jonnypeters1234567: 11 months off Citalopram

[jonnypeters1234567]

Hi guys

 

So the ssris worked for me for several years.  I came off them and then went back on them. The second time i went back on them they didnt work the same. I had a few years of them working and then, what i know now the i had windows and waves for a while.

 

Then suddenly 1 year before i came off it seemed like the meds had started working again. I began to feel intense happiness again, however i lost all inhibitions started acting very strangley. I lost all sight of morals and began drinking heavily and compulsive gambling an urge than was out of this world. This lasted for a year then i decided to come off the meds. In my first year off i still had this intense happiness and compuslive urges and loss of inhibitions. I sit there smiling to myself gazing into the distance, i became very socially withdrawan and as i felt as if i knew everything and couldnt be convinced otherwise. This is why i kept stating i feel like i am still on the drug at times .  What i know now that the feelings werent normally ssri feelings. Now at 15 months off my behaviour is very child like, i still have this intense happiness and act like a baby still with intense urges. 

 

I have been diagnosed with Picks disease which has been caused by the drugs. If these symptoms turned up after i finished the drug i would be convinced that these are withdrawal symptons. But as they were increasing over the years as i was on the drug i am convinced otherwise.

 

UPDATE:

8 hours ago, jonnypeters1234567 said:

 

picks diagnosis was a mistake.

 

 

This is extremely devastating as i have lost all hope in overcoming withdrawal as these symptoms are as strong as ever.

 

I am in a very lonely place and really on the brink

 

Alto please continue to raise awareness of the destructive nature of these filthy drugs

 

Edited March 9, 2019 by ChessieCat
added update

[ChessieCat]

What are the symptoms of Pick's disease?

abrupt mood changes.

compulsive or inappropriate behavior.

depression-like symptoms, such as disinterest in daily activities.

withdrawal from social interaction.

difficulty keeping a job.

poor social skills.

poor personal hygiene.

repetitive behavior.

 

Many SA members have/have had these exact same symptoms.  I would be sceptical about the diagnosis of Pick's disease.  From what I have learnt from my research and being here at SA, I would say it is simply withdrawal.  The brain is trying to regain homeostasis or factory settings.  It will take time, and windows and waves, for this to happen.  It's important to learn and use Non-drug techniques to get through the tough times.  It also helps give the brain the environment it needs to heal.

 

8 hours ago, jonnypeters1234567 said:

This is extremely devastating as i have lost all hope in overcoming withdrawal as these symptoms are as strong as ever.

 

Wouldn't it be better to believe that it IS withdrawal?  At least then you have hope.

 

What non drug coping techniques are you trying?  Have you found anything that helps?

 

I found playing non-activating games has helped my memory to improve.  For a while I was unable to play Angry Birds because it would increase my anxiety.  Even now I can only play it for short periods whereas before I could play it for hours on end.

 

Sometimes I can do word games, sometimes I can do maths games.  I've always loved doing jigsaw puzzles but for a year or so I wasn't able to because my brain didn't seem to be able to see a piece and turn it around in my mind.  I'm now able to do them.  Since I started tapering I have found it difficult to read.  I listen to audio books and sermons.  I can't always remember what I have listened to but my memory is improving.  I've gone through periods where I haven't been able to multi-task.  At times it was so bad that to do a new single task I had to talk my way through it.  These have improved.  My confidence has been shot.  Whereas before I would be willing to give something a try, now I think about it for a long time and usually decide not to bother.  I've been wanting to sew some simple drawstring bags to carry my things to work in.  I've bought the material and have had it for weeks.  Nothing complicated.  Finally yesterday I got around to making one.  However I did have to force myself not to give up.

 

I've been through stages where I can't sit and watch TV unless I am doing something else at the same time, like a sudoku puzzle.  Recently I've felt that when I'm at home I want to be at work and vice versa.

 

8 hours ago, jonnypeters1234567 said:

So the ssris worked for me for several years.  I came off them and then went back on them. The second time i went back on them they didnt work the same.

 

This is not unusual.  And going off different ADs can have different WD symptoms.  I've experienced this myself.  Went off citalopram and felt fantastic for a few months then ended up bedridden for 2 1/2 weeks with what I thought was the flu.  I couldn't eat and lost 8kgs.  When I found SA I realised it had been delayed WD.  When I tried to reduce my Pristiq from 100mg to 50mg I experienced an upset stomach (which at first I thought was a tummy bug but learned it was probably WD) and bad cog fog for 3 weeks.  Walking took my whole concentration.  At the end of 3 weeks I couldn't type.  I've been a professional typist for 40+ years so I knew something was really wrong.  Thankfully I had joined SA a few days before this happened and they had suggested taking extra Pristiq.  When I couldn't type I did this and about 4 hours later I could type again.

 

After my increased dose for a few months I commenced tapering, by reducing by 10%.  I experienced very bad ear pain and pressure and a headache (inside the middle of forehead).  I took an OTC cold medication but this didn't do anything.  I then realised that it was probably WD so I took a bit extra Pristiq and once again, several hours later, the symptom eased.  This happened when I tried to reduce the next time too but it wasn't as bad and I didn't updose.  Even though I've been tapering following SA's protocol I do still experience WD symptoms, but thankfully they are mild most of the time.

 

I hope that what I have written about my own experience helps you to realise how these drugs mess us up.  But more importantly, I hope you can see that things do improve.  However, the more you stress and worry about it, the harder it is going to be for your brain to heal because the stress causes the brain to divert its attention to dealing with the threat (which is non existent).

[jonnypeters1234567]

I havent come across any members that keep having moments of intense fake happiness and child like behaviour. Running around clapping hands blowing raspberries

 

It is a sign of left frontal lobe damage.

[jonnypeters1234567]

child like behaviour that is debilitating and completely shut down my thinking and whatever im doing.

 

It was progressive when i was on the drugs, i dont see many cases of this??

[jonnypeters1234567]

I havent had any windows free of these symptons

[SkyBlue]

On 9/29/2018 at 6:25 PM, ChessieCat said:

What non drug coping techniques are you trying?  Have you found anything that helps?

 

What did you think of Chessie's post, above? 

 

Anything is fair game in withdrawal. How have you been dealing with your recent symptoms?

 

A request: It would be better if you could post your writing as one post, instead of three in quick succession. It will make it easier to read.

[jozeff]

How are you today jonny?

[jonnypeters1234567]

I have been off meds 16 months.

 

For about an hour a day I have intense euphoria that crashes into SI.

 

Does anyone else have this?

 

Points to dopamine dysregulation.

[ChessieCat]

are-we-there-yet-how-long-is-withdrawal-going-to-take

 

I suggest you keep daily notes on paper and include things that happen (eg kids were fighting, car wouldn't start etc) and what you do (eg exercise, watch TV, went shopping etc) and also what you eat and your sleep.  You may be able to see a pattern.  This is an example:

 

6 a.m. Woke and vomited
8 a.m. Took 2.5mg Lexapro
10 a.m. Had diarrhea
10:30 a.m. Ate breakfast
11:35 a.m. Got a headache, lasted one hour
12:35 p.m. Ate lunch
4 p.m. Stomachache
5 p.m. Took 2.5mg Lexapro
6 p.m. Ate dinner
9:20 p.m. Headache
10:00 p.m. Took 50mg Seroquel
10:20 p.m. Headache got worse
10:30 p.m. Fell asleep
2:30 a.m. Woke, took 3mg Ambien (NOT "took 1/2 tablet Ambien")
2:45 a.m. Fell asleep
4:30 a.m. Woke with headache

 

 

Basically- you have a building where the MAJOR steel structures are trying to be rebuilt at different times - ALL while people are coming and going in the building and attempting to work.

It would be like if the World Trade Center Towers hadn't completely fallen - but had crumbled inside in different places.. Imagine if you were trying to rebuild the tower - WHILE people were coming and going and trying to work in the building!  You'd have to set up a temporary elevator - but when you needed to fix part of that area, you'd have to tear down that elevator and set up a temporary elevator somewhere else. And so on. You'd have to build, work around, then tear down, then build again, then work around, then build... ALL while people are coming and going, ALL while the furniture is being replaced, ALL while the walls are getting repainted... ALL while life is going on INSIDE the building. No doubt it would be chaotic. That is EXACTLY what is happening with windows and waves.  The windows are where the body has "got it right" for a day or so - but then the building shifts and the brain works on something else - and it's chaos again while another temporary pathway is set up to reroute function until repairs are made.  

[Bunyapine]

@ChessieCat I would like to play games, but find the timing aspect of them far too activating. What games do you play?

[ChessieCat]

You might find colouring in games or online jigsaw puzzles okay.  Or find-a-word puzzles. They don't have to be difficult ones, just things to keep using/training your brain.  I found a jigsaw puzzle one on FB which lets you choose the number of pieces and you can select whether to have the pieces the right way up to start with.  It's called Jigsaw Puzzle Quest.

[jozeff]

I am a flightsimmer and have been for years.

That's been an amazing distraction and hobby for years. It's not exactly a game but it is interesting, you can read a lot of stuff about it when laying on the couch too.

 

It's not exactly great when I'm depressed because sitting in my man cave in a virtual plane doesn't really heal my feelings. Talking to people, listening music or swimming is a better option then.

 

Jonny that is a complicated feeling. I have some euphoria sometimes and start reading and talking a lot and then boom after sometime it just crashes also. I just accept that it happens sometimes. I absolutely wouldn't say it's exactly like your situation but still, euphoria sometimes takes over my rational.I just want to feel a lot at the moment and enjoy it as much as possible. After a while I get very tired and my mood decreases. a few hours later it's back to normal again.

 

Have a nice day!

 

Jozeff

[jonnypeters1234567]

does anyone else have waves of complete terrifying nothingness, complete void of characteristics and identity? And you want to end it straight away? Total loss of control. No fear, no empathy, just uncontrollable crying and talking as cant keep thoughts to self. then control slowly comes back. this happens daily for me. I would be dead every time this happens if it wasn't for my parents. I've ordered things online to end my life but has been intercepted by parents. The worse things about this is I don't feel like an adult in these situations, very child like. Very unlike me.

[Noloft]

JP,

 

I feel this way constantly. See my last post on my thread. I feel like I forgot how to be an adult person, like a scared child. I often times find myself crying and calling out for my mom, and then realizing that I am a 26 year old MAN crying his eyes out from the pain calling for his mom and I need to buckle down and get my **** together but I usually don't.

 

 I assume this is due to the traumatic nature of all of this. The only thing that helps me cope with this is focusing my attention outward, talking with someone about it, or pretending I am just stoned off my a** and that is why I feel this way. 

 

I agree with you it is a very distressing feeling and makes life very difficult and I pray every night that I will heal from it eventually.

 

 

[pinkfairy]

Stopping by to thank you 💕

[Skeeter]

JohnnyP,

How were you diagnosed with Pick disease?  Please name the tests they did.  I apologize for asking now, but I have been away from SA.

 I researched Pick disease, and AD's & NL/AP's DO NOT cause it, in fact there is no actual known specific cause, & It is normally treated with AD's and antipsychotics.  Your explanation of how it started for you while on prescribed drugs does not mean that the drugs caused it, in fact it is caused by a buildup by a protein in the brain.  If you do indeed have it, you really need to visit a doctor with a loved one about how this disease progresses and what to expect ASAP.  Holding any tapers may not be a bad idea.

Be Well!

Skeeter

Edited March 1, 2019 by Skeeter
added info

[jonnypeters1234567]

I am still suffering terribly with

 

daily dp/dr

burning skin internally, esopahgus, lungs, stomach, eyes and externally

nerve pain

akathisia

insomnia

depression

anxiety

throbbing head pressure at times, feels like brain inflamed

fevers come and go

 

 

 

[jonnypeters1234567]

Apologies for not updated sooner but I picks diagnosis was a mistake.

 

Does anyone have a bizarre sympton of withdrawal that sense of time doesn't exist.

its like 2 years ago was last week.

 

it seems my brain has no sense of the present, and can only live off past memories.

[ChessieCat]

dyschronometria-distorted-time-perception

 

[jonnypeters1234567]

18 minutes ago, ChessieCat said:

dyschronometria-distorted-time-perception

 

Thanks Chessie

[Skeeter]

JP,

I am so pleased to learn that Pick/Pick's disease was a mistake, as it is a terminal illness.  I was very worried, so I appreciate you coming back to respond. I hope they did not leave you hanging too long with that diagnosis, it is a very scary one!

 

Acting abnormally (behaviorally) as you have described in the past may not be exactly what everyone else has gone through, but it does not mean that it is abnormal for WD. Changes in mood or personality are not exactly abnormal after stopping an AD CT, even over a year out from stopping. I could only watch shows meant for children (Disney shows, Nickelodeon, Hulu and Netflix kids shows, but no cartoons) for the longest time (now I cannot stand them)- this is also normal, these shows were all my poor brain could handle, but I got past this, took a couple of years, though- everyone's timeline is different. Stopping CT really unbalances our systems.  Sounds like you went through the whole diagnostic process, looking for anything out of the ordinary sometime after you stopped your AD. My guess is that they did not find anything?  While in WD, it is a normal finding that nothing major is wrong with you, but luckily it does rule out more serious issues, leaving WD as the culprit in most cases. The widespread burning sensation you have was also something I struggled with, and see quite often.

 

Looking through your recent s/sx, the only one I have a question about (though not unheard of) is the fevers that come and go.  How often do they happen, how high do they go in degrees, and how long do they last?  Chances are this is normal for your WD, but figured I would ask.  Were you having this issue when talking with the doctors and having so many tests?  I still struggle with going hot to cold for no reason at all myself, one of my few remaining mild issues, but no fever for me anymore.  I have an unusually low body temp normally, so even going up 2 degrees was for me a low grade fever, though no doctor would call it such.

 

Sadly after stopping AD's, esp CT, our body and mind seems to go quite far out of whack for a while, the various issues can last a long while, and your best bet is to be kind to your body, gentle exercise (such as walking) as tolerated, and keeping stress down is a must. Maybe try meditation if anxiety is really bowling you over.  Over time you may be able to gently increase exercise intensity very slowly, but pay close attention to how you feel, as overdoing things can cause quite a setback. 

 

Caffeine can make us feel quite unwell and even keep us up at night.  Do you drink coffee or soda's every day?  If so, you may want to consider to slowly switch to decaf.  Stopping helped me with tremors and anxiety, despite the fact that I did not even drink much, one soda a day, but it did make a difference.  Ditto for loads of sugar in my diet, and in my specific circumstance, I was unable to have ANY artificial sweetener, but slowly as I healed, I was able to start that again, but I do not ingest much, it honestly is not that great for a person.

Nice to chat with you!  You may have known most of this, but I hope something was helpful to you.

Skeeter

[jonnypeters1234567]

everyday I wake up with my anxiety sky high, vibrating tinnitus, temperature rising and rising and hits a peak then does it another 3 times in the day. Does is sound like withdrawal??

[Gridley]

 

3 hours ago, jonnypeters1234567 said:

everyday I wake up with my anxiety sky high, vibrating tinnitus, temperature rising and rising and hits a peak then does it another 3 times in the day. Does is sound like withdrawal??

 

Waking with anxiety, tinnitus and body temperature dysregulation are common withdrawal symptoms.

Body temperature dysregulation: fever, chills, shivering, too hot, too ...

Waking with panic or anxiety - managing the morning cortisol spike ...

[jonnypeters1234567]

What is the sympton that you feel like you are going to .commit suicide? And feels like it's almost a certainty? But you don't want to but feels like you can't control your body

[direstraits]

suicidal ideation

[jonnypeters1234567]

23 minutes ago, direstraits said:

suicidal ideation

Not akathisia?

[direstraits]

could be,hopefully a mod. will reply.🙂

[RandyJames]

Hey jonny,

 

I stopped by to see how you were doing but I read your recent posts.  I'm sorry to hear you are really going through the ringer.

 

I'm not nearly as bad off as you at the moment but I can tell you from when I quit the Cymbalta CT that everything you have is from WD.  Endless piles of the most bizarre mental and physical problems.  I'm 99% positive it' not your health.  It's just so intense and all encompassing it's the scariest most uncomfortable thing ever with absolutely no way to relieve it.  I had a lot of weird feelings in my head.  Brain zaps when moving the eyes, my brain literally felt like cotton, huge electric feeling jolts in the back of my head when trying to sleep, humming nerve feeling all through my body,  could never stop clenching my stomach muscles and rocking myself in some way.  I had chills and cold intolerance and when I tried to get warm I would overheat and sweat.  Endless anxiety and deep deep depression and yes, I thought about suicide often.   It's a natural reaction to the intense suffering and fear of remaining that way.  

 

If you haven't read it already, though you most likely have, try reading pugs success story.   They had quit CT after like 20 years of SSRI's and did recover.  It took time and faith but it happened.  

 

 

You can make it.  At times like this it's hard to be positive but just endure.  You will last this out.  

[Skeeter]

JP,

Yes, this can all be related to WD.  In my signature there is a link to my thread.  I had over 50 signs and symptoms while going through benzo WD.  And yes, benzo WD can have the same symptoms of AD WD.  Sounds like you went through the ringer doing tone of medical tests, as no one would diagnose themselves with Pick's, that would not be smart.  You can go the way of many before you, explain to your GP all of your symptoms, or you can accept this is WD, and it will get better slowly.  Sadly, there is no magic pill. I am not suggesting not to see your doctor for tests at all,  you should if you think something is truly wrong that you have not been tested for.

 

If you notice your anxiety is very high all of the time, and none of the links on handling anxiety have helped you, maybe a psychotherapist, NOT A PSYCHIATRIST, can help. If our links are not helping you, then the other way to learn what we teach you to do for yourself is one on one with a therapist.  As an online forum, there is only so much we can do. Make sure to find a therapist who is knowledgeable about WD.

 

I doubt you can find or name a symptom that someone has not had here at SA, so I am going to give you a project.  Before asking again about any sign or symptom,  give your brain something to do, search and read on SA before you post about another sign or symptom. Try the search bar first, if no results, go to any serach engine, type 'Surviving Antidepressants' and signs or symptoms, only one at a time.  Only if you cannot find the symptom, then ask, letting us know you already looked it up.

 

Right now time is the only help for any of us, asking us if something is normal is something you can do for yourself.  After quitting CT, or cutting a dose in a big way, our time spent worrying is not good for any of us. It tends to make WD worse and more difficult.  Rosetta wrote a beautiful post about anxiety above, please reread it!  WD is the most difficult thing many of us will ever go through.  Benzo WD was honestly  the worst thing I thought I had ever gone through while in it, but beyond that fog of WD, I realized I have been through worse things, but at the time I thought it would not end.  It was scary, so you know what I did?  I went to others threads and offered kind words to those who were also suffering like I was, rather than focus totally on me. I asked them if anything made things better for them, and got some helpful tips for myself.  When you go to others threads, it is about them, not you.  It helped me to know that we all come here and all go through the same thing.  Be a friend.  Telling someone that you are sorry they are having a bad day can help them so much.  Look at all the people visiting your thread, have you yet gone to their threads to read & learn about them? If not, that is not so good, you should- this is a community, not just about you, go to threads even if only to thank them for visiting your thread, and ask if they are okay for good measure.  To help yourself, help others.  Get your mind off your symptoms for short periods.  If you cannot do this task, a therapist truly may be better equipped to help you.  Severe anxiety is not something I can help you with, that is something you have to help yourself learn to do, if not, a professional might. We mods are volunteers only, no pay.  Please ask questions you cannot find answers to.

 

I noticed you never answered my question on fevers.  Feeling hot is not a fever.  A fever means you have used a thermometer.  I assume you are doing the hot/cold thing I did for well over a year or just hot with sweating with no warning that leaves you a sweaty mess.  Rarely did I run a true fever, but if I did, it rarely lasted more than a couple of hours when it did, it was just my system going wonky.

 

See how this works for you, see how it feels to help others, get your mind off yourself. Let us know how it goes after a couple of weeks.  Remember, look up any signs and symptoms before asking mods, I want to get your mind and fingers working, thinking of other things than yourself.  Also, visit others threads to talk about THEM, start with the people who stepped in here, regular members who, out of the kindness of their hearts, helped you.  Repay that.

Be Well!

Skeeter

 

[jonnypeters1234567]

Thanks randy and skeeter

[Rosetta]

HI Jonny,

 

I'm sorry you are feeling that desperate feeling.  I have been through it many times.  It does get less intense over time.  Once in a while it seems to come back full force and only after it is gone do we realize that it wasn't full force -- there was less intensity.  When this has happened a few times we start to realize that there will be an end to this syndrome.  Just knowing that helps a lot.

 

Please know that I understand how desperate you are to be told something that will help you.  At some point I realized that I was coming to SA to be cured.  It was the only thing I had.  I thought, deep in my subconscious, that I could find a magic answer here and that some one would come to my thread one day and make it all better.  Time is all that made it better and Epsom salt baths made that time pass with less misery.  Even the time between morning and evening can make a big difference sometimes.

 

 I often avoid posting in the mornings because that is when I feel my worst.  My state of mind is much more desperate and my posts are more desperate.  The same goes for reading threads.  Reading the threads can often ramp up anxiety.  It can be a good idea to distract, go for a walk or watch a show or read a silly kid's book -- nothing scary -- and wait until the morning anxiety is gone before posting or reading threads.  

 

Are far as posting on threads, I sometimes avoid reading about the person's bad days and simply say hello or I'm thinking about you.  When I feel able to read the thread, I do, but it can increase anxiety.  So do not feel that you must read deeply In order to post a kind word.  Kind words always help even if they do not address the particular issue or indicate any true understanding of the current situation.  We have to protect ourselves sometimes as we are all peers struggling through this together.  For instance, I wanted to answer you the other day, but I just couldn't.  

 

If you are feeling something that you think might be Akathisia please know it does go away.  Please don't worry about whether it is Akathisia or not.  I have learned that it doesn't matter what it's called.  I used to worry about whether is was or wasn't Akathisia and whether it would go away.  It will.  There are many different definitions for Akathisia and there are many different intensities.  There might be a continuum from anxiety to Akathisia.  It does not matter.  The problem is that our language does not have words for that feeling that are universally recognized as describing Akathisia.  Each person would describe it differently.  "Intense anxiety" is the best we can do, usually, but that does not really describe it.  Some intensities create the absolutely most desperate feeling and others do not.  However, for me, the mere indication that I'm getting Akathisia causes me to panic.  I have to remind myself that it does not get super intense every time.  I have read the thread on Akathisia here and it did not help me to cope with it because distraction from it is the only thing that helps.  I have to distract!  Having a hot bath helps or a hot shower.  Showers are probably better at relieving the feeling.  Sometimes I have a hot Epsom salt bath and then I get in the shower afterward.

 

I'm so sorry you are suffering through this.  I'm also very glad you found SA.  Many people never know what is wrong with them and their doctors do not tell them that they will heal because the doctors do not know.  It's really awful to sit in front of a "psychiatrist" and be told that whatever mental condition one is feeling is a permanent worsening of the original condition.  That happened to me after I quit Zoloft.  He couldn't have been more than 30.  He had years and years of medical training, but zero understanding of his profession, real practical medicine or psychiatry.  He did not recognize a physical condition -- dysautonomia -- as I sat in front of him.  He didn't ask the right questions.  He didn't even know what to ask.  He prescribed me Trazodone, and, of course, my condition only got worse.  He was so very, very wrong.  I am sooooo much better now, my personality is back much of the time, and I have learned to cope with Akathisia.  Simply knowing what it is, not letting the doctor tell me my feelings are not real, and knowing that it will go away helps me a lot.  I hope it helps you, too.  

 

Your physical and emotional are connected to a physical disorder.  It is not all in your head.  It is a physical disorder that your body and brain are capable of healing.  I find it absolutely miraculous that this is the case, but it's true, and I know because I am living it right now.  This is temporary, Johnny.  Temporary.  You can make it through.

 

All my best, Rosetta

[jozeff]

How are you doing now Jonny? 

 

Cheers

Jozeff

 

[jonnypeters1234567]

I think this is all chronic Imflammation. The burning and all head symptons.

 

How do people try to reduce this?

[Altostrata]

Paresthesia: Pins & Needles, Numbness, Tingling, Burning Sensations aka Neuropathy

 

A lot of people find fish oil and magnesium supplements helpful, see
https://survivingantidepressants.org/index.php?/topic/36-king-of-supplements-omega-3-fatty-acids-fish-oil/
https://survivingantidepressants.org/topic/15483-magnesium-natures-calcium-channel-blocker/

 

Try a little bit of one at a time to see how it affects you.

 

[RandyJames]

3 hours ago, jonnypeters1234567 said:

I think this is all chronic Imflammation. The burning and all head symptons.

 

How do people try to reduce this?

Hey jonny,

 

I would bet the burning and head symptoms are all just from the pills causing a super sensitive nervous system.  I think that not only does it make one more sensitive to things like noise, emotion and physical pain, but that it also causes a lot of deep muscle and tendon tightness and these things are felt way more intensely.  I had so much pain and nerve sensations in my 2 year WD.  The worst was the pain in my scalp.  It always hurt but when I raised my eyebrows it felt like burning waves washing over my head.  I had a lot of face pain as well especially around the eyes and off to the sides of my nose to cheeks.  Jaw pain too.   I also thought it was from inflammation and that I had an infection somewhere but it wasn't.  The uncomfortable things the drugs can cause are incredible.  

 

I had no luck with any actions I took to reduce the pain.  BUT, the pains were some of the symptoms that actually did improve and go away over those two years.  Hang in there and they will slowly ease away.  

 

If you do have inflammation though some things that are supposed to help.....

 

Tart cherries

Curcumin (double check with a moderator to see if this can worsen WD symptoms)

Ginger

Pineapple

Fish oil

 

You'll get through it.  

[jonnypeters1234567]

 

I sometimes wake up at night and it feels like my brain has a seizure type thing. 

It feels like when you are gasping for breath and your lungs and heart feels tight but in my brain, can feel my brain move. 

It's not panic as feels different.

 

Can feel my brain cramp up, then takes a minute or two to pass. Anyonelse had this, can anyone relate,  and what is it?