Moderator Emeritus Carmie Posted July 17, 2022 Author Moderator Emeritus Share Posted July 17, 2022 Been so braindead with CFS brain fog and went into a wave a couple of days ago too. My brain is well and truly in lala land, I’m behind in housework as I haven’t had much strength due to my illness and I barely slept last night struggling to breathe. Time to veg out for a while. I’m in survival mode, one day at a time, one hour at a time, one minute at a time. I’m just going to chill and spend the next week with distractions and things that don’t take too much brain power. Don’t have the brain power to be on here at the moment. Sending hugs to all💛🤗 2 Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️ 2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor. Link to comment
Longroadhome Posted July 17, 2022 Share Posted July 17, 2022 Thinking of you @Carmie. Really hoping you start to turn a corner soon. You’re very brave dealing with WD and breathing difficulties too, it must be so hard. Cope in whichever way is best for you. As you say that’s sometimes minute to minute. I’ve just got over Covid (second time) and now I have a sickness bug. Both have ramped up WD symptoms. Keep going it can only get better x 2 Nov 2018 Pregabalin 2x50 mg a day to help with Paxil WD. Aug 2019 2 x 25mg a day, April 2020 45mg, May 40mg, June 35mg, July 30mg, end July 25mg, Aug 24mg, June 2021 14mg, Jan 2022 14mg (2x7mg a day), Oct 10mg, Nov 5mg, December 25th 2022 0mg 🎈 Oct 2004 - Oct 2018 Paxil 20 mg, Nov 15mg, Dec 10mg, Feb 2019 7.5mg crashed, Feb 8.5mg, Nov 8mg, March 2020 7.2mg, April 6.5mg, May 5.9mg, June 5.4mg, July 4.8mg, Dec 4.5mg, Jan 2021 4mg, Feb 3.6mg, March 3.2mg, April 2.9mg, Aug 2.7mg, Sept 2.4mg, Oct 2.2mg, Nov 2mg, Dec 1.8mg, Feb 2022 1.6mg, March 1.4mg, April 1.2mg, May 1.0mg, June 0.8mg, July 0.6mg, Aug 0.4mg, Sep 0.2mg, October 6th 2022 0mg 🎈 December 25th 2022 drug free these dates are approximate Link to comment
Ariel Posted July 17, 2022 Share Posted July 17, 2022 @Carmie I'm sorry you've been struggling so and have gone into a wave. My heart goes out to you. You are so brave dealing with everything on your plate and managing as well as you do. Meanwhile you're so generous here offering support and encouragement to others. Thank you for all that you do and are. May this wave pass quickly, and may you receive moments of peace and respite from myriad other symptoms as well. Sending healing vibes <3 2 1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs) 2012-2018 - 10mg lexapro/escitalopram (20mg?) Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg --> July 2018 - 0mg 2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg 2020-2021 - 70mg down to 0mg --> July 2021 - 0mg March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT) --> April 28th, 2021 - 0mg supplements: magnesium powder (dissolved in water) as needed throughout the day; 1 tsp fish oil w/ morning meal; 2mg melatonin August 1, 2022 - 1 mg melatonin Courage is fear that has said its prayers. - Karle Wilson Baker love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters. - Rev. angel Kyodo williams Holding multiple truths. Knowing that everyone has their own accurate view of the way things are. - text on homemade banner at Afiya house I am not a medical professional; this is not medical advice. Link to comment
Kostas Posted July 17, 2022 Share Posted July 17, 2022 Would be always happy to read anything from you Carmie, anytime.. You are in my thoughts, Kostas 2 Citalopram 20 mg Mid June 1994- end March 1995 Then tapering 3 months Mid August 1995-end August 1996 Tapering 6 months Mid January 2000-end September 2001 Tapering 6 months Mid October 2003-end October 2005 Tapering 7 years. More detailed drug history is here - ☼-kostas Off any drug from October 2012 Link to comment
Mentor ShiningLight Posted July 18, 2022 Mentor Share Posted July 18, 2022 Sending love to you Carmie! I hope you feel better soon. Holding you in my thoughts. 1 Now: 100 mg Zoloft am, 50 mg Trazodone. Daily drug burden decreased from 2050 in 2018 mg to 150 mg 🐢🐢 Zoloft: 1/24/23 increased to 100 mg after suicide attempt 9/17/22 cut 6 mg, 8/14/22 cut 6.5 mg, 5/7/22 cut 12.5 mg 3/20/22 cut 12.5 mg 10/26/21 cut 6 mg 10/17/21 cut 5 mg, 9/17/21 Cut 3 mg, 9/13/21 cut 4 mg, 8/29/21 Cut 2 mg 8/8/21 Cut 3 mg 7/30/21 Zoloft: Converted 25 mg to liquid. Also take 100 mg pill & 25 mg pill=150 mg total🌞 Feb 28, 2021 0 mg Gapapentin 2021 Gaba each dose 4x/day: Feb 27 7 mg (one dose only), Feb 10, 7 mg, Jan 14 10 mg 2020 Current taper schedule from Aug 30-present: drop 8 mg every 2-3 weeks. Aug 20 31 mg, Aug 18, 33 mg, July 29, 35 mg, July 23 38 mg, July 22 40 mg Jun 24 42 mg, Jun 15 44 mg, Jun 9 48 mg, May 22 50 mg, May 14 54 mg, May 7 56 mg, Apr 16 58 mg, Mar 28 60 mg, Mar 18 62 mg. Feb 26 64 mg. Feb 19, 66 mg. Jan 23, 70 mg. 2019 Dec 19, 72 mg. Nov 14 ,76 mg. Aug 8, 80 mg. Aug 6, 85 mg. Jul 26, 90 mg. Jul 11, 95 mg. Jul 16 trazodone from 100 to 50 mg. Jun 17-July 10 Slowly changed gab fr pill to liquid at same dose 100 mg 4x/d. Apr 24 Stopped klon!!! 🌞 Apr 4 Decreased gaba to 400 mg (100 mg 4x/day)-Apr 4, 2019 0.25 klon March 11 Klonopin .5 mg twice daily, varied dose til Apr 15. Started Klon fast taper 25%, short use Mar 16, 450 mg gaba 3x/day cut 600 mg--not exact!--updose after learning w/d Feb 20, 2019 1800 mg gabapentin; MD taper; off 3 days=mvt disorder & autonomic instability. July 2018 temazepam 15 mg 1-2; prn several x/wk til Jan/Feb 2019 when cold turkey, flu illness for months July 2018 started gabapentin 100 3x/day; titrated up to 1800 mg (600 3x/day) Buspar, I forget how much, 2 pills a day Jan 2017-July 2018 cold turkey. On Zoloft since maybe 2004? After trying many. *I speak from my experience. Nothing I say is medical advice. I'm not a doctor. Link to comment
Mentor ShiningLight Posted July 19, 2022 Mentor Share Posted July 19, 2022 Carmie, I love that there's so much caring in your circle. Thinking of you. 🥰 2 Now: 100 mg Zoloft am, 50 mg Trazodone. Daily drug burden decreased from 2050 in 2018 mg to 150 mg 🐢🐢 Zoloft: 1/24/23 increased to 100 mg after suicide attempt 9/17/22 cut 6 mg, 8/14/22 cut 6.5 mg, 5/7/22 cut 12.5 mg 3/20/22 cut 12.5 mg 10/26/21 cut 6 mg 10/17/21 cut 5 mg, 9/17/21 Cut 3 mg, 9/13/21 cut 4 mg, 8/29/21 Cut 2 mg 8/8/21 Cut 3 mg 7/30/21 Zoloft: Converted 25 mg to liquid. Also take 100 mg pill & 25 mg pill=150 mg total🌞 Feb 28, 2021 0 mg Gapapentin 2021 Gaba each dose 4x/day: Feb 27 7 mg (one dose only), Feb 10, 7 mg, Jan 14 10 mg 2020 Current taper schedule from Aug 30-present: drop 8 mg every 2-3 weeks. Aug 20 31 mg, Aug 18, 33 mg, July 29, 35 mg, July 23 38 mg, July 22 40 mg Jun 24 42 mg, Jun 15 44 mg, Jun 9 48 mg, May 22 50 mg, May 14 54 mg, May 7 56 mg, Apr 16 58 mg, Mar 28 60 mg, Mar 18 62 mg. Feb 26 64 mg. Feb 19, 66 mg. Jan 23, 70 mg. 2019 Dec 19, 72 mg. Nov 14 ,76 mg. Aug 8, 80 mg. Aug 6, 85 mg. Jul 26, 90 mg. Jul 11, 95 mg. Jul 16 trazodone from 100 to 50 mg. Jun 17-July 10 Slowly changed gab fr pill to liquid at same dose 100 mg 4x/d. Apr 24 Stopped klon!!! 🌞 Apr 4 Decreased gaba to 400 mg (100 mg 4x/day)-Apr 4, 2019 0.25 klon March 11 Klonopin .5 mg twice daily, varied dose til Apr 15. Started Klon fast taper 25%, short use Mar 16, 450 mg gaba 3x/day cut 600 mg--not exact!--updose after learning w/d Feb 20, 2019 1800 mg gabapentin; MD taper; off 3 days=mvt disorder & autonomic instability. July 2018 temazepam 15 mg 1-2; prn several x/wk til Jan/Feb 2019 when cold turkey, flu illness for months July 2018 started gabapentin 100 3x/day; titrated up to 1800 mg (600 3x/day) Buspar, I forget how much, 2 pills a day Jan 2017-July 2018 cold turkey. On Zoloft since maybe 2004? After trying many. *I speak from my experience. Nothing I say is medical advice. I'm not a doctor. Link to comment
Oaktree1 Posted July 20, 2022 Share Posted July 20, 2022 Carmie I hope that this week has allowed you to have a bit of respite and that you were able to chill out as you said with some distractions. I am hoping that things get better soon and that the breathing difficulties subside. Oaktree 2 Currently tapering Mirtazapine; previously tapered Cymbalta 30mg from June 2018-Feb 2019 and Seroquel 150mg to zero from Oct-December 2020. Supplements for Hashimoto's disease and histamine issues relating to Mirtazapine: Vitamin D3 1,000mcg, bio-identical HRT, Selenium, Quercetin, Lutein, Zinc, Vitamin C, Omega 3. Mirtazapine Taper: 2021 16th Aug - transitioned to liquid from tablet by dissolving two 15mg tablets into a solution of 15 ml water and 15 ml maple syrup on a starting dose of what I thought was 7.5ml; 17 Sept - 7.31; 24 Sept - 7.13; 15 Oct - 6.95; 6 Nov - 6.78; 21 Nov - 6.61; 5 Dec - 6.51; 2022 - 1 Jan 6.41; 1 Feb - 6.1; 9 Mar - 5.8; 13 Mar - 5.9; 7 Apr - 5.8; 21 Apr - 5.7; 7 May - 5.63; 23 May - 5.55; 8 June 5.50; (got COVID on 12th June so held); 1 July 5.4; 15 July 5.32; 8 Aug 5.2; 15 Aug 5.1; 22 Aug 5; 19 Sept 4.9; 2 Oct 4.81; 13 Oct 4.71; (COVID Booster 17/10/22 so longer hold ); 1 Nov 4.65; 3 Nov 4.60; 10 Nov 4.55; 13 Nov 4.50; 17 Nov 4.45; 20 Nov 4.40; 2 Dec 4.30mg; 9 Dec 4.20mg; I discovered that the volumetric container measured 33ml rather than 30ml in Dec 2022. Following helpful advice from moderator OnMyWay (see her reply of the 5th March) discovered taper with the dilution was 3.8mg (calculated by dividing 30/33 so that every 1ml of solution has 0.90ml of Mirtazapine. 7.50 - 0.90= 6.6ml which was the starting dose on 16th Aug 2021 not 7.5ml). I decided to keep using the solution as I didn't want more change to deal with than I had to. 2023 17 Mar 4.1(3.7); 26 Mar 4.0(3.6); 14 Apr 3.9(3.51)28 Apr 3.8(3.42); 6 Jun 3.7(3.33); 19 Jun 3.6(3.24); 30 Jun 3.5(3.1); 19 Jul 3.4(3.06); 27 Jul 3.35 (3.01); 29 Jul 3.3 (2.97); 4 Aug 3.25 (2.92); 7 Aug 3.2 (2.88); 21 Aug 3.1 (2.79); 14.09 3 (2.7); 29th Sept 2.9(2.61); 15 Oct 2.8(2.52); 30 Oct 10 2.7(2.43); 13 Nov 2.65(2.38); 20 Nov 2.6(2.34); 26 Nov 2.55(2.29); 10 Dec 2.5(2.25); 2024 - 14 Jan 2.45(2.20); 22 Jan 2.40(2.16); 29 Jan 2.35(2.11); 2 Feb 2.3 (2.07);15 Feb 2.25(2.02); 22 Feb 2.21 (1.98); 29 Feb 2.17(1.95); 7 Mar 2.13(1.91); 21 Mar 2.05 (1.84); 31 Mar 2.01 (1.80); 14 Apr 1.90 (1.71); This is not 'medical advice' - my 'non medical advice' is don't get any more 'medical advice' or you may end up getting more 'medical treatment' i.e more drugs, DSM labels and/or ECT. Please do not PM me thanks. Link to comment
Moderator hayduke Posted July 22, 2022 Moderator Share Posted July 22, 2022 On 7/17/2022 at 1:39 PM, Carmie said: Been so braindead with CFS brain fog and went into a wave a couple of days ago too. My brain is well and truly in lala land, I’m behind in housework as I haven’t had much strength due to my illness and I barely slept last night struggling to breathe. Time to veg out for a while. I’m in survival mode, one day at a time, one hour at a time, one minute at a time. I’m just going to chill and spend the next week with distractions and things that don’t take too much brain power. Don’t have the brain power to be on here at the moment. Sending hugs to all💛🤗 *Hugs* Carmie. Once again your regular gratitude lists have taught me the habit when things seem glum. I always seem to have better interactions with my communities once I have done these. Hope your discomfort eases before long 1 I am not a health professional - your actions are your own. Please do not seek tapering support via private message - "Any reason to hold is a good one" My taper visualised as a graph | My intro thread Backdrop: 2003 10mg olanzapine | 2004 2-3mg risperidone | end 2014 3wks aripiprazole 2015: olanzapine 10 -> 7½ -> 6⅔ -> 5mg by crude pill cutter 2018: Mar 5.00mg -> water titrated taper -> Aug2.5mg tablet and hold Jan 2019 2.50mg water titration -> Jan 2020 1.214 -> Jan 2021 0.44 -> 2 Oct 0.205 ->3 Oct ZERO🥂 Jun 2023 💉150mg paliperidone "loading" depot shot, 100mg 1wk after Jul 100mg Aug-Dec 75mg/4wks Jul 2023 2.50mg aripiprazole/day attempt to lower prolactin^ Jan-Feb 2024 cross taper off shots to 1mg risperidone Ask not what you can do for your country, but what your country did to you" -- KMFDM Link to comment
Ariel Posted July 27, 2022 Share Posted July 27, 2022 Thinking of you, dear Carmie <3 I hope the wave is easing and you are experiencing more and more moments of peace and relief. Wishing you good rest and recuperation, Sending hugs and healing vibes <3 1 1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs) 2012-2018 - 10mg lexapro/escitalopram (20mg?) Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg --> July 2018 - 0mg 2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg 2020-2021 - 70mg down to 0mg --> July 2021 - 0mg March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT) --> April 28th, 2021 - 0mg supplements: magnesium powder (dissolved in water) as needed throughout the day; 1 tsp fish oil w/ morning meal; 2mg melatonin August 1, 2022 - 1 mg melatonin Courage is fear that has said its prayers. - Karle Wilson Baker love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters. - Rev. angel Kyodo williams Holding multiple truths. Knowing that everyone has their own accurate view of the way things are. - text on homemade banner at Afiya house I am not a medical professional; this is not medical advice. Link to comment
Moderator Emeritus Carmie Posted July 29, 2022 Author Moderator Emeritus Share Posted July 29, 2022 Hello all you beautiful people and thank you for your kind words @Longroadhome @Ariel @Kostas @Oaktree1 @ShiningLight @hayduke How are you all doing? I’m so sorry you got Covid a second time Longroadhome, that’s awful. I hope the withdrawal symptoms get a little better for you soon too, it’s amazing how many different things can ramp up withdrawals. I hope that you recover really soon💐 Ariel, I’m not in a wave anymore, but I’m struggling to breathe every day and that’s really taking its toll on me. My immune system has been on an all out attack of my lungs since last year in October, the autoimmunity doesn’t seem to want to go into remission😞 It’s really well and truly taking its toll on me. Such an awful feeling when I wake up in the morning and thinking I’ve got to survive yet another claustrophobic day. Some nights I really struggle to sleep because of my lungs. I’m just taking an hour at a time. Thanks Kostas, your words always make me smile. So you’d be happy to read anything I write? Are you sure??😆 I don’t always make sense😂 When my CFS brain fog is severe🤪🤪 and I can’t think through it maybe I’ll just copy something, do you like song lyrics or maybe some poetry🎼🖊? 😁 I love how song lyrics can really resonate with different things we go through in life. ShiningLight☀️, you’re so right there, there are certainly many caring people on this site. That includes you too. Unless someone is going through withdrawals they really can’t relate. All of us on here can relate to one another and share the ups and downs of this journey. I’m extremely grateful for this site. Oaktree🌳, yes I found lots of distractions to help me get through the last week and it’s almost the end of this week already and I’m continuing with the distractions. I hope you’re finding things that can help you to get through each day too. I’ve never been one who gets bored, I can always find a million things to distract myself with. Sometimes I just have to have a break from social media and forums etc. It can get all too much when you’re struggling every day. It’s not just withdrawals with me, I’ve got so many other health issues and it just gets so overwhelming at times that I can’t take on anything else. Hayduke, how are doing down south? We had a really lovely day today here in Sunny Queensland☀️. We’ve had some cold days, but today was a glorious day for a walk and I sat on the grass near the bike track. Yes, gratitude lists 📝📝can perk one’s spirits, that’s for sure. My brain power is slowly leaving me now so I won’t do one today, but I’ll just say I’m so grateful for something this evening. Actually, I was blown away! A friend of mine said she had some craft items for me and she’d leave them at my front door, I thought that was so lovely. I love arts and crafts and I thought that was so thoughtful of her. Anyway, she messaged me after she dropped it off and I nearly fainted when I saw what she left 😂. Not only was there a ton of art and craft stuff🧶🖌🖼, but also a bunch of flowers💐, a lovely plant🌿, some cat 🐈food and litter, some fruit🍇 and a $300 gift voucher. I’m definitely grateful this evening, and a little overwhelmed. Anyway, I’ll say good night to all you wonderful people. I hope you’re all coping as best you can🧡🧡🧡 1 Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️ 2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor. Link to comment
Ariel Posted July 29, 2022 Share Posted July 29, 2022 Hi there @Carmie It's good to hear from you, thank you for posting your update! 3 hours ago, Carmie said: Ariel, I’m not in a wave anymore, but I’m struggling to breathe every day and that’s really taking its toll on me. My immune system has been on an all out attack of my lungs since last year in October, the autoimmunity doesn’t seem to want to go into remission😞 I'm glad the wave passed and am so sorry your lungs are still bothering you so much from the autoimmune issue. I cannot imagine what you're going through struggling to breathe and being so incapacitated with the autoimmune illness and CFS and WD. My heart goes out to you. You are very brave to carry on and cope as well as you do. Your efforts are truly remarkable. And on top of everything else you are such a generous, positive presence here supporting so many others. You are a rock star <3 3 hours ago, Carmie said: I’ll just say I’m so grateful for something this evening. Actually, I was blown away! A friend of mine said she had some craft items for me and she’d leave them at my front door, I thought that was so lovely. I love arts and crafts and I thought that was so thoughtful of her. Anyway, she messaged me after she dropped it off and I nearly fainted when I saw what she left 😂. Not only was there a ton of art and craft stuff🧶🖌🖼, but also a bunch of flowers💐, a lovely plant🌿, some cat 🐈food and litter, some fruit🍇 and a $300 gift voucher. I’m definitely grateful this evening, and a little overwhelmed. Thank you so much for sharing this experience. It is indeed heartwarming and very moving. It always puts a smile on my face when I read of the many caring people you have in your support system. You seem like such a giving person yourself, I'm glad that you find reciprocity in your relationships as well. You deserve no less! It's so nice to know that communities of care and mutually loving friendships still exist and flourish out there in the world. Thank you for telling us about this aspect of your life, too, it's very hopeful and encouraging. Today I am grateful for you <3 Sending hugs and healing vibes and wishing you moments of ease and relief from symptoms, A. 2 1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs) 2012-2018 - 10mg lexapro/escitalopram (20mg?) Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg --> July 2018 - 0mg 2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg 2020-2021 - 70mg down to 0mg --> July 2021 - 0mg March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT) --> April 28th, 2021 - 0mg supplements: magnesium powder (dissolved in water) as needed throughout the day; 1 tsp fish oil w/ morning meal; 2mg melatonin August 1, 2022 - 1 mg melatonin Courage is fear that has said its prayers. - Karle Wilson Baker love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters. - Rev. angel Kyodo williams Holding multiple truths. Knowing that everyone has their own accurate view of the way things are. - text on homemade banner at Afiya house I am not a medical professional; this is not medical advice. Link to comment
Moderator Onmyway Posted July 30, 2022 Moderator Share Posted July 30, 2022 On 7/29/2022 at 8:03 AM, Carmie said: Hello all you beautiful people and thank you for your kind words @Longroadhome @Ariel @Kostas @Oaktree1 @ShiningLight @hayduke How are you all doing? I’m so sorry you got Covid a second time Longroadhome, that’s awful. I hope the withdrawal symptoms get a little better for you soon too, it’s amazing how many different things can ramp up withdrawals. I hope that you recover really soon💐 Ariel, I’m not in a wave anymore, but I’m struggling to breathe every day and that’s really taking its toll on me. My immune system has been on an all out attack of my lungs since last year in October, the autoimmunity doesn’t seem to want to go into remission😞 It’s really well and truly taking its toll on me. Such an awful feeling when I wake up in the morning and thinking I’ve got to survive yet another claustrophobic day. Some nights I really struggle to sleep because of my lungs. I’m just taking an hour at a time. Thanks Kostas, your words always make me smile. So you’d be happy to read anything I write? Are you sure??😆 I don’t always make sense😂 When my CFS brain fog is severe🤪🤪 and I can’t think through it maybe I’ll just copy something, do you like song lyrics or maybe some poetry🎼🖊? 😁 I love how song lyrics can really resonate with different things we go through in life. ShiningLight☀️, you’re so right there, there are certainly many caring people on this site. That includes you too. Unless someone is going through withdrawals they really can’t relate. All of us on here can relate to one another and share the ups and downs of this journey. I’m extremely grateful for this site. Oaktree🌳, yes I found lots of distractions to help me get through the last week and it’s almost the end of this week already and I’m continuing with the distractions. I hope you’re finding things that can help you to get through each day too. I’ve never been one who gets bored, I can always find a million things to distract myself with. Sometimes I just have to have a break from social media and forums etc. It can get all too much when you’re struggling every day. It’s not just withdrawals with me, I’ve got so many other health issues and it just gets so overwhelming at times that I can’t take on anything else. Hayduke, how are doing down south? We had a really lovely day today here in Sunny Queensland☀️. We’ve had some cold days, but today was a glorious day for a walk and I sat on the grass near the bike track. Yes, gratitude lists 📝📝can perk one’s spirits, that’s for sure. My brain power is slowly leaving me now so I won’t do one today, but I’ll just say I’m so grateful for something this evening. Actually, I was blown away! A friend of mine said she had some craft items for me and she’d leave them at my front door, I thought that was so lovely. I love arts and crafts and I thought that was so thoughtful of her. Anyway, she messaged me after she dropped it off and I nearly fainted when I saw what she left 😂. Not only was there a ton of art and craft stuff🧶🖌🖼, but also a bunch of flowers💐, a lovely plant🌿, some cat 🐈food and litter, some fruit🍇 and a $300 gift voucher. I’m definitely grateful this evening, and a little overwhelmed. Anyway, I’ll say good night to all you wonderful people. I hope you’re all coping as best you can🧡🧡🧡 @Carmie, thank you for being on these forums. Your posts always bring such a smile to my face and such admiration for you! You take the hardships of life with so much grace and find nuggets of love and beauty in them and share those with us. Thank you! I am so glad you exist and make this world wonderful. No wonder you are so appreciated by your friends and community. I am so sorry you are struggling with fatigue and brain fog and that breathing is so hard! I wish I could take away your pain. I am sending you virtual hugs instead! OMW 1 "Nothing so small as a moment is insurmountable, and moments are all that we have. You have survived every trial and tribulation that life has thrown at you up until this very instant. When future troubles come—and they will come—a version of you will be born into that moment that can conquer them, too." - Kevin Koenig I am not a doctor and this should not be considered medical advice. You can use the information and recommendations provided in whatever way you want and all decisions on your treatment are yours. In the next few weeks I do not have a lot of capacity to respond to questions. If you need a quick answer pls tag or ask other moderators who may want to be tagged. Aug 2000 - July 2003 (ct, 4-6 wk wd) , citalopram 20 mg, xanax prn, wellbutrin for a few months, trazodone prn Dec 2004 - July 2018 citalopram 20 mg, xanax prn (rarely used) Aug 2018 - citalopram 40 mg (self titrated up) September 2018 - January 2019 tapered citalopram - 40/30/20/10/5 no issues until a week after reaching 0 Feb 2019 0.25 xanax - 0.5/day (3 weeks) over to klonopin 0.25 once a day to manage severe wd March 6, reinstated citalopram 2.5 mg (liquid), klonopin 0.25 mg for sleep 2-3 times a week Apr 1st citalopram 2.0 mg (liquid), klonopin 0.25 once a week (off by 4/14/19- no tapering) citalopram (liquid) 4/14/19 -1.8 mg, 5/8/19 - 1.6 mg, 7/27/19 -1.5 mg, 8/15/19 - 1.35, 2/21/21 - 1.1 (smaller drops in between), 6/20/21 - 1.03 mg, 8/7/21- 1.025, 8/11/21 - 1.02, 8/15/21 - 1.015, 9/3/21 - 0.925 (fingers crossed!), 10/8/21 - 0.9, 10/18/21 - 0.875, 12/31/21 - 0.85, 1/7/22 - 0.825, 1/14/22 - 0.8, 1/22/22 - 0.785, 8/18/22 - 0.59, 12/15/2022 - 0.48, 2/15/22 - 0.43, 25/07/23 - 0.25 (mistake), 6/08/23 - 0.33mg Supplements: magnesium citrate and bi-glycinate Link to comment
Longroadhome Posted July 30, 2022 Share Posted July 30, 2022 I second that @Onmyway. Carmie was one of the first to communicate with me when I joined this site in 2018. I will always be grateful for the support you provide to so many of us on this site Carmie. Along with encouragement and strength to persevere, on a sometimes impossible journey. Thank you for being my friend x 2 Nov 2018 Pregabalin 2x50 mg a day to help with Paxil WD. Aug 2019 2 x 25mg a day, April 2020 45mg, May 40mg, June 35mg, July 30mg, end July 25mg, Aug 24mg, June 2021 14mg, Jan 2022 14mg (2x7mg a day), Oct 10mg, Nov 5mg, December 25th 2022 0mg 🎈 Oct 2004 - Oct 2018 Paxil 20 mg, Nov 15mg, Dec 10mg, Feb 2019 7.5mg crashed, Feb 8.5mg, Nov 8mg, March 2020 7.2mg, April 6.5mg, May 5.9mg, June 5.4mg, July 4.8mg, Dec 4.5mg, Jan 2021 4mg, Feb 3.6mg, March 3.2mg, April 2.9mg, Aug 2.7mg, Sept 2.4mg, Oct 2.2mg, Nov 2mg, Dec 1.8mg, Feb 2022 1.6mg, March 1.4mg, April 1.2mg, May 1.0mg, June 0.8mg, July 0.6mg, Aug 0.4mg, Sep 0.2mg, October 6th 2022 0mg 🎈 December 25th 2022 drug free these dates are approximate Link to comment
Oaktree1 Posted July 31, 2022 Share Posted July 31, 2022 On 7/29/2022 at 1:03 PM, Carmie said: I’ve never been one who gets bored, I can always find a million things to distract myself with. Sometimes I just have to have a break from social media and forums etc. It can get all too much when you’re struggling every day. It’s not just withdrawals with me, I’ve got so many other health issues and it just gets so overwhelming at times that I can’t take on anything else. Yes I find that too (distractions) but I wish I had better distractions - I am addicted to news and social media as distractions. At the moment it is Prince Harry and Meghan Markle - I envy you your ability to paint and craft - I cannot do those things really - I am butterfingers and I get impatient too. I tried to take up sewing a few years ago but left mid way through the course - I couldn't keep up with the others - manual dexterity was never my strong point. I would love to be able to make my own clothes and knit sweaters. My last attempt - darning my own socks - did not go well at all - I used the wrong thread (should have used embroidery thread) and did not stretch the sock out and the socks ripped again. I love socks - and particularly love the Happy Socks brand but being all cotton they wear very fast around the heel. I understand a bit about dealing with multiple health issues and at times how overwhelming and disheartening it can be. Just re your breathing issues - I don't know if this might help. I got various lung function tests done 10 years ago as I was struggling to breath a lot of the time and the respiratory physician told me that my respiratory muscles were in spasm which actually caused the breathlessness and because I have scarring on the lining on my left lung from the pneumonia's that can cause pain. Basically the muscles and fascia get tight - so I purchased this great book by Claire Davies on Trigger Point therapy and used self massage to treat the tight areas on my rib cage which hugely helped with the breathlessness. Since I bought that book 10 years ago and used it as a great self help tool, I have discovered in the last year Jill Miller's Yoga-Tune - Up massage balls - I am using in particular her largish coregeous ball to massage my sternum area and diaphragm. I find the self massage better than breathing exercises to help breathlessness a lot of which can relate to tight muscles and fascia. I find that if I focus on my breath if I am breathless that can sometimes make me even more frightened that I am not going to get enough air and i actually find the sensation of pressure by self massage very relaxing and it helps my breath regulate. It might not be the same for you but it did help me - if I am anxious any feeling of physical pressure helps me relax- in this case by using the balls to massage tight of painful areas. Over the years I have purchased a lot of other self massage tools also - mainly to deal with hip issues and in the last few years recurrent migraines. Thought I would put it out there anyway. The links are below. I have purchased Jill Miller's book and DVD too which tells you how you can use them. There are many inspirational stories in the book about people (mainly all women) who have used these massage balls to deal with health issues - particularly those caused by trauma. I hope you are feeling a bit better today anyway. Oaktree https://www.tuneupfitness.com/blog/wind-down-and-breathe-easy-thoracic-breathing-on-the-coregeous-ball/ https://www.bookdepository.com/Trigger-Point-Therapy-Workbook-Clair-Davies/9781608824946?redirected=true&utm_medium=Google&utm_campaign=Base1&utm_source=IE&utm_content=Trigger-Point-Therapy-Workbook&selectCurrency=EUR&w=AFFPAU96SFR1YKA8VTQJ&gclid=Cj0KCQjw0JiXBhCFARIsAOSAKqBk5_o5-QCEYGJ_AxrLa0HO9tqHX-rcFcaDSA9ZGWZ9Ib1KAFjorMUaArciEALw_wcB 2 Currently tapering Mirtazapine; previously tapered Cymbalta 30mg from June 2018-Feb 2019 and Seroquel 150mg to zero from Oct-December 2020. Supplements for Hashimoto's disease and histamine issues relating to Mirtazapine: Vitamin D3 1,000mcg, bio-identical HRT, Selenium, Quercetin, Lutein, Zinc, Vitamin C, Omega 3. Mirtazapine Taper: 2021 16th Aug - transitioned to liquid from tablet by dissolving two 15mg tablets into a solution of 15 ml water and 15 ml maple syrup on a starting dose of what I thought was 7.5ml; 17 Sept - 7.31; 24 Sept - 7.13; 15 Oct - 6.95; 6 Nov - 6.78; 21 Nov - 6.61; 5 Dec - 6.51; 2022 - 1 Jan 6.41; 1 Feb - 6.1; 9 Mar - 5.8; 13 Mar - 5.9; 7 Apr - 5.8; 21 Apr - 5.7; 7 May - 5.63; 23 May - 5.55; 8 June 5.50; (got COVID on 12th June so held); 1 July 5.4; 15 July 5.32; 8 Aug 5.2; 15 Aug 5.1; 22 Aug 5; 19 Sept 4.9; 2 Oct 4.81; 13 Oct 4.71; (COVID Booster 17/10/22 so longer hold ); 1 Nov 4.65; 3 Nov 4.60; 10 Nov 4.55; 13 Nov 4.50; 17 Nov 4.45; 20 Nov 4.40; 2 Dec 4.30mg; 9 Dec 4.20mg; I discovered that the volumetric container measured 33ml rather than 30ml in Dec 2022. Following helpful advice from moderator OnMyWay (see her reply of the 5th March) discovered taper with the dilution was 3.8mg (calculated by dividing 30/33 so that every 1ml of solution has 0.90ml of Mirtazapine. 7.50 - 0.90= 6.6ml which was the starting dose on 16th Aug 2021 not 7.5ml). I decided to keep using the solution as I didn't want more change to deal with than I had to. 2023 17 Mar 4.1(3.7); 26 Mar 4.0(3.6); 14 Apr 3.9(3.51)28 Apr 3.8(3.42); 6 Jun 3.7(3.33); 19 Jun 3.6(3.24); 30 Jun 3.5(3.1); 19 Jul 3.4(3.06); 27 Jul 3.35 (3.01); 29 Jul 3.3 (2.97); 4 Aug 3.25 (2.92); 7 Aug 3.2 (2.88); 21 Aug 3.1 (2.79); 14.09 3 (2.7); 29th Sept 2.9(2.61); 15 Oct 2.8(2.52); 30 Oct 10 2.7(2.43); 13 Nov 2.65(2.38); 20 Nov 2.6(2.34); 26 Nov 2.55(2.29); 10 Dec 2.5(2.25); 2024 - 14 Jan 2.45(2.20); 22 Jan 2.40(2.16); 29 Jan 2.35(2.11); 2 Feb 2.3 (2.07);15 Feb 2.25(2.02); 22 Feb 2.21 (1.98); 29 Feb 2.17(1.95); 7 Mar 2.13(1.91); 21 Mar 2.05 (1.84); 31 Mar 2.01 (1.80); 14 Apr 1.90 (1.71); This is not 'medical advice' - my 'non medical advice' is don't get any more 'medical advice' or you may end up getting more 'medical treatment' i.e more drugs, DSM labels and/or ECT. Please do not PM me thanks. Link to comment
Ariel Posted August 9, 2022 Share Posted August 9, 2022 Thinking of you @Carmie Sending hugs and healing vibes <3 1 1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs) 2012-2018 - 10mg lexapro/escitalopram (20mg?) Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg --> July 2018 - 0mg 2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg 2020-2021 - 70mg down to 0mg --> July 2021 - 0mg March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT) --> April 28th, 2021 - 0mg supplements: magnesium powder (dissolved in water) as needed throughout the day; 1 tsp fish oil w/ morning meal; 2mg melatonin August 1, 2022 - 1 mg melatonin Courage is fear that has said its prayers. - Karle Wilson Baker love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters. - Rev. angel Kyodo williams Holding multiple truths. Knowing that everyone has their own accurate view of the way things are. - text on homemade banner at Afiya house I am not a medical professional; this is not medical advice. Link to comment
Longroadhome Posted August 14, 2022 Share Posted August 14, 2022 Good-day @Carmie You’re in my thoughts. Hope you are ok? 1 Nov 2018 Pregabalin 2x50 mg a day to help with Paxil WD. Aug 2019 2 x 25mg a day, April 2020 45mg, May 40mg, June 35mg, July 30mg, end July 25mg, Aug 24mg, June 2021 14mg, Jan 2022 14mg (2x7mg a day), Oct 10mg, Nov 5mg, December 25th 2022 0mg 🎈 Oct 2004 - Oct 2018 Paxil 20 mg, Nov 15mg, Dec 10mg, Feb 2019 7.5mg crashed, Feb 8.5mg, Nov 8mg, March 2020 7.2mg, April 6.5mg, May 5.9mg, June 5.4mg, July 4.8mg, Dec 4.5mg, Jan 2021 4mg, Feb 3.6mg, March 3.2mg, April 2.9mg, Aug 2.7mg, Sept 2.4mg, Oct 2.2mg, Nov 2mg, Dec 1.8mg, Feb 2022 1.6mg, March 1.4mg, April 1.2mg, May 1.0mg, June 0.8mg, July 0.6mg, Aug 0.4mg, Sep 0.2mg, October 6th 2022 0mg 🎈 December 25th 2022 drug free these dates are approximate Link to comment
Longroadhome Posted August 14, 2022 Share Posted August 14, 2022 @Ariel I can’t find your thread for some reason. Anyway just want to say I hope you are feeling ok. I’ve seen you post on different threads and just want you to know you’re a positive influence. And that’s lovely 😊 2 Nov 2018 Pregabalin 2x50 mg a day to help with Paxil WD. Aug 2019 2 x 25mg a day, April 2020 45mg, May 40mg, June 35mg, July 30mg, end July 25mg, Aug 24mg, June 2021 14mg, Jan 2022 14mg (2x7mg a day), Oct 10mg, Nov 5mg, December 25th 2022 0mg 🎈 Oct 2004 - Oct 2018 Paxil 20 mg, Nov 15mg, Dec 10mg, Feb 2019 7.5mg crashed, Feb 8.5mg, Nov 8mg, March 2020 7.2mg, April 6.5mg, May 5.9mg, June 5.4mg, July 4.8mg, Dec 4.5mg, Jan 2021 4mg, Feb 3.6mg, March 3.2mg, April 2.9mg, Aug 2.7mg, Sept 2.4mg, Oct 2.2mg, Nov 2mg, Dec 1.8mg, Feb 2022 1.6mg, March 1.4mg, April 1.2mg, May 1.0mg, June 0.8mg, July 0.6mg, Aug 0.4mg, Sep 0.2mg, October 6th 2022 0mg 🎈 December 25th 2022 drug free these dates are approximate Link to comment
Moderator Emeritus Carmie Posted August 15, 2022 Author Moderator Emeritus Share Posted August 15, 2022 Hi @Ariel @Onmyway @Oaktree1 @Onmyway Thank you so very much for all your comments, I’m not doing so well, struggling to breathe. Just surviving. It’s not muscular Oaktree, but I really appreciate your kindness. Thank you everyone, sending so much love to you all🧡 2 Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️ 2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor. Link to comment
Moderator Emeritus Carmie Posted August 15, 2022 Author Moderator Emeritus Share Posted August 15, 2022 @Longroadhome Thank you so much too for your kind comments too, so heartwarming🧡 Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️ 2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor. Link to comment
Moderator Onmyway Posted August 15, 2022 Moderator Share Posted August 15, 2022 Dear @Carmie so sorry to hear breathing is ever so difficult. Sending you a lot of love and virtual hugs. OMW 1 "Nothing so small as a moment is insurmountable, and moments are all that we have. You have survived every trial and tribulation that life has thrown at you up until this very instant. When future troubles come—and they will come—a version of you will be born into that moment that can conquer them, too." - Kevin Koenig I am not a doctor and this should not be considered medical advice. You can use the information and recommendations provided in whatever way you want and all decisions on your treatment are yours. In the next few weeks I do not have a lot of capacity to respond to questions. If you need a quick answer pls tag or ask other moderators who may want to be tagged. Aug 2000 - July 2003 (ct, 4-6 wk wd) , citalopram 20 mg, xanax prn, wellbutrin for a few months, trazodone prn Dec 2004 - July 2018 citalopram 20 mg, xanax prn (rarely used) Aug 2018 - citalopram 40 mg (self titrated up) September 2018 - January 2019 tapered citalopram - 40/30/20/10/5 no issues until a week after reaching 0 Feb 2019 0.25 xanax - 0.5/day (3 weeks) over to klonopin 0.25 once a day to manage severe wd March 6, reinstated citalopram 2.5 mg (liquid), klonopin 0.25 mg for sleep 2-3 times a week Apr 1st citalopram 2.0 mg (liquid), klonopin 0.25 once a week (off by 4/14/19- no tapering) citalopram (liquid) 4/14/19 -1.8 mg, 5/8/19 - 1.6 mg, 7/27/19 -1.5 mg, 8/15/19 - 1.35, 2/21/21 - 1.1 (smaller drops in between), 6/20/21 - 1.03 mg, 8/7/21- 1.025, 8/11/21 - 1.02, 8/15/21 - 1.015, 9/3/21 - 0.925 (fingers crossed!), 10/8/21 - 0.9, 10/18/21 - 0.875, 12/31/21 - 0.85, 1/7/22 - 0.825, 1/14/22 - 0.8, 1/22/22 - 0.785, 8/18/22 - 0.59, 12/15/2022 - 0.48, 2/15/22 - 0.43, 25/07/23 - 0.25 (mistake), 6/08/23 - 0.33mg Supplements: magnesium citrate and bi-glycinate Link to comment
Moderator Emeritus Gridley Posted August 15, 2022 Moderator Emeritus Share Posted August 15, 2022 @Carmie I'm sorry you're feeling bad, Carmie. You are a beacon of light on this site. 4 Gridley Introduction Lexapro 20 mg since 2004. Begin Brassmonkey Slide Taper Jan. 2017. End 2017 year 1 of taper at 9.25mg End 2018 year 2 of taper at 4.1mg End 2019 year 3 of taper at 1.0mg Oct. 30, 2020 Jump to zero from 0.025mg. Current dose: 0.000mg 3 year, 10 month taper is 100% complete. Ativan 1 mg to 1.875mg 1986-2020, two CT's and reinstatements Nov. 2020, 7-week Ativan-Valium crossover to 18.75mg Valium Feb. 2021, begin 10%/4 week taper of 18.75mg Valium End 2021 year 1 of Valium taper at 6mg End 2022 year 2 of Valium taper at 2.75mg End 2023 year 3 of Valium taper at 1mg Jan. 24, 2024: Hold at 1mg and shift to Imipramine taper. Taper is 95% complete. Imipramine 75 mg daily since 1986. Jan.-Sept. 2016 tapered to 14.4mg March 22, 2022: Begin 10%/4 week taper Aug. 5, 2022: hold at 9.5mg and shift to Valium taper Jan. 24, 2024: Resume Imipramine taper. Current dose as of April 1: 6.8mg Taper is 91% complete. Supplements: multiple, quercetin, omega-3, vitamins C, E and D3, magnesium glycinate, probiotics, zinc, melatonin .3mg, iron, serrapeptase, nattokinase I am not a medical professional and this is not medical advice but simply information based on my own experience, as well as other members who have survived these drugs. Link to comment
Moderator Emeritus Erell Posted August 15, 2022 Moderator Emeritus Share Posted August 15, 2022 Thinking of you Carmie. We've never spoken, but I'm lucky to have read some of your posts here (I have often read your gratitude lists which have inspired me a lot). I send you hugs and healing vibes, be assured of our support here. 1 2006 : 20mg Paxil+Bromazepam. 2008 : cold turkey of both. 2010 : Reinstatement 20mg Paxil + Bromazepam. 2014-June2017 : Switch from Bromazepam to Prazepam, slow taper to 0mg. 2018 to August 2019 : Paxil 20mg taper (3% every 15 days). 22 Aug 2019 updose to 10mg (was at 8.4mg). 25th Sept 2019 To April 2020 : found SA, holding at 10mg Paxil. April 2020 : Paxil 10mg to Prozac 7mg bridge. Details : topic/21457 Current Supplements : magnesium citrate + fish oil Current medication : * 7pm Diazepam : 0.85mg (15 Aug 2022) / 0.95 mg (24 April 2022) / 1mg Diazepam (since 29 Aug 2020) * 8am Prozac : 6.16mg (25 oct 2022, feel awful, slight updose) / 6.08 mg (9 oct 2022) / 6.24mg (11 July 22) / 6.44mg (22 May 22) / 6.64mg (4 Nov 21) / 6.72mg (8 oct 21) / 6.8 mg (15 Sept 21)/ 6.88mg (14 Aug 21)/ 6.92mg (23 Jun 21) I am not a professional, I don't give medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. Link to comment
Moderator Emeritus Carmie Posted August 15, 2022 Author Moderator Emeritus Share Posted August 15, 2022 Thanks so much @Onmyway. @Gridley @Erell Everyone’s kind messages on here mean a lot. I’m really going through such a struggle with my immune system trying to destroy my lungs. It’s nearly a year since this flare, it doesn’t want to end. In hindsight I shouldn’t have gotten the vaccine as I had been in remission for a month and a half before then, it was great being able to breathe properly. I can just imagine though now if I got Covid or even a common cold I’d be in big trouble. I need to move into a cave somewhere. My husband has Covid again, but so far he’s doing okay. He wasn’t too bad last time either, he’s had the flu a couple of times in the last few years, which was worse. I hope his Covid doesn’t get worse. He’s started insulin for his diabetes recently. It’s just after 4am and I can’t sleep because of my breathing. I’m just in such a low place. It’s so wearing waking up every morning to another claustrophobic day and struggling to fall asleep many nights for the same reason. Please go into remission immune system! Pretty please! I still see the beauty around me and I’m still grateful for things, but I’m also feeling extremely low. I’ll look at my beautiful bunch of flowers when it gets light this morning. A friend got me the most gorgeous bouquet of long stemmed flowers, including some spectacular roses, yesterday. I caught up with her in the park around the corner. She’s only in her early twenties and we’ve been friends for a long time, since she was a kid. I’m heading towards 60 but I tend to have really close friends of all ages. She’s such a sweetie, she said that we must catch up every three weeks or so. So cute! Made me smile. Another friend also wants to catch up in the park with me today. I haven’t seen her in forever, but we keep in contact all the time and I’m looking forward to seeing her in person again. We’ve had lots of lovely times together, including beach holidays. I’m catching up with more people in person now at the park and social distancing. The weird thing is I’m not actually a person who gets lonely, despite being extremely extroverted. I’m quite happy just doing my own thing, but it’s good for one’s emotional well being to socialise and I’m grateful for having lots of loving and caring friends. I’ve always been an organiser when it came to social things, I’ve organised parties, dinners, karaoke nights ( I can’t sing to save my life) etc. Just before Covid I was having karaoke nights at my place, some of my friends have such beautiful voices, I got a free concert😁. I love getting people together. I’ve booked a million concerts too and I’ve always had people to go with, there was always someone who liked the particular artists that I liked. My taste in music is so eclectic. Doesn’t look like I’ll be doing much organising in the future, unless it’s outdoors. I’m grateful I’ve got a gorgeous park around the corner, there aren’t any flowers there, but there are the most beautiful big trees. I just love being in nature. See, I’m still finding things to be grateful for😁. Okay, another day to get through now. Thanks again all you beautiful people on here for your kindness and caring🧡🧡 1 Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️ 2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor. Link to comment
Mentor ShiningLight Posted August 16, 2022 Mentor Share Posted August 16, 2022 Carmie, Thinking of you. I'm going to do a healing meditation and send some love to your 🫁 and spirit tonight. 1 Now: 100 mg Zoloft am, 50 mg Trazodone. Daily drug burden decreased from 2050 in 2018 mg to 150 mg 🐢🐢 Zoloft: 1/24/23 increased to 100 mg after suicide attempt 9/17/22 cut 6 mg, 8/14/22 cut 6.5 mg, 5/7/22 cut 12.5 mg 3/20/22 cut 12.5 mg 10/26/21 cut 6 mg 10/17/21 cut 5 mg, 9/17/21 Cut 3 mg, 9/13/21 cut 4 mg, 8/29/21 Cut 2 mg 8/8/21 Cut 3 mg 7/30/21 Zoloft: Converted 25 mg to liquid. Also take 100 mg pill & 25 mg pill=150 mg total🌞 Feb 28, 2021 0 mg Gapapentin 2021 Gaba each dose 4x/day: Feb 27 7 mg (one dose only), Feb 10, 7 mg, Jan 14 10 mg 2020 Current taper schedule from Aug 30-present: drop 8 mg every 2-3 weeks. Aug 20 31 mg, Aug 18, 33 mg, July 29, 35 mg, July 23 38 mg, July 22 40 mg Jun 24 42 mg, Jun 15 44 mg, Jun 9 48 mg, May 22 50 mg, May 14 54 mg, May 7 56 mg, Apr 16 58 mg, Mar 28 60 mg, Mar 18 62 mg. Feb 26 64 mg. Feb 19, 66 mg. Jan 23, 70 mg. 2019 Dec 19, 72 mg. Nov 14 ,76 mg. Aug 8, 80 mg. Aug 6, 85 mg. Jul 26, 90 mg. Jul 11, 95 mg. Jul 16 trazodone from 100 to 50 mg. Jun 17-July 10 Slowly changed gab fr pill to liquid at same dose 100 mg 4x/d. Apr 24 Stopped klon!!! 🌞 Apr 4 Decreased gaba to 400 mg (100 mg 4x/day)-Apr 4, 2019 0.25 klon March 11 Klonopin .5 mg twice daily, varied dose til Apr 15. Started Klon fast taper 25%, short use Mar 16, 450 mg gaba 3x/day cut 600 mg--not exact!--updose after learning w/d Feb 20, 2019 1800 mg gabapentin; MD taper; off 3 days=mvt disorder & autonomic instability. July 2018 temazepam 15 mg 1-2; prn several x/wk til Jan/Feb 2019 when cold turkey, flu illness for months July 2018 started gabapentin 100 3x/day; titrated up to 1800 mg (600 3x/day) Buspar, I forget how much, 2 pills a day Jan 2017-July 2018 cold turkey. On Zoloft since maybe 2004? After trying many. *I speak from my experience. Nothing I say is medical advice. I'm not a doctor. Link to comment
Ariel Posted August 16, 2022 Share Posted August 16, 2022 @Carmie You are very brave! I can't imagine what you're going through. Sending good thoughts and healing vibes <3 1 1996-2018 - misc. polypharmacy, incl. SSRIs, SNRIs, neuroleptics, lithium, benzos, stimulants, antihistamines, etc. (approx. 30+ drugs) 2012-2018 - 10mg lexapro/escitalopram (20mg?) Jan. 2018 - 10mg -> 5mg, then from 5mg -> 2.5mg, then 0mg --> July 2018 - 0mg 2017(?)-2020 - vyvanse/lisdexamfetamine 60-70mg 2020-2021 - 70mg down to 0mg --> July 2021 - 0mg March-April 2021 - vortioxetine 5-10mg (approx. 7 weeks total; CT) --> April 28th, 2021 - 0mg supplements: magnesium powder (dissolved in water) as needed throughout the day; 1 tsp fish oil w/ morning meal; 2mg melatonin August 1, 2022 - 1 mg melatonin Courage is fear that has said its prayers. - Karle Wilson Baker love and justice are not two. without inner change, there can be no outer change; without collective change, no change matters. - Rev. angel Kyodo williams Holding multiple truths. Knowing that everyone has their own accurate view of the way things are. - text on homemade banner at Afiya house I am not a medical professional; this is not medical advice. Link to comment
Kostas Posted August 16, 2022 Share Posted August 16, 2022 Hi Carmie, You see how many people are feeling for you ,here and there... You have inspired lots of us, who become desperate in the first difficulty ! I am still puzzled with your condition , which your doctors have identified as an autoimmune disease attacking specifically your lungs, and cannot find a treatment to ease the symptoms...! Hope you are soon feeling better, Greetings from the sunny Syros, Greek island Kostas Citalopram 20 mg Mid June 1994- end March 1995 Then tapering 3 months Mid August 1995-end August 1996 Tapering 6 months Mid January 2000-end September 2001 Tapering 6 months Mid October 2003-end October 2005 Tapering 7 years. More detailed drug history is here - ☼-kostas Off any drug from October 2012 Link to comment
Oaktree1 Posted August 23, 2022 Share Posted August 23, 2022 Dear @Carmie Just posting to say that I am very sad to hear that you are having such a bad flare up and that your husband has Covid again. I am really hoping that you feel a little bit better soon. What you describe sounds very tough. Oaktree 1 Currently tapering Mirtazapine; previously tapered Cymbalta 30mg from June 2018-Feb 2019 and Seroquel 150mg to zero from Oct-December 2020. Supplements for Hashimoto's disease and histamine issues relating to Mirtazapine: Vitamin D3 1,000mcg, bio-identical HRT, Selenium, Quercetin, Lutein, Zinc, Vitamin C, Omega 3. Mirtazapine Taper: 2021 16th Aug - transitioned to liquid from tablet by dissolving two 15mg tablets into a solution of 15 ml water and 15 ml maple syrup on a starting dose of what I thought was 7.5ml; 17 Sept - 7.31; 24 Sept - 7.13; 15 Oct - 6.95; 6 Nov - 6.78; 21 Nov - 6.61; 5 Dec - 6.51; 2022 - 1 Jan 6.41; 1 Feb - 6.1; 9 Mar - 5.8; 13 Mar - 5.9; 7 Apr - 5.8; 21 Apr - 5.7; 7 May - 5.63; 23 May - 5.55; 8 June 5.50; (got COVID on 12th June so held); 1 July 5.4; 15 July 5.32; 8 Aug 5.2; 15 Aug 5.1; 22 Aug 5; 19 Sept 4.9; 2 Oct 4.81; 13 Oct 4.71; (COVID Booster 17/10/22 so longer hold ); 1 Nov 4.65; 3 Nov 4.60; 10 Nov 4.55; 13 Nov 4.50; 17 Nov 4.45; 20 Nov 4.40; 2 Dec 4.30mg; 9 Dec 4.20mg; I discovered that the volumetric container measured 33ml rather than 30ml in Dec 2022. Following helpful advice from moderator OnMyWay (see her reply of the 5th March) discovered taper with the dilution was 3.8mg (calculated by dividing 30/33 so that every 1ml of solution has 0.90ml of Mirtazapine. 7.50 - 0.90= 6.6ml which was the starting dose on 16th Aug 2021 not 7.5ml). I decided to keep using the solution as I didn't want more change to deal with than I had to. 2023 17 Mar 4.1(3.7); 26 Mar 4.0(3.6); 14 Apr 3.9(3.51)28 Apr 3.8(3.42); 6 Jun 3.7(3.33); 19 Jun 3.6(3.24); 30 Jun 3.5(3.1); 19 Jul 3.4(3.06); 27 Jul 3.35 (3.01); 29 Jul 3.3 (2.97); 4 Aug 3.25 (2.92); 7 Aug 3.2 (2.88); 21 Aug 3.1 (2.79); 14.09 3 (2.7); 29th Sept 2.9(2.61); 15 Oct 2.8(2.52); 30 Oct 10 2.7(2.43); 13 Nov 2.65(2.38); 20 Nov 2.6(2.34); 26 Nov 2.55(2.29); 10 Dec 2.5(2.25); 2024 - 14 Jan 2.45(2.20); 22 Jan 2.40(2.16); 29 Jan 2.35(2.11); 2 Feb 2.3 (2.07);15 Feb 2.25(2.02); 22 Feb 2.21 (1.98); 29 Feb 2.17(1.95); 7 Mar 2.13(1.91); 21 Mar 2.05 (1.84); 31 Mar 2.01 (1.80); 14 Apr 1.90 (1.71); This is not 'medical advice' - my 'non medical advice' is don't get any more 'medical advice' or you may end up getting more 'medical treatment' i.e more drugs, DSM labels and/or ECT. Please do not PM me thanks. Link to comment
Moderator Onmyway Posted August 30, 2022 Moderator Share Posted August 30, 2022 Hi @Carmiejust checking in to see how you've been doing. I'm thinking of you and your beautiful spirit and resilience in the face of such challenging health issues. Sending you big hugs OMW "Nothing so small as a moment is insurmountable, and moments are all that we have. You have survived every trial and tribulation that life has thrown at you up until this very instant. When future troubles come—and they will come—a version of you will be born into that moment that can conquer them, too." - Kevin Koenig I am not a doctor and this should not be considered medical advice. You can use the information and recommendations provided in whatever way you want and all decisions on your treatment are yours. In the next few weeks I do not have a lot of capacity to respond to questions. If you need a quick answer pls tag or ask other moderators who may want to be tagged. Aug 2000 - July 2003 (ct, 4-6 wk wd) , citalopram 20 mg, xanax prn, wellbutrin for a few months, trazodone prn Dec 2004 - July 2018 citalopram 20 mg, xanax prn (rarely used) Aug 2018 - citalopram 40 mg (self titrated up) September 2018 - January 2019 tapered citalopram - 40/30/20/10/5 no issues until a week after reaching 0 Feb 2019 0.25 xanax - 0.5/day (3 weeks) over to klonopin 0.25 once a day to manage severe wd March 6, reinstated citalopram 2.5 mg (liquid), klonopin 0.25 mg for sleep 2-3 times a week Apr 1st citalopram 2.0 mg (liquid), klonopin 0.25 once a week (off by 4/14/19- no tapering) citalopram (liquid) 4/14/19 -1.8 mg, 5/8/19 - 1.6 mg, 7/27/19 -1.5 mg, 8/15/19 - 1.35, 2/21/21 - 1.1 (smaller drops in between), 6/20/21 - 1.03 mg, 8/7/21- 1.025, 8/11/21 - 1.02, 8/15/21 - 1.015, 9/3/21 - 0.925 (fingers crossed!), 10/8/21 - 0.9, 10/18/21 - 0.875, 12/31/21 - 0.85, 1/7/22 - 0.825, 1/14/22 - 0.8, 1/22/22 - 0.785, 8/18/22 - 0.59, 12/15/2022 - 0.48, 2/15/22 - 0.43, 25/07/23 - 0.25 (mistake), 6/08/23 - 0.33mg Supplements: magnesium citrate and bi-glycinate Link to comment
Mentor Heath Posted August 30, 2022 Mentor Share Posted August 30, 2022 Hello @Carmie ! You are a great inspiration here and very brave ! Sending prayers for you and husband healing. Better days coming! 2000-2013 Paxil - 1 year fast taper 2013-2018 merry go round zoloft, cymbalta, lamictal, Prozac. Nov. 2018 lexapro 15 mgs, Dec. 2019 to Mar. 2020 taper to 10mg. Jul 2020 to October 2020 taper to 8.5 ml. Oct 2020 reinstated to 9 ml. Apr 2021 to Jul taper to 7ml. Oct 2021 to Jan 2022 taper to 5.9ml, Mar 5 2022 5.8 ml, Mar 12 5.7ml, Mar 20 5.6ml, Mar 27 5.5ml, April 23 5.4ml, April 30 5.3ml, May 7 5.2ml, Jul 9 2022 5.4ml, Klonopin prn, Allegra 180 for 3 seasons, aspirin 81 mg, plavix , nitroglycerin 0.4 mg prn, 2k mg turmeric Qunol, 4- Trader Joe’s omega 3 -2400 mg, Pepcid 20mg, Prilosec 40 mg, Tylenol arthritis 4 tablets daily, 350mg calm magnesium citrate, melatonin 2.5- 5mg as needed to sleep. Saline spray as needed. Link to comment
LarryS Posted August 31, 2022 Share Posted August 31, 2022 Hello @Carmie Sorry to hear of you and your husband's health issues. Praying along with others that you both find the strength to recover. Noticed that you are holding at 3.75 mg of Seroquel. I am currently holding at 3.75 mg of venlafaxine, due to trying to recover from two infections post-surgery. We are both getting closer to get off our nasty drugs. 😆 Best Wishes "Rejoice in hope, be patient in tribulation, be constant in prayer." Romans 12:12 See LarryS Health History https://www.survivingantidepressants.org/topic/18063-larrys-tapering-off-venlafaxine-effexor-225mg/?do=findComment&comment=575976 Aug 2014 start Venlafaxine 225 mg. Other Pharmaceuticals per day: Amlodipine Besylate 5 mg Vitamins per day: C 1,000 mg; D3 50 mcg; Probiotic 218 mg; Fish Oil 1,600 mg; Magnesium Glycinate Liquid 165 mg; CoQ10 40 mg; Saw Palmetto 320 mg; Calcium 250 mg; Red Yeast Rice 1,200 mg; Plant Sterol Esters 1,000 mg Start Taper: 225 mg to 55 mg; June 5, 2018, to June 15, 2019 49 mg July 16, 2019; 44 mg August 13, 2019; 49 mg (up 11%) Aug. 26, 2019: 44 mg Sept. 10, 2019; 40 mg Oct. 8, 2019; 37.5 mg (6%) Nov. 6, 2019; 49.5 mg (up 32%) Nov 18, 2019; 44.5 mg Dec. 30, 2019; 40 mg Jan. 27, 2020; 36 mg Feb. 24, 2020; 32.5 mg March 23, 2020; 29.2 mg April 20, 2020; 26.3 mg May 18, 2020; 23.7 mg June 15, 2020; 21.3 mg July 6, 2020; 19.2 mg Aug. 4, 2020; 17.3 mg Sept. 1, 2020; 15.5 mg Sept. 29, 2020; 14.0 mg Oct. 27, 2020; 12.6 mg Nov. 24, 2020; 11.3 mg Dec. 15, 2020; 10.2 mg Jan. 5, 2021; 9.2 mg Feb. 2, 2021; 8.3 mg March 9, 2021; 7.4 mg April 6, 2021; 6.7 mg 5/4/2021; 6.0 mg 6/01/2021; 5.4 mg 7/13/2021; 4.9 mg 8/10/2021; 4.4 mg 9/9/2021; 4.0 mg 10/14/2021; 3.5 mg 11/11/2021; 7.5 mg (up 200%) 12/6/2021; 6.75 mg 1/17/2022; 6.00 mg 2/21/2022; 5.62 mg 3/21/2022; 4.87 mg 4/25/2022; 4.50 mg 5/30/2022; 4.13 mg 7/5/2022; 3.75 mg 8/1/2022; 3.38 mg 9/7/2022; 3.00 mg 10/5/2022; 2.63 mg 11/02/2022; 2.25 mg 12/1/2022; 1.88 mg 1/5/2023; 1.50 mg 2/9/2023; 1.13 mg 3/16/2023; 0.75 mg 4/20/2023; ZERO mg 5/5/2023 Link to comment
Moderator hayduke Posted September 4, 2022 Moderator Share Posted September 4, 2022 Hey there @Carmie. I haven't been around much lately, since the work and study situation is taking so much energy at the moment. How are you going? Any sign of spring up your way? We had a couple of nice sunny days before the rain came back 🙂 I am not a health professional - your actions are your own. Please do not seek tapering support via private message - "Any reason to hold is a good one" My taper visualised as a graph | My intro thread Backdrop: 2003 10mg olanzapine | 2004 2-3mg risperidone | end 2014 3wks aripiprazole 2015: olanzapine 10 -> 7½ -> 6⅔ -> 5mg by crude pill cutter 2018: Mar 5.00mg -> water titrated taper -> Aug2.5mg tablet and hold Jan 2019 2.50mg water titration -> Jan 2020 1.214 -> Jan 2021 0.44 -> 2 Oct 0.205 ->3 Oct ZERO🥂 Jun 2023 💉150mg paliperidone "loading" depot shot, 100mg 1wk after Jul 100mg Aug-Dec 75mg/4wks Jul 2023 2.50mg aripiprazole/day attempt to lower prolactin^ Jan-Feb 2024 cross taper off shots to 1mg risperidone Ask not what you can do for your country, but what your country did to you" -- KMFDM Link to comment
Moderator Emeritus Carmie Posted September 18, 2022 Author Moderator Emeritus Share Posted September 18, 2022 Hi @ShiningLight. @Kostas @Oaktree1 @Onmyway @Heath @LarryS @hayduke Thanks everyone for thinking of me, that’s so very kind. Its 2am in the morning, I’ve got nerve pain all down my back and arms. I’m really scared. I went to the hospital yesterday as I’d also had other symptoms. I’m not sure if it’s the meds or something else. The hospital couldn’t help me. Don’t know what to do. Had vision problems for a bit, foot pain last night, weird sensations in hands and feet. So very scared. Thanks for listening 🧡 Sending love Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️ 2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor. Link to comment
Moderator Onmyway Posted September 18, 2022 Moderator Share Posted September 18, 2022 Oh so sorry to hear @Carmie, I don't know how you manage all of these awful symptoms. I am in awe of your resilience and my heart goes out to you. The breathing and then the pain and the confusing sensations and visual issues. These sound neurological to me so in principle can be withdrawal but I don't know. Sending you big hugs and holding you in my thoughts thousands of miles away. May you find respite soon! OMW "Nothing so small as a moment is insurmountable, and moments are all that we have. You have survived every trial and tribulation that life has thrown at you up until this very instant. When future troubles come—and they will come—a version of you will be born into that moment that can conquer them, too." - Kevin Koenig I am not a doctor and this should not be considered medical advice. You can use the information and recommendations provided in whatever way you want and all decisions on your treatment are yours. In the next few weeks I do not have a lot of capacity to respond to questions. If you need a quick answer pls tag or ask other moderators who may want to be tagged. Aug 2000 - July 2003 (ct, 4-6 wk wd) , citalopram 20 mg, xanax prn, wellbutrin for a few months, trazodone prn Dec 2004 - July 2018 citalopram 20 mg, xanax prn (rarely used) Aug 2018 - citalopram 40 mg (self titrated up) September 2018 - January 2019 tapered citalopram - 40/30/20/10/5 no issues until a week after reaching 0 Feb 2019 0.25 xanax - 0.5/day (3 weeks) over to klonopin 0.25 once a day to manage severe wd March 6, reinstated citalopram 2.5 mg (liquid), klonopin 0.25 mg for sleep 2-3 times a week Apr 1st citalopram 2.0 mg (liquid), klonopin 0.25 once a week (off by 4/14/19- no tapering) citalopram (liquid) 4/14/19 -1.8 mg, 5/8/19 - 1.6 mg, 7/27/19 -1.5 mg, 8/15/19 - 1.35, 2/21/21 - 1.1 (smaller drops in between), 6/20/21 - 1.03 mg, 8/7/21- 1.025, 8/11/21 - 1.02, 8/15/21 - 1.015, 9/3/21 - 0.925 (fingers crossed!), 10/8/21 - 0.9, 10/18/21 - 0.875, 12/31/21 - 0.85, 1/7/22 - 0.825, 1/14/22 - 0.8, 1/22/22 - 0.785, 8/18/22 - 0.59, 12/15/2022 - 0.48, 2/15/22 - 0.43, 25/07/23 - 0.25 (mistake), 6/08/23 - 0.33mg Supplements: magnesium citrate and bi-glycinate Link to comment
Moderator Emeritus Carmie Posted September 18, 2022 Author Moderator Emeritus Share Posted September 18, 2022 8 minutes ago, Onmyway said: Oh so sorry to hear @Carmie, I don't know how you manage all of these awful symptoms. I am in awe of your resilience and my heart goes out to you. The breathing and then the pain and the confusing sensations and visual issues. These sound neurological to me so in principle can be withdrawal but I don't know. Sending you big hugs and holding you in my thoughts thousands of miles away. May you find respite soon! OMW Thanks for your prompt reply Onmyway, I really appreciate it, I’m such a mess and so scared. Concerned it could be the start of M.S. or some other autoimmune disease, because once you have one you can get others. Or is it the meds? Doctors don’t have answers and I’m barely functional now. The CFS is debilitating and now the struggling to breathe and all these horrific neurological symptoms. I’m really, really scared. The nerve pain is awful. It feels like my spine is really inflamed, can’t sleep, can’t rest and no one can help me. Just lying here in bed petrified. Can’t call the ambulance again as the hospital couldn’t help me. Feeling very lost. Sending love🧡 Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️ 2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor. Link to comment
direstraits Posted September 18, 2022 Share Posted September 18, 2022 Oh, @Carmiethis is devastating. I'm so sorry, wish I could help you. Praying you can get some relief from your suffering.🙏❤️ went on Prozac 1994-99,60mg.poopout ct back on 2001-2002,prozac weekly 2002,not working,Effexor 75 mg.?2003-mar.2004 gaining weight 8wk. taper,wellbutrin 150 mg.mar. -may 2004 ctmedfree til july 2005 back to Prozac gaining weight again,back on wellbutrin jan.2006150-300 mg.bad constipation.also was taking aygestin(hormone)perimenopausal irregular bleeding.back on Prozac around sept,?2006,hysterectomy jan30.2007(adenomyosis)off&on Prozac til 2009,citalopram about 1 mo, April 2010 no effect,Effexor again may -mar, 2011.ct,Prozac aug,-dec, 2011 &sept-nov 2012,paroxetine oct,23 2013-may 4 2014 20 mgs.tapered 6 wks.-failed RI in Oct.2014-in protracted WD.started 10 mgs. Fluoxetine May 25 2021 .Stopped fluoxetine May 2022 at 5 mgs. Link to comment
Oaktree1 Posted September 18, 2022 Share Posted September 18, 2022 Dear @Carmie I am so sorry to hear this. Is there anyone that could stay with you through this? You seem to be suffering dreadfully. I am sending you healing vibes as Ariel was wont to do. Why could the hospital not help you? Can they not test you for MS or another neurological disease? Do you have a general practitioner ? They might have more time than you were given in hospital? Oaktree Currently tapering Mirtazapine; previously tapered Cymbalta 30mg from June 2018-Feb 2019 and Seroquel 150mg to zero from Oct-December 2020. Supplements for Hashimoto's disease and histamine issues relating to Mirtazapine: Vitamin D3 1,000mcg, bio-identical HRT, Selenium, Quercetin, Lutein, Zinc, Vitamin C, Omega 3. Mirtazapine Taper: 2021 16th Aug - transitioned to liquid from tablet by dissolving two 15mg tablets into a solution of 15 ml water and 15 ml maple syrup on a starting dose of what I thought was 7.5ml; 17 Sept - 7.31; 24 Sept - 7.13; 15 Oct - 6.95; 6 Nov - 6.78; 21 Nov - 6.61; 5 Dec - 6.51; 2022 - 1 Jan 6.41; 1 Feb - 6.1; 9 Mar - 5.8; 13 Mar - 5.9; 7 Apr - 5.8; 21 Apr - 5.7; 7 May - 5.63; 23 May - 5.55; 8 June 5.50; (got COVID on 12th June so held); 1 July 5.4; 15 July 5.32; 8 Aug 5.2; 15 Aug 5.1; 22 Aug 5; 19 Sept 4.9; 2 Oct 4.81; 13 Oct 4.71; (COVID Booster 17/10/22 so longer hold ); 1 Nov 4.65; 3 Nov 4.60; 10 Nov 4.55; 13 Nov 4.50; 17 Nov 4.45; 20 Nov 4.40; 2 Dec 4.30mg; 9 Dec 4.20mg; I discovered that the volumetric container measured 33ml rather than 30ml in Dec 2022. Following helpful advice from moderator OnMyWay (see her reply of the 5th March) discovered taper with the dilution was 3.8mg (calculated by dividing 30/33 so that every 1ml of solution has 0.90ml of Mirtazapine. 7.50 - 0.90= 6.6ml which was the starting dose on 16th Aug 2021 not 7.5ml). I decided to keep using the solution as I didn't want more change to deal with than I had to. 2023 17 Mar 4.1(3.7); 26 Mar 4.0(3.6); 14 Apr 3.9(3.51)28 Apr 3.8(3.42); 6 Jun 3.7(3.33); 19 Jun 3.6(3.24); 30 Jun 3.5(3.1); 19 Jul 3.4(3.06); 27 Jul 3.35 (3.01); 29 Jul 3.3 (2.97); 4 Aug 3.25 (2.92); 7 Aug 3.2 (2.88); 21 Aug 3.1 (2.79); 14.09 3 (2.7); 29th Sept 2.9(2.61); 15 Oct 2.8(2.52); 30 Oct 10 2.7(2.43); 13 Nov 2.65(2.38); 20 Nov 2.6(2.34); 26 Nov 2.55(2.29); 10 Dec 2.5(2.25); 2024 - 14 Jan 2.45(2.20); 22 Jan 2.40(2.16); 29 Jan 2.35(2.11); 2 Feb 2.3 (2.07);15 Feb 2.25(2.02); 22 Feb 2.21 (1.98); 29 Feb 2.17(1.95); 7 Mar 2.13(1.91); 21 Mar 2.05 (1.84); 31 Mar 2.01 (1.80); 14 Apr 1.90 (1.71); This is not 'medical advice' - my 'non medical advice' is don't get any more 'medical advice' or you may end up getting more 'medical treatment' i.e more drugs, DSM labels and/or ECT. Please do not PM me thanks. Link to comment
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