Dysautonomia (autonomic dysregulation) - POTS, syncope, etc.

[India]

On 4/5/2011 at 9:29 PM, stan said:

Normally there is a stabilite in these two systems example :

heartbeat not too accelerate and not too slow ; as antidepressants fire receptors of nerves, it is going too slow or too fast heartbeat

i have as all people dysautonomia : many systems, organs do not function correctly

@intothewoods

[India]

On 6/19/2014 at 8:06 AM, NoMeaning25 said:

Anyone know if this will work? http://blog.synergyhealthconcepts.com/new-treatment-for-dysautonomia/

 

Alto, is this actually what we are dealing with?? 

 

http://www.dinet.org/index.php/information-resources/pots-place/pots-symptoms Is withdrawal just dysautonomia or is it a combination of things?

 

Im just trying to figure out whats wrong with me so that i can at least show my mom what im dealing with and find a doctor willing to work with me. 

 

When I read dysautonomia I felt this sense of:

thsts it, that’s exactly it. That’s what this withdrawal is. 

I’m sorry you are still suffering. I hope some healing is going on underneath all of this. 

May I ask your age?

 

[drugged]

"Acquired dysautonomia: As the article describes, people may develop autonomic symptoms after infections or exposure to toxins, and these are diagnosed as chronic fatigue syndrome, fibromyalgia, etc. Recovery is slow and can take years."

 

I've often wondered if my "fibromyalgia" is the result of exposure to toxins.  It could very well be given my long exposure to toxic prescription drugs.  

 

[NoMeaning25]

On 7/17/2019 at 12:49 AM, India said:

When I read dysautonomia I felt this sense of:

thsts it, that’s exactly it. That’s what this withdrawal is. 

I’m sorry you are still suffering. I hope some healing is going on underneath all of this. 

May I ask your age?

 

 

I am now 30 years old. Sadly, im much worse now than I was in 2014. But yeah. Thats why i dont even bother posting. There a lots of us actually. We keep in touch. 

[Gussy]

Hi. My i came off effexor pretty quickly in 2017. I must say i.m doing a LOT better than then. Alto even decided i.m in recovery mode now, i sure think i am. Might anyone know if after coming off far too quickly it may.ve caused my n.s to not be able to properly control my blood pressure? I notice it when i get up from sitting or from bending over at times. You know, the dizziness? Sometimes it.s strong, others not so strong and sometimes not at all. This only started after I came off Effexor. Another thing, i did have those awful muscle feelings that i imagine almost everyone has. I really think i still have them to less a degree in my right butt muscle and hamstrings. Does this sound possible? Any wisdom would be greatly appreciated and please don.t be in a super rush to reply as i know there will be many here in more need of help than me. Gus.

[ChessieCat]

When my Pristiq dose was increased from 50mg to 100mg my diastolic blood pressure increased.  I wore a halti monitor for 24 hours.  The doctor did not make the connection between the increase in my AD dose.  He just increased my BP medication.

 

Desvenlafaxine (Pristiq) is a synthetic form of the isolated major active metabolite of venlafaxine (Effexor).

 

It may be that your BP reduced after you stopped the Effexor and it may be the lower BP causing the dizziness.

 

I had tight legs muscles when taking Pristiq.  When walking I had difficulty lifting my foot high enough to step from the road up the kerb, which is only about 5 or 6 inches high.  As my dose got lower the tightness lessened and now I only get it occasionally.

 

[Altostrata]

Merged similar topics.

 

That sounds like Postural orthostatic tachycardia syndrome (POTS):

 

Quote

Postural orthostatic tachycardia syndrome (POTS) is a condition that affects circulation (blood flow). POTS is a form of orthostatic intolerance, the development of symptoms that come on when standing up from a reclining position, and that may be relieved by sitting or lying back down. The primary symptom of an orthostatic intolerance is lightheadedness, fainting and an uncomfortable, rapid increase in heartbeat.

 

Or orthostatic intolerance:
 

Quote

 

Orthostatic intolerance (OI) is the development of symptoms when standing upright which are relieved when reclining.^[1] There are many types of orthostatic intolerance. OI can be a subcategory of dysautonomia, a disorder of the autonomic nervous system^[2] occurring when an individual stands up.^[3]

There is a substantial overlap between syndromes of orthostatic intolerance on the one hand, and either chronic fatigue syndrome (CFS) or fibromyalgia (FM) on the other.^[4] It affects more women than men (female-to-male ratio is at least 4:1), usually under the age of 35.^[5]

Orthostatic intolerance occurs in humans because standing upright is a fundamental stressor and requires rapid and effective circulatory and neurologic compensations to maintain blood pressure, cerebral blood flow, and consciousness. When a human stands, approximately 750 mL of thoracic blood is abruptly translocated downward. People who suffer from OI lack the basic mechanisms to compensate for this deficit.^[1] Changes in heart rate, blood pressure, and cerebral blood flow that produce OI may be caused by abnormalities in the interactions between blood volume control, the cardiovascular system, the nervous system and circulation control system.^[6]

 

 

 

Many people get this as a symptom of psychiatric drug withdrawal. It tends to go away with time.

 

Regular gentle exercise, such as at least 30 minutes of walking each day, can help.

 

If you do a lot of sitting, you might also need to do leg stretching exercises each day to relieve muscle tension.

[NoMoreLexapro]

I had elevated thyroid antibody levels (very high) 8-10 yrs  ago. I took some medications and they went down, at times to normal levels.  I haven't taken any thyroid medication for at least 2-3 yrs. 

 

In the fall I had two vertigo attacks out of the blue.  Was dizzy in the morning for a few days and then I was fine.  The 2nd week, however, I had an out of the blue panic attack (first one ever).  I was diagnosed w/GAD, even though I never had had anxiety before, and 3 days later I was put on lexapro. 

 

I was dizzy every day I was on lexapro.  I've been off for 17 wks.  I still am dizzy, but within the last 4 wks the disorientation/dizziness/DR has gotten worse and my PCP and I noticed that my pulse goes way up when I am standing compared to lying down (or sitting).  We are working on trying to get tests for POTS.  I talked to a chiropractic neurologist (didn't know they exist) and he said that, for $7000 he could treat me, that he doesn't think this is WD, and that there is a strong correlation between thyroid issues and POTS. 

 

There's no question lexapro greatly exacerbated my dizziness, but has anyone ever thought they were in WD but they actually had POTS/thyroid issues and were brought back to normal with some kind of treatment for those conditions? 

[tsranga]

Anyone on this thread or otherwise have a recurrence of POTS like symptoms in withdrawal and when did it finally resolve?

 

I had this dizziness when standing up and fluctuating heart rate (30 bps from 60 to 90 and back) early in withdrawal, which resolved with electrolytes and salt augmentation last year.  It has reappeared this summer, 15 months since C/T of mirtazapine.  I am now 19 months off.

 

Just a couple of other data points -  I had vasovagal syncope in adolescence,  but have never fainted since then except once 15 years ago when due to severe dehydration. I also developed IBS  & reflux oesophagitis about 30+ years ago when I also started smoking. My IBS  flared-up after I quit smoking in 2017, for which I was prescribed mirtazapine. I have been off mirtazaline since 2019. 

 

Is it possible that my underlying symptoms are primarily due to iatrogenic withdrawal & should eventually resolve? Or could this be a progressive deterioration in my autonomic dysfunction that nicotine (which mimics acetylcholine) kept in abeyance? 

 

Overall, I am probably at 60-70% of my pre-mirtazapine function. My mental health is definitely better and the gut is also stabilizing thanks to a very restrictive low-FODMAP, low-fibre diet.   So food intolerance disrupting the gut and sleep at night, and POTS symptoms during the day are the two main symptoms that remain.  I have also not been able to gain any weight ( I am about 20-25lbs off my normal weight). I was better in winter on both counts, which is why I am perplexed at the recurrence in summer.  

[Gussy]

Hi, I just have a quick question if that's ok. I've been sweating a reasonable amount a few nights from my lower legs and sometimes from my groin down to my feet lately and wonder if this could be caused by dysautonomia? I.d sweat like crazy at night time in the worst of it .  Or could it due to some other lingering post taper craziness? Also, i couldn.t find a topic to post my next question in so sorry if this is the wrong place. My lower leg bones felt like they were twisting in the worst of it, does anyone know what causes that? There aren.t many posts here about twisting bones, maybe it's uncommon? Any ideas?

[Sleepless]

Has anyone developed pots after stopping an SSRI and healed?  If so, how long did it take you?  No horror stories please...

[manymoretodays]

Hi Sleepless,

I think that many have recovered from POTS here, including our fearless founder, Altostrata.

One way to see, might be to put some of the post-er's here in the searchbox feature at the top right of the screen.

Just put in their used name, and when a list comes up of posts, look for their Introduction topics.

Then you could even ask, if they have not posted for awhile, or you might see some resolution mentioned.

 

I'm seeing a lot of posts, on this topic, at least on this page, without any response, or further discussion.

 

Are you familiar with the Success Stories forum?  That might be another place to look, and read members accounts of their healing.

 

I notice that you have had a lot of medication changes and then some brief trials of things too, since last August.

Your nervous system might be craving some stability a lot, right now.......and consistency.  Maybe that will help, more than anything else.  Oh, I hope so.

 

Best, L, P, H, and G,

mmt

[AdviceNeeded]

In the instance of possible drug induced dysautonomia (such as increased heart rate and blood pressure, altered sweat response, sleep difficulties, etc), could a programme of moderate exercise help sway the body towards regaining homeostasis? Sort of remind it what it should be doing?

 

It’s just a thought, I wondered what people with a deeper understanding and more experience would think?

[tsranga]

On 11/27/2020 at 2:31 PM, Sleepless said:

Has anyone developed pots after stopping an SSRI and healed?  If so, how long did it take you?  No horror stories please...

I had the same question.. been dealing with many of the symptoms indicative of POTS/dysautonomia and its now close to 2 years..  

 

[tsranga]

On 11/30/2020 at 9:19 AM, AdviceNeeded said:

In the instance of possible drug induced dysautonomia (such as increased heart rate and blood pressure, altered sweat response, sleep difficulties, etc), could a programme of moderate exercise help sway the body towards regaining homeostasis? Sort of remind it what it should be doing?

 

It’s just a thought, I wondered what people with a deeper understanding and more experience would think?

 

I am doing exactly that.. I have found that the following regimen helps minimize the symptoms/flare-ups - 

 

1. Start with the lowest intensity exercises.. you can do it lying down (like rowing/swimming, yoga etc). Then slowly build it up. You don't have to do heavy aerobic work,since the heart is already working hard just when standing

2. Hydrate - at least 48oz-64oz. with electrolytes. Make sure you get enough sodium.

3. Take frequent 20-30 min breaks to lie down with feet up and belly breathe. This helps to send blood to the gut and digest food. Also do it after you have stood on your feet or exercises for more than a couple of hours.

4. If you have GI issues, also avoid any high FODMAP foods. Dairy and gluten as well. You maybe able to add it back in small portions one at a time, but try it for at least 8 weeks.

[tsranga]

On 11/30/2020 at 9:19 AM, AdviceNeeded said:

In the instance of possible drug induced dysautonomia (such as increased heart rate and blood pressure, altered sweat response, sleep difficulties, etc), could a programme of moderate exercise help sway the body towards regaining homeostasis? Sort of remind it what it should be doing?

 

It’s just a thought, I wondered what people with a deeper understanding and more experience would think?

@Altostrataor others with experience, could you please chime in?

 

I'm thinking of starting the chops protocol for POTS, but I am already exercising daily, but in a progressive program, and I wanted to get some advice. 

 

My HR and BP aren't too bad, but my main symptoms are when switching from supine to standing (sleep/wake, rest/digest) or vice versa. 

[Altostrata]

What is CHOPS? Have you found it helpful? If yes, I'd continue it.

[Eastcoastgirl]

Maybe my case of Dysautonomia is really bad (hypotension and POTS) but I don’t find an exercise program does anything for it. Avoiding deconditioning is important but for most people I think time is the only thing that can fully heal iatrogenic dysautonomia. The idea that people with POTS just need to exercise their way back to health has always been strange to me anyway because many people are quite active prior to diagnosis.

[Altostrata]

I think the recommendation of exercise for POTS has been criticized lately. It helps some people, hurts others. 

 

We recommend at least 1/2 hour a day of gentle exercise, such as walking, up to the amount you can tolerate. This helps keep circulation and regulation going.

[tsranga]

1 hour ago, Altostrata said:

I think the recommendation of exercise for POTS has been criticized lately. It helps some people, hurts others. 

 

We recommend at least 1/2 hour a day of gentle exercise, such as walking, up to the amount you can tolerate. This helps keep circulation and regulation going.

 

Interesting.  The reason for my question is that my current symptoms seem to really point to autonomic dysfunction and I feel that my body has gotten very sensitive to sudden temperature and humidity shifts, and that mainly impacts my gut, brain and extremities.

 

I exercise regularly and have no issues while I am doing it. HR and BP are pretty stable. I have also started strength training for my core and legs which seems to have reduced the HR variation. 

 

But whenever I lie down to rest / sleep and get up after rest is when I have most of the symptoms. It appears to be related to circulation, and mostly  connected to abdominal pressure. When blood flow is concentrated on the gut, my extremities get cold upper body gets warm, sinuses get stuffy, I have burping and flatulence all happening simultaneously, sometimes with BMs and calf pain. This happens most often when there is a drastic weather shift and my sleep is impacted. My mood and mental state (rapid and negative thoughts, fear, brain fog etc) are also affected. It takes a day or two to adapt and I am fine until the next shift.

 

What helps most is belly breathing lying down, which seems to get the gut moving, especially after a meal, and this sometimes helps prevent a flare up at night. This also helps regulate my temperature and tolerate temperature fluctuations. 

 

I was reading about how a POTs exercise program can help, but given my gut centered manifestation of symptoms especially when supine, I wasn't sure if it would help.

 

I have gone through 100s of research papers that connect vasomotor rhinitis, IBS, reflux, motility, hot/cold sensitivity to the vagus nerve  and autonomic function.  Mirtazapine appears to have some action on 5HT3 receptors, which are present in vagus nerve and affect GI function, and I suspect that my cold turkey withdrawal destabilized an already sensitive GI system along with a whole set of other symptoms that I didn't have before withdrawal.

 

The stanford autonomic function specialist says I have some vagus nerve disorder, and wanted to perform more tests, but I decided to hold off in the hope that time would eventually bring stability in withdrawal.

 

Do you have any thoughts or suggestions based on your experience with pots in withdrawal?

 

 

 

[Eastcoastgirl]

If there is no sustained heart rate of 30bpm or more upon standing you would not qualify for a POTS diagnosis. If you don’t have a significant and sustained drop in blood pressure upon standing (below 90/60) you would not qualify for a diagnosis of Orthostatic hypotension. In this case, Dysautonomia would be ruled out. It seems more like a gut related issue, possibly due to the vagus nerve as you mentioned. Gut related issues are common in withdrawal.

[tsranga]

3 hours ago, KMart95 said:

Maybe my case of Dysautonomia is really bad (hypotension and POTS) but I don’t find an exercise program does anything for it. Avoiding deconditioning is important but for most people I think time is the only thing that can fully heal iatrogenic dysautonomia. The idea that people with POTS just need to exercise their way back to health has always been strange to me anyway because many people are quite active prior to diagnosis.

 

How has your dysautonomia changed over time? Do you see improvement? 

 

In my case I definitely see that the body seems to be quicker to adapt, but given that weather shifts are a primary trigger, and we have almost daily fluctuations in the bay area, the body is constantly switching to adapt to a cold/hot spell. As long as it stays in a stable range, I am fine. If there is more than a 10 degree dip/spike in temperature, or if humidity dips below 30% or goes above 80%, my gut is the first to get hit. 

[tsranga]

16 minutes ago, KMart95 said:

If there is no sustained heart rate of 30bpm or more upon standing you would not qualify for a POTS diagnosis. If you don’t have a significant and sustained drop in blood pressure upon standing (below 90/60) you would not qualify for a diagnosis of Orthostatic hypotension. In this case, Dysautonomia would be ruled out. It seems more like a gut related issue, possibly due to the vagus nerve as you mentioned. Gut related issues are common in withdrawal.

This is what I suspected..  thanks.  Have you heard about the gut being so sensitive to drastic weather shifts in withdrawal? 

 

I was always sensitive to weather, but never had the temperature sensitivity, the disturbed sleep, the  gut-brain impact and the postural manifestation.

[tsranga]

On 5/18/2021 at 8:19 PM, tsranga said:

 

How has your dysautonomia changed over time? Do you see improvement? 

 

In my case I definitely see that the body seems to be quicker to adapt, but given that weather shifts are a primary trigger, and we have almost daily fluctuations in the bay area, the body is constantly switching to adapt to a cold/hot spell. As long as it stays in a stable range, I am fine. If there is more than a 10 degree dip/spike in temperature, or if humidity dips below 30% or goes above 80%, my gut is the first to get hit. 

@Eastcoastgirl Tagging you on this..   

 

 I had another week long spell of lightheadedness while standing, and then at night, it takes a couple of hours for the circulation to stabilize in the legs, head and gut..  I mostly get leg pain (from the calves) and hand pain (wrists mostly), sinus/head pressure, and a feeling of stuck GI activity.. As soon as I lie down, I can feel the GI function activate with gut noises..    

 

I am now wondering if compression garments might help..  especially given that my HR and BP have been pretty stable, and I am very sensitive to fabric heat/cold. 

 

It almost feels like most of my symptoms occur when circulation in my core (abdomen) is blocked..  diapghrammatic breathing helps quite a bit, but I am trying to see if abdominal binders / compression 

 

Edited November 13, 2021 by Karma
Updated name

[CoffeeTennis]

Hey everyone, I hope it's not poor form to post to an older thread. As I posted in my introduction thread the other day, I believe I'm experiencing dysautonomia after finishing a taper of Effexor 37.5. I actually tapered twice--I reinstated temporarily because the symptoms I experienced were so disruptive.

 

I was a serious tennis player and runner, but within 36 hours of finishing my taper I could barely run a mile without feeling dizzy, getting tunnel vision, and feeling like I was going to black out. I could barely move on the tennis court and struggled just to swing a racquet. The other bad symptom was frequent urination waking me up in the early mornings.

 

After 3 months, I reinstated and these issues went away quickly. I tapered off again and they came back: the exercise intolerance isn't as bad this time (but my body still just won't work hard when running), but the early-morning urination is still there. In addition, my overall sleep quality is poor. Lately, I've been sweating a lot in bed and even a moderate amount of alcohol (i.e., drinks with friends) just wrecks my sleep in ways that never happened before or during Effexor.

 

Do these symptoms resonate with any of you? They definitely started immediately after my taper, so it can't be a coincidence. But they're also causing stress/anxiety, and it's easy to gaslight yourself and say they're all anxiety-related...

 

 

[Belfastchild]

Dysautonomia and Lexapro

 

I had bilateral carotid body tumors that were removed 15 years ago. I have struggled with Dysautonomia ever since (labile hypertension, heart rate, emotional, fatigue, body pains, orthostatic hypertension, dizziness, etc.)

 

I was put on Lexapro about 5 years ago because I was feeling “down”. I know, it seems extreme. On Lexapro, I became more and more agitated, angry, emotional. Made me worse.

 

I came off Lex 7 months ago and it has been the worst 7 months of my life. Extreme and protracted withdrawal described here 100%. It’s has gone in waves of extreme and severity. What was an already dysfunctional nervous system has been put to the test. I seem to get a little better and then withdrawal again.  It has exacerbated my Dysautonomia. 
 

I have seen and read links between SSRI withdrawal and Dysautonomia. I have both! Any commentary would be appreciated. Thanks in advance. 

 

Edited April 5, 2022 by ChessieCat
added intro topic title before merging with existing topic

[tsranga]

Yes... I have. 

 

Please ensure you are hydrated, have electrolytes (salt), wear compression garments when you are upright. If you can, get into an exercise program where you can build up your core. Seated exercises like rowing is the best.

[ryan1982]

If you don’t have the elevated blood pressure, nausea, sweating, weight loss or dizziness, is it worth getting tested for dysautonomia?

 

I have fatigue, head pressure and sensory issues that seem to sometimes be mentioned as a symptom of dysautonomia. 

[tsranga]

On 5/8/2022 at 9:58 AM, rebeccaannxo said:

I’m wondering the same thing! I have extreme fatigue, some head pressure, a bit of trouble with temperature regulation, and have terrible balance and vision issues. 

 

Finding an autonomic specialist who can test you for dysautonomia is the biggest challenge. There are very few specialists and can take more than 6 months to get an appointment.

 

Also there is very little on terms of medication that they can prescribe unless your dysautonomia can be measured with their tests.  For example,if your blood pressure and HR spike or dip to dangerous levels consistently,then they can prescribe specific drugs to lower BP or HR. 

 

In my experience, our symptoms are way too inconsistent and random in withdrawal, and they aren't that severe enough to be treatable. In my case, big variation in heat/cold/humidity/pressure trigger these fluctuations and they stabilize once the weather stabilizes. Also, I can have both hypertension and hypotension which makes it difficult to treat. Often,youay end up with the same medication that you are trying to withdraw from.

 

It's better to follow a routine that helps you cope with the waves/flare ups without drugs. This include electrolytes, hydration, elevation, and exercises to strengthen your core. 

[tsranga]

8 hours ago, rebeccaannxo said:

@tsranga

 

thankfully I do not have any heart rate or blood pressure issues. Mine is more massive fatigue, body weakness, major balance issues and terrible vision issues. I know they’re all from the adverse reaction to the medication but it’s just terrible to feel this unwell everyday 😩

Are you checking your BP and HR when you have these balance and vision issues? Typically you want to check it both standing and supine spacing it 3-5 minutes apart.

It's good if you are not having these issues. Sometimes you can have the symptoms even without them. Make sure you are hydrating and have electrolytes.

 

Do you have any exercise routine? It may be that your body is very weak from lack of regular exercise.  Look up the Levine protocol which is an exercise routine that you can do lying down, targeted for dysautonomia.

[Eastcoastgirl]

If you have dysautonomia you will have blood pressure and heart rate irregularities. Usually sustained tachycardia while standing and sometimes hypotension or hypertension. Blood pooling in the legs is often involved too. If you don’t have any of these things it is not Dysautonomia. You can look up the criteria for diagnosis online. I thought my Dysautonomia would go away because it started from withdrawal but after having it for 3.5 years I decided to seek a diagnosis. Be aware that it can often take years and many doctors before you find someone who will test and diagnose you. Also be aware that a lot of the medications that are used to treat it can have a negative affect on people who are in withdrawal. 

[tsranga]

5 hours ago, Eastcoastgirl said:

If you have dysautonomia you will have blood pressure and heart rate irregularities. Usually sustained tachycardia while standing and sometimes hypotension or hypertension. Blood pooling in the legs is often involved too. If you don’t have any of these things it is not Dysautonomia. You can look up the criteria for diagnosis online. I thought my Dysautonomia would go away because it started from withdrawal but after having it for 3.5 years I decided to seek a diagnosis. Be aware that it can often take years and many doctors before you find someone who will test and diagnose you. Also be aware that a lot of the medications that are used to treat it can have a negative affect on people who are in withdrawal. 

 

It is quite probable that you may have been predisposed to some autonomic dysfunction that the withdrawal aggravated into full blown dysautonomia.

 

At least that has been my experience.  My main symptoms were chronic GI issues that was categorized as IBS.  I have since observed that I am sensitive to weather changes, and most of my issues in withdrawal are weather/posture triggered. 

However, the measurements are not bad enough to be categorized as dysautonomia - I have been diagnosed with a vagus nerve disorder, and as you have mentioned, there are very few drug interventions available.

[FeralCatman]

Adrenaline Surges While Eating

 

As a result of my protracted withdrawal from Seroquel I have developed an issue with having adrenaline surges while eating. I looked this up on line and found a blog for people who have various forms of dysautonomia. Many people in withdrawal develop dysautonomic type symptoms while recovering so I thought a link to this blog could be helpful in dealing with some of the symptoms that we are experiencing. This link is to the Dysautonomia Information Network and many people with Dysautonomia not related to drug withdrawal experience this particular symptom and there is a lot of good information on what may be causing it and how to deal with it and make it less troublesome.

 

https://www.dinet.org/forums/topic/8817-adrenaline-rush-brought-on-by-eating/

 

 

Edited June 9, 2022 by ChessieCat
added topic title before merging with existing topic

[tsranga]

1 hour ago, rebeccaannxo said:

I’m 9.5 months out after a severe adverse reaction. I’m having issues not being able to stand or walk for longer than about 10-15 minutes. My body gets weak and tired. My heart rate doesn’t increase and my blood pressure is within normal limits, but could this maybe be a case of dysautonomia? 

 

Unlikely..  What are your typical symptoms?  All of them..  

 

In my case, I had a boat load of symptoms.. but being unable to stand/walk was not one of them, but I have plenty of other symptoms that point to dysautonomia of some sort..  your HR and BP  have to vary quite a lot for a diagnosis, but you can have dysautonomia even without that much variation. 

 

Try this quiz - https://www.nemechekconsultativemedicine.com/quiz/

 

 

 

[FeralCatman]

I have been researching nasal symptoms and autonomic dysfunction. Turns out there is a thing called non-allergic rhinitis. Basically it's allergy symptoms with no allergy. One of the suspected causes is autonomic dysfunction. This could be an inherent dysautonomia or it could be a withdrawal induced autonomic dysfunction or drug-induced autonomic dysfunction could do it as well. I noticed that after I started Seroquel my allergies got much worse. Seroquel is a powerful antihistamine so it didn't make a lot of sense. However if the Seroquel was creating an autonomic imbalance it could create the condition of non allergic rhinitis. Here are a couple of links to the national library of medicine discussing this.

 

https://pubmed.ncbi.nlm.nih.gov/17050315/

 

https://pubmed.ncbi.nlm.nih.gov/11081594/

[tsranga]

On 7/23/2022 at 3:06 AM, rebeccaannxo said:

My symptoms are severe fatigue, severe weakness, Derealization, depersonalization, vision issues, dizziness, feeling shaky, brain fog, anxiety, air hunger. At the start I had a lot of other symptoms but they come and go. I took the quiz and it said I do have dysautonomia, but I also know it was a severe adverse reaction that triggered it. I’m just not sure what’s causing me to not be able to stand or walk for long? Maybe CNS fatigue? 

this sounds like withdrawal.