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Ijustwantpeace: Lamictal / lamotrigine


Ijustwantpeace

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Hi all,

I'm new here. Looking for recs and other people's experience with weaning off Lamotrigine. Stumbled across this on google and here I am. :) So I started to wean my Lamotrigine on April 6. I looked on the FDA website and decided to use their recs of decreasing by 25 mg every 2 weeks. The first wean was pretty crappy, but I've been through worse so I kept going. It wasn't too bad dropping each consecutive 25 mg until I recently dropped to 50mg. Holy crap! Why is this one so bad?? I feel terrible. Stomach is on fire, can't sleep through the night, nauseous, EXHAUSTED, no motivation, super anxious, dizzy, just feel like a zombie. All when I dropped to 50mg. So, I'm getting anxious wondering if I should go back up to 75 for a few more weeks or just suffer through at 50...? Should I start doing that microdosing from this point on? I always felt fine after the initial few days were over when dropping each previous dose, but this time it's terrible. I'm also on clonazepam and have been taking that more regularly since I started this wean, which I was expecting to anyway. This just sucks. I've weaned off of numerous meds throughout the years and this one has to be the worst! 

Lamotrigine 150mg daily since 2010.

Clonazepam 1mg 3xday to start in late 2016, now at 0.25mg 2xday. (Since lamotrigine wean on 4/6, been taking 0.5-1mg ish/day)

Xanax 1mg 2xday to start in 2010, weaned down to 0.5mg 2xday and switched to clonazepam last year in hopes of weaning off soon. 

Weaned off Lexapro, Pristiq, Wellbutrin, Buspar, Sonata and Restoril throughout the years since 2009. 

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  • Moderator Emeritus

Hello and welcome to SA.

 

Wow, I certainly feel for you, having followed the FDA rec and having suffered so badly.

Take heart: there is a definite reason for all of your symptoms, and that is because, sadly, the FDA does not understand proper and safe tapering. Luckily, that is where this site comes in. It is much, much gentler to go at a rate of 10% per month of the current dosage. But we can worry about that once we get you stable again, which WILL happen. 

 

To begin, please fill out what's called a "signature" showing what medications you're taking and how long you've been taking them

http://survivingantidepressants.org/topic/12364-please-put-your-withdrawal-history-in-your-signature/

 

Please don't make any changes yet, but read through this information on tapering Lamotrigine: 

 

 

When we know a little more about your recent history and changes, we can discuss whether or not to go back up in dose.

 

Hang on; we will figure this out. Again, welcome. : )

Current: 2019: 0.04 mg Paxil!! This is real. Soon, after taking Paxil my entire adult life, I will be free.

Long story short: After 18 years on Paxil, "tapered" almost completely off over a month, at doctor's advice in July 2015.

Self-care includes magnesium, reasonable exercise, mindfulness, this forum and nutrition/eating enough food.

Also on 100 mg Zoloft unfortunately!! (which I now will have the knowledge to taper properly)

-------------------------------------------------------------------------------------------

Longer version: On Paxil since 1996--anxiety & depression caused by (undiagnosed) under-eating / eating disorder.

Doctor kept increasing dose, up to 60 mg; it never really helped but said it really was the best "med" for me.

Rapid doctor-led "taper" July 2015, down to 5 mg, with Zoloft as a "cross-taper" = Essentially a cold turkey. 

Severe withdrawal but didn't know it; believed it was my "underlying condition," and kept tapering, 5mg to 4 to 3  to 2 to 1.  

Feb 2016: Found SA! As of June 2016, tapering from 1mg at rate of 5-10% per month, Brassmonkey Slide! 

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Lamotrigine 150mg daily since 2010.

Clonazepam 1mg 3xday to start in late 2016, now at 0.25mg 2xday. (Since lamotrigine wean on 4/6, been taking 0.5-1mg ish/day)

Xanax 1mg 2xday to start in 2010, weaned down to 0.5mg 2xday and switched to clonazepam last year in hopes of weaning off soon. 

Weaned off Lexapro, Pristiq, Wellbutrin, Buspar, Sonata and Restoril throughout the years since 2009. 

 

Thank you so much for your help!!! 

Lamotrigine 150mg daily since 2010.

Clonazepam 1mg 3xday to start in late 2016, now at 0.25mg 2xday. (Since lamotrigine wean on 4/6, been taking 0.5-1mg ish/day)

Xanax 1mg 2xday to start in 2010, weaned down to 0.5mg 2xday and switched to clonazepam last year in hopes of weaning off soon. 

Weaned off Lexapro, Pristiq, Wellbutrin, Buspar, Sonata and Restoril throughout the years since 2009. 

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  • Moderator Emeritus

Sounds good; thanks for filling out that information. 

 

I'm going to check with the other moderators about possible reinstatement advice and either I or someone else will be in touch with you soon.

Current: 2019: 0.04 mg Paxil!! This is real. Soon, after taking Paxil my entire adult life, I will be free.

Long story short: After 18 years on Paxil, "tapered" almost completely off over a month, at doctor's advice in July 2015.

Self-care includes magnesium, reasonable exercise, mindfulness, this forum and nutrition/eating enough food.

Also on 100 mg Zoloft unfortunately!! (which I now will have the knowledge to taper properly)

-------------------------------------------------------------------------------------------

Longer version: On Paxil since 1996--anxiety & depression caused by (undiagnosed) under-eating / eating disorder.

Doctor kept increasing dose, up to 60 mg; it never really helped but said it really was the best "med" for me.

Rapid doctor-led "taper" July 2015, down to 5 mg, with Zoloft as a "cross-taper" = Essentially a cold turkey. 

Severe withdrawal but didn't know it; believed it was my "underlying condition," and kept tapering, 5mg to 4 to 3  to 2 to 1.  

Feb 2016: Found SA! As of June 2016, tapering from 1mg at rate of 5-10% per month, Brassmonkey Slide! 

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  • Administrator

Welcome, Ijustwantpeace.

 

What the FDA fails to tell you is: If you get withdrawal symptoms, stop reducing, that will only make it worse.

 

If I were you, I'd immediately go back to 75mg lamotrigine. Let us know how you're doing. It will take at least a week to judge if this is enough and if you do see improvement, it might be rocky for a good while while you stabilize. When symptoms go away completely, you can resume tapering by tiny amounts.

 

Also, do not make any other drug changes while you stabilize on the lamotrigine reinstatement, it will confuse things bigly. Keep your benzo intake consistent from day to day. What is your benzo dosing schedule?

 

Please put ALL your drugs in the Drug Interactions Checker https://www.drugs.com/drug_interactions.php
and copy and paste the results in this topic.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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Interactions between your drugs

Moderate

 

 

Using clonazePAM together with lamoTRIgine may increase side effects such as dizziness, drowsiness, confusion, and difficulty concentrating. Some people, especially the elderly, may also experience impairment in thinking, judgment, and motor coordination. You should avoid or limit the use of alcohol while being treated with these medications. Also avoid activities requiring mental alertness such as driving or operating hazardous machinery until you know how the medications affect you. Talk to your doctor if you have any questions or concerns. It is important to tell your doctor about all other medications you use, including vitamins and herbs. Do not stop using any medications without first talking to your doctor.

Lamotrigine 150mg daily since 2010.

Clonazepam 1mg 3xday to start in late 2016, now at 0.25mg 2xday. (Since lamotrigine wean on 4/6, been taking 0.5-1mg ish/day)

Xanax 1mg 2xday to start in 2010, weaned down to 0.5mg 2xday and switched to clonazepam last year in hopes of weaning off soon. 

Weaned off Lexapro, Pristiq, Wellbutrin, Buspar, Sonata and Restoril throughout the years since 2009. 

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Yeah, so I’ll go back up to 75 for now and then start again after I feel okay, but this time super slow. Before i started to wean i was only taking clonazepam  0.25 twice a day. Since the wean I’ve had terrible panic attacks couple times a week so some days I take 0.25 in am and then when I panic i take 0.5...on those days i then sometimes take another 0.25 at bedtime Yesterday was the worst day I have had. Uggg. I was just wanting to expedite this as fast as possible bc I HATE being dependent on this med. I just want to feel better. Won’t listen to the fda anymore. 😕 thank you for the warm welcome and the guidance!!!!!!

Lamotrigine 150mg daily since 2010.

Clonazepam 1mg 3xday to start in late 2016, now at 0.25mg 2xday. (Since lamotrigine wean on 4/6, been taking 0.5-1mg ish/day)

Xanax 1mg 2xday to start in 2010, weaned down to 0.5mg 2xday and switched to clonazepam last year in hopes of weaning off soon. 

Weaned off Lexapro, Pristiq, Wellbutrin, Buspar, Sonata and Restoril throughout the years since 2009. 

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  • 7 months later...
  • Moderator Emeritus

Hi ijustwantpeace, 

 

How are you doing?💚

Been on antipsychotics, benzos, ADs and opiates for chronic pain. 

Was cold turkeyed and put on and off lots of things. Was suicidal n ended up in a psych ward due to akathisia from WDs. When released I still had severe akathisia n was suicidal. Back to the ward and more meds. Tapered off one and have been trying to taper off Seroquel since. Many years of tapering. 

Tapered from 300mg of Seroquel to 7.5mg./2019:➡️ March 10=7.25mg ✔️  
April 17=7.0✔️ June 5th=6.75✔️ July 14th=6.50✔️Aug 28=6.25✔️

Oct 10=6.20 ✔️ Oct21=6.0✔️Dec16=5.80 ✔️                                
 2020➡️Jan 21=5.60✔️April 2=5.40✔️May 29=5.20✔️Aug14= 5.0 ✔️Sep 29=4.80✔️
 2021➡️ Jan 31=4.60 mg✔️April 24=4.40mg✔️Jul17=4.30mg ✔️Aug 28=4.20✔️ Oct 11=4.15✔️Nov 1=4.10✔️ Nov 21= 4.05✔️ Dec 13= 4mg✔️

  2022➡️Jan 8= 3.95

I AM NOT A MEDICAL PROFESSIONAL. These are my own views based on what I’ve experienced myself.

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