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PennyLane26

PennyLane26 Success Story- Protracted Paxil Withdrawal

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PennyLane26
5 hours ago, johnson said:

Hi Penny, 

 

I just had a question, how did recovery happen for you? Was it gradual over time or did you suddenly wake up one day and instantly feel better? Thanks

Hi Johnson-

  Yes it is absolutely gradual and it is not linear. This means you can feel good for days, weeks, even months and then take a few (or several) steps back and feel crappy again.  You definitely do not wake up one day and all of a sudden feel better.  The process requires a lot of patience and optimism.  Let me know if you have any other questions!


-Started 15 mg Paxil in May of 2013

-Tapered completely off Paxil May of 2014

-Went back on Paxil 10 mg end of September 2014

-Increased to 15 mg of Paxil mid September 2015

- Started weaning off of Paxil January 2016 at approximately 10% and started supplementation of 5htp. 

-End of February 2017, experienced serotonin syndrome quit Paxil and 5htp completely. Prescribed 5 mg of Ambien.

-Mid April 2017, reinstated 1 mg of Paxil

-October 2017, weaned off of Ambien

-November 27, 2017 weaned completely off of Paxil

 

Psych med free since 11/27/17

 

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Tom37

Hi Pennylane,

 

When you reinstated to 15mg how long did it take you to stabilise?

 

I was tapering but crashed going to 3mg and it’s been 4 months and it’s still waves and windows and no clear windows yet and waves are quite difficult.

 

Thanks for staying in touch as great to see  a recovery story.


20mg Lexapro 2007

10mg Lexapro 2012

Started tapering approx (October 2017) 12 months ago  from 10mg to 9mg then 8 then 7 then 6 then 5 then 4 then 3.

Held for approx 4 to 6 weeks min on each reduction.

Hit severe symptoms (started 7th Nov) after dropping to 3mg. Dropped to 3mg approx 22nd October.

Back to 4mg (7th November) and stabilising. Current symptoms started 23rd November 

Used diazepam (2018) 10mg 10th Nov, 5mg 11th Nov, 2.5mg 12 Nov, 2mg 13th Nov.

Used diazepam 10mg 24th Nov, 7.5 25th Nov and 5mg 26th November.

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PennyLane26

Hi Tom- 

No problem I am happy to help. I wouldn’t exactly call that a reinstatement as I felt pretty much fine for several months leading up to going back on. I am not sure if it was my original anxiety or withdrawals to be honest, but when I did start to get symptoms again 4 months later I freaked out and went running back to Paxil. I wouldn’t recommend going up that high if you’re already down to 3 mg. Once you have started withdrawaling it’s a crap chute on whether or not it will even work. As I’ve stated previously, self care is the number one thing that will help you get through in my opinion. Let me know if you have other questions!


-Started 15 mg Paxil in May of 2013

-Tapered completely off Paxil May of 2014

-Went back on Paxil 10 mg end of September 2014

-Increased to 15 mg of Paxil mid September 2015

- Started weaning off of Paxil January 2016 at approximately 10% and started supplementation of 5htp. 

-End of February 2017, experienced serotonin syndrome quit Paxil and 5htp completely. Prescribed 5 mg of Ambien.

-Mid April 2017, reinstated 1 mg of Paxil

-October 2017, weaned off of Ambien

-November 27, 2017 weaned completely off of Paxil

 

Psych med free since 11/27/17

 

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Raindays

PennyLane, you have given me hope. Thanks for coming back to help those still here. 😊 Did you at times feel just totally overwhelmed and like you couldn't make it to go on another day? It feels like it is the same thing day after day. I have been tapering since last June and it feels like I will never get off and recover. What was the best tool you had at your disposal that helped with patience? Thanks so much 


1992 Given antidessants with Ativan after having anxiety attacks after birth of my first baby.

On Paxil 20 ml. for some time. Then was switched to Ativan and Effexor XR 150 ml for 15 years maybe. Tried coming off many times over the years but wasn't successful nor encouraged.

Tried coming off 3 years ago Effexor XR 150 ml. Tapered over 10 months but not a controlled, responsible process as I was given very poor tapering advice by doctors.

Was off for about 9 months then reinstated to 75ml Effexorxr. Stayed on that dose for a year .Tapered at 10 % every 4 weeks held longer if I felt I was suffering too much .Don't recall very much as a traumatic time. Will have been off as of December 4 for 6 months.

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Lookinup

Was it hard getting off the Ambien after several months?  I was put on Ambien because of insomnia caused by Remeron withdrawal and would like to get off it and use Melatonin.


(1.) Mirt. August 2017, 7.5mgs tapered to 3.5mgs over year and stopped 3/19.  Reinstated to 1.8 and stopped in June 2019.  Horrible withdrawals ensued. Panic attacks, insomnia. (2.)Had been taking .75 Klonopin for at least 15 years. (3.)Prozac started June, 2019 due to withdrawal symptoms from Remeron.  Started at 10 mg and cut to 5mg. within 6 weeks. Stayed on 5 mg. Until starting liquid taper Dec. 2019.  Stopped due to sx.  Resumed 4/20, Still reducing. 3.3 mg to go.  (4.) Started Ambien June, 2019 due to insomnia from Remeron w/d. Together with Klonopin caused a lot of interdose withdrawal sx. Barely slept on the medication (2-3 hrs). (5.)75 mg. Tirosent five days and .88 two days (M,TH) taken first thing if a.m. for thyroid (Since 10/19)

REHAB (Feb 1, 2020) Family insisted on rehab to get rid of benzos.  Disaster as always stated!

Feb, 2020 Removed from Klonopin/Ambien and put on Librium.  Quickly reduced to 5 mg.  Left before being completely taken off.  Sent to behavioral health center (two weeks later) and given more drugs! (6.)March, 2020 Taken off Librium and put on Valium

 12.5  (taken 3 x day -  2.5 a.m., 2.5 p.m. and 7.5 mg before bed) replaced Librium (7.)Remeron again!  3.75 mg.  8.  Seroquel 50 mg.nightly.

 

 

 

My intro thread - Lookinup's intro: please help

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PennyLane26
12 hours ago, Mirtazapine said:

Was it hard getting off the Ambien after several months?  I was put on Ambien because of insomnia caused by Remeron withdrawal and would like to get off it and use Melatonin.

It actually wasn’t. I was terrified of trying to get off of it. What I did was really work on sleep hygiene and stopped watching TV, etc several hours before bed and started taking melatonin. I made sure I was really relaxing and calming my body, I also got blue blocking glasses. Then I slowly weaned off the ambien like I did with Paxil. I was cutting off tiny bits every week until I wasn’t taking it anymore. Hope that helps!


-Started 15 mg Paxil in May of 2013

-Tapered completely off Paxil May of 2014

-Went back on Paxil 10 mg end of September 2014

-Increased to 15 mg of Paxil mid September 2015

- Started weaning off of Paxil January 2016 at approximately 10% and started supplementation of 5htp. 

-End of February 2017, experienced serotonin syndrome quit Paxil and 5htp completely. Prescribed 5 mg of Ambien.

-Mid April 2017, reinstated 1 mg of Paxil

-October 2017, weaned off of Ambien

-November 27, 2017 weaned completely off of Paxil

 

Psych med free since 11/27/17

 

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Cocopuffz17

Thank you so much for posting such a detailed description of your journey through this. I am 7 months off and feel better each day, but still get massive fatigue. I agree 100% with you stating that food is the best medicine, it gives the best results. (which is the opposite of western medicine, I asked about nutrition and they always said my diet was "fine"). Personally changing my nutrition is the only reason I know I was able to come off this medication.

 

As for your family and them rolling their eyes. I have the exact same experience. A majority of people won't understand until they go through it. I have had people critique it and they are having numerous health issues and WILL NOT CHANGE their diet. Instead they continue to take more medication and HAVE NEGATIVE results, all because a doctor told them, its always their justification. 

 

Thank you so much for sharing your experience and journey, which is now a success!!!! Awesome! Mindset and nutrition are the best medicine!! 


I follow The Plant Paradox lifestyle by Dr.Gundry. This lifestyle has given me my life back and I feel better than I have ever felt in my life. It has enabled me to finally get off of this medication and truly live my life. Nutrition is the key to health!!!!! 

 

2008 to 2019  - 20 mg Paroxetine

 

Attempted 2 CT's around the 5-6 year mark. Were absolutely terrible and reinstated. Was never explained by the doctor the seriousness of the short half life of this drug. 

 

2017 - Attempted a tapered discontinuation of this drug and reinstated after being unsuccessful.

 

2019 - Feb. 12 - After a three month taper I am off of paroxetine. The 3 months were terrible, awful withdrawal feelings. I followed the doctors guidelines for the reduction of this drug and now know it was way too fast. 
 

2019 - Oct. 12 - 8 months off paroxetine. 75% improvement since coming off the drug. Definitely have had tons of challenges along the way. Let’s go!!!! 

 

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PennyLane26
9 hours ago, Cocopuffz17 said:

Thank you so much for posting such a detailed description of your journey through this. I am 7 months off and feel better each day, but still get massive fatigue. I agree 100% with you stating that food is the best medicine, it gives the best results. (which is the opposite of western medicine, I asked about nutrition and they always said my diet was "fine"). Personally changing my nutrition is the only reason I know I was able to come off this medication.

 

As for your family and them rolling their eyes. I have the exact same experience. A majority of people won't understand until they go through it. I have had people critique it and they are having numerous health issues and WILL NOT CHANGE their diet. Instead they continue to take more medication and HAVE NEGATIVE results, all because a doctor told them, its always their justification. 

 

Thank you so much for sharing your experience and journey, which is now a success!!!! Awesome! Mindset and nutrition are the best medicine!! 

 

You are very welcome! I am coming up on two years off and still struggle with fatigue too. I think w/d really messes with the adrenals in  a lot of people.  Yes, I totally understand. I have tried to help family members or friends by giving nutritional advice and most people won’t listen. It’s hard for a lot of people to own up to the fact that you are ultimately responsible for their own health. It’s easier to blame genes and not address the bad eating, lack of exercise, and the nightly glass of wine. I wish I realized that before Paxil, but I guess sometimes it takes going through hell to make lasting changes.  We will all be better for it in the end!


-Started 15 mg Paxil in May of 2013

-Tapered completely off Paxil May of 2014

-Went back on Paxil 10 mg end of September 2014

-Increased to 15 mg of Paxil mid September 2015

- Started weaning off of Paxil January 2016 at approximately 10% and started supplementation of 5htp. 

-End of February 2017, experienced serotonin syndrome quit Paxil and 5htp completely. Prescribed 5 mg of Ambien.

-Mid April 2017, reinstated 1 mg of Paxil

-October 2017, weaned off of Ambien

-November 27, 2017 weaned completely off of Paxil

 

Psych med free since 11/27/17

 

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Cocopuffz17
18 minutes ago, PennyLane26 said:

It’s hard for a lot of people to own up to the fact that you are ultimately responsible for their own health. It’s easier to blame genes and not address the bad eating, lack of exercise, and the nightly glass of wine. I wish I realized that before Paxil, but I guess sometimes it takes going through hell to make lasting changes.  We will all be better for it in the end!

 

Yes, unfortunately it is. I was in that group, it took me hitting rock bottom mentally and a decent amount of physical health issues before I changed. I started by changing my mentality and it was by making no more excuses, everything is my fault, I must fix it. It sure does, but does it feel GREAT to know that there is way better quality of life on the other side (drug free and with better nutrition)


I follow The Plant Paradox lifestyle by Dr.Gundry. This lifestyle has given me my life back and I feel better than I have ever felt in my life. It has enabled me to finally get off of this medication and truly live my life. Nutrition is the key to health!!!!! 

 

2008 to 2019  - 20 mg Paroxetine

 

Attempted 2 CT's around the 5-6 year mark. Were absolutely terrible and reinstated. Was never explained by the doctor the seriousness of the short half life of this drug. 

 

2017 - Attempted a tapered discontinuation of this drug and reinstated after being unsuccessful.

 

2019 - Feb. 12 - After a three month taper I am off of paroxetine. The 3 months were terrible, awful withdrawal feelings. I followed the doctors guidelines for the reduction of this drug and now know it was way too fast. 
 

2019 - Oct. 12 - 8 months off paroxetine. 75% improvement since coming off the drug. Definitely have had tons of challenges along the way. Let’s go!!!! 

 

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Sani
On 9/16/2019 at 7:49 AM, PennyLane26 said:

 

You are very welcome! I am coming up on two years off and still struggle with fatigue too. I think w/d really messes with the adrenals in  a lot of people.  Yes, I totally understand. I have tried to help family members or friends by giving nutritional advice and most people won’t listen. It’s hard for a lot of people to own up to the fact that you are ultimately responsible for their own health. It’s easier to blame genes and not address the bad eating, lack of exercise, and the nightly glass of wine. I wish I realized that before Paxil, but I guess sometimes it takes going through hell to make lasting changes.  We will all be better for it in the end!

Your are so inspiring! There is so much positivity in every word you speak. You really instilling hope is all of us. I'm 6 months off Lexapro, after being on it for one and a half year. At 5 months my withdrawal symtoms hit real bad and I'm still having them in wave pattern with very few days of windows in between. But the thing I notice is, I've lost appetite, so is it wise to force urself to eat? I'm in some frame if mind that tells me, that my body won't accept n digest the food I eat n just reject it and that's why I don't even crave food. I'm kinda neglecting my nutrition intake for the same reason coz I'm loosing hope. Any advise on this will be appreciated.


May 2018: 10mg Lexapro (once a day), and etizolaam 0.5 mg with proponolol 20mg twice a day

July 2018: got completely of etizolaam and proponol by weaning and using only once per day in June

October 2018: tapered Lexapro to 5mg using klonopin 0.25 mg as needed to reduce withdrawal symtoms

December 2018: quit Lexapro 5mg cold turkey and has to reinstate in three weeks used etizolaam to reduce symtoms as needed

March 2019: quit etizolaam 0.5mg cold turkey

September 2019: last does of Lexapro

November 2019: took klonopin 0.25 mg as needed to over come withdrawal symtoms sometimes 0.5mg. maximum dose of 0.75 mg per week

 

 

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PennyLane26
6 hours ago, Sani said:

Your are so inspiring! There is so much positivity in every word you speak. You really instilling hope is all of us. I'm 6 months off Lexapro, after being on it for one and a half year. At 5 months my withdrawal symtoms hit real bad and I'm still having them in wave pattern with very few days of windows in between. But the thing I notice is, I've lost appetite, so is it wise to force urself to eat? I'm in some frame if mind that tells me, that my body won't accept n digest the food I eat n just reject it and that's why I don't even crave food. I'm kinda neglecting my nutrition intake for the same reason coz I'm loosing hope. Any advise on this will be appreciated.

Thank you for your kind words! I am sorry you are having a rough time with your withdrawal. I’m sure it’s not an easy time to be dealing with that on top of everything else going on in the world. I understand what you mean by not having an appetite. Mine goes away too when I have bad anxiety. I would try to eat some really nutritious food if you can. Blood sugar instability and nutrient deficiencies will only make things worse. Ultimately your body will heal itself, but anything you can do to support the process will only aide in your recovery. Let me know if you have any other questions.

 

take care!


-Started 15 mg Paxil in May of 2013

-Tapered completely off Paxil May of 2014

-Went back on Paxil 10 mg end of September 2014

-Increased to 15 mg of Paxil mid September 2015

- Started weaning off of Paxil January 2016 at approximately 10% and started supplementation of 5htp. 

-End of February 2017, experienced serotonin syndrome quit Paxil and 5htp completely. Prescribed 5 mg of Ambien.

-Mid April 2017, reinstated 1 mg of Paxil

-October 2017, weaned off of Ambien

-November 27, 2017 weaned completely off of Paxil

 

Psych med free since 11/27/17

 

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luvkids

So how do you know you are finally DONE with withdrawal?  And were you doing well on Paxil?  If so, why did you choose to go off it?  I went off paxil after 25 years on it.  I was not having any problems while on it, just did not like taking meds and had tried to get off it several times before unsuccessfully.  Took about 8 months to get off, had no withdrawal symptoms during that time, was symptom free for 3 months, and then had a month of awful anxiety (I guess that was what it was....hard to describe the horrendous waves of nasty feelings flowing through my gut and torso) and severe insomnia.  Then all was well for for about 4 months, followed by just 1 week of symptoms.  I felt that maybe I was DONE.  Then came covid19.  I started feeling a knot in my throat, some stomach knots, and a general feeling of tension.  I attributed it to stress from all the fear generated by covid.  But a few weeks ago the old awful waves of horrid anxiety started again; I stayed in denial at first, not wanting to admit that withdrawal might be back.  But it clearly is.   I am just hoping and praying that this episode will pass quickly.  On a bad day I consider going back on meds, but I have apparently "aged out" of being allowed to take Paxil, so would have to try something else.  And who knows if that would work?  Any support would be appreciated.  Thank you!


Paxil, 20 mg. daily for last 20 years

Began tapering October 2018.  Took last dose May 2019.

Xanax .25 mg used rarely, just for insomnia.  Maybe took it once a month (or less) over past 10 years.

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Gridley

@luvkids

I've addressed your question on your thread.


Gridley Introduction

 

Lexapro 20 mg since 2004.  Began taper using Brassmonkey slide Jan. 2017.   

End 2017 year 1 of taper at 9.25mg 

End 2018 year 2 of taper at 4.1mg

End 2019 year 3 of taper at 1.0mg  

Current from Aug 13, 2020 at 0.1mg

Taper is 99.5% complete.

 

Lorazepam 1 mg 1986-1991 CT, resumed a few months later. CT 2000.  1 mg 2011-2016.  Sept, 2016 increased to 0.5 X 3 in split dose. Sept. 2019 increased to 0.625 X 3 after crossover to new brand

 

Imipramine 75 mg daily since 1986.  Jan. 2016 began every 3-weeks 10% taper, down to 15mg.  Aug 2016, discovered SA, updosed to 25mg and holding.  Taper is 66% complete.  

  

Supplements: omega, vitamins C, E and D3, magnesium glycinate, probiotic, melatonin .33mg


I am not a medical professional and this is not medical advice, but simply information based on my own experience, as well as other members who have survived these drugs.

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