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Sassenach: is the updose working?


Sassenach

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  • Mentor
12 hours ago, Sassenach said:

It is a week ago today and finally caught up so feeling really down.

 

‘I have a dog too, so I understand the closeness you had with him. I’m so sorry that you’ve lost him.

 = medication taken now

2007 quetiapine to March 2019 200mg

2019 quetiapine March to present 225mg 

2007 citalopram to present 40mg 
2018 March Abilify 5mg  
2019 Abilify February rapid taper over 3 weeks from 5mg to off

2019 March Clonazepam as required, taken very occasionally, then taken 0.5mg for 2 days 28th and 29th March, now phased out

2019 1st April reinstated Abilify 0.5mg / day 

2018 to 2020 Liquid B12 2g twice daily (diagnosed B12 deficiency) 

2020 July reduced quetiapine to 200mg

2022 October began taper of Abilify
 

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  • Moderator Emeritus

Thanks Rich.

 

Miss him a lot but I had 15 years with him, he went everywhere with me so still keep expecting to see him.

I am fortunate in that my wife also has a border collie but as a breed they attach themselves to one person but at least we still have a dog to walk.

I hope and your's are well as they seem to understand better than some people how low you can feel.

 

Sassenach

Escitalopram 10mgs from mid 2007 ( can't remember exact date) to 11th Dec 2018

Fentanyl patches ( don't remember dose ) from Nov 2014 to 11 Dec 2018

Quit both cold turkey Dec 2018

Reinstated 3rd March 2019 2.5 mgs.

Updosed  8March to 5mgs and holding

25/11/19 Started taper 4.5mgs and holding

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner

If you are going through Hell, keep going. NCIS series 15, David MaCallum:rolleyes:

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  • Moderator Emeritus

Is it possible for Escitalopram to poop out after reinstatement at a lower dose.

Original dose 10 mgs.

Reinstated 2.5 mgs 7 weeks ago and updosed to 5mgs 6 weeks ago.

Allowing for the waves I was having a steady improvement until this last week during which I have been totally exhausted,

had brain fog so bad I was unfit to drive three days.

I have slept every afternoon.

Those small jobs I did manage I had to force myself to get moving.

Is it just a long wave or is something else going on ?

Escitalopram 10mgs from mid 2007 ( can't remember exact date) to 11th Dec 2018

Fentanyl patches ( don't remember dose ) from Nov 2014 to 11 Dec 2018

Quit both cold turkey Dec 2018

Reinstated 3rd March 2019 2.5 mgs.

Updosed  8March to 5mgs and holding

25/11/19 Started taper 4.5mgs and holding

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner

If you are going through Hell, keep going. NCIS series 15, David MaCallum:rolleyes:

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  • Moderator Emeritus
8 minutes ago, Sassenach said:

 

Is it just a long wave or is something else going on ?

 

It sounds to me like a wave rather than poop-out.  Your steady previous improvement is a very encouraging sign and an indication that the reinstatement is working.   Your body is still recalibrating itself from the cold turkey 5 months ago and the reinstatements last month.  Unfortunately, stabilizing can take quite a while.

 

Sorry about the loss of your border collie.  We have three rescues, including a 15-year old blind Yorkie.

 

I don't recall whether you have tried omegas and magnesium.  Many people find them calming to the nervous system.  Try them one at a time and at a low dose in case problems arise.

 

 

 
Please keep us posted.

 

Gridley Introduction

 

Lexapro 20 mg since 2004.  Begin Brassmonkey Slide Taper Jan. 2017.   

End 2017 year 1 of taper at 9.25mg 

End 2018 year 2 of taper at 4.1mg

End 2019 year 3 of taper at 1.0mg  

Oct. 30, 2020  Jump to zero from 0.025mg.  Current dose: 0.000mg

3 year, 10 month taper is 100% complete.

 

Ativan 1 mg to 1.875mg 1986-2020, two CT's and reinstatements

Nov. 2020, 7-week Ativan-Valium crossover to 18.75mg Valium

Feb. 2021, begin 10%/4 week taper of 18.75mg Valium 

End 2021  year 1 of Valium taper at 6mg

End 2022 year 2 of Valium taper at 2.75mg 

End 2023 year 3 of Valium taper at 1mg

Jan. 24, 2024: Hold at 1mg and shift to Imipramine taper.

Taper is 95% complete.

 

Imipramine 75 mg daily since 1986.  Jan.-Sept. 2016 tapered to 14.4mg  

March 22, 2022: Begin 10%/4 week taper

Aug. 5, 2022: hold at 9.5mg and shift to Valium taper

Jan. 24, 2024: Resume Imipramine taper.  Current dose as of April 1: 6.8mg

Taper is 91% complete.  

  

Supplements: multiple, quercetin, omega-3, vitamins C, E and D3, magnesium glycinate, probiotics, zinc, melatonin .3mg, iron, serrapeptase, nattokinase


I am not a medical professional and this is not medical advice but simply information based on my own experience, as well as other members who have survived these drugs.

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  • Moderator Emeritus

Thanks Gridley

 

You must have the magic touch feel much better today.

 

Hope all your dogs are OK.

We still have my wife's collie but he does not have Mac's temperament or love of life.

Have taken Cod Liver Oil for years so take slightly more at present.

 

It never ceases to amaze how someone else's positive attitude can help.

 

Thanks

 

Sassenach

Escitalopram 10mgs from mid 2007 ( can't remember exact date) to 11th Dec 2018

Fentanyl patches ( don't remember dose ) from Nov 2014 to 11 Dec 2018

Quit both cold turkey Dec 2018

Reinstated 3rd March 2019 2.5 mgs.

Updosed  8March to 5mgs and holding

25/11/19 Started taper 4.5mgs and holding

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner

If you are going through Hell, keep going. NCIS series 15, David MaCallum:rolleyes:

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  • 2 weeks later...
  • Moderator Emeritus

The last week has been really good.

A week long window with only a couple of wavelets.

Some days were better than others but I was able to walk the dog every day sometimes twice.

I was also able to wash the car do outside jobs and indulge my hobby a little.Thursday was particularly good and the best for a very long time marred only by a little brain fog and blurred vision.

I have started to score my days as a percentage, can only be relative to how I remember feeling before all this started.

The last two days back to a wave, temperature dysregulation ( thank you Gridley for telling me what it is ) freezing all day day yesterday. Walked dog 1.5 miles yesterday morning hoping to shake it off. Did not work bed rest of day.

Today walked dog 9AM for short distance feeling rough. Again back to bed.

Trying to see waves as positive because it means my brain is still trying to get better so the next window will be a further improvement.

No idea whether that is true but it helps me.

Hope everyone is as lucky.

Escitalopram 10mgs from mid 2007 ( can't remember exact date) to 11th Dec 2018

Fentanyl patches ( don't remember dose ) from Nov 2014 to 11 Dec 2018

Quit both cold turkey Dec 2018

Reinstated 3rd March 2019 2.5 mgs.

Updosed  8March to 5mgs and holding

25/11/19 Started taper 4.5mgs and holding

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner

If you are going through Hell, keep going. NCIS series 15, David MaCallum:rolleyes:

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  • Moderator Emeritus
2 hours ago, Sassenach said:

 

Trying to see waves as positive because it means my brain is still trying to get better so the next window will be a further improvement.

No idea whether that is true but it helps me..

 

It is true.  Waves indicate healing, as the brain recalibrates itself heading back toward "factory settings."  Everything is off-balance (and unpleasant) as things shift around. 

 

The  following is from the thread The Windows and Waves Pattern of Stabilization

 

"Waves mean your nervous system is struggling to heal. It moves in the right direction for a bit then falls back a bit. This is normal. You can view the "better" part of the wave as when your nervous system is finding its balance. These periods will get longer and more frequent as time goes on."

 

I'm very happy you're doing so well.

 

Gridley Introduction

 

Lexapro 20 mg since 2004.  Begin Brassmonkey Slide Taper Jan. 2017.   

End 2017 year 1 of taper at 9.25mg 

End 2018 year 2 of taper at 4.1mg

End 2019 year 3 of taper at 1.0mg  

Oct. 30, 2020  Jump to zero from 0.025mg.  Current dose: 0.000mg

3 year, 10 month taper is 100% complete.

 

Ativan 1 mg to 1.875mg 1986-2020, two CT's and reinstatements

Nov. 2020, 7-week Ativan-Valium crossover to 18.75mg Valium

Feb. 2021, begin 10%/4 week taper of 18.75mg Valium 

End 2021  year 1 of Valium taper at 6mg

End 2022 year 2 of Valium taper at 2.75mg 

End 2023 year 3 of Valium taper at 1mg

Jan. 24, 2024: Hold at 1mg and shift to Imipramine taper.

Taper is 95% complete.

 

Imipramine 75 mg daily since 1986.  Jan.-Sept. 2016 tapered to 14.4mg  

March 22, 2022: Begin 10%/4 week taper

Aug. 5, 2022: hold at 9.5mg and shift to Valium taper

Jan. 24, 2024: Resume Imipramine taper.  Current dose as of April 1: 6.8mg

Taper is 91% complete.  

  

Supplements: multiple, quercetin, omega-3, vitamins C, E and D3, magnesium glycinate, probiotics, zinc, melatonin .3mg, iron, serrapeptase, nattokinase


I am not a medical professional and this is not medical advice but simply information based on my own experience, as well as other members who have survived these drugs.

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  • Mentor
3 hours ago, Sassenach said:

The last week has been really good.

A week long window with only a couple of wavelets.

Some days were better than others but I was able to walk the dog every day sometimes twice.

I was also able to wash the car do outside jobs and indulge my hobby a little.Thursday was particularly good and the best for a very long time marred only by a little brain fog and blurred vision.

I have started to score my days as a percentage, can only be relative to how I remember feeling before all this started.

The last two days back to a wave, temperature dysregulation ( thank you Gridley for telling me what it is ) freezing all day day yesterday. Walked dog 1.5 miles yesterday morning hoping to shake it off. Did not work bed rest of day.

Today walked dog 9AM for short distance feeling rough. Again back to bed.

Trying to see waves as positive because it means my brain is still trying to get better so the next window will be a further improvement.

No idea whether that is true but it helps me.

Hope everyone is as lucky.

 

‘Good to hear how well you’re doing. I hope it continues!

 

R

 = medication taken now

2007 quetiapine to March 2019 200mg

2019 quetiapine March to present 225mg 

2007 citalopram to present 40mg 
2018 March Abilify 5mg  
2019 Abilify February rapid taper over 3 weeks from 5mg to off

2019 March Clonazepam as required, taken very occasionally, then taken 0.5mg for 2 days 28th and 29th March, now phased out

2019 1st April reinstated Abilify 0.5mg / day 

2018 to 2020 Liquid B12 2g twice daily (diagnosed B12 deficiency) 

2020 July reduced quetiapine to 200mg

2022 October began taper of Abilify
 

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On 4/14/2019 at 4:09 PM, Gridley said:

 

When the time comes you can make your own liquid or cut the pills and weigh them.  The AWS Gemini 20 scale is available (not expensive) on Amazon in the UK.  We can provide you with instructions when you're ready.

Hi Gridley. How much is the minimum mg that the AWS Gemini 20 scale weighs or measures? I 

Hello. I'm rainbow. Thanks for your support. The medicines I"ve taken are:

February-March 1998 In the night 1 pill of Thiorizadine Clorhidrate plus one pill of Clobazam

Then:

April 1998-December 1999 just in the night Olanzapine (dont remeber dose), 20mgrs paroxetine, 2mgrs Clonazepam

January 2000-December 2011 just in the night 20 mg paroxetine, 2mg Clonazepam, 3mgrs Risperidone.

January 2012-July 2013 200 mgrs Quetiapine, 3mgrs Risperidone,2mg Clonazepam.

August 2013-December 2022 just in the night 3mgrs risperidone, 2mgrs Clonazepam, 2mgrs flunitrazepam

January 2023-Ocrober 2023 1.5 mgrs risperidone morning. 3mgrs risperidones, 2mgrs Clonazepam, 2mgrs flunitrazepam. (night)

Which PD should I first start to taper off with? Many thanks in advance. (Wednesday 4th October 2023)

 

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  • Moderator Emeritus
14 hours ago, rainbow said:

Hi Gridley. How much is the minimum mg that the AWS Gemini 20 scale weighs or measures? I 

 

I haven't gotten down to the really low doses yet.  Right now I'm at 29mg pill weight of my brand of Lexapro, which is 2.8mg active ingredient, and it's doing fine.  But the scale will measure only in increments of 1mg pill weight. Take a look at Brassmonkey's signature to see how he handled this limitation.

 

Gridley Introduction

 

Lexapro 20 mg since 2004.  Begin Brassmonkey Slide Taper Jan. 2017.   

End 2017 year 1 of taper at 9.25mg 

End 2018 year 2 of taper at 4.1mg

End 2019 year 3 of taper at 1.0mg  

Oct. 30, 2020  Jump to zero from 0.025mg.  Current dose: 0.000mg

3 year, 10 month taper is 100% complete.

 

Ativan 1 mg to 1.875mg 1986-2020, two CT's and reinstatements

Nov. 2020, 7-week Ativan-Valium crossover to 18.75mg Valium

Feb. 2021, begin 10%/4 week taper of 18.75mg Valium 

End 2021  year 1 of Valium taper at 6mg

End 2022 year 2 of Valium taper at 2.75mg 

End 2023 year 3 of Valium taper at 1mg

Jan. 24, 2024: Hold at 1mg and shift to Imipramine taper.

Taper is 95% complete.

 

Imipramine 75 mg daily since 1986.  Jan.-Sept. 2016 tapered to 14.4mg  

March 22, 2022: Begin 10%/4 week taper

Aug. 5, 2022: hold at 9.5mg and shift to Valium taper

Jan. 24, 2024: Resume Imipramine taper.  Current dose as of April 1: 6.8mg

Taper is 91% complete.  

  

Supplements: multiple, quercetin, omega-3, vitamins C, E and D3, magnesium glycinate, probiotics, zinc, melatonin .3mg, iron, serrapeptase, nattokinase


I am not a medical professional and this is not medical advice but simply information based on my own experience, as well as other members who have survived these drugs.

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  • Moderator Emeritus

Thanks Gridley.

 

Glad to see your taper is back on track and hope you and all your's are well.

 

Love to the Yorkie😁

Escitalopram 10mgs from mid 2007 ( can't remember exact date) to 11th Dec 2018

Fentanyl patches ( don't remember dose ) from Nov 2014 to 11 Dec 2018

Quit both cold turkey Dec 2018

Reinstated 3rd March 2019 2.5 mgs.

Updosed  8March to 5mgs and holding

25/11/19 Started taper 4.5mgs and holding

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner

If you are going through Hell, keep going. NCIS series 15, David MaCallum:rolleyes:

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Hey Sassy (ha ha),


I thought I'd come over here and say hello and ***THANK YOU*** for all your lovely messages on my intro thread.

 

As you've seen, I've posted my liver test results there and I'm now not as concerned about them. Alto and your words on this point have been of great reassurance, thank you.

 

I'm not sure what you were asking about with regards to 'Dia....' but if that's 'diazepam' I think you may have got your wires crossed or seen something on my thread that I wasn't going to go near... benzos... I see that can be of short-term help but I don't want to add them into the mix. I figure stability is what I need more than anything, so taking a benzo even for a day or two is going to cause some degree of destabilisation.

 

I'm practising being grateful for the following:

 

- I can sleep for about 7 hours a night (was only getting 2 hours a night during January and February)

- I can eat (zero appetite in Jan and Feb, but as I'm a curvy girl, appetite loss isn't a big concern to me!). And actually, as my Seroxat dose has come down, so has my appetite and weight, so this is actually a good thing.

- I have had a few calm, positive evenings this week, despite some stresses

- I have friends on this site and we're are all on the same wavelength.

 

Now to you:

 

- Your past week has been really good – is there anything you can pinpoint as being behind this? A lesson for the future maybe?

- What's your hobby that you've been indulging?

- What are you looking forward to that's on the horizon?

 

Thank you again for all your kind posts and encouragement. Really means a lot. Anna X

LATEST SITUATION

*GSK-BRANDED LIQUID SEROXAT*

CURRENTLY HOLDING AT 4.84MG LIQUID SEROXAT (PAROXETINE) DAILY, FOLLOWING 5% TAPER SINCE JUNE 2020 AS FOLLOWS:

  • 1 APR 21: UPDOSE TO (AND HOLDING SINCE) 4.84MG PER DAY, AS 4MG LUNCHTIME, 0.84MG EVENING
  • PREVIOUS TAPERING SINCE JUNE 2020: 13 Mar 21 (CRASHED 19 MAR 21) 4.72mg per day, as 4mg lunchtime, 0.72mg evening | 13 Feb 21: 4.96mg per day, as 4.24mg lunchtime, 0.72mg evening | 16 Jan 21: 5.2mg per day, as 4.48mg lunchtime, 0.72mg evening | 19 Dec 20: 5.48mg per day, as 4.76mg lunchtime, 0.72mg evening | 21 Nov 20: 5.76mg per day, as 5.04mg lunchtime, 0.72mg evening | 24 Oct 20: 6.04mg per day, as 5.32mg lunchtime, 0.72mg evening | 26 Sept 20: 6.36mg per day, as 5.64mg lunchtime; 0.72mg evening | 29 Aug 20: 6.68mg per day, as 5.96mg lunchtime; 0.72mg evening | 1 Aug 20: 7mg  per day, as 6.28mg lunchtime; 0.72mg evening (bereavement, didn't reduce) | 4 Jul 20: 7mg per day, as 6.28mg lunchtime; 0.72mg evening | 6 Jun 20: 7.36mg per day, as 6.64mg lunchtime; 0.72mg evening

*OTHER MEDS/SUPPLEMENTS*

Since my March 2021 crash (above), I have very occasionally taken a benzo, and increased some of my supplements. Please see this document.

————————————————————————————————

PREVIOUSLY

From 12 May 19 to 5 Jun 20 inclusive: 7.72mg per day, as 7mg lunchtime; 0.72mg evening. Split my doses in May 2019 as I suspect half-life is more of a factor at lower doses. Further history here.

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On 4/14/2019 at 6:05 PM, Sassenach said:

do not like conspiracy theories but is beginning to feel as though the GPs have been to told to keep silent while the NHS sorts out the potential implications

 

I would agree with you, there is a really weird wall of silence. In fact it's worse than that, sometimes it verges on downright gaslighting. 

 

My GP basically said (after I'd told him about withdrawal) that there was nothing he could really do if I was "choosing to face depression on my own", ie with out antidepressants. Err no, I'm having to face a withdrawal syndrome from prescribed drugs on my own because you're basically telling me I have too. Why exactly? I can understand that we've all been poorly informed, but I need candour. I still need support to get on with my life as best I can (there isnt going to be a 'cure' as such for this beyond rarely prescribing). I need to be able to tell the people in my life who matter to me whats wrong in the same way some one with MS can and not risk disbelief. Not have them roll their eyes out of ignorance and blindly  tell me to 'just go back to the Dr'. I cant. The Dr genuinely, scarily, actually doesnt have a clue. 

 

I would love to form/join some kind of patient pressure group to help get this scandal exposed. Im sure people are. 

Citalopram. Briefly early twenties, no ill effects seemingly. Don't remember dose.

 

Sertraline on and off for ten years.  I was ignorant and started and stopped frequently. Doses of 50, 75 and 100. I can not recall/did not record dates prior to 2018.

 

JANUARY 2018: Last period of use was was 150mg of sertraline on 14/01/18  (which triggered extreme depression and anxiety that never settled, amongst other symptoms). I then tapered to 100mg in March (15/03/18), then down to 75mg in April(01/04/18) , 50mg later (11/04/18) 25mg in May  (16/05/18),  and was at 0mg in June (02/06/18).

 

Mirtazapine 15mg 01/08/18- 02/10/18, 15mg (6 weeks at 15mg the two week taper). - caused deeply unpleasant waves of extreme anxiety, depression, zombie state and mania.

 

Still on 40mg of Propranolol twice a day since April 2018. Supplements: Fish oil, Magnesium, Vit B6

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  • Moderator Emeritus

Hi Vincent

 

I am sure you know the NHS and NIHCE are currently reviewing the guidelines but are not expected to publish until late this year.

There has already been substantial exposure in the UK via television, rado and newspapers, see https://www.survivingantidepressants.org/forum/15-in-the-media/

My GP was equally reluctant until I told him what I intended to do.

As soon as I effectively took the decision out of his hands he agreed to do whatever I needed to help me.

Leads me to think that at least some do know there is an issue but their hands are tied, which leaves them between a rock and the proverbial.

Problem is we are the ones suffering.

 

Hope you are doing OK

 

Sassenach

 

Escitalopram 10mgs from mid 2007 ( can't remember exact date) to 11th Dec 2018

Fentanyl patches ( don't remember dose ) from Nov 2014 to 11 Dec 2018

Quit both cold turkey Dec 2018

Reinstated 3rd March 2019 2.5 mgs.

Updosed  8March to 5mgs and holding

25/11/19 Started taper 4.5mgs and holding

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner

If you are going through Hell, keep going. NCIS series 15, David MaCallum:rolleyes:

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  • Moderator Emeritus

Why do I need so much sleep.

Used to be 6-7 hrs a night, up at 6am.

Still up at 6am tried to sleep on but cannot.

By 1pm I am exhausted and fall deep asleep for 1/2 sometimes 3 hrs and feel dreadful when I wake.

Last window 9/5 and poor week since.

Have to keep playing Iggy Pop, keep on believing.

Sure I will get there eventuallyyyyyyyyyyyyy

Escitalopram 10mgs from mid 2007 ( can't remember exact date) to 11th Dec 2018

Fentanyl patches ( don't remember dose ) from Nov 2014 to 11 Dec 2018

Quit both cold turkey Dec 2018

Reinstated 3rd March 2019 2.5 mgs.

Updosed  8March to 5mgs and holding

25/11/19 Started taper 4.5mgs and holding

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner

If you are going through Hell, keep going. NCIS series 15, David MaCallum:rolleyes:

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  • Moderator Emeritus
27 minutes ago, Sassenach said:

Why do I need so much sleep.

Sorry you're feeling a little low.  These sleep disruptions and fatigue are unfortunately part and parcel of withdrawal.  You'll get there.  I only wish I could tell you when.

 

 

Gridley Introduction

 

Lexapro 20 mg since 2004.  Begin Brassmonkey Slide Taper Jan. 2017.   

End 2017 year 1 of taper at 9.25mg 

End 2018 year 2 of taper at 4.1mg

End 2019 year 3 of taper at 1.0mg  

Oct. 30, 2020  Jump to zero from 0.025mg.  Current dose: 0.000mg

3 year, 10 month taper is 100% complete.

 

Ativan 1 mg to 1.875mg 1986-2020, two CT's and reinstatements

Nov. 2020, 7-week Ativan-Valium crossover to 18.75mg Valium

Feb. 2021, begin 10%/4 week taper of 18.75mg Valium 

End 2021  year 1 of Valium taper at 6mg

End 2022 year 2 of Valium taper at 2.75mg 

End 2023 year 3 of Valium taper at 1mg

Jan. 24, 2024: Hold at 1mg and shift to Imipramine taper.

Taper is 95% complete.

 

Imipramine 75 mg daily since 1986.  Jan.-Sept. 2016 tapered to 14.4mg  

March 22, 2022: Begin 10%/4 week taper

Aug. 5, 2022: hold at 9.5mg and shift to Valium taper

Jan. 24, 2024: Resume Imipramine taper.  Current dose as of April 1: 6.8mg

Taper is 91% complete.  

  

Supplements: multiple, quercetin, omega-3, vitamins C, E and D3, magnesium glycinate, probiotics, zinc, melatonin .3mg, iron, serrapeptase, nattokinase


I am not a medical professional and this is not medical advice but simply information based on my own experience, as well as other members who have survived these drugs.

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  • Moderator

Just wanted to know how you were doing?

 

Hope well.

 

Take care,

 Frogie xx

PREVIOUS medications and discontinuations: Have been on medications since 1996. 

 Valium, Gabapentin, Lamictal, Prilosec and Zantac from 2000 to 2015 with a fast taper by a psychiatrist.

 Liquid Lexapro Nov, 2016 to 31-March, 2019 Lexapro free!!! (total Lexapro taper was 4 years-started with pill form)

---CURRENT MEDICATIONS:Supplements:Milk Thistle, Metamucil, Magnesium Citrate, Vitamin D3, Levothyroxine 25mcg, Vitamin C, Krill oil.

Xanax 1mg 3x day June, 2000 to 19-September, 2020 Went from .150 grams (average weight of 1 Xanax) 3x day to .003 grams 3x day. April 1, 2021 went back on 1mg a day. Started tapering May 19, 2023. July 28, 2023-approximately .87mg. Dr. fast tapered me at the end and realized he messed up. Prescribe it again and I am doing "slower than a turtle" taper.

19-September, 2020 Xanax free!!! (total Xanax taper was 15-1/2 months-1-June, 2019-19-September, 2020)

I am not a medical professional.

The suggestions I make are based on personal experience.

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  • Mentor
15 hours ago, Sassenach said:

Why do I need so much sleep.

Used to be 6-7 hrs a night, up at 6am.

Still up at 6am tried to sleep on but cannot.

By 1pm I am exhausted and fall deep asleep for 1/2 sometimes 3 hrs and feel dreadful when I wake.

Last window 9/5 and poor week since.

Have to keep playing Iggy Pop, keep on believing.

Sure I will get there eventuallyyyyyyyyyyyyy

 

I'm the same  - I fall asleep during the day most days.

 

I'm sorry you've hit some tough times, I hope it passes soon. You definitely will get there!

 

R

 

 

 = medication taken now

2007 quetiapine to March 2019 200mg

2019 quetiapine March to present 225mg 

2007 citalopram to present 40mg 
2018 March Abilify 5mg  
2019 Abilify February rapid taper over 3 weeks from 5mg to off

2019 March Clonazepam as required, taken very occasionally, then taken 0.5mg for 2 days 28th and 29th March, now phased out

2019 1st April reinstated Abilify 0.5mg / day 

2018 to 2020 Liquid B12 2g twice daily (diagnosed B12 deficiency) 

2020 July reduced quetiapine to 200mg

2022 October began taper of Abilify
 

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  • Moderator Emeritus

Hi Gridley, Rich

 

Thanks guys.

I guess I must be feeling a bit better if all I have whinge about is sleep🤣

 

Hope you are both ok.

 

Sassenach

Escitalopram 10mgs from mid 2007 ( can't remember exact date) to 11th Dec 2018

Fentanyl patches ( don't remember dose ) from Nov 2014 to 11 Dec 2018

Quit both cold turkey Dec 2018

Reinstated 3rd March 2019 2.5 mgs.

Updosed  8March to 5mgs and holding

25/11/19 Started taper 4.5mgs and holding

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner

If you are going through Hell, keep going. NCIS series 15, David MaCallum:rolleyes:

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  • 2 weeks later...
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@Sassenach

 

Sorry you're had a rough three days.  I'm glad you can remember that the windows will return.

Gridley Introduction

 

Lexapro 20 mg since 2004.  Begin Brassmonkey Slide Taper Jan. 2017.   

End 2017 year 1 of taper at 9.25mg 

End 2018 year 2 of taper at 4.1mg

End 2019 year 3 of taper at 1.0mg  

Oct. 30, 2020  Jump to zero from 0.025mg.  Current dose: 0.000mg

3 year, 10 month taper is 100% complete.

 

Ativan 1 mg to 1.875mg 1986-2020, two CT's and reinstatements

Nov. 2020, 7-week Ativan-Valium crossover to 18.75mg Valium

Feb. 2021, begin 10%/4 week taper of 18.75mg Valium 

End 2021  year 1 of Valium taper at 6mg

End 2022 year 2 of Valium taper at 2.75mg 

End 2023 year 3 of Valium taper at 1mg

Jan. 24, 2024: Hold at 1mg and shift to Imipramine taper.

Taper is 95% complete.

 

Imipramine 75 mg daily since 1986.  Jan.-Sept. 2016 tapered to 14.4mg  

March 22, 2022: Begin 10%/4 week taper

Aug. 5, 2022: hold at 9.5mg and shift to Valium taper

Jan. 24, 2024: Resume Imipramine taper.  Current dose as of April 1: 6.8mg

Taper is 91% complete.  

  

Supplements: multiple, quercetin, omega-3, vitamins C, E and D3, magnesium glycinate, probiotics, zinc, melatonin .3mg, iron, serrapeptase, nattokinase


I am not a medical professional and this is not medical advice but simply information based on my own experience, as well as other members who have survived these drugs.

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Hey @Sassenach,

Just read that your last three days have been a bit rubbish. Sorry to hear this. The windows will return, I hope they reappear for you very soon.

Oh, and I also have to take frequent naps. I'm in bed by 9 30pm most evenings....and on workdays, I even nod off on the couch before that time. Good old citalopram.

 

May's been a strange month. 

Sending you good wishes from cloudy London.

January 2008 to April 2015 Citalopram 20mg to 5mg, reducing in 50 per cent leaps. Jumped off at 5mg

March 2016 used MDMA triggered setback

April 2016 Citalopram 10mg October 2016 cut to 5mg, May 2017 cut to 2.5mg

May 2018 used MDMA triggered setback

June 2018 Citalopram 2.5mg up to 10mg, then back to 5mg

July/ August 2018 7.5mg, then 10mg

June 2019 updosed to 20mg Citalopram

August 2019 cold switch to Venlafaxine 75mg XR

Supplements; 1100mg fish oil daily; also 100mg Magnesium Glycinate. Tried Vagifem 10mcg from mid May 2021 to mid June 2021; caused depression, so stopped.

 

 

 

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Good morning Sassenach, 

 

Thank you for your kind message.  Just wondering how you are feeling and if any or all of your symptoms have improved? Hope you have a good day too and hopefully some sun.  

 

Take care, sending healing hugs over the border ....

Rachel 

xxxxxxx

Pantoprazole 40mg 2016 to 2019 Mirtazapine 15mg May to Aug 2017 (Akathisia)

Seroquel and Abilify July 2017 (caused itching and SI) stopped immediately 

Lorazepam July 2017 to February 2018 (up to 3mg daily) tapered to 1mg by Feb ‘18

Escitalopram 20mg Aug 2017 to 18 April 2019 tapered over 13 months from Feb 2018 

Diazepam crossed over from Lorazepam 1mg to 10mg tapered to 1mg by June ‘18

Updosed back to 2mg bad crash June 2018 . Restarted taper Dec 2018 to present

April 2019 reached 0.15mg Diazepam and was holding. 

CRASH 24 April 2019  Severe suicidal feelings, anxiety, akathisia started suddenly.

Updosed Diazepam immediately to 0.5mg x 2, up again to 1mg x 2 on April 30th

Zopiclone 7.5mg 3rd May for 1 week RI Escitalopram at 2.5mg on 6th May, inc to 5mg 9th May then 10mg by mistake on 21st May, red to 7.5mg 27th May Updosed to 10mg per pysch team 5th July. Lorazepam fully switched to Diazepam 11mg 5th July 

 

 

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Good evening, just dropping by to say hello, hope you're doing ok. 

Sending sun and hugs :)

 

 

January 2008 to April 2015 Citalopram 20mg to 5mg, reducing in 50 per cent leaps. Jumped off at 5mg

March 2016 used MDMA triggered setback

April 2016 Citalopram 10mg October 2016 cut to 5mg, May 2017 cut to 2.5mg

May 2018 used MDMA triggered setback

June 2018 Citalopram 2.5mg up to 10mg, then back to 5mg

July/ August 2018 7.5mg, then 10mg

June 2019 updosed to 20mg Citalopram

August 2019 cold switch to Venlafaxine 75mg XR

Supplements; 1100mg fish oil daily; also 100mg Magnesium Glycinate. Tried Vagifem 10mcg from mid May 2021 to mid June 2021; caused depression, so stopped.

 

 

 

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  • Moderator Emeritus

Note to me.

Think I need some time away from here.

Seem to be going backwards at moment and feeling worse than before my c/t.

At least then I was getting 2/3 decent days per week.

Last couple of weeks only one.

Some early symptoms have returned.

Can't turn the clock back so need to make some decisions.

Good luck to everyone.

Escitalopram 10mgs from mid 2007 ( can't remember exact date) to 11th Dec 2018

Fentanyl patches ( don't remember dose ) from Nov 2014 to 11 Dec 2018

Quit both cold turkey Dec 2018

Reinstated 3rd March 2019 2.5 mgs.

Updosed  8March to 5mgs and holding

25/11/19 Started taper 4.5mgs and holding

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner

If you are going through Hell, keep going. NCIS series 15, David MaCallum:rolleyes:

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😢😢😢 

Took prozac 40 mg for 20 years.

January 2017 started cutting down prozac by 12.5% a week. End of February 2017 completely off prozac and withdrawals began.

Currently taking Levothyroxine 75 mcg, Magnesium citrate 200mg,Sage leaf 50mg daily

Amlodipine: October 2017 , discontinued 26 Feb 2019; Candesartan:  26 Feb 2019, 4mg.

Discontinued magnesium citrate 200mg Apr 3rd 2019

Reinstated prozac:  14 Jan 2019, 1mg; 26 Jan, 1.5mg; 4 Feb, 2mg; 16 Feb, 2.5mg; 2 Mar, 3mg; 5 Mar, 2.5mg, 23 Mar, 3 mg; 6 Apr, 3.5mg, 14 Apr 4mg, 23 Apr 5mg, 10 Jul 8mg, 1 Dec 20mg, 1 Apr 2020 40mg 

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  • Mentor

hi Sassenach,

 

sorry to hear that. I hope you get an upturn soon.

 

best wishes

 

Rich

 = medication taken now

2007 quetiapine to March 2019 200mg

2019 quetiapine March to present 225mg 

2007 citalopram to present 40mg 
2018 March Abilify 5mg  
2019 Abilify February rapid taper over 3 weeks from 5mg to off

2019 March Clonazepam as required, taken very occasionally, then taken 0.5mg for 2 days 28th and 29th March, now phased out

2019 1st April reinstated Abilify 0.5mg / day 

2018 to 2020 Liquid B12 2g twice daily (diagnosed B12 deficiency) 

2020 July reduced quetiapine to 200mg

2022 October began taper of Abilify
 

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30 minutes ago, Sassenach said:

Note to me.

Think I need some time away from here.

Seem to be going backwards at moment and feeling worse than before my c/t.

At least then I was getting 2/3 decent days per week.

Last couple of weeks only one.

Some early symptoms have returned.

Can't turn the clock back so need to make some decisions.

Good luck to everyone.

 

A bit of a break from online is good, Sassenach. Otherwise it can kind of keep you looking at your symptoms. Have a good break, wishing you some much better days x

January 2008 to April 2015 Citalopram 20mg to 5mg, reducing in 50 per cent leaps. Jumped off at 5mg

March 2016 used MDMA triggered setback

April 2016 Citalopram 10mg October 2016 cut to 5mg, May 2017 cut to 2.5mg

May 2018 used MDMA triggered setback

June 2018 Citalopram 2.5mg up to 10mg, then back to 5mg

July/ August 2018 7.5mg, then 10mg

June 2019 updosed to 20mg Citalopram

August 2019 cold switch to Venlafaxine 75mg XR

Supplements; 1100mg fish oil daily; also 100mg Magnesium Glycinate. Tried Vagifem 10mcg from mid May 2021 to mid June 2021; caused depression, so stopped.

 

 

 

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Dear Sassenach 

 

You are doing the right thing.  You will be very much missed, as I’m sure you know that you have a wonderful presence on here.  There has just been too much to deal with, myself included, and I will be forever grateful for all your kindness and support.  I am deeply deeply sorry if helping me has contributed to how you are currently feeling.  I know your focus needs to be somewhere else entirely. 

 

I know you haven’t wanted to disclose too much about your situation, so it’s not easy to offer advice other than what you have offered to me.  I know you want to be off meds, but maybe an updose is an option? But that’s not my business I know, and I don’t wish to intrude on your decisions. 

 

Please, when you are able, let us know how you are doing.  Will be thinking about you. Sending all my blessings and hopes that you rise up.  I know you will.  Keep healing my friend. Am praying for you. 

 

Bless you so much. Good luck too. 

 

Rachel 

xxxxxxxxxxxxxxxxxxxxx

Pantoprazole 40mg 2016 to 2019 Mirtazapine 15mg May to Aug 2017 (Akathisia)

Seroquel and Abilify July 2017 (caused itching and SI) stopped immediately 

Lorazepam July 2017 to February 2018 (up to 3mg daily) tapered to 1mg by Feb ‘18

Escitalopram 20mg Aug 2017 to 18 April 2019 tapered over 13 months from Feb 2018 

Diazepam crossed over from Lorazepam 1mg to 10mg tapered to 1mg by June ‘18

Updosed back to 2mg bad crash June 2018 . Restarted taper Dec 2018 to present

April 2019 reached 0.15mg Diazepam and was holding. 

CRASH 24 April 2019  Severe suicidal feelings, anxiety, akathisia started suddenly.

Updosed Diazepam immediately to 0.5mg x 2, up again to 1mg x 2 on April 30th

Zopiclone 7.5mg 3rd May for 1 week RI Escitalopram at 2.5mg on 6th May, inc to 5mg 9th May then 10mg by mistake on 21st May, red to 7.5mg 27th May Updosed to 10mg per pysch team 5th July. Lorazepam fully switched to Diazepam 11mg 5th July 

 

 

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  • Moderator Emeritus

Does anyone know if it is ok to take vitamin D during escitalopram withdrawal.

Got really low energy but outside temerature and current dysregulation mean much time outdoors is not an option.

Would appreciate any opinions.

The last month has felt mainly downhill from a promising start.

Reading as much as poss on here to try and get a feel for my situation.

I realise we are all different but do not like the out of control feeling.

Escitalopram 10mgs from mid 2007 ( can't remember exact date) to 11th Dec 2018

Fentanyl patches ( don't remember dose ) from Nov 2014 to 11 Dec 2018

Quit both cold turkey Dec 2018

Reinstated 3rd March 2019 2.5 mgs.

Updosed  8March to 5mgs and holding

25/11/19 Started taper 4.5mgs and holding

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner

If you are going through Hell, keep going. NCIS series 15, David MaCallum:rolleyes:

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Hello Sassenach :)

I'm taking vit D, but realise I'm not taking escitalopram...

 

I was just gonna post month by month progress. I also nosedived the second month after I updosed. 

Yep, the 'unpredictability of mood' feeling is awful...I concur, but you will get longer windows. Funnily enough was just gonna post a month by month 'progress chart.' You'll be able to see how wonky recovery is when I do...

 

Sending good wishes x

January 2008 to April 2015 Citalopram 20mg to 5mg, reducing in 50 per cent leaps. Jumped off at 5mg

March 2016 used MDMA triggered setback

April 2016 Citalopram 10mg October 2016 cut to 5mg, May 2017 cut to 2.5mg

May 2018 used MDMA triggered setback

June 2018 Citalopram 2.5mg up to 10mg, then back to 5mg

July/ August 2018 7.5mg, then 10mg

June 2019 updosed to 20mg Citalopram

August 2019 cold switch to Venlafaxine 75mg XR

Supplements; 1100mg fish oil daily; also 100mg Magnesium Glycinate. Tried Vagifem 10mcg from mid May 2021 to mid June 2021; caused depression, so stopped.

 

 

 

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  • Moderator Emeritus
24 minutes ago, Sassenach said:

Does anyone know if it is ok to take vitamin D during escitalopram withdrawal.

 

I've been tapering Escitalopram and taking D with no problem.  Start at a low dose and work up.

Gridley Introduction

 

Lexapro 20 mg since 2004.  Begin Brassmonkey Slide Taper Jan. 2017.   

End 2017 year 1 of taper at 9.25mg 

End 2018 year 2 of taper at 4.1mg

End 2019 year 3 of taper at 1.0mg  

Oct. 30, 2020  Jump to zero from 0.025mg.  Current dose: 0.000mg

3 year, 10 month taper is 100% complete.

 

Ativan 1 mg to 1.875mg 1986-2020, two CT's and reinstatements

Nov. 2020, 7-week Ativan-Valium crossover to 18.75mg Valium

Feb. 2021, begin 10%/4 week taper of 18.75mg Valium 

End 2021  year 1 of Valium taper at 6mg

End 2022 year 2 of Valium taper at 2.75mg 

End 2023 year 3 of Valium taper at 1mg

Jan. 24, 2024: Hold at 1mg and shift to Imipramine taper.

Taper is 95% complete.

 

Imipramine 75 mg daily since 1986.  Jan.-Sept. 2016 tapered to 14.4mg  

March 22, 2022: Begin 10%/4 week taper

Aug. 5, 2022: hold at 9.5mg and shift to Valium taper

Jan. 24, 2024: Resume Imipramine taper.  Current dose as of April 1: 6.8mg

Taper is 91% complete.  

  

Supplements: multiple, quercetin, omega-3, vitamins C, E and D3, magnesium glycinate, probiotics, zinc, melatonin .3mg, iron, serrapeptase, nattokinase


I am not a medical professional and this is not medical advice but simply information based on my own experience, as well as other members who have survived these drugs.

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  • Moderator Emeritus

Thanks Gridley

Appreciate it.

Tried it 2 days in last week and both were awful.

Suspected it was coincidence but nice to know.

Escitalopram 10mgs from mid 2007 ( can't remember exact date) to 11th Dec 2018

Fentanyl patches ( don't remember dose ) from Nov 2014 to 11 Dec 2018

Quit both cold turkey Dec 2018

Reinstated 3rd March 2019 2.5 mgs.

Updosed  8March to 5mgs and holding

25/11/19 Started taper 4.5mgs and holding

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner

If you are going through Hell, keep going. NCIS series 15, David MaCallum:rolleyes:

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3 minutes ago, Sassenach said:

Thanks Gridley

Appreciate it.

Tried it 2 days in last week and both were awful.

Suspected it was coincidence but nice to know.

Thinking of you Sas and know exactly how you feel. This recovery wd malarkey is so unpredictable as my monthly update states. 

We will get there it’s just very hilly and those curve balls don’t help they just keep coming . 

 

Nov 2018 Pregabalin 2x50 mg a day to help with Paxil WD. Aug 2019 2 x 25mg a day, April 2020 45mg, May 40mg, June 35mg, July 30mg, end July 25mg, Aug 24mg, June 2021 14mg, Jan 2022 14mg (2x7mg a day), Oct 10mg, Nov 5mg, December 25th 2022 0mg 🎈

 

Oct 2004 - Oct 2018 Paxil 20 mg, Nov 15mg, Dec 10mg,  Feb 2019 7.5mg crashed, Feb 8.5mg, Nov 8mg, March 2020 7.2mg, April 6.5mg, May 5.9mg, June 5.4mg, July 4.8mg, Dec 4.5mg, Jan 2021 4mg, Feb 3.6mg, March 3.2mg, April 2.9mg, Aug 2.7mg, Sept 2.4mg, Oct 2.2mg, Nov 2mg, Dec 1.8mg, Feb 2022 1.6mg, March 1.4mg, April 1.2mg, May 1.0mg, June 0.8mg, July 0.6mg, Aug 0.4mg, Sep 0.2mg, October 6th 2022 0mg  🎈

 

December 25th 2022 drug free 

 

these dates are approximate 

 

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  • Moderator Emeritus
10 minutes ago, Sassenach said:

Tried it 2 days in last week and both were awful.

Everybody's different, and we're definitely more sensitive to supplements in WD.  If the feeling awful pattern continues, I'd stop the D.  

Gridley Introduction

 

Lexapro 20 mg since 2004.  Begin Brassmonkey Slide Taper Jan. 2017.   

End 2017 year 1 of taper at 9.25mg 

End 2018 year 2 of taper at 4.1mg

End 2019 year 3 of taper at 1.0mg  

Oct. 30, 2020  Jump to zero from 0.025mg.  Current dose: 0.000mg

3 year, 10 month taper is 100% complete.

 

Ativan 1 mg to 1.875mg 1986-2020, two CT's and reinstatements

Nov. 2020, 7-week Ativan-Valium crossover to 18.75mg Valium

Feb. 2021, begin 10%/4 week taper of 18.75mg Valium 

End 2021  year 1 of Valium taper at 6mg

End 2022 year 2 of Valium taper at 2.75mg 

End 2023 year 3 of Valium taper at 1mg

Jan. 24, 2024: Hold at 1mg and shift to Imipramine taper.

Taper is 95% complete.

 

Imipramine 75 mg daily since 1986.  Jan.-Sept. 2016 tapered to 14.4mg  

March 22, 2022: Begin 10%/4 week taper

Aug. 5, 2022: hold at 9.5mg and shift to Valium taper

Jan. 24, 2024: Resume Imipramine taper.  Current dose as of April 1: 6.8mg

Taper is 91% complete.  

  

Supplements: multiple, quercetin, omega-3, vitamins C, E and D3, magnesium glycinate, probiotics, zinc, melatonin .3mg, iron, serrapeptase, nattokinase


I am not a medical professional and this is not medical advice but simply information based on my own experience, as well as other members who have survived these drugs.

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  • Moderator Emeritus

Thanks LRH.

Hope open day went well.

Will be glad when today is yesterday☺️

Speak tomorrow

Escitalopram 10mgs from mid 2007 ( can't remember exact date) to 11th Dec 2018

Fentanyl patches ( don't remember dose ) from Nov 2014 to 11 Dec 2018

Quit both cold turkey Dec 2018

Reinstated 3rd March 2019 2.5 mgs.

Updosed  8March to 5mgs and holding

25/11/19 Started taper 4.5mgs and holding

This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner

If you are going through Hell, keep going. NCIS series 15, David MaCallum:rolleyes:

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Hi Sassenach, 

 

Nice to hear from you. How are things going with you?  I hope you don’t mind, but I thought I’d put a few suggestions down for you; some you are already probably doing, some you might think ridiculous/expensive or impractical, and some just not for you!  But here goes: 

 

Food

Lots of soup and casseroles and warm meals for your internal heat

Brown rice

Eggs 

Sweet potatoes 

Bananas 

Dark chocolate

Oatmeal

Nuts nuts nuts 

Beets

Leefy green veg

 

Exercise

Electric bike (it’s helping me build up slowly outdoors)

Exercise bike indoors or elliptical machine

Floor mat in the house for stretches and deep breathing

Small trampoline (good for chi moving and circulation)

Vibration plate (circulation)

Hydrotherapy - nice warm pool (if there is anything local near you)

Aqua therapy 

 

House

Make a sun room in your home with a uv sun lamp and comfy chair/lounger

Add in calming sounds or meditation/music/audio books to escape nasty weather

 

Treatments 

Acupuncture (points along your spine for body temperature regulation)

Hot stones massage

Reflexology 

Indian head massage 

Facial massage (too much builds up here and we don’t realise it)

 

I am low on vitamin D, but I’m not taking anything whilst still on the dreaded benzos. 

I trust you’ve had all the usual blood checks at your docs, thyroid, testosterone level etc.  You may well have a bug as well. The awful weather is not helping. I am using my home as best I can as the outdoors. 

 

I’m getting by and seeing how I go. I hope you are ok. Please don’t be offended/insulted by anything I’ve suggested. If I can help with anything please let me know. 

 

Keep healing. Sending you hugs. 

 

R xxxxx

🌞🌞🌞🌞🌞🌞🌞🌞🌞🌞

 

Pantoprazole 40mg 2016 to 2019 Mirtazapine 15mg May to Aug 2017 (Akathisia)

Seroquel and Abilify July 2017 (caused itching and SI) stopped immediately 

Lorazepam July 2017 to February 2018 (up to 3mg daily) tapered to 1mg by Feb ‘18

Escitalopram 20mg Aug 2017 to 18 April 2019 tapered over 13 months from Feb 2018 

Diazepam crossed over from Lorazepam 1mg to 10mg tapered to 1mg by June ‘18

Updosed back to 2mg bad crash June 2018 . Restarted taper Dec 2018 to present

April 2019 reached 0.15mg Diazepam and was holding. 

CRASH 24 April 2019  Severe suicidal feelings, anxiety, akathisia started suddenly.

Updosed Diazepam immediately to 0.5mg x 2, up again to 1mg x 2 on April 30th

Zopiclone 7.5mg 3rd May for 1 week RI Escitalopram at 2.5mg on 6th May, inc to 5mg 9th May then 10mg by mistake on 21st May, red to 7.5mg 27th May Updosed to 10mg per pysch team 5th July. Lorazepam fully switched to Diazepam 11mg 5th July 

 

 

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