tapered from 300mg of Seroquel to 7.5mg./2019:➡️ March 10=7.25mg ✔️  
April 17=7.0✔️ June 5th=6.75✔️ July 14th=6.50✔️Aug 28=6.25✔️

Oct 10=6.20 ✔️ Oct21=6.0✔️Dec16=5.80 ✔️                                
 2020➡️Jan 21=5.60✔️April 2=5.40✔️May 29=5.20✔️Aug14= 5.0 ✔️Sep 29=4.80✔️
 2021➡️ Jan 31=4.60 mg✔️April 24=4.40mg✔️Jul17=4.30mg ✔️Sep 8=4.20✔️ Oct 11=4.15✔️

 

I AM NOT A MEDICAL PROFESSIONAL. These are my own views based on what I’ve experienced myself.

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  • Moderator Emeritus
34 minutes ago, Carmie said:

 

I’ve always used the generic n I know there can be discrepancies between brands so I don’t want to risk it. 

 

If anyone else else is reading this, have u found the same thing?

 

 

Some people are very sensitive to the differences between brands and various generics, while others don't notice a difference.  It's an individual thing.  It is sensible to try to continue with whichever one your system has become used to.  No point taking the risk if you don't need to.

Edited by Songbird

2001–2002 paroxetine

2003  citalopram

2004-2008  paroxetine (various failed tapers) 
2008  paroxetine slow taper down to

2016  Aug off paroxetine
2016  citalopram May 20mg  Oct 15mg … slow taper down
2018  citalopram 13 Feb 4.6mg 15 Mar 4.4mg 29 Apr 4.2mg 6 Jul 4.1mg 17 Aug 4.0mg  18 Nov 3.8mg
2019  15 Mar 3.6mg  21 May 3.4mg  26 Dec 3.2mg 

2020  19 Feb 3.0mg 19 Jul 2.9mg 16 Sep 2.8mg 25 Oct 2.7mg 23 Oct 2.6mg 24 Dec 2.5mg

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I was switched from brand to generis lexapro by insurance in the middle of Tapper without knowing it. Felt the difference in a bad way. Switched back per request.

 

The thing is, generic and brand name are manufactured by different companies, even the active ingredient is same, other additives are different which can affect a sensitized brain.

Drug free Sep. 23 2017

2009 Mar.: lexapro 10mg for headache for 2 weeks.

2009-2012: on and off 1/4 to 1/3 of 10mg

2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain

2013 Jan-Mar: 10 mg generic. severe jaw and head pain;

2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain

2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg,

2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on

2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks.

2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR

2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg

2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg,

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  • Moderator Emeritus
2 hours ago, Songbird said:

 

Some people are very sensitive to the differences between brands and various generics, while others don't notice a difference.  It's an individual thing.  It is sensible to try to continue with whichever one your system has become used to.  No point taking the risk if you don't need to.

 

Thanks Songbird, I think I have had the original a long time ago. I’m not sure if I’m sensitive to the changes or not but no use taking the risk. When I eventually do the microtapering it will be the generic brand but not the same one I’m getting now as I get the Terry White chemist brand and they don’t compound that. 

1 hour ago, LexAnger said:

I was switched from brand to generis lexapro by insurance in the middle of Tapper without knowing it. Felt the difference in a bad way. Switched back per request.

 

The thing is, generic and brand name are manufactured by different companies, even the active ingredient is same, other additives are different which can affect a sensitized brain.

 

Thanks for replying Lex. Sorry it affected you in a bad way Lex. Aren’t we all so sensitive?

 

Ive been pondering about windows n I was just thinking when I am in windows it isn’t really 80% or 90%. It’s more like 60% or so but it’s a great relief.

 

When we all eventually heal the windows will feel like 100% windows. Yay! Here’s to dancing 💃 when we finally get there! What a relief that will be! 

 

Thanks again for your replies xxxx

 

 

Been on antipsychotics, benzos, ADs and opiates for chronic pain. 

Was cold turkeyed and put on and off lots of things.Was suicidal n ended up in a psych ward because of akathisia from WDs. Can’t remember what I was put on but when I was released still had severe akathisia n was suicidal again. Back to the ward and more meds. Tapered off one and have been trying to taper off Seroquel since. It’s been many years of tapering. .

Tapered from 300mg of Seroquel to 7.5mg./2019:➡️ March 10=7.25mg ✔️  
April 17=7.0✔️ June 5th=6.75✔️ July 14th=6.50✔️Aug 28=6.25✔️

Oct 10=6.20 ✔️ Oct21=6.0✔️Dec16=5.80 ✔️                                
 2020➡️Jan 21=5.60✔️April 2=5.40✔️May 29=5.20✔️Aug14= 5.0 ✔️Sep 29=4.80✔️
 2021➡️ Jan 31=4.60 mg✔️April 24=4.40mg✔️Jul17=4.30mg ✔️Sep 8=4.20✔️ Oct 11=4.15✔️

 

I AM NOT A MEDICAL PROFESSIONAL. These are my own views based on what I’ve experienced myself.

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  • Moderator Emeritus
On 5/9/2018 at 5:34 AM, Hazel said:

Sending you hugs right back Carmie🤗

 

Hi one n all, how are we all going today?

 

Just a few of my thoughts for the day.

 

I think I must have accidentally pressed on your quote from the other day Hazel n I don’t know how to erase it. Anyway, I’m sooooo glad you’re having some better times. It’s great to get a bit of reprieve.

 

I bought one of Claire Weekes’ books but I’m too braindead to read it at the moment. I just skimmed it, it’s really all about fearing fear. We have so many “what if’s.” We start becoming so scared of everything. Every time we taper we become petrified, we become petrified of the symptoms and thus heightening our symptoms even more. 

 

We all know that in the end we will heal, it’s just time, it’s ALWAYS about time. When we are going through waves that never seem to end it seems that there is never an end. I’m still in a windows and waves situation but I am getting some reprieve. I even had a whole day of being in a window this week.

 

When we are in windows that is when we need to start putting strategies in place because when we’re in waves we can’t think straight. 

 

I think one of the best things you can do is go in nature. I remember when I was in such a severe wave that I wanted to die I got someone to take me to the beach. I was still in torture at the beach but at the same time it helped me to cope.

 

Distractions! Distractions! Distractions! That’s all we can do when in waves. I do crafts, mainly knitting n crocheting. Today I bough acrylic paints n I’m going to paint some canvases in the future. You don’t need to be artists to do this, just do abstract painting. 

 

Humour is another amazing thing that can help us cope. I suffer from anhedonia a lot of the time and feel numb but it still perks me up to watch comedies. I’m watching Brooklyn nine nine on Netflix at the moment. 

 

I live in a a sunny state but now that it gets a little cool here n there I love how turning the heater on gives you that lovely cosy feeling. When I stayed at my friend’s place last week we sat outdoors around the fire pit, so beautiful watching the wood burn. 

 

I just want want to say my heart really goes out to all of you, Wishing everyone all the best on your way to recovery💚💚

 

 

 

 

 

Been on antipsychotics, benzos, ADs and opiates for chronic pain. 

Was cold turkeyed and put on and off lots of things.Was suicidal n ended up in a psych ward because of akathisia from WDs. Can’t remember what I was put on but when I was released still had severe akathisia n was suicidal again. Back to the ward and more meds. Tapered off one and have been trying to taper off Seroquel since. It’s been many years of tapering. .

Tapered from 300mg of Seroquel to 7.5mg./2019:➡️ March 10=7.25mg ✔️  
April 17=7.0✔️ June 5th=6.75✔️ July 14th=6.50✔️Aug 28=6.25✔️

Oct 10=6.20 ✔️ Oct21=6.0✔️Dec16=5.80 ✔️                                
 2020➡️Jan 21=5.60✔️April 2=5.40✔️May 29=5.20✔️Aug14= 5.0 ✔️Sep 29=4.80✔️
 2021➡️ Jan 31=4.60 mg✔️April 24=4.40mg✔️Jul17=4.30mg ✔️Sep 8=4.20✔️ Oct 11=4.15✔️

 

I AM NOT A MEDICAL PROFESSIONAL. These are my own views based on what I’ve experienced myself.

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  • Moderator Emeritus

Hi again everyone,

 

Just one last thought for today: 

 

Feeling soo numb but am watching comedy.

 

I really hope that each n every one of you finds distractions to get you through each day.

 

We have to keep looking for the light at the end of the tunnel. Sometimes we can’t see any light at all but if you’re on a train in a literal tunnel there is always light at the end of it. You feel like the tunnel is never going to end but it does eventually. 

 

Im fortunate enough to have lots of friends that help me to keep on going even though they don’t understand what I’m going through. 

 

Here’s to each n everyone of us surviving the hardest fight of our lives.

 

Sending u all a MASSIVE BIG HUG 🤗

 

 

Been on antipsychotics, benzos, ADs and opiates for chronic pain. 

Was cold turkeyed and put on and off lots of things.Was suicidal n ended up in a psych ward because of akathisia from WDs. Can’t remember what I was put on but when I was released still had severe akathisia n was suicidal again. Back to the ward and more meds. Tapered off one and have been trying to taper off Seroquel since. It’s been many years of tapering. .

Tapered from 300mg of Seroquel to 7.5mg./2019:➡️ March 10=7.25mg ✔️  
April 17=7.0✔️ June 5th=6.75✔️ July 14th=6.50✔️Aug 28=6.25✔️

Oct 10=6.20 ✔️ Oct21=6.0✔️Dec16=5.80 ✔️                                
 2020➡️Jan 21=5.60✔️April 2=5.40✔️May 29=5.20✔️Aug14= 5.0 ✔️Sep 29=4.80✔️
 2021➡️ Jan 31=4.60 mg✔️April 24=4.40mg✔️Jul17=4.30mg ✔️Sep 8=4.20✔️ Oct 11=4.15✔️

 

I AM NOT A MEDICAL PROFESSIONAL. These are my own views based on what I’ve experienced myself.

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You are doing so well, Carmie.  I know you are struggling and putting all your effort into getting through this.  You really have some great strategies.  

 

I wonder if you would like to try paint by number.  If you are suffering cog fog it will give you a plan for your painting.  It seems like a great way to distract!  

 

Thanks again for all your posts.

 

Rosetta

https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25

2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period

May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born)

2012-2016 - Doctors raised dose of Zoloft up to 150 mg

2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction)

2016 - Stopped Xanax

Late 2016- Began (too fast) taper of Zoloft

Early 2017 - Trazodone prescribed for bedtime (doseage unknown)

Feb 2017 - Completed taper/stopped Trazodone

Drug free since Feb 2017

2017 - Unisom otc very rarely for sleep

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  • Moderator Emeritus
9 hours ago, Rosetta said:

You are doing so well, Carmie.  I know you are struggling and putting all your effort into getting through this.  You really have some great strategies.  

 

I wonder if you would like to try paint by number.  If you are suffering cog fog it will give you a plan for your painting.  It seems like a great way to distract!  

 

Thanks again for all your posts.

 

Rosetta

 

Paint by numbers sounds like fun Rosetta, 

 

I love an empty canvas and experimenting, though but I have seen them, you never know I might get one one day. I’ll keep a look out. I did a lot of colouring in when I first starting tapering. 

 

I just said to a friend I’ve got new acrylics n am getting some canvases if she wants to join me. She’s too scared to try as she doesn’t think she can paint. I told her all you have to do is pretend you’re a first grader and go for it. They have no inhibition. Just slap it on n makes patterns and the like😃. If you don’t like it just paint over it with white n start again. 

 

By the way, if anyone who has cold turkeyed is reading this, this particular friend cold turkeyed off really high doses of benzos n she has recovered. She went through a really hard time, she felt like she was going to have a stroke but she didn’t. It’s so dangerous cold turkeying off meds, especially benzos as you can have a stroke.

 

I knew nothing about meds back then or withdrawals but I was chatting to her about it this week. What a hard time it would have been. Only now that I’ve been cold turkeyed n am tapering at the moment too do I realize the hell she went through all those years ago. I’m not sure how long it took her to heal but heal she did. 

 

We will all heal eventually. No consolation when you’re in agony but at the same time it gives us hope.

 

Here’s to keeping our hope xxxx

 

 

 

Been on antipsychotics, benzos, ADs and opiates for chronic pain. 

Was cold turkeyed and put on and off lots of things.Was suicidal n ended up in a psych ward because of akathisia from WDs. Can’t remember what I was put on but when I was released still had severe akathisia n was suicidal again. Back to the ward and more meds. Tapered off one and have been trying to taper off Seroquel since. It’s been many years of tapering. .

Tapered from 300mg of Seroquel to 7.5mg./2019:➡️ March 10=7.25mg ✔️  
April 17=7.0✔️ June 5th=6.75✔️ July 14th=6.50✔️Aug 28=6.25✔️

Oct 10=6.20 ✔️ Oct21=6.0✔️Dec16=5.80 ✔️                                
 2020➡️Jan 21=5.60✔️April 2=5.40✔️May 29=5.20✔️Aug14= 5.0 ✔️Sep 29=4.80✔️
 2021➡️ Jan 31=4.60 mg✔️April 24=4.40mg✔️Jul17=4.30mg ✔️Sep 8=4.20✔️ Oct 11=4.15✔️

 

I AM NOT A MEDICAL PROFESSIONAL. These are my own views based on what I’ve experienced myself.

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Hey friend! how are you feeling today??

2001- Klonopin 0.125 mg.  2011- increase to 1 mg.  2018- increase to 1.5 mg

2010- Trials of SSRI's, several.

2011- Saphris 5 mg. CT. 6/2017- retry Saphris 5 mg sublingual, begin taper August 2020 10% taper with scale, and final taper liquid sublingual, August 2019- taper complete!

2011- Geodon 20 mg. Begin taper Sept 2019. 10% liquid taper. 2020: December-5 mg. 2021: Jan-4.5mg. (held Feb.for vacation). March-4mg. Apr-3.6mg. May-3.2mg. June-2.8mg. (Held July for vacation). Aug-2.4mg. Sept.- 2.2mg. Oct. 2mg

2011- Gabapentin 300 mg to present- 2020.

2014- Vyvanse 20 mg, 2020- Vyvanse 5 mg.

2016- Lithium 300 mg, June 2016 - FT.

2017- Cogentin 0.5 mg. June-August 2019- off Cogentin.

Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

Omeprazole 20 mg and holding, Omega 3's/fish oil, Magnesium

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  • Moderator Emeritus
9 hours ago, DMV64 said:

Hey friend! how are you feeling today??

 

Thanks for dropping by DMV, 

 

Pretty braindead today but it’s a combination of withdrawals and CFS. I’ve had a foggy brain for about 23 years due to my illness but with withdrawals on top of it some days I can’t think to save my life. Just got a bit of brain back n thought I’d check out this forum again.

 

Spent a few hours with friends this morning and have been lying down for the rest of the day. Don’t have much strength. Been watching DVDs. 

 

I think I’m all peopled out. I’ve spent a lot of time with friends lately and it’s time to switch my brain off a bit and get a bit centred. I’m usually a lot more balanced between alone time and spending time with friends but recently I stayed with a friend for five days. 

 

I’m married but my husband works full time so I can get a little quiet time on my own during the day. Haven’t got too much on this week, though I’m going to the Imagine Dragons concert. Can’t wait! “Thunder, feel the thunder, lightening n the thunder🎼😃

 

Thanks again for dropping by and im sorry you had such a bad day, sending hugs🤗💚

Been on antipsychotics, benzos, ADs and opiates for chronic pain. 

Was cold turkeyed and put on and off lots of things.Was suicidal n ended up in a psych ward because of akathisia from WDs. Can’t remember what I was put on but when I was released still had severe akathisia n was suicidal again. Back to the ward and more meds. Tapered off one and have been trying to taper off Seroquel since. It’s been many years of tapering. .

Tapered from 300mg of Seroquel to 7.5mg./2019:➡️ March 10=7.25mg ✔️  
April 17=7.0✔️ June 5th=6.75✔️ July 14th=6.50✔️Aug 28=6.25✔️

Oct 10=6.20 ✔️ Oct21=6.0✔️Dec16=5.80 ✔️                                
 2020➡️Jan 21=5.60✔️April 2=5.40✔️May 29=5.20✔️Aug14= 5.0 ✔️Sep 29=4.80✔️
 2021➡️ Jan 31=4.60 mg✔️April 24=4.40mg✔️Jul17=4.30mg ✔️Sep 8=4.20✔️ Oct 11=4.15✔️

 

I AM NOT A MEDICAL PROFESSIONAL. These are my own views based on what I’ve experienced myself.

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hi carmie,

sorry about your brain dead day!

but it seems that you know yourself well enough to rest.

i love to listen to rock music. wear earplugs though, protect those fine hearing cells, they are not meant to survive a highly noisy environment.

some people develop Tinnitus after repetitive exposure to sound (i have Tinnitus, hence the warning!)

 

how long did it take for your friend to recover from her benzo CT? on what dosage was she?

 

 

june 2014 to feb  2015- on xanax 0.25 to 1mg/day- then CT - jan 2016 - panic attack, went on 3.75mg remeron to sleep march 2016- CT remeron (because it caused me tinnitus)- deep depression, couldn't sleep because of  intrusive Tinnitus

april to june 2016- valium 4mg, xanax as needed, lunesta 3mg

june 2016 - valium 4mg, lexapro 10mg

oct 2016- valium 2mg, lexapro 10mg- hold

march 2017- started daily micro liquid taper of valium and lex- -taper speed 0.0033mg valium daily and 0.033mg lex daily

may 2018- valium 1mg, lexapro 2.4mg - i had to slow down the rate of my daily micro taper considerably

LAST dose of Lexapro: 0.05mg on 05/17/19

LAST dose of valium: 0.04mg on 08/18/19

April 26th 2020- intense panic attack that lasted 4 days, akatisia, 0 sleep- suicidal, almost hospitalized- took rescue doses over 2 days- total: 1.5mg xanax, 18mg valium, 2x5mg lexapro

 

 

 

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  • Moderator Emeritus
26 minutes ago, xyz said:

hi carmie,

sorry about your brain dead day!

but it seems that you know yourself well enough to rest.

i love to listen to rock music. wear earplugs though, protect those fine hearing cells, they are not meant to survive a highly noisy environment.

some people develop Tinnitus after repetitive exposure to sound (i have Tinnitus, hence the warning!)

 

how long did it take for your friend to recover from her benzo CT? on what dosage was she?

 

 

 

Hi xyz, 

 

Yes, I must get some ear plugs for the concert. I was thinking about that the other day. I’ve never worn earplugs to concerts and I’ve been to many but I’ve seen some people wear them so I think that would be wise. The last concert I went to was Bryan Adams but it was outdoors n the volume wasn’t too bad. I actually love loud music but like you said I don’t want to end up with tinnitus so I’m off to get earplugs this week. Thanks for the heads up. Don’t need another health problem.

 

My friend was on over 100mg of Valium a day, I have severe memory problems but I think she said about 170mg.  I can’t remember exactly how long it took for her to recover but it was a couple of years. I can’t believe she cold turkeyed that, though at the time I knew nothing about meds. Her doctor was so surprised that she cold turkeyed and said not many people are that strong.

 

I wouldn’t call it strong, I’d call it insane knowing what I know now. I don’t think she knew anything about withdrawals either. Her doctor would have wanted her to taper but his taper schedule would have been real quick too. I go to the same doctor now and he pretty much let’s me do my own tapering as he doesn’t know how to help me. He knows nothing much about withdrawlals.

 

Its pretty sad though that doctors and psychiatrists aren’t taught about how deadly these meds are. All they know is what they are taught at university. 

 

Hope youre doing a little better xyz. I’m still in a windows and waves situation but am getting a few more windows now and they are lasting longer. 

 

Take care, sending hugs🤗

 

 

Been on antipsychotics, benzos, ADs and opiates for chronic pain. 

Was cold turkeyed and put on and off lots of things.Was suicidal n ended up in a psych ward because of akathisia from WDs. Can’t remember what I was put on but when I was released still had severe akathisia n was suicidal again. Back to the ward and more meds. Tapered off one and have been trying to taper off Seroquel since. It’s been many years of tapering. .

Tapered from 300mg of Seroquel to 7.5mg./2019:➡️ March 10=7.25mg ✔️  
April 17=7.0✔️ June 5th=6.75✔️ July 14th=6.50✔️Aug 28=6.25✔️

Oct 10=6.20 ✔️ Oct21=6.0✔️Dec16=5.80 ✔️                                
 2020➡️Jan 21=5.60✔️April 2=5.40✔️May 29=5.20✔️Aug14= 5.0 ✔️Sep 29=4.80✔️
 2021➡️ Jan 31=4.60 mg✔️April 24=4.40mg✔️Jul17=4.30mg ✔️Sep 8=4.20✔️ Oct 11=4.15✔️

 

I AM NOT A MEDICAL PROFESSIONAL. These are my own views based on what I’ve experienced myself.

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  • Moderator Emeritus

Good night from Australia one and all,

 

I’m having a break from the forum for a week or so to focus on my healing journey.

 

Am going to have minimal contact with my friends as well this week as I’m all peopled out. I’ve been spending so much time with friends lately. It’s time to switch off for a bit. 

 

Need to get my equilibrium and focus back.

 

Hope everyone copes as best they can, thinking of you all💚

Been on antipsychotics, benzos, ADs and opiates for chronic pain. 

Was cold turkeyed and put on and off lots of things.Was suicidal n ended up in a psych ward because of akathisia from WDs. Can’t remember what I was put on but when I was released still had severe akathisia n was suicidal again. Back to the ward and more meds. Tapered off one and have been trying to taper off Seroquel since. It’s been many years of tapering. .

Tapered from 300mg of Seroquel to 7.5mg./2019:➡️ March 10=7.25mg ✔️  
April 17=7.0✔️ June 5th=6.75✔️ July 14th=6.50✔️Aug 28=6.25✔️

Oct 10=6.20 ✔️ Oct21=6.0✔️Dec16=5.80 ✔️                                
 2020➡️Jan 21=5.60✔️April 2=5.40✔️May 29=5.20✔️Aug14= 5.0 ✔️Sep 29=4.80✔️
 2021➡️ Jan 31=4.60 mg✔️April 24=4.40mg✔️Jul17=4.30mg ✔️Sep 8=4.20✔️ Oct 11=4.15✔️

 

I AM NOT A MEDICAL PROFESSIONAL. These are my own views based on what I’ve experienced myself.

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46 minutes ago, Carmie said:

Good night from Australia one and all,

 

I’m having a break from the forum for a week or so to focus on my healing journey.

 

Am going to have minimal contact with my friends as well this week as I’m all peopled out. I’ve been spending so much time with friends lately. It’s time to switch off for a bit. 

 

Need to get my equilibrium and focus back.

 

Hope everyone copes as best they can, thinking of you all💚

Good for you Carmie.  You need to do what is best for you at this time in order to heal.  I'll be thinking of you as well and wishing you lot's of healing!

Zoloft 50 mg Fall 2003-October 2016

I went up to 150 mg for several months during the winter of 2016 after going through a tough time trying to stabilize.

Lexapro 5 mg and then 10 mg October 2016-December 2016

Paxil December 2016 to present.  Started at 10 mg went up to 20 mg for three weeks and started reducing by 5mg every 2 weeks per doctors orders.  Got down to 7.5 mg and ran into trouble, found this website and updosed to 10 mg.

 9mg paroxetine June 18-6.5 mg in am 2.5 mg pm.  

July 20 began switch to Citalopram-9 mg Paxil and 5 mg citalopram

July 24-7.5mg paroxetine and 7.5mg Citalopram 

July 27-5mg paroxetine and 10 citalopram 

July 30-2.5 paroxetine and 10 of Citalopram 

August 2-2mg paroxetine and 10mg Citalopram, dropped paroxetine Aug. 3

August 8 increased to 15 mg citalopram

Take 1mg lorazepam as needed and 3mg melatonin at night.

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Wishing you all the best this week, Carmie. 

I hope it really helps.  

Anxiety since I was 5, and my Grandma died.  Depression since at least my early 20s. 

Wellbutrin for unknown length of time in 2009  Guess: 6-9 months.  Cold Turkeyed in Dec 2009. 

Citalopram 40mg end of 2014 until June 2017. Began within a few months after 4th child was born because I crashed. 

Quit CT.  Had no major symptoms until Sept. Took Gaba from spring until near end of Nov 2017

Took St. John's Wort mixed with who knows what else from mid-summer to end of Sept.. 

Clonazepam 0.25 mg once a day since Sept. 18.  To stay sane. 

Rough time since Sept. 18.  Tried to reinstate.  Repeatedly.  Failed.  Bad reaction.  Horrible cortisol spikes

I seem to react badly to anything I take right now.  Except Clonazepam.    

End of December, forgot to take Clonazepam for a few days. Thought I could do without. 

Appears I was wrong,  Jan. 1-2?   Trying to find the right way to deal with things.

Holding at 1/4 of 0.25mg pill morning and night.  Reinstated Jan. 5

Apr. 30, Got a scale.  Measuring roughly .25 mg of a .80mg pill that contains .25mg Clonazepam.  

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On 5/13/2018 at 6:14 AM, Carmie said:

Good night from Australia one and all,

 

I’m having a break from the forum for a week or so to focus on my healing journey.

 

Am going to have minimal contact with my friends as well this week as I’m all peopled out. I’ve been spending so much time with friends lately. It’s time to switch off for a bit. 

 

Need to get my equilibrium and focus back.

 

Hope everyone copes as best they can, thinking of you all💚

Hope all is well Carmie and a break does you good. 

2008 - October 28th, 2016: Zoloft 50 - 150 mgs, settled on 50mgs from 2011 - 2016.
January 23rd - March 1st 2017: Zoloft 50mgs, direct switch to Lexapro.
March 1st - May 1st 2017: Lexapro 10 mgs, down to 5mgs for a week, then off.
June 1st - July 31st 2017: Paxil 20mgs, Lyrica 600mgs
August 1st - September 30th 2017: Paxil 40mgs, Zyprexa 2.5mgs
October 1st  - November 12th 2017: Paxil 60mgs, Zyprexa 2.5mgs
November 12th, 2017 - September 4th 2018: Paxil 40mgs, Zyprexa 2.5mgs 

September 4th - September 27th: Paxil 30mgs, Zyprexa 2.5mgs

September 28th - November 7th: Paxil 20mgs, Zyprexa 2.5mgs (Also Testosterone Therapy started in June 2018 and ended in November 2018)

November 7th 2018 - February 22nd 2019: Paxil 10mgs, Zyprexa 2.5mgs

February 22nd 2019 - April 17th: Zyprexa 2.5mgs, Klonopin 1mgs

April 17th - Now: Zoloft 25mgs, Zyprexa 2.5mgs, Klonopin .5mgs

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  • Moderator Emeritus

Hi one and all,

 

I thought I’d just check in and say you are all so brave in this hardest fight of our lives.

 

I was going to have a week just to myself but my beautiful friends are always there for me and I can’t seem to cut them off even for a week. I hope everyone out there has the same support system. Had a lovely time Wednesday night spending time with friends. I love spending time with kids too and they always cheer me up. I’m a big kid at heart and have a lot in common with them despite being over fifty.

 

One of the kids got me into watching Brooklyn Nine Nine on Netflix and it’s so funny. I watched all four seasons within a month. Great distraction and I think we all need some comedy in our lives. I’m all for distractions. My motto in withdrawals is distraction, distraction, distraction!!

 

We will all eventually come out of the other side of this terror we are going through but at the moment we just have to keep distracting ourselves. I really feel for those of you who have to work, that must be so hard. I’m extremely ill with CFS, which is also a CNS illness and I can’t work. Sometimes the symptoms of CFS and withdrawals are overlapping but I still know when I’m in a wave. There are unmistakable!!!!

 

I have the Imagine Dragons concert tomorrow night, excited!! I go to millions of concerts but I’m excited about this one. Going with two teenagers. The last concert I was extremely excited about was Twenty One Pilots, again went with a teenager. I’m pretty chill when it comes to concerts as it’s the norm for me but every now and again I get excited. 

 

Thank you you so much @DaveB @Waterfall @Hazel for your kind messages. I’m so sorry that you are all struggling so much too. And Waterfall, I love what you wrote on Dave’s thread, it was so insightful. I must write it down n put it in my journal. 

 

@Kristine I’m soooo sorry you are so ill. I’m bedbound a lot of the time too, but it’s a combination of the CFS and withdrawals. I’ve had CFS for over twenty years so I’m used to not being functional a lot of the time, but I tell you what, withdrawals takes it to another level completely. I’m sorry the weighted blanket made you feel claustrophobic. I’m still going to eventually get one when I have the finances. 

 

Hang in there everyone, this is definitely no fun.

 

Sending everyone the BIGGEST HUG EVER💚💚

 

 

Been on antipsychotics, benzos, ADs and opiates for chronic pain. 

Was cold turkeyed and put on and off lots of things.Was suicidal n ended up in a psych ward because of akathisia from WDs. Can’t remember what I was put on but when I was released still had severe akathisia n was suicidal again. Back to the ward and more meds. Tapered off one and have been trying to taper off Seroquel since. It’s been many years of tapering. .

Tapered from 300mg of Seroquel to 7.5mg./2019:➡️ March 10=7.25mg ✔️  
April 17=7.0✔️ June 5th=6.75✔️ July 14th=6.50✔️Aug 28=6.25✔️

Oct 10=6.20 ✔️ Oct21=6.0✔️Dec16=5.80 ✔️                                
 2020➡️Jan 21=5.60✔️April 2=5.40✔️May 29=5.20✔️Aug14= 5.0 ✔️Sep 29=4.80✔️
 2021➡️ Jan 31=4.60 mg✔️April 24=4.40mg✔️Jul17=4.30mg ✔️Sep 8=4.20✔️ Oct 11=4.15✔️

 

I AM NOT A MEDICAL PROFESSIONAL. These are my own views based on what I’ve experienced myself.

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  • Moderator Emeritus

A few last thoughts for the day, 

 

Thanks again everyone for your support. 

 

It’s a day at a time, an hour at a time, a minute at a time. 

 

This forum is amazing for information and support and supporting others. Again, absolutely AMAZING!!!

 

At the same time sometimes we need to also switch off from all the sad stories and try and live our own lives as best we can. It is sooooo hard with this pain we are going through but we also need to focus on strategies. Each and every one of us will find different strategies that work. What works for one person may not work for another.

 

I think we need balance in everything we do and I will be checking into this forum a couple of times a week to see how you are all doing and to learn new things myself. 

 

Wishing everyone the best in their healing and thanks soooo much to those who have connected with me too xxxxx

 

Been on antipsychotics, benzos, ADs and opiates for chronic pain. 

Was cold turkeyed and put on and off lots of things.Was suicidal n ended up in a psych ward because of akathisia from WDs. Can’t remember what I was put on but when I was released still had severe akathisia n was suicidal again. Back to the ward and more meds. Tapered off one and have been trying to taper off Seroquel since. It’s been many years of tapering. .

Tapered from 300mg of Seroquel to 7.5mg./2019:➡️ March 10=7.25mg ✔️  
April 17=7.0✔️ June 5th=6.75✔️ July 14th=6.50✔️Aug 28=6.25✔️

Oct 10=6.20 ✔️ Oct21=6.0✔️Dec16=5.80 ✔️                                
 2020➡️Jan 21=5.60✔️April 2=5.40✔️May 29=5.20✔️Aug14= 5.0 ✔️Sep 29=4.80✔️
 2021➡️ Jan 31=4.60 mg✔️April 24=4.40mg✔️Jul17=4.30mg ✔️Sep 8=4.20✔️ Oct 11=4.15✔️

 

I AM NOT A MEDICAL PROFESSIONAL. These are my own views based on what I’ve experienced myself.

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11 hours ago, Carmie said:

Hi one and all,

 

I thought I’d just check in and say you are all so brave in this hardest fight of our lives.

 

I was going to have a week just to myself but my beautiful friends are always there for me and I can’t seem to cut them off even for a week. I hope everyone out there has the same support system. Had a lovely time Wednesday night spending time with friends. I love spending time with kids too and they always cheer me up. I’m a big kid at heart and have a lot in common with them despite being over fifty.

 

One of the kids got me into watching Brooklyn Nine Nine on Netflix and it’s so funny. I watched all four seasons within a month. Great distraction and I think we all need some comedy in our lives. I’m all for distractions. My motto in withdrawals is distraction, distraction, distraction!!

 

We will all eventually come out of the other side of this terror we are going through but at the moment we just have to keep distracting ourselves. I really feel for those of you who have to work, that must be so hard. I’m extremely ill with CFS, which is also a CNS illness and I can’t work. Sometimes the symptoms of CFS and withdrawals are overlapping but I still know when I’m in a wave. There are unmistakable!!!!

 

I have the Imagine Dragons concert tomorrow night, excited!! I go to millions of concerts but I’m excited about this one. Going with two teenagers. The last concert I was extremely excited about was Twenty One Pilots, again went with a teenager. I’m pretty chill when it comes to concerts as it’s the norm for me but every now and again I get excited. 

 

Thank you you so much @DaveB @Waterfall @Hazel for your kind messages. I’m so sorry that you are all struggling so much too. And Waterfall, I love what you wrote on Dave’s thread, it was so insightful. I must write it down n put it in my journal. 

 

@Kristine I’m soooo sorry you are so ill. I’m bedbound a lot of the time too, but it’s a combination of the CFS and withdrawals. I’ve had CFS for over twenty years so I’m used to not being functional a lot of the time, but I tell you what, withdrawals takes it to another level completely. I’m sorry the weighted blanket made you feel claustrophobic. I’m still going to eventually get one when I have the finances. 

 

Hang in there everyone, this is definitely no fun.

 

Sending everyone the BIGGEST HUG EVER💚💚

 

 

 

Wow some awesome concerts! Imagine Dragons and Twenty One Pilots are my two favorite current bands (and fun.) Sounds like you are doing well, considering the circumstances and enjoying life to your best ability. I agree, @Waterfall's post on my thread was simply amazing!

2008 - October 28th, 2016: Zoloft 50 - 150 mgs, settled on 50mgs from 2011 - 2016.
January 23rd - March 1st 2017: Zoloft 50mgs, direct switch to Lexapro.
March 1st - May 1st 2017: Lexapro 10 mgs, down to 5mgs for a week, then off.
June 1st - July 31st 2017: Paxil 20mgs, Lyrica 600mgs
August 1st - September 30th 2017: Paxil 40mgs, Zyprexa 2.5mgs
October 1st  - November 12th 2017: Paxil 60mgs, Zyprexa 2.5mgs
November 12th, 2017 - September 4th 2018: Paxil 40mgs, Zyprexa 2.5mgs 

September 4th - September 27th: Paxil 30mgs, Zyprexa 2.5mgs

September 28th - November 7th: Paxil 20mgs, Zyprexa 2.5mgs (Also Testosterone Therapy started in June 2018 and ended in November 2018)

November 7th 2018 - February 22nd 2019: Paxil 10mgs, Zyprexa 2.5mgs

February 22nd 2019 - April 17th: Zyprexa 2.5mgs, Klonopin 1mgs

April 17th - Now: Zoloft 25mgs, Zyprexa 2.5mgs, Klonopin .5mgs

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@Carmie and @DaveB

Aw, thanks guys.  

I'm just glad that I could be helpful.  

It's still hard to be patient through these waves, but it helps if we can understand it a little, eh?  

Our poor brains.  😜

Anxiety since I was 5, and my Grandma died.  Depression since at least my early 20s. 

Wellbutrin for unknown length of time in 2009  Guess: 6-9 months.  Cold Turkeyed in Dec 2009. 

Citalopram 40mg end of 2014 until June 2017. Began within a few months after 4th child was born because I crashed. 

Quit CT.  Had no major symptoms until Sept. Took Gaba from spring until near end of Nov 2017

Took St. John's Wort mixed with who knows what else from mid-summer to end of Sept.. 

Clonazepam 0.25 mg once a day since Sept. 18.  To stay sane. 

Rough time since Sept. 18.  Tried to reinstate.  Repeatedly.  Failed.  Bad reaction.  Horrible cortisol spikes

I seem to react badly to anything I take right now.  Except Clonazepam.    

End of December, forgot to take Clonazepam for a few days. Thought I could do without. 

Appears I was wrong,  Jan. 1-2?   Trying to find the right way to deal with things.

Holding at 1/4 of 0.25mg pill morning and night.  Reinstated Jan. 5

Apr. 30, Got a scale.  Measuring roughly .25 mg of a .80mg pill that contains .25mg Clonazepam.  

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  • Moderator Emeritus

Just have to record this today. I’ve had an all day window. Woohoo! 

 

Had a fabulous time last night at the Imagine Dragons concert. So great! We need to find things we love. I loooove music! 

 

Im struggling to think at the moment because of CFS and I just can’t read all the pain everyone is going through at the moment but next week I’ll contact my beautiful support system here again. You know who you are and I really appreciate you with all my heart.

 

I have so many more years of tapering to go but I’m going to hold for a few months now as I need a life. I’m still limited in what I can do because of CFS but I just need a break from the daily massive waves that don’t stop. 

 

Just want to say you are all the bravest people I’ve ever known in my entire life. 

 

I hope you all have an amazing support support system. My friends have been sooooo great. I love them to bits and they are just the best. Despite not knowing the pain I go through they never abandon me. I have friends of all ages, I went to the concert with teenagers. 

 

Sending everyone here the BIGGEST HUG EVER🤗

 

 

 

 

Been on antipsychotics, benzos, ADs and opiates for chronic pain. 

Was cold turkeyed and put on and off lots of things.Was suicidal n ended up in a psych ward because of akathisia from WDs. Can’t remember what I was put on but when I was released still had severe akathisia n was suicidal again. Back to the ward and more meds. Tapered off one and have been trying to taper off Seroquel since. It’s been many years of tapering. .

Tapered from 300mg of Seroquel to 7.5mg./2019:➡️ March 10=7.25mg ✔️  
April 17=7.0✔️ June 5th=6.75✔️ July 14th=6.50✔️Aug 28=6.25✔️

Oct 10=6.20 ✔️ Oct21=6.0✔️Dec16=5.80 ✔️                                
 2020➡️Jan 21=5.60✔️April 2=5.40✔️May 29=5.20✔️Aug14= 5.0 ✔️Sep 29=4.80✔️
 2021➡️ Jan 31=4.60 mg✔️April 24=4.40mg✔️Jul17=4.30mg ✔️Sep 8=4.20✔️ Oct 11=4.15✔️

 

I AM NOT A MEDICAL PROFESSIONAL. These are my own views based on what I’ve experienced myself.

Link to post

Hugs to you Carmie!

So glad to hear you had an all-day window.   Hope you continue to do well🤗

Zoloft 50 mg Fall 2003-October 2016

I went up to 150 mg for several months during the winter of 2016 after going through a tough time trying to stabilize.

Lexapro 5 mg and then 10 mg October 2016-December 2016

Paxil December 2016 to present.  Started at 10 mg went up to 20 mg for three weeks and started reducing by 5mg every 2 weeks per doctors orders.  Got down to 7.5 mg and ran into trouble, found this website and updosed to 10 mg.

 9mg paroxetine June 18-6.5 mg in am 2.5 mg pm.  

July 20 began switch to Citalopram-9 mg Paxil and 5 mg citalopram

July 24-7.5mg paroxetine and 7.5mg Citalopram 

July 27-5mg paroxetine and 10 citalopram 

July 30-2.5 paroxetine and 10 of Citalopram 

August 2-2mg paroxetine and 10mg Citalopram, dropped paroxetine Aug. 3

August 8 increased to 15 mg citalopram

Take 1mg lorazepam as needed and 3mg melatonin at night.

Link to post
  • Moderator Emeritus
15 hours ago, Hazel said:

Hugs to you Carmie!

So glad to hear you had an all-day window.   Hope you continue to do well🤗

 

Thanks for the hugs Hazel, 

 

Just a quick check in here to journal I’m having my second day in a row in a window. Windows are never totally symptom free but about 60% to 70% . Feels good to feel a little more normal. Today is day 78 since I last tapered.

 

💚💚💚

 

 

Been on antipsychotics, benzos, ADs and opiates for chronic pain. 

Was cold turkeyed and put on and off lots of things.Was suicidal n ended up in a psych ward because of akathisia from WDs. Can’t remember what I was put on but when I was released still had severe akathisia n was suicidal again. Back to the ward and more meds. Tapered off one and have been trying to taper off Seroquel since. It’s been many years of tapering. .

Tapered from 300mg of Seroquel to 7.5mg./2019:➡️ March 10=7.25mg ✔️  
April 17=7.0✔️ June 5th=6.75✔️ July 14th=6.50✔️Aug 28=6.25✔️

Oct 10=6.20 ✔️ Oct21=6.0✔️Dec16=5.80 ✔️                                
 2020➡️Jan 21=5.60✔️April 2=5.40✔️May 29=5.20✔️Aug14= 5.0 ✔️Sep 29=4.80✔️
 2021➡️ Jan 31=4.60 mg✔️April 24=4.40mg✔️Jul17=4.30mg ✔️Sep 8=4.20✔️ Oct 11=4.15✔️

 

I AM NOT A MEDICAL PROFESSIONAL. These are my own views based on what I’ve experienced myself.

Link to post

Good work carmie and so happy for you!

Slow and steady wins!

Hugs,

Lex

Drug free Sep. 23 2017

2009 Mar.: lexapro 10mg for headache for 2 weeks.

2009-2012: on and off 1/4 to 1/3 of 10mg

2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain

2013 Jan-Mar: 10 mg generic. severe jaw and head pain;

2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain

2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg,

2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on

2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks.

2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR

2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg

2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg,

Link to post

Awesome Carmie so happy for you!

I love when that happens to me, it kinda put all the suffering in perspective and gives me hope again.

Keep holding! Xoxoxo

june 2014 to feb  2015- on xanax 0.25 to 1mg/day- then CT - jan 2016 - panic attack, went on 3.75mg remeron to sleep march 2016- CT remeron (because it caused me tinnitus)- deep depression, couldn't sleep because of  intrusive Tinnitus

april to june 2016- valium 4mg, xanax as needed, lunesta 3mg

june 2016 - valium 4mg, lexapro 10mg

oct 2016- valium 2mg, lexapro 10mg- hold

march 2017- started daily micro liquid taper of valium and lex- -taper speed 0.0033mg valium daily and 0.033mg lex daily

may 2018- valium 1mg, lexapro 2.4mg - i had to slow down the rate of my daily micro taper considerably

LAST dose of Lexapro: 0.05mg on 05/17/19

LAST dose of valium: 0.04mg on 08/18/19

April 26th 2020- intense panic attack that lasted 4 days, akatisia, 0 sleep- suicidal, almost hospitalized- took rescue doses over 2 days- total: 1.5mg xanax, 18mg valium, 2x5mg lexapro

 

 

 

Link to post
  • Moderator Emeritus
On 5/20/2018 at 4:22 PM, LexAnger said:

Good work carmie and so happy for you!

Slow and steady wins!

Hugs,

Lex

 

Hi Lex, thanks for dropping by. Yes, it does feel great to get lots of long windows again, and I’m going to hold for a few months now.  Going to spend more time with friends, go on a holiday, start some new crafts, and the list goes on. I still spend lots of time lying down and in bed  though because of the CFS. I’ve learnt to be very balanced in the last twenty years or so.

 

While I’m getting long windows I’m going to do lots of organising and a bit of spring cleaning because I won’t stand a chance of doing that when I’m in a wave. 

 

Hope you’re coping ok today💚

 

 

On 5/18/2018 at 3:12 AM, DaveB said:

 

Wow some awesome concerts! Imagine Dragons and Twenty One Pilots are my two favorite current bands (and fun.) Sounds like you are doing well, considering the circumstances and enjoying life to your best ability. I agree, @Waterfall's post on my thread was simply amazing!

 

Hi Dave, 

Yep, Imagine Dragons concert was great. Radioactive is AMAZING live. The instrumental in that is fantastic. I knew they would finish off on that song, and they did. 

 

Im so glad to read about you getting windows now too, very happy for you Dave💚

 

On 5/18/2018 at 6:13 AM, Waterfall said:

@Carmie and @DaveB

Aw, thanks guys.  

I'm just glad that I could be helpful.  

It's still hard to be patient through these waves, but it helps if we can understand it a little, eh?  

Our poor brains.  😜

 

Hi Waterfall, 

 

All I can say is it definitely is hard being patient through waves, you’re so right there. 

 

Like you said, it does help though to understand it. 

 

Thanks again for that great post and I hope you’re not doing too bad at this minute💚

 

 

On 5/20/2018 at 4:34 PM, xyz said:

Awesome Carmie so happy for you!

I love when that happens to me, it kinda put all the suffering in perspective and gives me hope again.

Keep holding! Xoxoxo

 

Hi XYZ, 

It certainly does feel good to get windows.

 

I see you are stopping your benzo taper for a while and are going to taper your other med instead? Is that correct. Will you be coming back to your introductions and update thread.

 

Yes, I’ll definitely be holding for a few months now, maybe three or more. It’s time for a bit of a break💚

Been on antipsychotics, benzos, ADs and opiates for chronic pain. 

Was cold turkeyed and put on and off lots of things.Was suicidal n ended up in a psych ward because of akathisia from WDs. Can’t remember what I was put on but when I was released still had severe akathisia n was suicidal again. Back to the ward and more meds. Tapered off one and have been trying to taper off Seroquel since. It’s been many years of tapering. .

Tapered from 300mg of Seroquel to 7.5mg./2019:➡️ March 10=7.25mg ✔️  
April 17=7.0✔️ June 5th=6.75✔️ July 14th=6.50✔️Aug 28=6.25✔️

Oct 10=6.20 ✔️ Oct21=6.0✔️Dec16=5.80 ✔️                                
 2020➡️Jan 21=5.60✔️April 2=5.40✔️May 29=5.20✔️Aug14= 5.0 ✔️Sep 29=4.80✔️
 2021➡️ Jan 31=4.60 mg✔️April 24=4.40mg✔️Jul17=4.30mg ✔️Sep 8=4.20✔️ Oct 11=4.15✔️

 

I AM NOT A MEDICAL PROFESSIONAL. These are my own views based on what I’ve experienced myself.

Link to post

Hi Carmie!

https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25

2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period

May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born)

2012-2016 - Doctors raised dose of Zoloft up to 150 mg

2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction)

2016 - Stopped Xanax

Late 2016- Began (too fast) taper of Zoloft

Early 2017 - Trazodone prescribed for bedtime (doseage unknown)

Feb 2017 - Completed taper/stopped Trazodone

Drug free since Feb 2017

2017 - Unisom otc very rarely for sleep

Link to post

Enjoy your time 'off' Carmie....goodness it is well deserved!  Enjoy the view from your windows!!!  Life is good!!!   Take care!  Will be thinking about you!!

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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  • Moderator Emeritus
6 hours ago, Rosetta said:

Hi Carmie!

 

Hi Rosetta and everyone else on here, 

 

Just checking in briefly to document I’m still in a window. Actually woke up in a window. Mornings are usually the worst and I wake up shaky or with vibrations in my body, but none today. Yay!! It’s 11.30am and I’m still in a window. 

 

Windows make us realise we will eventually heal even if it takes us many, many years.

 

Sending big, big hugs to everyone out there who is going through this horrific process🤗🤗💚💚

Been on antipsychotics, benzos, ADs and opiates for chronic pain. 

Was cold turkeyed and put on and off lots of things.Was suicidal n ended up in a psych ward because of akathisia from WDs. Can’t remember what I was put on but when I was released still had severe akathisia n was suicidal again. Back to the ward and more meds. Tapered off one and have been trying to taper off Seroquel since. It’s been many years of tapering. .

Tapered from 300mg of Seroquel to 7.5mg./2019:➡️ March 10=7.25mg ✔️  
April 17=7.0✔️ June 5th=6.75✔️ July 14th=6.50✔️Aug 28=6.25✔️

Oct 10=6.20 ✔️ Oct21=6.0✔️Dec16=5.80 ✔️                                
 2020➡️Jan 21=5.60✔️April 2=5.40✔️May 29=5.20✔️Aug14= 5.0 ✔️Sep 29=4.80✔️
 2021➡️ Jan 31=4.60 mg✔️April 24=4.40mg✔️Jul17=4.30mg ✔️Sep 8=4.20✔️ Oct 11=4.15✔️

 

I AM NOT A MEDICAL PROFESSIONAL. These are my own views based on what I’ve experienced myself.

Link to post

Very happy for You! Enjoy ever minute of it and hold on to it when the tough time comes.

Lots Hugs!

 

Drug free Sep. 23 2017

2009 Mar.: lexapro 10mg for headache for 2 weeks.

2009-2012: on and off 1/4 to 1/3 of 10mg

2012 June--2013 Jan,: 1/4-1/3 of 10mg generic, bad jaw pain

2013 Jan-Mar: 10 mg generic. severe jaw and head pain;

2013 Mar--Aug. started tapering (liquid ever since) from 10 to 5 (one step) then gradually down to 2.25 mg by July. first ever panic attack, severe head/jaw pain

2013 Aug.: back to 2.75 mg; Nov: back to Brand Lex. 2.75mg -- 3mg,

2014 June: stopped PPI, head pressure/numbness. up-dosed 4.5mg, severe reaction mental symptoms added on

2014 Aug--2015 Aug: Micro taper down to 3.2mg, .025mg (<1%) cut holding 2-3 weeks.

2015 Aug 15th, Accidental one dose of 4.2mg. worsening brain non-functional, swollen head, body, coma like, DR

2016 Feb., started dosing 10am through 11 pm everyday 2/13--3.2mg, 3/15-- 2.9mg, 4/19-- 2.6mg, 6/26--2.2mg, 7/22 --1.9mg, 8/16--1.8mg,8/31--1.7m g, 9/13--1.6mg, 9/27--1.5mg, 10/8--1.4mg, 10/14--1.3mg, 11/1--1.2mg, 11/29--1.1mg, 12/12--1mg, 12/22--0.9mg

2017: 1/7--0.8mg, 1/15--0.7mg, 1/17--0.6mg, 1/20--0.52, 1/21--0.4mg, 1/22--0.26, 1/23--0.2, 2/13--0.13mg, 2/20--0.06mg, 3/18--0.13mg, 6/1--0.12mg, 7/6--0.1mg, 7/14--0.08mg, 8/17--0.04mg, 8/20--0.03mg, 8/28--0.02mg, 9/6--0.0205mg, 9/8--0.02mg, 9/17--0.015mg, 9/20--0.01mg, 9/21--0.0048mg, 9/22--0.0001mg,

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  • Moderator Emeritus
4 hours ago, Rabe said:

Enjoy your time 'off' Carmie....goodness it is well deserved!  Enjoy the view from your windows!!!  Life is good!!!   Take care!  Will be thinking about you!!

 

Thanks Rabe, 

 

Nice of you to drop by and thanks for thinking of me, it means a lot. Yes, it certainly is great being in a window. Yes, I’m enjoying the view😀. Not looking forward to tapering again in three months or so but I’m not going to think about that now. Just going to enjoy some breathing room.

 

Im hoping to go and visit a friend at the end of next week and stay a few days. She’s got a fire pit in the backyard, and how relaxing is it to sit around the fire in the evening. Can’t wait. 

 

In bed for most of the day today, not because because of withdrawals but because of CFS. Am watching Gilmore Girls. Have watched it a million times. Best show ever!!! I love shows with quirky characters. 

 

I keep changing my mind as to how often to check into this forum. Sometimes I can’t cope with all the sadness, but at other times I think how amazing the support is here. 

 

Hope you’re coping okay today Rabe, Sending hugs🤗🤗

 

 

2 hours ago, LexAnger said:

Very happy for You! Enjoy ever minute of it and hold on to it when the tough time comes.

Lots Hugs!

 

 

Thanks Lex for the hugs, much appreciated, 

 

Yes, the windows certainly help us to see that when we are in waves that better times are ahead. One day at a time is all we can do. I know that when I’m eventually off seroquel many, many years from now I will get rebound insomnia and withdrawals more severe than I have now but you can’t dwell on the fear of the future. All you can do is live in this very moment and make the most of it.

 

Sending hugs right back at you🤗🤗

 

Been on antipsychotics, benzos, ADs and opiates for chronic pain. 

Was cold turkeyed and put on and off lots of things.Was suicidal n ended up in a psych ward because of akathisia from WDs. Can’t remember what I was put on but when I was released still had severe akathisia n was suicidal again. Back to the ward and more meds. Tapered off one and have been trying to taper off Seroquel since. It’s been many years of tapering. .

Tapered from 300mg of Seroquel to 7.5mg./2019:➡️ March 10=7.25mg ✔️  
April 17=7.0✔️ June 5th=6.75✔️ July 14th=6.50✔️Aug 28=6.25✔️

Oct 10=6.20 ✔️ Oct21=6.0✔️Dec16=5.80 ✔️                                
 2020➡️Jan 21=5.60✔️April 2=5.40✔️May 29=5.20✔️Aug14= 5.0 ✔️Sep 29=4.80✔️
 2021➡️ Jan 31=4.60 mg✔️April 24=4.40mg✔️Jul17=4.30mg ✔️Sep 8=4.20✔️ Oct 11=4.15✔️

 

I AM NOT A MEDICAL PROFESSIONAL. These are my own views based on what I’ve experienced myself.

Link to post

Hi Carmie...oh yes...a fire pit is WONderful, especially at night with the stars out...beautiful!!!  Enjoy!!!

 

I have been dx with CFS as well...not fun...SO fatigued on and off for so long can't even remember when it started...I empathize and am sorry you deal with that.  Happy to hear you are resting and watching your shows...good medicine!

 

I know...sometimes I cry...OFten I cry reading what is posted here...my heart seems to just overflow with all the emotions and feelings.  But, as you said, the support is SO essential to healing.  Coming here has been the best medicine I have had....and I found it just by chance while searching the internet.  This is a true gift!  Not sure how they do it , but I have said God's work is being done here.

 

Thank you for thinking of me Carmie...means so much!  I had a very nice day, difficult but wonderful, and am grateful!!  Continue to take care of you!  Hope you feel better soon!!  Love and hugs Carmie!!

-Nardil 1976 < year, stopped. React to AD's. Klonopin .5BID 1990, 2.5mg til 2016

-Klonopin doubled Jan '16. Taper to 2.25mg May to Nov '16. Bad react to Lexapro, stop. React to Prevacid too, taper off. 

-November '16 Tapered .25mg Klonopin in hospital. Jan '17 started Viibryd, 20mg from Feb to June '17,     

-20mg to 10mg Viibryd from 3/25 to 6/10 2017, 12/15 10% Viibryd taper...back up next day

-Clonazepam 2mg to 1.85mg 4/14 '17 to end November; taper to 1mg Clonazepam in hospital 9/1 tp 9/14 '17

-Feb '18 Amiloride .25mg  5/18 off Amiloride d/t react. Clonaz compounded  

-4/27 '18 Viibryd 9.5mg, 6/11 9.0 mg, 1/27 '19 Viibryd 8.75mg, ; Clonazepam .2mg 530pm and .7mg 1130pm, Premarin .3mg 830PM CARAFATE QID 2/27/19 to 3/5/19

-July 6'19 1/2 10mg Claritin 230pm, stopped it about July 18, started Oct 11 '19, 

-7/27 Viibryd 8.5, 8/29 8.25, 10/24 8.0, 12/19 7.75, Feb '20 7.50, 3/20 7.25, 5/20 7.0, 6/20 6.75, 7/20 6.5, 8/20 6.25, 10/2 20 6.0, 11/25'20 5.75, 1/9/21 5.5, 2/23 5.25

-1015 AM Viibryd, vit D 4,000IU 130, 415 Clonazepam .2mg, 815 Premarin .3mg, 1015 Clonaz .7mg,

  1115 3t fish oil+D 1145 Castor Oil 650mg(4) 1230 Carafate 1/2GM,Methylated B Vit  1/week,Reacted Mag prn

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  • Moderator Emeritus

Okay, one and all on this site, it’s time for a rant.

 

First of all I’d like to say this site is amazing and I thank @Altostrata sooo much.

 

I try and stay away from this site for a few days at a time as it hurts me so much seeing everyone else in pain. At the same time though it’s amazing to have this community to vent how we are feeling, our success and our pain. We really need this, as no one out there understands the pain we go through.

 

Im incredibly fortunate to have a lot of friends who are always there for me despite not knowing what I go through. It pains me so much when I read some of you don’t have that support system in the real world.

 

I’m in a window now, which I’m soooo grateful for and I’m not going to taper again for at least three months. The way I’m going it might take me ten years to get off these meds but I don’t want to be suicidal again. 

 

The medical professions and the pharmaceutical companies are in cahoots and we are all in this mess because it really is a big money making business.

 

My downhill spiral started because of chronic pain and they milked it for all it was worth and I’ve been in torture for such a long time because of it.

 

That being said, getting upset with these institutions doesn’t help us. We need to make peace with it and live each day as it comes. Getting upset with what people have done to us doesn’t change anything. 

 

We need to think in in terms of practically. What can we do to help ourselves each and every day.

 

In this forum we can see so much helpful advice to help us with different symptoms.

 

When we’re in a severe wave though we feel nothing helps. All we can do is to keep distracting ourselves so we stay alive.

 

Distractions! Distractions! Distractions! is always my motto. I’m not really a tv watcher but I watch dvds and Netflix when I’m in waves. I crochet non stop. I’ve made a million blankets for friends. It gives me a great distraction n is therapeutic while at the same time making me happy as I have presents to give to people. 

 

Hang in there everyone, my heart goes out to all and I appreciate your support soooo much💚💚💚

 

 

 

 

Been on antipsychotics, benzos, ADs and opiates for chronic pain. 

Was cold turkeyed and put on and off lots of things.Was suicidal n ended up in a psych ward because of akathisia from WDs. Can’t remember what I was put on but when I was released still had severe akathisia n was suicidal again. Back to the ward and more meds. Tapered off one and have been trying to taper off Seroquel since. It’s been many years of tapering. .

Tapered from 300mg of Seroquel to 7.5mg./2019:➡️ March 10=7.25mg ✔️  
April 17=7.0✔️ June 5th=6.75✔️ July 14th=6.50✔️Aug 28=6.25✔️

Oct 10=6.20 ✔️ Oct21=6.0✔️Dec16=5.80 ✔️                                
 2020➡️Jan 21=5.60✔️April 2=5.40✔️May 29=5.20✔️Aug14= 5.0 ✔️Sep 29=4.80✔️
 2021➡️ Jan 31=4.60 mg✔️April 24=4.40mg✔️Jul17=4.30mg ✔️Sep 8=4.20✔️ Oct 11=4.15✔️

 

I AM NOT A MEDICAL PROFESSIONAL. These are my own views based on what I’ve experienced myself.

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  • ChessieCat changed the title to Carmie: accidently doubling up on seroquel one day while tapering

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