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Carmie: accidently doubling up on seroquel one day while tapering

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Songbird

(((BIG HUGS))) for you too, Carmie!

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Rabe

Thinking about you Carmie and hoping things are going ok for you and that some of th stress and diminished.  Love and hugs to you!💜

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Sunnyday

Hi Carmie! I can see you've been in some waves from the taper. I've been very busy (and stressed) with life so have not been on SAD as much as I would like to post.

It's a nice idea to share your gratitude lists, I think when people have a hard time finding things themselves it can still be very uplifting to see someone else's, at least for me. I'm doing them myself since a long while back on and off in a notebook and I've shared it once with a friend when asked, and it cheered them up a lot.

 

Hope you are doing okay at the moment and that whatever you are going through will get easier soon. Most things do with time, even if it doesn't always feel like it.

 

Many hugs!

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neroli

Hi Carmie

 

Good to hear you've had some ok times.  Hope this wave recedes soon

 

Take care, best of wishes

 

Neroli 💜

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hayduke

Hey Carmie, hope your weekend is pleasant and relaxing

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bhasski

Thinking about you. How r u doing?

Hoping you are better and going smooth through hardships.

 

Bhasski

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JackieDecides

thank you for setting such a good example for us Carmie with your gratitude list! 

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eymen23

@Carmie,

 

A wonderful gratitude list as always. I have been thinking of you today, how are you doing? 

 

It would be great to hear from you when you get a chance.

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Carmie

Hi everyone, thanks so much for dropping around, 

On 8/14/2019 at 7:49 PM, Songbird said:

(((BIG HUGS))) for you too, Carmie!

 

Thanks for the hugs songbird, right back at you. I’m a big hugger, ask my friends🤣🤗🤗🤗🤗🤗

 

On 8/16/2019 at 12:31 PM, Rabe said:

Thinking about you Carmie and hoping things are going ok for you and that some of th stress and diminished.  Love and hugs to you!💜

 

Thanks for your kind thoughts Rabe, I’m still going through lots of stress, but one day at a time does it.💚

 

On 8/17/2019 at 4:06 AM, Sunnyday said:

Hi Carmie! I can see you've been in some waves from the taper. I've been very busy (and stressed) with life so have not been on SAD as much as I would like to post.

It's a nice idea to share your gratitude lists, I think when people have a hard time finding things themselves it can still be very uplifting to see someone else's, at least for me. I'm doing them myself since a long while back on and off in a notebook and I've shared it once with a friend when asked, and it cheered them up a lot.

 

Hope you are doing okay at the moment and that whatever you are going through will get easier soon. Most things do with time, even if it doesn't always feel like it.

 

Many hugs!

 

Hi Sunnyday, Yes, I’ve had lots of waves recently, but they’re settling now. Not sure when I’ll taper again. Today is day 39 since my last taper. I tapered on day 39 last time, but I’m not ready to do so tonight. Maybe at the end of the week, just have to try and get a bit of the stress down before I taper again. 

 

 I haven’t actually been on here a lot lately either. I’ve had so much on my plate and I’m chronically ill so I haven’t had much to give  physically or emotionally. 

 

Yes, I think looking at the things we are all still grateful for is extremely important. I can always find tons of things I’m grateful for.

Keep putting those gratitude lists in your notebook,  many hugs to you too🤗🤗

 

 

On 8/17/2019 at 6:28 PM, neroli said:

Hi Carmie

 

Good to hear you've had some ok times.  Hope this wave recedes soon

 

Take care, best of wishes

 

Neroli 💜

 

Thanks Neroli, the waves are subsiding now. Yay!!💚

 

On 8/17/2019 at 6:32 PM, hayduke said:

Hey Carmie, hope your weekend is pleasant and relaxing

 

Hi Hayduke, yes I had a lovely weekend catching up with lots of friends, it was very encouraging 💚

 

On 8/18/2019 at 12:49 AM, bhasski said:

Thinking about you. How r u doing?

Hoping you are better and going smooth through hardships.

 

Bhasski

 

Hi Bhasski, thanks for thinking of me. I’m not too bad today, I even had the strength to walk to the shops and do a bit of grocery shopping. One must eat.😁💚

 

9 hours ago, eymen23 said:

@Carmie,

 

A wonderful gratitude list as always. I have been thinking of you today, how are you doing? 

 

It would be great to hear from you when you get a chance.

 

Hi eymen, Thanks for dropping by and thinking of me. I’m not too bad today. How have you been doing? How’s your tapering going? Sending hugs🤗

 

On 8/19/2019 at 11:27 PM, JackieDecides said:

thank you for setting such a good example for us Carmie with your gratitude list! 

 

You’re welcome JackieDecides, though I’m not an inventor of gratitude lists😁, sending hugs to you🤗

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neroli

Hello Carmie

 

On 8/22/2019 at 10:24 PM, Carmie said:

I haven’t actually been on here a lot lately either. I’ve had so much on my plate and I’m chronically ill so I haven’t had much to give  physically or emotionally. 

 

I so understand what you mean - there are times when you need to take care of yourself, especially as the stress you've been coping with has been there for quite a while and you've had the waves to deal with. (Though glad they're calming down now)

 

It's good that you are still able to distract and that you've had some precious time with your dear friends.

 

sending love and best wishes - and thank you for dropping by on my thread, that's very kind of you

 

Neroli 💜

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Carmie

Hi Neroli, 

 

Thanks for dropping by. Yes, self care is certainly important when going through withdrawals and my friends have been amazing too. I’m barely functional a lot of the time though due to my illness, and stress very makes it worse.

 

Today is day 43 ( just over six weeks) since tapering from 6.75mg to 6.50mg. I’m hoping to drop to 6.25mg either tonight or tomorrow night. I’m always happy when I have a little less of the medication in my body. Let’s see what this next taper will be like, each one is different. My waves lasted longer with this last one compared with the one before. 

 

Okay, here goes my list of things I’m grateful for:

 

1. Went for a drive up the Coast last week with a friend. We were dropping her mum off and we only stayed for over an hour up there, but I loooooove road trips. It was four hours each way so I had a pleasant time.🚗🚗🚗 I find going on road or train trips really relaxing.

2. The ocean was beautiful up the Coast. It was a gorgeous shade of turquoise.🌊

3. We had lunch at the boat club overlooking the water at the marina. So pretty.🚤🛥

4. Spent the day with friends on Friday. It was nice having heart to hearts. They live opposite a river so it was lovely sitting on the balcony and watching the sun reflect on the water.☀️

5. I got myself a new weighted blanket. Love it!🛌

6. Watched a black and white movie yesterday. Black and white movies are so cool! There are heaps on YouTube. 📺

7. Watched Somebody Feed Phil on Netflix again. Love the expressions on his face when he tries new food 🍱🍝🍜🍲🥗🥘

8. Managed to get some more errands done. Yay!🎉

9. Might be going out for Thai food with a friend tomorrow. Yummy!😋

10. I’m in my cosy bed today. Don’t have much strength to do anything but I am grateful for my bed.🛏

 

Take care💚💚

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Gridley
3 minutes ago, Carmie said:

I’m in my cosy bed today.

Sounds great!

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Carmie

Just documenting: I tapered from 6.50mg to 6.25mg tonight, it’s day 43 since my last taper. Let’s see what the his drop brings.

 

11 hours ago, Gridley said:

Sounds great!

 

Hi Gridley, Yes, it’s always nice to have a comfy bed when one spends a lot of time in it. I must say I need a new pillow though, mine is a little flat. I need something with a bit more support. It looks like I’ll be doing some pillow shopping soon. I’ve never had an underlay either, though you can get all sorts of nice comfy ones, hmmm🤔😁. I’ll think about maybe getting one one day. 

 

I hope you’re coping okay. I keep seeing all these gorgeous photos of Ecuador. You live in such a beautiful country. 

 

Sending hugs to you🤗

 

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Sunnyday

Hope it'll go well and that the waves will be easier this time around Carmie, and that you can maybe find some good ways to destress. Some days it can be very difficult. For me laughter helps a lot (if possible), whether it's from good company or watching comedy. 

 

Hugs! 

 

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Carmie
17 hours ago, Sunnyday said:

Hope it'll go well and that the waves will be easier this time around Carmie, and that you can maybe find some good ways to destress. Some days it can be very difficult. For me laughter helps a lot (if possible), whether it's from good company or watching comedy. 

 

Hugs! 

 

 

Hi Sunnyday, 

 

Thanks so much for dropping by, I’m not sure what this last drop will bring, but I’m okay today withdrawal wise, but I’m really sick CFS wise. I did manage to go for lunch with a beautiful friend and we also got some food from the Asian markets near the restaurant we went to.

 

I have to say though that the area we went to had no atmosphere. Both my friend and I agreed, she was born in Laos. We both like atmosphere. We have new plans for our next adventure and this time it will definitely include atmosphere.

 

I love laughing too. I really liked the cartoon Sing. It was on Netflix but it’s not there anymore in Australia. I must get the DVD. I also love laughter with good friends, I really am blessed with many friends I can have a laugh with. Laughter is the best medicine when going through withdrawals.

 

Sending hugs to you Sunnyday🤗🤗

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Carmie

Just documenting: It’s day two since dropping from 6.50mg to 6.25mg. So far I’m not too bad, though I woke up trembling this morning. Let’s see what the rest of the week brings. A lot of the time waves hit around day five or so, but last time they bad waves didn’t really hit until three weeks in. It would be great if that was the case again this time, but as we know absolutely nothing is linear about withdrawals.

 

Hope everyone is coping the best they can💚

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ShiningLight

Carmie, I think I saw that you are diagnosed with CFS? I found the podcast below to be a really great thing to listen to when I was in a bad way. The podcast is interviewing people who have struggled with illness and what they learned from it. It was created by a lady who is a therapist. If it interests you, don't be deterred by the vanity URL, lol.

 

https://laurenselfridge.com/

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Tom37

Thanks for you post....hope the drop goes as good as it can for you and any waves are manageable. Your definitely right about nothing is certain about wd and that is one of the hardest things to deal with for me. Can’t wait to be able to go to bed each night knowing will be fine next morning. 

 

Keep it up!

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Carmie
1 hour ago, ShiningLight said:

Carmie, I think I saw that you are diagnosed with CFS? I found the podcast below to be a really great thing to listen to when I was in a bad way. The podcast is interviewing people who have struggled with illness and what they learned from it. It was created by a lady who is a therapist. If it interests you, don't be deterred by the vanity URL, lol.

 

https://laurenselfridge.com/

 

Hi ShiningLight, 

 

I’ll check out those links when my brain fog isn’t so severe, can barely think at the moment. I’ve learnt in the last few years that CFS is a CNS illness. Even though I’ve had it for around 25 years I know I can get over it. The only problem at the moment is that  the meds affect the CNS so much so I don’t have any hope of getting well until I’m off these meds and that will take at least another ten years. 

 

I’m fortunate I’m really positive by nature and I can still see a million things I’m grateful for, but I do have a cry every now and again as I have a lot of stress in my life unrelated to withdrawals or my illness. I’m in survival mode a lot of the time, but I will dig myself out. I have the most amazing support system, my friends would do anything for me. I’m there for them and they are there for me, we all keep each other going.

 

Thanks again so much for thinking of me, it means a lot.💚

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Carmie
3 minutes ago, Tom37 said:

Thanks for you post....hope the drop goes as good as it can for you and any waves are manageable. Your definitely right about nothing is certain about wd and that is one of the hardest things to deal with for me. Can’t wait to be able to go to bed each night knowing will be fine next morning. 

 

Keep it up!

 

Thanks for dropping by Tom, 

 

You’re such a trouper. We are all struggling on here, aren’t we? I love all your encouraging posts to others, myself included. 

 

Yes, let’s see how this drop goes. I got heaps of bad waves for a couple of weeks towards the end of the last taper, but fortunately the first three weeks weren’t too bad. I don’t know what will happen this time. Time will tell. In the past a lot of the times waves hit on day five or six. There’s DEFINITELY no telling what will happen with each drop Tom.

 

One of these days we will know how we will be the next morning. I woke up in tremors this morning, but the rest of the day has been okay withdrawal wise, though I’m really sick. 

 

You keep it up too, Thanks again for the encouragement 💚

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direstraits

just wanted to send love and healing thoughts at this difficult time, @Carmie

your strength and positive outlook continues to amaze me.❤️

 

big hugs,ds

🤗🤗🤗

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Sunnyday
On 8/27/2019 at 8:37 AM, Carmie said:

 

Hi Sunnyday, 

 

Thanks so much for dropping by, I’m not sure what this last drop will bring, but I’m okay today withdrawal wise, but I’m really sick CFS wise. I did manage to go for lunch with a beautiful friend and we also got some food from the Asian markets near the restaurant we went to.

 

I have to say though that the area we went to had no atmosphere. Both my friend and I agreed, she was born in Laos. We both like atmosphere. We have new plans for our next adventure and this time it will definitely include atmosphere.

 

I love laughing too. I really liked the cartoon Sing. It was on Netflix but it’s not there anymore in Australia. I must get the DVD. I also love laughter with good friends, I really am blessed with many friends I can have a laugh with. Laughter is the best medicine when going through withdrawals.

 

Sending hugs to you Sunnyday🤗🤗

 

I'm sorry to hear your CFS has been so bad, but glad that you managed to get outside. You're strong for trying to do things despite your illness. 

And I agree, atmosphere is super important to me as well. Hopefully you'll get luckier next time! 

 

I haven't watched Sing yet but I have plans to watch it, seems like a great feel good-movie. 

Having people to laugh with is invaluable. I have a sibling that I always end up laughing with and which I would also consider a best friend. Some people always manage to bring you up.

 

Take care and hope you are doing okay still regarding the waves. 

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ShiningLight

I too am inspired and comforted by your positivity. Helps to know someone else will be here for a long time like me. Lots of drugs to taper very slowly here.

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Carmie
19 hours ago, direstraits said:

just wanted to send love and healing thoughts at this difficult time, @Carmie

your strength and positive outlook continues to amaze me.❤️

 

big hugs,ds

🤗🤗🤗

 

18 hours ago, Sunnyday said:

 

I'm sorry to hear your CFS has been so bad, but glad that you managed to get outside. You're strong for trying to do things despite your illness. 

And I agree, atmosphere is super important to me as well. Hopefully you'll get luckier next time! 

 

I haven't watched Sing yet but I have plans to watch it, seems like a great feel good-movie. 

Having people to laugh with is invaluable. I have a sibling that I always end up laughing with and which I would also consider a best friend. Some people always manage to bring you up.

 

Take care and hope you are doing okay still regarding the waves. 

 

10 hours ago, ShiningLight said:

I too am inspired and comforted by your positivity. Helps to know someone else will be here for a long time like me. Lots of drugs to taper very slowly here.

 

Hi guys, 

 

Thanks for dropping by and for all your lovely messages and kind words. Hope you all managed to cope as best as you could today.

 

Well today is day three since my drop from 6.5mg to 6.25mg. I’m doing okay, though I have been waking up the last few days with the shakes. They disappear though. 

 

Just thought I would do a gratitude list for today. There are always things to be grateful for no matter how hard this life gets. Here goes: 

 

1. I managed to run three errands today despite barely being able to get out of bed this morning. I went back to bed when I got home. I can’t sleep during the day, but  I’m so weak and faint a lot of the time that I have to lie down. No biggie, I’m used to it. So glad I got the errands out of the way. Yay!🎉

2. I just got invited to a friend’s place for dinner and a movie Sunday night. A couple of my other friends are going too. It will be a delicious keto meal which will  include yummy keto desserts. 🍰🍪🥧My friend started keto because of her diabetes. There will be key lime pie and maybe even cookies. She made a carrot cake and has kept a bit for me to try too.🍰🥕🥕🥕

3. I’ve been munching on mung bean sprouts, haven’t bought them for ages but they’re sooooo yummy and a have a crunch to them. Much better than chips. Got a big bag from the Asian supermarket on Tuesday. 

4. I have DVDs and books from the library. 💿📚📚 

5. I’m in bed with a cozy heater on.🛏🔥🔥🔥

6. Some other friends want me to come to their place for dinner in a couple of weeks. They are making me some kind of gluten free dumplings or something along those lines. I’m being spoilt, everyone is cooking me things.🥟🥟🥟😁

7. Also been invited to a barbecue breakfast at a lookout in a couple of weeks. We all bring along whatever we want to barbecue. I don’t eat breakfast, but I’ll watch everyone sizzle their food.🥓🥓🍳🥯 I’m not sure if I’ll get to everything I’ve been invited to as sometimes I’m just too sick, but just the anticipation of fun things to look forward to makes me happy.😁

8. I had a nice cup of dandelion tea with cream. Yummy.

9. I just managed to do a tiny bit of housework before. Yay!🎉

10. It’s lights out in an hour and I’m going to snuggle under my comfy weighty blanket.🛌

 

Good night from Aussie Land. 😀😴😴😴💚

 

 

 

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Rabe

Hi Carmie...hoping things continue to go ok thus far with your taper?  I know you keep busy and that helps a lot!!  Just thinking about you so as you take another step forward.  

Hoping things in your life in general have settled a bit for you as well Carmie!  Love and hugs!💜

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Carmie
On 9/1/2019 at 9:55 AM, Rabe said:

Hi Carmie...hoping things continue to go ok thus far with your taper?  I know you keep busy and that helps a lot!!  Just thinking about you so as you take another step forward.  

Hoping things in your life in general have settled a bit for you as well Carmie!  Love and hugs!💜

 

Hi Rabe, 

 

Thanks for dropping by. Today is two weeks since my taper from 6.50mg to 6.25mg. I’m not doing too bad, though I’m really restless and am struggling to settle. Getting some waves but I’m coping okay.

 

Brain fog is pretty severe,  but that’s my illness. I always have brain fog but sometimes it’s worse than other times. 

 

I want to write a gratitude list on here today but my brain won’t let me think enough to do so, so I’ll have to do it another day. 

 

Hope you’re coping as best you can, sending hugs🤗

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ChessieCat

It's good to see that you are still managing to taper and your dose is getting lower all the time.  A starting dose of 300mg and now down to 6.25mg.  That's really great.

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Carmie
On 9/9/2019 at 10:32 AM, ChessieCat said:

It's good to see that you are still managing to taper and your dose is getting lower all the time.  A starting dose of 300mg and now down to 6.25mg.  That's really great.

 

Thanks for dropping by ChessieCat, 

 

Yes getting down to 6.25mg from 300mg makes me happy too, but I’ve still got about ten years or so of tapering to go. My brain is so sensitised. Brain fog has been pretty severe lately too, part of my illness though, probably not so much the withdrawals as the last two weeks have been fairly bearable. 

 

Okay, I thought I’d write down another gratitude list as I haven’t done so since the end of August, here goes: 

 

1. Went to the ballet on Saturday and saw Romeo and Juliet. Spoiler alert: they die.🤫

2. Had lots of laughs with a friend that Saturday, she’s nutty like me.🤪🥳

3. We took some fun photos of us doing ballet poses. I love taking photos.📸📸

4. Popped over to the museum briefly after the ballet. I haven’t been to the NASA exhibition yet, but I want to go before it finishes at the beginning of next month.🚀🛰🌗

5. Went for a breakfast barbecue with friends on Sunday morning up in the mountains, the view was absolutely spectacular. ⛰

6. Been watching Netflix this afternoon, good ol’ Netflix. 📺

7. Had to run an errand today and on the way home I bumped into friends and chatted to them for quite a while.

8. Going to watch some more Netflix in a second. 

9. I’ve been invited to an engagement party this month and a kitchen tea next month. 

10. A few of my friends are on holiday in the Cook Islands and I love seeing their photos. 

 

Okay, bye for now. My brain is disappearing again.

 

Hope you’re doing okay ChessieCat 💚💚

 

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Sunnyday

@Carmie The spoiler on your list made me laugh. Sounds awesome though, great list.

Hope the brainfog will get better for you soon.

 

Many hugs!

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Carmie
17 hours ago, Sunnyday said:

@Carmie The spoiler on your list made me laugh. Sounds awesome though, great list.

Hope the brainfog will get better for you soon.

 

Many hugs!

 

Hi Sunnyday, 

 

I’m glad I made you laugh. Yes, it feels good to write a gratitude list, no matter how awful we may feel. Today I’m just chilling at home as I only have a little bit of strength, though I’m catching up with friends tonight. I would like to do a tiny bit of ironing if my body lets me. 

 

Today is day 16 since my drop from 6.50mg to 6.25mg. I’ve had some waves and I’m generally feeling restless, but I’m doing okay. I just keep distracting myself. The waves aren’t crashing down too heavily as yet. In my last taper they got bad after three weeks. Who knows what this taper will bring. Withdrawals are all over the place. Brain fog has been severe and I’m struggling to concentrate, so I have to find distractions that don’t take too much concentration.

 

Hope you’re coping as best you can.

 

Sending hugs right back to you🤗

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manymoretodays

Hi Carmie! 

And so nice to see you posting all your grats.

What's up on your music venues to attend?  You must have tickets for some good ones, I'm guessing.

 

I don't know on squeezing a yard sale in this fall(here) for me.  Time will tell.  Might be unloading an old car(but nice one really, fun to drive, just needs work) this week, so that is keeping me busy, along with other life things, now.  Consuelo, my new beetle, VW bug.......served me well for many years and cheaply.  She's been just sitting in the garage for over a year now.  And I'm hopeful that I have a good buyer, also may be able to do own repairs, as needed, for her.  So wish me well with that.

Meantime, good ole Seymour Subaru is running spiffy!  An even older, somewhat gentlemanly car, with many miles.  Yet very grateful for wheels.  Not a lot of easy access to public transportation where I live.

 

And yay......good going Carmie, and woah, down to 6.25 mg on the ugh quel, Seroquel.  You got this one.  Hope the worst of the wave is nearly over.

Many hugs and healings wishes.

 

L, P, H, and G,

mmt

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hayduke

Hey Carmie, glad the cut is going well.  Love your gratitude list!  The NASA exhibition sounds grouse. 

 

I hope the brain fog doesn't stick around too much.

 

Cheers,

Hayduke

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Carmie

Just popping in briefly to record that today is day 19 of my taper, I’ve had waves all day. My brain fog is so thick and I can barely think, though that’s due to my illness. 

 

Thanks @manymoretodays @hayduke for popping by. Will chat soon. My brain is in outer space. 🚀🚀

 

Sending hugs to you both 🤗🤗

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Rosetta

Hi Carmie,  I wish you were feeling better.  Hang in there. -R

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ShiningLight
3 hours ago, Carmie said:

 

Thanks @manymoretodays @hayduke my brain is in outer space. 🚀🚀

 

 

 

Oh Carmie! Feel better soon. Your outer space emoji made me laugh. 

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JackieDecides

feel better soon, Carmie 😍

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