Melissa5000 Posted September 29, 2018 Author Share Posted September 29, 2018 I really hope to see some improvements in the near future. It is now 3 months ago that I made my last changes. I hope that keeping my meds like this for a longer time will give my body a chance to make improvements. I can't wait to see some improvements!!! I'm having my peiod now for 7 days. It is exhausting me. My pain gets more intense when I get my period of course. Now I get my period by nature every 4th week. When I was on the pil I planned my period every 6th week. That was a lot better. Now I get it more often. Last night I spent many hours in bed but I couldn't sleep deeply. I woke up a lot and had to pee. So My sleep wasn't that good. I changed the bed sheets and did the laundry. I did some cleaning and decluttering. I try to take it easy. Maybe I'll be a bit better when my period is over in a few days. 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted October 4, 2018 Author Share Posted October 4, 2018 I had a few bad days. My sleep was bad and in the daytime I suffered extra pain. On top of that I missed a dose one day. I had a few days extra pain because of the missed dose. Last night my sleep was ok. My period is finally over. I hope to recover a little bit in the next few days. Today my fingers and arms hurt so I have to be extra careful. 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted October 5, 2018 Author Share Posted October 5, 2018 Last night I slept 7 hours. I was weeding the front yard. It was a lot of work. There was growing ivy through the hedge. I've been removing that as well. And I pruned a little here and there. Now my toes hurt from crouching. (nervepain). Moving and exercise still hurt me. It limits my activity a lot. Now I'm resting for the rest of the day. My energy is used up for the day. But I'm so happy that the task is done! I'm relieved. The last few days I felt so weak and had too much pain to even think about gardening. Now that I was able to do a bigger chore again I feel a lot better. 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted October 8, 2018 Author Share Posted October 8, 2018 Yesterday I was at a big family birthdayparty. It was a nice time. Today I mowed the lawn and did some gardening. I did the laundry. My right hand feels burning. I can't do much. My hand really hurts. I think I have a bladder infection. I drink lots of water and take cranberry capsules for it. I hope it will clear up soon. 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted October 9, 2018 Author Share Posted October 9, 2018 i still have the bladder infection. I keep on drinking lots of water and taking cranberry capsules. I slept 8,5 hours. I cycled 11 kilometer on my ebike for groceries and I visited two shops. After dinner I had to sit down. The day was ok. My right hand still hurts. 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted October 11, 2018 Author Share Posted October 11, 2018 Last night I slept 9 hours. My right hand and arm hurts. I did lots of laundry and folding. I wonder if my pain will ever fade! 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
India Posted October 11, 2018 Share Posted October 11, 2018 I'm sorry to hear of your pain. It is cruel to have to experience it . I find warm baths with magnesium and lavender oil help a little. I know everyone's pain is different and responds to different things. Does massage help? I find massage helps me a lot. 1999: Paroxetine (20mg). Age 16. 2007-2008: Fluoxetine (Prozac) for 1.5 years (age 25) Citalopram 20mg 2002-2005, 2009: Escitalopram (20mg), 2 weeks, (age 26) (adverse reaction)/*Valium 5mg/Temazepam 10mg 2010: Mirtazipine (Remeron)( do not remember dosage) 2010, 5 months. 2010-2017: Citalopram (20mg) (age 27 to 34) 2016: i.1st Sept- 31st Oct Citalopram 10mg , ii.1st November 2017-30th November 2017, Citalopram 5mg iii.1st December 2017- 4th February 2018, Citalopram 0mg, iv.5th February 2018- March 2018 Citalopram 5mg (10mg every other day) 28th February- tried titration of 5mg ( some adverse effects) 2018: 1st March 2018- 1st June Citalopram 10 mg (tablet form) /started titration 8mg , then 7 mg.2018: June 15th- 10th July Citalopram 10 mg pill every other day 2018: 10th July - 13th Sept Citalopram- 0mg (CBD oil first month of 0mg, passiflora on and off) 2018 13th Sept Citalopram 2mg , approx 16th Sept 4mg , approx 25th Sept 6mg held. 2019: 11 Feb 19: 7mg (instant bad rxn) 12 Feb 19 6mg held 1 May 19 5.4mg held 5 Oct 19 5.36mg 22 Oct 19 5.29mg 30 Oct 19 5.23mg 4/NOV/19 5.18mg 12 Nov 19 5.08mg 20 Nov 19 4.77mg 7 May 22 2.31mg 17/09/2023 0.8mg (Herbal/Supplements since 1st September: Omega Fish Oil 1200mg, 663mg of EPA- 2 tablets a day, magnesium and magnesium bath salts) I did not die, and yet I lost life’s breath - Dante Link to comment
India Posted October 11, 2018 Share Posted October 11, 2018 Also, have you thought of gentle swimming? I know I used to over exercise and I was told I had stressed by system. Obviously, it's a subjective matter. It's whatever makes you feel good. I know some ppl who swear by gentle yoga for nerve pain. I find sauna and steam rooms help also. 1999: Paroxetine (20mg). Age 16. 2007-2008: Fluoxetine (Prozac) for 1.5 years (age 25) Citalopram 20mg 2002-2005, 2009: Escitalopram (20mg), 2 weeks, (age 26) (adverse reaction)/*Valium 5mg/Temazepam 10mg 2010: Mirtazipine (Remeron)( do not remember dosage) 2010, 5 months. 2010-2017: Citalopram (20mg) (age 27 to 34) 2016: i.1st Sept- 31st Oct Citalopram 10mg , ii.1st November 2017-30th November 2017, Citalopram 5mg iii.1st December 2017- 4th February 2018, Citalopram 0mg, iv.5th February 2018- March 2018 Citalopram 5mg (10mg every other day) 28th February- tried titration of 5mg ( some adverse effects) 2018: 1st March 2018- 1st June Citalopram 10 mg (tablet form) /started titration 8mg , then 7 mg.2018: June 15th- 10th July Citalopram 10 mg pill every other day 2018: 10th July - 13th Sept Citalopram- 0mg (CBD oil first month of 0mg, passiflora on and off) 2018 13th Sept Citalopram 2mg , approx 16th Sept 4mg , approx 25th Sept 6mg held. 2019: 11 Feb 19: 7mg (instant bad rxn) 12 Feb 19 6mg held 1 May 19 5.4mg held 5 Oct 19 5.36mg 22 Oct 19 5.29mg 30 Oct 19 5.23mg 4/NOV/19 5.18mg 12 Nov 19 5.08mg 20 Nov 19 4.77mg 7 May 22 2.31mg 17/09/2023 0.8mg (Herbal/Supplements since 1st September: Omega Fish Oil 1200mg, 663mg of EPA- 2 tablets a day, magnesium and magnesium bath salts) I did not die, and yet I lost life’s breath - Dante Link to comment
Melissa5000 Posted October 12, 2018 Author Share Posted October 12, 2018 Hello India, thanks for your support! I don't have a bath tub unfortunatelly but I take magnesium supplements every day and I have magnesium oil that I can rub on sore muscles like my calves. When I'm really deeply burning massage makes it worse. But I massage every day a few triggerpoints in my neck and shoulders. That helps for face ache. And those triggerpoints can help relieve a little arm pain. But only a little. I have to travel an hour to the closest pool. Then I'll be exhausted when I get there. I'll be too tired for swimming then. I don't sport at all and I really regret that. But standing and walking and housekeeping tire me allready out after 15 minutes. I tried some mild yoga but then after it I used my energy up for the rest of the day. I could not do chores anymore like coocking or decluttering or do the dishes. But as soon as I get a little bit better I would love to try yoga again. In my city we don't have a sauna but I was in a sauna a few years ago. I know it is recommended for chronic pain. I would like that a lot! Just sitting and relaxing with a cup of herbal tea is helping me to relax. And also guided meditations. And distraction when I have pain is helpful too. As long as I'm physically not busy it is helpful. ************* Last night I slept in 2 etappes. In between I was awake for a few hours. Roadworkers woke me up. I went to the supermarket. Did some cleaning and decluttering. Now I have to rest again. My hands and arms hurt again. I would love to have a proper job again. But unfortunatelly I really can't! I can hardly type or walk or use my hands. I'm most of the time housebound or in the garden. 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted October 13, 2018 Author Share Posted October 13, 2018 Last night I slept in 2 etappes again. I stayed in bed for a very long time to rest. I had muscle pain in my back from laying in bed. Now when I am up it is better. I still have pain in my hands and arms. 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted October 16, 2018 Author Share Posted October 16, 2018 I had a good time with my boyfriend. We were going out on sunday night and monday we just sat on a bench in the sun wearing summer clothes half october! Sunday we went to a lighting store and bought a few new lamps as it gets earlier darker again. In the evening he was tired and I had nervepain so we just watched tv. Today I cycled to the hospital on my ebike and I went to a drugstore. I think I cycled 7 km from home. I haven't been able to travel that long without the bus in more than a year! That ebike is awesome! I have many aches and pains because I didn't sleep a lot. Workmen woke me up very early. The housing association had ordered to repave the garden path. They did my garden this morning and my neighbours so it was very noisy. 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted October 17, 2018 Author Share Posted October 17, 2018 Last night my sleep was ok. My right hand and arm hurt a lot. I didn't do much. Just some laundry and watching tv and reading. 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted October 18, 2018 Author Share Posted October 18, 2018 Last night I slept 9 hours! My right hand and fingers hurt. I can't do much. Just some laundry and watching tv and reading again. Boring! I have a bit of a cold and a sore throat. 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted October 18, 2018 Author Share Posted October 18, 2018 This evening I went for a small walk. I walked 1400 meter. It was nice to be outside with the autumn leaves. Now I feel it in my feet and legs. Just very tired. I have to sit down and relax with a cup of tea now! 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted October 19, 2018 Author Share Posted October 19, 2018 Last night I slept 7 hours. My right hand and arm hurt. I did some laundry and washed the windows outside. After it I had to sit down! My hands, arms, legs and feet hurt. My activity is still very limited. Will this ever improve? It is over for months after my last updose.................. 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Moderator Emeritus Gridley Posted October 19, 2018 Moderator Emeritus Share Posted October 19, 2018 It will improve. It can sometimes take more than four months to stabilize. I would just keep holding. You can't see it but you are healing inside while you hold. I just imagine those decommissioned neurotransmitters slowly reactivating while you hold. It's great you got 7 hours sleep last night! Gridley Introduction Lexapro 20 mg since 2004. Begin Brassmonkey Slide Taper Jan. 2017. End 2017 year 1 of taper at 9.25mg End 2018 year 2 of taper at 4.1mg End 2019 year 3 of taper at 1.0mg Oct. 30, 2020 Jump to zero from 0.025mg. Current dose: 0.000mg 3 year, 10 month taper is 100% complete. Ativan 1 mg to 1.875mg 1986-2020, two CT's and reinstatements Nov. 2020, 7-week Ativan-Valium crossover to 18.75mg Valium Feb. 2021, begin 10%/4 week taper of 18.75mg Valium End 2021 year 1 of Valium taper at 6mg End 2022 year 2 of Valium taper at 2.75mg End 2023 year 3 of Valium taper at 1mg Jan. 24, 2024: Hold at 1mg and shift to Imipramine taper. Taper is 95% complete. Imipramine 75 mg daily since 1986. Jan.-Sept. 2016 tapered to 14.4mg March 22, 2022: Begin 10%/4 week taper Aug. 5, 2022: hold at 9.5mg and shift to Valium taper Jan. 24, 2024: Resume Imipramine taper. Current dose as of April 1: 6.8mg Taper is 91% complete. Supplements: multiple, quercetin, omega-3, vitamins C, E and D3, magnesium glycinate, probiotics, zinc, melatonin .3mg, iron, serrapeptase, nattokinase I am not a medical professional and this is not medical advice but simply information based on my own experience, as well as other members who have survived these drugs. Link to comment
Melissa5000 Posted October 19, 2018 Author Share Posted October 19, 2018 Thank you very much for your answer Gridley! I just needed to hear that. Sometimes I get so unsure. I don't see any improvements yet since my last updose. When I read that others notice improvements looking back and I don't, then I get confused and dissapointed and afraid I will never heal. It's not funny to be in withdrawal. I just wait and survive. I don't fully live anymore. It feels like living with the handbrake on. I hope to see some improvements soon! I really need them! 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted October 21, 2018 Author Share Posted October 21, 2018 (edited) I have a bad cold. Last night I laid in bed from 22.00 to 12.00. I could not sleep because I was blowing my nose all the time! Today we celebrated my moms 70th birthday. We went to a restaurant with the entire family. No I'm pretty tired and watch tv. Edited October 23, 2018 by ChessieCat correct typo as per follow up post by member 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted October 23, 2018 Author Share Posted October 23, 2018 Last night I slept bad again because of the cold. I'm sneezing and blowing my nose all the time. My right hand burns all day. I hope tomorrow will be better! 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted October 24, 2018 Author Share Posted October 24, 2018 Last night I slept 8 hours. Had to go to my pain specialist in the hospital. I did not change my meds. I cycled 14 km on my ebike and visited a few shops. Now my right hand hurts. I'm tired. 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Moderator Emeritus Carmie Posted October 25, 2018 Moderator Emeritus Share Posted October 25, 2018 1 hour ago, Melissa5000 said: Last night I slept 8 hours. Had to go to my pain specialist in the hospital. I did not change my meds. I cycled 14 km on my ebike and visited a few shops. Now my right hand hurts. I'm tired. Hi Melissa, Im so sorry your pain doesn’t seem to get any better. That must be so hard for you, especially with your gardening n everything. I was looking at your signature again n I’m so sorry it started when you cold turkeyed a while back. If only doctors warned us about these meds n also told us how to taper correctly. I hope the pain specialist was of some help. Sending hugs🤗 Seroquel. 2019:➡️ From 7.25mg to 5.80mg✔️ 2020➡️From 5.60 to 4.80✔️ 2021➡️From 4.60 to 4.0✔️ 2022➡️From 3.95 to 3.55✔️2023➡️ Jan 26=3.50✔️March 17=3.45✔️ June12=3.40✔️ July30=3.35✔️ Sep14=3.30✔️ Oct31=3.25✔️ 2024➡️Jan15=3.20✔️ Feb19=3.15✔️ March26=3.10✔️This is NOT medical advice.Consult your doctor. Link to comment
Melissa5000 Posted October 25, 2018 Author Share Posted October 25, 2018 Hello Carmie, thank you for your support. Unfortunatelly my painspecialist didn't know what to do. She gave me a recipe for generic amitriptyline 10 mg. I needed that for just in case I run out of beads Sarotex Retard amitriptyline. I seem to get sun allergy from generic amitriptyline, so I hope I can taper off those beads before I run out. But just in case I can't taper them quick enough I can step over to the generic to prevent that I have to jump off them suddenly because my supply runs out. I am attending now a course in the hospital about pain education. They promise that we pain patients can lower the pain over time. I'm still trying graded activity. I hope some day I notice improvements! I see many videos on youtube of people who got rid of their chronic pain. So there must be some hope for me too. It is just not always easy. After the first improvements I would be relieved. 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted October 25, 2018 Author Share Posted October 25, 2018 Today I did lots of laundry and decluttering. I slept 6-7 hours. My right hand is burning all day. After dinner I had to sit down again. Boring, very boring. But I'm happy I could do some chores. The cold is getting better. 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted October 26, 2018 Author Share Posted October 26, 2018 Last night I slept 6,5 hours. I feel tired. I have cleaned the bathroom and the toilet and I have been mopping the floors. Now I have to sit down again and take it easy. My arms and hands hurt, my feet hurt and my toes burn. 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted October 28, 2018 Author Share Posted October 28, 2018 Last night I hardly slept. So now I feel tired and the lack of sleep makes my body very sensitive for pain. I feel a little sad and have cryingspells. 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted October 29, 2018 Author Share Posted October 29, 2018 Last night I slept 10 hours. When I woke up I felt tired and sensitive for pain. I was having cryingspells, was a bit chaotic and forgetfull. I was crying because I am afraid I never will heal. And that the brand lyrica goes off the market. I get sunallergy from the generic. And I can't stop the lyrica all of a sudden! So that wil lead to years of living in the dark with sunallergy. I can't taper now. I tried it in february this year. I had to do a big updose. And now I'm even worse off. That is my biggest fear now. When I think of it I get cryingspells. I hope I'll stabilise one day. And I hope I can taper the Lyrica before the A-brand Lyrica goes off the market. I mowed the lawn, did chores in the garden. I coocked, and did some cleaning. Now I'm tired and have to sit the rest of the day. My arms and hands and legs hurt. My neck- and shouldermuscles hurt too. Sad isn't it? 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted October 31, 2018 Author Share Posted October 31, 2018 Yesterday I had the pain education in the hospital. It was nice to meet other pain patients. After it I had the flue shot. Last night I slept too short 5 hours. So today I had extra pain unfortunatelly. I went grocery shopping and did a little cleaning. 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted November 1, 2018 Author Share Posted November 1, 2018 Last night I slept 8 hours. I did lots of laundry. All the tiny daily chores tire me out. My arms and hands hurt. (as usual) I have cramps in my feet and legs and my buttmuscles hurt!!! I wonder what I could have done to hurt my butt! Maybe cycling a lot on tuesday or standing in line for the flueshot on tuesday evening? I have difficulties when I have to stand a bit longer. 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted November 2, 2018 Author Share Posted November 2, 2018 Last night I slept 7 hours. I have burning hands and low back and butt pain. I did gentle exercise for the low back. That felt ok. I'm at home and I try to alternate between sitting and standing. 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted November 3, 2018 Author Share Posted November 3, 2018 Today I had a long journey. I traveled in one bus and 3 trains. I traveled for over 2,5 hours. It was a long trip. I am so glad that I arrived at his apartement! It was very difficult for me to walk and walk stairs at the train stations. Now my low back and butt and hamstrings hurt. And my hands and arms burn as usual. 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted November 3, 2018 Author Share Posted November 3, 2018 I went to my boyfriend his apartement. ☺️ 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted November 5, 2018 Author Share Posted November 5, 2018 Saturday night I could not sleep in the apartement of my boyfriend. It was noisy and the daylight woke me up early, On sunday I went back home. I had a lot of pain. But above all I was very tired. Last night I slept very well. I feel a lot better. I have everywhere a few aches and pains now. 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted November 8, 2018 Author Share Posted November 8, 2018 I have been busy buying presents for a Dutch Sinterklaas party. (5th december) And I bought presents for my boyfriend's birthday. And I had to replace some garden equipment. I was yesterday in the hospital. The pain education is a lot about stopping negative thoughts and replacing them for positive thoughts. In the long run this should help to reduce the pain over time with little steps. I know I worry and ruminate a lot. And I should try to stop the negative thoughts and think of a positive outcome instead. They also recommend graded activity. And we have to set a goal and immediatelly after it reward ourself with something small like a meditation or a cup of coffee, a sweet and so on. I have a lot of pain in my hamstrings now! Sometimes in my but too and sometimes even in my low back. I only slept 6 hours in the last 2 nights. 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted November 9, 2018 Author Share Posted November 9, 2018 Last night I slept 7 hours. I had to wait for the postman to deliver a new hedge trimmer. After he brought me the trimmer I immediatelly used it to prune the hedge in the front garden. I made the hedge a little bit shorter. Now I'm done before the winter. After it I went on my ebike to the hairdresser. Now that my hair is falling out a lot after quitting the birthcontrol pil Diane 35, my hair is getting thinner. I let the hairdresser cut my hair to just over the shoulders. It looks a lot better now. I let her cut off around 12 centimeter. My arms hurt a little bit, so I have to let them rest now. I try not to worry anymore. Worrying and rumunating can trigger the fight and flight response and so it can trigger the chronic pain alarm. That is what they teach me in the hospital at the pain edcucation course. I have to alternate between standing and sitting for the pain in my hamstrings, butt and low back. Musclepain is very common in withdrawal. I'm not too bothered by it. 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Moderator Emeritus ChessieCat Posted November 9, 2018 Moderator Emeritus Share Posted November 9, 2018 Sounds like you are doing okay considering everything. It's good that you are learning and using non drug ways to cope. * NO LONGER ACTIVE on SA * MISSION ACCOMPLISHED: (6 year taper) 0mg Pristiq on 13th November 2021 ADs since ~1992: 25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq: 50mg 2012, 100mg beg 2013 (Serotonin Toxicity) Tapering from Oct 2015 - 13 Nov 2021 LAST DOSE 0.0025mg Post 0 updates start here My tapering program My Intro (goes to tapering graph) VIDEO: Antidepressant Withdrawal Syndrome and its Management Link to comment
Melissa5000 Posted November 11, 2018 Author Share Posted November 11, 2018 Yes I prefer non drug techniques now ChessieCat! One day is better than the other. I'm still very handicapped. But I try everything to make the best of it and I hope to see some improvements in the near future. Last night I slept 8 hours. Today I went grocery shopping with my boyfriend. We are puzzling on a puzzle of 1000 pieces. We watched formule 1 on tv. Tonight it is Sint Maarten. Children with lampions are singing from door to door. We give them candy. I have been a lot on my feet in the store, coocking and cleaning and walking to the front door all the time for the children. Now my hands are burning and my feet and legs hurt. So I have to sit down and rest now. I have some face ache too. Now I don't ruminate about it anymore. It is what it is. Now I think: the pain will fade away! 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
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