Jump to content

GonnaBeOk: protracted Prozac withdrawal horrible


GonnaBeOk

Recommended Posts

I'm new here. I began a (too fast) taper of 40 mg Prozac at the end of January 2018. Had been on for many years (at least 10+).  As a sidenote, I also have Lyme disease which muddies the waters of symptoms and will explain why I didn't catch that I was declining once I started tapering.

 

In looking back at texts I was writing to friends at the time, it is (now) clear to me that I was declining mentally very soon after I reduced the dose of Prozac, but I was attributing it to Lyme disease (not discontinuation of the drug), so I never connected the dots.  I started reducing Prozac end of January 2018, and took my last dose end of April 2018 because "it's easy to come off of."  During that time, my mental health declined rapidly and my sleep became awful. Again, I attributed these symptoms to Lyme and not discontinuation of the Prozac--it didn't even cross my mind.   I finally connected the dots in December 2018, but had stopped the Prozac way back in April 2018.                                                                                       

 

I still sleep only about 2 hours per night for the last 6 months and it's horrible. I used to sleep 7-8 easily before all of this. I've tried everything for sleep and nothing works, both Rx and natural. It scares me.My personality has changed, and I feel on the verge of cracking very soon.

 

In August 2018 my doc put me on Lexapro, but after 3 weeks on it I felt like it made me more anxious, so I tapered over a couple weeks and went off it.  I also tried Ambien several times (maybe 8 tablets total) from maybe Sept to November to sleep and it gives me suicidal thoughts upon waking, and never gave me much help--maybe 3 hours tops, but often just one hour of sleep.  Tried the Ambien CR, and that gave me suicidal thoughts as well and never many hours of sleep.  Mid-Novemember a doc put me on Ativan for sleep, but I hate benzos, so I took only a total of 7   .5mg tablets over a 12 day period and stopped. It always gave me at least 7 or 8 hours of sleep, but I was not willing to stay on it (addictive), and it exacerbates my depression as well.  Also in November I tried (for 6 days) Remeron for sleep, (7.5 mg), but it didn't help and I didn't want to stay on it, so I tapered over a couple weeks and stopped. Tapering instructions of all these drugs was given by my medical providers, so none of the tapers were probably anywhere close to what I should have done.  When I was done with this conglomeration of short-use drugs from August- November 2018, I felt like my brain was fried. I used to be a funny, silly, hilarious, fun loving person. I've become horribly depressed, anxious, and withdrawn....and often have thoughts of suicide that I cannot get out of my mind. I also am pretty convinced that my brain cannot handle psych drugs at all anymore. It's too sensitive and does not seem to rebound. I seem to be especially sensitive to benzos and the sleep meds. I am terrified to ever use another psych drug.

 

I'll add: in 2014 (while on Prozac) I went through heavy anxiety, so was referred to a psychiatrist who (from July through December 2014) put me on a slew of different antidepressants and antipsychotics-(-introducing one, while withdrawing another), none of which worked, but it ended with clonazepam. I was on a small dose of .25-.50 mg intermittently over a few (maybe 3) months, put on too fast a taper, and went through HELL withdrawal. I was bedridden for at least 6 months, and still had symptoms up until I started coming off of Prozac last January 2018. What a mess.  So this is my second time in 4 years of going through withdrawals from psych drugs, and I was never completely through with my first withdrawal episode (but was improving very very slowly).

 

I am not taking any drugs right now, BUT I am a horrid mess.  Not sleeping AT ALL (unless 2 hours per night counts as sleep); severe severe severe depression, depersonalization, feeling like I need to jump off a bridge all the time; I've become very angry and combative; I have hardly left the house in 6 months.  I have tingling and numbness all over my body and face, panic attacks often, heavy heart palpitations, my brain often feels damaged, and suicidal thoughts are ever present in my mind. I also have difficulty breathing often--like labored breathing. My anxiety is off the charts constantly. My symptoms do not wax and wane--they are always there 24/7 and never subside. And obviously I cry a lot. I grieve the full life I used to have.  I have a hard time taking care of myself: showering, eating, etc, but I manage to make it thru. I am 5 feet 1, and down to about 89 lbs (from probably 112). It's rough!!

 

Any advice for me? I feel hopeless and un-fixable.  I can't imagine that re-instating Prozac would help at all at this point, since it's been so long. What do you think?

 Feeling very very discouraged.

 

 

2002-ish-April 2018: Prozac 40mg (was on 20mg for many of those years); Jan-April 2018: too fast "taper" off Prozac

 

July 2018: Tried lowest dose dose Lexapro for 3 weeks; quick tapered off; Aug-Nov. 2108: Ambien and Ambien CR for sleep (appx 10 total doses). Made depression worse and did not work; Nov 2018: 7 doses .5mg Ativan for sleep over 12 days time. Stopped.

December 2018: One week Remeron for sleep. Did not work or help. "Tapered" off over a few weeks.

In past years also took/tried Wellbutrin, Seroquel, Klonopin, Paxil; Current supplements: 1 mg Melatonin; Transdermal magnesium; Fish oil; Ketotifen (mast cell stabilizer), vitamin C; milk peptides 

March 26, 2019: Re-instated  0.5mg Prozac; April 15, 2019 Started 0.75mg Prozac May 6 2019: 1mg Prozac; May 27: 1.25mg Prozac; July 29,  2019: Began 1.25mg Lamotrigine

 

 

 

Link to post
  • ChessieCat changed the title to Msho: protracted Prozac withdrawal horrible
  • Replies 136
  • Created
  • Last Reply

Top Posters In This Topic

  • GonnaBeOk

    59

  • Altostrata

    18

  • thecowisback

    15

  • Gato123

    10

Top Posters In This Topic

  • Administrator

Hi, GonnaBeOk. 

 

Welcome to Surviving Antidepressants.

 

On 1/2/2019 at 2:04 PM, GonnaBeOk said:

still sleep only about 2 hours per night for the last 6 months and it's horrible. I used to sleep 7-8 easily before all of this. I've tried everything for sleep and nothing works, both Rx and natural. It scares me.My personality has changed, and I feel on the verge of cracking very soon.

 

Please let us now what you tried, both Rx and natural. Please list the start and stop dates and the doses you took.

 

On 1/2/2019 at 2:04 PM, GonnaBeOk said:

 I can't imagine that re-instating Prozac would help at all at this point, since it's been so long. What do you think?

 

Yes, it may be difficult to reinstate at this late stage. I'm going to give you the link on reinstatement so you can be familiar with how we approach reinstatements here on SA. And I'll ask the moderators who are more familiar with Prozac to guide you should this turn out to be an option. 

 

About reinstating and stabilizing to reduce withdrawal symptoms

 

For more information on withdrawal, please see:

 

How psychiatric drugs remodel your brain

 

Healing from antidepressants. Patterns of recovery video (4 minutes)

 

The Windows and Waves Pattern of Stabilization

 

You may find some helpful information to handle your symptoms here: 

 

Non-drug techniques to cope with emotional symptoms

  

 We don't recommend a lot of supplements, as many members report their nervous systems are simply too fragile to handle them. However, magnesium and fish oil tend to be calming to the nervous system and many people report they do help. Please only add in one supplement at a time and at a small dose. For more, please see:

 

 King of supplements: Omega-3 fatty acids (fish oil)

 

Magnesium, nature's calcium channel blocker

 

Please add a signature.  Include drugs, doses, dates, and discontinuations & reinstatements in the last 12-24 months. Also include supplements. This will help us give you the most accurate advice we can. 

  •  Any drugs and supplements prior to 24 months ago can just be listed with start and stop years. 
  • Please use actual dates or approximate dates (mid-June, Late October) rather than relative time frames (last week, 3 months ago) 
  • Spell out months, e.g. "October" or "Oct."; 9/1/2016 can be interpreted as Jan. 9, 2016 or Sept. 1, 2016. 
  • Please leave out symptoms and diagnoses. 
  • A list is easier to understand than one or multiple paragraphs. 
  • This is a direct link to your signature:  Account Settings – Create or Edit a signature.

 

Please use this thread to document your taper and to ask plenty of questions. As you provide more information, we can better guide you going forward. 

 

Please also let us now what kind of treatment you've had for Lyme and if you're on any medication for that, as well. 

 

Edited by Shep
name change

Drug free May 22, 2015 after 30 years of neuroleptics, benzos, z-drugs, so-called "anti"-depressants, and amphetamines 

 

My Success Story:  Shep's Success: "Leaving Plato's Cave"

 

And what is good, Phaedrus, and what is not good — need we ask anyone to tell us these things? ~ Zen and the Art of Motorcycle Maintenance


I am not a medical professional and this is not medical advice, but simply information based on my own experience, as well as other members who have survived these drugs.

 

Link to post
  • Administrator

Welcome,

It's possible a low-dose reinstatement would help. I might try 0.5mg Prozac to start, take every day in the morning. Please let us know how you're doing.

 

Prozac comes in a prescription liquid for titration or you can make your own, this topic explains how Tips for tapering off Prozac (fluoxetine)

 

Edited by ChessieCat
name change

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to post

Shep and Alto,

 

I (think) I updated my drug signature, but it's not showing. Maybe it needs approval before posting. Waiting to hear back from my doc about getting some liquid Prozac to try re-instatement. Feeling nervous about that, but not sure if it's possible to feel any worse than I do now.

 

2002-ish-April 2018: Prozac 40mg (was on 20mg for many of those years); Jan-April 2018: too fast "taper" off Prozac

 

July 2018: Tried lowest dose dose Lexapro for 3 weeks; quick tapered off; Aug-Nov. 2108: Ambien and Ambien CR for sleep (appx 10 total doses). Made depression worse and did not work; Nov 2018: 7 doses .5mg Ativan for sleep over 12 days time. Stopped.

December 2018: One week Remeron for sleep. Did not work or help. "Tapered" off over a few weeks.

In past years also took/tried Wellbutrin, Seroquel, Klonopin, Paxil; Current supplements: 1 mg Melatonin; Transdermal magnesium; Fish oil; Ketotifen (mast cell stabilizer), vitamin C; milk peptides 

March 26, 2019: Re-instated  0.5mg Prozac; April 15, 2019 Started 0.75mg Prozac May 6 2019: 1mg Prozac; May 27: 1.25mg Prozac; July 29,  2019: Began 1.25mg Lamotrigine

 

 

 

Link to post
  • Moderator Emeritus

No, your drug signature is not showing up.  You have to make sure you click Save when you have finished creating it.  I think it's at the bottom of the box where you type the information in.

NEW!!!     INTERVIEW with Altostrata, SA's founder    NEW!!! 

 

Plodding along inch by inch:  12" = 1',  3' =  36 " or 1 yard,  1760 yards  = 63,360" or 1 mile

Current from 17 Apr 2021:  Pristiq 0.2665mg  now holding each dose for 3 weeks

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015 

My tapering program   My Intro (goes to my tapering graph)  My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

Link to post

😭😭😭 Well, darn. I spent a loooong time on that. I'll try again later. Thank you ChessieCat.

2002-ish-April 2018: Prozac 40mg (was on 20mg for many of those years); Jan-April 2018: too fast "taper" off Prozac

 

July 2018: Tried lowest dose dose Lexapro for 3 weeks; quick tapered off; Aug-Nov. 2108: Ambien and Ambien CR for sleep (appx 10 total doses). Made depression worse and did not work; Nov 2018: 7 doses .5mg Ativan for sleep over 12 days time. Stopped.

December 2018: One week Remeron for sleep. Did not work or help. "Tapered" off over a few weeks.

In past years also took/tried Wellbutrin, Seroquel, Klonopin, Paxil; Current supplements: 1 mg Melatonin; Transdermal magnesium; Fish oil; Ketotifen (mast cell stabilizer), vitamin C; milk peptides 

March 26, 2019: Re-instated  0.5mg Prozac; April 15, 2019 Started 0.75mg Prozac May 6 2019: 1mg Prozac; May 27: 1.25mg Prozac; July 29,  2019: Began 1.25mg Lamotrigine

 

 

 

Link to post

Mate look into the keto diet for lyme disease. It also helped me tremendously during withdrawal. Greets

Used zoloft for 5 months. Started with 25mg, upped to 50 and finished with 75mg. Tapered in one month time. Finished taper at 15/04/2018

Link to post
  • Moderator Emeritus
6 hours ago, Sadboy said:

Mate look into the keto diet for lyme disease. It also helped me tremendously during withdrawal. Greets

 

Please research anything before trying it.  People can respond differently to things that work for others.  diets-that-may-cause-problems-restriction-ketosis-raw-low-carb

 

5 hours ago, BB1979 said:

And read the success stories often

 

 

NEW!!!     INTERVIEW with Altostrata, SA's founder    NEW!!! 

 

Plodding along inch by inch:  12" = 1',  3' =  36 " or 1 yard,  1760 yards  = 63,360" or 1 mile

Current from 17 Apr 2021:  Pristiq 0.2665mg  now holding each dose for 3 weeks

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015 

My tapering program   My Intro (goes to my tapering graph)  My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

Link to post

Still waiting to hear back from doc re liquid Prozac. 

 

Question: I have *no* windows of improvement (yet) since coming off too quickly from Prozac. It’s just 24/7 almost unbearable hell for over 6 months now. No relief ever. Is this normal for my situation?  I always feel like I’m ready to jump off a bridge, among other horrible symptoms. 

 

I’ll update drug signature soon. 

2002-ish-April 2018: Prozac 40mg (was on 20mg for many of those years); Jan-April 2018: too fast "taper" off Prozac

 

July 2018: Tried lowest dose dose Lexapro for 3 weeks; quick tapered off; Aug-Nov. 2108: Ambien and Ambien CR for sleep (appx 10 total doses). Made depression worse and did not work; Nov 2018: 7 doses .5mg Ativan for sleep over 12 days time. Stopped.

December 2018: One week Remeron for sleep. Did not work or help. "Tapered" off over a few weeks.

In past years also took/tried Wellbutrin, Seroquel, Klonopin, Paxil; Current supplements: 1 mg Melatonin; Transdermal magnesium; Fish oil; Ketotifen (mast cell stabilizer), vitamin C; milk peptides 

March 26, 2019: Re-instated  0.5mg Prozac; April 15, 2019 Started 0.75mg Prozac May 6 2019: 1mg Prozac; May 27: 1.25mg Prozac; July 29,  2019: Began 1.25mg Lamotrigine

 

 

 

Link to post
  • Moderator Emeritus
On 1/6/2019 at 9:59 PM, GonnaBeOk said:

Well, darn. I spent a loooong time on that.

 

I know how frustrating it is.  I have had this happen several times after typing out a long, tailored and very detailed response to a member.

 

On 1/7/2019 at 6:13 PM, GonnaBeOk said:

Still waiting to hear back from doc re liquid Prozac. 

 

 

Do you have any Prozac tablets?  You could make your own Prozac liquid with water until you can get the liquid Prozac.

 

Tips for tapering off Prozac (fluoxetine)

Edited by Shep
name change

NEW!!!     INTERVIEW with Altostrata, SA's founder    NEW!!! 

 

Plodding along inch by inch:  12" = 1',  3' =  36 " or 1 yard,  1760 yards  = 63,360" or 1 mile

Current from 17 Apr 2021:  Pristiq 0.2665mg  now holding each dose for 3 weeks

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015 

My tapering program   My Intro (goes to my tapering graph)  My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

Link to post

Ok, I updated my signature. My doc said he is not comfortable giving me liquid Prozac at this time (or any other psych drugs--I"m sure because of my horrible withdrawal).  It HAS been a long time since my last dose of Prozac. Still debating whether to pursue re-instatement of Prozac.

2002-ish-April 2018: Prozac 40mg (was on 20mg for many of those years); Jan-April 2018: too fast "taper" off Prozac

 

July 2018: Tried lowest dose dose Lexapro for 3 weeks; quick tapered off; Aug-Nov. 2108: Ambien and Ambien CR for sleep (appx 10 total doses). Made depression worse and did not work; Nov 2018: 7 doses .5mg Ativan for sleep over 12 days time. Stopped.

December 2018: One week Remeron for sleep. Did not work or help. "Tapered" off over a few weeks.

In past years also took/tried Wellbutrin, Seroquel, Klonopin, Paxil; Current supplements: 1 mg Melatonin; Transdermal magnesium; Fish oil; Ketotifen (mast cell stabilizer), vitamin C; milk peptides 

March 26, 2019: Re-instated  0.5mg Prozac; April 15, 2019 Started 0.75mg Prozac May 6 2019: 1mg Prozac; May 27: 1.25mg Prozac; July 29,  2019: Began 1.25mg Lamotrigine

 

 

 

Link to post

I've been off Prozac since end April 2018 and am debating whether or not to re-instate at .5mg due to continued horrific withdrawals. Anyone have any successful re-instatement stories after being off drugs for many months? My doc will not prescribe the liquid. Or any more Prozac. I'm wondering if I should just take that as my "answer." I do know there is a risk of getting worse (I can't imagine worse than this) with a re-instatement.

2002-ish-April 2018: Prozac 40mg (was on 20mg for many of those years); Jan-April 2018: too fast "taper" off Prozac

 

July 2018: Tried lowest dose dose Lexapro for 3 weeks; quick tapered off; Aug-Nov. 2108: Ambien and Ambien CR for sleep (appx 10 total doses). Made depression worse and did not work; Nov 2018: 7 doses .5mg Ativan for sleep over 12 days time. Stopped.

December 2018: One week Remeron for sleep. Did not work or help. "Tapered" off over a few weeks.

In past years also took/tried Wellbutrin, Seroquel, Klonopin, Paxil; Current supplements: 1 mg Melatonin; Transdermal magnesium; Fish oil; Ketotifen (mast cell stabilizer), vitamin C; milk peptides 

March 26, 2019: Re-instated  0.5mg Prozac; April 15, 2019 Started 0.75mg Prozac May 6 2019: 1mg Prozac; May 27: 1.25mg Prozac; July 29,  2019: Began 1.25mg Lamotrigine

 

 

 

Link to post
  • Moderator Emeritus

did-antidepressant-reinstatement-work-for-you

 

On 1/11/2019 at 8:02 PM, GonnaBeOk said:

My doc will not prescribe the liquid. Or any more Prozac.

 

You don't need to get the liquid.  You can make your own liquid from tablets.

 

Just tell the doctor that you think you need to go back on Prozac.  Doctors are usually quite happy to provide you with a prescription.  You don't need to tell them that you are only going to take a small dose.  Let them think you are going back on the dose they prescribe.

 

How do you talk to a doctor about tapering and withdrawal?


What should I expect from my doctor about withdrawal symptoms?

Edited by Shep
name change

NEW!!!     INTERVIEW with Altostrata, SA's founder    NEW!!! 

 

Plodding along inch by inch:  12" = 1',  3' =  36 " or 1 yard,  1760 yards  = 63,360" or 1 mile

Current from 17 Apr 2021:  Pristiq 0.2665mg  now holding each dose for 3 weeks

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015 

My tapering program   My Intro (goes to my tapering graph)  My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

Link to post

I emailed Dr. Shipko and briefly shared my plight. Here’s his response. Any thoughts? I have not yet re-instated, but have appt with my doc this week to discuss liquid Prozac. I just fear that reinstatement at this point might make things worse; that this is irreversible (I’m barely even a shell of who I was before); that things will get worse if I re-instate. BUT: my sleep has been having windows of “better.” Not great; not even good, but better. Instead of consistent 2 hours only, I’m getting 4,5, and 6+ hrs (broken up, but still...). Is this a sign of healing even though I am out of my mind with all the other symptoms with no relief, ever? Most notably the anxiety and BLACK depression. 

06585E6D-3B5C-4069-857A-DDE03261EF1C.jpeg

2002-ish-April 2018: Prozac 40mg (was on 20mg for many of those years); Jan-April 2018: too fast "taper" off Prozac

 

July 2018: Tried lowest dose dose Lexapro for 3 weeks; quick tapered off; Aug-Nov. 2108: Ambien and Ambien CR for sleep (appx 10 total doses). Made depression worse and did not work; Nov 2018: 7 doses .5mg Ativan for sleep over 12 days time. Stopped.

December 2018: One week Remeron for sleep. Did not work or help. "Tapered" off over a few weeks.

In past years also took/tried Wellbutrin, Seroquel, Klonopin, Paxil; Current supplements: 1 mg Melatonin; Transdermal magnesium; Fish oil; Ketotifen (mast cell stabilizer), vitamin C; milk peptides 

March 26, 2019: Re-instated  0.5mg Prozac; April 15, 2019 Started 0.75mg Prozac May 6 2019: 1mg Prozac; May 27: 1.25mg Prozac; July 29,  2019: Began 1.25mg Lamotrigine

 

 

 

Link to post
  • Moderator Emeritus

Shipko is thinking in terms of "therapeutic dose".  Therapeutic dose is an arbitrary term (based on random choice or personal whim, rather than any reason or system) which pharmaceutical companies use - think $$$.  The doctors get this information from the pharma reps.

 

SA prefers to use the term "lowest effective dose".  It is important to understand that changing drugs and doses multiple times has a cumulative effect and your nervous system can become sensitised.   We also suggest increasing by small amounts if necessary.  It is better to increase by small amounts than to risk taking too much.  If you take too much you might end up even worse.

 

However, starting at 0.5mg sounds reasonable.  I will ask the other mods for their thoughts on when and by how much to increase.

 

Please read Post #1 of this topic: 

 

About reinstating and stabilizing to reduce withdrawal symptoms

 

Please keep daily symptom notes on paper.

 

Example:

 

6 a.m. Woke with anxiety
8 a.m. Took 2.5mg Lexapro
10 a.m. Stomach is upset
10:30 a.m. Ate breakfast
11:35 a.m. Got a headache, lasted one hour
12:35 p.m. Ate lunch
4 p.m. Feel a bit better
5 p.m. Took 2.5mg Lexapro
6 p.m. Ate dinner
9:20 p.m. Headache
10:00 p.m. Took 50mg Seroquel
10:20 p.m. Feeling dizzy
10:30 p.m. Fell asleep
2:30 a.m. Woke, took 3mg Ambien (NOT "took 1/2 tablet Ambien")
2:45 a.m. Fell asleep
4:30 a.m. Woke but got back to sleep

NEW!!!     INTERVIEW with Altostrata, SA's founder    NEW!!! 

 

Plodding along inch by inch:  12" = 1',  3' =  36 " or 1 yard,  1760 yards  = 63,360" or 1 mile

Current from 17 Apr 2021:  Pristiq 0.2665mg  now holding each dose for 3 weeks

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015 

My tapering program   My Intro (goes to my tapering graph)  My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

Link to post

Thank you @ChessieCat. I should add that I suggested the 0.5 starting dose with him, and that I had been in the SA site looking for suggestions. @Altostrata had recommended that as possible starting point for reinstatement. 

2002-ish-April 2018: Prozac 40mg (was on 20mg for many of those years); Jan-April 2018: too fast "taper" off Prozac

 

July 2018: Tried lowest dose dose Lexapro for 3 weeks; quick tapered off; Aug-Nov. 2108: Ambien and Ambien CR for sleep (appx 10 total doses). Made depression worse and did not work; Nov 2018: 7 doses .5mg Ativan for sleep over 12 days time. Stopped.

December 2018: One week Remeron for sleep. Did not work or help. "Tapered" off over a few weeks.

In past years also took/tried Wellbutrin, Seroquel, Klonopin, Paxil; Current supplements: 1 mg Melatonin; Transdermal magnesium; Fish oil; Ketotifen (mast cell stabilizer), vitamin C; milk peptides 

March 26, 2019: Re-instated  0.5mg Prozac; April 15, 2019 Started 0.75mg Prozac May 6 2019: 1mg Prozac; May 27: 1.25mg Prozac; July 29,  2019: Began 1.25mg Lamotrigine

 

 

 

Link to post
  • Moderator Emeritus
On 1/18/2019 at 6:54 PM, GonnaBeOk said:

I should add that I suggested the 0.5 starting dose with him

 

Did he make a suggestion before you mentioned this?  If yes, what dose?

NEW!!!     INTERVIEW with Altostrata, SA's founder    NEW!!! 

 

Plodding along inch by inch:  12" = 1',  3' =  36 " or 1 yard,  1760 yards  = 63,360" or 1 mile

Current from 17 Apr 2021:  Pristiq 0.2665mg  now holding each dose for 3 weeks

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015 

My tapering program   My Intro (goes to my tapering graph)  My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

Link to post

No he did not make a suggestion regarding starting dose. I told him 0.5 was recommended to me and he then said that sounds “safe.” 😬

2002-ish-April 2018: Prozac 40mg (was on 20mg for many of those years); Jan-April 2018: too fast "taper" off Prozac

 

July 2018: Tried lowest dose dose Lexapro for 3 weeks; quick tapered off; Aug-Nov. 2108: Ambien and Ambien CR for sleep (appx 10 total doses). Made depression worse and did not work; Nov 2018: 7 doses .5mg Ativan for sleep over 12 days time. Stopped.

December 2018: One week Remeron for sleep. Did not work or help. "Tapered" off over a few weeks.

In past years also took/tried Wellbutrin, Seroquel, Klonopin, Paxil; Current supplements: 1 mg Melatonin; Transdermal magnesium; Fish oil; Ketotifen (mast cell stabilizer), vitamin C; milk peptides 

March 26, 2019: Re-instated  0.5mg Prozac; April 15, 2019 Started 0.75mg Prozac May 6 2019: 1mg Prozac; May 27: 1.25mg Prozac; July 29,  2019: Began 1.25mg Lamotrigine

 

 

 

Link to post

He also said that he has seen successful reinstatements as far out as two years. As well as unsuccessful ones in as little as 2 months. So it’s a crapshoot., which I realize. 

2002-ish-April 2018: Prozac 40mg (was on 20mg for many of those years); Jan-April 2018: too fast "taper" off Prozac

 

July 2018: Tried lowest dose dose Lexapro for 3 weeks; quick tapered off; Aug-Nov. 2108: Ambien and Ambien CR for sleep (appx 10 total doses). Made depression worse and did not work; Nov 2018: 7 doses .5mg Ativan for sleep over 12 days time. Stopped.

December 2018: One week Remeron for sleep. Did not work or help. "Tapered" off over a few weeks.

In past years also took/tried Wellbutrin, Seroquel, Klonopin, Paxil; Current supplements: 1 mg Melatonin; Transdermal magnesium; Fish oil; Ketotifen (mast cell stabilizer), vitamin C; milk peptides 

March 26, 2019: Re-instated  0.5mg Prozac; April 15, 2019 Started 0.75mg Prozac May 6 2019: 1mg Prozac; May 27: 1.25mg Prozac; July 29,  2019: Began 1.25mg Lamotrigine

 

 

 

Link to post

following this post for advice on how and when to increase the reinstatement dose.

Took prozac 40 mg for 20 years.

January 2017 started cutting down prozac by 12.5% a week. End of February 2017 completely off prozac and withdrawals began.

Currently taking Levothyroxine 75 mcg, Magnesium citrate 200mg,Sage leaf 50mg daily

Amlodipine: October 2017 , discontinued 26 Feb 2019; Candesartan:  26 Feb 2019, 4mg.

Discontinued magnesium citrate 200mg Apr 3rd 2019

Reinstated prozac:  14 Jan 2019, 1mg; 26 Jan, 1.5mg; 4 Feb, 2mg; 16 Feb, 2.5mg; 2 Mar, 3mg; 5 Mar, 2.5mg, 23 Mar, 3 mg; 6 Apr, 3.5mg, 14 Apr 4mg, 23 Apr 5mg, 10 Jul 8mg, 1 Dec 20mg, 1 Apr 2020 40mg 

Link to post
  • Administrator

It depends on the effect of 0.5mg Prozac. If you find 0.5mg Prozac helpful, we suggest observing for a month before making any increase. More is not necessarily better, as it can trigger kindling in sensitive nervous systems.

 

However, 0.5mg Prozac is a very low dose. If you feel you need more than 0.5mg, we suggest increasing by very small amounts, perhaps 0.25mg--0.5mg at a time, to find the lowest effective dose to reduce withdrawal symptoms. Since Prozac has such a long half-life, the effect will ramp up over a couple of weeks, so you don't want to go too fast in increases, overshoot, and get kindled. We have a bunch of people here who have done that.

 

We're all about trying very small changes and seeing what happens before making another change. With Prozac, this observation period is at least a couple of weeks. For best results, you need to be patient and keep notes while you're doing this. Improvement will be gradual, we don't promise any miracles.

 

I doubt you'll need 10mg or 20mg, but some people have found they need to updose to a "normal" dose -- that's possible, too.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to post

if at any point the initial dose or further increased doses cause a reaction do you need to taper off that dose slowly?

Took prozac 40 mg for 20 years.

January 2017 started cutting down prozac by 12.5% a week. End of February 2017 completely off prozac and withdrawals began.

Currently taking Levothyroxine 75 mcg, Magnesium citrate 200mg,Sage leaf 50mg daily

Amlodipine: October 2017 , discontinued 26 Feb 2019; Candesartan:  26 Feb 2019, 4mg.

Discontinued magnesium citrate 200mg Apr 3rd 2019

Reinstated prozac:  14 Jan 2019, 1mg; 26 Jan, 1.5mg; 4 Feb, 2mg; 16 Feb, 2.5mg; 2 Mar, 3mg; 5 Mar, 2.5mg, 23 Mar, 3 mg; 6 Apr, 3.5mg, 14 Apr 4mg, 23 Apr 5mg, 10 Jul 8mg, 1 Dec 20mg, 1 Apr 2020 40mg 

Link to post

also if you reinstate a small dose does it put your brain healing on hold until you taper off again??

Took prozac 40 mg for 20 years.

January 2017 started cutting down prozac by 12.5% a week. End of February 2017 completely off prozac and withdrawals began.

Currently taking Levothyroxine 75 mcg, Magnesium citrate 200mg,Sage leaf 50mg daily

Amlodipine: October 2017 , discontinued 26 Feb 2019; Candesartan:  26 Feb 2019, 4mg.

Discontinued magnesium citrate 200mg Apr 3rd 2019

Reinstated prozac:  14 Jan 2019, 1mg; 26 Jan, 1.5mg; 4 Feb, 2mg; 16 Feb, 2.5mg; 2 Mar, 3mg; 5 Mar, 2.5mg, 23 Mar, 3 mg; 6 Apr, 3.5mg, 14 Apr 4mg, 23 Apr 5mg, 10 Jul 8mg, 1 Dec 20mg, 1 Apr 2020 40mg 

Link to post

@Altostrata Thank you for taking time to respond to us on SA. It’s so very much appreciated. 

 

I got liquid Prozac yesterday. Still nervous (9 months out from Rapid taper/CT). Thinking of trying 0.5 mg tomorrow morning.  If I slowly titrate up, and then decide later I need to quit , how do I accurately taper off? I have proper syringe, but not sure I understand how to reduce at 5 or 10% increments since there’s just tick marks on syringe. I understand how to do the math, but since it’s not a scale, it is not  as accurate I assume. 

2002-ish-April 2018: Prozac 40mg (was on 20mg for many of those years); Jan-April 2018: too fast "taper" off Prozac

 

July 2018: Tried lowest dose dose Lexapro for 3 weeks; quick tapered off; Aug-Nov. 2108: Ambien and Ambien CR for sleep (appx 10 total doses). Made depression worse and did not work; Nov 2018: 7 doses .5mg Ativan for sleep over 12 days time. Stopped.

December 2018: One week Remeron for sleep. Did not work or help. "Tapered" off over a few weeks.

In past years also took/tried Wellbutrin, Seroquel, Klonopin, Paxil; Current supplements: 1 mg Melatonin; Transdermal magnesium; Fish oil; Ketotifen (mast cell stabilizer), vitamin C; milk peptides 

March 26, 2019: Re-instated  0.5mg Prozac; April 15, 2019 Started 0.75mg Prozac May 6 2019: 1mg Prozac; May 27: 1.25mg Prozac; July 29,  2019: Began 1.25mg Lamotrigine

 

 

 

Link to post
  • Moderator Emeritus

NEW!!!     INTERVIEW with Altostrata, SA's founder    NEW!!! 

 

Plodding along inch by inch:  12" = 1',  3' =  36 " or 1 yard,  1760 yards  = 63,360" or 1 mile

Current from 17 Apr 2021:  Pristiq 0.2665mg  now holding each dose for 3 weeks

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015 

My tapering program   My Intro (goes to my tapering graph)  My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

Link to post

Sorry to hear you're struggling so much--would you please keep this site updated as you reinstate? I am in a similar position as you and have been on the fence about what to do... Thank you and hoping your reinstatement goes well. 

 

Edited by ChessieCat
name change

I don't remember the order or all the dosages but between 2002-2018 I was on...

Wellbutrin, 2002-2005 150-300mg 

Paxil, Lexapro, Effexor, Prozac, Adavan, Xanax

RECENT PAST:

Cymbalta 2015 to 2017, rapid taper in Janaury-February 2017, started withdrawal February 2017

Bridged to Prozac 60 mg in late summer 2017

Taper from Prozac 60 mg to 0 in spring 2018

Entered another withdrawal starting in August 2018

 

 

Link to post

Thank you @ChessieCatbut I guess more specifically: when I start reducing at some point, how do I navigate the “decimal point” numbers if I’m only using a syringe with hash marks? Round up or down? It just doesn’t seem like it would be really accurate. 

2002-ish-April 2018: Prozac 40mg (was on 20mg for many of those years); Jan-April 2018: too fast "taper" off Prozac

 

July 2018: Tried lowest dose dose Lexapro for 3 weeks; quick tapered off; Aug-Nov. 2108: Ambien and Ambien CR for sleep (appx 10 total doses). Made depression worse and did not work; Nov 2018: 7 doses .5mg Ativan for sleep over 12 days time. Stopped.

December 2018: One week Remeron for sleep. Did not work or help. "Tapered" off over a few weeks.

In past years also took/tried Wellbutrin, Seroquel, Klonopin, Paxil; Current supplements: 1 mg Melatonin; Transdermal magnesium; Fish oil; Ketotifen (mast cell stabilizer), vitamin C; milk peptides 

March 26, 2019: Re-instated  0.5mg Prozac; April 15, 2019 Started 0.75mg Prozac May 6 2019: 1mg Prozac; May 27: 1.25mg Prozac; July 29,  2019: Began 1.25mg Lamotrigine

 

 

 

Link to post
  • Moderator Emeritus

I suggest that you do some research on the syringes because there may be better options available that you aren't aware of.

 

You can dilute with water to make a weaker solution which means that you would measure out a larger amount.

 

If the dose amount is a difficult number to measure you round up, not down.

NEW!!!     INTERVIEW with Altostrata, SA's founder    NEW!!! 

 

Plodding along inch by inch:  12" = 1',  3' =  36 " or 1 yard,  1760 yards  = 63,360" or 1 mile

Current from 17 Apr 2021:  Pristiq 0.2665mg  now holding each dose for 3 weeks

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015 

My tapering program   My Intro (goes to my tapering graph)  My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

Link to post
  • 4 weeks later...

I have not yet reinstated Prozac, but am considering due to awful symptoms constantly. However, my sleep is improving a bit (although not like my “old” sleep used to be. It’s very broken with lots of dreams, not deep, and varies from  4-7 combined hours). 

 

Question: is it ok to reinstate Prozac (at miniscule doses, gradually) if one has akathesia? I know Prozac is an “activating” SSRI. I’m assuming many members here have akathesia to varying degrees, and  have tried a Prozac reinstatement (?).  My akathesia is internal, mostly: Agitation, inner restlessness, feeling like I will go crazy and jump out of my skin at times. @ChessieCat @Altostrata Thank you for any feedback. 

2002-ish-April 2018: Prozac 40mg (was on 20mg for many of those years); Jan-April 2018: too fast "taper" off Prozac

 

July 2018: Tried lowest dose dose Lexapro for 3 weeks; quick tapered off; Aug-Nov. 2108: Ambien and Ambien CR for sleep (appx 10 total doses). Made depression worse and did not work; Nov 2018: 7 doses .5mg Ativan for sleep over 12 days time. Stopped.

December 2018: One week Remeron for sleep. Did not work or help. "Tapered" off over a few weeks.

In past years also took/tried Wellbutrin, Seroquel, Klonopin, Paxil; Current supplements: 1 mg Melatonin; Transdermal magnesium; Fish oil; Ketotifen (mast cell stabilizer), vitamin C; milk peptides 

March 26, 2019: Re-instated  0.5mg Prozac; April 15, 2019 Started 0.75mg Prozac May 6 2019: 1mg Prozac; May 27: 1.25mg Prozac; July 29,  2019: Began 1.25mg Lamotrigine

 

 

 

Link to post
  • Administrator

Good to hear your sleep is improving, GBO. This is a good sign.

 

Before trying a reinstatement, which may aggravate those akathisia feelings, you may wish to improve your sleep with

 

Tips to help sleep -- so many of us have that awful withdrawal insomnia

 

Melatonin for sleep: Many people find it helpful

 

TV or computer use in evening can disrupt sleep: Bright light signals the brain that it's daytime


Music for self-care: Calms hyperalertness, anxiety, aids relaxation and sleep

 

If these techniques help, you may not need to reinstate. Sleep is healing and will put you on the path to recovery. Be sure to avoid stress!

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to post

Hi @GonnaBeOk did you end up reinstating? How are you? 

I don't remember the order or all the dosages but between 2002-2018 I was on...

Wellbutrin, 2002-2005 150-300mg 

Paxil, Lexapro, Effexor, Prozac, Adavan, Xanax

RECENT PAST:

Cymbalta 2015 to 2017, rapid taper in Janaury-February 2017, started withdrawal February 2017

Bridged to Prozac 60 mg in late summer 2017

Taper from Prozac 60 mg to 0 in spring 2018

Entered another withdrawal starting in August 2018

 

 

Link to post

Hello gonna be ok,

 

I’ve got akathisia too and I find melatonin helps with sleep. Typically we need a much lower dose than what you can find in the drug store. I take 1mg.

 

im sorry you’re struggling with this symptom. It’s awful. Hang in there 

Aug-Dec 2015 Prozac 20mg / Dec 2015-Feb 2016 Prozac 15mg / Feb 2016-May2016 Prozac 20mg

May 2016-June 2016 15mg

June 2016-August 2016 10mg

October 2016-January 2017 15mg, alternating agitation/akathisia sets in --> cold turkey

January 2017 Clonazepam .5mg 

February 2017 Clonazepam 1mg (for a week) then .5mg morning and .25mg evening for about a month. Came down to .25mg morning and evening. 

May 1, 2017 Clonazepam .25mg morning and .125mg evening. // May 20, 2017 Clonazepam .25mg morning and .0625 evening (.3125 total).

early June .28125 // early mid june .25mg // mid june .21875 // late june .1875 // early july .15625 // early mid july .125 

mid july .09375mg // late july .0625 //early August 2017 down to .03125mg once a day, hopped off in mid August

reinstated at .0625mg late August // Oct 16 - updose to .07mg and switch to oral Rosemont solution

Nov 17 2017 reinstate Prozac .5mg // Nov 21 2017 prozac 1.6mg // Dec 18 2017  3mg prozac / fast taper off the reinstatement -- probably completely off early Oct 2018

June 2019 begin tapering off .07mg Clonazepam, Finish taper December 2019

Link to post

Thank you @Altostrata. I implement all those sleep strategies, including milk peptides. Ironically, last 2 nights of sleep have been poor 😕, but I know it ebbs and flows. 

@Gato123 Unforunately, I’m doing horribly. But it’s been that way for almost a year. Barely functional,extreme panic, akathesia, agoraphobic, severe depression. NOT me at all. So scary. I have not yet reinstated. 

@bheb Thank you. I also take 1 mg melatonin. 

2002-ish-April 2018: Prozac 40mg (was on 20mg for many of those years); Jan-April 2018: too fast "taper" off Prozac

 

July 2018: Tried lowest dose dose Lexapro for 3 weeks; quick tapered off; Aug-Nov. 2108: Ambien and Ambien CR for sleep (appx 10 total doses). Made depression worse and did not work; Nov 2018: 7 doses .5mg Ativan for sleep over 12 days time. Stopped.

December 2018: One week Remeron for sleep. Did not work or help. "Tapered" off over a few weeks.

In past years also took/tried Wellbutrin, Seroquel, Klonopin, Paxil; Current supplements: 1 mg Melatonin; Transdermal magnesium; Fish oil; Ketotifen (mast cell stabilizer), vitamin C; milk peptides 

March 26, 2019: Re-instated  0.5mg Prozac; April 15, 2019 Started 0.75mg Prozac May 6 2019: 1mg Prozac; May 27: 1.25mg Prozac; July 29,  2019: Began 1.25mg Lamotrigine

 

 

 

Link to post

Gotcha, so sorry you're having a rough time. I often don't feel like myself either -- all my energy is gone, spent battling the agitation and restlessness. Been dealing with these same symptoms for a while too, sometimes I will look at myself and my life with utter shock at what I'm coping with. There's no peace. But I try not to dwell on it as much as possible and stay super distracted and practice being grateful for any moment that isn't awful. Hope you get some kind of semblance of a window soon.

Aug-Dec 2015 Prozac 20mg / Dec 2015-Feb 2016 Prozac 15mg / Feb 2016-May2016 Prozac 20mg

May 2016-June 2016 15mg

June 2016-August 2016 10mg

October 2016-January 2017 15mg, alternating agitation/akathisia sets in --> cold turkey

January 2017 Clonazepam .5mg 

February 2017 Clonazepam 1mg (for a week) then .5mg morning and .25mg evening for about a month. Came down to .25mg morning and evening. 

May 1, 2017 Clonazepam .25mg morning and .125mg evening. // May 20, 2017 Clonazepam .25mg morning and .0625 evening (.3125 total).

early June .28125 // early mid june .25mg // mid june .21875 // late june .1875 // early july .15625 // early mid july .125 

mid july .09375mg // late july .0625 //early August 2017 down to .03125mg once a day, hopped off in mid August

reinstated at .0625mg late August // Oct 16 - updose to .07mg and switch to oral Rosemont solution

Nov 17 2017 reinstate Prozac .5mg // Nov 21 2017 prozac 1.6mg // Dec 18 2017  3mg prozac / fast taper off the reinstatement -- probably completely off early Oct 2018

June 2019 begin tapering off .07mg Clonazepam, Finish taper December 2019

Link to post
  • Administrator
6 hours ago, GonnaBeOk said:

Thank you @Altostrata. I implement all those sleep strategies, including milk peptides. Ironically, last 2 nights of sleep have been poor 😕, but I know it ebbs and flows. 

@Gato123 Unforunately, I’m doing horribly. But it’s been that way for almost a year. Barely functional,extreme panic, akathesia, agoraphobic, severe depression. NOT me at all. So scary. I have not yet reinstated. 

@bheb Thank you. I also take 1 mg melatonin. 

 

You may wish to keep notes. Progress towards better sleep may be up and down might not be apparent until you look back a couple of weeks. Gradually, you should sleep more consistently.

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.

Link to post
  • 3 weeks later...

Is it common to have labored breathing in protracted withdrawal? Like, feeling winded without having extended any effort? Would this be due to CNS issues? It’s not a new symptom for me, but has  always been present since WD. Should this go away in time? Still considering reinstatement as alllll my symptoms are brutal and intolerable. 

2002-ish-April 2018: Prozac 40mg (was on 20mg for many of those years); Jan-April 2018: too fast "taper" off Prozac

 

July 2018: Tried lowest dose dose Lexapro for 3 weeks; quick tapered off; Aug-Nov. 2108: Ambien and Ambien CR for sleep (appx 10 total doses). Made depression worse and did not work; Nov 2018: 7 doses .5mg Ativan for sleep over 12 days time. Stopped.

December 2018: One week Remeron for sleep. Did not work or help. "Tapered" off over a few weeks.

In past years also took/tried Wellbutrin, Seroquel, Klonopin, Paxil; Current supplements: 1 mg Melatonin; Transdermal magnesium; Fish oil; Ketotifen (mast cell stabilizer), vitamin C; milk peptides 

March 26, 2019: Re-instated  0.5mg Prozac; April 15, 2019 Started 0.75mg Prozac May 6 2019: 1mg Prozac; May 27: 1.25mg Prozac; July 29,  2019: Began 1.25mg Lamotrigine

 

 

 

Link to post

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×
×
  • Create New...

Important Information

Terms of Use Privacy Policy