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manny03

manny03: withdrawal from Trintellix

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manny03
4 minutes ago, eymen23 said:

That’s awful Manny. I’m glad you didn’t end up increasing doses and/or switching medications, you could have ended up going for years with more and more problems building up. 

 

I know the anger you feel for the psychiatrist. I had an appointment last week where I told the psychiatrist a calm and honest review of my time on Escitalopram, explaining I’ve felt lots of anxiety in my stomach and I’ve had crying spells. He said that as I’ve not had panic attacks (I very rarely have these anyway) the medication is partially effective and he recommends I up it to the maximum dose!  

 

It sounds to me like you’re doing well (for a cold turkey withdrawal), even though I bet it feels like hell at times. 

 

Keep strong and I hope you get more healing! 

 

 

 

I would had been in a world of hurt if the Psych began to play and just shove medications at me, and screwed up my CNS even more. 

 

Jesus, just augment the dose, no lets see what could be the cause of this. In my case, my psychiatrist was falling asleep during my appointment, which frustrated me even more, and made me realize he never cared about me. I'm just a dollar sign for him. 

 

With my withdrawal, you're right. There's moment's I'm fine, I could eat Ice Cream, laugh or just watch something calmly, then, there other moments were I have my G.I symptoms, or when I'm around people, I have a case of the tremors. There moments I wished I could had tapered, though sadly how everything occurred, this was my only option. 

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eymen23

Honestly, I think the way things have worked out is going to end up being a good path for you. Although you won’t get the benefits of a slow taper, you are off now and thankfully things are not too bad. You did the best you could given the circumstances (violent behaviour and poor psychiatrist), so I hope you’re proud of that. 

 

Although I get angry at these psychiatrists and what they say, part of me feels very sorry for them. I can’t imagine working in a job where you truly help very few people and are constantly playing guessing games on how to find the right drug or dose for somebody. I know that I certainly wouldn’t be able to do it as a profession! 

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manny03
17 minutes ago, eymen23 said:

Honestly, I think the way things have worked out is going to end up being a good path for you. Although you won’t get the benefits of a slow taper, you are off now and thankfully things are not too bad. You did the best you could given the circumstances (violent behaviour and poor psychiatrist), so I hope you’re proud of that. 

 

Although I get angry at these psychiatrists and what they say, part of me feels very sorry for them. I can’t imagine working in a job where you truly help very few people and are constantly playing guessing games on how to find the right drug or dose for somebody. I know that I certainly wouldn’t be able to do it as a profession! 

 

It breaks my heart since I've had a rough life, never trusted anyone, and in my darkest moment, I went to them for help since I felt I was lost. They told me, the side effects won't matter since I'll feel better psychologically. Now, I fear that me trusting them have perhaps led me to a path were my body is permanently damaged or worse. It doesn't help that I suffer from Hypochondria. For example, When I had the battery of abdominal tests (blood work and ultrasounds) the MD asked my medical conditions, and I mentioned my mental disorders. She looked at me and giggled at me.  She said, hypochondria, seriously? I smiled, though inside I felt I truly lost. 

 

Though, i think far better for me to suffer than me being in a psych ward, and my mother beaten up, fearing to get near me.   

 

I've come to the moment, I fear coming close to doctors since from what I've experienced, they've done far more harm than good. Though, not having a choice, I'll do my yearly physical and leave it at that. If I need psychological help, I try to find a therapist or self-help programs and leave it at that. Psychiatrists have burned their bridge with me. 

 

 

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eymen23

Health anxiety is no fun at all. I experienced that a lot several years ago. At the time I was a very healthy 23 year old who was active, ate well and with little family history of serious illness. Yet, I would find myself fixated on one thing after the next. 

 

Have you tried mindfulness or cbt for your health anxiety? Both have helped me previously. 

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manny03
Just now, eymen23 said:

Health anxiety is no fun at all. I experienced that a lot several years ago. At the time I was a very healthy 23 year old who was active, ate well and little family history of serious illness. Yet, I would find myself fixated on one thing after the next. 

 

Have you tried mindfulness or cbt for your health anxiety? Both have helped me previously. 

 

The psychologists I've gone with haven't being trained to do it, and I know I need that to help me cope with these issues. When I begin shopping for psychologists I'll make sure to find someone who uses CBT. 

 

Same here. Like you, I was a healthy 27 year old who would run three to five miles daily, eat healthy, no health issues, though as soon as I graduated from university, that's when you know what hit the fan, and began to have anxiety attacks, which later became hypochondria with me focusing on spots, then later on weird pains and aches cropping up with no organic causes. Now, at 33, I feel that my anxiety and now my withdrawals have robbed me from my former life. I wish I was well enough to back and get a job, find a life partner, and live a normal life like everyone else. Sadly, I was given a bad set of cards, and now I just need to deal with it. 

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manny03

Update 

 

well I went to my psychologist who didn't believe I'm still suffering from withdrawal with The Guardian article mentioning the new withdrawal protocols needing to be done since the current ones are wrong. He did a quick read and was surprised and asked about my symptoms, now he's opened to the idea that I might be in PAWS. He's going to try and find the actual study and read it carefully. Though, I'm glad I had breakthrough with him since I've had various tests to have nothing come back, and still have these symptoms. I hope after reading the actual study, he's able to help more people like me. 

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ChessieCat
55 minutes ago, manny03 said:

He did a quick read and was surprised and asked about my symptoms, now he's opened to the idea that I might be in PAWS.

 

That's great news.  Every little bit helps.  Hopefully he'll pass the information on to his peers.

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manny03
20 minutes ago, ChessieCat said:

 

That's great news.  Every little bit helps.  Hopefully he'll pass the information on to his peers.

 

I wasn't going to bring up, though, I thought, one last hail mary pass. I was thinking of not coming back to him, and go elsewhere. At first, he wasn't opened to it once I mentioned it was reported in The Guardian, he quickly went to his desktop and read the article.

 

Then, he asked about my symptoms, I showed him. Dr. Glennmullen's list which has almost all the symptoms I'm having at the moment. 

 

He was conflicted at first, though now having read the article, and seeing my symptoms he coming around with the idea its protracted withdrawals. 

 

He told me he's going to find the study and read it carefully since he wanted to see how many people they surveyed, the other studies used in this latest study, and how long did the symptoms linger.  

 

From this, it seems the only way professionals will pay attention is if you mentioned it came out in 'x' paper or journal, and if the Dr/MD graduated and is staffed at X university. I mention this,  since like the article, he wasn't open to seeing the Withdrawal list until he researched Dr. Glennmuellen, and was impressed that he was a Harvard Graduate and staffed there. Only this made him see the article and lists. 

 

I hope when he reads the study and the evidence that comes along with it, he realizes what's occurring with other people coming in to his office. He works in a medical group which includes psychiatrists, so it will be a great thing if he believes the study and  passes it to them since psychiatrists could inform their other peers and become more cognizant with their patients when helping them come off the medication, and not treat the meds like candy. 

 

 

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eymen23

Well done Manny!

 

You have brought the world one step closer to having psychiatrists that understand withdrawal symptoms and how withdrawal is affecting their patients. It’s never going to be an overnight change, but every so often the doctors open up a little. 

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ChessieCat

You could give him this link:  http://www.parliament.scot/GettingInvolved/Petitions/PE01651   

 

There are submissions of both medical professionals as well as sufferers from around the world.  My submission was accepted.  Two weeks after reducing my 100mg Pristq to 50mg, I couldn't type (typist for 40+ years) and only about 4 hours after updosing I was able to type again.   There are almost 300 public submissions available to read.  They are concise case studies of people who have suffered from withdrawal and adverse reactions from psychiatric drugs.  I've read about 50 of them.

 

PE01651: Prescribed drug dependence and withdrawal

 

Calling on the Scottish Parliament to urge the Scottish Government to take action to appropriately recognise and effectively support individuals affected and harmed by prescribed

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manny03

Thanks for the link @ChessieCat I'll pass this to him. 

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manny03

Update

 

The Gi symptoms are there though not as bothersome. However,  I caught something, while I'm eating I continue to have the weird/ache like sensations on my abdomen. Though, I closed my eyes, and the sensations went away.  It's either this or after while of eating the symptoms go away.

 

Jesus. Is this my brain and gut having a miswire due to my withdrawals and with this will this correct itself?

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eymen23

Hi Manny, 

 

If they are still there but not as bothersome, it sounds like they are improving. I have hope you’ll heal! 

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manny03
9 minutes ago, eymen23 said:

Hi Manny, 

 

If they are still there but not as bothersome, it sounds like they are improving. I have hope you’ll heal! 

 

Crossing my fingers. 

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eymen23

How are your other symptoms such as anxiety, mood and sleep doing? 

 

I feel like for circa 6 months off you’re doing well :) 

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manny03
14 minutes ago, eymen23 said:

How are your other symptoms such as anxiety, mood and sleep doing? 

 

I feel like for circa 6 months off you’re doing well :) 

 

Well the depression is still there since I haven't showered for the last three days, and haven't shaved for more than a week now.  I quickly grow a beard, so I'm looking more like old tyme fella. 

 

I still have my weird acne...yea I have withdrawal acne. 

 

At the moment, the anxiety is at bay. I haven't had tremors in two days. Though, while I'm having my G.I. symptoms, I suddenly having a sweet tooth again ( I had this symptom from August to late September)  

 

I'm regaining my hours of sleep. Right now I'm able to sleep five hours straight. Though, I go back to barely sleeping two to three tops. At the moment, the last four days I've been able to sleep five hours straight. Sadly, i can't regain the last three to get my eight hours to truly be refreshed. This sleeping pattern began to occur when I entered SSRI Poop Out and got worse in Withdrawal. 

 

So, I'm in a wave, though its not as intense at the moment. 

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eymen23

Sorry to hear about the depression being that intense. Do you find you’re feeling helpless, sad, empty? Or is it more of the ‘I can’t be bothered’ type? 

 

It may seem like an odd question, but I find that depression and anxiety have different ‘flavours’. Sometimes I have anxiety where I’m very worried about the future and feel helpless, sometimes feeling like I need to quickly get out of a particular place, sometimes adrenaline in the stomach etc. I was wondering if your depression is of a certain ‘flavour’ or a combination? 

 

It’s good you’re getting more hours of sleep. 2-3 is very difficult. Plus it’s when we get the chance to heal. I know what you mean about missing the other 3 hours though, it is always nice to wake up feeling fully rested. Let’s hope you get one of these days soon. 

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manny03
9 minutes ago, eymen23 said:

Sorry to hear about the depression being that intense. Do you find you’re feeling helpless, sad, empty? Or is it more of the ‘I can’t be bothered’ type? 

 

It may seem like an odd question, but I find that depression and anxiety have different ‘flavours’. Sometimes I have anxiety where I’m very worried about the future and feel helpless, sometimes feeling like I need to quickly get out of a particular place, sometimes adrenaline in the stomach etc. I was wondering if your depression is of a certain ‘flavour’ or a combination? 

 

It’s good you’re getting more hours of sleep. 2-3 is very difficult. Plus it’s when we get the chance to heal. I know what you mean about missing the other 3 hours though, it is always nice to wake up feeling fully rested. Let’s hope you get one of these days soon. 

 

It's not an odd question. Mines is a mixture of sadness and emptiness, that switches to 'I can't be bothered' with hence not showering or shaving at all. 

 

With my Anxiety, it goes away then suddenly comes back. Like today, I love plane spotting. For a few moments, I was fine, then when I finished the anxiety came back with my G.I symptoms and my mind quickly went to fear of the future, then feeling hopeless when my mind taunts me that 'I have stomach cancer and I'm dying'. Then, other moments, I'm surrounded by people, the tremors occur, and I quickly need to walk out, take a breath, then my mind taunts me with other thoughts. So, its a vicious cycle. 

 

 

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eymen23
5 minutes ago, manny03 said:

 

It's not an odd question. Mines is a mixture of sadness and emptiness, that switches to 'I can't be bothered' with hence not showering or shaving at all.

 

That is a tough combination indeed. I find that if I’m only experiencing one ‘flavour’ of anxiety or depression it’s much more manageable, but when they keep switching and combining it gets much harder to control. 

 

A basic mindfulness technique which I like to use in these times, is to recognise the emotion and gently think ‘sadness’, ‘panic’, ‘emptiness’. Have you tried anything like that before? Although it sounds very basic, the act of being aware of the emotion and gently labelling it, helps you to distance yourself from the emotion a little. It takes a little practice but is usually easy to pick up, and you can do it at any time and in any place. 

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manny03
1 minute ago, eymen23 said:

 

That is a tough combination indeed. I find that if I’m only experiencing one ‘flavour’ of anxiety or depression it’s much more manageable, but when they keep switching and combining it gets much harder to control. 

 

A basic mindfulness technique which I like to use in these times, is to recognise the emotion and gently think ‘sadness’, ‘panic’, ‘emptiness’. Have you tried anything like that before? Although it sounds very basic, the act of being aware of the emotion and gently labelling it, helps you to distance yourself from the emotion a little. It takes a little practice but is usually easy to pick up, and you can do it at any time and in any place. 

 

Sadly, I haven't found the right psychologist to help me steer my thoughts. That's why my withdrawals have been hellish since in a moment everything is calm, then suddenly it hits me pretty hard. In my case, they just threw meds at me instead of helping steer my thoughts and emotions.  I'll try to do this. 

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eymen23

Have you tried the app headspace? Or perhaps some guided meditations on YouTube or to download onto your mobile phone/computer? 

 

Although a good psychologist can be helpful for many people, I have personally found that when the negative emotions are generated on a more ‘chemical’ level, mindfulness is more beneficial. 

 

Just trying to think of helpful resources you can start accessing right away :) 

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manny03
Just now, eymen23 said:

Have you tried the app headspace? Or perhaps some guided meditations on YouTube or to download onto your mobile phone/computer? 

 

Although a good psychologist can be helpful for many people, I have personally found that when the negative emotions are generated on a more ‘chemical’ level, mindfulness is more beneficial. 

 

Just trying to think of helpful resources you can start accessing right away :) 

 

I haven't. Though, I'll try to seek these methods out to help me through this. 

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