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SoCal

SoCal: bromocriptine aka Cycloset & Parlodel dopamine agonist recovery

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SoCal

Hi  there, these are some of the details, and I promise it has a good ending:

 

I have a prolactinoma (period stopped, hormones were off) so the endocrinologist gave me bromocriptine to shrink the tumor so I could get the period back and get pregnant. 

 

I took it for about 10 months and he said once I got pregnant to just go cold turkey with the meds. So I did and experienced a very mild withdrawl (though I didn't know that's what it was at the time) and about a year and a half after I gave birth I had my gall bladder removed. Gall bladders have a lot to do with breaking down things you ingest. 

 

Well, I took one pill, one tiny little bromocriptine pill because the doctor said I should just take bromocriptine forever, and I think it was the fact that I no longer had a gall bladder or that I had had a previous reaction to an SSRI, but I here are the details:

 

Reaction/Withdrawl to Zoloft (sertraline) July 2016 was onset

- palpitations, sinus issues, constant panic, paranoia, vertigo, fatigue, the shocks in the head

- lasted full-strength for about 6 weeks and then started to calm down slowly

- 3 month after onset I was kind of emotionally and psychologically tired but the symptoms were gone and I was able to drink alcohol and coffee again

 

Reaction/Withdrawl to Bromocriptine (dopamine agonist) January 2017 was onset

- sinus issues, constant panic, paranoia, vertigo, fatigue, depersonalizationm, extreme tinitus, loss of concentration, burning scalp, major brain fog

- these symptoms all lasted full force for about 6 months. Then it began to get better and slowly got better for about a year and a bit. Then finally, at about 20 months after onset the horrific brain fog finally went away

- exactly 2 years after onset I still have tinitus now and then and I have some residual anxiety-related issues, as well as PTSD from the whole situation, but I can enjoy my life again. I still can't drink more than a glass of wine with dinner, or have any caffeine, but I'm myself again. 

 

I came back on here because I want all of you to know that it's a waiting game. I'll admit there were a couple of months during the cold, harsh, dark Canadian winter (at 12 months after onset) where I wondered whether I had it in me to keep fighting, but I did keep fighting, and it got better. I can look at the sun again, feel sunshine and like it, I can feel happiness without really focusing on trying to feel it, the horrible brain fog and insomnia that plagued my life are basically gone. I can drive around again. If I lose sleep, it's no big deal.

 

I can only describe those 2 years, the worst 2 years of my life, as the feeling of all of the bad things that have ever happened to me, but instead of them happening over 30-something years, being multiplied by 2 and rolled into 2 years. But it gets better. 

 

Things I did to help me cope:

- I got as much fresh air as I could

- I went out and did stuff even if it hurt. Now, I can't remember the pain of it all, but I do have nice memories of things I did with people. Nearly drove me insane but I did it

- guzzled night time tea every two hours to keep the panic down

- along with the tea took Holy Basil caps 

- along with those took L-Theanine tablets, those were amazing. I used to down them like mentos. Truly helpful. 

- when the night-time tea started making me feel bad I switched to Chamomille 

- got as much excersize as I could; you have to sweat 

- read success stories; you have to keep your hope alive 

- stay active; the withdrawl is going to be there no matter what you do

 

Something that helped me a lot was that I wrote a novel. I got some serious flow out of that, so my suggestion is to find something you love that is work but is also enjoyable, because at some point you're going to crawl out of the haze and I can tell you that it feels good to have something to show for all the pain you went through. 

 

It will feel like a lifetime will go by before you are through this, but you will get through it, and it will feel amazing. All the posts that talked about bromocriptine withdrawl said it was 2 years from onset to full recovery, and that has been the case with me too. Not 100% recovered yet, at 24 months, but pretty dang close. So, if that's what you took, then yah, at 20/21 months I was feeling like it was never going to end but then all of a sudden the fog finally lifted and I could experience happiness the way I used to and it was an incredible feeling. I even went to a concert and was totally fine with the noise. Anyways, all the best to any readers out there, and don't lose hope. 

Edited by ChessieCat
removed ****

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ChessieCat

Hi SoCal and welcome to SA,

 

That's certainly a couple of horrible years that you have endured.  Glad to hear that things are improving for you.

 

 

Please create a drug signature using the following format.  Keep it simpleNO diagnoses or symptoms please - thank you.

  • details for last 2 years - dates, ALL drugs, doses
  • summary for older than 2 years - just years and drug/s

Account Settings – Create or Edit a signature

 

 

This is the link to a search on the drug on SA:

 

https://www.survivingantidepressants.org/search/?q=Bromocriptine Cyclose Parlodel

 

 

This is your own Introduction topic where you can ask questions about your own situation and journal your progress.


Being very patient.  I'll get there - slowly.  ETA mid 2021

ADs:  25 years - 1 unknown, Prozac (caused muscle weakness), Zoloft/sertraline; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after)

Pristiq:  50mg 2012, 100mg beg 2013 (mild Serotonin Toxicity)

Began tapering Oct 2015  Current from 17 Oct 2020:  Pristiq 0.56 mg (compounded + liquid)

My tapering program

My Intro (goes to my tapering graph)

My website - includes my brief history + links to videos & information on the web

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

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Rachellynn

I am so sorry you’ve been through all this but thank you for sharing as you’ve given me a lot of hope. Sending love❤️

 

Edited by ChessieCat
removed quote

 

Rachel - 1998-2012 Prozac 20mg

2012-2014 Prozac 40mg

Sept 17 Remeron 15mg, March ‘18 7.5mg

Jan 31 - Feb 13 1/4 - 1mg Ativan

Jan 31 - feb 5 - 2mg Prozac, 4mg feb 7

feb 10 - 10mg rem, Feb 27 - 7.5mg rem

Feb 27 - March 6th - 5mg Baclofen 

March 12th - Keppra 250mg

March 24 - 30mg phenobarbital 

 

 

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Carmie

Hi Socal, 

 

How are you doing?💚


Been on antipsychotics, benzos, antidepressants and painkillers for chronic pain. 

Have been cold turkeyed and put on and off all sorts of things.  Was suicidal n ended up in a psych ward because I had akathisia from withdrawals. I can’t remember what I was put on but when I was released was in the same predicament with severe akathisia n was suicidal again.

Back to the psych ward and I was given a number of different drugs while there. Tapered off one when I got home n have been trying to taper off Seroquel since. It’s been years, tapering slowly but still having severe withdrawals.

I’ve  tapered from 300mg of Seroquel to 7.5mg./ March 10th 2019=7.25mg / 17th of April 2019= 7mg / June 5th=6.75mg/ July 14th=6.50mg/ 28th of August=6.25mg/ 10th of Oct= 6.20mg/ 21st October 6mg/ 16th of December 5.80mg/21st of January 5.60mg/

 

I AM NOT A MEDICAL PROFESSIONAL. These are my own views based on what I’ve experienced myself.

 

 

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SoCal
On 2/9/2019 at 12:18 PM, Rachellynn said:

I am so sorry you’ve been through all this but thank you for sharing as you’ve given me a lot of hope. Sending love❤️

 

You'll get through it! I promise! And then eventually it will all become a strange memory of a time when you just weren't yourself. Sending love back!

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