Jump to content

Are there any protracted withdrawal members here who had a severe setback years later?


NoMeaning25
 Share

Recommended Posts

Hi just wanted to know if there are any protracted members on here who had a severe setback years later, feeling like they are back in acute or even worse for months on end.

 

Im quite in a bad spot right now, just looking for others who have had a setback far out and made it to the other side.

 

Had an extremely severe setback 6 months ago and it hasnt let up yet. Im afraid and feeling quite hopeless and tired since its been going on for so long now. I have also developed new symptoms and as usual my tests are all normal.

Was on Citalopram 20mg since Feb 2008 - switched to Paxil 20mg in August 2010

Tapered way too fast in April 2012 by skipping days. Taper completed in 6 weeks

Tried prozac 20mg for 3 days - felt spaced out, not better.

Tried 30mg Cymbalta for 2 days. SEVERE ADVERSE REACTION

Antidepressant free since 14 August 2012

Birth control on and off during this time - Last taken 18 June 2017 - Morning after pill 

Started mainly using 0.5mg Xanax beginning 2016 for severe panic attacks and anxiety due to trauma

Xanax on and off never more than 0.5mg at a time, never taking it 3 days in a row - used sparingly 

 

6 Years antidepressant free - Still in severe withdrawal with over 60 symptoms

Severe setback started May 2018 with no let up to date. Developed many new symptoms like tremors, inner vibrations, insomnia, visual distortions and dr/dp are 100x worse, i have severe sensitivity to movement, My dizziness and vertigo got worse and it now feels like im constantly rocking on a boat, my anxiety is sky high, suicidal idiation is back, i feel extremely brain damaged 

 

Link to comment
Share on other sites

Dont get me wrong, i started to slowly improve at certain points during the years, in early 2017 i was highly functional and i had no more dizziness and a whole bunch of symptoms were improved, some worse, but i managed. In July 2017 i also had a setback, which i started slowly recovering from still up untill May 2018 when i got the flu, i was okay for 3 weeks after but then a series of events lead to my nervous system feeling like i fried it again, too much visual stimulation, lack of sleep, poor nutrition and severe stress from writing and srudying for an important exam plus the use of antibiotics for the flu, twice! Overstimulated my nervous system in an extreme way. Is there any way to get out of this hell? 

Was on Citalopram 20mg since Feb 2008 - switched to Paxil 20mg in August 2010

Tapered way too fast in April 2012 by skipping days. Taper completed in 6 weeks

Tried prozac 20mg for 3 days - felt spaced out, not better.

Tried 30mg Cymbalta for 2 days. SEVERE ADVERSE REACTION

Antidepressant free since 14 August 2012

Birth control on and off during this time - Last taken 18 June 2017 - Morning after pill 

Started mainly using 0.5mg Xanax beginning 2016 for severe panic attacks and anxiety due to trauma

Xanax on and off never more than 0.5mg at a time, never taking it 3 days in a row - used sparingly 

 

6 Years antidepressant free - Still in severe withdrawal with over 60 symptoms

Severe setback started May 2018 with no let up to date. Developed many new symptoms like tremors, inner vibrations, insomnia, visual distortions and dr/dp are 100x worse, i have severe sensitivity to movement, My dizziness and vertigo got worse and it now feels like im constantly rocking on a boat, my anxiety is sky high, suicidal idiation is back, i feel extremely brain damaged 

 

Link to comment
Share on other sites

  • Moderator Emeritus

 MISSION ACCOMPLISHED:    13 November 2021 -  0mg Pristiq      

Woohoo!!!  Finally off Pristiq   

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering from Oct 2015 - 13 Nov 2021   LAST DOSE 0.0025mg

My full tapering program     My Intro (goes to my tapering graph)    My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.  I do not provide tapering advice via PM.  Please post questions in your Introduction topic.  Please do not tag me for any reason.  I am an unpaid volunteer and assist members if I am able to and when I have the time.  Thank you for your understanding.

Mid Nov 2021 changed to low carb diet due to diabetes & cholesterol.  Lost 1/16 body weight, BP has reduced a lot. 

Links to my exercises and weights.  I also do 3 x 5.5 min with HIIT on exercise bike with 20 secs/min as fast as I can cycle.

Link to comment
Share on other sites

Yes thank you

Was on Citalopram 20mg since Feb 2008 - switched to Paxil 20mg in August 2010

Tapered way too fast in April 2012 by skipping days. Taper completed in 6 weeks

Tried prozac 20mg for 3 days - felt spaced out, not better.

Tried 30mg Cymbalta for 2 days. SEVERE ADVERSE REACTION

Antidepressant free since 14 August 2012

Birth control on and off during this time - Last taken 18 June 2017 - Morning after pill 

Started mainly using 0.5mg Xanax beginning 2016 for severe panic attacks and anxiety due to trauma

Xanax on and off never more than 0.5mg at a time, never taking it 3 days in a row - used sparingly 

 

6 Years antidepressant free - Still in severe withdrawal with over 60 symptoms

Severe setback started May 2018 with no let up to date. Developed many new symptoms like tremors, inner vibrations, insomnia, visual distortions and dr/dp are 100x worse, i have severe sensitivity to movement, My dizziness and vertigo got worse and it now feels like im constantly rocking on a boat, my anxiety is sky high, suicidal idiation is back, i feel extremely brain damaged 

 

Link to comment
Share on other sites

  • 2 months later...

I hope you have improved somewhat, since this post in October.  I am in a similar position at the moment - four years after stopping CT.  I got to about 50 - 60% functioning off and on for a few months at a time with seemingly fewer and shorter bad waves.  But the last four months have been a slow slide downhill and am feeling the worst I have felt for ages.  So yes, it happens, especially as your body has been under so much stress caused by other factors - illness, exams etc.  It seems to only take a couple of ‘small’ things like illness, medications (I have proved yet again that I am still intolerant to all meds) to send the injured nervous system into some crazy dive.  Just have to wait it out - again!

 

All the best.

Chronic Fatigue Syndrome for 32 years, given AD for this condition alone in 2000

Zoloft 100mg for 15 years, last five of these complained about adverse effects,

unable to tolerate other meds even supplements

Slowly felt sicker, advised by different Dr maybe on ads for too long

Cut back 100 - 50 over 6 months, still getting worse, so stopped over about 6 weeks starting Dec 2014

First month, slow, emotional, useless then POW! Horrendous withdrawal symptoms, completely non-functional

for about five months, slowly started to come back to life and continue with waves and windows, still more bad than good, but bads are less bad, and goods slightly better each time

Link to comment
Share on other sites

  • 4 weeks later...

Is their anyone who got better after a stress related setback that caused them symptoms like early withdrawal? 

2008-seroxat,zoloft,olanzapine briefly for a few months. No effect no side effects. Jan 2014-  July 2015 fluvoxamine and on and off lexotanil. July 2015 left fluvoxamine after tapering 100 to 75 to 50 to 25mg and then dropped to zero this was over a period of 9 months.  Developed withdrawal sx after 2 months.  October 2015- nov 2015- mirtazapine, buspirone, rivotril quit cold turkey reinstated rivotril then cold turkeyed reinstated mirtazapine(last drug I was on) and tapered in a week  Jan2016.

Link to comment
Share on other sites

  • 1 month later...

Nope... im still waiting to get better from this setback. Been almost a year that ive been suffering severely. 

Was on Citalopram 20mg since Feb 2008 - switched to Paxil 20mg in August 2010

Tapered way too fast in April 2012 by skipping days. Taper completed in 6 weeks

Tried prozac 20mg for 3 days - felt spaced out, not better.

Tried 30mg Cymbalta for 2 days. SEVERE ADVERSE REACTION

Antidepressant free since 14 August 2012

Birth control on and off during this time - Last taken 18 June 2017 - Morning after pill 

Started mainly using 0.5mg Xanax beginning 2016 for severe panic attacks and anxiety due to trauma

Xanax on and off never more than 0.5mg at a time, never taking it 3 days in a row - used sparingly 

 

6 Years antidepressant free - Still in severe withdrawal with over 60 symptoms

Severe setback started May 2018 with no let up to date. Developed many new symptoms like tremors, inner vibrations, insomnia, visual distortions and dr/dp are 100x worse, i have severe sensitivity to movement, My dizziness and vertigo got worse and it now feels like im constantly rocking on a boat, my anxiety is sky high, suicidal idiation is back, i feel extremely brain damaged 

 

Link to comment
Share on other sites

  • 1 year later...

@NoMeaning25

 

hoe are you now are you getting better? 
what  caused your setback ? 

October 2004 Paxil 20mg - October 2018, 14 years

Nov 2018 Pregabalin - 2x50 mg a day to help with Paxil WD

August 2019 Pregabalin - 2 x 25mg a day 

April 2020 Pregabalin - 45mg, May 40mg, June 35mg, beg July 30mg, end July 25mg, Aug 24mg 

June 2021   Pregabalin - 14mg, January 2022 Pregabalin 14mg (2x7mg a day)

October 2018 Paxil - 20 mg, November 15mg, December 10mg  February 2019 Paxil- 7.5mg crashed, February 8.5mg, Nov 8mg 

March 2020 Paxil - 7.2mg, April 6.5mg, May 5.9mg, June 5.4mg, July 4.8mg, December 4.5mg 

January 2021 Paxil - 4mg, February 3.6mg, March 3.2mg, April 2.9mg, Aug 2.7mg, Sept 2.4mg, Oct 2.2mg, Nov 2mg, Dec 1.8mg

 

these dates are approximate 

 

Link to comment
Share on other sites

I think the long term use and subsequent withdrawal from these drugs has left me permanently damaged in so many ways!  Almost six years off and everything in my body over-reacts to any type of stressor, mental or physical, so that I am constantly sick in one way or another.  

Chronic Fatigue Syndrome for 32 years, given AD for this condition alone in 2000

Zoloft 100mg for 15 years, last five of these complained about adverse effects,

unable to tolerate other meds even supplements

Slowly felt sicker, advised by different Dr maybe on ads for too long

Cut back 100 - 50 over 6 months, still getting worse, so stopped over about 6 weeks starting Dec 2014

First month, slow, emotional, useless then POW! Horrendous withdrawal symptoms, completely non-functional

for about five months, slowly started to come back to life and continue with waves and windows, still more bad than good, but bads are less bad, and goods slightly better each time

Link to comment
Share on other sites

  • 1 year later...

I am three years off psych medication ( lexapro) The first two years were good. This last year has been pure hell and I am in a worst state now than I was 14 years ago when I was first diagnosed with anxiety. I am unable to do anything to help myself ( self help)  as my nerves are on edge 24/7

I do not believe this is withdrawal because of the time period that has lapsed and the fact that I felt good for two years. I believe this is a relapse of my original condition. 
I honestly don’t know what to do. If only the experts like Dr Peter Breggin, Healy and Kelly brogan etc had advice on what to actually do to help when you feel like this. My bloods test were good, I take fish oil and magnesium but I’m feeling awful every single day. It’s frustrating to say the least. 

Final dose lexapro  September 2018.
First two years were great. Third year anxiety returned with a vengeance. 
December 2021 reinstated low dose medication. 
Jan 2022 stable

December 2007 30mg Lexapro and a benzodiazepine December 2008 25mg, December 2009 20mg, December 2010 15mg Lexapro, December 2011 10mg Lexapro. Long hold as I felt happy with the dose and saw no need at the time to reduce further. September 2015 dropped to 5mg. Terrible anxiety started two months later. June 2016 dropped to 3mg and terrible obsessive thoughts and anxiety so ten days later I reinstated back to 5mg. October 2016 dropped to 4mg. April 2017 dropped to 3mg. September 2017 dropped to 2mg. Terrible obsessive thoughts. Anxiety through the roof. OCD.  September 2018 quit cold turkey 2mg Lexapro. March 2019 feeling better than I have in years. 

Link to comment
Share on other sites

  • Administrator
10 hours ago, Thelongestroadhome said:

I am three years off psych medication ( lexapro) The first two years were good. This last year has been pure hell and I am in a worst state now than I was 14 years ago when I was first diagnosed with anxiety. I am unable to do anything to help myself ( self help)  as my nerves are on edge 24/7

I do not believe this is withdrawal because of the time period that has lapsed and the fact that I felt good for two years. I believe this is a relapse of my original condition. 
I honestly don’t know what to do. If only the experts like Dr Peter Breggin, Healy and Kelly brogan etc had advice on what to actually do to help when you feel like this. My bloods test were good, I take fish oil and magnesium but I’m feeling awful every single day. It’s frustrating to say the least. 

 

I don't know what Breggin, Healy, or Brogan would say, however, I do know people who are years off these drugs and healed, but then some stressor happens which can make anyone distressed. What blood tests did you have? Did it include vitamin D and B12? Have you needed surgery, dental work, or had other health conditions that required medications that re-traumatized your nervous system? 

 

Do you have a purpose in life and friends? Is your work or school going well? Do you eat well and stay hydrated? Is the pandemic stressors taking their toll on you, as they are for so many of us? Are you watching too much news, staying online for hours, or dwelling in the overall negativity of our pandemic world? Are you getting outside to play? Yes, adults also need to play - we need to do as much as we can once we're healed, so walking, biking, hiking, or other such activities all are very important. Music, art, spirituality (doesn't have to be religious), these are all part of what makes us feel a sense of wellness. 

 

The pandemic has forced parents to take on the responsibility of homeschooling their children. Some workers are working from home in isolation, while others are going into factories, stores, hospitals, and warehouses and working in dangerous conditions. All of this can take its toll. If you're around anxious people a lot, it can cause you to be anxious, as well. 

 

Anxiety can also be a reaction to painful life experiences, current or past. If that's the case, you may want to work with a trauma-informed counselor (one who doesn't prescribe drugs). Anxiety can also be a fear for the future due to an insecure job market, rising costs in housing, grief from either losing a close friend or relative or losing other things such as a good job or a home. Many people find that getting involved in their community to be helpful - if your anxiety is rising cost of housing, join your local tenants' union (many of them have virtual meetings right now). If your job is the problem, seeking out other employment or going back to school to learn a new skill can empower you. If you're lonely, volunteering can be a great way of making connections. If it's pandemic related, reminding yourself that this is temporary can be helpful, as well as avoiding the news for awhile. As long as you're doing all you can to stay well and safe, there's no need to dwell in the pandemic news. 

 

There's something I read early on during withdrawal and it may have originated from addiction medicine, which goes by the acronym HALT. Before reacting to a situation, ask yourself if you are Hungry, Angry, Lonely, or Tired. And I'll add an "S" to this acronym for "Scared". What it comes down to is stress-management until you can pinpoint what's triggering your emotions and then match up an appropriate solution. 

Drug free May 22, 2015 after 30 years of neuroleptics, benzos, z-drugs, so-called "anti"-depressants, and amphetamines 

 

My Success Story:  Shep's Success: "Leaving Plato's Cave"

 

And what is good, Phaedrus, and what is not good — need we ask anyone to tell us these things? ~ Zen and the Art of Motorcycle Maintenance


I am not a medical professional and this is not medical advice, but simply information based on my own experience, as well as other members who have survived these drugs.

 

Link to comment
Share on other sites

Thank you @Shepfor taking the time to respond. 
Yes, there are many factors involved. In retrospect I didn’t do enough to help myself along the way. I allowed negative thinking to grow. I have a lot of work ahead of me. 
Anxiety is very real and quite debilitating. I’ve suffered for many years with various bouts but this takes some beating! 
Ive made some decisions on how to manage it so hopefully this time next year I can come back and write my happy ever after. 

Final dose lexapro  September 2018.
First two years were great. Third year anxiety returned with a vengeance. 
December 2021 reinstated low dose medication. 
Jan 2022 stable

December 2007 30mg Lexapro and a benzodiazepine December 2008 25mg, December 2009 20mg, December 2010 15mg Lexapro, December 2011 10mg Lexapro. Long hold as I felt happy with the dose and saw no need at the time to reduce further. September 2015 dropped to 5mg. Terrible anxiety started two months later. June 2016 dropped to 3mg and terrible obsessive thoughts and anxiety so ten days later I reinstated back to 5mg. October 2016 dropped to 4mg. April 2017 dropped to 3mg. September 2017 dropped to 2mg. Terrible obsessive thoughts. Anxiety through the roof. OCD.  September 2018 quit cold turkey 2mg Lexapro. March 2019 feeling better than I have in years. 

Link to comment
Share on other sites

  • Administrator
16 minutes ago, Thelongestroadhome said:

In retrospect I didn’t do enough to help myself along the way. I allowed negative thinking to grow. I have a lot of work ahead of me. 

 

This is excellent work, longestroad. You pinpointed the problem and are going to work on the solution.

 

17 minutes ago, Thelongestroadhome said:

Ive made some decisions on how to manage it so hopefully this time next year I can come back and write my happy ever after. 

 

We all look forward to reading your "happy ever after."

Drug free May 22, 2015 after 30 years of neuroleptics, benzos, z-drugs, so-called "anti"-depressants, and amphetamines 

 

My Success Story:  Shep's Success: "Leaving Plato's Cave"

 

And what is good, Phaedrus, and what is not good — need we ask anyone to tell us these things? ~ Zen and the Art of Motorcycle Maintenance


I am not a medical professional and this is not medical advice, but simply information based on my own experience, as well as other members who have survived these drugs.

 

Link to comment
Share on other sites

  • 2 weeks later...

Hi @Thelongestroadhomei saw in your signature you’re taking a low dose med. what is it? How are you feeling? 
 

so, my story is similar to yours. 
 

In 2014 I CT Prozac after two years of taking it. I had some bad neurological/emotional effects/withdraw for a few months after but learned really helpful coping skills. Breathing. CBT. Mindfulness practice. Meditation practice. Yoga. Cycling. Removing hormonal birth control. Living with family for a while for comfort/stability. I was DILIGENT. Meaning, I took my life in complete control because I didn’t want to feel so bad. These were daily things that helped so much. 
 

Then in 2016 I moved to a new country on a solo journey — kind of an “eat pray love” moment. And within 6 months of the move so many of the original anxiety symptoms came back. Weeping daily. Violent intrusive thoughts. Deep, profound loneliness. And it was hard. And I was pissed. 
 

I kept thinking, “why is this happening to me? Again? WTF.” “Why is this happening on a journey of a lifetime? Why can’t I just be normal?” 
 

So I marched down to the local hospital and asked for an SSRI. I got it same day, and have been on it until now, over five. years. later. That was not my intention. 
 

Without any deep regret or blame, a huge, huge part of me wishes I did not do that. 


I say that because I never and I mean NEVER imagined I would now be going to pick up liquid SSRI to taper off minutely and slowly. That terrifies me as much as that anxiety did when I wasn’t even on the medication. That I’m so damned dependent on a drug I never meant to be dependent on. A drug that, from the to now, didn’t do much in reality because I’m back to a similar spot (and 50 pounds heavier. Which sucks more that I care to admit.)

But I had the same question as you: is this a reemergence/affirmation of a “disorder”?
 

and… Honestly, maybe? But… so what? 
 

I look back at other factors. For example, my diet was ****. I was/am estrogen dominance, depleted of minerals, living off PUFA’s, black coffee, and sugar (which I’m very pro-sugar — every cell in your brain runs on GLUCOSE, please look up the pro-metabolic community like Ray Peat — but it needs to be in context of protein AND fat when you consume — a balance if you will). And I was living in a NEW country! A third world country (shocking to an American, I’m not ashamed to say), living alone, new job, new friends. Of course my nervous system was wired. And as a sensitive individual, it hit me hard. 
 

All this to say, I hear you. 
 

I just look back and wish I could have persevered… kept doing the yoga, meeting with friends, changing what I ate (and eating CONSISTENTLY! Balancing blood sugar is something I cannot ever recommend enough. Should be priority #1 in all anxious individuals — again, look up Ray Peat, Jessica Ash Wellness, etc.) all because every road leads home… meaning you will arrive where you already are. And like Dr. Brogan says, there is no free lunch. With mediation we WILL pay at some point. 
 

anyway, I hope this lets you know you’re not alone in that worry/thought. 
 

love, 

Abel

 

 

Oct 2012 — Prozac 20 mg 

July 2014 — CT Prozac 

Dec 2016 — reinstated Prozac 20 mg due to extreme OCD thoughts, panic, weeping (was in a new challenging life situation)

April 2017 — switched to lexapro 10 mg 

Oct 25 2021 — down to 5 mg lexapro 

Dec 6 2021 — down to 2.5 mg lexapro 

Dec 28 2021 — back to 5 mg lexapro due to weeping, panicky feelings 

Link to comment
Share on other sites

Also, @ThelongestroadhomeYou were on lexapro for 11 years and then quit CT at 2 mg which is quite a large dose still based on what I’ve seen in this forum. Lexparo is a much stronger than other antidepressants I think 5 mg is comparable to 20-30 of Paxil if I’m not mistaken. So it makes sense you were having protracted withdrawal 

Oct 2012 — Prozac 20 mg 

July 2014 — CT Prozac 

Dec 2016 — reinstated Prozac 20 mg due to extreme OCD thoughts, panic, weeping (was in a new challenging life situation)

April 2017 — switched to lexapro 10 mg 

Oct 25 2021 — down to 5 mg lexapro 

Dec 6 2021 — down to 2.5 mg lexapro 

Dec 28 2021 — back to 5 mg lexapro due to weeping, panicky feelings 

Link to comment
Share on other sites

On 1/11/2022 at 11:32 AM, AbelRiver said:

Also, @ThelongestroadhomeYou were on lexapro for 11 years and then quit CT at 2 mg which is quite a large dose still based on what I’ve seen in this forum. Lexparo is a much stronger than other antidepressants I think 5 mg is comparable to 20-30 of Paxil if I’m not mistaken. So it makes sense you were having protracted withdrawal 

Hi @AbelRiverthank you for sharing. I don’t think that I was suffering protracted withdrawal, mainly because I spent two years perfectly well. I never had any withdrawal symptoms at all during that time. Actually my withdrawal was so easy in many respects that I felt guilty for even sharing here!! 

My symptoms re appeared after a series of personal events. My husband had a TIA, my dad was diagnosed with Alzheimer’s and moved to a care facility, I experienced several health scares. It built up over a period of time and all my self care techniques failed to save me. I found myself back where I had been 14 years earlier. 

 

I have been following the Ray Peat diet for twelve months and lost a fair bit of weight and feeling much healthier within ( apart from the anxiety!) 

 

I wish you well on your journey. Life is a precious gift and to live it fully is my greatest hope ❤️

Final dose lexapro  September 2018.
First two years were great. Third year anxiety returned with a vengeance. 
December 2021 reinstated low dose medication. 
Jan 2022 stable

December 2007 30mg Lexapro and a benzodiazepine December 2008 25mg, December 2009 20mg, December 2010 15mg Lexapro, December 2011 10mg Lexapro. Long hold as I felt happy with the dose and saw no need at the time to reduce further. September 2015 dropped to 5mg. Terrible anxiety started two months later. June 2016 dropped to 3mg and terrible obsessive thoughts and anxiety so ten days later I reinstated back to 5mg. October 2016 dropped to 4mg. April 2017 dropped to 3mg. September 2017 dropped to 2mg. Terrible obsessive thoughts. Anxiety through the roof. OCD.  September 2018 quit cold turkey 2mg Lexapro. March 2019 feeling better than I have in years. 

Link to comment
Share on other sites

@Thelongestroadhome

hi there

Can I ask you is anxiety your only symptom? 
I am tapering off Paxil and have had symptoms throughout. 

October 2004 Paxil 20mg - October 2018, 14 years

Nov 2018 Pregabalin - 2x50 mg a day to help with Paxil WD

August 2019 Pregabalin - 2 x 25mg a day 

April 2020 Pregabalin - 45mg, May 40mg, June 35mg, beg July 30mg, end July 25mg, Aug 24mg 

June 2021   Pregabalin - 14mg, January 2022 Pregabalin 14mg (2x7mg a day)

October 2018 Paxil - 20 mg, November 15mg, December 10mg  February 2019 Paxil- 7.5mg crashed, February 8.5mg, Nov 8mg 

March 2020 Paxil - 7.2mg, April 6.5mg, May 5.9mg, June 5.4mg, July 4.8mg, December 4.5mg 

January 2021 Paxil - 4mg, February 3.6mg, March 3.2mg, April 2.9mg, Aug 2.7mg, Sept 2.4mg, Oct 2.2mg, Nov 2mg, Dec 1.8mg

 

these dates are approximate 

 

Link to comment
Share on other sites

@ThelongestroadhomeI'm glad Ray Peat is working for you! hopefully that will help sort out the anxious feelings in time. 

 

Is your new medication helping you now? 

Oct 2012 — Prozac 20 mg 

July 2014 — CT Prozac 

Dec 2016 — reinstated Prozac 20 mg due to extreme OCD thoughts, panic, weeping (was in a new challenging life situation)

April 2017 — switched to lexapro 10 mg 

Oct 25 2021 — down to 5 mg lexapro 

Dec 6 2021 — down to 2.5 mg lexapro 

Dec 28 2021 — back to 5 mg lexapro due to weeping, panicky feelings 

Link to comment
Share on other sites

10 hours ago, Longroadhome said:

@Thelongestroadhome

hi there

Can I ask you is anxiety your only symptom? 
I am tapering off Paxil and have had symptoms throughout. 

I have lived with life long anxiety, it seems to be rampant in my family! But until 14 years ago it was always manageable. I struggled with intermittent anxiety whilst withdrawing but like in my younger years it was relatively easy to manage. 
 

The anxiety I experienced  for twelve months leading up to my decision to reinstate was different because my ‘tool kit’ wasn’t helping like it did in former times. The unrelenting anxiety led to panic attacks, something I hadn’t experienced in 14 years.  That eventually led to a fear of leaving my home. I basically became house bound. My children witnessed me crying more often than not. It was for that reason that I decided to re instate. 
 

For me reinstatement has worked. I am not here to promote medication and I have many underlying fears about my decision based upon the knowledge I received here. But at the end of the day I did what I did for my family. 
 

God bless, I wish you well 

Final dose lexapro  September 2018.
First two years were great. Third year anxiety returned with a vengeance. 
December 2021 reinstated low dose medication. 
Jan 2022 stable

December 2007 30mg Lexapro and a benzodiazepine December 2008 25mg, December 2009 20mg, December 2010 15mg Lexapro, December 2011 10mg Lexapro. Long hold as I felt happy with the dose and saw no need at the time to reduce further. September 2015 dropped to 5mg. Terrible anxiety started two months later. June 2016 dropped to 3mg and terrible obsessive thoughts and anxiety so ten days later I reinstated back to 5mg. October 2016 dropped to 4mg. April 2017 dropped to 3mg. September 2017 dropped to 2mg. Terrible obsessive thoughts. Anxiety through the roof. OCD.  September 2018 quit cold turkey 2mg Lexapro. March 2019 feeling better than I have in years. 

Link to comment
Share on other sites

9 hours ago, AbelRiver said:

@ThelongestroadhomeI'm glad Ray Peat is working for you! hopefully that will help sort out the anxious feelings in time. 

 

Is your new medication helping you now? 

Yes, it is ❤️

Final dose lexapro  September 2018.
First two years were great. Third year anxiety returned with a vengeance. 
December 2021 reinstated low dose medication. 
Jan 2022 stable

December 2007 30mg Lexapro and a benzodiazepine December 2008 25mg, December 2009 20mg, December 2010 15mg Lexapro, December 2011 10mg Lexapro. Long hold as I felt happy with the dose and saw no need at the time to reduce further. September 2015 dropped to 5mg. Terrible anxiety started two months later. June 2016 dropped to 3mg and terrible obsessive thoughts and anxiety so ten days later I reinstated back to 5mg. October 2016 dropped to 4mg. April 2017 dropped to 3mg. September 2017 dropped to 2mg. Terrible obsessive thoughts. Anxiety through the roof. OCD.  September 2018 quit cold turkey 2mg Lexapro. March 2019 feeling better than I have in years. 

Link to comment
Share on other sites

36 minutes ago, Thelongestroadhome said:

I have lived with life long anxiety, it seems to be rampant in my family! But until 14 years ago it was always manageable. I struggled with intermittent anxiety whilst withdrawing but like in my younger years it was relatively easy to manage. 
 

The anxiety I experienced  for twelve months leading up to my decision to reinstate was different because my ‘tool kit’ wasn’t helping like it did in former times. The unrelenting anxiety led to panic attacks, something I hadn’t experienced in 14 years.  That eventually led to a fear of leaving my home. I basically became house bound. My children witnessed me crying more often than not. It was for that reason that I decided to re instate. 
 

For me reinstatement has worked. I am not here to promote medication and I have many underlying fears about my decision based upon the knowledge I received here. But at the end of the day I did what I did for my family. 
 

God bless, I wish you well 

My opinion is that successful reinstatements should also be reported so we get a better picture about how often they work. If only the members who got worst after reinstating report then we don’t get a clear picture. I am glad it worked for you ….. Do you mind updating ur signature so we know what dose worked for u? 

Aug. 16-17, 2020, cipralex: went CRAZY! Recovered in 24hrs

 

Aug.28,2020; 3.5 weeks 25mg sertraline/4.5 weeks taper

Oct. 25: Last dose (4mg)

Symptoms while on zoloft

DPDR/out of my body/soul despair/feeling dead; tinnitus/no appetite; fear, anxiety/panics

4 months OFF: soul despair, anxiety/fear, brain disconnection/ DPDR, brain feels swollen-numb/crazy/bedridden barely functioning, tinnitus, eye lid twitches; face spasms. Feeling slightly better after 10pm.

- sleep & appetite are fine

9 months OFF: hell, no windows, same symptoms as above  (only eye and face twitches have stopped) plus intense arm/shoulder pain and visual issues. Tinnitus replaced by head buzzing. 

10 months-1 year: all above plus Insomnia (out of nowhere), depression, no peace of mind (mental Akathisia); 2.5mg melatonin

14 months off: sleep resumed. All rest symptoms remain. Bedridden vegetable all day. DP is relentless.

 

Link to comment
Share on other sites

21 hours ago, JesusSavemefromWD said:

My opinion is that successful reinstatements should also be reported so we get a better picture about how often they work. If only the members who got worst after reinstating report then we don’t get a clear picture. I am glad it worked for you ….. Do you mind updating ur signature so we know what dose worked for u? 

Hi @JesusSavemefromWD

I deliberately have not added too much information to my signature because the ethos of this site is withdrawing from psychiatric medication not promoting it. It can be triggering for some people. 
 

I was medication free for three years before returning to my doctor and asking to go back on medication. I did not go back on the medication I was on previously (lexapro) and am on a low therapeutic dose, not a micro dose, as prescribed by my doctor. 
 

I wish you well ❤️

Final dose lexapro  September 2018.
First two years were great. Third year anxiety returned with a vengeance. 
December 2021 reinstated low dose medication. 
Jan 2022 stable

December 2007 30mg Lexapro and a benzodiazepine December 2008 25mg, December 2009 20mg, December 2010 15mg Lexapro, December 2011 10mg Lexapro. Long hold as I felt happy with the dose and saw no need at the time to reduce further. September 2015 dropped to 5mg. Terrible anxiety started two months later. June 2016 dropped to 3mg and terrible obsessive thoughts and anxiety so ten days later I reinstated back to 5mg. October 2016 dropped to 4mg. April 2017 dropped to 3mg. September 2017 dropped to 2mg. Terrible obsessive thoughts. Anxiety through the roof. OCD.  September 2018 quit cold turkey 2mg Lexapro. March 2019 feeling better than I have in years. 

Link to comment
Share on other sites

@Thelongestroadhome

may I ask when did you go back on medication?
im glad it is working for you. 

October 2004 Paxil 20mg - October 2018, 14 years

Nov 2018 Pregabalin - 2x50 mg a day to help with Paxil WD

August 2019 Pregabalin - 2 x 25mg a day 

April 2020 Pregabalin - 45mg, May 40mg, June 35mg, beg July 30mg, end July 25mg, Aug 24mg 

June 2021   Pregabalin - 14mg, January 2022 Pregabalin 14mg (2x7mg a day)

October 2018 Paxil - 20 mg, November 15mg, December 10mg  February 2019 Paxil- 7.5mg crashed, February 8.5mg, Nov 8mg 

March 2020 Paxil - 7.2mg, April 6.5mg, May 5.9mg, June 5.4mg, July 4.8mg, December 4.5mg 

January 2021 Paxil - 4mg, February 3.6mg, March 3.2mg, April 2.9mg, Aug 2.7mg, Sept 2.4mg, Oct 2.2mg, Nov 2mg, Dec 1.8mg

 

these dates are approximate 

 

Link to comment
Share on other sites

On 1/12/2022 at 8:06 PM, JesusSavemefromWD said:

My opinion is that successful reinstatements should also be reported so we get a better picture about how often they work. If only the members who got worst after reinstating report then we don’t get a clear picture. I am glad it worked for you ….. Do you mind updating ur signature so we know what dose worked for u? 

I agree with this statement... I was someone who went back on medication after two years off (almost the same story as @Thelongestroadhome) and I felt much better when I went to my doctor and asked to go back on, as many probably do (placebo??). But now it's five years later and wish I did not do that as it's hard to get off and extremely destabilizing.

 

And while it quelled the intrusive thoughts and anxiety at the time I wish I perservered and calmed my central nervous system in other ways. Just my experience. I believe at the end of the day all medication is a crutch, but we each have free autonomy to choose our crutches. And sometimes life hurts so bad in the moment and we just need something to calm it. That was me, too. I just realize now as Kelly Brogan said, "there are no free lunches." It's all cause and effect. And that's okay. We move forward.

 

x

Oct 2012 — Prozac 20 mg 

July 2014 — CT Prozac 

Dec 2016 — reinstated Prozac 20 mg due to extreme OCD thoughts, panic, weeping (was in a new challenging life situation)

April 2017 — switched to lexapro 10 mg 

Oct 25 2021 — down to 5 mg lexapro 

Dec 6 2021 — down to 2.5 mg lexapro 

Dec 28 2021 — back to 5 mg lexapro due to weeping, panicky feelings 

Link to comment
Share on other sites

On 1/12/2022 at 7:26 PM, Thelongestroadhome said:

I have lived with life long anxiety, it seems to be rampant in my family! But until 14 years ago it was always manageable. I struggled with intermittent anxiety whilst withdrawing but like in my younger years it was relatively easy to manage. 
 

The anxiety I experienced  for twelve months leading up to my decision to reinstate was different because my ‘tool kit’ wasn’t helping like it did in former times. The unrelenting anxiety led to panic attacks, something I hadn’t experienced in 14 years.  That eventually led to a fear of leaving my home. I basically became house bound. My children witnessed me crying more often than not. It was for that reason that I decided to re instate. 
 

For me reinstatement has worked. I am not here to promote medication and I have many underlying fears about my decision based upon the knowledge I received here. But at the end of the day I did what I did for my family. 
 

God bless, I wish you well 

I'm sorry you were hurting so bad. Sometimes we do what we need to do and that's okay. I'm glad you have some relief now. 

 

❤️ 

Oct 2012 — Prozac 20 mg 

July 2014 — CT Prozac 

Dec 2016 — reinstated Prozac 20 mg due to extreme OCD thoughts, panic, weeping (was in a new challenging life situation)

April 2017 — switched to lexapro 10 mg 

Oct 25 2021 — down to 5 mg lexapro 

Dec 6 2021 — down to 2.5 mg lexapro 

Dec 28 2021 — back to 5 mg lexapro due to weeping, panicky feelings 

Link to comment
Share on other sites

20 hours ago, Longroadhome said:

@Thelongestroadhome

may I ask when did you go back on medication?
im glad it is working for you. 

I started late November ❤️

Final dose lexapro  September 2018.
First two years were great. Third year anxiety returned with a vengeance. 
December 2021 reinstated low dose medication. 
Jan 2022 stable

December 2007 30mg Lexapro and a benzodiazepine December 2008 25mg, December 2009 20mg, December 2010 15mg Lexapro, December 2011 10mg Lexapro. Long hold as I felt happy with the dose and saw no need at the time to reduce further. September 2015 dropped to 5mg. Terrible anxiety started two months later. June 2016 dropped to 3mg and terrible obsessive thoughts and anxiety so ten days later I reinstated back to 5mg. October 2016 dropped to 4mg. April 2017 dropped to 3mg. September 2017 dropped to 2mg. Terrible obsessive thoughts. Anxiety through the roof. OCD.  September 2018 quit cold turkey 2mg Lexapro. March 2019 feeling better than I have in years. 

Link to comment
Share on other sites

12 hours ago, AbelRiver said:

I agree with this statement... I was someone who went back on medication after two years off (almost the same story as @Thelongestroadhome) and I felt much better when I went to my doctor and asked to go back on, as many probably do (placebo??). But now it's five years later and wish I did not do that as it's hard to get off and extremely destabilizing.

 

And while it quelled the intrusive thoughts and anxiety at the time I wish I perservered and calmed my central nervous system in other ways. Just my experience. I believe at the end of the day all medication is a crutch, but we each have free autonomy to choose our crutches. And sometimes life hurts so bad in the moment and we just need something to calm it. That was me, too. I just realize now as Kelly Brogan said, "there are no free lunches." It's all cause and effect. And that's okay. We move forward.

 

x

I was on 5mg lexapro for a long time. I stayed at that amount for so long because I jumped from 10 to 5 and suffered terrible rebound anxiety doing that. I didn’t know any better at the time. Lexapro is stronger than other drugs and that was a huge jump. 
 

One thing that was good in staying on 5mg was I eventually stabilised and did so much work on my self care. I literally was living my best life during that time and when I continued dropping down to 4,3, 2 etc it got easier each time. If you read my thread I felt guilty for not suffering!! 
 

Sadly I am my own worse enemy and didn’t continue with the self help once I got off lexapro because I felt sooo well! It caught up with me and here I am again! But already I’m back to my Eckhart Tolle, Byron Katie, meditation and all the other good stuff. I’ll kick this anxiety in the backside if it is the last thing I do. ❤️

Final dose lexapro  September 2018.
First two years were great. Third year anxiety returned with a vengeance. 
December 2021 reinstated low dose medication. 
Jan 2022 stable

December 2007 30mg Lexapro and a benzodiazepine December 2008 25mg, December 2009 20mg, December 2010 15mg Lexapro, December 2011 10mg Lexapro. Long hold as I felt happy with the dose and saw no need at the time to reduce further. September 2015 dropped to 5mg. Terrible anxiety started two months later. June 2016 dropped to 3mg and terrible obsessive thoughts and anxiety so ten days later I reinstated back to 5mg. October 2016 dropped to 4mg. April 2017 dropped to 3mg. September 2017 dropped to 2mg. Terrible obsessive thoughts. Anxiety through the roof. OCD.  September 2018 quit cold turkey 2mg Lexapro. March 2019 feeling better than I have in years. 

Link to comment
Share on other sites

 Share

×
×
  • Create New...

Important Information

Terms of Use Privacy Policy