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☼ gentlehermione: life after ADs


gentlehermione

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@Carmie

 

Thanks for checking in 😀

 

Coming up to 18 months post ADs and feeling better - no dizziness, fewer palpitations, more energy. I'm still experiencing paresthesia in my fingertips and toes but it tends to come and go and is a lot less intense than previously.

 

All things considered, I'm starting to feel I will one day be able to put this horrible chapter of my life behind me 😊

Effexor XR 75mg 1997-2012 

Effexor XR 37.5mg 2012-2017 (tapered off over six months - finished taper July 2017)

SCA Aug 12th, 2017

Cymbalta 30mg Aug 2017 - Nov 2017 (CT Nov. 17th for medical reasons)

Metoprolol 50mg Aug 2017 - Feb 2019 tapered down to 25mg June 2019 then tapered down to zero. Off Metoprolol as of Jan 2020        

Amiodarone (anti-arrhythmic med) 200mg Nov 2017- May 2018

Supplements: Omega 3, vitamin D3, magnesium

What helps me: Manual lymphatic drainage massage, acupressure, meditation, homeopathy (my psychiatrist is also a certified homeopath), a healthy diet when possible organic, yoga, walking my dogs every day and gardening.

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Dang, you are a warrior! Cut off from Effexor and Cymbalta and you live to tell the tale. AND you are doing great! 

 

I really needed this today. So glad you are doing so well ❤️ 

Celexa 10mg: 2007 to June 2018, stopped CT

No meds: June 2018 to December 2018

PROTRACTED WD-- major depressive episode for 2+ weeks

Lexapro 10mg: December 12, 2018 to January 19, 2019, severe adverse reaction

Celexa 10mg: January 20, 2019

June 24, 2019: 9mg

July 22, 2019: 8.5mg

Jan 8, 2020: 8mg

Aug 25, 2020: 7.2mg

 

Supplements: Magnesium, Fish Oil

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  • Moderator Emeritus
6 hours ago, gentlehermione said:

@Carmie

 

Thanks for checking in 😀

 

Coming up to 18 months post ADs and feeling better - no dizziness, fewer palpitations, more energy. I'm still experiencing paresthesia in my fingertips and toes but it tends to come and go and is a lot less intense than previously.

 

All things considered, I'm starting to feel I will one day be able to put this horrible chapter of my life behind me 😊

 

Hi gentlehermoine, 

 

I’m really happy you’re doing so well. How wonderful when we can finally see the light at the end of the tunnel.☀️☀️☀️

 

Sending hugs🤗

Been on APs, benzos, ADs and opiates, all for chronic pain. Had severe Akathisia in the past that made me suicidal. Still on Seroquel. 2019:➡️ March 10=7.25mg ✔️April 17=7.0✔️June 5th=6.75✔️ July 14th=6.50✔️Aug 28=6.25✔️Oct10=6.20 ✔️ Oct21=6.0✔️Dec16=5.80 ✔️  2020➡️Jan 21=5.60✔️April 2=5.40✔️May 29=5.20✔️Aug14= 5.0 ✔️Sep 29=4.80✔️2021➡️ Jan 31=4.60 mg✔️April 24=4.40mg✔️Jul17=4.30mg ✔️Aug 28=4.20✔️ Oct 11=4.15✔️Nov 1=4.10✔️ Nov 21= 4.05✔️ Dec 13= 4mg✔️  2022➡️Jan 8= 3.95 Jan 31=3.90✔️March 2=3.85✔️ April 4= 3.80✔️June 16=3.75✔️THIS IS NOT MEDICAL ADVICE, consult a doctor.

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  • Moderator Emeritus

Because you're feeling better, I added our cheerful "here comes the sun" symbol ☼ to the title of your Intro topic, to show you're recovering.

 

Please continue to let us know how you're doing. I hope you will add your story to our Recovery Success Stories eventually!

Been on APs, benzos, ADs and opiates, all for chronic pain. Had severe Akathisia in the past that made me suicidal. Still on Seroquel. 2019:➡️ March 10=7.25mg ✔️April 17=7.0✔️June 5th=6.75✔️ July 14th=6.50✔️Aug 28=6.25✔️Oct10=6.20 ✔️ Oct21=6.0✔️Dec16=5.80 ✔️  2020➡️Jan 21=5.60✔️April 2=5.40✔️May 29=5.20✔️Aug14= 5.0 ✔️Sep 29=4.80✔️2021➡️ Jan 31=4.60 mg✔️April 24=4.40mg✔️Jul17=4.30mg ✔️Aug 28=4.20✔️ Oct 11=4.15✔️Nov 1=4.10✔️ Nov 21= 4.05✔️ Dec 13= 4mg✔️  2022➡️Jan 8= 3.95 Jan 31=3.90✔️March 2=3.85✔️ April 4= 3.80✔️June 16=3.75✔️THIS IS NOT MEDICAL ADVICE, consult a doctor.

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  • 11 months later...
  • Mentor

@gentlehermione Hi, gh! Just finished reading your thread and wanted you to know that it is an inspiration to me. 
 

How are you doing now? Hoping you’re off living your best life yet!

1988-1996  Various AD’s, all classifications.  

1996-2019  Effexor XR 37.5mg to 150mg. Jan 2017 onward, 37.5 mg.

2019  Apr 11: Latuda 20mg added to Effexor.  Apr 22: L to 40mg.  May 14: L to 20mg.  May 27: L to 10 mg for 3 days then ct (dr’s orders). Continue Effexor 37.5.  Jun 10: Rexulti .5 mg added. Incr to 1mg.  Jun 15: Rex to .5mg.  Jul 1-24: taper Rex to .25mg over couple of weeks then off.  Jul 24: CT Effexor (per dr’s orders)  Sep 9-19: Viibryd (low dose, not sure mg), CT (dr’s orders).  Sep 23-27: Trintellix (low dose). CT (dr’s orders).  Sep 28:  Prozac 10mg.  Oct 24:  Began rapid taper off Prozac (every other day for wk) began Pristiq 25mg for 10 days, then 50mg after that.  Dec 31-Jan 31, 2020:  Pristiq 25mg. 

2020  Feb 1: CT Pristiq due to serious side effects incl high BP w pre-existing heart condition.   Feb 1: Effexor XR (10 large beads from 37.5 capsule).  Feb 3: 14 L beads.  Feb 15: 14 L beads+2 med beads.  Feb 17: 15L + 5M beads (25mgbw or 7.56mgai).

Current: Mar 1, 2020: Effexor XR (15 large beads + 7 medium beads, 30mgbw or 9.072mgai)

 

Other current meds: Ambien 10mg nightly (2012), clonazepam .125mg nightly (May, 2019), omeprazole 20mg (alt w famotidine 20mg, since Oct 2019), Synthroid 125 mcg (1985), Premarin .625mg (2002), Miralax capful/day (2014), fluticasone nasal once/day (mid-2018), cetirizine 10mg nightly (late-2018) .  Supplements: D3 25mcg, probiotic

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@FindRest Today marks exactly 30 months since I CTed off Cymbalta and I had been feeling so much better for the past few months  - probably about 85% healed. I had even started to write my success story!

Unfortunately, atm, I seem to be in a wave. A friend passed away ten days ago and I believe this is what triggered it. He was my age (60) and died of a sudden cardiac arrest... I have been overwhelmed by emotions.

I'm very flattered that you find my thread an inspiration!

Wishing you all the best on your journey towards recovery 🥰

 

Effexor XR 75mg 1997-2012 

Effexor XR 37.5mg 2012-2017 (tapered off over six months - finished taper July 2017)

SCA Aug 12th, 2017

Cymbalta 30mg Aug 2017 - Nov 2017 (CT Nov. 17th for medical reasons)

Metoprolol 50mg Aug 2017 - Feb 2019 tapered down to 25mg June 2019 then tapered down to zero. Off Metoprolol as of Jan 2020        

Amiodarone (anti-arrhythmic med) 200mg Nov 2017- May 2018

Supplements: Omega 3, vitamin D3, magnesium

What helps me: Manual lymphatic drainage massage, acupressure, meditation, homeopathy (my psychiatrist is also a certified homeopath), a healthy diet when possible organic, yoga, walking my dogs every day and gardening.

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  • Mentor

I’m so sorry to hear about your friend. That has to hit extra hard since you too suffered from an SCA. My condolences. 
 

Congratulations on your 30-month anniversary! You give me hope! How ironic is it that I came across your story today?!  I’ll be excited to read your success story. 

1988-1996  Various AD’s, all classifications.  

1996-2019  Effexor XR 37.5mg to 150mg. Jan 2017 onward, 37.5 mg.

2019  Apr 11: Latuda 20mg added to Effexor.  Apr 22: L to 40mg.  May 14: L to 20mg.  May 27: L to 10 mg for 3 days then ct (dr’s orders). Continue Effexor 37.5.  Jun 10: Rexulti .5 mg added. Incr to 1mg.  Jun 15: Rex to .5mg.  Jul 1-24: taper Rex to .25mg over couple of weeks then off.  Jul 24: CT Effexor (per dr’s orders)  Sep 9-19: Viibryd (low dose, not sure mg), CT (dr’s orders).  Sep 23-27: Trintellix (low dose). CT (dr’s orders).  Sep 28:  Prozac 10mg.  Oct 24:  Began rapid taper off Prozac (every other day for wk) began Pristiq 25mg for 10 days, then 50mg after that.  Dec 31-Jan 31, 2020:  Pristiq 25mg. 

2020  Feb 1: CT Pristiq due to serious side effects incl high BP w pre-existing heart condition.   Feb 1: Effexor XR (10 large beads from 37.5 capsule).  Feb 3: 14 L beads.  Feb 15: 14 L beads+2 med beads.  Feb 17: 15L + 5M beads (25mgbw or 7.56mgai).

Current: Mar 1, 2020: Effexor XR (15 large beads + 7 medium beads, 30mgbw or 9.072mgai)

 

Other current meds: Ambien 10mg nightly (2012), clonazepam .125mg nightly (May, 2019), omeprazole 20mg (alt w famotidine 20mg, since Oct 2019), Synthroid 125 mcg (1985), Premarin .625mg (2002), Miralax capful/day (2014), fluticasone nasal once/day (mid-2018), cetirizine 10mg nightly (late-2018) .  Supplements: D3 25mcg, probiotic

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  • 2 months later...
On 10/5/2018 at 8:54 PM, powerback said:

It took me ages to give in and learn to rest ,I pushed it too far but still enjoy lighter walks .

Peace.

 

October 2004 Paxil 20mg - October 2018, 14 years

Nov 2018 Pregabalin - 2x50 mg a day to help with Paxil WD

Aug 2019 Pregabalin - 2 x 25mg a day 

April 2020 Pregabalin - 45mg, May 40mg, June 35mg, beg July 30mg, end July 25mg, Aug 24mg 

June 2021   Pregabalin - 14mg, Jan 2022 Pregabalin 14mg (2x7mg a day)

October 2018 Paxil - 20 mg, November 15mg, December 10mg  Feb 2019 Paxil- 7.5mg crashed, February 8.5mg, Nov 8mg 

March 2020 Paxil - 7.2mg, April 6.5mg, May 5.9mg, June 5.4mg, July 4.8mg, December 4.5mg 

January 2021 Paxil - 4mg, February 3.6mg, March 3.2mg, April 2.9mg, Aug 2.7mg, Sept 2.4mg, Oct 2.2mg, Nov 2mg, Dec 1.8mg, 

Feb 2022 Paxil - 1.6mg, March 1.4mg, April 1.2mg, May 1.0mg, June 0.8mg, July 0.6mg, Aug 0.4mg, Sep 0.2mg

 

these dates are approximate 

 

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@Longroadhome

 

Yes, learning when to rest is key during withdrawal 😉

Effexor XR 75mg 1997-2012 

Effexor XR 37.5mg 2012-2017 (tapered off over six months - finished taper July 2017)

SCA Aug 12th, 2017

Cymbalta 30mg Aug 2017 - Nov 2017 (CT Nov. 17th for medical reasons)

Metoprolol 50mg Aug 2017 - Feb 2019 tapered down to 25mg June 2019 then tapered down to zero. Off Metoprolol as of Jan 2020        

Amiodarone (anti-arrhythmic med) 200mg Nov 2017- May 2018

Supplements: Omega 3, vitamin D3, magnesium

What helps me: Manual lymphatic drainage massage, acupressure, meditation, homeopathy (my psychiatrist is also a certified homeopath), a healthy diet when possible organic, yoga, walking my dogs every day and gardening.

Link to comment

Having been in a horrible wave for the past three months, I had a reprieve of symptoms over the past two days 😄 Sheer bliss!

 

Unfortunately it was very short-lived with the return of massive anxiety today. Some of the physical symptoms I'm experiencing now are new - racing heartbeat upon waking, morning cortisol spikes (never experienced those before on a regular basis).

 

It's been just over 2.5 years since I CTed off Cymbalta and almost 3 since I finished my Effexor taper. What a long haul...

Effexor XR 75mg 1997-2012 

Effexor XR 37.5mg 2012-2017 (tapered off over six months - finished taper July 2017)

SCA Aug 12th, 2017

Cymbalta 30mg Aug 2017 - Nov 2017 (CT Nov. 17th for medical reasons)

Metoprolol 50mg Aug 2017 - Feb 2019 tapered down to 25mg June 2019 then tapered down to zero. Off Metoprolol as of Jan 2020        

Amiodarone (anti-arrhythmic med) 200mg Nov 2017- May 2018

Supplements: Omega 3, vitamin D3, magnesium

What helps me: Manual lymphatic drainage massage, acupressure, meditation, homeopathy (my psychiatrist is also a certified homeopath), a healthy diet when possible organic, yoga, walking my dogs every day and gardening.

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  • 7 months later...

Last fall I had a wonderful window that lasted for what seemed like months 😄 For the past month I've been struggling with some major anxiety however it's not as intense as what I experienced earlier in WD (or is it that I'm coping better??). It's been 3 years and two months since I CTed off Cymbalta. Could this be the three year wave?

 

Effexor XR 75mg 1997-2012 

Effexor XR 37.5mg 2012-2017 (tapered off over six months - finished taper July 2017)

SCA Aug 12th, 2017

Cymbalta 30mg Aug 2017 - Nov 2017 (CT Nov. 17th for medical reasons)

Metoprolol 50mg Aug 2017 - Feb 2019 tapered down to 25mg June 2019 then tapered down to zero. Off Metoprolol as of Jan 2020        

Amiodarone (anti-arrhythmic med) 200mg Nov 2017- May 2018

Supplements: Omega 3, vitamin D3, magnesium

What helps me: Manual lymphatic drainage massage, acupressure, meditation, homeopathy (my psychiatrist is also a certified homeopath), a healthy diet when possible organic, yoga, walking my dogs every day and gardening.

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  • Administrator

Hello, @gentlehermione There is no 3-year wave. Your nervous system is still working on putting itself back together.

 

Have you recently had a little alcohol or taken antibiotics? These can often cause a wave.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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4 minutes ago, Altostrata said:

Your nervous system is still working on putting itself back together.

 

Hi Alto

 

That's what I was wondering. 

 

9 minutes ago, Altostrata said:

Have you recently had a little alcohol or taken antibiotics? These can often cause a wave.

 

I haven't touched alcohol in ages and no antibiotics or other medication.

Effexor XR 75mg 1997-2012 

Effexor XR 37.5mg 2012-2017 (tapered off over six months - finished taper July 2017)

SCA Aug 12th, 2017

Cymbalta 30mg Aug 2017 - Nov 2017 (CT Nov. 17th for medical reasons)

Metoprolol 50mg Aug 2017 - Feb 2019 tapered down to 25mg June 2019 then tapered down to zero. Off Metoprolol as of Jan 2020        

Amiodarone (anti-arrhythmic med) 200mg Nov 2017- May 2018

Supplements: Omega 3, vitamin D3, magnesium

What helps me: Manual lymphatic drainage massage, acupressure, meditation, homeopathy (my psychiatrist is also a certified homeopath), a healthy diet when possible organic, yoga, walking my dogs every day and gardening.

Link to comment

Hi gentle,

 

I just red a bit through your posts.  I am tapering off of Effexor which i took for the last 15 years and i am also experiencing a lot of dizziness which is one of my most debilitating symptoms.  I also feel irritable and anxious a lot. 

I hope your cns will heal soon completely!!! Prayers from Berlin 

 

 

23.2 bipolar mixed state

900mg Lithium for 3 weeks

gabapentin 100 three timesa day it was discontinued after 5 days so i took one or 2 pills for another 5 

zopiclone for 8 days ( 7.5mg one time 15). 

I left the hospital, 8 zopi at home

I took ativan (22 in total, 2 days in between)

 

 

 

 

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  • Administrator

@gentlehermionehow much omega-3 and magnesium are you taking?

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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@Altostrata  1128mg omega-3 and 365mg magnesium.

 

 

Effexor XR 75mg 1997-2012 

Effexor XR 37.5mg 2012-2017 (tapered off over six months - finished taper July 2017)

SCA Aug 12th, 2017

Cymbalta 30mg Aug 2017 - Nov 2017 (CT Nov. 17th for medical reasons)

Metoprolol 50mg Aug 2017 - Feb 2019 tapered down to 25mg June 2019 then tapered down to zero. Off Metoprolol as of Jan 2020        

Amiodarone (anti-arrhythmic med) 200mg Nov 2017- May 2018

Supplements: Omega 3, vitamin D3, magnesium

What helps me: Manual lymphatic drainage massage, acupressure, meditation, homeopathy (my psychiatrist is also a certified homeopath), a healthy diet when possible organic, yoga, walking my dogs every day and gardening.

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  • Administrator

Taking 3000-4000mg EPA + DHA in your omega-3 supplement will be more effective, in divided doses. This is often 6 capsules a day.

 

Taking small amounts of magnesium throughout the day is more effective than taking it all at once.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

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18 hours ago, Altostrata said:

Taking 3000-4000mg EPA + DHA in your omega-3 supplement will be more effective, in divided doses. This is often 6 capsules a day.

 

Taking small amounts of magnesium throughout the day is more effective than taking it all at once.

 

@Altostrata Many thanks 🙂

Effexor XR 75mg 1997-2012 

Effexor XR 37.5mg 2012-2017 (tapered off over six months - finished taper July 2017)

SCA Aug 12th, 2017

Cymbalta 30mg Aug 2017 - Nov 2017 (CT Nov. 17th for medical reasons)

Metoprolol 50mg Aug 2017 - Feb 2019 tapered down to 25mg June 2019 then tapered down to zero. Off Metoprolol as of Jan 2020        

Amiodarone (anti-arrhythmic med) 200mg Nov 2017- May 2018

Supplements: Omega 3, vitamin D3, magnesium

What helps me: Manual lymphatic drainage massage, acupressure, meditation, homeopathy (my psychiatrist is also a certified homeopath), a healthy diet when possible organic, yoga, walking my dogs every day and gardening.

Link to comment
19 hours ago, Holly26 said:

I just red a bit through your posts.  I am tapering off of Effexor which i took for the last 15 years and i am also experiencing a lot of dizziness which is one of my most debilitating symptoms.  I also feel irritable and anxious a lot. 

I hope your cns will heal soon completely!!! Prayers from Berlin 

 

@Holly26 Thanks for stopping by. I'm sorry to hear you are in a bad place atm. Yes, I too initially experienced debilitating dizziness. I found that a short, gentle walk in nature gave me some relief, even if only for a little while. Over time the severe dizziness will dissipate and you will feel so much better.

Don't worry, there is a light at the end of the tunnel (I've caught a glimpse of it 😉). Alles Gute 🥰

Effexor XR 75mg 1997-2012 

Effexor XR 37.5mg 2012-2017 (tapered off over six months - finished taper July 2017)

SCA Aug 12th, 2017

Cymbalta 30mg Aug 2017 - Nov 2017 (CT Nov. 17th for medical reasons)

Metoprolol 50mg Aug 2017 - Feb 2019 tapered down to 25mg June 2019 then tapered down to zero. Off Metoprolol as of Jan 2020        

Amiodarone (anti-arrhythmic med) 200mg Nov 2017- May 2018

Supplements: Omega 3, vitamin D3, magnesium

What helps me: Manual lymphatic drainage massage, acupressure, meditation, homeopathy (my psychiatrist is also a certified homeopath), a healthy diet when possible organic, yoga, walking my dogs every day and gardening.

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Hi gentle. So happy that you are doing well. I wondered how long you suffered with the dizziness. I am suffering with that and have been for close to two years. It is relentless and has me so frightened. Thank you. 

Nardil 1985-1988
Paxil ?-1998

Effexor150  1998-November 2018 

Bupoprion150 2002-November 2018

Fluoxetine approximately 1/4 mg trial for WD symptoms December 2020. Took for 3 days but  it seemed to compound the dizziness significantly so I had to discontinue the trial. 

 

Current Medications: Levothyroxine, Acyclovir 

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Hi gentle,

 

Thank you so much for your encouraging answer!I agree, gentle walks in nature are very helpfull. I wish you the very best on your way to full recovery!! 

 

 

23.2 bipolar mixed state

900mg Lithium for 3 weeks

gabapentin 100 three timesa day it was discontinued after 5 days so i took one or 2 pills for another 5 

zopiclone for 8 days ( 7.5mg one time 15). 

I left the hospital, 8 zopi at home

I took ativan (22 in total, 2 days in between)

 

 

 

 

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19 hours ago, Patti2057 said:

I wondered how long you suffered with the dizziness. I am suffering with that and have been for close to two years. It is relentless and has me so frightened.  

@Patti2057  It was around the 18 month mark that the severe dizziness started to abate. I still experienced bouts in the ensuing months but they were much less intense and of shorter duration. At the 2.5 year mark I noticed a definite improvement. I know so well the feelings of utter helplessness and fear you must be experiencing atm. 

Hang in there! And take one day at a time 😉

 

Effexor XR 75mg 1997-2012 

Effexor XR 37.5mg 2012-2017 (tapered off over six months - finished taper July 2017)

SCA Aug 12th, 2017

Cymbalta 30mg Aug 2017 - Nov 2017 (CT Nov. 17th for medical reasons)

Metoprolol 50mg Aug 2017 - Feb 2019 tapered down to 25mg June 2019 then tapered down to zero. Off Metoprolol as of Jan 2020        

Amiodarone (anti-arrhythmic med) 200mg Nov 2017- May 2018

Supplements: Omega 3, vitamin D3, magnesium

What helps me: Manual lymphatic drainage massage, acupressure, meditation, homeopathy (my psychiatrist is also a certified homeopath), a healthy diet when possible organic, yoga, walking my dogs every day and gardening.

Link to comment
11 hours ago, Holly26 said:

Thank you so much for your encouraging answer! 

 

@Holly26 My pleasure 🙂 Wishing you strength and perseverance for the rest of your taper.

Effexor XR 75mg 1997-2012 

Effexor XR 37.5mg 2012-2017 (tapered off over six months - finished taper July 2017)

SCA Aug 12th, 2017

Cymbalta 30mg Aug 2017 - Nov 2017 (CT Nov. 17th for medical reasons)

Metoprolol 50mg Aug 2017 - Feb 2019 tapered down to 25mg June 2019 then tapered down to zero. Off Metoprolol as of Jan 2020        

Amiodarone (anti-arrhythmic med) 200mg Nov 2017- May 2018

Supplements: Omega 3, vitamin D3, magnesium

What helps me: Manual lymphatic drainage massage, acupressure, meditation, homeopathy (my psychiatrist is also a certified homeopath), a healthy diet when possible organic, yoga, walking my dogs every day and gardening.

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Thank you again Gentle. I am so happy to hear that you are doing so much better.  Unfortunately for you as well, it did take a considerable amount of time but you persevered and it happened!! This gives me a good dose of “keep on pushing to healing”. 
Love, peace, healing💖

Nardil 1985-1988
Paxil ?-1998

Effexor150  1998-November 2018 

Bupoprion150 2002-November 2018

Fluoxetine approximately 1/4 mg trial for WD symptoms December 2020. Took for 3 days but  it seemed to compound the dizziness significantly so I had to discontinue the trial. 

 

Current Medications: Levothyroxine, Acyclovir 

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  • 3 months later...

Well, yesterday marked exactly 3 1/2 years since my CT. After month long waves in January and March things seem to have settled somewhat (touch wood!). I'm able to function quite well on a daily basis - hour long walks, housework, gardening but I've learned to listen when my body tells me to slow down. Anxiety is probably the worst symptom I'm experiencing now but it is manageable. I'm definitely better but I'm not yet where I want to be 😉

 

Now the next hurdle is the Covid vaccine...

 

Effexor XR 75mg 1997-2012 

Effexor XR 37.5mg 2012-2017 (tapered off over six months - finished taper July 2017)

SCA Aug 12th, 2017

Cymbalta 30mg Aug 2017 - Nov 2017 (CT Nov. 17th for medical reasons)

Metoprolol 50mg Aug 2017 - Feb 2019 tapered down to 25mg June 2019 then tapered down to zero. Off Metoprolol as of Jan 2020        

Amiodarone (anti-arrhythmic med) 200mg Nov 2017- May 2018

Supplements: Omega 3, vitamin D3, magnesium

What helps me: Manual lymphatic drainage massage, acupressure, meditation, homeopathy (my psychiatrist is also a certified homeopath), a healthy diet when possible organic, yoga, walking my dogs every day and gardening.

Link to comment
On 1/27/2021 at 4:27 PM, gentlehermione said:

 

@Holly26 Thanks for stopping by. I'm sorry to hear you are in a bad place atm. Yes, I too initially experienced debilitating dizziness. I found that a short, gentle walk in nature gave me some relief, even if only for a little while. Over time the severe dizziness will dissipate and you will feel so much better.

Don't worry, there is a light at the end of the tunnel (I've caught a glimpse of it 😉). Alles Gute 🥰

Hi @gentlehermione

can I ask you was your dizziness like being on a floaty boat 24/7. Where you feel like you’re on the sea floating and bobbing and just feel like you’re moving when your not. This is how mine is.

did you also have it when you were sitting or lying down ? 
so glad you are almost there. Well done for being so brave and persevering. 

October 2004 Paxil 20mg - October 2018, 14 years

Nov 2018 Pregabalin - 2x50 mg a day to help with Paxil WD

Aug 2019 Pregabalin - 2 x 25mg a day 

April 2020 Pregabalin - 45mg, May 40mg, June 35mg, beg July 30mg, end July 25mg, Aug 24mg 

June 2021   Pregabalin - 14mg, Jan 2022 Pregabalin 14mg (2x7mg a day)

October 2018 Paxil - 20 mg, November 15mg, December 10mg  Feb 2019 Paxil- 7.5mg crashed, February 8.5mg, Nov 8mg 

March 2020 Paxil - 7.2mg, April 6.5mg, May 5.9mg, June 5.4mg, July 4.8mg, December 4.5mg 

January 2021 Paxil - 4mg, February 3.6mg, March 3.2mg, April 2.9mg, Aug 2.7mg, Sept 2.4mg, Oct 2.2mg, Nov 2mg, Dec 1.8mg, 

Feb 2022 Paxil - 1.6mg, March 1.4mg, April 1.2mg, May 1.0mg, June 0.8mg, July 0.6mg, Aug 0.4mg, Sep 0.2mg

 

these dates are approximate 

 

Link to comment
2 hours ago, Longroadhome said:

Hi @gentlehermione

can I ask you was your dizziness like being on a floaty boat 24/7. Where you feel like you’re on the sea floating and bobbing and just feel like you’re moving when your not. This is how mine is.

did you also have it when you were sitting or lying down ? 
so glad you are almost there. Well done for being so brave and persevering. 

 

Hi @Longroadhome

 

Thank you for your kind words ❣️Being on a floaty boat is a pretty good way to describe it. There were fleeting moments during the day when I would suddenly notice that the dizziness had abated but they never lasted for very long ☹️ Sitting and lying down were easier. More lightheadedness or feeling like my head had been packed in cotton wool when sitting and I don't remember ever being in bed and feeling woozy - thank God! Gentle exercise - walking my dogs in the woods - definitely helped alleviate the dizziness for a short time.

 

Wishing you well on your continuing journey - hope you see some improvement soon! 

Effexor XR 75mg 1997-2012 

Effexor XR 37.5mg 2012-2017 (tapered off over six months - finished taper July 2017)

SCA Aug 12th, 2017

Cymbalta 30mg Aug 2017 - Nov 2017 (CT Nov. 17th for medical reasons)

Metoprolol 50mg Aug 2017 - Feb 2019 tapered down to 25mg June 2019 then tapered down to zero. Off Metoprolol as of Jan 2020        

Amiodarone (anti-arrhythmic med) 200mg Nov 2017- May 2018

Supplements: Omega 3, vitamin D3, magnesium

What helps me: Manual lymphatic drainage massage, acupressure, meditation, homeopathy (my psychiatrist is also a certified homeopath), a healthy diet when possible organic, yoga, walking my dogs every day and gardening.

Link to comment

Hi.  So, you are at 3 1/2 years.  I hope you see a lot of improvement over the next 6 months.  You should.  It’s really incredible how long this takes.  Thanks for stopping by my thread.

 

Rosetta

https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25

2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period

May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born)

2012-2016 - Doctors raised dose of Zoloft up to 150 mg

2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction)

2016 - Stopped Xanax

Late 2016- Began (too fast) taper of Zoloft

Early 2017 - Trazodone prescribed for bedtime (doseage unknown)

Feb 2017 - Completed taper/stopped Trazodone

Drug free since Feb 2017

2017 - Unisom otc very rarely for sleep

Link to comment
10 hours ago, gentlehermione said:

 

Hi @Longroadhome

 

Thank you for your kind words ❣️Being on a floaty boat is a pretty good way to describe it. There were fleeting moments during the day when I would suddenly notice that the dizziness had abated but they never lasted for very long ☹️ Sitting and lying down were easier. More lightheadedness or feeling like my head had been packed in cotton wool when sitting and I don't remember ever being in bed and feeling woozy - thank God! Gentle exercise - walking my dogs in the woods - definitely helped alleviate the dizziness for a short time.

 

Wishing you well on your continuing journey - hope you see some improvement soon! 

Thank you for your reply I look forward to reading your success story !

October 2004 Paxil 20mg - October 2018, 14 years

Nov 2018 Pregabalin - 2x50 mg a day to help with Paxil WD

Aug 2019 Pregabalin - 2 x 25mg a day 

April 2020 Pregabalin - 45mg, May 40mg, June 35mg, beg July 30mg, end July 25mg, Aug 24mg 

June 2021   Pregabalin - 14mg, Jan 2022 Pregabalin 14mg (2x7mg a day)

October 2018 Paxil - 20 mg, November 15mg, December 10mg  Feb 2019 Paxil- 7.5mg crashed, February 8.5mg, Nov 8mg 

March 2020 Paxil - 7.2mg, April 6.5mg, May 5.9mg, June 5.4mg, July 4.8mg, December 4.5mg 

January 2021 Paxil - 4mg, February 3.6mg, March 3.2mg, April 2.9mg, Aug 2.7mg, Sept 2.4mg, Oct 2.2mg, Nov 2mg, Dec 1.8mg, 

Feb 2022 Paxil - 1.6mg, March 1.4mg, April 1.2mg, May 1.0mg, June 0.8mg, July 0.6mg, Aug 0.4mg, Sep 0.2mg

 

these dates are approximate 

 

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7 hours ago, Rosetta said:

It’s really incredible how long this takes.  

 

@Longroadhome  @Rosetta

 

Thank you ❤️

 

Even in my worst nightmares I would never, ever have imagined that withdrawal could or would be this long and drawn out!

 

Sending you healing vibes 🙂

Effexor XR 75mg 1997-2012 

Effexor XR 37.5mg 2012-2017 (tapered off over six months - finished taper July 2017)

SCA Aug 12th, 2017

Cymbalta 30mg Aug 2017 - Nov 2017 (CT Nov. 17th for medical reasons)

Metoprolol 50mg Aug 2017 - Feb 2019 tapered down to 25mg June 2019 then tapered down to zero. Off Metoprolol as of Jan 2020        

Amiodarone (anti-arrhythmic med) 200mg Nov 2017- May 2018

Supplements: Omega 3, vitamin D3, magnesium

What helps me: Manual lymphatic drainage massage, acupressure, meditation, homeopathy (my psychiatrist is also a certified homeopath), a healthy diet when possible organic, yoga, walking my dogs every day and gardening.

Link to comment
  • 2 months later...

44 months out and still slogging along. The digestive issues I experienced earlier on in withdrawal have returned but that could be due to a course of iron supplements which I took for three months. They wreaked havoc with my gut and didn't raise my ferritin level 😕 Anxiety is bad some days but I've learned how to cope as well as possible.

I really had hoped to be in a much better place this far down the road... 

Effexor XR 75mg 1997-2012 

Effexor XR 37.5mg 2012-2017 (tapered off over six months - finished taper July 2017)

SCA Aug 12th, 2017

Cymbalta 30mg Aug 2017 - Nov 2017 (CT Nov. 17th for medical reasons)

Metoprolol 50mg Aug 2017 - Feb 2019 tapered down to 25mg June 2019 then tapered down to zero. Off Metoprolol as of Jan 2020        

Amiodarone (anti-arrhythmic med) 200mg Nov 2017- May 2018

Supplements: Omega 3, vitamin D3, magnesium

What helps me: Manual lymphatic drainage massage, acupressure, meditation, homeopathy (my psychiatrist is also a certified homeopath), a healthy diet when possible organic, yoga, walking my dogs every day and gardening.

Link to comment
  • 1 month later...

46 months out and feeling I've really regressed 😒 The "floaty boaty" dizziness resurfaced about five days ago and that made me feel panicky - like will I ever be free of these WD symptoms?!! 

 

I guess it's just a bad wave but it's really hitting hard...

Effexor XR 75mg 1997-2012 

Effexor XR 37.5mg 2012-2017 (tapered off over six months - finished taper July 2017)

SCA Aug 12th, 2017

Cymbalta 30mg Aug 2017 - Nov 2017 (CT Nov. 17th for medical reasons)

Metoprolol 50mg Aug 2017 - Feb 2019 tapered down to 25mg June 2019 then tapered down to zero. Off Metoprolol as of Jan 2020        

Amiodarone (anti-arrhythmic med) 200mg Nov 2017- May 2018

Supplements: Omega 3, vitamin D3, magnesium

What helps me: Manual lymphatic drainage massage, acupressure, meditation, homeopathy (my psychiatrist is also a certified homeopath), a healthy diet when possible organic, yoga, walking my dogs every day and gardening.

Link to comment
  • 1 month later...

About two weeks ago, the ongoing wave I had been in abated and was followed by a week long window 🎉 What welcome relief after months of feeling so low! However I believe I probably did too much over the weekend and found myself waking several times at night with cortisol spikes and horrible anxiety which unfortunately persisted throughout the following day. I really felt like I was back to square one but fortunately was able to banish my intrusive thoughts - thank you Claire Weekes 🥰

 

Four years out this month and what a journey it has been so far!!

 

Effexor XR 75mg 1997-2012 

Effexor XR 37.5mg 2012-2017 (tapered off over six months - finished taper July 2017)

SCA Aug 12th, 2017

Cymbalta 30mg Aug 2017 - Nov 2017 (CT Nov. 17th for medical reasons)

Metoprolol 50mg Aug 2017 - Feb 2019 tapered down to 25mg June 2019 then tapered down to zero. Off Metoprolol as of Jan 2020        

Amiodarone (anti-arrhythmic med) 200mg Nov 2017- May 2018

Supplements: Omega 3, vitamin D3, magnesium

What helps me: Manual lymphatic drainage massage, acupressure, meditation, homeopathy (my psychiatrist is also a certified homeopath), a healthy diet when possible organic, yoga, walking my dogs every day and gardening.

Link to comment
  • 2 weeks later...

The last wave lasted only a couple of days and I seem to have come out of it with a much improved baseline 🎉

 

Bring on year five of WD where I will hopefully continue to experience ongoing improvement and healing! 

Effexor XR 75mg 1997-2012 

Effexor XR 37.5mg 2012-2017 (tapered off over six months - finished taper July 2017)

SCA Aug 12th, 2017

Cymbalta 30mg Aug 2017 - Nov 2017 (CT Nov. 17th for medical reasons)

Metoprolol 50mg Aug 2017 - Feb 2019 tapered down to 25mg June 2019 then tapered down to zero. Off Metoprolol as of Jan 2020        

Amiodarone (anti-arrhythmic med) 200mg Nov 2017- May 2018

Supplements: Omega 3, vitamin D3, magnesium

What helps me: Manual lymphatic drainage massage, acupressure, meditation, homeopathy (my psychiatrist is also a certified homeopath), a healthy diet when possible organic, yoga, walking my dogs every day and gardening.

Link to comment
  • 4 weeks later...
  • Moderator Emeritus

Dear @gentlehermioneYour heart and fortitude are helping me to make the transition from the waking nightmares into the challenges of this day.  Thank you gentlehermione, more than I can say.

May all of us recover and find health again,

Arbor

Zoloft: 1995 - 2015

Prozac: 2015 - 2018 (tapered from 40mg x day on July 31 to 30mg on August 31 to 20mg on September 31 to 10mg October 31 to 0mg on  December 15, 2018

Gabapentin: 2016 to 2019  (tapered from 300mg x day to 150mg on August 31, 2019 to 75mg on September 15 to 50mg on September 31 to 25ishmg on October 15 to 0mg on December 1, 2019

Enalapril: 2010 - 2019

Lipitor: 2017 -2017

Metformin: 2000 - 2020

Liothyronine: 2007 - 2019

Levothyroxine: 2000 - 

Link to comment

Dear @arbor Thank you for your kind words. I am glad to hear that I've been able to give you some hope and strength to persevere ❤️ Don't worry, we'll get there 😉

 

Since my last post, I have been virtually symptom-free and feeling so much more like my old self - what a gift! Very welcome as much of this past year has been oh so challenging...

Effexor XR 75mg 1997-2012 

Effexor XR 37.5mg 2012-2017 (tapered off over six months - finished taper July 2017)

SCA Aug 12th, 2017

Cymbalta 30mg Aug 2017 - Nov 2017 (CT Nov. 17th for medical reasons)

Metoprolol 50mg Aug 2017 - Feb 2019 tapered down to 25mg June 2019 then tapered down to zero. Off Metoprolol as of Jan 2020        

Amiodarone (anti-arrhythmic med) 200mg Nov 2017- May 2018

Supplements: Omega 3, vitamin D3, magnesium

What helps me: Manual lymphatic drainage massage, acupressure, meditation, homeopathy (my psychiatrist is also a certified homeopath), a healthy diet when possible organic, yoga, walking my dogs every day and gardening.

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