India Posted July 16, 2019 Share Posted July 16, 2019 On 4/5/2011 at 9:29 PM, stan said: Normally there is a stabilite in these two systems example : heartbeat not too accelerate and not too slow ; as antidepressants fire receptors of nerves, it is going too slow or too fast heartbeat i have as all people dysautonomia : many systems, organs do not function correctly @intothewoods 1999: Paroxetine (20mg). Age 16. 2007-2008: Fluoxetine (Prozac) for 1.5 years (age 25) Citalopram 20mg 2002-2005, 2009: Escitalopram (20mg), 2 weeks, (age 26) (adverse manic reaction)/*Valium 5mg/Temazepam 10mg 2010: Mirtazipine (Remeron)( do not remember dosage) 2010, 5 months. 2010-2017: Citalopram (20mg) (age 27 to 34) 2016: i.1st Sept- 31st Oct Citalopram 10mg , ii.1st November 2017-30th November 2017, Citalopram 5mg iii.1st December 2017- 4th February 2018, Citalopram 0mg, iv.5th February 2018- March 2018 Citalopram 5mg (10mg every other day) 28th February- tried titration of 5mg ( some adverse effects) 2018: 1st March 2018- 1st June Citalopram 10 mg (tablet form) /started titration 8mg , then 7 mg.2018: June 15th- 10th July Citalopram 10 mg pill every other day 2018: 10th July - 13th Sept Citalopram- 0mg (CBD oil first month of 0mg, passiflora on and off) 2018 13th Sept Citalopram 2mg , approx 16th Sept 4mg , approx 25th Sept 6mg held. 2019: 11 Feb 19: 7mg (instant bad rxn) 12 Feb 19 6mg held 1 May 19 5.4mg held 5 Oct 19 5.36mg 22 Oct 19 5.29mg 30 Oct 19 5.23mg 4/NOV/19 5.18mg 12 Nov 19 5.08mg 20 Nov 19 4.77mg 7 May 22 2.31mg (Herbal/Supplements since 1st September: Omega Fish Oil 1200mg, 663mg of EPA- 2 tablets a day, magnesium and magnesium bath salts) I did not die, and yet I lost life’s breath - Dante Link to comment Share on other sites More sharing options...
India Posted July 16, 2019 Share Posted July 16, 2019 On 6/19/2014 at 8:06 AM, NoMeaning25 said: Anyone know if this will work? http://blog.synergyhealthconcepts.com/new-treatment-for-dysautonomia/ Alto, is this actually what we are dealing with?? http://www.dinet.org/index.php/information-resources/pots-place/pots-symptoms Is withdrawal just dysautonomia or is it a combination of things? Im just trying to figure out whats wrong with me so that i can at least show my mom what im dealing with and find a doctor willing to work with me. When I read dysautonomia I felt this sense of: thsts it, that’s exactly it. That’s what this withdrawal is. I’m sorry you are still suffering. I hope some healing is going on underneath all of this. May I ask your age? 1999: Paroxetine (20mg). Age 16. 2007-2008: Fluoxetine (Prozac) for 1.5 years (age 25) Citalopram 20mg 2002-2005, 2009: Escitalopram (20mg), 2 weeks, (age 26) (adverse manic reaction)/*Valium 5mg/Temazepam 10mg 2010: Mirtazipine (Remeron)( do not remember dosage) 2010, 5 months. 2010-2017: Citalopram (20mg) (age 27 to 34) 2016: i.1st Sept- 31st Oct Citalopram 10mg , ii.1st November 2017-30th November 2017, Citalopram 5mg iii.1st December 2017- 4th February 2018, Citalopram 0mg, iv.5th February 2018- March 2018 Citalopram 5mg (10mg every other day) 28th February- tried titration of 5mg ( some adverse effects) 2018: 1st March 2018- 1st June Citalopram 10 mg (tablet form) /started titration 8mg , then 7 mg.2018: June 15th- 10th July Citalopram 10 mg pill every other day 2018: 10th July - 13th Sept Citalopram- 0mg (CBD oil first month of 0mg, passiflora on and off) 2018 13th Sept Citalopram 2mg , approx 16th Sept 4mg , approx 25th Sept 6mg held. 2019: 11 Feb 19: 7mg (instant bad rxn) 12 Feb 19 6mg held 1 May 19 5.4mg held 5 Oct 19 5.36mg 22 Oct 19 5.29mg 30 Oct 19 5.23mg 4/NOV/19 5.18mg 12 Nov 19 5.08mg 20 Nov 19 4.77mg 7 May 22 2.31mg (Herbal/Supplements since 1st September: Omega Fish Oil 1200mg, 663mg of EPA- 2 tablets a day, magnesium and magnesium bath salts) I did not die, and yet I lost life’s breath - Dante Link to comment Share on other sites More sharing options...
drugged Posted August 18, 2019 Share Posted August 18, 2019 "Acquired dysautonomia: As the article describes, people may develop autonomic symptoms after infections or exposure to toxins, and these are diagnosed as chronic fatigue syndrome, fibromyalgia, etc. Recovery is slow and can take years." I've often wondered if my "fibromyalgia" is the result of exposure to toxins. It could very well be given my long exposure to toxic prescription drugs. 1994 Venlafaxine XR 300mg, 2003 tapered, 2004 off briefly back to 37.5 then 75mg, held, June 2019 up to 150mg, Aug.12 tapered down to 112.5mgs, Oct. 21, 2019 96mg; Dec. 8, 2019 90mg, Jan. 8 2020 81mg, Feb. 4, 75mg; 2003/2004? Diazepam 10mg/bedtime 2013 Lyrica 300mg to 25mg; April 6, 2020 17mg; April 28, <5mg; May 7, 2020 Lyrica 0 mg! 2013 Tramadol 50mg tablets, 200mg/day divided 2005? Trazodone 50mg bedtime, Feb. 12, 2020 40mg, March 7, 25mg; Oct 1 20mg 2009? Zolpidem 5mg at bedtime. Nov. 9, 2019 Zolpidem 0 mg! 1990? Omeprazole 20mg in morning. 2010? Levothyroxine 75mcg morning 2011? Liothyronine 5mcg morning 1999? Buspirone 30mg twice a day August 2019 15mg once a day, Oct.21, 2019 2.5mg evening Oct. 25, 2019 Buspirone 0 mg! Link to comment Share on other sites More sharing options...
NoMeaning25 Posted September 23, 2019 Share Posted September 23, 2019 On 7/17/2019 at 12:49 AM, India said: When I read dysautonomia I felt this sense of: thsts it, that’s exactly it. That’s what this withdrawal is. I’m sorry you are still suffering. I hope some healing is going on underneath all of this. May I ask your age? I am now 30 years old. Sadly, im much worse now than I was in 2014. But yeah. Thats why i dont even bother posting. There a lots of us actually. We keep in touch. Was on Citalopram 20mg since Feb 2008 - switched to Paxil 20mg in August 2010 Tapered way too fast in April 2012 by skipping days. Taper completed in 6 weeks Tried prozac 20mg for 3 days - felt spaced out, not better. Tried 30mg Cymbalta for 2 days. SEVERE ADVERSE REACTION Antidepressant free since 14 August 2012 Birth control on and off during this time - Last taken 18 June 2017 - Morning after pill Started mainly using 0.5mg Xanax beginning 2016 for severe panic attacks and anxiety due to trauma Xanax on and off never more than 0.5mg at a time, never taking it 3 days in a row - used sparingly 6 Years antidepressant free - Still in severe withdrawal with over 60 symptoms Severe setback started May 2018 with no let up to date. Developed many new symptoms like tremors, inner vibrations, insomnia, visual distortions and dr/dp are 100x worse, i have severe sensitivity to movement, My dizziness and vertigo got worse and it now feels like im constantly rocking on a boat, my anxiety is sky high, suicidal idiation is back, i feel extremely brain damaged Link to comment Share on other sites More sharing options...
Gussy Posted June 1, 2020 Share Posted June 1, 2020 Hi. My i came off effexor pretty quickly in 2017. I must say i.m doing a LOT better than then. Alto even decided i.m in recovery mode now, i sure think i am. Might anyone know if after coming off far too quickly it may.ve caused my n.s to not be able to properly control my blood pressure? I notice it when i get up from sitting or from bending over at times. You know, the dizziness? Sometimes it.s strong, others not so strong and sometimes not at all. This only started after I came off Effexor. Another thing, i did have those awful muscle feelings that i imagine almost everyone has. I really think i still have them to less a degree in my right butt muscle and hamstrings. Does this sound possible? Any wisdom would be greatly appreciated and please don.t be in a super rush to reply as i know there will be many here in more need of help than me. Gus. Gussy On effexor for at least 11 years. Last few years going through ivf treatment dose has ranged from 150-200mg. Mainly 150 though. Tapered from about 175mg mid jan 2017 to zero mid april 2017. 2&1/2 months of straight hell. Getting there now though. Link to comment Share on other sites More sharing options...
Moderator Emeritus ChessieCat Posted June 10, 2020 Moderator Emeritus Share Posted June 10, 2020 When my Pristiq dose was increased from 50mg to 100mg my diastolic blood pressure increased. I wore a halti monitor for 24 hours. The doctor did not make the connection between the increase in my AD dose. He just increased my BP medication. Desvenlafaxine (Pristiq) is a synthetic form of the isolated major active metabolite of venlafaxine (Effexor). It may be that your BP reduced after you stopped the Effexor and it may be the lower BP causing the dizziness. I had tight legs muscles when taking Pristiq. When walking I had difficulty lifting my foot high enough to step from the road up the kerb, which is only about 5 or 6 inches high. As my dose got lower the tightness lessened and now I only get it occasionally. Please DO NOT TAG me - thank you PLEASE NOTE: I am not a medical professional. I provide information and make suggestions. MISSION ACCOMPLISHED: (6 year taper) 0mg Pristiq on 13th November 2021 ADs since ~1992: 25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq: 50mg 2012, 100mg beg 2013 (Serotonin Toxicity) Tapering from Oct 2015 - 13 Nov 2021 LAST DOSE 0.0025mg Post 0 updates start here My tapering program My Intro (goes to tapering graph) VIDEO: Antidepressant Withdrawal Syndrome and its Management Link to comment Share on other sites More sharing options...
Administrator Altostrata Posted June 10, 2020 Administrator Share Posted June 10, 2020 Merged similar topics. That sounds like Postural orthostatic tachycardia syndrome (POTS): Quote Postural orthostatic tachycardia syndrome (POTS) is a condition that affects circulation (blood flow). POTS is a form of orthostatic intolerance, the development of symptoms that come on when standing up from a reclining position, and that may be relieved by sitting or lying back down. The primary symptom of an orthostatic intolerance is lightheadedness, fainting and an uncomfortable, rapid increase in heartbeat. Or orthostatic intolerance: Quote Orthostatic intolerance (OI) is the development of symptoms when standing upright which are relieved when reclining.[1] There are many types of orthostatic intolerance. OI can be a subcategory of dysautonomia, a disorder of the autonomic nervous system[2] occurring when an individual stands up.[3] There is a substantial overlap between syndromes of orthostatic intolerance on the one hand, and either chronic fatigue syndrome (CFS) or fibromyalgia (FM) on the other.[4] It affects more women than men (female-to-male ratio is at least 4:1), usually under the age of 35.[5] Orthostatic intolerance occurs in humans because standing upright is a fundamental stressor and requires rapid and effective circulatory and neurologic compensations to maintain blood pressure, cerebral blood flow, and consciousness. When a human stands, approximately 750 mL of thoracic blood is abruptly translocated downward. People who suffer from OI lack the basic mechanisms to compensate for this deficit.[1] Changes in heart rate, blood pressure, and cerebral blood flow that produce OI may be caused by abnormalities in the interactions between blood volume control, the cardiovascular system, the nervous system and circulation control system.[6] Many people get this as a symptom of psychiatric drug withdrawal. It tends to go away with time. Regular gentle exercise, such as at least 30 minutes of walking each day, can help. If you do a lot of sitting, you might also need to do leg stretching exercises each day to relieve muscle tension. This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. "It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein All postings © copyrighted. Link to comment Share on other sites More sharing options...
NoMoreLexapro Posted July 10, 2020 Share Posted July 10, 2020 I had elevated thyroid antibody levels (very high) 8-10 yrs ago. I took some medications and they went down, at times to normal levels. I haven't taken any thyroid medication for at least 2-3 yrs. In the fall I had two vertigo attacks out of the blue. Was dizzy in the morning for a few days and then I was fine. The 2nd week, however, I had an out of the blue panic attack (first one ever). I was diagnosed w/GAD, even though I never had had anxiety before, and 3 days later I was put on lexapro. I was dizzy every day I was on lexapro. I've been off for 17 wks. I still am dizzy, but within the last 4 wks the disorientation/dizziness/DR has gotten worse and my PCP and I noticed that my pulse goes way up when I am standing compared to lying down (or sitting). We are working on trying to get tests for POTS. I talked to a chiropractic neurologist (didn't know they exist) and he said that, for $7000 he could treat me, that he doesn't think this is WD, and that there is a strong correlation between thyroid issues and POTS. There's no question lexapro greatly exacerbated my dizziness, but has anyone ever thought they were in WD but they actually had POTS/thyroid issues and were brought back to normal with some kind of treatment for those conditions? Was on Lexapro for 66 days starting in early January. 5mg for a week, 10mg for 3, 7.5 for 3 days, then 5mg and 2.5mg for approx two weeks after. Was on Lithium for 60 days starting in late January. 1 300mg ER pill a day. Stopped CT Was given a .5 ativan script in early Jan. Took it maybe 20x total from early Jan to beg of June, 2020. -Fall of 2019: had two vertigo attacks for the first time with no warning, each followed by 4-5 days of morning dizziness. -Last Friday of 2019: had first ever, out of the blue, panic attack. Went to ER- didn't know what was happening. Was diagnosed w/GAD, even though had never had anxiety or depression problems before. Basically no health problems at all prior to this, and in very good shape emotionally, physically, and mentally. -4 days after panic attack given lexapro. That's when the hell began. Was on it 66 days. Reacted badly to it. Gave me suicidal ideation 4 wks after starting it, plus exhaustion, off the charts anxiety, dizziness, and fatigue. Did a fast taper over 5 wks. Was on it 66 days total. -been off lexapro completely since mid-March, 2020. First 3 weeks I got better and better. Then, week 4 into WD got slammed. Since then, over 64 side effects/symptoms. Can't drive. At times, barely surviving. -since Jan., have been to the e r 16x. -was given lithium after experienced SI from lexapro to as a "mood stabilizer". Never really noticed anything from it, nor anything after stopping it, except for a few days of heightened depression about a week after. -was given low dosage ativan script 2nd week into lexapro to deal with the anxiety/panic spike caused by the lexapro. Took it perhaps 20x between Jan and June, 2020. Always made me feel better, but last time it was taken (early June) experienced intrusive thoughts after so stopped it. Didn't feel any negative reaction from stopping it, perhaps b/c it was taken so infrequently and the dosage was so low. Link to comment Share on other sites More sharing options...
tsranga Posted August 29, 2020 Share Posted August 29, 2020 Anyone on this thread or otherwise have a recurrence of POTS like symptoms in withdrawal and when did it finally resolve? I had this dizziness when standing up and fluctuating heart rate (30 bps from 60 to 90 and back) early in withdrawal, which resolved with electrolytes and salt augmentation last year. It has reappeared this summer, 15 months since C/T of mirtazapine. I am now 19 months off. Just a couple of other data points - I had vasovagal syncope in adolescence, but have never fainted since then except once 15 years ago when due to severe dehydration. I also developed IBS & reflux oesophagitis about 30+ years ago when I also started smoking. My IBS flared-up after I quit smoking in 2017, for which I was prescribed mirtazapine. I have been off mirtazaline since 2019. Is it possible that my underlying symptoms are primarily due to iatrogenic withdrawal & should eventually resolve? Or could this be a progressive deterioration in my autonomic dysfunction that nicotine (which mimics acetylcholine) kept in abeyance? Overall, I am probably at 60-70% of my pre-mirtazapine function. My mental health is definitely better and the gut is also stabilizing thanks to a very restrictive low-FODMAP, low-fibre diet. So food intolerance disrupting the gut and sleep at night, and POTS symptoms during the day are the two main symptoms that remain. I have also not been able to gain any weight ( I am about 20-25lbs off my normal weight). I was better in winter on both counts, which is why I am perplexed at the recurrence in summer. Chronic IBS since 1990 Former smoker (1992- Jun 2017) Prescribed mirtazapine for sleep in Aug 2017 after IBS flare-up following Nicotine cessation. Mirtazapine 7.5mg 8/17 to 5/18 Mirtazapine 3.75mg 5/18 to 1/19 Off Mirtazapine since 2/19. Vit B, Vit D+K2 and Magnesium Glycinate as needed. On Ayurvedic herbs for GI issues - Guduchi since Jul 2020, Indukantham since Oct 2020 On Ashwagandha 1g since Nov 2020 Link to comment Share on other sites More sharing options...
Gussy Posted September 10, 2020 Share Posted September 10, 2020 Hi, I just have a quick question if that's ok. I've been sweating a reasonable amount a few nights from my lower legs and sometimes from my groin down to my feet lately and wonder if this could be caused by dysautonomia? I.d sweat like crazy at night time in the worst of it . Or could it due to some other lingering post taper craziness? Also, i couldn.t find a topic to post my next question in so sorry if this is the wrong place. My lower leg bones felt like they were twisting in the worst of it, does anyone know what causes that? There aren.t many posts here about twisting bones, maybe it's uncommon? Any ideas? Gussy On effexor for at least 11 years. Last few years going through ivf treatment dose has ranged from 150-200mg. Mainly 150 though. Tapered from about 175mg mid jan 2017 to zero mid april 2017. 2&1/2 months of straight hell. Getting there now though. Link to comment Share on other sites More sharing options...
Sleepless Posted November 27, 2020 Share Posted November 27, 2020 Has anyone developed pots after stopping an SSRI and healed? If so, how long did it take you? No horror stories please... Paxil 2001- 2016. Came off of it on a slow taper. After 9-12 months, I was put back on Paxil because I was unable to function. Paxil reinstatement triggered a rash. I was then placed on 20 mg of Cymbalta on 2018. I chose to take 10 mg. I then had to be taken off of Cymbalta due to it causing cardiac issues in 2019. I was placed on Seroquel and it caused a rash. I was then moved to 12.5 mg of sertraline where I did a fast taper which ended April/May of 2020. I had to fast taper because of joint pain and joint redness. August 2020, I was considered presumptive positive. Since then, I’ve been prescribed Atenolol and Diazepam for withdrawal symptoms of tachycardia and massive anxiety. I take these very sporadically and less than 1/4 of a tablet at a time. I was given metformin in September 2020 for diabetes and it triggered massive anxiety after 1/4 of a pill. I attempted to reinstate 1 mg of sertraline on 9/20/20. I am supposed to be taking B12 injections and prescribed vitamin D. I will stop these for now. On 9/29/20 I was moved from 75 mcg generic levothyroxine to 88 mcg Synthroid. This triggered anxiety approximately 2.5 hours later. 10/5/20 less than 1/8 teaspoon of Benadryl 10/7/20 & 10/8/20 .10ml Benadryl (stopped 10/2020) 10/9/20 3mg Atenolol (stopped 11/2020) 10/16/20 started taking magnesium citrate during the day (stopped 10/2020 due to it triggering more anxiety) 11/9/20 grain of diazepam @ 2:30 am for muscle spasm pain (stopped 11/2020) 11/10/20 .50mg of metoprolol tartrate (stopped 11/10/20 due to nausea, weakness in arms & legs, anxiety) 11/11/20 using lidocaine patch on neck and chest for pain due to muscle spasms 1/1/21 1 drop of liquid b12 (stopped 1/4/21) Link to comment Share on other sites More sharing options...
Moderator manymoretodays Posted November 28, 2020 Moderator Share Posted November 28, 2020 Hi Sleepless, I think that many have recovered from POTS here, including our fearless founder, Altostrata. One way to see, might be to put some of the post-er's here in the searchbox feature at the top right of the screen. Just put in their used name, and when a list comes up of posts, look for their Introduction topics. Then you could even ask, if they have not posted for awhile, or you might see some resolution mentioned. I'm seeing a lot of posts, on this topic, at least on this page, without any response, or further discussion. Are you familiar with the Success Stories forum? That might be another place to look, and read members accounts of their healing. I notice that you have had a lot of medication changes and then some brief trials of things too, since last August. Your nervous system might be craving some stability a lot, right now.......and consistency. Maybe that will help, more than anything else. Oh, I hope so. Best, L, P, H, and G, mmt 2022 May- continuing with limited activity on site, just something I need to do right now Started with psycho meds/psychiatric care circa 1988. In retrospect, and on contemplation, situational overwhelm. Rounding up to 30 years of medications(30 medication trials, poly-pharmacy maximum was 3 at one time). 5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014) 12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs. My last psycho med ever! Tapered @ 10% every 4 weeks, sometimes 2 weeks to 2016 Dec 16, medication free!! Longer signature post here, with current supplements. Herb and alcohol free since 5/15/2016. And.....I quit smoking 11/2021. Lapsed. Redo of quit smoking 9/28/2022. Can you say Hallelujah?(took me long enough)💜 None of my posts are intended as medical advice. Please discuss any decisions about your medical care with a knowledgeable medical provider. My success story: Blue skies ahead, clear sailing Link to comment Share on other sites More sharing options...
AdviceNeeded Posted November 30, 2020 Share Posted November 30, 2020 In the instance of possible drug induced dysautonomia (such as increased heart rate and blood pressure, altered sweat response, sleep difficulties, etc), could a programme of moderate exercise help sway the body towards regaining homeostasis? Sort of remind it what it should be doing? It’s just a thought, I wondered what people with a deeper understanding and more experience would think? 25/8/2020 - 15/9/2020 - 15mg mirtazapine 16/9/2020 - 30mg mirtazapine 17/9/2020 - 22/9/2020 - 7.5 mg mirtazapine 23/9/2020 - 6/10/2020 - 3.75mg mirtazapine 7/10/2020 - 15/10/2020 - 7.5 mg mirtazapine 16/10/2020 - 20/10/2020 - 15 mg mirtazapine 21/10/2020 - 22/10/2020 - 7.5 mg mirtazapine 23/10/202 - 26/11/2020 - 15 mg mirtazapine 27/11/2020 - 10/12/2020 -13.5 mg mirtazapine 11/12/2020 - 17/12/2020 - 12 mg mirtazapine 18/12/2020 - 26/12/2020 - 11.75 mg mirtazapine Link to comment Share on other sites More sharing options...
tsranga Posted December 11, 2020 Share Posted December 11, 2020 On 11/27/2020 at 2:31 PM, Sleepless said: Has anyone developed pots after stopping an SSRI and healed? If so, how long did it take you? No horror stories please... I had the same question.. been dealing with many of the symptoms indicative of POTS/dysautonomia and its now close to 2 years.. Chronic IBS since 1990 Former smoker (1992- Jun 2017) Prescribed mirtazapine for sleep in Aug 2017 after IBS flare-up following Nicotine cessation. Mirtazapine 7.5mg 8/17 to 5/18 Mirtazapine 3.75mg 5/18 to 1/19 Off Mirtazapine since 2/19. Vit B, Vit D+K2 and Magnesium Glycinate as needed. On Ayurvedic herbs for GI issues - Guduchi since Jul 2020, Indukantham since Oct 2020 On Ashwagandha 1g since Nov 2020 Link to comment Share on other sites More sharing options...
tsranga Posted December 11, 2020 Share Posted December 11, 2020 On 11/30/2020 at 9:19 AM, AdviceNeeded said: In the instance of possible drug induced dysautonomia (such as increased heart rate and blood pressure, altered sweat response, sleep difficulties, etc), could a programme of moderate exercise help sway the body towards regaining homeostasis? Sort of remind it what it should be doing? It’s just a thought, I wondered what people with a deeper understanding and more experience would think? I am doing exactly that.. I have found that the following regimen helps minimize the symptoms/flare-ups - 1. Start with the lowest intensity exercises.. you can do it lying down (like rowing/swimming, yoga etc). Then slowly build it up. You don't have to do heavy aerobic work,since the heart is already working hard just when standing 2. Hydrate - at least 48oz-64oz. with electrolytes. Make sure you get enough sodium. 3. Take frequent 20-30 min breaks to lie down with feet up and belly breathe. This helps to send blood to the gut and digest food. Also do it after you have stood on your feet or exercises for more than a couple of hours. 4. If you have GI issues, also avoid any high FODMAP foods. Dairy and gluten as well. You maybe able to add it back in small portions one at a time, but try it for at least 8 weeks. Chronic IBS since 1990 Former smoker (1992- Jun 2017) Prescribed mirtazapine for sleep in Aug 2017 after IBS flare-up following Nicotine cessation. Mirtazapine 7.5mg 8/17 to 5/18 Mirtazapine 3.75mg 5/18 to 1/19 Off Mirtazapine since 2/19. Vit B, Vit D+K2 and Magnesium Glycinate as needed. On Ayurvedic herbs for GI issues - Guduchi since Jul 2020, Indukantham since Oct 2020 On Ashwagandha 1g since Nov 2020 Link to comment Share on other sites More sharing options...
tsranga Posted May 18, 2021 Share Posted May 18, 2021 On 11/30/2020 at 9:19 AM, AdviceNeeded said: In the instance of possible drug induced dysautonomia (such as increased heart rate and blood pressure, altered sweat response, sleep difficulties, etc), could a programme of moderate exercise help sway the body towards regaining homeostasis? Sort of remind it what it should be doing? It’s just a thought, I wondered what people with a deeper understanding and more experience would think? @Altostrataor others with experience, could you please chime in? I'm thinking of starting the chops protocol for POTS, but I am already exercising daily, but in a progressive program, and I wanted to get some advice. My HR and BP aren't too bad, but my main symptoms are when switching from supine to standing (sleep/wake, rest/digest) or vice versa. Chronic IBS since 1990 Former smoker (1992- Jun 2017) Prescribed mirtazapine for sleep in Aug 2017 after IBS flare-up following Nicotine cessation. Mirtazapine 7.5mg 8/17 to 5/18 Mirtazapine 3.75mg 5/18 to 1/19 Off Mirtazapine since 2/19. Vit B, Vit D+K2 and Magnesium Glycinate as needed. On Ayurvedic herbs for GI issues - Guduchi since Jul 2020, Indukantham since Oct 2020 On Ashwagandha 1g since Nov 2020 Link to comment Share on other sites More sharing options...
Administrator Altostrata Posted May 18, 2021 Administrator Share Posted May 18, 2021 What is CHOPS? Have you found it helpful? If yes, I'd continue it. This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. "It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein All postings © copyrighted. Link to comment Share on other sites More sharing options...
Eastcoastgirl Posted May 18, 2021 Share Posted May 18, 2021 Maybe my case of Dysautonomia is really bad (hypotension and POTS) but I don’t find an exercise program does anything for it. Avoiding deconditioning is important but for most people I think time is the only thing that can fully heal iatrogenic dysautonomia. The idea that people with POTS just need to exercise their way back to health has always been strange to me anyway because many people are quite active prior to diagnosis. 2009-2018: 15mg Celexa (SSRI) June 2018-January 2019: .5mg-1mg Ativan (Benzo) 2010-June 2021: Marvelon (Birth Control) September 2018-December 2021: Prozac (SSRI) Reinstated 1mg April 21st 2019 , up-dosed to .32ml June 19, 2019 & started taper in October 2019. Finished taper successfully December 31, 2021. Link to comment Share on other sites More sharing options...
Administrator Altostrata Posted May 18, 2021 Administrator Share Posted May 18, 2021 I think the recommendation of exercise for POTS has been criticized lately. It helps some people, hurts others. We recommend at least 1/2 hour a day of gentle exercise, such as walking, up to the amount you can tolerate. This helps keep circulation and regulation going. This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. "It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein All postings © copyrighted. Link to comment Share on other sites More sharing options...
tsranga Posted May 19, 2021 Share Posted May 19, 2021 1 hour ago, Altostrata said: I think the recommendation of exercise for POTS has been criticized lately. It helps some people, hurts others. We recommend at least 1/2 hour a day of gentle exercise, such as walking, up to the amount you can tolerate. This helps keep circulation and regulation going. Interesting. The reason for my question is that my current symptoms seem to really point to autonomic dysfunction and I feel that my body has gotten very sensitive to sudden temperature and humidity shifts, and that mainly impacts my gut, brain and extremities. I exercise regularly and have no issues while I am doing it. HR and BP are pretty stable. I have also started strength training for my core and legs which seems to have reduced the HR variation. But whenever I lie down to rest / sleep and get up after rest is when I have most of the symptoms. It appears to be related to circulation, and mostly connected to abdominal pressure. When blood flow is concentrated on the gut, my extremities get cold upper body gets warm, sinuses get stuffy, I have burping and flatulence all happening simultaneously, sometimes with BMs and calf pain. This happens most often when there is a drastic weather shift and my sleep is impacted. My mood and mental state (rapid and negative thoughts, fear, brain fog etc) are also affected. It takes a day or two to adapt and I am fine until the next shift. What helps most is belly breathing lying down, which seems to get the gut moving, especially after a meal, and this sometimes helps prevent a flare up at night. This also helps regulate my temperature and tolerate temperature fluctuations. I was reading about how a POTs exercise program can help, but given my gut centered manifestation of symptoms especially when supine, I wasn't sure if it would help. I have gone through 100s of research papers that connect vasomotor rhinitis, IBS, reflux, motility, hot/cold sensitivity to the vagus nerve and autonomic function. Mirtazapine appears to have some action on 5HT3 receptors, which are present in vagus nerve and affect GI function, and I suspect that my cold turkey withdrawal destabilized an already sensitive GI system along with a whole set of other symptoms that I didn't have before withdrawal. The stanford autonomic function specialist says I have some vagus nerve disorder, and wanted to perform more tests, but I decided to hold off in the hope that time would eventually bring stability in withdrawal. Do you have any thoughts or suggestions based on your experience with pots in withdrawal? Chronic IBS since 1990 Former smoker (1992- Jun 2017) Prescribed mirtazapine for sleep in Aug 2017 after IBS flare-up following Nicotine cessation. Mirtazapine 7.5mg 8/17 to 5/18 Mirtazapine 3.75mg 5/18 to 1/19 Off Mirtazapine since 2/19. Vit B, Vit D+K2 and Magnesium Glycinate as needed. On Ayurvedic herbs for GI issues - Guduchi since Jul 2020, Indukantham since Oct 2020 On Ashwagandha 1g since Nov 2020 Link to comment Share on other sites More sharing options...
Eastcoastgirl Posted May 19, 2021 Share Posted May 19, 2021 If there is no sustained heart rate of 30bpm or more upon standing you would not qualify for a POTS diagnosis. If you don’t have a significant and sustained drop in blood pressure upon standing (below 90/60) you would not qualify for a diagnosis of Orthostatic hypotension. In this case, Dysautonomia would be ruled out. It seems more like a gut related issue, possibly due to the vagus nerve as you mentioned. Gut related issues are common in withdrawal. 2009-2018: 15mg Celexa (SSRI) June 2018-January 2019: .5mg-1mg Ativan (Benzo) 2010-June 2021: Marvelon (Birth Control) September 2018-December 2021: Prozac (SSRI) Reinstated 1mg April 21st 2019 , up-dosed to .32ml June 19, 2019 & started taper in October 2019. Finished taper successfully December 31, 2021. Link to comment Share on other sites More sharing options...
tsranga Posted May 19, 2021 Share Posted May 19, 2021 3 hours ago, KMart95 said: Maybe my case of Dysautonomia is really bad (hypotension and POTS) but I don’t find an exercise program does anything for it. Avoiding deconditioning is important but for most people I think time is the only thing that can fully heal iatrogenic dysautonomia. The idea that people with POTS just need to exercise their way back to health has always been strange to me anyway because many people are quite active prior to diagnosis. How has your dysautonomia changed over time? Do you see improvement? In my case I definitely see that the body seems to be quicker to adapt, but given that weather shifts are a primary trigger, and we have almost daily fluctuations in the bay area, the body is constantly switching to adapt to a cold/hot spell. As long as it stays in a stable range, I am fine. If there is more than a 10 degree dip/spike in temperature, or if humidity dips below 30% or goes above 80%, my gut is the first to get hit. Chronic IBS since 1990 Former smoker (1992- Jun 2017) Prescribed mirtazapine for sleep in Aug 2017 after IBS flare-up following Nicotine cessation. Mirtazapine 7.5mg 8/17 to 5/18 Mirtazapine 3.75mg 5/18 to 1/19 Off Mirtazapine since 2/19. Vit B, Vit D+K2 and Magnesium Glycinate as needed. On Ayurvedic herbs for GI issues - Guduchi since Jul 2020, Indukantham since Oct 2020 On Ashwagandha 1g since Nov 2020 Link to comment Share on other sites More sharing options...
tsranga Posted May 19, 2021 Share Posted May 19, 2021 16 minutes ago, KMart95 said: If there is no sustained heart rate of 30bpm or more upon standing you would not qualify for a POTS diagnosis. If you don’t have a significant and sustained drop in blood pressure upon standing (below 90/60) you would not qualify for a diagnosis of Orthostatic hypotension. In this case, Dysautonomia would be ruled out. It seems more like a gut related issue, possibly due to the vagus nerve as you mentioned. Gut related issues are common in withdrawal. This is what I suspected.. thanks. Have you heard about the gut being so sensitive to drastic weather shifts in withdrawal? I was always sensitive to weather, but never had the temperature sensitivity, the disturbed sleep, the gut-brain impact and the postural manifestation. Chronic IBS since 1990 Former smoker (1992- Jun 2017) Prescribed mirtazapine for sleep in Aug 2017 after IBS flare-up following Nicotine cessation. Mirtazapine 7.5mg 8/17 to 5/18 Mirtazapine 3.75mg 5/18 to 1/19 Off Mirtazapine since 2/19. Vit B, Vit D+K2 and Magnesium Glycinate as needed. On Ayurvedic herbs for GI issues - Guduchi since Jul 2020, Indukantham since Oct 2020 On Ashwagandha 1g since Nov 2020 Link to comment Share on other sites More sharing options...
tsranga Posted July 28, 2021 Share Posted July 28, 2021 (edited) On 5/18/2021 at 8:19 PM, tsranga said: How has your dysautonomia changed over time? Do you see improvement? In my case I definitely see that the body seems to be quicker to adapt, but given that weather shifts are a primary trigger, and we have almost daily fluctuations in the bay area, the body is constantly switching to adapt to a cold/hot spell. As long as it stays in a stable range, I am fine. If there is more than a 10 degree dip/spike in temperature, or if humidity dips below 30% or goes above 80%, my gut is the first to get hit. @Eastcoastgirl Tagging you on this.. I had another week long spell of lightheadedness while standing, and then at night, it takes a couple of hours for the circulation to stabilize in the legs, head and gut.. I mostly get leg pain (from the calves) and hand pain (wrists mostly), sinus/head pressure, and a feeling of stuck GI activity.. As soon as I lie down, I can feel the GI function activate with gut noises.. I am now wondering if compression garments might help.. especially given that my HR and BP have been pretty stable, and I am very sensitive to fabric heat/cold. It almost feels like most of my symptoms occur when circulation in my core (abdomen) is blocked.. diapghrammatic breathing helps quite a bit, but I am trying to see if abdominal binders / compression Edited November 13, 2021 by Karma Updated name Chronic IBS since 1990 Former smoker (1992- Jun 2017) Prescribed mirtazapine for sleep in Aug 2017 after IBS flare-up following Nicotine cessation. Mirtazapine 7.5mg 8/17 to 5/18 Mirtazapine 3.75mg 5/18 to 1/19 Off Mirtazapine since 2/19. Vit B, Vit D+K2 and Magnesium Glycinate as needed. On Ayurvedic herbs for GI issues - Guduchi since Jul 2020, Indukantham since Oct 2020 On Ashwagandha 1g since Nov 2020 Link to comment Share on other sites More sharing options...
CoffeeTennis Posted February 28, 2022 Share Posted February 28, 2022 Hey everyone, I hope it's not poor form to post to an older thread. As I posted in my introduction thread the other day, I believe I'm experiencing dysautonomia after finishing a taper of Effexor 37.5. I actually tapered twice--I reinstated temporarily because the symptoms I experienced were so disruptive. I was a serious tennis player and runner, but within 36 hours of finishing my taper I could barely run a mile without feeling dizzy, getting tunnel vision, and feeling like I was going to black out. I could barely move on the tennis court and struggled just to swing a racquet. The other bad symptom was frequent urination waking me up in the early mornings. After 3 months, I reinstated and these issues went away quickly. I tapered off again and they came back: the exercise intolerance isn't as bad this time (but my body still just won't work hard when running), but the early-morning urination is still there. In addition, my overall sleep quality is poor. Lately, I've been sweating a lot in bed and even a moderate amount of alcohol (i.e., drinks with friends) just wrecks my sleep in ways that never happened before or during Effexor. Do these symptoms resonate with any of you? They definitely started immediately after my taper, so it can't be a coincidence. But they're also causing stress/anxiety, and it's easy to gaslight yourself and say they're all anxiety-related... 2011-2019 (approx). Effexor XR 75mg 2019-2021. Effexor XR 37.5mg (A handful of 2-5 month breaks from meds in that 10 year period.) 3-month taper by adding hours between pills, March-June (approx.) 2021. Reinstated temporarily due to severe withdrawal symptoms, September 2021. 6-week taper, ending in mid-November 2021. Link to comment Share on other sites More sharing options...
Belfastchild Posted April 5, 2022 Share Posted April 5, 2022 (edited) Dysautonomia and Lexapro I had bilateral carotid body tumors that were removed 15 years ago. I have struggled with Dysautonomia ever since (labile hypertension, heart rate, emotional, fatigue, body pains, orthostatic hypertension, dizziness, etc.) I was put on Lexapro about 5 years ago because I was feeling “down”. I know, it seems extreme. On Lexapro, I became more and more agitated, angry, emotional. Made me worse. I came off Lex 7 months ago and it has been the worst 7 months of my life. Extreme and protracted withdrawal described here 100%. It’s has gone in waves of extreme and severity. What was an already dysfunctional nervous system has been put to the test. I seem to get a little better and then withdrawal again. It has exacerbated my Dysautonomia. I have seen and read links between SSRI withdrawal and Dysautonomia. I have both! Any commentary would be appreciated. Thanks in advance. Edited April 5, 2022 by ChessieCat added intro topic title before merging with existing topic Link to comment Share on other sites More sharing options...
tsranga Posted April 16, 2022 Share Posted April 16, 2022 Yes... I have. Please ensure you are hydrated, have electrolytes (salt), wear compression garments when you are upright. If you can, get into an exercise program where you can build up your core. Seated exercises like rowing is the best. Chronic IBS since 1990 Former smoker (1992- Jun 2017) Prescribed mirtazapine for sleep in Aug 2017 after IBS flare-up following Nicotine cessation. Mirtazapine 7.5mg 8/17 to 5/18 Mirtazapine 3.75mg 5/18 to 1/19 Off Mirtazapine since 2/19. Vit B, Vit D+K2 and Magnesium Glycinate as needed. On Ayurvedic herbs for GI issues - Guduchi since Jul 2020, Indukantham since Oct 2020 On Ashwagandha 1g since Nov 2020 Link to comment Share on other sites More sharing options...
ryan1982 Posted May 8, 2022 Share Posted May 8, 2022 If you don’t have the elevated blood pressure, nausea, sweating, weight loss or dizziness, is it worth getting tested for dysautonomia? I have fatigue, head pressure and sensory issues that seem to sometimes be mentioned as a symptom of dysautonomia. 2005- 2008: Lorazepam (max dose- 1 MG daily) 2008- 2016: Lexapro (max dose-10 MG daily) January 2017- March 2017- Pristiq (max dose- 100 MG daily) April 2017- June 2017: Trintellix (max dose- 10 MG) July 2017- October 2017: Lexapro (max dose-10 MG daily) November 2017- April 2018- Luvox (max dose- 100 MG) May 2018- Zoloft (max dose- 18.75) 5/28/18- 3 MG Lexapro, 6/3/18- 3 MG Lexapro, 6/7/18- 3.5 MG Lexapro, 6/13/18- 4 MG Lexapro, 6/21/18- 4.5 MG Lexapro, 6/28/18- 3/29/21- 4 MG Lexapro, 3/30/21- Present- 3.8 MG Lexapro **Bad Wave Caused by Trileptal 150 MG (one pill) in December '20 and Low Dose Naltrexone .12 MG (one pill) in April '21** "The Journey is The Reward" Link to comment Share on other sites More sharing options...
tsranga Posted May 9, 2022 Share Posted May 9, 2022 On 5/8/2022 at 9:58 AM, rebeccaannxo said: I’m wondering the same thing! I have extreme fatigue, some head pressure, a bit of trouble with temperature regulation, and have terrible balance and vision issues. Finding an autonomic specialist who can test you for dysautonomia is the biggest challenge. There are very few specialists and can take more than 6 months to get an appointment. Also there is very little on terms of medication that they can prescribe unless your dysautonomia can be measured with their tests. For example,if your blood pressure and HR spike or dip to dangerous levels consistently,then they can prescribe specific drugs to lower BP or HR. In my experience, our symptoms are way too inconsistent and random in withdrawal, and they aren't that severe enough to be treatable. In my case, big variation in heat/cold/humidity/pressure trigger these fluctuations and they stabilize once the weather stabilizes. Also, I can have both hypertension and hypotension which makes it difficult to treat. Often,youay end up with the same medication that you are trying to withdraw from. It's better to follow a routine that helps you cope with the waves/flare ups without drugs. This include electrolytes, hydration, elevation, and exercises to strengthen your core. Chronic IBS since 1990 Former smoker (1992- Jun 2017) Prescribed mirtazapine for sleep in Aug 2017 after IBS flare-up following Nicotine cessation. Mirtazapine 7.5mg 8/17 to 5/18 Mirtazapine 3.75mg 5/18 to 1/19 Off Mirtazapine since 2/19. Vit B, Vit D+K2 and Magnesium Glycinate as needed. On Ayurvedic herbs for GI issues - Guduchi since Jul 2020, Indukantham since Oct 2020 On Ashwagandha 1g since Nov 2020 Link to comment Share on other sites More sharing options...
tsranga Posted May 10, 2022 Share Posted May 10, 2022 8 hours ago, rebeccaannxo said: @tsranga thankfully I do not have any heart rate or blood pressure issues. Mine is more massive fatigue, body weakness, major balance issues and terrible vision issues. I know they’re all from the adverse reaction to the medication but it’s just terrible to feel this unwell everyday 😩 Are you checking your BP and HR when you have these balance and vision issues? Typically you want to check it both standing and supine spacing it 3-5 minutes apart. It's good if you are not having these issues. Sometimes you can have the symptoms even without them. Make sure you are hydrating and have electrolytes. Do you have any exercise routine? It may be that your body is very weak from lack of regular exercise. Look up the Levine protocol which is an exercise routine that you can do lying down, targeted for dysautonomia. Chronic IBS since 1990 Former smoker (1992- Jun 2017) Prescribed mirtazapine for sleep in Aug 2017 after IBS flare-up following Nicotine cessation. Mirtazapine 7.5mg 8/17 to 5/18 Mirtazapine 3.75mg 5/18 to 1/19 Off Mirtazapine since 2/19. Vit B, Vit D+K2 and Magnesium Glycinate as needed. On Ayurvedic herbs for GI issues - Guduchi since Jul 2020, Indukantham since Oct 2020 On Ashwagandha 1g since Nov 2020 Link to comment Share on other sites More sharing options...
Eastcoastgirl Posted May 10, 2022 Share Posted May 10, 2022 If you have dysautonomia you will have blood pressure and heart rate irregularities. Usually sustained tachycardia while standing and sometimes hypotension or hypertension. Blood pooling in the legs is often involved too. If you don’t have any of these things it is not Dysautonomia. You can look up the criteria for diagnosis online. I thought my Dysautonomia would go away because it started from withdrawal but after having it for 3.5 years I decided to seek a diagnosis. Be aware that it can often take years and many doctors before you find someone who will test and diagnose you. Also be aware that a lot of the medications that are used to treat it can have a negative affect on people who are in withdrawal. 2009-2018: 15mg Celexa (SSRI) June 2018-January 2019: .5mg-1mg Ativan (Benzo) 2010-June 2021: Marvelon (Birth Control) September 2018-December 2021: Prozac (SSRI) Reinstated 1mg April 21st 2019 , up-dosed to .32ml June 19, 2019 & started taper in October 2019. Finished taper successfully December 31, 2021. Link to comment Share on other sites More sharing options...
tsranga Posted May 10, 2022 Share Posted May 10, 2022 5 hours ago, Eastcoastgirl said: If you have dysautonomia you will have blood pressure and heart rate irregularities. Usually sustained tachycardia while standing and sometimes hypotension or hypertension. Blood pooling in the legs is often involved too. If you don’t have any of these things it is not Dysautonomia. You can look up the criteria for diagnosis online. I thought my Dysautonomia would go away because it started from withdrawal but after having it for 3.5 years I decided to seek a diagnosis. Be aware that it can often take years and many doctors before you find someone who will test and diagnose you. Also be aware that a lot of the medications that are used to treat it can have a negative affect on people who are in withdrawal. It is quite probable that you may have been predisposed to some autonomic dysfunction that the withdrawal aggravated into full blown dysautonomia. At least that has been my experience. My main symptoms were chronic GI issues that was categorized as IBS. I have since observed that I am sensitive to weather changes, and most of my issues in withdrawal are weather/posture triggered. However, the measurements are not bad enough to be categorized as dysautonomia - I have been diagnosed with a vagus nerve disorder, and as you have mentioned, there are very few drug interventions available. Chronic IBS since 1990 Former smoker (1992- Jun 2017) Prescribed mirtazapine for sleep in Aug 2017 after IBS flare-up following Nicotine cessation. Mirtazapine 7.5mg 8/17 to 5/18 Mirtazapine 3.75mg 5/18 to 1/19 Off Mirtazapine since 2/19. Vit B, Vit D+K2 and Magnesium Glycinate as needed. On Ayurvedic herbs for GI issues - Guduchi since Jul 2020, Indukantham since Oct 2020 On Ashwagandha 1g since Nov 2020 Link to comment Share on other sites More sharing options...
FeralCatman Posted June 8, 2022 Share Posted June 8, 2022 (edited) Adrenaline Surges While Eating As a result of my protracted withdrawal from Seroquel I have developed an issue with having adrenaline surges while eating. I looked this up on line and found a blog for people who have various forms of dysautonomia. Many people in withdrawal develop dysautonomic type symptoms while recovering so I thought a link to this blog could be helpful in dealing with some of the symptoms that we are experiencing. This link is to the Dysautonomia Information Network and many people with Dysautonomia not related to drug withdrawal experience this particular symptom and there is a lot of good information on what may be causing it and how to deal with it and make it less troublesome. https://www.dinet.org/forums/topic/8817-adrenaline-rush-brought-on-by-eating/ Edited June 9, 2022 by ChessieCat added topic title before merging with existing topic Current Psychiatric Medications Paxil 10mg daily (a.m.) 2017 - Present Carbamazepine 400mg daily (split half a.m. and half p.m.) 2011 - Present Recently Stopped Psychiatric Medications Seroquel - Tapered from 700mg to 0mg From April 2018 to August 2021 - Final Dose 6.25mg - In Recovery Past Psychiatric Medications From 1994 to April 2018 - Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary) Current Non Psychiatric Medications - Levothyroxine 88mcg (a.m.)-Vitamin D3 1000 IU (p.m.)-Fexofenadine 180 mg twice daily -Metoprolol 25mg (p.m.)-Azelastine Nasal Spray-Ipratropium Bromide Nasal Spray Other - Fish Oil Twice Daily-Multi-Vitamin (a.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Benadryl-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Magnesium Citrate 125mg twice dailyQuitting Seroquel_A Vacation In Hell_Redacted.pdf Link to All Uploaded Documents https://www.survivingantidepressants.org/topic/26099-feralcatman-recovering-from-seroquel/?do=findComment&comment=633907 Link to comment Share on other sites More sharing options...
tsranga Posted July 23, 2022 Share Posted July 23, 2022 1 hour ago, rebeccaannxo said: I’m 9.5 months out after a severe adverse reaction. I’m having issues not being able to stand or walk for longer than about 10-15 minutes. My body gets weak and tired. My heart rate doesn’t increase and my blood pressure is within normal limits, but could this maybe be a case of dysautonomia? Unlikely.. What are your typical symptoms? All of them.. In my case, I had a boat load of symptoms.. but being unable to stand/walk was not one of them, but I have plenty of other symptoms that point to dysautonomia of some sort.. your HR and BP have to vary quite a lot for a diagnosis, but you can have dysautonomia even without that much variation. Try this quiz - https://www.nemechekconsultativemedicine.com/quiz/ Chronic IBS since 1990 Former smoker (1992- Jun 2017) Prescribed mirtazapine for sleep in Aug 2017 after IBS flare-up following Nicotine cessation. Mirtazapine 7.5mg 8/17 to 5/18 Mirtazapine 3.75mg 5/18 to 1/19 Off Mirtazapine since 2/19. Vit B, Vit D+K2 and Magnesium Glycinate as needed. On Ayurvedic herbs for GI issues - Guduchi since Jul 2020, Indukantham since Oct 2020 On Ashwagandha 1g since Nov 2020 Link to comment Share on other sites More sharing options...
FeralCatman Posted July 23, 2022 Share Posted July 23, 2022 I have been researching nasal symptoms and autonomic dysfunction. Turns out there is a thing called non-allergic rhinitis. Basically it's allergy symptoms with no allergy. One of the suspected causes is autonomic dysfunction. This could be an inherent dysautonomia or it could be a withdrawal induced autonomic dysfunction or drug-induced autonomic dysfunction could do it as well. I noticed that after I started Seroquel my allergies got much worse. Seroquel is a powerful antihistamine so it didn't make a lot of sense. However if the Seroquel was creating an autonomic imbalance it could create the condition of non allergic rhinitis. Here are a couple of links to the national library of medicine discussing this. https://pubmed.ncbi.nlm.nih.gov/17050315/ https://pubmed.ncbi.nlm.nih.gov/11081594/ Current Psychiatric Medications Paxil 10mg daily (a.m.) 2017 - Present Carbamazepine 400mg daily (split half a.m. and half p.m.) 2011 - Present Recently Stopped Psychiatric Medications Seroquel - Tapered from 700mg to 0mg From April 2018 to August 2021 - Final Dose 6.25mg - In Recovery Past Psychiatric Medications From 1994 to April 2018 - Depakote, Lithium, Risperidone, Xanax, Lamotrigene, Olanzapine, Lorazepam, Welbutrin, Trazodone, Oxazepam, Gabapentin, Abilify, Topiramate, Prazosin, Ambien (See Attached Spreadsheet And Seroquel Tapering And WIthdrawal Summary) Current Non Psychiatric Medications - Levothyroxine 88mcg (a.m.)-Vitamin D3 1000 IU (p.m.)-Fexofenadine 180 mg twice daily -Metoprolol 25mg (p.m.)-Azelastine Nasal Spray-Ipratropium Bromide Nasal Spray Other - Fish Oil Twice Daily-Multi-Vitamin (a.m.)-Vitamin C 1000mg Daily (a.m.)-Saline Nasal Spray-Benadryl-Salsalate 750mg twice daily PRN, Diclofenac Gel on affected joint PRN-Magnesium Citrate 125mg twice dailyQuitting Seroquel_A Vacation In Hell_Redacted.pdf Link to All Uploaded Documents https://www.survivingantidepressants.org/topic/26099-feralcatman-recovering-from-seroquel/?do=findComment&comment=633907 Link to comment Share on other sites More sharing options...
tsranga Posted July 24, 2022 Share Posted July 24, 2022 On 7/23/2022 at 3:06 AM, rebeccaannxo said: My symptoms are severe fatigue, severe weakness, Derealization, depersonalization, vision issues, dizziness, feeling shaky, brain fog, anxiety, air hunger. At the start I had a lot of other symptoms but they come and go. I took the quiz and it said I do have dysautonomia, but I also know it was a severe adverse reaction that triggered it. I’m just not sure what’s causing me to not be able to stand or walk for long? Maybe CNS fatigue? this sounds like withdrawal. Chronic IBS since 1990 Former smoker (1992- Jun 2017) Prescribed mirtazapine for sleep in Aug 2017 after IBS flare-up following Nicotine cessation. Mirtazapine 7.5mg 8/17 to 5/18 Mirtazapine 3.75mg 5/18 to 1/19 Off Mirtazapine since 2/19. Vit B, Vit D+K2 and Magnesium Glycinate as needed. On Ayurvedic herbs for GI issues - Guduchi since Jul 2020, Indukantham since Oct 2020 On Ashwagandha 1g since Nov 2020 Link to comment Share on other sites More sharing options...
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