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Sassenach

Sassenach: is the updose working?

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Longroadhome
22 hours ago, Sassenach said:

Thanks LRH.

Hope open day went well.

Will be glad when today is yesterday☺️

Speak tomorrow

Sas 

thinking of you how you feeling today ? 

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Sassenach

Thanks LRH

 

Terrible yesterday, better today.

Did you get video?

Good day yesterday?

Got to rush leaky radiator to sort.

Chat tomorrow.

 

Sas

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Longroadhome

Sas don’t want to pester you just letting you know I’m thinking 💭 of you 

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Longroadhome

Got video lovely 😊 he looked really taken with his game 

such gorgeous dogs and their coats are so lovely too 

taking care of yourself I hope 

ive posted pics of  Archie my late GS

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Sassenach

Is it possible to have had Escitalopram poop out years ago and not realised due to general poor health?

It seems impossible, but while trying to create a timeline to discuss with my liver consultant at our next appointment I realised just how long I have been feeling bad despite my liver results improving in the last two years.

A discussion on here also reinforced the thought.

It is a 17 year story so I will just give the important stuff here because if it is impossible I would be wasting everyones time.

Fatigue sometimes chronic has been an overideing factor, have had to sleep every afternoon for many years despite 7 hours every night.

Tired eyes when driving to the point I drive very little now.

Wooly head and thought processes long before cold turkey.

Nausea, sometimes for several days.

Occasionally I would wake up, feel well and pick up a 20kg bag of sand and carry it on my shoulder. I could suddenly do all the things I used to do, felt fit and awake.

These generally only lasted for a couple of days but have continued for up to two weeks on occasions.

At one point several years ago I was prescribed Ritalin which helped temporarily.

I have not got very far with the current stabilisation as windows seem to be getting less frequent after some good earlier ones.

Any info. comments would be gratefully received.

 

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BreathofAir

Dear Sassenach, 

 

Good morning. Hope you slept well.  My sincere apologies, I have only just seen your post because I am so used to you everywhere else but on your own thread! 

 

It is about time we focused on you, but I don’t know whether you will talk to me about things because I don’t think up to now I have given such a good impression of myself in many ways. 

 

But anyway, I would like to help in any way I can and I hope you won’t be stubborn or not trust me to come up with something that might help.  I would need to know what you contracted and what other medication you have been on over the years.  Also, are you on antivirals now? 

 

I will leave it up to you if you want to PM me any information. Again, I do not want to pry - I would genuinely like to help.  I worked in healthcare twenty years amongst know-it-all consultants and sometimes surprised them with out-of-the-box or good old Yorkshire common sense thinking. 

 

Please put me to good use and let me try to help. 

R xxxxx

🐸🕷🐠🐟🐸🕷🐠🐟🐸🕷🐠🐟🐸🕷🐾🐾🐾🐾🐾

 

 

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DeterminedAnna

Hello again Sassy,

 

I'm sorry to hear you've had fewer, less frequent windows. Perhaps we all have a tendency to underestimate how long stabilisation takes. I see you updosed on 8 March, so it's only just shy of four months since then. Have you had any external stressors that could have wobbled your nervous system and prevented further windows? (Sorry, I'm playing catchup on your thread).

 

Something you mentioned in your last post – about having to sleep every afternoon – chimed with me. When I was on a greater dose of Seroxat, I got a powerful urge to sleep about 2pm every day – I go drowsy and fatigued, even if I've had a full night's sleep before.

 

Seroxat is known to be one of the more sedating SSRIs and its peak levels happen about 4-6 hours after taking it (I hope I've got the right understanding here of peak levels). In the past, when I was taking my so-called 'therapeutic' dose of Seroxat, I took it at 8.30am... so perhaps my drowsiness coincided with the peak blood levels. I certainly didn't have this afternoon sleep urge before I took Seroxat, and if anything during my teens and pre-Seroxat early 20s, I was known for being an insomniac.

 

So perhaps, all along, your escitalopram has had a similar effect. It's at least something worth considering. I'm not sure if escitalopram is sedating like Seroxat, but all these drugs have different effects on us in different ways, because we're all so different. Even at the low dose you're taking now, it still has profound effects.

 

Can you recall a time before you took escitalopram and how you were with the afternoon fatigue?

 

Can't say much about your liver issues as you know I'm in a quandary about my own liver. But one thing that's always stood out from EVERYTHING I've read (on this site and elsewhere) is that the liver has a remarkable ability to heal. 

 

That's my two cents! Hope you're getting some sunshine. Your windows WILL return. x

 

 

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Sassenach

Hi Ladies

 

@Longroadhome, @BreathofAir, @DeterminedAnna.

 

LRH and I have in common that we do not like talking about symptoms or the past as it does not help us.

For the record though as I guess I should record it anyway.

I started Escitalopram in 2007, I felt pretty good most off the time. In 2011 I began to suffer with tired eyes while driving which gradually got worse.

During 2015/16 I felt the need to dose after lunch sometimes, this gradually became every day.

So 10 hours in bed a day, good job I have nothing to do🤣.

Thank you for your concern.

 

Sassenach

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Longroadhome
1 hour ago, Sassenach said:

Hi Ladies

 

@Longroadhome, @BreathofAir, @DeterminedAnna.

 

LRH and I have in common that we do not like talking about symptoms or the past as it does not help us.

For the record though as I guess I should record it anyway.

I started Escitalopram in 2007, I felt pretty good most off the time. In 2011 I began to suffer with tired eyes while driving which gradually got worse.

During 2015/16 I felt the need to dose after lunch sometimes, this gradually became every day.

So 10 hours in bed a day, good job I have nothing to do🤣.

Thank you for your concern.

 

Sassenach

Well Sas don’t know what I’m supposed to say to 10 hours kip .. I’m envious 😊!!!!! 

its a good long stretch that’s for sure 

do you actually sleep 💤 for that long or rest or both?

youre right I don’t really like to talk about my symptoms But I read what others put and can identify with it very much . And I appreciate they have logged theirs as it makes me feel better knowing im

Not alone with these bizzare never ending  symptoms. 

Xx

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Sassenach

Hi @Longroadhome

 

What can I say we hunks need our beauty sleep🏋️‍♂️.

Bet you are glad this week is over!

 

Sass

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Longroadhome
3 hours ago, Sassenach said:

Hi @Longroadhome

 

What can I say we hunks need our beauty sleep🏋️‍♂️.

Bet you are glad this week is over!

 

Sass

Hi Sas

I’m so glad this week is over ! But it’s good to be in when im

Not usually as I get to see what’s happening at other times of the day and this week has highlighted a few changes that need to happen . 

How have you been this week ? You seem to have had some good days ? 

Sent you a piccy of Georgies patchwork fur curtesy of the vets !! 

Need to catch up in the garden this weekend lots to do AGAIN. 

Paul has had his appointment through for his results I’m going with him. 

What you up to this weekend Sas ?

 

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Dejavu

Hey @Sassenach! Congrats on becoming a mod. You'll be as awesome as ever. 

 

Hope you're doing well. Sending a big ole' Texas hug your way!!

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BreathofAir

Good morning Sassenach, 

 

Sending congratulations and best wishes for you on becoming a moderator.  That’s very big-hearted of you. You will do a really wonderful job. 

 

Bless you and hope you have a great day.  Sending hugs. 

R xxxxxxx 

 

🐸🐸🐸🐸🐸🐸🐸🐸🐸🐸🐸🐸🐸🐸🐸🐸

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RichT

Congratulations on being made a moderator Sassenach! You’ll do a great job. 

 

Rich

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Sassenach

Thanks Rich

 

Congrats on becoming Mentor.

 

Would like to chat with you sometime about how the mentoring works and what you cover if we can get the time.

 

Sassenach

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FarmGirlWorks

Congrats on being a moderator: that is a big load and it is appreciated that you're doing it.

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Carmie

Welcome to the mod squad Sass💚

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Sassenach

Thanks to all of you.

I will do my best.

Anyone know where the exit is?😟😟😕😕

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Sassenach

Last Saturday 29/6 made a fundamental error and took a double dose of Escitalopram.

It was the dog's fault:rolleyes: laid in the room yipping to go out.

I told him he would have to wait, who am I kidding it was my fault.

Sunday. Not great.

Monday, lovely window.

Tuesday, same.

Wednesday, same.

Today got up, same but downhill.

Like waiting for a bomb to go off!!!!!!!!!!!!

6am tomorrow could be interesting.

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Gridley
33 minutes ago, Sassenach said:

double dose of Escitalopram.

 

These kinds of things (double dose, missed dose) generally resolve reasonably quickly without long-term repercussions.

 

 

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Dejavu

No, I shant allow it! You will rally. Sending you the good mojo!!

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Sassenach

Thanks

Hope it is sunny in your thin air, b****y freezing, in july.

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Sassenach

Thanks DJV.

 

Gridley says I won't die (not yet anyway ) so you will have to put up with me a bit longer.

I am not religious but will say a prayer in hope for Rachel tonight.

Take care

 

Sassenach

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Longroadhome
33 minutes ago, Sassenach said:

Thanks DJV.

 

Gridley says I won't die (not yet anyway ) so you will have to put up with me a bit longer.

I am not religious but will say a prayer in hope for Rachel tonight.

Take care

 

Sassenach

Me too

and hope to hear something positive from her later .

Just now, Longroadhome said:

Me too

and hope to hear something positive from her later .

Ps. that means we have to put up with you a tad longer then ..

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Sassenach

A tad, you wish.😈

 

🤗😇🤗

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Longroadhome

Good morning Sas.

a thought ..

”today we are one day nearer recovery” 

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Sassenach

Good morning you good timing and a great idea for the day ahead have a good day I don't suppose I'll speak to you today after the weekend as you're always such a busy lady

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Longroadhome
14 minutes ago, Sassenach said:

Good morning you good timing and a great idea for the day ahead have a good day I don't suppose I'll speak to you today after the weekend as you're always such a busy lady

I’ll make it my business to!

have you heard anything from Rachel ? 

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Sassenach

No not yet.

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RichT
2 hours ago, Sassenach said:

No not yet.

 

Hi Sass,

 

I feel sad about Rachel. All the stress at home and her illness have piled up on top of her WD symptoms. Now she's in hospital they will probably adjust her medication which may or may not work for her. Let's hope it does!

 

Rich

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Longroadhome
2 hours ago, RichT said:

 

Hi Sass,

 

I feel sad about Rachel. All the stress at home and her illness have piled up on top of her WD symptoms. Now she's in hospital they will probably adjust her medication which may or may not work for her. Let's hope it does!

 

Rich

Trouble is Rich when hospital meddle with yr medication they’re mainly interested in getting a reduction in symptoms and this may mean an increase in one of her medicines that could compound the problem. 

 

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Sassenach

@Altostrata @Longroadhome @RichT @Dejavu @Mewr

As I am sure you all know by now BreathofAir or Rachel to most of us is back in the care of the Crisis Team.

There were times when she seemed to be winning but it seems ultimately that the family dynamic proved too much for her.

It is easy to be critical but ultimately none of us really know what happens in other people's relationships, and so it should be.

What I do know is she needed support and you gave it to her.

We can only hope that those in charge of her care will see the reality, whatever that is, and help her accordingly.

Unfortunately  at least for the present she does not have the stable platform needed to safely withdraw.

I am not posting this as a mod but as someone who feels privileged to know her.

May her god leep her safe.

This is my personal view.

 

Sassenach

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Mewr

As a person who has been communicating with Rachel and is dealing with lots of the same issues, I understand her need for the crisis team.  Anxiety really sets off symptoms and being ill on top of it has to exacerbate the situation.  Wishing her peaceful calmness.  Please know that all who support her give me strength, too.  Thank you. Maria

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Longroadhome
42 minutes ago, Sassenach said:

@Altostrata @Longroadhome @RichT @Dejavu @Mewr

As I am sure you all know by now BreathofAir or Rachel to most of us is back in the care of the Crisis Team.

There were times when she seemed to be winning but it seems ultimately that the family dynamic proved too much for her.

It is easy to be critical but ultimately none of us really know what happens in other people's relationships, and so it should be.

What I do know is she needed support and you gave it to her.

We can only hope that those in charge of her care will see the reality, whatever that is, and help her accordingly.

Unfortunately  at least for the present she does not have the stable platform needed to safely withdraw.

I am not posting this as a mod but as someone who feels privileged to know her.

May her god leep her safe.

This is my personal view.

 

Sassenach

Thank you for your post Sas. 

I was really hoping we would hear something today but it seems that’s not to be . 

I’ve  been thinking about her all day. 

I wonder if she’s in hospital ? 

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Altostrata

Thank you, Sassenach, and everyone who is helping Rachel.

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Frogie

I just wanted to say congratulations 🎊🎈 

 

You are going to make a wonderful moderator.

 

 I miss you stopping by my thread.

 

Take care,

 Frogie xx

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