Tanha Posted August 20, 2019 Author Share Posted August 20, 2019 Dear gamma92 How do you get food? Often I don’t because I cannot fix or buy or digest it. My wife is at work or away because she cannot cope with the pain she witnesses. She is sick herself. She would help me if she could!!!!! My nervous system is in such terror that there cannotbe healing. I am terribly agitated and weak and in nerve pain. It is so bad. I am so sorry that you are in such agony, too. Brain on fire I saw in a fellow patient in hospital. She endured it for 6 months. When did you ct lexapro? Is anything changing? Can you get up at all? 2010-2018 sertralin, venlafaxin, cymbalta 120 mg, march bupropio, Lorazepam 4 to 0,5 mg qetiapine 200-400 mg Apr mirtazapin 30 - 45 mg, lo tapered, to 0; Apr switch to diazepam 3 mg; jun/jul 15mg, taper to approx. 4,5 mg, Aug: 200 to 400 mg q, 50 mg levomepromazine, m 45 to 30 mg; since tapered q 400-230 mg, m 30 to 15 mg, 1dez m to 16 mg, 4dez 250 mg q, 31. dec 200 mg q March 1, 2019 - 200 mg quetiapine, 4,5 mg diazepam, 16 mg mirtazapine March 3, 2019 - 200 mg quetiapine, 4,0 mg diazepam, 16 mg mirtazapine March 4, 2019 - 200 mg quetiapine, 4,2 mg diazepam,16 mg mirtazapine, june 5, 2019 - 100 mg quetiapine, 3 mg Diazepam, 12,185 mg mirtazapine Link to comment
Gem92 Posted August 21, 2019 Share Posted August 21, 2019 8 hours ago, Tanha said: Dear gamma92 How do you get food? Often I don’t because I cannot fix or buy or digest it. My wife is at work or away because she cannot cope with the pain she witnesses. She is sick herself. She would help me if she could!!!!! My nervous system is in such terror that there cannotbe healing. I am terribly agitated and weak and in nerve pain. It is so bad. I am so sorry that you are in such agony, too. Brain on fire I saw in a fellow patient in hospital. She endured it for 6 months. When did you ct lexapro? Is anything changing? Can you get up at all? Hello. My mom and sister ususally prepare my meals for me as I am too sick to even stand in the kitchen. My CNS is also in terror. It's hard to believe that it will ever stop and that I'll be who I used to be before this. But they say we heal so I guess we have no choice but to wait until it happens. I'm sorry you are in such agony like this. It's the worst hell ever. I'd like to think something good will come out of this for the both of us.... I stopped the Lexapro 20mg CT July 1st 2018. So about a year ago and 2 months. And I was then kindled for 8 months after that. Nothing is really changing at the moment. My symptoms are pretty consistent 24/7. I don't have any windows. I can get up and walk around but it's very difficult. Gemma92's signature(now Gem92) (added in by mod mmt 4/23/22) 90s and 2008:Prozac for a year 2016:ADHD drug for a few months CT 2017:Right thyroid removed. May-June 2018: Lexapro 10-20mg. July 4th 2018 Lex CT and took Penicillin, Z-pack. August 2018: 3rd antibiotic and Effexor for 5 days CT. September 2018: Lexapro 5mg (CT after month) Ativan 1-.5mg(CT after 2 weeks) and Hydroxyine 50mg (2 weeks) SEVERE REACTIONS AND SEVERE WITHDRAWAL October 2018: Ashwahganda 2 weeks, Probiotics 2 weeks. Mirt 15mg 6 days CT Oct- Nov 2018: gaba gummies, cbd oil, magnesium. December 2018: Mirt 7.5mg, 15mg, 30mg, Zyprexa 2.5mg, 5mg for 1 week back to 2.5mg. 4th antibiotic used. Hydroxyine. Jan 2019: Mirtazapine 26.5mg. Different brands used when hospitalized. Hydroxyine. Feb 2019: Mirtazapine 22.5mg, 15mg. Zyprexa 2.5mg CT. Prozac 1 pill, Trazadone 4 pills, Hydroxyine few pills, INJECTED with steroids, antibiotics and pain killers for 2 days. Took high doses of benadryl a few times, few more pain killers June 2019: Mirt 14.5mg-13.5mg Sept 2019: 13mg, 12mg, sep 25th 11 mg. 4/22/22- 6.3mg (Tapering between 2 and 3% every 2 weeks). 11/27/2022- 5.4mg 1/8/23- 5.25mg 1/30/23-5.2mg 2/22/23-5.15mg 3/10/23-5.1mg 4/4/23-5.05mg 4/16/23-5mg Link to comment
Melissa5000 Posted August 21, 2019 Share Posted August 21, 2019 Dear Tanha you must eat something! Can you just take some full fat milk out of the fridge, take a glass or cup of it, put some oat flakes in it, steer it and drink it while you are walking through the kitchen? Could you just eat a banana while walking around? Just think of simple solutions! I really hope you manage to eat something! 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted October 16, 2019 Share Posted October 16, 2019 Dear Tanha, how are you doing? I really hope you had some relief! You deserve it! 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted November 19, 2019 Share Posted November 19, 2019 Hi Tanha, I just wanted to say hello and I wish you good luck with your recovery. I really hope you have some improvements by now. Big hug! 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
Melissa5000 Posted January 16, 2020 Share Posted January 16, 2020 Hello Tanha! It has been 6 months since you jumped off your last dose. How are you now? 2019 2.1 mg amitriptyline ,15th july 2.1 mg, 22-7 2.09 mg, 29-7 2.08 mg, 5-8 2.09 mg , 7-8 2.1 mg . 2020 Holding at 2.1 mg 2019 125 mg lyrica, 15th july 124,5 mg, 22-7 124 mg, 29-7 123,5 mg, 4-8 124 mg 2020 holding at 124 mg 2015 january building up my medication to 450 mg lyrica and 50 mg amitriptyline for face ache after a rootcanal treatment at the dentist. 2016 february start tapering lyrica from 450 mg to 200 mg 2016 october tapered 25 mg amitriptyline to 25 mg 2017 tapered lyrica from 200 mg to 100 mg 2017 september tapered my last tablet of 25 mg amitriptyline to zero (horrible muscle pain started) 2018 february tapered lyrica from 100 mg to 75 mg (my muscle pain got worse and I have a lot of nervepain in my arms and legs, sometimes all over musclepain and nerve pain and burning pain) 2018 may reinstated 25 mg lyrica. My current dose is 100 mg lyrica. My pain is still very bad but a little less intense, my mood improved. 2018 since 22th may updose amitriptyline. 9 beads. 2018 june updosing lyrica. 2018 16 th june 125 mg lyrica and 9 beads amitriptyline ( 2mg) Now I'm doing a long hold. I can't taper anymore. Too much pain. I hope to stabilize and improve while holding. I'm trying graded activity to get rid of my pain. 2019 1 jan. Lyrica 125 mg (holding) 2019 1 jan. Amitriptyline tapering from 9 beads to 8 beads (1 jan. 2019), 8,5 beads (5 jan 19), 9 beads (16 jan 19) tapper attempt failed Link to comment
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