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Muscle and joint stiffness, aches, pain or weakness


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I am posting this b/c I am at a loss as to how to deal with this, not sure if it's the WD or something else.

 

Since recovering from a 5th metatarsal bone  break 3.5 years ago, I've been gradually getting back to my prior gym workout intensity to regain my flexibility, stamina, strength, and slim physique - not to mention the myriad mental/emotional benefits. Have had to also deal w/muscle pain & tightness, which I have been successfully treating w/trigger point therapy techniques.

 

I've been doing great, although it's taking much longer than I figured, all of the above mentioned areas are gradually improving, I feel and look better all the time.

 

The past couple of weeks, however, the muscle aches and tightness are roaring back w/a vengeance, to the point where I'm unable to do simple things like reaching up into a kitchen cabinet, lifting up my leg to remove my sock, walking lunges in the gym, etc, etc. Combined with intermittent joint pain in previously healed areas. No amount of self-treatment is making a dent in this, which is totally puzzling given how things have been up to now.

 

I am thinking of checking out a trigger point physical therapist that my therapist recommended, and who has a bunch of glowing help reviews, but part of me  is wondering if it would be a waste of time/money/effort/hope, if it's due to the WD.

 

Sorry for the long post - I'm wondering whether anyone here can relate, and if so, what has been the outcome?

 

Thanks in advance!

 

 

3/2018: 10mg/day escalitopram; 10/19/18: blood tests revealed mild hypothyroidism & higher than normal cholesterol, so decided to discontinue by tapering off & reduced to 5mg/day; 11/11/18: reduced to approx. 2.5mg/day (inexact since using pill splitter). Resumed long-discontinued Solgar cal/mag/zinc but the exhaustion came back so will try to cut dosage. Taking a plethora of vits/minerals for many years; wondering whether some of what I'm on is causing the exhaustion that came on 3.5 yrs ago w/broken foot & never left. Discontinued 12/2/18. Each step down. Took 3 weeks to stabilize enough for next stage. A month out from discontinuation, I am symptom free except for occasional cognitive fog, and intermittent muscle soreness. 6 weeks out (1/19/19), feeling pretty good, a bit active bowel still and gym stamina back to 80% pre-medication levels.

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  • 2 weeks later...

I relate to the topic, due to low back and neck pain.  As a junior in high school playing football, I somewhat accidentally ran straight into another player and got my head snapped back causing neck pain.  It subsided and I never had it checked out.  In my 30's I lifted a tire wrong and wound up with a bulged disk which caused excruciating pain.  This took a year to heal and feel better.

Now at age 70, I'm experiencing pain in these two areas.  Usually it is low grade ongoing pain.  But lately, any little wrong movement on my part can cause the pain to worsen.  The pain can drain my energy, cause headaches,  stomach queesiness, and require bed rest.  Fortunately, a day or two of rest will bring me back to a better state.  I do go to the gym for a light work out, three times a week.  I try to be very careful when doing any chores around the home and yard.  Since I know bending down repetitively is hard on my back, I pay others to do chores like raking up leaves in the yard.

I currently do light physical therapy exercises on my own, which loosens things up a bit.

I have tried massage for pain.  I have tried chiropractic.  I have tried physical therapy.  I have tried pain medication.  I have tried a few other things.

I don't want surgery.  I don't want a large needle in my back to give me pain killer medication.

My conclusion is, I will just have to live with it.

I believe continuing to keep moving, is the best key to maintaining my physical well being.

"Rejoice in hope, be patient in tribulation, be constant in prayer."  Romans 12:12

See LarryS Health History

https://www.survivingantidepressants.org/topic/18063-larrys-tapering-off-venlafaxine-effexor-225mg/?do=findComment&comment=575976

 

Aug 2014 start Venlafaxine 225 mg.

Other Pharmaceuticals per day:  Amlodipine Besylate 5 mg

Vitamins per day:  C 1,000 mg; D3 50 mcg; Probiotic 218 mg; Fish Oil 1,600 mg; Magnesium Glycinate Liquid 165 mg; CoQ10 40 mg; Saw Palmetto 320 mg; Calcium 250 mg; Red Yeast Rice 1,200 mg; Plant Sterol Esters 1,000 mg

Start Taper: 225 mg to 55 mg; June 5, 2018, to June 15, 2019

49 mg July 16, 2019; 44 mg August 13, 2019; 49 mg (up 11%) Aug. 26, 2019: 44 mg Sept. 10, 2019; 40 mg Oct. 8, 2019;  37.5 mg (6%) Nov. 6, 2019; 49.5 mg (up 32%) Nov 18, 2019; 44.5 mg Dec. 30, 2019; 40 mg Jan. 27, 2020; 36 mg Feb. 24, 2020; 32.5 mg March 23, 2020; 29.2 mg April 20, 2020; 26.3 mg May 18, 2020; 23.7 mg June 15, 2020; 21.3 mg July 6, 2020; 19.2 mg Aug. 4, 2020; 17.3 mg Sept. 1, 2020; 15.5 mg Sept. 29, 2020; 14.0 mg Oct. 27, 2020; 12.6 mg Nov. 24, 2020; 11.3 mg Dec. 15, 2020; 10.2 mg Jan. 5, 2021; 9.2 mg Feb. 2, 2021; 8.3 mg March 9, 2021; 7.4 mg April 6, 2021; 6.7 mg 5/4/2021; 6.0 mg 6/01/2021; 5.4 mg 7/13/2021; 4.9 mg 8/10/2021; 4.4 mg 9/9/2021; 4.0 mg 10/14/2021; 3.5 mg 11/11/2021; 7.5 mg (up 200%) 12/6/2021; 6.75 mg 1/17/2022; 6.00 mg 2/21/2022; 5.62 mg 3/21/2022; 4.87 mg 4/25/2022; 4.50 mg 5/30/2022; 4.13 mg 7/5/2022; 3.75 mg 8/1/2022; 3.38 mg 9/7/2022; 3.00 mg 10/5/2022; 2.63 mg 11/02/2022; 2.25 mg 12/1/2022; 1.88 mg 1/5/2023; 1.50 mg 2/9/2023; 1.13 mg 3/16/2023; 0.75 mg 4/20/2023; ZERO mg 5/5/2023

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  • Altostrata changed the title to Muscle and joint stiffness, aches, and pain
  • 3 months later...

Does withdrawal cause muscle aches?

 

Hey, everyone. I dropped from 150 mg to 100 mg of Seroquel back in February. I’m wondering if it can cause muscle aches. I have a bad back to begin with, but for the past few days I’ve had random muscles aches all over it. They’re not in anyone one place like they would be if I pulled something. One minute my lower back hurts. Then across my shoulders. Then down my spine. The only consistency is the inconsistency. 

 

Last year when I tried getting off Prozac my doctor put me on Trintellex and I gave up after a month because my back/butt was so sore I couldn’t sit and I felt like I’d been punched in the mouth. 

 

I took a Robaxacet tonight and that seems to be helping a bit. 

 

Has anyone else experienced this?

 

Edited by ChessieCat
added topic title

As of September 5th, 2022:

13 mg liquid Prozac - Reinstated in March, 2020. Prior to that, 1994-2019

43 mg Seroquel - Started in July 2006

9.375 mg Imovane - Started in March, 2020

20 mg Propranolol 3x a day - June, 2020

0.5 mg Clonazepam 3x a day - June, 2020

 

 

 

 

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I am experiencing withdrawal symptoms; pain in my head and back of my neck. Neuropathy. Recently felling wooshy; lightheaded and dizzy. Because I know why I am feeling this way I can accept it and say to myself it will pass. X

Prescribed Venlafaxine 150mg ..........

 19 Feb 2019 stopped Venlafaxine 150mg cold turkey. 06 March 2019 restarted Ven 125mg. 04 April 2019 9 mini pills. 02 May 2019 8 mini pills. 01July 2019 7 mini pills. 18 Aug 2019 6 mini pills. 24 Sept 2019 5.50 mini pills. 11 October 2019 5 mini pills. 5th May 2020 Reinstated Ven 125 mg XR 9 pills.

9th Nov 2020 Update Started splitting dose to twice per day

02/02/2021 can’t stabilise without symptoms. 
03/02/21 9 mini pills @ 10am 

Updated.... July 2021 108mg, Sept 2021 107mg, 

tapering steps to be updated

current dose 14 July 2023 80mg

23.07.23 75mg half way ! 

 

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On 7/9/2019 at 12:58 AM, FleeingFluoxetine said:

 

Does withdrawal cause muscle aches?

 

 

It's a common withdrawal symptom.  I've had back of neck stiffness and pain and lower back pain throughout withdrawal.  It comes and goes.

Gridley Introduction

 

Lexapro 20 mg since 2004.  Begin Brassmonkey Slide Taper Jan. 2017.   

End 2017 year 1 of taper at 9.25mg 

End 2018 year 2 of taper at 4.1mg

End 2019 year 3 of taper at 1.0mg  

Oct. 30, 2020  Jump to zero from 0.025mg.  Current dose: 0.000mg

3 year, 10 month taper is 100% complete.

 

Ativan 1 mg to 1.875mg 1986-2020, two CT's and reinstatements

Nov. 2020, 7-week Ativan-Valium crossover to 18.75mg Valium

Feb. 2021, begin 10%/4 week taper of 18.75mg Valium 

End 2021  year 1 of Valium taper at 6mg

End 2022 year 2 of Valium taper at 2.75mg 

End 2023 year 3 of Valium taper at 1mg

Jan. 24, 2024: Hold at 1mg and shift to Imipramine taper.

Taper is 95% complete.

 

Imipramine 75 mg daily since 1986.  Jan.-Sept. 2016 tapered to 14.4mg  

March 22, 2022: Begin 10%/4 week taper

Aug. 5, 2022: hold at 9.5mg and shift to Valium taper

Jan. 24, 2024: Resume Imipramine taper.  Current dose as of April 1: 6.8mg

Taper is 91% complete.  

  

Supplements: multiple, quercetin, omega-3, vitamins C, E and D3, magnesium glycinate, probiotics, zinc, melatonin .3mg, iron, serrapeptase, nattokinase


I am not a medical professional and this is not medical advice but simply information based on my own experience, as well as other members who have survived these drugs.

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  • 1 month later...

Can withdrawal cause tendon and joint issues? Since my reaction to antibiotics it's been downhill with waves and some windows too although I'm still pretty sick in the windows. My issue is my tendons and joints. I've dislocated my bicep tendon and possible torn my rota cuff with minimal to no exercise or impact. My other shoulder is starting to cause pain when I move it now. Is withdrawal and tendon weakness a symptom?

Fluanxol dosage n/a - 6 months cold turkey Start/ may 2015 end/august 2015

Sertraline 100mg - 10 months cold turkey start/ may 2015 End/Feb 2016

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  • 1 month later...

I would love to hear anyones suggestions on how to help with achy joints. I have issues with pain around my elbows, right shoulder, neck..i was an athlete my entire life and would like to get active again. 

i have been taking a long break from vigorous activity hoping my body could relax a bit. supplements and therapies would love to hear. or any physical therapy programs etc

 

-JAN 18' - aug 18’ -22.5mg temazapam + 7.5-15mg remeron  for insomnia. —Aug 18’ temazapam switched to ambien 10mg

-AUG 18’ - April/May 19’ Taper off remeron 

-Mid july 19’ - one week of  200mg Gabapentin c/t  —-mid July 19”-  3 weeks of 50mg trazadone fast tapered 

-July 19’- began random use of .5 Xanax rarely to get rest 

- Mid Aug 19’ - one day of viibryd, 7 days of cymbalta 30mg, 3 days of seroquel 25-50mg

-Aug- 1 wk of Klonopin .5-.75 fast taper 

-Sep 19’ tried trazadone 50 again (still on ambien 10mg)  some time in sep 19’ was c/t off 10mg ambien because was thought to have become ineffective

-oct 7 c/t trazadone and restarted 7.5 remeron holding since 

12/3/19  at 7.5 after a 2 day attempt compounded 7mg. Jan 2020  dry taper from 7.5 |Oct 1 at 6.4 high disruption to sleep began |oct 20 Updosed to 6.6 |oct 26 updosed to 6.8 holding. Jan 26 updosed to 7.5 holding till stable.

supplements 400mg magnesium glycinate nightly

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I have had the same issues.  I see a chiropractor every other week.  I also have sound vibration healing done the same week as my chiro.  I take 41mg cbd in the morning and at night.  I removed all pro-inflammatory foods from my diet as well.  All of that together has helped manage the pain that comes with this whole process.  

2002-2008 On and off Effexor XR 75mg 

2010 Effexor XR 75mg Trazadone 150mg

2012 Abilify 5mg and Buspar added increased Effexor XR 150mg quick taper after 6 months due to pregnancy.

2014 Reinstate Effexor XR 75mg increase to 150mg, 150mg Trazadone, Buspar, Abilify 5mg. Quick taper after about 1 year from Effexor, Abilify, and Buspar.

2018 Trazadone taper over 1 month

2018 Attempted Effexor reinstatement due to digestive distress 37.5 mg.  Failed 2xs after 4 days.  Gastro preacribed Elavil 2 weeks later.  Failed after 2 days.  3 days later full withdrawl.

 

 

 

 

 

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  • Administrator

@DD44 see above.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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  • 5 weeks later...

Hi Everyone, 

I’m having strange aches & pains that seem to circulate around my body (but currently mostly my lower body).  There’s an ache in my left leg that almost reminds me of what my Mom used to call “growing pains” when I was young.  
 

There’s dull pain in my pelvic region that comes & goes and switches from right to left sides.  There’s a muscle deep in my pelvic region that I feel like I can’t unclench, it feels like it’s constantly activated like I’m trying to urinate all the time.  It’s just bizarre.  
 

These weird pains and sensations aren’t unbearable, just nagging and continue to set off alarm bells in my head, ya know?  Sometimes they are a little sharp, but other times they are just dull and achy.  
 

Somedays they are there and other days not.  Is this just kind of a “welcome to withdrawal” thing?  
 

The only thing that seems to help is one of those microwaveable hot packs.  
Thanks in advance for any reassurance.  
 

Cathy

1999-2006 Luvox, xanax

2007-2009 Prozac, xanax, klonopin

2009-2018 Zoloft, xanax, klonopin

2019 January zoloft 150mg, February 100mg, April 75mg, mid-May 50mg, July 25mg, (xanax .5mg or .25mg as needed)

August zoloft 25mg HOLD, CT xanax, reinstate 50mg zoloft, September reinstate 100mg zoloft w/.375 klonopin, mid-September lower to 75mg zoloft

2020 January:  .125mg klonopin 

February 1st: .112mg klonopin

February 24th:  60.3mgai zoloft

 

2020 December 1st:  off klonopin completely

currently on 15mgai zoloft 

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  • 2 months later...

Muscle aches have been an ongoing issue for me.

 

I used to be super fit until WD changed all that.

 

 

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

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  • 2 weeks later...

Anyone who expieriencecs some kind of Burnout whit total weakness and pain all over the Body?

Something i can do against that,or just "sitting it out"?

Started Venlafaxine around  2007-2008  for around 4,5-5 years 70mg

                                                   ca .2012  Taper as doctors advise 2 weeks skip a day and stop

                                                   7 -8 later months total breakdown after sruggling a lot Hospitalized

                                                   and started on Cipralex.

Taper as doctors advise: Mai 2018  from 20 to 10 mg escitalopram to zero in one Month.

 

supplements

Magnesium citrate 600 mg

Omega 3  2000 mg

vitamin D3 sometimes

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Si li ho' avuti anche io durante l'astinenza. 

 

Yes, I also had them during abstinence. 

 

Edited by ChessieCat
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stai meglio adesso?

 

are you better now?

 

 

Edited by ChessieCat
added translation

Started Venlafaxine around  2007-2008  for around 4,5-5 years 70mg

                                                   ca .2012  Taper as doctors advise 2 weeks skip a day and stop

                                                   7 -8 later months total breakdown after sruggling a lot Hospitalized

                                                   and started on Cipralex.

Taper as doctors advise: Mai 2018  from 20 to 10 mg escitalopram to zero in one Month.

 

supplements

Magnesium citrate 600 mg

Omega 3  2000 mg

vitamin D3 sometimes

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Si dopo 2 mesi e mezzo mi è sparito tutto. Rimane solo un po di ansia a periodi, ma grandi e lunghi periodi di normalita? Prendevo xanax 0,75

 

Yes, after 2 and a half months it all disappeared. Only a little bit of anxiety remains in periods, but large and long periods of normalcy? I took xanax 0.75

 

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On 12/13/2017 at 7:22 AM, Junglechicken said:

I think the pain is caused by excess cortisol and adrenaline in the body, and there is nowhere for it to go if we don't "release" that nervous energy.

 

And so its rather like lactic acid build up.  We HAVE to find a way to release that energy or we remain in pain.

 

Hello JC,

 

How are you today? I had not realized you were a marathoner!  While not a marathoner, I had been physically active (until this) and certainly earlier in my life a variety of sports.

 

How are you doing now physically and with skeletal muscle strength, pain, joints, etc.?

 

Is there a link you can direct me to - or information that I help myself with - for muscle weakness/pain - mostly in my thighs? It happens in the mornings, 30-45 min after getting up (may or may not be associated with cortisol spike I think), and lasts for 2.5 - 4 hours. During this time I may also have very blurry vision, headache, and some other dumb symptoms. 😉

 

I am chair bound for most of this time. It is every month, started in June and has increased in number of days to a high of 11 or 12 this February.  It somes occurs after walking on the treadmill (moderate pace) - and I may have cramps after doing some PT for my sciatica.

 

There is I think there is visible muscle loss.  I really want to exercise.

 

Thanks

Guilietta

 

 

 

 

 

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1 hour ago, Guilietta said:

I am chair bound for most of this time.

 

I should clarify this. I have a lot of imbalance (as well?) - so even if I struggle to cross the room - I'm better off sitting until the worst is over.

 

Because of the imbalance - steppping to the side or to the back is much more difficult - I wonder if this is vertigo (as well?).

 

 
On 12/13/2017 at 7:22 AM, Junglechicken said:

I think the pain is caused by excess cortisol and adrenaline in the body, and there is nowhere for it to go if we don't "release" that nervous energy.

 

And so its rather like lactic acid build up.  We HAVE to find a way to release that energy or we remain in pain.

 

Are we better off to exercise or not? The logic of lactic acid build up is logical for a muscle cramp.

 

What is nervous weakness???

 

I found this...it doesn't say what to do about these things....

 

 

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11 hours ago, Guilietta said:

 

Hello JC,

 

How are you today? I had not realized you were a marathoner!  While not a marathoner, I had been physically active (until this) and certainly earlier in my life a variety of sports.

 

How are you doing now physically and with skeletal muscle strength, pain, joints, etc.?

 

Is there a link you can direct me to - or information that I help myself with - for muscle weakness/pain - mostly in my thighs? It happens in the mornings, 30-45 min after getting up (may or may not be associated with cortisol spike I think), and lasts for 2.5 - 4 hours. During this time I may also have very blurry vision, headache, and some other dumb symptoms. 😉

 

I am chair bound for most of this time. It is every month, started in June and has increased in number of days to a high of 11 or 12 this February.  It somes occurs after walking on the treadmill (moderate pace) - and I may have cramps after doing some PT for my sciatica.

 

There is I think there is visible muscle loss.  I really want to exercise.

 

Thanks

Guilietta

 

 

 

 

 

 

Hi G,

 

Yes, I WAS/WERE a marathoner.

 

I should also say that I'm not the only formerly superfit person on SA to fall victim to the joys of AD WD.

 

In early WD I relied heavily on osteopathic treatment.  I could barely walk without extreme fatigue and pain all over my body.

 

The sudden cessation of the drug sent my entire body into spasm (is the only way I can describe it).

 

Like others on SA, I experienced severe siatica (out of the blue) right down my right leg, and damaged my lower back twice to the point I was on strong painkillers for a few weeks and was in so much pain I couldn't sleep.

 

So that's a rather dramatic recollection of what early WD was like for me, so I know where you're coming from when you say walking is too painful/difficult for you.

 

Back to treatment.  As I said I relied on:

 

1) Osteopathic treatment for several months.

2) Sports physio

3) Pool running - too painful to run

4) Rowing on our rowing machine.

 

I think the best course of action is to get assessed by an osteopath, as they have a very "holistic" training that goes beyond just muscle injury.

 

They can advise the right type of exercise you can do, what stretches etc.,

 

I'm thinking they will give you a number of seated exercises to do so you can maintain muscle strength.

 

Keep us posted!

 

Hugs,

JC

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

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On 11/30/2019 at 6:36 PM, Cathy4 said:

These weird pains and sensations aren’t unbearable, just nagging and continue to set off alarm bells in my head, ya know?  Sometimes they are a little sharp, but other times they are just dull and achy.  

 

Hi Cathy

 

Just wanted to say hello - I see you're a relatively new member. Sorry to hear about all your aches and soreness. I hope you are able to functional WD normal (aside from symptoms not mentioned here) and you have only to use palliative methods to relieve some of the pain.

 

Hugs,

G.

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Hello JC,

 

Thank you for reponding/recapitulating your situation and organizing it in a straightforward fashion. After going through pages of people's suffering on this self-care topic - I wasn't able to consolidate/identify commonalities. 😉

 

Not taking action (and not knowing what to do), lack  of empowerment and control add to the 'misery' of this.

 

2 hours ago, Junglechicken said:

Back to treatment.

 

1. Will look for an osteopath near me (mini project!).

2. Will stop by a sports physical therapy group I have worked with before for assorted injuries

3. Will reassess diet for histamines

4. Going to check w/cardio re: statin but doubt it is related since statin pre-dated this mess by 3-4 months.

 

2 hours ago, Junglechicken said:

I'm thinking they will give you a number of seated exercises to do so you can maintain muscle strength.

 

Brilliant idea!

 

On 11/30/2019 at 6:36 PM, Cathy4 said:

The only thing that seems to help is one of those microwaveable hot packs.  
Thanks in advance for any reassurance.  

 

Thanks for posting this. I will  try this and maybe also ice. Thanks for posting and glad this helps you at least a bit.

 

Hugs to you all and thanks for your support and suggestions. After every morning of this - I have to resist crying. Yesterday was the final straw on this for me.

 

Giulietta 💓

 

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1 hour ago, Guilietta said:

Hello JC,

 

Thank you for reponding/recapitulating your situation and organizing it in a straightforward fashion. After going through pages of people's suffering on this self-care topic - I wasn't able to consolidate/identify commonalities. 😉

 

Not taking action (and not knowing what to do), lack  of empowerment and control add to the 'misery' of this.

 

 

1. Will look for an osteopath near me (mini project!).

2. Will stop by a sports physical therapy group I have worked with before for assorted injuries

3. Will reassess diet for histamines

4. Going to check w/cardio re: statin but doubt it is related since statin pre-dated this mess by 3-4 months.

 

 

Brilliant idea!

 

 

Thanks for posting this. I will  try this and maybe also ice. Thanks for posting and glad this helps you at least a bit.

 

Hugs to you all and thanks for your support and suggestions. After every morning of this - I have to resist crying. Yesterday was the final straw on this for me.

 

Giulietta 💓

 

 

I found it all pretty abstract back then. 

 

Couldn't understand the WHYs of this invisible undiagnosed pain, when only a couple of weeks earlier I was training in sub zero temperatures. 

 

Doctors just sent me home telling me it was because I was over 40 and my body wasn't recovering quite as well as it used to?!?

 

Anyway, hopefully you will be "on track" now to alleviate some of the pain = happier person = you can do more 🙂

 

TC,

JC

 

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

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Thanks, JC.

 

It isn't just the pain - but also the weakness. 😎 I will be happier and productive, yes. 😉

 

58 minutes ago, Junglechicken said:

Couldn't understand the WHYs of this invisible undiagnosed pain

 

It is really confusing/complex to understand (for me).

 

So many MDs want to blame it on something rather than fix the problem (they can't identify) then bill insurance $545 - or you - if you don't have insurance.

 

How long (about) did it take for you to be able to consistently walk well after starting your therapy?

 

Hugs and healing

Giuilietta

 

 

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19 minutes ago, Guilietta said:

Thanks, JC.

 

It isn't just the pain - but also the weakness. 😎 I will be happier and productive, yes. 😉

 

 

It is really confusing/complex to understand (for me).

 

So many MDs want to blame it on something rather than fix the problem (they can't identify) then bill insurance $545 - or you - if you don't have insurance.

 

How long (about) did it take for you to be able to consistently walk well after starting your therapy?

 

Hugs and healing

Giuilietta

 

 

 

Oh I know, the weakness was awful too.

 

MDs have to blame it on something, as they simply don't know the underlying cause, and don't want to admit it!!  We were fortunate in Canada, in that we had our provincial health insurance, but of course, still had to pay for prescriptions.  I am aware that the medical costs in the US are astronomical.

 

How long did it take me to be able to walk without too much pain?? That's a difficult one to answer, however, I felt better (temporarily) after each osteopathic session, and made a point of keeping myself mobile no matter how challenging it was.  I did regular pool running sessions and walks around our neighbourhood.

 

I think the most accurate answer on this I can give is after 2-3 months, which would have been when acute WD eased off after Lexapro re-instatement.  

 

Hugs and healing,

JC

 

 

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

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6 hours ago, Junglechicken said:

don't want to admit it!! 

 

I think if they could admit this and refer you to someone else - that wouldl be a step in the right direction. I understand that one person doesn't have all of the answers.

 

Yes, medical care here is through the roof. The most expensive doesn't mean the best care. What Americans pay for prescription drugs is shameful. And these are for the most part American companies. Most generics are made in China and India quite unfortunately.

 

6 hours ago, Junglechicken said:

osteopathic session

 

is this physical therapy? i don't know what this is....

 

I really appreciate the suggestions for PT and an osteopath. I stopped by a physical therapy group I have been to for previous injuries and mentioned my situation. They had heard of this and its cause. I was stunned.  They will see me a couple of times and then I can do the exercises at home. 

 

I have to find an osteopath - I have never worked with one before.  I don't know if they will accept my medical insurance coverage and I can't afford to pay out of pocket now.

 

Another member suggested elastic sleeves. I saw some place rollers might help.

 

6 hours ago, Junglechicken said:

I think the most accurate answer on this I can give is after 2-3 months,

 

I am glad you had 2-3 months only.  I've been dealing with this for a bit longer... 🙄

 

Hugs and sleep well,

 

Guilietta

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On 2/25/2020 at 5:55 AM, Guilietta said:

Just wanted to say hello - I see you're a relatively new member. Sorry to hear about all your aches and soreness. I hope you are able to functional WD normal (aside from symptoms not mentioned here) and you have only to use palliative methods to relieve some of the pain.

Thank you so much, Guilietta.  I see you on here a lot and it’s so nice to connect with you.  
The above symptoms have sort of morphed into different withdrawal symptoms, but I’m still using heat on a regular basis.  
 

I do hope you find relief soon, Guilietta.  Hug back to you and thanks for the warm welcome. 
Cathy 

1999-2006 Luvox, xanax

2007-2009 Prozac, xanax, klonopin

2009-2018 Zoloft, xanax, klonopin

2019 January zoloft 150mg, February 100mg, April 75mg, mid-May 50mg, July 25mg, (xanax .5mg or .25mg as needed)

August zoloft 25mg HOLD, CT xanax, reinstate 50mg zoloft, September reinstate 100mg zoloft w/.375 klonopin, mid-September lower to 75mg zoloft

2020 January:  .125mg klonopin 

February 1st: .112mg klonopin

February 24th:  60.3mgai zoloft

 

2020 December 1st:  off klonopin completely

currently on 15mgai zoloft 

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43 minutes ago, Cathy4 said:

The above symptoms have sort of morphed into different withdrawal symptoms, but I’m still using heat on a regular basis.  

 

Hello Cathy,

 

I hope these are less of a problem than the muscle soreness/pain....  😉

 

G.

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35 minutes ago, Guilietta said:

 

I hope these are less of a problem than the muscle soreness/pain....  😉

Thanks, Guilietta.  
The newer G.I. issues are sticking around a bit longer than the muscle pain/soreness, but I suppose this is just the nature of the withdrawal process.  
 

Did you find an osteopath?  I do wish we were closer because I could offer you a Feldenkrais session to see if that would help with what you go through each morning.  It is frustrating not to be able to exercise, I do understand.  
Hug,

Cathy

1999-2006 Luvox, xanax

2007-2009 Prozac, xanax, klonopin

2009-2018 Zoloft, xanax, klonopin

2019 January zoloft 150mg, February 100mg, April 75mg, mid-May 50mg, July 25mg, (xanax .5mg or .25mg as needed)

August zoloft 25mg HOLD, CT xanax, reinstate 50mg zoloft, September reinstate 100mg zoloft w/.375 klonopin, mid-September lower to 75mg zoloft

2020 January:  .125mg klonopin 

February 1st: .112mg klonopin

February 24th:  60.3mgai zoloft

 

2020 December 1st:  off klonopin completely

currently on 15mgai zoloft 

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32 minutes ago, Cathy4 said:

The newer G.I. issues are sticking around a bit longer

 

Sorry to hear that and I hope you find some palliative things for that. 

 

I am sorry to say that I have not found an osteopath yet. I am going to call my insurer about that for advice.

 

I am grateful for every morning when I am able to walk. 😉

 

It is nice to connect.

 

Hugs

G.

 

 

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Hello everyone,

 

I found this on the Ashton Manual on imbalance, muscle pain/weakness....

 

Problems with balance. Some people during benzodiazepine withdrawal report feeling unsteady on their feet; sometimes they feel they are being pushed to one side or feel giddy, as if things were going round and round. An important organ in controlling motor stability and maintaining equilibrium is a part of the brain called the cerebellum. This organ is densely packed with GABA and benzodiazepine receptors (See Chapter I) and is a prime site of action of benzodiazepines. Excessive doses of benzodiazepines, like alcohol, cause unsteadiness of gait, slurred speech and general incoordination, including inability to walk in a straight line. It may take some time for the cerebellar systems to restabilise after benzodiazepine withdrawal and the symptoms can last until this process is complete. Exercises, such as standing on one leg, first with eyes open, then with eyes closed, can speed recovery.

 

Problems with balance are a WD symptoms from benzos. The manual also indicates issues with muscles:

"Muscle symptoms. Benzodiazepines are efficient muscle relaxants and are used clinically for spastic conditions ranging from spinal cord disease or injury to the excruciating muscle spasms of tetanus or rabies. It is therefore not surprising that their discontinuation after long-term use is associated with a rebound increase in muscle tension. This rebound accounts for many of the symptoms observed in benzodiazepine withdrawal. Muscle stiffness affecting the limbs, back, neck and jaw are commonly reported, and the constant muscle tension probably accounts for the muscle pains which have a similar distribution. Headaches are usually of the "tension headache" type, due to contraction of muscles at the back of the neck, scalp and forehead - often described as a "tight band around the head". Pain in the jaw and teeth is probably due to involuntary jaw clenching, which often occurs unconsciously during sleep.

At the same time, the nerves to the muscles are hyperexcitable, leading to tremor, tics, jerks, spasm and twitching, and jumping at the smallest stimulus. All this constant activity contributes to a feeling of fatigue and weakness ("jelly-legs"). In addition, the muscles, especially the small muscles of the eye, are not well co-ordinated, which may lead to blurred or double vision or even eyelid spasms (blepharospasm)."

 

 

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On 2/26/2020 at 7:52 PM, Cathy4 said:

Thanks, Guilietta.  
The newer G.I. issues are sticking around a bit longer than the muscle pain/soreness, but I suppose this is just the nature of the withdrawal process.  
 

Did you find an osteopath?  I do wish we were closer because I could offer you a Feldenkrais session to see if that would help with what you go through each morning.  It is frustrating not to be able to exercise, I do understand.  
Hug,

Cathy

 

Hey Cathy4,

 

What kind of GI issues are you experiencing?

 

Sorry, realise this is "off-topic".

 

TC,

JC

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

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44 minutes ago, Junglechicken said:

What kind of GI issues are you experiencing?

Hi JC, 

A wide variety:  acid/sour stomach, stomachache, acid reflux, burping, bad gas, and last month it was hemorrhoids, some constipation, diarrhea, etc.  Lots of anxiety issues around food lately, too, because I never know what might trigger some of these symptoms.  How are you?  

1999-2006 Luvox, xanax

2007-2009 Prozac, xanax, klonopin

2009-2018 Zoloft, xanax, klonopin

2019 January zoloft 150mg, February 100mg, April 75mg, mid-May 50mg, July 25mg, (xanax .5mg or .25mg as needed)

August zoloft 25mg HOLD, CT xanax, reinstate 50mg zoloft, September reinstate 100mg zoloft w/.375 klonopin, mid-September lower to 75mg zoloft

2020 January:  .125mg klonopin 

February 1st: .112mg klonopin

February 24th:  60.3mgai zoloft

 

2020 December 1st:  off klonopin completely

currently on 15mgai zoloft 

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28 minutes ago, Cathy4 said:

Hi JC, 

A wide variety:  acid/sour stomach, stomachache, acid reflux, burping, bad gas, and last month it was hemorrhoids, some constipation, diarrhea, etc.  Lots of anxiety issues around food lately, too, because I never know what might trigger some of these symptoms.  How are you?  

 

Hi Cathy,

 

Same as you on the GI front, minus the haemorrhoids, constipation and diarrhoea!

 

What did your physician say about it?

 

JC

 

 

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

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28 minutes ago, Junglechicken said:

What did your physician say about it?

She suggested SIBO back in January and said I could come in to have a breath test to see.  She did not acknowledge withdrawal at all.  I have not gone in to see her or have that test.  
 

I’m trying the mostly lectin-free diet and trying to eat clean.  

1999-2006 Luvox, xanax

2007-2009 Prozac, xanax, klonopin

2009-2018 Zoloft, xanax, klonopin

2019 January zoloft 150mg, February 100mg, April 75mg, mid-May 50mg, July 25mg, (xanax .5mg or .25mg as needed)

August zoloft 25mg HOLD, CT xanax, reinstate 50mg zoloft, September reinstate 100mg zoloft w/.375 klonopin, mid-September lower to 75mg zoloft

2020 January:  .125mg klonopin 

February 1st: .112mg klonopin

February 24th:  60.3mgai zoloft

 

2020 December 1st:  off klonopin completely

currently on 15mgai zoloft 

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25 minutes ago, Cathy4 said:

She suggested SIBO back in January and said I could come in to have a breath test to see.  She did not acknowledge withdrawal at all.  I have not gone in to see her or have that test.  
 

I’m trying the mostly lectin-free diet and trying to eat clean.  

 

Sounds like she has more "insight" than many physicians out there.

 

My GP doesn't believe in the SIBO/CANDIDA/GUT DYSBIOSIS theory at all.

 

I actually have a breath test kit at home, but never used it as it was too involved for me to cope with at the time.

 

They won't acknowledge WD.

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

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21 minutes ago, Junglechicken said:

My GP doesn't believe in the SIBO/CANDIDA/GUT DYSBIOSIS theory at all.

Wow.  That’s incredible...  

 

I’ve definitely lost any remaining faith I’ve had in Western medicine (unless it’s an acute injury/emergency).  It’s very very hard for me to go to doctors.  I’m chalking up this gut stuff to WD.  

1999-2006 Luvox, xanax

2007-2009 Prozac, xanax, klonopin

2009-2018 Zoloft, xanax, klonopin

2019 January zoloft 150mg, February 100mg, April 75mg, mid-May 50mg, July 25mg, (xanax .5mg or .25mg as needed)

August zoloft 25mg HOLD, CT xanax, reinstate 50mg zoloft, September reinstate 100mg zoloft w/.375 klonopin, mid-September lower to 75mg zoloft

2020 January:  .125mg klonopin 

February 1st: .112mg klonopin

February 24th:  60.3mgai zoloft

 

2020 December 1st:  off klonopin completely

currently on 15mgai zoloft 

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54 minutes ago, Cathy4 said:

Wow.  That’s incredible...  

 

I’ve definitely lost any remaining faith I’ve had in Western medicine (unless it’s an acute injury/emergency).  It’s very very hard for me to go to doctors.  I’m chalking up this gut stuff to WD.  

 

Likewise (loss of faith in western medicine), as I think they are barking up the wrong tree!  Agree with you, that they are very good when its acute/emergency.

 

Its the NPs and osteopaths who are ahead of the game.

 

I just found this blog site, discussing histamine intolerance triggered by AD use.  Its probably duplicating information on SA already, but explains the person's own struggle with protracted WD, and after doing some research of their own, In November 2013 I stumbled accidentally across a story from a young man who had taken a Nitric Oxcide (NO) boosting supplement, claiming to increase NO by 950%...his reaction was catastrophic and degenerative and he continued to try drug after drug to make things better...

 

https://iggy131313.blogspot.com/2013/11/toxic-encephalopathy-caused-by-taking.html

 

And the next:

 

In my last post I pointed the finger at Nitric Oxide as being the main culprit for the dreadful, disabling and torturous symptoms experienced during ''protracted withdrawal'' .  On further reading I realize I was unfair to pin all the blame on the one molecule..., NO is what I guess should be called an ACCOMPLICE....It it one of the gang of molecules trying to destroy our brains (and succeeding) but it is not NO alone that causes the damage...

 

https://iggy131313.blogspot.com/

Dose History: 19 Feb 2014 - Escitalopram 10mg daily June 2015 - Started taper, 5mg every other day July 2015 - 5mg every 2 days August 2015 - 5mg every 3 days September 2015 - 5mg every 4 days Sept 14th - Completed tapering, but at 7 weeks "drug free" I suffered serious WD symptoms as a consequence of "incorrect" tapering. Nov 25 2015 - Re-instated Cipralex @ 2.5mg daily. WD symptoms faded. Held at this dose and experienced "windows and waves". 12 Oct 2017 Reduced dose to 1.25mg. 13 Mar 2018 Reduced dose to 0.625mg (approx.). 16 April 2018 0mg. Windows and waves triggered by stress (IBS/reflux, headaches, sinus issues) Aug 2019 Mirena coil fitted 6 Jan 2020 MAJOR Wave hit 19 months following last dose (protracted WD).  Symptoms listed below Mar 2020 Mirena coil removal.

Therapy: Nov 15th 2016 Re-started therapy Jan 19th 2017 Started CBT Dec 2017 Started listening to Hypnotherapy CD (self-esteem). Nov 2019 Started couples therapy.

Supplements: "Bioglan" Biotic Balance Ultimate Flora 10 billion CFU, live Bacteria, Probiotic, suitable for Vegetarians, with Lactobacillus Acidophilus, Lactobacillus Rhamnosus, Bifidobacterium Longum"Pukka" Vitalise a unique blend of 30 energising botanicals.

Diet: 16 April 2018 Detox cleanse / anti-candida for 90 days. Jan 2020 Started "small plate" diet (i.e child size portions).

Exercise: Stretching, Yoga, Pilates, Spinning, Elliptical/upper body workout, walking.

Medical Test Results: 4 Jan 2017 Homeopathic Treatment starts 24 Feb 2017 Started weight loss program 24 Mar 2017 Naturopathic Treatment + anti-Candida diet started due to suspected Candida Related Complex (CRC). DETOXED for 7 weeks to "re-set" gut. April 2017 "Genova Diagnostics" Comprehensive Stool Analysis NEGATIVE; Full Blood Count (Normal) / Blood Cholesterol: 5.6 (Borderline) / Blood Sugar (Normal) / 28 Jun 2017 FSH 8.2 / 14 Nov 2017 FSH 17.7 Dec 2017 Blood Cholesterol: 3.9 (Normal) / Kidney Function (Normal) / Blood Sugar (Normal). December 2017 "Genova Diagnostics" Food panel allergy (bloodwork) analysis - a few "VERY LOW/VL" allergens; Mar 2018 "Genova Diagnostics" SIBO urine analysis: High Level of Yeast/fungal markers found in small intestine but NO SIBO.  April 2018 Thyroid (Normal) / Full Blood Count (Normal) / FSH (Normal). 16 April 2018 Started anti-Candida diet - 3 month protocol.   25 March 2020 All test results "Normal". CRP" 5 mg/L (normal range to 0-5 mg/L).

Symptoms:  Flu-like symptoms, anxiety, anhedonia, sinus headaches right-side (severe), IBS issues/reflux (severe)**, tinnitus, fatigue, inner tremor, nausea, chills/hot flushes, pounding heart, muscular issues including stiff left hip flexor, intense anger, PSSD (ongoing).  **Histhamine intolerance (suspected).

Major Life Events: 

Re-located to UK from Canada: Jan 2016

My father died: 5:05pm, Monday 5 Feb 2018 Last Lexapro dose: 16 April 2018 (its now been over a year since I quit ADs)  Moved house: Friday 23rd February 2018  "Divorced" toxic Mother: Monday 26 March 2018 Starting working again: 19 November 2018  Diagnosed with: 5th August 2021 PTSD/C-PTSD Diagnosed with: March 2022 Interstitial Cystitis (IC)/Painful bladder syndrome

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