Jump to content
Maybe

Muscle and joint stiffness, aches, and pain

Recommended Posts

gigi63
1 hour ago, RealMe said:

Thank you, Hellbutrin.  I wake up with dread and deep sadness that I am still in a pained condition.  I guess that is a cortisol spike.  Does it include both restless, anxious agitation at one end and exhaustion and dread at the other?

I can't believe I was updosed from 150 bupropion to 300 after only one week.  Such insanity.

Indeed it dose feel like all that!!!  Yes, it is insanity!!!!

Share this post


Link to post
Share on other sites
Shiva

Hi Dave

How are things progressing with your joint pain?

Yes, I too have had a lot of problems with pain. I finished tapering about 18 months ago and since then pain and joint problems have been steadily getting worse. It started mildly before I started tapering in my hands and wrists, along with pins and needles. Now I have bad pain and loss of mobility in my shoulders too, my back (which has always been weak from an old injury) has got massively worse. In the last 6 months I have developed constant pain in my hips and over the last week I have also been having shooting pains from my knees to my hips. All the pain and issues are getting worse alI the time. I wondered about arthritis too. I am hobbling around like an old woman and finding it increasingly difficult to do any activities and I sleep very poorly as the pain wakes me up constantly. 


Taking Fluoxetine since early 1990s, for around 25 years. Dose 20mg per day.

Any attempt to stop taking meds in the past has led to me falling down a big black hole.

Started 10% per week taper May 2016, fully off meds by end of July 2016.

 

Share this post


Link to post
Share on other sites
emmabee

Shiva

What you described sounds a lot like what I went through.  I had aches and joints pains during my taper, but the worst of my pain didn't start until a few months after I took the last pill.  It began in my hands and wrists, then my knees and hips, and then shoulder and neck.  I also had a different kind of pain in my back that felt like hot electricity running through my muscles.

 

But the worst of it lasted only about 6 or 7 months.  In the past two months or so, the pain in my hands and wrists has mostly disappeared.  The rest remains, but is not nearly as bad.  And the "sick thighs" that DLB described, that has been there all along...I think that was the first pain symptom to show up early on.  But now is infrequent, only surges up on the worst days.  Same with the electric tingling pain in my back, which has been the most excruciating part.  

 

The weakness, the fatigue, all still there but may be getting slowly better.   It depends on the day.  

 

Yoga helps.  I started daily yoga during my taper, and was getting a lot stronger and more flexible, but as the symptoms got worse I got weaker and struggled with balance.  I can't do as much as I could a year ago, but it's the one thing I make myself do every day because I really think it makes a difference.  

 

I have noticed that the less stress I feel, the less pain I have, so have been doing everything I can to keep my mind and body calm, even if it means waiting on the sidelines of life for a while.


Between 1988 and 2003 was on many different meds including Tricyclics, MAOIs, SSRIs, SSNRIs, and mood stabilizers, some helped but not for long.

2003 went off MAOIs and started taking Effexor XR at 450 mg.  

2012 added buspar to augment the Effexor (cannot recall exact dose) stayed on a few months with little effect.

2013 added Ritalin to augment the Effexor, no noticeable benefits so dropped that too.

2014 lowered dose of Effexor to 300mg and started adding Viibrid with negative effects so dropped Viibrid and went back to 450 of Effexor XR.

2015 added 2 mg Abilify to augment the Effexor, slight benefit at first but no lasting effects.

March 2016 tapered off Abilify in about 2 weeks.

April 2016 began to taper off Effexor XR, from 450 to 0 in about 8 weeks total. Somewhere around 37.5 had a serotonin syndrome episode and had to raise dose again for about a week until I started dropping again.  Now i know the entire taper was way too fast.  

May 2016 started taking Lexapro, increased from 5 mg to 10 mg within 10 days.

Tapered off Lexapro starting in September of 2016, dropping at various rates...quicker drops at first, then slowing down to .5 mg drops every 3 weeks or so.  Took last dose on 2/8/17.

 

Share this post


Link to post
Share on other sites
LadyBlonde

Hey guys, I had this hunch today that this new weird joint stiffness and pain would be due to withdrawal.. and here we are! 

I have done yoga nearly every day for the past year. I was a dancer so I would make a point to practice my splits often as well. This is not the case anymore.

After completely withdrawing from Sertraline in November 2017, I didn't notice any changes in the physical body right away. The first time I really noticed anything different was mid December when I was doing regular stretches and getting into the splits, which all of a sudden one day were no longer accessible due to this stiffness. 

Now, there are these events I volunteer at a few times a year that require being on your feet all day long. This last time, the most recent one in January, at the end of the event I had this horrible swelling under my knee cap that hurt to touch and lasted for a couple days following. 

Even the regular yoga I was doing became too much unless I did modifications. 

The only thing I can contribute is since I noticed this stiffness and weakness, I've added Pilates to my routine and I feel as though it is helping so far. Focusing on the muscles that surround the weakened joints and hoping one day they will grow back to normal. :unsure:

 


 

Share this post


Link to post
Share on other sites
JanCarol

My pain doctor told me to quit gluten.  All of it.  He said, "even a crumb can set off inflammation."

There are other inflammatory foods, like dairy.


"Easy, easy - just go easy and you'll finish." - Hawaiian Kapuna

 

Holding is hard work, holding is a blessing. Give your brain time to heal before you try again.

 

My suggestions are not medical advice, you are in charge of your own medical choices.

 

A lifetime of being prescribed antidepressants that caused problems (30 years in total). At age 35 flipped to "bipolar," but was not diagnosed for 5 years. Started my journey in Midwest United States. Crossed the Pacific for love and hope; currently living in Australia.   CT Seroquel 25 mg some time in 2013.   Tapered Reboxetine 4 mg Oct 2013 to Sept 2014 = GONE (3 years on Reboxetine).     Tapered Lithium 900 to 475 MG (alternating with the SNRI) Jan 2014 - Nov 2014, tapered Lithium 475 mg Jan 2015 -  Feb 2016 = GONE (10 years  on Lithium).  Many mistakes in dry cutting dosages were made.


The tedious thread (my intro):  JanCarol ☼ Reboxetine first, then Lithium

The happy thread (my success story):  JanCarol - Undiagnosed  Off all bipolar drugs

My own blog:  https://shamanexplorations.com/shamans-blog/

 

 

I have been psych drug FREE since 1 Feb 2016!

Share this post


Link to post
Share on other sites
dbc2471

Hi Dave, how is your joint pain? I'm having the same issues. I quit sertraline 2.5 mths ago.

Share this post


Link to post
Share on other sites
Altostrata

Hello, dbc. Please start a topic for yourself in the Introductions forum.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Share this post


Link to post
Share on other sites
Fightingawar

Does anyone else have body aches especially in your legs? I’m almost 10 weeks off and I know laying in the bed a lot doesn’t help but they hurt so bad that just walking a short distance I have to sit down.


Ativan- Currently taking 3.17 mg 6x a day for 4 years currently doing a liquid taper 

Anafranil- 125 mg was on for 2 years, 2016-March 2018 off only in 2 weeks my last dose was March 6 

Metoprolol-50mg twice daily for 2008-now

Prilosec-40mg once daily 2013-now

Singular-10mg once daily 2013-now

Magnesium-300mg 6 months 

 

Share this post


Link to post
Share on other sites
katieb

Hi. I. Am 6months off paxil. I have the most awful body aches and cramps and have had so all through my withdrawal of 5and half years. I was hoping things were going to get better but as of yet no sign. My legs are cramping so bad I don't sleep very much. I was wondering if these pills could cause fibromyalgia? 


Been taking paroxatine for approx 15 years.Tried a few times yo stop but failed. Am currently on 3.5mg liquid

Jan 2016 been slow tapering paroxatine and i am currently at 2.9 mg and last drop was 5 weeks ago.

Started to feel awful about 3 weeks ago with brain ???? , shakes, blurred vision and dizzyness. ..

Share this post


Link to post
Share on other sites
Fightingawar

I was wondering the same thing about fibromyalgia, I hurt all over it doesn’t help that I don’t get out of bed a lot but I feel so bad. Did you have high anxiety and depression too in withdrawal? So you have been off 6 months? Has any of your symptoms gotten better?


Ativan- Currently taking 3.17 mg 6x a day for 4 years currently doing a liquid taper 

Anafranil- 125 mg was on for 2 years, 2016-March 2018 off only in 2 weeks my last dose was March 6 

Metoprolol-50mg twice daily for 2008-now

Prilosec-40mg once daily 2013-now

Singular-10mg once daily 2013-now

Magnesium-300mg 6 months 

 

Share this post


Link to post
Share on other sites
katieb

TvWhilst I was withdrawing I had so many symptoms it's so hard to remember them all. Pain in shoulders neck and back have been consistent and now it is also in my legs and buttocks and in my face. Anxiety pops up every now and again and sometimes dizziness. These are the most bothersome for me. How about you? 


Been taking paroxatine for approx 15 years.Tried a few times yo stop but failed. Am currently on 3.5mg liquid

Jan 2016 been slow tapering paroxatine and i am currently at 2.9 mg and last drop was 5 weeks ago.

Started to feel awful about 3 weeks ago with brain ???? , shakes, blurred vision and dizzyness. ..

Share this post


Link to post
Share on other sites
katieb

Oh forgot to mention tinnitus. It's every day and very loud. 


Been taking paroxatine for approx 15 years.Tried a few times yo stop but failed. Am currently on 3.5mg liquid

Jan 2016 been slow tapering paroxatine and i am currently at 2.9 mg and last drop was 5 weeks ago.

Started to feel awful about 3 weeks ago with brain ???? , shakes, blurred vision and dizzyness. ..

Share this post


Link to post
Share on other sites
Fightingawar

Right now I’m having some serious anxiety to the point I’m terrified and don’t know what to do. I’m nauseous with no appetite, insomnia, and body aches I really don’t know if I can keep suffering like this I got much worse over the weekend 😪 i guess I need to call my doctor but they are so clueless 


Ativan- Currently taking 3.17 mg 6x a day for 4 years currently doing a liquid taper 

Anafranil- 125 mg was on for 2 years, 2016-March 2018 off only in 2 weeks my last dose was March 6 

Metoprolol-50mg twice daily for 2008-now

Prilosec-40mg once daily 2013-now

Singular-10mg once daily 2013-now

Magnesium-300mg 6 months 

 

Share this post


Link to post
Share on other sites
JLex1981

Hey Fighting... I would call your Dr... can't they reinstate you on a tricyclic ? There's no need to suffer like that... does the Ativan help? I think Alto mentioned taking a low dosage of a tricyclic would help. You pay the bill , you tell them what you think !! If not get another Dr. 


John

Zoloft 2001-2003 forget MG's taken, tapered slowly (so I thought) to 0MG in 2003

Withdrawal led me to go on Lexapro 2003

Lexapro 15MG (15 years) 2003-2018

Tapered to 5MG over the last year and 1/2 From 01-2017 thru 04-2018 in 2MG tapers roughly a month each some 2 months or more to stabilize 

5MG Pill  to 4ML/MG Liquid Solution on 03/26/18

04-26-2018 re-upped to 4.4 ML due to withdrawal symptoms

05-06-2018 re-upped to 4.8ML due to withdrawal symptoms

05-07-2018 went to 5MG pill

 

Share this post


Link to post
Share on other sites
Fightingawar

I’m waiting on a call from my doctor now and see what they say and no I feel like the Ativan isn’t doing anything anymore. I have got to figure out which one had the least serotonin production since the doctors act clueless 😪


Ativan- Currently taking 3.17 mg 6x a day for 4 years currently doing a liquid taper 

Anafranil- 125 mg was on for 2 years, 2016-March 2018 off only in 2 weeks my last dose was March 6 

Metoprolol-50mg twice daily for 2008-now

Prilosec-40mg once daily 2013-now

Singular-10mg once daily 2013-now

Magnesium-300mg 6 months 

 

Share this post


Link to post
Share on other sites
Altostrata

Fighting, I went to some trouble to find this information for you:

 

 

In the Symptoms forum, please use search and read and add to an existing topic before starting a new topic.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Share this post


Link to post
Share on other sites
Altostrata

Merged similar topics.

 

Please note many body aches are due to muscle tension from withdrawal syndrome.

 

Many people do better with fish oil and magnesium supplements, see
http://survivingantidepressants.org/index.php?/topic/36-king-of-supplements-omega-3-fatty-acids-fish-oil/

http://survivingantidepressants.org/topic/15483-magnesium-natures-calcium-channel-blocker/

 

A lot of people find them helpful. Try a little bit of one at a time to see how it affects you.

 

Magnesium in particular can help muscles relax.


This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Share this post


Link to post
Share on other sites
Fightingawar

Thank you!!


Ativan- Currently taking 3.17 mg 6x a day for 4 years currently doing a liquid taper 

Anafranil- 125 mg was on for 2 years, 2016-March 2018 off only in 2 weeks my last dose was March 6 

Metoprolol-50mg twice daily for 2008-now

Prilosec-40mg once daily 2013-now

Singular-10mg once daily 2013-now

Magnesium-300mg 6 months 

 

Share this post


Link to post
Share on other sites
Melissa5000

Here is another victim!

 

I hurt all over. I have severe musclepain, especially in my arms, hands, legs and feet. On top of that I feel burning pain in my fingers. And a storm of nervepain in my body around my muscles (under the skin deeper in my body). The storm of nerverpain begins when I move too much. But I can hardly move before it starts. When I move a little more my core starts to burn. And I feel my tea extra hot in my throat and stomach when I drink it. Also warm tap water feels hotter now on my hands. I can hardly walk. Even inside the house I can not walk unlimited. I suffer a lot since I tapered my last tablet of amitriptyline 22th september 2017. Before I had allready tapered a lot of course. But this last tablet made it unbearable. And I do have still anaother 100 mg lyrica to taper. Tapering is totally impossible now. So I have to do a very long hold now. I doubt if I should updose a little more or not. Difficult!

 

Does anyone recognize the storm of nervepain deep in the arms and legs and core around the muscles?  (It is different from pins and needles.) 


2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg

2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg

2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero  (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline.  9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019),  8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed

Share this post


Link to post
Share on other sites
Melissa5000
On 5/13/2018 at 1:47 AM, Fightingawar said:

Does anyone else have body aches especially in your legs? I’m almost 10 weeks off and I know laying in the bed a lot doesn’t help but they hurt so bad that just walking a short distance I have to sit down.

 

Yes I have this too! I can walk around 800 meters. After that I have to sit down! My legs and feet hurt too much then from nervepain and musclepain which I got in withdrawal.

 

I suffer from widespread musclepain and nervepain. I have it especially in my hands/fingers/arms/legs/feet/toes. I feel burning nerve pains around my muscles and tendons. Whenever I move/exercise/cycle/do housekeeping/gardening/cycling/typing my hands/feet/arms/legs stat to hurt a lot!!! When my cns gets too tired (what happens quickly) I get on top of that a storm of nervepain through my entire body. 


2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg

2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg

2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero  (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline.  9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019),  8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed

Share this post


Link to post
Share on other sites
Junglechicken

Hi Melissa and Fightingawar,

 

I have this too most particularly in my legs and feet...even worse in my right leg.

 

Was thinking it could be to do with surface veins but now I'm wondering whether it's WD relayed.  After my last taper 3 yrs ago I had to re-instate due to unbearable nerve pain in my arms, legs and lower back pain.

 

My hands also hurt, rather like arthritis every morning upon waking.

 

After exercise my leg muscles seize up.

 

 

 


Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

 

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)

Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018

Share this post


Link to post
Share on other sites
Melissa5000

Hello Jungle chicken!

 

Those nervepains are definitely from withdrawal. I never had it before and it started in withdrawal a few days after I tapered my last capsule of amitriptyline. It got even worse when I tapered a capsule of lyrica 4 months later. I had to updose 2 capsules of lyrica unfortunatelly. The updose made the pains a little less intense. But I still suffer badly. 

 

JC did your hands and fingers hurt during typing? I can only type for a very short time. After it my fingers burn.


2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg

2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg

2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero  (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline.  9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019),  8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed

Share this post


Link to post
Share on other sites
Galmond

Hello

 

Just wanted to say I understand the pain symptoms that a lot of you are suffering from.  I'm not sure if it's a withdrawal symptom but I would like to think so, especially if you never had pain before Ads. I have had pain in both legs and arms for 1 year now. They started after the first day of tapering of cymbalta. The worst part is I didn't take the AD for that problem and now it's my biggest issue. I've even thought I might have fibromyalgia since I have all the symptoms. It has also given me chronic fatigue syndrome. I haven't much of anything that helps the pain. But I will say I've recently tried acupuncture and it appears to be promising.


Took cymbalta for six years. I started at 30mg. After 1-2 years i went up to 40mg then another 1-2 years went to 60mg. Stayed there for at least 2 years. At around 6 yrs it stopped working and I'm free of cymbalta for 1 yr. Took last dose August 1, 2017. I have tried a few other Ads during that year. Effexor, pristiq, welbutrin,and nortriptyline. None of them helped.

Share this post


Link to post
Share on other sites
Junglechicken
On 8/10/2018 at 3:26 AM, Melissa5000 said:

Hello Jungle chicken!

 

Those nervepains are definitely from withdrawal. I never had it before and it started in withdrawal a few days after I tapered my last capsule of amitriptyline. It got even worse when I tapered a capsule of lyrica 4 months later. I had to updose 2 capsules of lyrica unfortunatelly. The updose made the pains a little less intense. But I still suffer badly. 

 

JC did your hands and fingers hurt during typing? I can only type for a very short time. After it my fingers burn.

 

If I spend a lot of time on the computer, then my hands start to seize up and hurt 

 

My legs are still very painful after a light workout on Thurs evening.

 

Nerve and muscle pain flaring up which are just awful 😞


Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

 

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)

Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018

Share this post


Link to post
Share on other sites
Melissa5000

@ Galmond and Junglechicken: I recognize all your symptoms! Before in withdrawal I had a short period of widespread pain. At the time I wondered if I had fybromyalgia. Later the pain went away. 3 months later after tapering I got these pains back a 100 times worse!!!!!!!! Now I was very sure it was from withdrawal. In the hospital they would probably call it fybromyalgia. But that is just a name. There is nothing they can do about it. They give you painkillers that cause the same symptoms in withdrawal! No real solution. My painspecialist has no other solution than offering me more meds. But because of the side effects and my wish to come of these meds one day we decided not to updose any more. 

 

I'm trying to get rid of these pains by a very gentle self created graded activity plan. I try to do very slowly more chores over time. Walking is very difficult for me now. I just walk around the living room with the kitchen timer. I walk slowly for 10 minutes now every day. I started at 5 minutes. So there is some improvement. I try to cycle a little further every now and then. I try to type every day for a few short moments. Those are my exercises. :D


2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg

2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg

2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero  (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline.  9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019),  8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed

Share this post


Link to post
Share on other sites
Galmond
On 8/11/2018 at 5:29 PM, Melissa5000 said:

@ Galmond and Junglechicken: I recognize all your symptoms! Before in withdrawal I had a short period of widespread pain. At the time I wondered if I had fybromyalgia. Later the pain went away. 3 months later after tapering I got these pains back a 100 times worse!!!!!!!! Now I was very sure it was from withdrawal. In the hospital they would probably call it fybromyalgia. But that is just a name. There is nothing they can do about it. They give you painkillers that cause the same symptoms in withdrawal! No real solution. My painspecialist has no other solution than offering me more meds. But because of the side effects and my wish to come of these meds one day we decided not to updose any more. 

 

I'm trying to get rid of these pains by a very gentle self created graded activity plan. I try to do very slowly more chores over time. Walking is very difficult for me now. I just walk around the living room with the kitchen timer. I walk slowly for 10 minutes now every day. I started at 5 minutes. So there is some improvement. I try to cycle a little further every now and then. I try to type every day for a few short moments. Those are my exercises. :D

Melissa

 

Hello. Just a thought which I'm sure has crossed your mind but have you considered acupuncture. I have gone to 4 sessions now today being my 4th. I have seen a great deal of pain reduction. I still have pain, but it is much more manageable. I'm not sure if it just a band-aid or if it helps long term. But I do know I was very sceptical about it working but for me it has.


Took cymbalta for six years. I started at 30mg. After 1-2 years i went up to 40mg then another 1-2 years went to 60mg. Stayed there for at least 2 years. At around 6 yrs it stopped working and I'm free of cymbalta for 1 yr. Took last dose August 1, 2017. I have tried a few other Ads during that year. Effexor, pristiq, welbutrin,and nortriptyline. None of them helped.

Share this post


Link to post
Share on other sites
Junglechicken

I'm back in the pain boat.

 

Feels like my body is turning to stone.

 

If I don't start doing yoga, it will turn to stone.

 

Contributing factors:

 

WD

Grieving loss of my father

Hormonal fluctuations / imbalances

 

The "perfect storm" for sending my body into pain.


Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

 

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)

Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018

Share this post


Link to post
Share on other sites
Melissa5000

@ Galmond: I didn't try acupuncture. How long after the acupuncture you keep profiting from a session?

 

@ JC  having my period or pms makes my pain increase! 

Grieving and stress and mental problems are very famous for increasing pain, even for people who are not in withdrawal at all.''

 

My pains started in withdrawal. I wonder why they are persisting so long this time. It is almost a year ago now when it started with no breaks. 

I hope that increasing my activity can help over time. The problem is that my baseline is so low I can hardly move or do chores. But I keep trying!

Of couse I do have many setbacks. But I managed to increase my activity a little bit. 


2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg

2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg

2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero  (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline.  9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019),  8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed

Share this post


Link to post
Share on other sites
Galmond
On 8/22/2018 at 9:03 PM, Melissa5000 said:

@ Galmond: I didn't try acupuncture. How long after the acupuncture you keep profiting from a session?

 

@ JC  having my period or pms makes my pain increase! 

Grieving and stress and mental problems are very famous for increasing pain, even for people who are not in withdrawal at all.''

 

My pains started in withdrawal. I wonder why they are persisting so long this time. It is almost a year ago now when it started with no breaks. 

I hope that increasing my activity can help over time. The problem is that my baseline is so low I can hardly move or do chores. But I keep trying!

Of couse I do have many setbacks. But I managed to increase my activity a little bit. 

Melissa

 

When I go to my acupuncture sessions I usually get relief that entire day. I do go twice a week. I seem to to get relief for 2 or 3 days after a session. I've been to 5 total sessions at this point and it seems to just make my pain way more manageable. With that said I still have some bad moments where the pain is awful. 


Took cymbalta for six years. I started at 30mg. After 1-2 years i went up to 40mg then another 1-2 years went to 60mg. Stayed there for at least 2 years. At around 6 yrs it stopped working and I'm free of cymbalta for 1 yr. Took last dose August 1, 2017. I have tried a few other Ads during that year. Effexor, pristiq, welbutrin,and nortriptyline. None of them helped.

Share this post


Link to post
Share on other sites
Galmond

Just wondering if anyone has experienced pain as a main symptom or as a long term symptom?

 

I have been off cymbalta for 13 months today and one of my most noticeable symptoms has been pain for me . And the pain is predominantly in my legs. It usually ranges in my calves and meaty part of my thighs front and back. The pain started immediately after the first drop in my taper and has not gone away. 

 

I want to add I never had pain before I took the cymbalta or took cymbalta for pain.

 

I have lived my life on a heating pad and aspercreme which is is a lidocaine creme from CVS for a year now. Just hoping this might catch someone's eye and they might have some tips on what is the cause and things that could help. Thanks to all in advance.


Took cymbalta for six years. I started at 30mg. After 1-2 years i went up to 40mg then another 1-2 years went to 60mg. Stayed there for at least 2 years. At around 6 yrs it stopped working and I'm free of cymbalta for 1 yr. Took last dose August 1, 2017. I have tried a few other Ads during that year. Effexor, pristiq, welbutrin,and nortriptyline. None of them helped.

Share this post


Link to post
Share on other sites
Sionevar

I've had terrible aches in my legs for the last six months, mostly in my hips in knees. It started around the time I completely came off my medication. That being said, I've always had knee problems - osteoarthritis runs in my family - and I've been told the joint pain might be a symptom of a hormonal problem I'm dealing with, so I don't know for sure what the trigger is. It's very frustrating, because I've always been a big walker, but now, even walking half a mile exhausts me. Aleve, jacuzzi baths and massages keep me going. 


2016 = 5mg Ciprelex per day
2017 = 2.5mg per day for 4m, 2.5mg every 2nd day for 4m, 2.5mg every 3rd for 4m
2018 = 2.5mg every 4th day for 3m, stopped drugs in March 

Share this post


Link to post
Share on other sites
Galmond
2 hours ago, Sionevar said:

I've had terrible aches in my legs for the last six months, mostly in my hips in knees. It started around the time I completely came off my medication. That being said, I've always had knee problems - osteoarthritis runs in my family - and I've been told the joint pain might be a symptom of a hormonal problem I'm dealing with, so I don't know for sure what the trigger is. It's very frustrating, because I've always been a big walker, but now, even walking half a mile exhausts me. Aleve, jacuzzi baths and massages keep me going. 

I'm sorry to hear you also have pain. It really is the worst. I agree with the Jacuzzi I sit in one every day almost. Massages I haven't tried but will look into. I have been trying acupuncture and it seems to help some also. Its just crazy to me my pain has not gotten better in 1 years time. Well thanks for your input hope we both find relief soon.


Took cymbalta for six years. I started at 30mg. After 1-2 years i went up to 40mg then another 1-2 years went to 60mg. Stayed there for at least 2 years. At around 6 yrs it stopped working and I'm free of cymbalta for 1 yr. Took last dose August 1, 2017. I have tried a few other Ads during that year. Effexor, pristiq, welbutrin,and nortriptyline. None of them helped.

Share this post


Link to post
Share on other sites
Sionevar

Reading through some other posts and forums, this seems to be a common complaint from people who have come off or tapered down AD medication. Many of them do report the chronic pain eventually fading, but not quickly - sometimes as long as several years. I'm going to give acupuncture a try, see if that helps. Because I'm not ready to feel this old and worn out just yet. Stay strong, look after yourself, I hope you feel better soon.


2016 = 5mg Ciprelex per day
2017 = 2.5mg per day for 4m, 2.5mg every 2nd day for 4m, 2.5mg every 3rd for 4m
2018 = 2.5mg every 4th day for 3m, stopped drugs in March 

Share this post


Link to post
Share on other sites
Galmond
22 minutes ago, Sionevar said:

Reading through some other posts and forums, this seems to be a common complaint from people who have come off or tapered down AD medication. Many of them do report the chronic pain eventually fading, but not quickly - sometimes as long as several years. I'm going to give acupuncture a try, see if that helps. Because I'm not ready to feel this old and worn out just yet. Stay strong, look after yourself, I hope you feel better soon.

 


Took cymbalta for six years. I started at 30mg. After 1-2 years i went up to 40mg then another 1-2 years went to 60mg. Stayed there for at least 2 years. At around 6 yrs it stopped working and I'm free of cymbalta for 1 yr. Took last dose August 1, 2017. I have tried a few other Ads during that year. Effexor, pristiq, welbutrin,and nortriptyline. None of them helped.

Share this post


Link to post
Share on other sites
Galmond
25 minutes ago, Sionevar said:

Reading through some other posts and forums, this seems to be a common complaint from people who have come off or tapered down AD medication. Many of them do report the chronic pain eventually fading, but not quickly - sometimes as long as several years. I'm going to give acupuncture a try, see if that helps. Because I'm not ready to feel this old and worn out just yet. Stay strong, look after yourself, I hope you feel better soon.

Thanks for the insight. I'm doing my best to stay strong, but it's tough when I can't do much and haven't for a year. Hope you have success with the acupuncture. 


Took cymbalta for six years. I started at 30mg. After 1-2 years i went up to 40mg then another 1-2 years went to 60mg. Stayed there for at least 2 years. At around 6 yrs it stopped working and I'm free of cymbalta for 1 yr. Took last dose August 1, 2017. I have tried a few other Ads during that year. Effexor, pristiq, welbutrin,and nortriptyline. None of them helped.

Share this post


Link to post
Share on other sites
Melissa5000

I have pain in my arms and legs and the rest of my body since 22th september 2017.

 

I also suffer from extreme burning pain in my fingers and hands. Does anyone have these finger/handpains for a long time? Are there cases on SA of people who overcame those pains? What did they do about it? I can't find cases about longterm fingerpains that later on disappeared. I would like to know about those threads on SA if there are any. Or cases elsewhere on the web where I can read about them. 


2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg

2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg

2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero  (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline.  9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019),  8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×
×
  • Create New...

Important Information

Terms of Use Privacy Policy