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ghm2018: three doses of fluoxetine and 5 months later ...

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ghm2018

On the heels of an adverse reaction to an anti-seizure medication (different manufacturer), my primary care prescribed fluoxetine. After three doses of only 10 mg, I had an adverse reaction and at 5 months later, I’m still having issues. While some things have improved, I’m still struggling. I am thankful someone shared this site with me, although I wish that this site wasn’t needed for any of us (long term taperers and short-term adverse reactions). It is good to know we are not alone. 

 

Any coping skills for how I can not think about this day in and day out?

 

Has anyone tried acupuncture, reiki, and/or chi kung? 

 

How about neural plasticity exercises?

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ghm2018

In January 2018, on the heels of an adverse reaction to an anti-seizure medication (long story as to why it had been prescribed and as it turns out, I didn't need to be on it) in mid-December 2017, unbeknownst to me the manufacturer had changed, my PCP of 15 years prescribed fluoxetine.  After three doses of only 10 mg, I had an adverse reaction and at 5 months later, I'm still having issues.  I called my PCP right away and was told "You don't have a chemical imbalance.  Go see a therapist."  Symptoms worsened over the next several weeks and I kept returning to my PCP, only to be treated as though I had a mental illness.  I have struggled with anxiety for most of my life, but I know my triggers, I typically cope pretty well and on rare occasion I have used ativan.  

 

I even scheduled an appointment at Mayo Clinic in Rochester, MN.  In April, I made the journey there with my supporting parents.  I met with Internal Medicine, Psychiatry and Neurology.  I asked Psych if anyone had ever experienced adverse side-effects from only a few doses of fluoxetine.  I was told yes, but that no one had ever followed up.  I left that office with educational items on anxiety, CBT, etc.  The EEG from neurology stated that the activity observed in my brain during the video portion "...could be seen as a result of medication effect..."  The final visit with Internal Medicine gave a diagnosis, of sort, of dealing with a component of Centralized Sensitization Syndrome.  

 

After continuing to search the Internet for answers as to whether fluoxetine could still be in my system, which was an easier thought for me to accept, or whether it had caused damaged, I found the name of a psychiatrist outside of the US.  I contacted that person via email who then replied with this website and a facebook group for support.  I am thankful for that information and for this site, although I wish the site were not a necessity.  I am thankful for #6 under Symptoms and self-care - "Are we There Yet?..."  I hope that I will recover fully.  The timeframe is very bleak.  

 

 

I made the mistake in the early months of using melatonin to try to sleep, as the insomnia was unbelievable.  I also tried using Remeron once or twice and ativan, only to find that those caused tremors and anxiety.  I also learned that I apparently could not even take a tylenol without it causing my skin to burn.  After returning from Mayo, I sought alternative methods for potential healing.  A chiropractor recommended supplements which I tried and was hopeful that it would help, only to discover that they exacerbated the symptoms.  

 

I am currently practicing chi kung (qi gong) twice each day, mindful meditation, reiki, and acpuncture.  Has anyone tried any of those forms of Eastern medicine?  Or any other forms of non-intrusive, non-invasive methods of healing?

 

Any thoughts on neural plasticity exercises such as DNRS by Annie Hopper?  Has anyone tried it?  https://retrainingthebrain.com/

 

Lastly, please share any coping skills for how I can try not to think about this day-in and day-out.  I am single and in my 40's.  I have supporting family and friends, but they wish for me to not focus on this.  Well...as with a "normal" chronic illness, it's difficult not to when you cannot escape it.

 

Symptoms (most are improving...at a snail's pace)

*chest pain

*chills

*palpitation

*tachycardia

*vasospasm

*nausea

*esophagitis

*gastristis

*insomnia

*CNS depression (lack of sensation as to void the bladder, knowing when stomach is full, muscle fatigue, etc)

*CNS stimulation (over stimulated nerve in the left side of torso)

*akathisia

*apathy

*depersonalization

*euphoria

*adrenaline surges

*tinnitus

*dry eyes

*taste perversion

*breast pain

*etc, etc...

 

If you made it to the end of this...thank you for reading.  I appreciate any support.

 

ghm2018

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Altostrata

Welcome, ghm.

 

Yes, some people are very sensitive to serotonergic drugs and develop nervous system instability very much like withdrawal syndrome. Like withdrawal syndrome, recovery is frustratingly gradual and can take a long time. See What is withdrawal syndrome?

 

We have many coping skills! See

 

Important topics about symptoms, including sleep problems

 

Important topics about tests, supplements, treatments, diet

 

and other topics in the Symptoms and Self-Care forum.

 

Many people do better with fish oil and magnesium supplements, see
http://survivingantidepressants.org/index.php?/topic/36-king-of-supplements-omega-3-fatty-acids-fish-oil/

http://survivingantidepressants.org/topic/15483-magnesium-natures-calcium-channel-blocker/

 

A lot of people find them helpful. Try a little bit of one at a time to see how it affects you.

 

Depending on your symptoms, acupuncture, reiki, chi kung, neural plasticity exercises can all be very helpful. We see neural plasticity accomplishing healing every day.

 

What is your current symptom pattern?

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brassmonkey

Hi ghm-- welcome to SA, I'm so glad you found us.  I'm so sorry to hear that you've had such a bad reaction to just three doses of medication.  We have had a number of members in similar situations but they are all recovering or have recovered nicely.  We have a large amount of information here on coping tools, alternative medicine and the like.  Doing a google search on "survivingantidepresants.org plus the topic of interest" is the best way to find things.

 

This thread will be your personal space for keeping records, asking questions and making friends.  Have a look around the site and ask any questions that come to mind.

 

Welcome

 

Brassmonkey

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ChessieCat

Here is SA's discussion on acupuncture.  Acupuncture - Posts #6 & #8 (not detox or stimulation)

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ghm2018

Altostrata - thank you so much for welcoming me to the group. 

 

My symptoms seem to cycle daily on a 6-8 hour pattern along with every two weeks. I have been journaling and the cycles seem to follow this sort of pattern. This seems very unusual to me. Is this typical?

 

Right now I cycle through both physiological issues, which alternate, and psychological issues. 

 

*Insomnia (nightly)

*tinnitus (everyday, especially at nite)

*burning skin (sometimes two days in a row, sometimws a week alart)

*tremor (similar pattern as burning skin)

*spasms in my esophagus (daily)

*good-mood (I normally am not smiling ALL the time. I’m pretty even-keeled most of the time)

*2-3 hour episodes of frenzied feeling inside followed by moments of crying or euphoria

*muscle spasms across my back and neck

*lacking several emotions

*lacking internal physical sensations

*vasospasm

*stimulated nerve in left torso

*breast pain - left side

*chest pain

 

How might I find someone in a similar situation, where we took only a few doses several months ago, but are still suffering?

 

Peace and blessings to you and all who are here.

 

ghm2018

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ghm2018

ChessieCat - Thank you. I appreciate that. 

 

Ghm2018

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ghm2018

Brassmonkey - thanks to you as well. 

Ghm2018

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ghm2018

Just providing an update for anyone who might have experienced an adverse reaction to only a few doses of an AD and are looking for encouragement. 

 

A month has passed since I provided my introduction and not a whole lot has changed in the last 6 months, although some symptoms seem much less severe.

 

Some of the physiological issues such as insomnia, akathisia, adrenaline rushes, and esophagus spasms are less severe, but most all are still present.  The psychological issues remain about the same.  

 

-ghm2018

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Altostrata
ghm2018

Altostrata - Thank you for responding. Those suggestions have been helpful. A lot of the information at this site has been very helpful. I have been so thankful for this site and to know that there is hope for recovery/healing. 

 

ghm

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ghm2018

Hi there...Just curious if I should have any concerns with taking Gaba Calm considering, as part of the adverse reaction I had, I have CNS depression (lack of sensation such as voiding bladder, muscle or joint pain, etc). As suggested here at this site with taking any supplement, OTC, etc., I have taken only 1/4 at a time the last few days and found that it helped to relieve anxiety and provide some hint of relaxation, but my concern is whether it will impede the healing of those neurotransmitters than seem to be dormant.

 

Any thoughts? 

 

Thank you,

ghm

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ghm2018

Just providing another update for anyone who might have experienced an adverse reaction to only a few doses of an AD and are looking for encouragement. 

 

Nine months have passed since the adverse reaction and four months have passed since I discovered SA.

 

Some of the physiological issues are less severe, but most all are still intermittently present .  New ones have appeared on an intermittent basis as well, such as pins & needles.  I also still have the lack of physiological sensation. 

 

The psychological issues are slightly improving, although the mood cycling still occurs 6-8 hours each day. Pieces of my personality are still silent, although my family says I have become more animated. I haven't been crying as much and I find that I sometimes yawn in the evening and almost feel sleepy and or tired as most people do after a long day of work and taking care of errands and household chores. 

 

I had a bit of a setback after being involved in a significant car accident in July. I was driving and was hit head-on on the passenger side, then the back door and also struck a pipe fence. The air bags deployed and my car was totaled. No one was in the car with me, thankfully. The left side of my body took most of the impact and is, coincidentally, the hypersensitive side and the right side seems to be dormant. My right ankle was sprained, but I only felt the pain briefly. A toe was broken, along with a torn bicep and small rotator cuff tear, all on the left side. I could only feel the pain intermittently as well, by that I mean that several days would pass before I noticed pain. Due to the bicep muscle "pop-eyein" and significant bruising pooled at the elbow, an MRI was taken of the shoulder and revealed the small rotator cuff tear. I elected to try physical therapy for now and avoid surgery. PT was challenging as the PT's would always say "let pain be your guide".  Well...that's tough when your brain isn't interpreting or sending signals properly.  My left hand and fingers stayed swollen for two months and only began to return to normal last week.  

 

Any thoughts on stem cell therapy for the rotator cuff tear?

 

I pray a lot, practice Chi Kung twice each day, try to keep carbs at a minimum, try to choose organic foods as often as possible, take magnesium and high quality fish oil (800 DHA, 600 EPA, 2000 total), practice good sleep hygiene, and keep stress reduced as much as possible. 

 

Prior or to this I ran 20+ miles per week and attended fitness classes. I stopped running when I realized it exacerbated some of the physical issues and when I realized I wasn't feeling pain. My concern was becoming injured. I stopped fitness after the car accident since I'm not certain how much weight I can or should lift with my left shoulder injury. In the last few weeks, I have begun walking again and I tried running a little over this passed weekend. I know that I should have sore leg muscles, and a few times I have noticed fleeting soreness here & there, but not on a consistent basis like a normal body should when exercising after a long period of rest. 

  

I feel like staying hopeful and optimistic is helpful. Unlike many here, I have been fortunate to be able to continue working, although productivity and quality have been less than stellar. I hope that anyone who reads this will continue to hang in there and believe with me that we will recover and heal, in due time.

 

-ghm


 

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ghm2018

Here’s another update for anyone who might have experienced an adverse reaction to only a few doses of an AD and are looking for encouragement. 

 

13 months have passed since the adverse reaction. 

 

Some of the physiological issues are less severe, but most all are still intermittently present. 

 

The psychological issues still occur 6-8 hours each day, although they are more tolerable and manageable. 

 

I still pray a lot, practice Chi Kung (mindful meditation) almost everyday, walk outdoors daily as weather permits, use magnesium and  fish oil, practice good sleep hygiene, and keep stress reduced as much as possible. I recently started the paleo diet. I had aready been eating pretty healthy, but decided to eliminate refined sugar. 

 

 

I am thankful for every month that passes and hope that it brings me and others closer to complete healing. 

 

 

-ghm


 

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eymen23

ghm,

 

Sorry to hear you’ve had such a continued reaction to just several doses of fluoxetine. Your latest update seems very positive, in that you’re well onto the road to recovery.

 

Your healthy habits and positive mindset are likely playing a part in this, so keep up the great work :)

 

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ghm2018

Eymen23,

 

Thank you for acknowledging. I appreciate that so much. 

 

I hope all is going well for you. ☺️

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bheb

Hey ghm! I also had an adverse reaction to Prozac -- I was on it longer (about a 1.5yr) but developed akathisia after an updose (preceded by months of going up and down). I don't really have many other symptoms besides intense restlessness, agitation, and akathisia, which kinda all fuse together in my experience but still very hard. I'm sorry you've had akathisia + a slew of other symptoms BUT it seems like you're well on your way to recovery! How's the diet change been going for you?

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ghm2018

BHEB - I apologize for not responding to your comment. I must have overlooked the notification.  I hope all is going well for you.  I think eliminating refined sugar is helpful, but sometimes I simply give into sweets. They have always been my weakness.

 

 

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ghm2018

Here’s another update at 19 months out.

 

Some of the physiological Continue to be ess severe, but most all are still intermittently present.   I am thankful to able to be out in the sunshine without a noxious feeling to my skin. The spasming in my esophagus seems to be gone as well, but sometimes when I think a symptom has gone away, it rears its head, although in milder fashion. 

 

I do have the ability to smile and laugh genuinely at times has returned and I'm sure other sensations that are hard to define. Psychological issues still occur 6-8 hours each day, although they are more tolerable and manage

 

A few few months ago I decided to just go on with what my life used to look like in the best way that I could. I have been to a few concerts with friends, have interest in DIY projects at my house, and attend social functions. People comment that I'm not very chatty, but I assume that will return eventually as well. 

 

I walk and have included a little bit of slow jogging. I still pray a lot, use magnesium and fish oil, try to be a clean eater and practice good sleep hygiene. 

 

All in all, I am thankful for every month that passes and hope that it brings me and others closer to complete healing. 

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ghm2018

Just a quick update...two years have come and gone all that I can say that I still deal with various psychological, mental and physical issues off and on throughout the day.  I haven’t been able to figure out exactly what all of my triggers are, but I do work hard at changing the channel when I recognize that I need to. 

 

I am very thankful that insomnia really isn’t much of a problem for me, unless I am under stress. 
 

Quite honestly, I still have moments of hopelessness because even though the symptoms are manageable, not a day has gone by that I have been symptom-free. 
 

I pray for all of the members here and for those who are suffering and have yet to find this site.
 

-ghm

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FarmGirlWorks

Thanks for the update @ghm2018... I like how you say that you are going on with your life despite lingering symptoms. Same here. Definitely tolerable and manageable now which gives me hope for further healing. Hope that comes for you as well.

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ghm2018

@FarmGirlWorks thank you for responding and for saying you have hope for further healing. I hope that you find recovery just around the bend. 
 

-ghm

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bheb
On 1/14/2020 at 1:42 AM, FarmGirlWorks said:

I like how you say that you are going on with your life despite lingering symptoms. Same here.


well that makes three of us! I also recently have made more of an effort to live as I used to though in many ways impossible. But at least trying to change the mindset of being on hold.

 

I’m sorry you haven’t gotten a symptom free day yet ghm. But you appear to be healing pretty steadily so hopefully around the corner!

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ghm2018

@bheb thank you for responding and for your encouragement. I truly appreciate it. 
 

I’m glad to hear that you, too, are trying to go on with your life.  That must mean that you are healing steadily as well. I know there are some here who are not yet able to do that.

 

peace & blessings to you!

-ghm

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