Jump to content

Recommended Posts

  • Mentor
23 minutes ago, Leo1983 said:

have had a relaxing day. My mother came to visit for a half hour and i walked the dogs. I have just ate some takeaway food which was ok however im fussy lol. 

 

Im watching xfactor and lost my bet who would win

 

hahaha, oh well, did you put any money on that bet?

 

it's great you can have a relaxing day, so nice to spend time with your mom and walk the dogs too.

animals are wonderful stress relievers (sometimes, anyway LOL)

 

 

PLEASE DO NOT SEND ME PRIVATE MESSAGES, thank you. 

  • pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) 
  •  Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years
  • started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 
  •  2013 too fast taper down to 5mg but WD forced me back to 20mgs
  •  June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until  Sept, then acute WD hit!!  reinstated at 0.3mgs in Oct. 2106
  • Tapered off to zero by  Oct. 2017 Doing very well. 
  • Nov. 2018 feel 95% healed, age 63 
  • Jan. 2020 feel 100% healed, peaceful and content
  • Dec 2023 Loving life! ❤️ with all it's ups and downs ;) 
Link to comment
Share on other sites

My time spent as an addictions nurse taught me not to gamble. 

 

It was a verbal bet.

 

Aww yes - some mornings i want to lock the outside. They can be hard work. 

 

I did nothing much. I could bot sleep today... i miss a power nap. 

May 2016 - Aug 2016 - Prozac 20mg

 

March 2017 - June 2017 - Sertraline 100mg. Horrific withdrawal 5 m onths.

 

July 2017 - Aug 2017 - Mirtazapine 15mg. Horrific.

 

August 2017 - December 2017 Fluoxetine 10mg for 2 weeks ghen Escitalopram 20mg for 12 weeks. Never felt normal since this. Or baseline.

 

March 2018 - June 2018 - Escitalopram 5mg for 12 weeks. Stopped and here i am full of symptoms i never had.

 

Link to comment
Share on other sites

  • Mentor

regarding that 1%- it seems like I just went thru a bit of a wave.

very mild, but def not pleasant

but I'm ok now

 

if I had done a proper taper, I'd actually still be on lexapro now, at a dose of 0.16 I believe, so considering that, I'm doing pretty darn well I'd say

 

so, I guess that was my 13 1/2 month post zero wave.....? LOL 

I had the 10 month wave, are there others?

 

 

 

 

 

 

 

PLEASE DO NOT SEND ME PRIVATE MESSAGES, thank you. 

  • pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) 
  •  Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years
  • started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 
  •  2013 too fast taper down to 5mg but WD forced me back to 20mgs
  •  June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until  Sept, then acute WD hit!!  reinstated at 0.3mgs in Oct. 2106
  • Tapered off to zero by  Oct. 2017 Doing very well. 
  • Nov. 2018 feel 95% healed, age 63 
  • Jan. 2020 feel 100% healed, peaceful and content
  • Dec 2023 Loving life! ❤️ with all it's ups and downs ;) 
Link to comment
Share on other sites

I'm glad you feel better; how long did it last? I feel like I've been in a wave for, I don't know, a week? 10 days?

Currently taking Ramapril (blood pressure) 5 mg twice a day

Omeprazole 10 mg AM and 20 mg PM  (the taper has gone nowhere after the first cut)

Famotidine   once a day (and I still needs tums sometimes)

magnesium 200 mg at night

as of yesterday 2 fish oil capsules "EPA-DHA 1000"

 

off Lexapro as of 5/2018  - last dose had been 5 mg every other day for a couple years

 

highest dose had been 20 mg at which point I was diagnosed with Bipolar II, which went away when I cut the lexapro down to 15 mg. 

 

I spent years on Paxil before Lexapro (can't remember dose), briefly on Effexor and Abilify and others I have forgotten. in fact, when I was diagnoses with BPII I was put on all kinds of things which made me feel so bad I stopped them cold turkey within maybe 3 or 4 weeks, thank goodness. since then I've known these pills were terrible and I weaned down the Lexapro with zero help or support over I'm not sure how many years. 

 

Link to comment
Share on other sites

  • Mentor
12 hours ago, JackieDecides said:

I'm glad you feel better; how long did it last? I feel like I've been in a wave for, I don't know, a week? 10 days?

 

aw sorry to hear that. 

I'm not sure how long the wave was, because I didn't see it as one til it suddenly ended and for no apparent reason, I felt 1000 times better

 

that's when I think it's gotta be WD/recovery related, when the change is sudden and dramatic like that

 

if I had to guess, I'd say it was about 10 days to 2 weeks long....?

 

If I had tapered the way you're supposed to, 10% of current dose, I would have been at zero around the middle of 2019, I think (I should write the date down, so I don't keep forgetting)

 

so in my mind, the fact that I'm doing so well this "early" is a major bonus

and the fact that I may still have waves is to be expected, really and something I shouldn't worry about nor freak out about

 

I also had tried to get off this med, the lexapro, many times!!  I was off once for 7 mos, but I'd gone off CT and was so miserable I went back on it. And felt immediately better.

funny thing is, each time I got to a lower dose and then had the symptoms relieved by reinstating, it just reinforced the idea that I "needed" the drug and wouldn't do well without it.  that I had a biologically based or chemically based "illness" that was being "corrected" by this drug, these chemicals

 

now I know the truth: the drug caused a  chemical imbalance in my brain and now my brain is trying to get back to it's "factory settings"  

 

this is the first time in my journey that I can say that healing is no longer linear.

I have very long, super good windows with the rare wave (so far since getting to zero, this is the second one, the first one was at 10 mos off)

 

PLEASE DO NOT SEND ME PRIVATE MESSAGES, thank you. 

  • pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) 
  •  Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years
  • started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 
  •  2013 too fast taper down to 5mg but WD forced me back to 20mgs
  •  June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until  Sept, then acute WD hit!!  reinstated at 0.3mgs in Oct. 2106
  • Tapered off to zero by  Oct. 2017 Doing very well. 
  • Nov. 2018 feel 95% healed, age 63 
  • Jan. 2020 feel 100% healed, peaceful and content
  • Dec 2023 Loving life! ❤️ with all it's ups and downs ;) 
Link to comment
Share on other sites

Happy, what did your recent wave look like? What were the symptoms? I hope you feel better by now. 

Prozac (?mg)

- March 6, 2017. took it for 6 days and on day 7 had an adverse reaction. I believe it was serotonin syndrome.

Lexapro (Escitalopram) 10mg

-March 15 , 2017: first dose of Lexapro and stabilized within 3 weeks.

-April 19, 2018:  began to taper 1 yr from first dose

- style of tapering: 10 mg to 5mg (2 months). 5mg to 2.5mg (2-3 weeks) 2.5mg to 1.25mg (2 weeks). 1.25mg every other day (2 weeks).

- August 19, 2018: 0mg

- felt fine for weeks after 0mg. Had minor panic attacks if I didn't eat every 4 hrs. otherwise felt fine. 
- Mid September: had teeth extractions done, given antibiotics (ammox) and had severe rash reaction to it, was then given a steroid shot to alleviate the rash. This is when things started to go downhill. 

- October 4, 2018: intense withdrawal symptoms started 6 weeks after 0 mg.  

- October 13, 2018: reinstated using the oral solution ( .20mg)/ 10.17.18: .30mg/ 12.8.18: .29mg/12.31.18: .28mg

Link to comment
Share on other sites

Happy, it's so wonderful to read your posts as  I am always enormously encouraged. 😍

can you tell us more about what it means when healing is non-linear? 

Currently taking Ramapril (blood pressure) 5 mg twice a day

Omeprazole 10 mg AM and 20 mg PM  (the taper has gone nowhere after the first cut)

Famotidine   once a day (and I still needs tums sometimes)

magnesium 200 mg at night

as of yesterday 2 fish oil capsules "EPA-DHA 1000"

 

off Lexapro as of 5/2018  - last dose had been 5 mg every other day for a couple years

 

highest dose had been 20 mg at which point I was diagnosed with Bipolar II, which went away when I cut the lexapro down to 15 mg. 

 

I spent years on Paxil before Lexapro (can't remember dose), briefly on Effexor and Abilify and others I have forgotten. in fact, when I was diagnoses with BPII I was put on all kinds of things which made me feel so bad I stopped them cold turkey within maybe 3 or 4 weeks, thank goodness. since then I've known these pills were terrible and I weaned down the Lexapro with zero help or support over I'm not sure how many years. 

 

Link to comment
Share on other sites

Quote

I'm not sure how long the wave was, because I didn't see it as one til it suddenly ended and for no apparent reason, I felt 1000 times better

 

this is my experience, too, don't know I am in a wave at the beginning of it.

 

I think one is receding for me just lately, and it's "going away" is more obvious. 

Currently taking Ramapril (blood pressure) 5 mg twice a day

Omeprazole 10 mg AM and 20 mg PM  (the taper has gone nowhere after the first cut)

Famotidine   once a day (and I still needs tums sometimes)

magnesium 200 mg at night

as of yesterday 2 fish oil capsules "EPA-DHA 1000"

 

off Lexapro as of 5/2018  - last dose had been 5 mg every other day for a couple years

 

highest dose had been 20 mg at which point I was diagnosed with Bipolar II, which went away when I cut the lexapro down to 15 mg. 

 

I spent years on Paxil before Lexapro (can't remember dose), briefly on Effexor and Abilify and others I have forgotten. in fact, when I was diagnoses with BPII I was put on all kinds of things which made me feel so bad I stopped them cold turkey within maybe 3 or 4 weeks, thank goodness. since then I've known these pills were terrible and I weaned down the Lexapro with zero help or support over I'm not sure how many years. 

 

Link to comment
Share on other sites

  • Mentor
4 hours ago, JackieDecides said:

Happy, it's so wonderful to read your posts as  I am always enormously encouraged. 😍

can you tell us more about what it means when healing is non-linear? 

 

on the forum it's usually said that healing is non linear, meaning that you get better and then you have symptoms that seem to put you behind, sort of like one step forward, two steps back, I guess?

 

it's up and down.

my symptoms over the course of the past few years *were* actually linear,  in contrast to what most say is the pattern.

I did get better and better, very slowly mind you, but I never went backwards.
 

Now I'm feeling mostly healed but I have had the non linear pattern of symptoms that were from a long time ago, symptoms I"ve not had in a long time.

 

does that explain it ?

 

PLEASE DO NOT SEND ME PRIVATE MESSAGES, thank you. 

  • pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) 
  •  Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years
  • started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 
  •  2013 too fast taper down to 5mg but WD forced me back to 20mgs
  •  June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until  Sept, then acute WD hit!!  reinstated at 0.3mgs in Oct. 2106
  • Tapered off to zero by  Oct. 2017 Doing very well. 
  • Nov. 2018 feel 95% healed, age 63 
  • Jan. 2020 feel 100% healed, peaceful and content
  • Dec 2023 Loving life! ❤️ with all it's ups and downs ;) 
Link to comment
Share on other sites

  • Mentor
3 hours ago, JackieDecides said:

 

this is my experience, too, don't know I am in a wave at the beginning of it.

 

I think one is receding for me just lately, and it's "going away" is more obvious. 

 

yes when this wave hit, I didn't know it was a wave- I just thought I was having a couple of bad days.

the symptoms were mostly cortisol spikes around 5 am and some anxiety and odd fears, that come out of no where...

no physical issues, it was mostly just feeling bad and having odd thoughts that were disturbing

 

I did the wrong thing, I tried to deny these feelings and thoughts and run away from them, and that of course didn't help

I kept thinking, I'm OFF the drug, it's been over a YEAR since I took any at all, this should not be happening

 

but I had to accept that I was having symptoms and that they were very much like WD recovery symptoms and when I did that,

I felt a rush of relief

I was like, ok, WD symptoms? been there, done that! I can handle this, it won't last long, and then I'll feel better

 

shortly after acknowledging and accepting the wave, it abated.

 

it's weird that it goes that way for me.


I get stuck in this expectation that things are primarily really good now and so I don't expect anything that's "not good" LOL

when something not good comes along, it doesn't fit into the picture I have in my head of how my life is supposed to be now

so i kinda reject it, I guess

 

I'm kind of a mess when it comes to accepting reality sometimes I guess you'd say LOL

 

how have you been going?

 

good I Hope!!

 

PLEASE DO NOT SEND ME PRIVATE MESSAGES, thank you. 

  • pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) 
  •  Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years
  • started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 
  •  2013 too fast taper down to 5mg but WD forced me back to 20mgs
  •  June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until  Sept, then acute WD hit!!  reinstated at 0.3mgs in Oct. 2106
  • Tapered off to zero by  Oct. 2017 Doing very well. 
  • Nov. 2018 feel 95% healed, age 63 
  • Jan. 2020 feel 100% healed, peaceful and content
  • Dec 2023 Loving life! ❤️ with all it's ups and downs ;) 
Link to comment
Share on other sites

  • Mentor
5 hours ago, WarriorWomanLV said:

Happy, what did your recent wave look like? What were the symptoms? I hope you feel better by now. 

hi WW
i just posted above with the symptoms

 

I am feeling better now, thanks

:)

 

PLEASE DO NOT SEND ME PRIVATE MESSAGES, thank you. 

  • pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) 
  •  Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years
  • started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 
  •  2013 too fast taper down to 5mg but WD forced me back to 20mgs
  •  June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until  Sept, then acute WD hit!!  reinstated at 0.3mgs in Oct. 2106
  • Tapered off to zero by  Oct. 2017 Doing very well. 
  • Nov. 2018 feel 95% healed, age 63 
  • Jan. 2020 feel 100% healed, peaceful and content
  • Dec 2023 Loving life! ❤️ with all it's ups and downs ;) 
Link to comment
Share on other sites

Quote

I'm kind of a mess when it comes to accepting reality sometimes 

me, too! and I totally understand your non-linear explanation.

 

I think AD are the ultimate in covering up/running from feelings - if nothing else, they train us not to care about the bad ones. instead of facing them or just feeling them.

 

whatever healthy people do.  but then, that's us - healthy people, on the road to even more healthy. 

 

good for you for accepting the wave. ❤️

Currently taking Ramapril (blood pressure) 5 mg twice a day

Omeprazole 10 mg AM and 20 mg PM  (the taper has gone nowhere after the first cut)

Famotidine   once a day (and I still needs tums sometimes)

magnesium 200 mg at night

as of yesterday 2 fish oil capsules "EPA-DHA 1000"

 

off Lexapro as of 5/2018  - last dose had been 5 mg every other day for a couple years

 

highest dose had been 20 mg at which point I was diagnosed with Bipolar II, which went away when I cut the lexapro down to 15 mg. 

 

I spent years on Paxil before Lexapro (can't remember dose), briefly on Effexor and Abilify and others I have forgotten. in fact, when I was diagnoses with BPII I was put on all kinds of things which made me feel so bad I stopped them cold turkey within maybe 3 or 4 weeks, thank goodness. since then I've known these pills were terrible and I weaned down the Lexapro with zero help or support over I'm not sure how many years. 

 

Link to comment
Share on other sites

  • Mentor

little update-

 

that wave I had (pretty sure that's what it was) is over and I do feel, once again, at a higher level of healing.

Much more stable and settled into myself once again.

 

it's so weird how it happens that I think that things can't get any better and then they do!

 

I check on the threads of some other members here, esp those for ppl who are withdrawing off of lexapro, and I think about how incredibly lucky I am, after being on that drug for over  a decade, to be where I am now. I see ppl struggling when they were on it for a much shorter period of time and/or at a lower dose.

I am so very thankful that my healing has gone the way it has. 

I am now working on the kinds of issues that got me diagnosed with a "mental illness" in the first place- all issues that stem from early trauma and a chaotic early adulthood. 

I never learned to identify my feelings, I never learned what to do with them (in fact, I learned in childhood that it wasn't safe to admit to having any feelings at all) I got a book called "When Food is Comfort"

I don't really have a serious problem with eating,  although I do gravitate towards eating sweets to soothe myself sometimes.

However I came across the book when looking for information on  learning how to nurture oneself. There's entire chapters that address identifying feelings and all the stuff I need to work on! 

 

so I bought a second hand copy of the book and my therapist is going to help me work thru it. So far it's going pretty well.

I am also relieved to learn that my therapist gave me a very generic diagnosis, "adjustment reaction".

yay! 
I was labelled schizophrenic for many years, then schizoaffective disorder, then bipolar disorder and then from age 30 on, as they heaped on more drugs, they heaped on more labels.
I could not possibly have had all the different diagnosis' I was given. 

 

it's funny, and not in a ha ha way either, but my medical records are full of erroneous diagnosis' too!  I guess they dont' get paid unless they slap some label on your, eh??

 

It would be very bad for me if I needed to buy my own insurance, because according to my medical records, I've got over 40 pre existing conditions!! (many that I literally have never had! how they get away with this, I do not know!)

 

 

anyway, that's my rant about the so called health system, it's more like a sickness system than a health system! :P

 

long story shortened not one bit, I'm doing great. 
I did lose one of my rats last Sunday, he passed away literally of old age, passed peacefully at home.

That leaves just 3 rats plus my two new gerbil boys.

 

I am going to phase out rats, I'm not home very much and they need a lot more care than the gerbils do, and just have gerbils from now on.
That should save me a lot of money too, rats can get expensive, and maybe I will use that money to travel or something...

not really sure what I want to do!

but it's great to have options and it's fantastic to be healthy enough to be thinking about all these options!!

 

wishing you all speedy healing!

 

PLEASE DO NOT SEND ME PRIVATE MESSAGES, thank you. 

  • pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) 
  •  Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years
  • started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 
  •  2013 too fast taper down to 5mg but WD forced me back to 20mgs
  •  June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until  Sept, then acute WD hit!!  reinstated at 0.3mgs in Oct. 2106
  • Tapered off to zero by  Oct. 2017 Doing very well. 
  • Nov. 2018 feel 95% healed, age 63 
  • Jan. 2020 feel 100% healed, peaceful and content
  • Dec 2023 Loving life! ❤️ with all it's ups and downs ;) 
Link to comment
Share on other sites

You mean me? On it for 3 months and still suffering 6 months later. 

 

That drug is the new Paxil from my findings. There is something that drug does to folk. 

 

Anyways i am better than i was 6 months ago. So lets see.

 

Well done happy 

May 2016 - Aug 2016 - Prozac 20mg

 

March 2017 - June 2017 - Sertraline 100mg. Horrific withdrawal 5 m onths.

 

July 2017 - Aug 2017 - Mirtazapine 15mg. Horrific.

 

August 2017 - December 2017 Fluoxetine 10mg for 2 weeks ghen Escitalopram 20mg for 12 weeks. Never felt normal since this. Or baseline.

 

March 2018 - June 2018 - Escitalopram 5mg for 12 weeks. Stopped and here i am full of symptoms i never had.

 

Link to comment
Share on other sites

  • Mentor
2 hours ago, Leo1983 said:

You mean me? On it for 3 months and still suffering 6 months later. 

 

That drug is the new Paxil from my findings. There is something that drug does to folk. 

 

Anyways i am better than i was 6 months ago. So lets see.

 

Well done happy 

 

oh Leo I didn't have anyone specific in mind, sometimes I just look at signatures without connecting them to the member's name, to get an idea of how long people have been on lexapro.

 

it's a horrible horrible drug!  they are all bad, but it seems like paxil and lexapro are two of the  hardest to get off of.

 

 

you were on 4 different drugs prescribed over a short period of time!  that complicates things! the more drugs you've been on, the more you have to recover from.

you also had some severe problems with side effects right away. 

I had almost no side effects when I went on lexapro, at least very few that I noticed (there was the lexapro yawn and some tightness in my jaw, neck and shoulders, that's all I can recall)

 

anyway we are all so different, it doesn't do much good to make comparisons

 

then again, it's hard not to make comparisons when you're trying to gauge where you are in recovery and how much further you might have to go.

I guess it's one of those things where you prepare for the worst and hope for the best, I don't know.

 

I'm just very very fortunate (knock wood) that things went better for me that  I could have hoped, is all.

 

 

 

PLEASE DO NOT SEND ME PRIVATE MESSAGES, thank you. 

  • pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) 
  •  Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years
  • started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 
  •  2013 too fast taper down to 5mg but WD forced me back to 20mgs
  •  June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until  Sept, then acute WD hit!!  reinstated at 0.3mgs in Oct. 2106
  • Tapered off to zero by  Oct. 2017 Doing very well. 
  • Nov. 2018 feel 95% healed, age 63 
  • Jan. 2020 feel 100% healed, peaceful and content
  • Dec 2023 Loving life! ❤️ with all it's ups and downs ;) 
Link to comment
Share on other sites

17 hours ago, Happy2Heal said:

I never learned to identify my feelings, I never learned what to do with them (in fact, I learned in childhood that it wasn't safe to admit to having any feelings at all)

 

me, too, although I think it was only "bad" feelings I wasn't allowed to have or express.  I do have an eating disorder so I will look into the book you mentioned. although I have, truly, dozens of "self help" books I have already bought and not yet read...

 

17 hours ago, Happy2Heal said:

it's funny, and not in a ha ha way either, but my medical records are full of erroneous diagnosis' too!  I guess they dont' get paid unless they slap some label on your, eh??

 

oh my god, this is so true. I only got one: bipolar II - but it was pure crap, all caused by "anti" depressants. so called! 

 

 

Currently taking Ramapril (blood pressure) 5 mg twice a day

Omeprazole 10 mg AM and 20 mg PM  (the taper has gone nowhere after the first cut)

Famotidine   once a day (and I still needs tums sometimes)

magnesium 200 mg at night

as of yesterday 2 fish oil capsules "EPA-DHA 1000"

 

off Lexapro as of 5/2018  - last dose had been 5 mg every other day for a couple years

 

highest dose had been 20 mg at which point I was diagnosed with Bipolar II, which went away when I cut the lexapro down to 15 mg. 

 

I spent years on Paxil before Lexapro (can't remember dose), briefly on Effexor and Abilify and others I have forgotten. in fact, when I was diagnoses with BPII I was put on all kinds of things which made me feel so bad I stopped them cold turkey within maybe 3 or 4 weeks, thank goodness. since then I've known these pills were terrible and I weaned down the Lexapro with zero help or support over I'm not sure how many years. 

 

Link to comment
Share on other sites

17 hours ago, Happy2Heal said:

maybe I will use that money to travel or something...

not really sure what I want to do!

but it's great to have options and it's fantastic to be healthy enough to be thinking about all these options!!

 

you give me hope!  maybe next year I can make some kind of trip, I haven't been able to for years. 

Currently taking Ramapril (blood pressure) 5 mg twice a day

Omeprazole 10 mg AM and 20 mg PM  (the taper has gone nowhere after the first cut)

Famotidine   once a day (and I still needs tums sometimes)

magnesium 200 mg at night

as of yesterday 2 fish oil capsules "EPA-DHA 1000"

 

off Lexapro as of 5/2018  - last dose had been 5 mg every other day for a couple years

 

highest dose had been 20 mg at which point I was diagnosed with Bipolar II, which went away when I cut the lexapro down to 15 mg. 

 

I spent years on Paxil before Lexapro (can't remember dose), briefly on Effexor and Abilify and others I have forgotten. in fact, when I was diagnoses with BPII I was put on all kinds of things which made me feel so bad I stopped them cold turkey within maybe 3 or 4 weeks, thank goodness. since then I've known these pills were terrible and I weaned down the Lexapro with zero help or support over I'm not sure how many years. 

 

Link to comment
Share on other sites

  • Mentor
1 hour ago, JackieDecides said:

me, too, although I think it was only "bad" feelings I wasn't allowed to have or express.  I do have an eating disorder so I will look into the book you mentioned. although I have, truly, dozens of "self help" books I have already bought and not yet read...

ah yes, the so called "bad" or negative emotions. those were not allowed!

what was allowed? happiness, even if it was fake, so long as it made my mom look good or feel better about how crappy she was to all of us

Gratitude, that was expected, and you had to make it look genuine 😕

sympathy for my mother for all that she had to deal with as well as her crappy childhood which was "so much worse" than ours, so we "should be grateful". LOL

 

in addition, they were only a very few emotions identified, I am learning now that there are so many more! 

 

PLEASE DO NOT SEND ME PRIVATE MESSAGES, thank you. 

  • pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) 
  •  Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years
  • started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 
  •  2013 too fast taper down to 5mg but WD forced me back to 20mgs
  •  June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until  Sept, then acute WD hit!!  reinstated at 0.3mgs in Oct. 2106
  • Tapered off to zero by  Oct. 2017 Doing very well. 
  • Nov. 2018 feel 95% healed, age 63 
  • Jan. 2020 feel 100% healed, peaceful and content
  • Dec 2023 Loving life! ❤️ with all it's ups and downs ;) 
Link to comment
Share on other sites

  • Mentor

just reading Brass's post about post zero, wish I'd read this a few months ago, hahaha

 

 

it seems I did have the 10 month wave and a slightly delayed 12 mos wave- it was more like 13 mos for me (late November)


I wasn't sure that they were waves at the time but now I'm fairly sure that was it. I was thinking it was possible PTSD stuff, and maybe that's been a factor, but the symptoms went away so fast- I don't know that PTSD works that way.

 

 

I admit to being a bit hypervigilant about another wave...I guess after the experience of acute WD, I may deal with this hypervigilance for some time, but I am doing my best to stay in the moment and to soak up all the good things that are happening

I've been having the most wonderful times with friends, and it just makes me so very happy to have made it to this place in my life, where I can feel the love of others and my love for them.

I couldn't feel these things on the drugs, I was numb

 

 

PLEASE DO NOT SEND ME PRIVATE MESSAGES, thank you. 

  • pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) 
  •  Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years
  • started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 
  •  2013 too fast taper down to 5mg but WD forced me back to 20mgs
  •  June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until  Sept, then acute WD hit!!  reinstated at 0.3mgs in Oct. 2106
  • Tapered off to zero by  Oct. 2017 Doing very well. 
  • Nov. 2018 feel 95% healed, age 63 
  • Jan. 2020 feel 100% healed, peaceful and content
  • Dec 2023 Loving life! ❤️ with all it's ups and downs ;) 
Link to comment
Share on other sites

45 minutes ago, Happy2Heal said:

it just makes me so very happy to have made it to this place in my life, where I can feel the love of others and my love for them.

I couldn't feel these things on the drugs, I was numb

 

amen!  I was numb, too. but you give me hope that I can start to feel the good stuff*. like LOVE, wouldn't that be great? 

 

I practice on my dog and - even though dogs are easy to love - it's still doesn't feel like a real 3 dimensional  emotion. I guess I just need to keep practicing. 

 

you know what else doesn't seem right? my imagination. just something simple like visualizing is difficult and I swear I used to imagine all sorts of things. I hope that comes back, too. 

 

*the bad stuff is so easy to feel, where do we write to complain about that?

Currently taking Ramapril (blood pressure) 5 mg twice a day

Omeprazole 10 mg AM and 20 mg PM  (the taper has gone nowhere after the first cut)

Famotidine   once a day (and I still needs tums sometimes)

magnesium 200 mg at night

as of yesterday 2 fish oil capsules "EPA-DHA 1000"

 

off Lexapro as of 5/2018  - last dose had been 5 mg every other day for a couple years

 

highest dose had been 20 mg at which point I was diagnosed with Bipolar II, which went away when I cut the lexapro down to 15 mg. 

 

I spent years on Paxil before Lexapro (can't remember dose), briefly on Effexor and Abilify and others I have forgotten. in fact, when I was diagnoses with BPII I was put on all kinds of things which made me feel so bad I stopped them cold turkey within maybe 3 or 4 weeks, thank goodness. since then I've known these pills were terrible and I weaned down the Lexapro with zero help or support over I'm not sure how many years. 

 

Link to comment
Share on other sites

Just wanted to stop by H2H to soak up your optimism.

 

I still am having a hard time with my wd and reinstatement.   Also, the benzo use is creeping up due to lack of sleep and horrible wd symptoms.

 

I also want to thank you for your supportive message on my thread about looking inside for answers. 

9/2013-4/2014:  After moms death, was prescribed a series of meds for short periods of time that didn't work. Zoloft, Lexapro,  Nortriptyline, Liquid Prozac, Cymbalta. 

1/2014-9/2014. Clonzapam: Given Lamictal, stopped Clonzapam at .125mgs  

1/2015-4 2017 Remeron: 41.25 -0.025mgs

7/2015-11/2018 Lamictal: 200mgs-0.05 mgs Had paradoxical reaction to Lamictal wd, broke my heart to take a benzo but wasn't sleeping. 

3/28/2019 -2/5/ 2021  Clonazapam: 0.625mgs-.00115 Med Free 

July 27th, 2022**Severe Setback due to surgery/ anesthesia. 

9/7/22-10/4/22 Trazadone 50-100mgs for sleep, 10/13/22-11/13/22 Trazadone 1 mg to stabilize

10/4/22-11/20/22 Remeron 7.5mgs (for sleep doesn't work) 11/20/22 7.3 - 12/31/22 6.3 

2023: 1/18/23 6.1 - 6/6/23 3.6  6/16 3.4  6/28 3.0 7/12 2.7  7/28 2.5 8/11 2.2 8/23 2.0  9/5 1.8  9/16 1.6  9/30 1.4  10/13 1.2  10/26 1.0  11/9 0.8  11/22 0.6  12/6 0.4  12/23 0.2.

2024 1/4/24  Remeron/Mirtazapine free 

Additional Support:  Armour Thyroid 75mgs, Magnesium Glycinate 300-500mgs,  L-theanine 

Link to comment
Share on other sites

  • Mentor
6 hours ago, JackieDecides said:

amen!  I was numb, too. but you give me hope that I can start to feel the good stuff*. like LOVE, wouldn't that be great? 

 

I practice on my dog and - even though dogs are easy to love - it's still doesn't feel like a real 3 dimensional  emotion. I guess I just need to keep practicing. 

 

you know what else doesn't seem right? my imagination. just something simple like visualizing is difficult and I swear I used to imagine all sorts of things. I hope that comes back, too. 

 

 

I firmly believe that you will feel love and everything else again, Jackie

 

I bet your dog is loving all your practice!! ❤️

 

oh you know, I had this same problem... and kinda do, still, to a certain extent. I used to be able to spend a lot of time daydreaming and imagining things and during WD, that became very hard to do, in fact, 

at times,

impossible

I'm so glad you mentioned it.

 

I am dreaming more now, and I love that, even when it's odd dreams, like last night I dreamt that there was a baby boy who was really cute and I wanted to hold him.

I woke up and was imagining how sweet little babies (sometimes) smell and their warm bodies and how good it feels to snuggle with them...

 

it was nice, even though my only child is a girl, one of my sisters had 4 boys, and I think the dream was based on one of her boys.

 

 

PLEASE DO NOT SEND ME PRIVATE MESSAGES, thank you. 

  • pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) 
  •  Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years
  • started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 
  •  2013 too fast taper down to 5mg but WD forced me back to 20mgs
  •  June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until  Sept, then acute WD hit!!  reinstated at 0.3mgs in Oct. 2106
  • Tapered off to zero by  Oct. 2017 Doing very well. 
  • Nov. 2018 feel 95% healed, age 63 
  • Jan. 2020 feel 100% healed, peaceful and content
  • Dec 2023 Loving life! ❤️ with all it's ups and downs ;) 
Link to comment
Share on other sites

  • Mentor
3 hours ago, Hibari said:

Just wanted to stop by H2H to soak up your optimism.

 

I still am having a hard time with my wd and reinstatement.   Also, the benzo use is creeping up due to lack of sleep and horrible wd symptoms.

 

I also want to thank you for your supportive message on my thread about looking inside for answers. 

 

oh Hibari,I know you are going thru such a tough time {{{{gentle hugs}}}}

 

you're going to make it thru this, you are.... you are working so hard to handle the symptoms. Maybe too hard, I don't know... *shrug* 

sometimes we think that something needs to be DONE when really all we need to do is "be" and let whatever is happening, happen.

it's a kind of radical acceptance of reality that is very very hard to achieve. I've tried a few times, I think one time I was actually able to do it for like, 5 mins...? LOL

 

 

I"m glad you got some sleep, sometimes that's enough to get you over the hump, you know?

 

how is the weather were you are? super windy day today but I bundled up good and went for a walk, the sun was out, it was GREAT!
it's winter in New England and we don't have a lot of sunny nor dry days (no snow or ice on the ground right now, yippee!) so I want to take advantage of these days when I can

 

being out in the sun, even for a few mins, makes such a difference to my mood.

If it's really bad outside, I will go out on my front stoop and stand in the sun and look upward and soak it in, even if for a few mins, you know?

 

I think the sun is even beneficial on cloudy days, at least I know you can get a sunburn in the summer on a cloudy day so I guess it gets thru the clouds somehow, eh LOL

 

oh I so wish I had a magic wand that I could wave and make everyone who is struggling right now, feel better RIGHT NOW!

 

 

 

 

PLEASE DO NOT SEND ME PRIVATE MESSAGES, thank you. 

  • pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) 
  •  Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years
  • started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 
  •  2013 too fast taper down to 5mg but WD forced me back to 20mgs
  •  June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until  Sept, then acute WD hit!!  reinstated at 0.3mgs in Oct. 2106
  • Tapered off to zero by  Oct. 2017 Doing very well. 
  • Nov. 2018 feel 95% healed, age 63 
  • Jan. 2020 feel 100% healed, peaceful and content
  • Dec 2023 Loving life! ❤️ with all it's ups and downs ;) 
Link to comment
Share on other sites

2 hours ago, Happy2Heal said:

 

oh Hibari,I know you are going thru such a tough time {{{{gentle hugs}}}}

 

you're going to make it thru this, you are.... you are working so hard to handle the symptoms. Maybe too hard, I don't know... *shrug* 

sometimes we think that something needs to be DONE when really all we need to do is "be" and let whatever is happening, happen.

it's a kind of radical acceptance of reality that is very very hard to achieve. I've tried a few times, I think one time I was actually able to do it for like, 5 mins...? LOL

 

 

I"m glad you got some sleep, sometimes that's enough to get you over the hump, you know?

 

how is the weather were you are? super windy day today but I bundled up good and went for a walk, the sun was out, it was GREAT!
it's winter in New England and we don't have a lot of sunny nor dry days (no snow or ice on the ground right now, yippee!) so I want to take advantage of these days when I can

 

being out in the sun, even for a few mins, makes such a difference to my mood.

If it's really bad outside, I will go out on my front stoop and stand in the sun and look upward and soak it in, even if for a few mins, you know?

 

I think the sun is even beneficial on cloudy days, at least I know you can get a sunburn in the summer on a cloudy day so I guess it gets thru the clouds somehow, eh LOL

 

oh I so wish I had a magic wand that I could wave and make everyone who is struggling right now, feel better RIGHT NOW!

 

 

 

 

Thank you H2H.  

 

I'm a New England gal myself though I live in a big city now.  

 

It's very cold and clear here.  I was able to get out for about 15 mins tonight with my husband.  

 

I wish my symptoms weren't so much in the foreground but they are right now.  Lots of headaches, shaking and nausuea.  Just 5 months ago they were there but in the background.  

 

I think I am more accepting of where I am. I realize my life has been turned upside down and I will land somewhere else.  That I'm accepting.   

 

Feeling so physical ill has been the hardest part to accept.  It unfortunately has debilitated me for now but I'm hoping not forever.  

 

I still hold your words in my head about looking inward for whar I need and not so much outward.  

 

Baylissa said to me that I have to do whatever I need to feel safe and keep going.  

 

You both gave me those thoughts to hold into.  

 

9/2013-4/2014:  After moms death, was prescribed a series of meds for short periods of time that didn't work. Zoloft, Lexapro,  Nortriptyline, Liquid Prozac, Cymbalta. 

1/2014-9/2014. Clonzapam: Given Lamictal, stopped Clonzapam at .125mgs  

1/2015-4 2017 Remeron: 41.25 -0.025mgs

7/2015-11/2018 Lamictal: 200mgs-0.05 mgs Had paradoxical reaction to Lamictal wd, broke my heart to take a benzo but wasn't sleeping. 

3/28/2019 -2/5/ 2021  Clonazapam: 0.625mgs-.00115 Med Free 

July 27th, 2022**Severe Setback due to surgery/ anesthesia. 

9/7/22-10/4/22 Trazadone 50-100mgs for sleep, 10/13/22-11/13/22 Trazadone 1 mg to stabilize

10/4/22-11/20/22 Remeron 7.5mgs (for sleep doesn't work) 11/20/22 7.3 - 12/31/22 6.3 

2023: 1/18/23 6.1 - 6/6/23 3.6  6/16 3.4  6/28 3.0 7/12 2.7  7/28 2.5 8/11 2.2 8/23 2.0  9/5 1.8  9/16 1.6  9/30 1.4  10/13 1.2  10/26 1.0  11/9 0.8  11/22 0.6  12/6 0.4  12/23 0.2.

2024 1/4/24  Remeron/Mirtazapine free 

Additional Support:  Armour Thyroid 75mgs, Magnesium Glycinate 300-500mgs,  L-theanine 

Link to comment
Share on other sites

Hi Hibari,

 

Ive been reading your thread for a little while now because I'm on Lamictal and will be tapering off it in the future. I'm so sorry to see you are really going through some immensely challenging times. It will get better it has to get better. When I was at my worst with cold turkey benzo withdrawal I never thought Id function normally again but I did. Unfortunately I'm now in Lexapro withdrawals from a too fast taper - I didnt know you could go through antidepressant withdrawals too! Baylissa has been my beacon of light in this horrible hell for the past 10 months her faith in me healing is all I need to keep on holding on. Hoping things improve for you soon. 

Hope

May 2014 - July 2015 0.5 Clonazapam (cold turkey off)

October 2014 - November 2014 took Beta Blocker Propranolol (fast taper off)

December 2014 - began 2.5mg Lexapro worked up to 30mg Lexapro over 3 months

December 2014 - 2 mg Valium started sometimes took up to 6 mg Valium

April 2015 - started 25mg Lamictal worked up to 100mg Lamictal

April 2015  - began taper 4mg Valium. Stopped Valium 

July 2015 - stopped crumb of 2mg Valium

September 2017 began taper 30mg Lexapro.

February 2018 last dose Lexapro 1.25mg

October 2020 - Began 10% taper of Lamictal Dec 2019. was going ok until tapered from 45mg - 40mg. 

September 2023 - on the 13th of September 2023 I took my last dose of Lamictal 0.1mg. Finally psych med free!!

 

Link to comment
Share on other sites

Thank you. 

 

I'm in a dilemma right now because of what I think my newly created dependency on Ativan.  

 

I'm trying so hard not to take it anymore because I don't want to have to taper but it's very hard on top of a already hard Lamictal wd. 

 

I spoke with Baylissa once too. 

 

All we can do is keep moving toward healing. 

9/2013-4/2014:  After moms death, was prescribed a series of meds for short periods of time that didn't work. Zoloft, Lexapro,  Nortriptyline, Liquid Prozac, Cymbalta. 

1/2014-9/2014. Clonzapam: Given Lamictal, stopped Clonzapam at .125mgs  

1/2015-4 2017 Remeron: 41.25 -0.025mgs

7/2015-11/2018 Lamictal: 200mgs-0.05 mgs Had paradoxical reaction to Lamictal wd, broke my heart to take a benzo but wasn't sleeping. 

3/28/2019 -2/5/ 2021  Clonazapam: 0.625mgs-.00115 Med Free 

July 27th, 2022**Severe Setback due to surgery/ anesthesia. 

9/7/22-10/4/22 Trazadone 50-100mgs for sleep, 10/13/22-11/13/22 Trazadone 1 mg to stabilize

10/4/22-11/20/22 Remeron 7.5mgs (for sleep doesn't work) 11/20/22 7.3 - 12/31/22 6.3 

2023: 1/18/23 6.1 - 6/6/23 3.6  6/16 3.4  6/28 3.0 7/12 2.7  7/28 2.5 8/11 2.2 8/23 2.0  9/5 1.8  9/16 1.6  9/30 1.4  10/13 1.2  10/26 1.0  11/9 0.8  11/22 0.6  12/6 0.4  12/23 0.2.

2024 1/4/24  Remeron/Mirtazapine free 

Additional Support:  Armour Thyroid 75mgs, Magnesium Glycinate 300-500mgs,  L-theanine 

Link to comment
Share on other sites

  • Mentor

 

just wanted to record something here, on Dec 14th I had a visual migraine. I found out while googling this that I've been having sensory migraines for some time (since about age 40) I've had at least 4 of those. 

 

my daughter started having visual migraines at around age 14, she thinks it was... this is the aura of a migraine without the actual headache

 

no I wasn't diagnosed by a dr, I used "dr google" but if you google it and know how to evaluate the info out there, it's really pretty clear that nothing else fits the symptoms, they are just so distinctive.

I am greatly relieved since I have a slightly higher risk of stroke because of my afib, and the sensory migraines used to terrify me , thinking I was having a stroke or at least early warning signs of an impending stroke

 

I'll come back to this later, but I just wanted to put this in my record for now- I discussed it online with friends, esp several in the optical profession, but it may be relevant to WD so I wanted it noted here

 

 

in GOOD News, something that I also forgot to mention:  My tinnitus, which was still hanging on, esp in the evenings, is all but gone!!  :)

I didn't want to mention them before because for some odd reason, if I mention the tinnitus, it comes back. That makes me think that maybe I do have it all the time but have just learned to "tune it out" and ignore it.

but I think this time, it's really gone   :) :) :) 

 

the cortisol spikes I was having during that wave in late November, also totally gone. :) 

 

and the mild temperature dysregulation is mostly gone too, still occasionally will have a flare up of feeling chilled for no good reason, or getting over heated for no good reason but that symptom is also mostly a thing of the past.

 

more YAYs, more good things!

 

in totally unrelated to WD news, I am rebuilding a relationship with my daughter. It's slow going. she had a rough upbringing, no thanks to me, although I was a "good enough" parent in many respects, in other ways, I know I caused her problems she shouldn't have had to deal with. We are working thru all that now. 

 

or maybe this is WD/recovery related: I don't know how I could have worked on something like this, when I was totally unable to feel anything at all.

 

 

more later, gotta get out and get some food and soak up some more sun! yay SUN!! 🌞

 

PLEASE DO NOT SEND ME PRIVATE MESSAGES, thank you. 

  • pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) 
  •  Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years
  • started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 
  •  2013 too fast taper down to 5mg but WD forced me back to 20mgs
  •  June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until  Sept, then acute WD hit!!  reinstated at 0.3mgs in Oct. 2106
  • Tapered off to zero by  Oct. 2017 Doing very well. 
  • Nov. 2018 feel 95% healed, age 63 
  • Jan. 2020 feel 100% healed, peaceful and content
  • Dec 2023 Loving life! ❤️ with all it's ups and downs ;) 
Link to comment
Share on other sites

H2H, I'm sorry about your migraine issue.  And on the good news front that is great about your T and other symptoms settling down!   Thanks for the update.   You are an encouragement!

2010:  Escitalopram (Lexapro) 10 mg.   Mirtazapine (Remeron) 15 mg. 

2011:    Tapered Mirtazapine: 5 month successful taper.  Then tapered Lexapro:  4 month successful taper

May 2011 to August 2017:   No medications, full recovery

September 6, 2017:  started Mirtazapine (Remeron) 15 mg  - due to severe sudden insomnia (I believe caused by statin use)

November 16, 2017:   started Escitalopram (Lexapro) 10 mg

January 1, 2018 to October 30. 2020 -- 34 month taper off of Mirtazapine 15 mg to 0.00 mg

June 16, 2018:  Started slow taper of 10 mg Escitalopram (Lexapro)

Current (mgai):    0.23 mg  Escitalopram

Supplements:  Fish Oil, Curcumin, bio active B vitamins, zinc, magnesium glycinate, Vitamin D, Vitamin C, saffron, citrus bergamot, ashwagandha

 

"Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own."  Matthew 6:34

Link to comment
Share on other sites

  • Mentor
1 hour ago, PH1 said:

H2H, I'm sorry about your migraine issue.  And on the good news front that is great about your T and other symptoms settling down!   Thanks for the update.   You are an encouragement!

 

 

thanks PH1

I don't have migraine headaches, thankfully!! all I had was the aura of a migraine, which is just a weird visual display of lights and colors and zig zags

No pain, just that!
so I'm happy about that

 

how are you doing?

PLEASE DO NOT SEND ME PRIVATE MESSAGES, thank you. 

  • pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) 
  •  Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years
  • started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 
  •  2013 too fast taper down to 5mg but WD forced me back to 20mgs
  •  June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until  Sept, then acute WD hit!!  reinstated at 0.3mgs in Oct. 2106
  • Tapered off to zero by  Oct. 2017 Doing very well. 
  • Nov. 2018 feel 95% healed, age 63 
  • Jan. 2020 feel 100% healed, peaceful and content
  • Dec 2023 Loving life! ❤️ with all it's ups and downs ;) 
Link to comment
Share on other sites

12 hours ago, Happy2Heal said:

My tinnitus, which was still hanging on, esp in the evenings, is all but gone!!  :)

 

12 hours ago, Happy2Heal said:

the cortisol spikes I was having during that wave in late November, also totally gone. :) 

 

 

 

oh, my gosh, this is such good news. and I'm glad you aren't having full blown migraines...or a stroke! 

 

very good news about your daughter; I know exactly what you mean, I feel like I haven't ever had a real relationship - well, maybe with my Mother but not any others. so I'm hoping I can somehow make one. 

 

I'm so glad for you! 😍

Currently taking Ramapril (blood pressure) 5 mg twice a day

Omeprazole 10 mg AM and 20 mg PM  (the taper has gone nowhere after the first cut)

Famotidine   once a day (and I still needs tums sometimes)

magnesium 200 mg at night

as of yesterday 2 fish oil capsules "EPA-DHA 1000"

 

off Lexapro as of 5/2018  - last dose had been 5 mg every other day for a couple years

 

highest dose had been 20 mg at which point I was diagnosed with Bipolar II, which went away when I cut the lexapro down to 15 mg. 

 

I spent years on Paxil before Lexapro (can't remember dose), briefly on Effexor and Abilify and others I have forgotten. in fact, when I was diagnoses with BPII I was put on all kinds of things which made me feel so bad I stopped them cold turkey within maybe 3 or 4 weeks, thank goodness. since then I've known these pills were terrible and I weaned down the Lexapro with zero help or support over I'm not sure how many years. 

 

Link to comment
Share on other sites

Happy to Heal, how did you get off all those other drugs you were on besides Lexapro? I'm fortunate I've never been on so many drugs as many people on here by I am currently weaning off Venlafaxine which is going to take at least two more years and then I have to tackle diazepam and I'm almost 66 years old. I get so discouraged because lately I've been crying so much. I was actually doing just fine on 225 mg. of Venlafaxine and decided I should wean off. I am really questioning why I am doing this to myself at this age. I'm afraid I'll give up and go back up in dose until I feel good again. I am glad for you. Thanks for listening to my pity party.

Early 1980s 2 mg. vallium prn; Mid-1990s Paxil and 2mg. vallium prn; Somewhere in there Buspar

Early 2000s Sertaline 50 mg. and .25mg Xanax prn 

2008 Sertaline 50 mg but Xanax was increased to .5mg 6 times a day 

2015 Sertaline increased to 100mg. 2 mg. vallium prn and Wellburtrin (only on a few days)

April 2016 Venlafaxine XR 225mg with 50 mg. Zolft  and 10 mg. Vallium 3 times a day as needed

Fall 2017 Venlafaxine upped to 300 mg - 5 mg. Vallium 3 times a day prn; Jan. 2018 Venlafaxine 225mg w/Vallium

April 2018 weaned  to 187.50mg, 150mg, 112.5 mg at 4 to 5 week intervals vallium 3 times a day prn

July 2018 112.5 mg ; July 2018 started SA's 10% guideline w/ 2.5 vallium prn; lost notes  dropped to 89 mg by 10/22; 89 mg 10/29; 10/6 86 mg, 10/13 83 mg; 10/20 - 11/2 updosed to 89mg; 11/3 86 mg; 11/17 80 mg. 11/24 77mg - 12/20 80mg 1/ 20 77 mg venlafaxine; 2/19 75 mg Ven  still taking vallium 2.5 mg morning, after and evening

Simvastatin 40mg. daily with supplements: Magnesium, Omega Fatty Oils, Vitamin D3, Turmeric, Magnesium, 25 mg. to 50 mg. diphendramine for sleep

Link to comment
Share on other sites

  • Mentor
11 hours ago, JackieDecides said:

 

 

 

oh, my gosh, this is such good news. and I'm glad you aren't having full blown migraines...or a stroke! 

 

very good news about your daughter; I know exactly what you mean, I feel like I haven't ever had a real relationship - well, maybe with my Mother but not any others. so I'm hoping I can somehow make one. 

 

I'm so glad for you! 😍

 

 

thanks Jackie


I didn't have any real relationships myself for years, I am just now learning how to make friends and maintain relationships etc etc

I'm doing a lot of reading about it, and practicing skills and trying also to kind of copy what ppl who seem to be well liked, do

 

I had no urge to do these things before, I was wrapped up in this fog and unable to get thru it.

That fog is gone, and the initial shock and pain of early withdrawal almost forced me to get out and start working on this stuff

I felt I could not tolerate being home alone any more, I had to get out in the world,  if only for the distractions from how awful I was feeling

 

in the meantime, I've learned some things that help me to navigate social situations better. I still have  a LOT more work to do but now that I see how the earlier work has paid off, I'm much more inclined to continue to do the work to make more progress

 

it's a process, I think. ya know?

can't be done overnight sadly 

so far it's been very rewarding

 

if it's something you really want to do, Jackie, I'm confident you can do it!!

 

one book I read said that the thing that ppl overlook when it comes to making friends, is, that you need to be where there are people LOL

seems obvious, right?

the other thing is that you need to keep going to where those ppl are, and then you need to act in a pro social way- basically put yourself out there, be interested in the other ppl and share some small things about yourself

 

let them know that you are interested and then see where it goes

You won't hit it off with everyone but you can start to form relationships this way.

I've learned something from each one, even the ones that were not going to last- for one reason or another

 

it's challenging but fun!! :)

 

PLEASE DO NOT SEND ME PRIVATE MESSAGES, thank you. 

  • pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) 
  •  Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years
  • started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 
  •  2013 too fast taper down to 5mg but WD forced me back to 20mgs
  •  June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until  Sept, then acute WD hit!!  reinstated at 0.3mgs in Oct. 2106
  • Tapered off to zero by  Oct. 2017 Doing very well. 
  • Nov. 2018 feel 95% healed, age 63 
  • Jan. 2020 feel 100% healed, peaceful and content
  • Dec 2023 Loving life! ❤️ with all it's ups and downs ;) 
Link to comment
Share on other sites

  • Mentor
11 hours ago, WantoffVen said:

Happy to Heal, how did you get off all those other drugs you were on besides Lexapro? I'm fortunate I've never been on so many drugs as many people on here by I am currently weaning off Venlafaxine which is going to take at least two more years and then I have to tackle diazepam and I'm almost 66 years old. I get so discouraged because lately I've been crying so much. I was actually doing just fine on 225 mg. of Venlafaxine and decided I should wean off. I am really questioning why I am doing this to myself at this age. I'm afraid I'll give up and go back up in dose until I feel good again. I am glad for you. Thanks for listening to my pity party.

hi WantoffVen

 

I just wanted to let you know that I've read your post and will reply fully later on.

 

sorry you are feeling discouraged! if it helps any, there are a couple of other members here who are older, and are doing fine, I think one is in his 70s (don't quote me on that) 

 

there's no rush to get off, so just take it slow. it's much better to go super slow and even to take long holds, than it is to go down and then back up again in dose.

Our brains don't appreciate that very much. 

 

you will be ok,  crying may not feel good but it's a good sign that your emotions are still intact and it's a very common withdrawal symptom

 

more later, 

 

PLEASE DO NOT SEND ME PRIVATE MESSAGES, thank you. 

  • pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) 
  •  Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years
  • started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 
  •  2013 too fast taper down to 5mg but WD forced me back to 20mgs
  •  June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until  Sept, then acute WD hit!!  reinstated at 0.3mgs in Oct. 2106
  • Tapered off to zero by  Oct. 2017 Doing very well. 
  • Nov. 2018 feel 95% healed, age 63 
  • Jan. 2020 feel 100% healed, peaceful and content
  • Dec 2023 Loving life! ❤️ with all it's ups and downs ;) 
Link to comment
Share on other sites

  • Mentor

just recording this here for later

 

interesting day yesterday: got home around 4, felt kinda sluggish and a bit stuffed up

 

laid down around, er, I think it was 8pm? with a YouTube video on, and fell asleep, woke up at 1 am!

got up and turned off the lights etc, and went back to bed, and slept off an on, and dreamed, all thru out the night til like after 7 am!!

holy sheep!!

I must have needed that sleep. I am not stuffed up now, so perhaps I fought off a cold that was starting

 

cool

:)

 

 

PLEASE DO NOT SEND ME PRIVATE MESSAGES, thank you. 

  • pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) 
  •  Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years
  • started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 
  •  2013 too fast taper down to 5mg but WD forced me back to 20mgs
  •  June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until  Sept, then acute WD hit!!  reinstated at 0.3mgs in Oct. 2106
  • Tapered off to zero by  Oct. 2017 Doing very well. 
  • Nov. 2018 feel 95% healed, age 63 
  • Jan. 2020 feel 100% healed, peaceful and content
  • Dec 2023 Loving life! ❤️ with all it's ups and downs ;) 
Link to comment
Share on other sites

11 hours ago, Happy2Heal said:

one book I read said that the thing that ppl overlook when it comes to making friends, is, that you need to be where there are people LOL

seems obvious, right?

the other thing is that you need to keep going to where those ppl are, and then you need to act in a pro social way- basically put yourself out there, be interested in the other ppl and share some small things about yourself

 

that makes sense; do you want to share what book? I love books!

 

10 hours ago, Happy2Heal said:

I must have needed that sleep.

 

I love it when our bodies know what to do!!

Currently taking Ramapril (blood pressure) 5 mg twice a day

Omeprazole 10 mg AM and 20 mg PM  (the taper has gone nowhere after the first cut)

Famotidine   once a day (and I still needs tums sometimes)

magnesium 200 mg at night

as of yesterday 2 fish oil capsules "EPA-DHA 1000"

 

off Lexapro as of 5/2018  - last dose had been 5 mg every other day for a couple years

 

highest dose had been 20 mg at which point I was diagnosed with Bipolar II, which went away when I cut the lexapro down to 15 mg. 

 

I spent years on Paxil before Lexapro (can't remember dose), briefly on Effexor and Abilify and others I have forgotten. in fact, when I was diagnoses with BPII I was put on all kinds of things which made me feel so bad I stopped them cold turkey within maybe 3 or 4 weeks, thank goodness. since then I've known these pills were terrible and I weaned down the Lexapro with zero help or support over I'm not sure how many years. 

 

Link to comment
Share on other sites

  • Mentor
12 hours ago, JackieDecides said:

that makes sense; do you want to share what book? I love books!

 

 

I sure will, as soon as I can figure out which book it was!! I read a LOT and probably should take notes, but......

I haven't been


I seem to recall that this book was not actually about making friends... 

most of the books I read I borrowed from the library so later on this weekend I will go thru my list and see if I can remember which one it was

 

will also check those few books I liked enough to buy (second hand) copies of

It could possibly be in the Emotional Toolkit book but somehow I think not.......

 

anyway I'll get back to you on that.

if I forget or get busy, give me a gentle poke ok

PLEASE DO NOT SEND ME PRIVATE MESSAGES, thank you. 

  • pysch med history: 1974 @ age 18 to Oct 2017 (approx 43 yrs total) 
  •  Drug list: stelazine, haldol, elavil, lithium, zoloft, celexa, lexapro(doses as high as 40mgs), klonopin, ambien, seroquel(high doses), depakote, zyprexa, lamictal- plus brief trials of dozens of other psych meds over the years
  • started lexapro 2002, dose varied from 20mgs to 40mgs. First attempt to get off it was 2007- WD symptoms were mistaken for "relapse". 
  •  2013 too fast taper down to 5mg but WD forced me back to 20mgs
  •  June of 2105, tapered again too rapidly to 2.5mgs by Dec 2015. Found SA, held at 2.5 mgs til May 2016 when I foolishly "jumped off". felt ok until  Sept, then acute WD hit!!  reinstated at 0.3mgs in Oct. 2106
  • Tapered off to zero by  Oct. 2017 Doing very well. 
  • Nov. 2018 feel 95% healed, age 63 
  • Jan. 2020 feel 100% healed, peaceful and content
  • Dec 2023 Loving life! ❤️ with all it's ups and downs ;) 
Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
×
×
  • Create New...

Important Information

Terms of Use Privacy Policy