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Shanti

Tremors, shaking, body vibration, internal trembling

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btdt

Make copies of all your posts here so you have it as a reference later when you may need it to see how you health has progressed as I wish I had done that way back at another site as I am sure there are particulars that would help me and my doctors today.  

You may not feel you have the energy to do it but trust me copy and paste into a file could save you a lot of stress later if you have further issues.

Imagine if all you ever wrote here was deleted and you needed the information due to memory issues ... you would have dates and specific issues you posted here that information could be invaluable to the future you and your future doctors. 

 

Tremor I had before quitting Effexor and a dragging right foot ..my foot had changed and I could no longer put a boot on that foot in the winter living in Canada wearing clogs all winter is a bad idea yet I had no choice I could not bend the right foot enough to get a boot on. 

These are some of the reasons I went off Effexor I was way to scared to think of this on  my own it was a neurologist who came up with the idea... 

 

After what I had experienced after taking Prozac - for pain and not knowing it was a psych drug as I was never told it was a psych drug... I thought the resulting sever adverse reaction was all my own crazy brain... I took treatment after that to keep those reactions from returning I had not clue they were all drug induced ... my fear of having those experiences again kept me drugged 18 years so you know I was not stopping Effexor without a fight but it seems I had hit a wall and my body was revolting.  While waiting on test for MS ect to come back off E I went and tried a few other drug concoctions but they were of no value to me for the tremor or the foot drag or any of the other things... I know there were more but can't recall them now. 

 

Tremor and the foot improved gradually very gradually over the last several years I did however break that foot twice in the last six years and it hurts but I can't say now if it hurts any worse than it did before I broke it or not??? up for debate I can't remember well enough ... at this point it seems it has hurt for ten years at least. Why I don't really know various reasons and for the ladies out there it sucks to never wear a nice pair of shoes again side note. 

 

Seems all I had to do was get off the drugs and go thru hell to get my body to ease back to something I could almost be comfortable in there are many other things but laying contorted in my bed in pain is over... just some lingering things and pain of course pain has been a huge part of this for me .. body pain headaches.

 

I had a car accident in Dec 2012 sound a  long time ago but really it was only 15 months ago short if you consider how long withdrawal is... after that accident I had a tremor in my right leg and arm .. it came together at the same time to the same rhythm

I talked to my doc about it and we both thought some nerve had been irritated and it would settle in time... it did gradually noting heals quickly for me everything is gradual... the arm stopped shaking in unison with the leg but the leg continued  tho it gradually had a tremor less and less. 

 

When I learned years ago that these drugs can cause parkinsonism I figured that was what I had some form of it and having parkinsonism will leave you more vulnerable to Parkinsons disease in the future I was sure I would not be one of those people as I am adamant about drug control in my own body and have turned down a drug store full of pills in the past 6 years... 

 

If it was drugs that cause it I was going to lessen my chance and heal. 

 

This morning I was shaking not just my arm and leg but my head my arm my torso ...shaking all thru my spine. It lasted maybe a minute not that long but long enough to draw my attention that this is something new.  

 

I looked up tremor of course the varying types and causes. 

http://www.medicinenet.com/tremor/page3.htm#what_are_the_different_categories_of_tremor

 

Read a suggestion of putting a paper on the outstretched hand to see if there was a tremor... there was in both hands. 

I read all the causes and since my sister just passed it could be a emotional issue.. I sure hope it is...I use to hate the idea that things were all in my head but today I hope it is.   Stress of course can make anything worse... could be that too. Being in my head means I will eventually get past it when grief lessens.  

 

There are a few things I have been taking tho I tend to react badly to drugs I am taking and penicillin and two puffers for my lungs I had an infection almost done the antibiotics that I have never reacted too before... the puffers I don't like and in early withdrawal could not tolerate them one I think has a steroid and maybe it is the drug in the puffers that is causing this... I was jumping out of my skin anxious last night and took have a 500mg of taurine... that is it for my drugs... 

 

salvent and fluticasone are the puffers amoxicillian is the drug... 

 

it has been months since I was on an antibiotic this one can work sometimes 

 

I guess I could look up the puffers but this go around I really feel I need them or I would not be taking them... 

 

Drug induce tremor response could be due to the puffers if you have a leaning towards them I guess... I am not sure. 

 

This is my morning so far. A bit scary and I hope not a taste of what is ahead of me. 


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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btdt

Had to look up the puffers they both cause anxiety... 

and tremor... here we go again everything that has a nervous system side effect I seem to get... crap... I feel I need it but I need other things too... will have to choose I guess.


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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LoveandLight

Three times since big drop in dose in October, I had violent shaking happen all over, teeth chattering, everything shaking. It happens for about a few minutes I think. No pain or discomfort. I do get a cold flash just before it. I did a google search and I came up with myoclonic epilepsy. Obviously, this is worrying and I wonder if other people have had this, have they just ignored it or brought it to docs attention. Thank you very much!


2000 - sertraline for job anxiety low confidence (17 years old) ..which turned the next 16 years into nightmare!

 

On/off sertraline severe withdrawals every time. 2014 - felt better as reduced dose of sertraline no more inner restlessness. Doctor rushed off again. Hit severe withdrawal. Lost the little I had in life. Couldn't get stable again on 12.5mg. Was switched to prozac. Had severe reaction to prozac..came off in November 2015 at 6mg as felt more confused and damaged on it..Even more withdrawal ..rage, depression, dyphoria, near constant suicidal ideation, self harm impulses, doom, concrete block in head, unable to do much of anything with this feeling in head..went back on 6mg of sertraline to see if would alleviate anything. It didn't..reduced from December to June 2016 came off at 2.5mg sertraline as was hospitalised for the severe rage, suicidal impulses, and put on 50mg lofepramine which in 2nd week reduced all symptoms but gave insomnia which still have..psych stopped lofepramine cold turkey..no increased withdrawal symptoms new symptoms from lofepramine except persistant insomnia which has as side effect.

 

Taking Ativan for 8 months for the severe rage self harm impulses 1-3 times a week (mostly 2 times a week) at .5mg. Two months (I'm unsure exactly when the interdose started to happen) ago interdose withdrawal seemed to happen..2 days I think after the Ativan.

 

 

Nightmare that could have been avoided!

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Ever

Last time I jumped off from 3mg, I began sweating at night.  Waking up covered in sweat.   Then I would spend hours shaking and freezing in bed.  Weird sort of freezing.   I haven't had those symptoms since the first day I re-instated at 2.3mg.   Don't know whether it helps....


Put on Prothiaden for severe depression in 1989.  Recovered.   Prescribed Paxil for another bout of depression around 2000.   Have been trying to taper ever since but always crash about 2 months after getting to zero.   Because of the crashes, for years I thought that there was something wrong with me.   Then found that the crashes were simply withdrawal.   Now following a maximum of a 10% reduction every month or so and ready to slow down any time I feel any symptoms whatsoever.  Feeling good:).

7th Jan 15 - 3.6mg

28th Jan 15 - 3.2mg

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Wildflower0214

I've had it.

I think it's just another part of CNS out of whack.


2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor.....

5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses.

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luv2knit

I agree with JDM. I actually get this fairly frequently. Sometimes it is accompanied by chills, and my body temp. is low as well. Other times, I just get the shaking.


Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day).

Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired)

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moodyblues78

My left hand was useless for a long time early on in my taper. It just shook and I had not much control over it. It got better in 2 months or so.

 

I got those whole body shakes too but they came and went away. The hand thing was much more annoying.


08 Cipralex 10mg for about 6 months. 11-12 Cipralex 20mg. Unsuccesful WD. 12-13 Zoloft 100mg with Diazepam 10-20mg as needed for anxiety.
Fall 13 Tapering Zoloft 100->50->25->12,5->0 in 2,5 months and CT Diazepam. 12/24/13 RI Zoloft 12,5mg
.

1/21/14 11mg

3/18/14 9,9mg

2/18/14 8mg

4/22/14 7,6mg

5/5/14 7,2mg

5/12/14 -> cutting 0,5mg per week, holding when necessary.

8/18/14 -> cutting 0,25mg per week holding when necessary.

10/20/2014 -> cutting 0,1mg per week, holding when necessary.
12/28/2014 Jump!

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Obstacle1

I've had a similar experience with my legs shaking uncontrollably for around 30 minutes - both times I woke up around 5 am and it suddenly started happening. It was terrifying the first time as I didn't know what the hell was going on but I think a little better second time round since I realised it would pass in a little time.


Began paxil/seroxat 20mg in 2001 for social anxiety, age 14

Switched to liquid and at some point tapered down to around 7ml(14mg)

2007 tapered too rapidly down to 4ml had severe depression and anxiety for a year, stabilised at 6.6ml(13.2mg), same dose ever since

Have had 2 negative reactions then, one in 2010 and one in 2014. Currently recovering from this latest one, whole array of symptoms that come and go

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Petunia

similar topics merged

 

*note

When you have a question or comment about a specific symptom, please search to see if we already have a related topic, we usually do.  Then you can benefit from previously collected information and add to the discussion.  This keeps the site organized with all available knowledge in one thread, easily accessible through searches.

 

The search function on this site doesn't work very well.   The best way to search this site for specific information  is to use Google.  Type in survivingantidepressants.org then the symptom or information you wish to search for.

 

If after searching, you can't find what you're looking for, please start a new topic.


I'm not a doctor.  My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal...if you are lucky enough to find one.

My Introduction Thread

Full Drug and Withdrawal History

Brief Summary

Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety) Xanax PRN ~ Various other drugs over the years for side effects

2 month 'taper' off Lexapro 2010

Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal

DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms

Failed reinstatement of Lexapro and trial of Prozac (became suicidal)

May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins.

Protracted withdrawal, with a very sensitized nervous system, slowly recovering as time passes

Supplements which have helped: Vitamin C, Magnesium, Taurine

Bad reactions: Many supplements but mostly fish oil and Vitamin D

June 2016 - Started daily juicing, mostly vegetables and lots of greens.

Aug 2016 - Oct 2016 Best window ever, felt almost completely recovered

Oct 2016 -Symptoms returned - bad days and less bad days.

April 2018 - No windows, but significant improvement, it feels like permanent full recovery is close.

VIDEO: Where did the chemical imbalance theory come from?



VIDEO: How are psychiatric diagnoses made?



VIDEO: Why do psychiatric drugs have withdrawal syndromes?



VIDEO: Can psychiatric drugs cause long-lasting negative effects?

VIDEO: Dr. Claire Weekes

 

 

 

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WiggleIt

I went about three weeks without having an episode that I refer to as "Big Wiggle."  Yesterday and today I had Big Wiggle episodes, which are always accompanied by severe speech impediment.

 

Big Wiggle is when my whole body flops uncontrollably.  Arms, legs everywhere.  Sometimes I lay on the ground flopping like fish out of water, and sometimes it happens when I try to walk, so my parents must hold me so that I do not fall.  I am conscious, though, and an EEG of my brain did not detect any seizure activity.  But it does LOOK like I am having a seizure.

 

Anyway, I had many Big Wiggles during the first month off meds.  Then they settled down a bit for about two or three weeks.  Yesterday and today I had bad Big Wiggle episodes and the myoclonic jerks of my arms and legs are terrible, and when I talk out loud it is choppy with very simple words.

 

I am scared.  I had improved a little bit so that I was able to walk five laps in my hallway.  Now, I cannot walk five feet without my whole body twisting and writhing.

 

I haven't read of any cases as severe as mine on those whole site, nor anybody who has suffered from c/t or rapid taper of TCAs.

 

Certainly not reading any recovery stories of people manifesting as severely as me.  Sure, there's some people recovering from less severe-sounding TD and less-severe sounding MS-like symptoms, but I haven't read anything anywhere else about anybody flailing uncontrollably on the ground.  It is terrifying and I am sure I am going to die, or be stuck like this forever.  As long as my Mom and Dad are alive to take care of me, I know I can be brave.  But I am an only child, with no spouse or children.

 

If I am stuck with a whole body movement disorder and cognitive impairment, I'm ******.  There is no hospice that will be as kind or gentle with me as my parents are.

 

Today, I have not even been able to feed myself because my arms are jerking too much.  My parents have been feeding me with straws and spooning soft foods up to my mouth.  I am able to the this because it does not mater if my hands jerk while they hover above the keyboard, but if they jerk while i try to feed myself, then obviously food goes everywhere.

 

Seriously, though, NOBODY on this site seems as bad as I am and NOBODY on this site seems to have any experience with my class of meds.  There are so many sweet people here who are so encouraging, and I was encouraged for a few days, too, but now I am just as bad as I was at the VERY beginning, when we were calling 911 all the time because I was flopping on the floor.  The only difference now is that I know 911 is a waste of time.

 

So I just lay on the floor, flop, and whimper, "Please, please," over and over again.

 

And that's my life.


**I'm not a doctor and don't give medical advice, merely personal experience
***Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not
-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014

-All meds were Rxed off-label for an autoimmune illness.  It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage.  All med tapers/cold turkeys directed by doctors 

-Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine

-Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey)

-Lorazepam 1 mg per night during 2011
-Lorazepam 1 mg per month in 2012 (or less)

-Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week

-Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs 

-First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened

-Two weeks after I got off all meds, I developed full-blown TD.  Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.

-Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned
-Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat
-Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged
-4 years off: Huge improvements, incl. improved dystonia

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Skylarblue75

Hand tremors started for me back in November of 2012, they would subside when I took my benzo, and of course I was on a ton of other meds to, the psych dr just enjoyed the poly drugging.now since January of 2013 since I was rapid detoxed off benzos the internal shaking, tremors body shaking/tremors are non stop. I can't stand it, even my eyes vibrate at times, I mean when I sit still you can see the shaking it's like I'm plugged into a wall outlet, it's like a buzzing shaking. Ugh I hope that makes sense. It sometimes gets so bad at night I can't sleep. It also increases with stress and of course in the early am with the cortisol spikes. Ok I'm done


Spring of 1998 place on birth control pills for irregular bleeding, high testosterone and one ovarian cyst, stayed on until April 2004, told to take hormone holiday, conceived first son 4 months later-VERY BIG SUPRISE, was told wouldn't be able to have childern or would need reproductive doctor to help. Got pregnant again 2006 with second son easily, then was on/off birthcontrol again until October 2011, concieved 3rd son in October 2011(tried many times to get pregant again when 2nd child was close to 2yrs, hormone problems started again after 2nd child, along with thyroid enlargement.

 

Spring of 2001 celexa 10 mgs-rx'd by pcp for complaints of chronic fatigue, irritability and weight gain, stayed on until June 2005, switched to Lexapro 20mgs for PPD, stayed on Lexapro 6-7 months, couldn't afford to see psyh dr. and Lexapro, saw PCP switched back to 20mgs celexa in 2007, remained on until November 2011, was c/t off due to 3rd pregnancy, baby had umbilical cord defect, seemed ok during pregnancy, except for crying jags here and there. Our miracle baby was born July 20th 2012, healthy except with reflux. One month later the anxiety,restlessness,horrible crying, insomnia and the deepest depression ever. That started the psyh drug nightmare-benzo's,antidepressants, sleeping pills, mood stablizers. Nothing help made me worse, doctors just kept changing the meds frequently. 4 mental health hospitalizations, rapid detox off benzos Jan 2013, horrible withdrawal and still suffering withdrawal symptoms NO ONE BELIEVES ME, I feel like ive been on one consistant drug withdrawal for the past 2 years

January 2014 slow titrate up of lexapro to 20 mgs-horrible side effects!!, was just rapidly taper by current pysh off to pursade me to try an MAOI-no way!!! Was told should consider ECT

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Skylarblue75

So sorry widget, I do get the jerks too but not as bad as your suffering. This is horrible


Spring of 1998 place on birth control pills for irregular bleeding, high testosterone and one ovarian cyst, stayed on until April 2004, told to take hormone holiday, conceived first son 4 months later-VERY BIG SUPRISE, was told wouldn't be able to have childern or would need reproductive doctor to help. Got pregnant again 2006 with second son easily, then was on/off birthcontrol again until October 2011, concieved 3rd son in October 2011(tried many times to get pregant again when 2nd child was close to 2yrs, hormone problems started again after 2nd child, along with thyroid enlargement.

 

Spring of 2001 celexa 10 mgs-rx'd by pcp for complaints of chronic fatigue, irritability and weight gain, stayed on until June 2005, switched to Lexapro 20mgs for PPD, stayed on Lexapro 6-7 months, couldn't afford to see psyh dr. and Lexapro, saw PCP switched back to 20mgs celexa in 2007, remained on until November 2011, was c/t off due to 3rd pregnancy, baby had umbilical cord defect, seemed ok during pregnancy, except for crying jags here and there. Our miracle baby was born July 20th 2012, healthy except with reflux. One month later the anxiety,restlessness,horrible crying, insomnia and the deepest depression ever. That started the psyh drug nightmare-benzo's,antidepressants, sleeping pills, mood stablizers. Nothing help made me worse, doctors just kept changing the meds frequently. 4 mental health hospitalizations, rapid detox off benzos Jan 2013, horrible withdrawal and still suffering withdrawal symptoms NO ONE BELIEVES ME, I feel like ive been on one consistant drug withdrawal for the past 2 years

January 2014 slow titrate up of lexapro to 20 mgs-horrible side effects!!, was just rapidly taper by current pysh off to pursade me to try an MAOI-no way!!! Was told should consider ECT

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WiggleIt

Skylar, I am sorry this is happening to you, too. May peace and relief and mercy be granted to us so that we can live out the rest of our lives in health and joy.


**I'm not a doctor and don't give medical advice, merely personal experience
***Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not
-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014

-All meds were Rxed off-label for an autoimmune illness.  It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage.  All med tapers/cold turkeys directed by doctors 

-Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine

-Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey)

-Lorazepam 1 mg per night during 2011
-Lorazepam 1 mg per month in 2012 (or less)

-Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week

-Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs 

-First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened

-Two weeks after I got off all meds, I developed full-blown TD.  Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.

-Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned
-Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat
-Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged
-4 years off: Huge improvements, incl. improved dystonia

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WiggleIt

Buzzing shaking is a good way to describe it.


**I'm not a doctor and don't give medical advice, merely personal experience
***Off all meds since Nov. 2014. Mentally & emotionally recovered; physically not
-Dual cold turkeys off TCA & Ativan in Oct 2014. Prescribed from 2011-2014

-All meds were Rxed off-label for an autoimmune illness.  It was a MISDIAGNOSIS, but I did not find out until AFTER meds caused damage.  All med tapers/cold turkeys directed by doctors 

-Nortriptyline May 2012 - Dec 2013. Cold turkey off nortrip & cold switched to desipramine

-Desipramine Jan 2014 - Oct. 29, 2014 (rapid taper/cold turkey)

-Lorazepam 1 mg per night during 2011
-Lorazepam 1 mg per month in 2012 (or less)

-Lorazepam on & off, Dec 2013 through Aug 2014. Didn't exceed 3x a week

-Lorazepam again in Oct. 2014 to help get off of desipramine. Last dose lzpam was 1 mg, Nov. 2, 2014. Immediate paradoxical reactions to benzos after stopping TCAs 

-First muscle/dystonia side effects started on nortriptyline, but docs too stupid to figure it out. On desipramine, muscle tremors & rigidity worsened

-Two weeks after I got off all meds, I developed full-blown TD.  Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.

-Month 7: hair falling out; no vision improvement; still tardive dystonia; facial & tongue tics returned
-Month 8: back to acute, incl. Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9: tardive dystonia worse, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat
-Month 13: Back to acute, brain zaps back, developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs now damaged
-4 years off: Huge improvements, incl. improved dystonia

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btdt

I have had jerks and shaking both.  

In the past two years vibrating in one leg and arm on the same said at the same time.  No cause has been sought hence none found I had a neurologist apt to figure it out but when I got there I could not remember why I went and apparently my family doc who referred me could not or would not write arm and leg shaking on the referral.  The last apt was last Aug... it has taken 7 months to get an apt to ask the same question....oddly enough after two years of this it has changed and is just the leg that shakes most of the time. 

 

I have this idea that my doctor no longer believes what I say here we go again... as I have had this before all based around symptoms from these drugs... it gets very old. 


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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Bellisimo

I havent been on here for a while because I feel much better but still I come back and read sometimes.

One of my major problems during these 21months free have been tremor, I have been shaking alot.. and my questions is, have anyone experience this increased of tremor if youi get excited about something?

 

Example, I can be calm and shakings is ok.. Then I start to get excited about something and suddenly I shake alot and need to calm down to not get more shaky... :/ I seem to be so sensitive to being too overwelmed and too sad bc then I just start to shake like crazy.


2007 - 2013: was on citalopram (tried to quit a few times, never worked, always went back on. max dose 40mg)

2012-2013: was tapering my citalopram all down to 2,5 mg then quit.
2013/aug: Took  my last pill 

W/D hit me bad after a few weeks off my medicine.

2014/August: 12 months off (much improved)

2015/April: 20months off. ( much improved, still some symtoms comes in waves, but not so intense.)

2015/june: 22months off. FELT different than before, all shakings suddenly stopped, feel much better. a fantastic feeling!

2016/Feb : 2 years and 6 months off, END of my suffering. I feel perfectly fine and back to normal. 
2018/Oct: Iam still feeling great. It is hard to believe my own story when I read back, what I went through!

 

 

 

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Mikey1975

Do many of you experience internal vibrations in your body like palpitations all over

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Mikey1975

Have you got an advice on how to calm these vibrations they are worse than ever feels like my body is jumping around inside 24 7

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katieb

I get this .It's a new sympton for me .Very odd feeling.I used to get it just in my head but recently it's been all over my body.I just have to wait until it passes.


Been taking paroxatine for approx 15 years.Tried a few times yo stop but failed. Am currently on 3.5mg liquid

Jan 2016 been slow tapering paroxatine and i am currently at 2.9 mg and last drop was 5 weeks ago.

Started to feel awful about 3 weeks ago with brain ???? , shakes, blurred vision and dizzyness. ..

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btdt

I have had jerks and shaking both.  

In the past two years vibrating in one leg and arm on the same said at the same time.  No cause has been sought hence none found I had a neurologist apt to figure it out but when I got there I could not remember why I went and apparently my family doc who referred me could not or would not write arm and leg shaking on the referral.  The last apt was last Aug... it has taken 7 months to get an apt to ask the same question....oddly enough after two years of this it has changed and is just the leg that shakes most of the time. 

 

I have this idea that my doctor no longer believes what I say here we go again... as I have had this before all based around symptoms from these drugs... it gets very old. 

No word on the shaking yet but a neurologist said I had a psychogenic movement or reaction in my leg don't recall what word he used.. He wrote it down for me the neuro surgeon said it was nothing when I showed him the paper.. so I guess it is nothing. Or one more thing that is all in my head.  I am use to it me the big google person I have not even looked it up.  I don't know it this has anything to do with shaking or not seems to me part of the movement was a shake. 


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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Mikey1975

Mine are internal tremors / vibrations that feels like my body is jumping it started in the chest and now on different parts

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Rosy

Do I understand it wrong, or can it be the Omega 3 supplements that might causes one's body to tremble / shiver?   I'm off Cymgen now for 2 weeks after tapering it down over 2 months and was placed on Trazedone (50mg) and now suddenly I experience this trembling / shivering feelings during the night. 

I tried (as per advice from the psychiatrist) to increase the Trazedone dosage to 100mg, but I could not as it felt like my head was cutting in half (sharp pain) and then the trembling the whole night through.  Then I decided I'm back on the 50mg as the side-effects was not nice and since then the trembling continues every night.  What might this be?? Should I stop using Omega 3?  Might it be the withdrawal symptoms of the Cymgen?


On Cymgen since 2011.

Menopausal since 2014 - on several HRT (do still have ovaries and womb in tact) - Anqelique for 3 months; then Livifem (6 months); then Femoston Conti (1mg) for 5 months; then Novofem (1 month);  now clean for 1 month.  Since Jan 2015 I'm on Remeron (7,5mg).

Severe anxiety experienced after a while on each HRT - doctors realized then it was actually my Blood pressure that was sky high. 

Now on Cozaar (25mg) as well.  Psychiatrist felt that I have to wean off Cymgen (30mg) as it might causes anxiety after my GP increased the dosage to 60mg and I felt terrible on it. Then psychiatrist also prescribed Trazodone (50mg) and Purblocka (10mg x 3/d) for anxiety.

 

I'm started to wean off since beginning June 2015 - breaking capsules in half and drink half a capsule every day, but became very sick after 2 weeks.  Then GP suggested I drank it full dosage again for 4 days and then wean it off drinking full dosage (30mg) every 2 days for 2 weeks, and then one pill every 3rd day for 2 weeks, which I did. I'm off the Cymgen now for 2 weeks, but get severe back pains, dizziness, anxiety etc.

 

So I'm only drinking now:

Remeron 7,5mg

Trazedone (50mg)

Cozaar (25mg)

Purblocka (10mg x 3/d)

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Cookson

I don't tremble much now, although not sure if others can relate but when I go to bed I can feel the back of my neck/head shaking?


2013-July 1st Citalopram 20mg ()

2013-August 19th ended Citalopram cold turkey

med free.  (Took them for 7 weeks)

 

When I was a child, I spoke as a child,

I understood as a child, I thought as a child;

But when I became a man,

I put my childish things away.

 

- 1 Corinthians 13:11

 

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Gitana

I had internal tremors when I tapered off my antidepressants.  A constant buzz.  They started within days to a week or so after beginning to taper off of Lamotrigine, Sertraline, Gabepentin, and Trazadone.   I also had some hand tremors, and when upset, my head would shake.  This went on for months.  My Aunt has essential tremors, as did her Mom.  My psychiatrist said that I also had them, when I asked whether the WD could cause the tremors.  He had me go to the Mayo to see my Aunt's neurologist and after quite a battery of tests, they determined that the tremors "were caused by anxiety."  I asked him whether WD from the AD could cause it and he said no.  I saw the head Psychiatrist at the Mayo, and he said anxiety was the cause, that they were absolutely not caused by WD.  I know what anxiety feels like, and these tremors were not anxiety.  NO WAY.  The tremors were no more or less active when I was stressed.  A constant.

 

Anyhow, after several months of being off of most of the AD (you see, I was on 4 different meds) they went away.  

 

Now I am tapering from Klonopin.  I now have tics, not the same thing.  I can control them to some degree, but my body wants to move, and it is too much work to fight them.  They bother me mostly only when I try to relax.  It's like if my brain is busy moving my body intentionally, it doesn't need to fire the tics.  If I try to relax, my brain doesn't want to, and I start having tics in my neck and head.  They are much worse when I am anxious, and when I'm really upset, they are so strong that they hurt and cause cramping.

 

It never ceases to amaze me how even the doctors at the Mayo Clinic refuse to recognize these WD symptoms.  Why?

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downtongirl

Would love to know how long this lasted for you if you suffered with it


1995 - 2015 antidepressants and antianxiety medicine
Multiple failed attempts to quit/taper anti d/anti anxiety meds since 2008

June 17, 2016 began prozac bridge to get off of effexor xr, stopped effexor xr on June 24, 2016, could not tolerate prozac due to severe side effects so I had to stop it  Currently...300 mg ER of lithium, 1 mg of estradiol, 60 mg propranolol ER, Fish oil 2 x a day, Magnesium Glycinate,  zinc, vitamin c, vitamin d, NAC

 

 

 

 

 

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manymoretodays

I am suffering with that lately.  I believe I have had it in the past too.  It should remit after a couple of months I hope.  Mine feels related to my body temperature.  The outward shakes.  Like shivering but not quite the same.

 

The inward shakes are weird.  Good description.  And timely, as I do know exactly what you mean.

 

Trembling I mean.


Started with psycho meds circa 1988 I think 27 or 28 total.

AD's, antpsychotics, antiseizure mood stabilizers. Lithium, lamictal ,benzos, and stimulants. Some med. for narcolepsy once(Provigil,) Gabapentin........probably more.  Ask me?......I probably was on it.  Haphazard W/D's by Dr. recommend or uneducated self.

10/2014- off Lexapro--had been on highest dose 10 mg. then 5 mg. for a couple of years, went from 5 mg. to 3 mg. liquid and then CT in hospital(voluntary).  I got out of the hospital on a combination of low dose adderal salts x1/day and trileptal 150mg. x2/day.

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!

 

3/21/2016---I did some unwise updosing of trileptal/oxcarbazepine with some stressful stuff......doubled the above dose x2 during this last wave but began liquifying again and on approximately 68mg. starting today.  11/12//2016 24 mg. oxcarbazepine  12/9/2016 off oxcarbazepine/trileptal!!!! :) optimistic  2016 December 9- completely off all medications!!!!!

Omega3's,EPA +DHA= 1800 mg/day. Magnesium complex, orally, diluted in a liter of H2O(that I can shake up.....it usually dissolves more completely as the water gets down to room temperature) and/or Epsom salt baths prn.   Vit. C, D3, and E.  B12, melatonin tapered to 1mg., and bioidentical hormones sublingually.  Trace mineral drops.  L-lysine.  L-methylfolate=400 mcg plus daily spinach. Totally ready for a good long window to hit soon and getting better strings of full days and partial days along the way.  Definite improvement overall since I first arrived on the SA survivor ship.  Herb and alcohol free since 5/15/2016.  None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider. manymoretodays

 

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downtongirl

Thank you for your reply...how long did your trembling last?


1995 - 2015 antidepressants and antianxiety medicine
Multiple failed attempts to quit/taper anti d/anti anxiety meds since 2008

June 17, 2016 began prozac bridge to get off of effexor xr, stopped effexor xr on June 24, 2016, could not tolerate prozac due to severe side effects so I had to stop it  Currently...300 mg ER of lithium, 1 mg of estradiol, 60 mg propranolol ER, Fish oil 2 x a day, Magnesium Glycinate,  zinc, vitamin c, vitamin d, NAC

 

 

 

 

 

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manymoretodays

It comes and goes throughout the day now.  The inner might be related to the gut somehow I think.

 

I don't know how long really as I just realized I've had this before.  But it's gone away.  I hope it's the dissipation of the anxiety for good!


Started with psycho meds circa 1988 I think 27 or 28 total.

AD's, antpsychotics, antiseizure mood stabilizers. Lithium, lamictal ,benzos, and stimulants. Some med. for narcolepsy once(Provigil,) Gabapentin........probably more.  Ask me?......I probably was on it.  Haphazard W/D's by Dr. recommend or uneducated self.

10/2014- off Lexapro--had been on highest dose 10 mg. then 5 mg. for a couple of years, went from 5 mg. to 3 mg. liquid and then CT in hospital(voluntary).  I got out of the hospital on a combination of low dose adderal salts x1/day and trileptal 150mg. x2/day.

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!

 

3/21/2016---I did some unwise updosing of trileptal/oxcarbazepine with some stressful stuff......doubled the above dose x2 during this last wave but began liquifying again and on approximately 68mg. starting today.  11/12//2016 24 mg. oxcarbazepine  12/9/2016 off oxcarbazepine/trileptal!!!! :) optimistic  2016 December 9- completely off all medications!!!!!

Omega3's,EPA +DHA= 1800 mg/day. Magnesium complex, orally, diluted in a liter of H2O(that I can shake up.....it usually dissolves more completely as the water gets down to room temperature) and/or Epsom salt baths prn.   Vit. C, D3, and E.  B12, melatonin tapered to 1mg., and bioidentical hormones sublingually.  Trace mineral drops.  L-lysine.  L-methylfolate=400 mcg plus daily spinach. Totally ready for a good long window to hit soon and getting better strings of full days and partial days along the way.  Definite improvement overall since I first arrived on the SA survivor ship.  Herb and alcohol free since 5/15/2016.  None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider. manymoretodays

 

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manymoretodays

Oui !

 

I like your avatar.  I must keep trying to just get going again.  So hard after "feeling" so close for what "seemed like" so long.  I keep saying to myself "you know the drill" over and over.

 

Hopefully dowtongirl will find her way over.  Vagus nerve?  Withdrawal symptoms are so much fun.

 

I don't have the answers but I've had most of the symptoms now.  Several times over.  Music is starting to help.  With earbuds.


Started with psycho meds circa 1988 I think 27 or 28 total.

AD's, antpsychotics, antiseizure mood stabilizers. Lithium, lamictal ,benzos, and stimulants. Some med. for narcolepsy once(Provigil,) Gabapentin........probably more.  Ask me?......I probably was on it.  Haphazard W/D's by Dr. recommend or uneducated self.

10/2014- off Lexapro--had been on highest dose 10 mg. then 5 mg. for a couple of years, went from 5 mg. to 3 mg. liquid and then CT in hospital(voluntary).  I got out of the hospital on a combination of low dose adderal salts x1/day and trileptal 150mg. x2/day.

5/28/2015-off Adderal salts 2.5mg. (I had been on that since hospital 10/2014)

12/2015---just holding, holding, holding, with trileptal/oxcarb at 75 mg. 1/2 tab at hs.  My last psycho med ever!

 

3/21/2016---I did some unwise updosing of trileptal/oxcarbazepine with some stressful stuff......doubled the above dose x2 during this last wave but began liquifying again and on approximately 68mg. starting today.  11/12//2016 24 mg. oxcarbazepine  12/9/2016 off oxcarbazepine/trileptal!!!! :) optimistic  2016 December 9- completely off all medications!!!!!

Omega3's,EPA +DHA= 1800 mg/day. Magnesium complex, orally, diluted in a liter of H2O(that I can shake up.....it usually dissolves more completely as the water gets down to room temperature) and/or Epsom salt baths prn.   Vit. C, D3, and E.  B12, melatonin tapered to 1mg., and bioidentical hormones sublingually.  Trace mineral drops.  L-lysine.  L-methylfolate=400 mcg plus daily spinach. Totally ready for a good long window to hit soon and getting better strings of full days and partial days along the way.  Definite improvement overall since I first arrived on the SA survivor ship.  Herb and alcohol free since 5/15/2016.  None of my posts are intended as medical advice.  Please discuss any decisions about your medical care with a knowledgeable medical provider. manymoretodays

 

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btdt

Oui !

 

I like your avatar.  I must keep trying to just get going again.  So hard after "feeling" so close for what "seemed like" so long.  I keep saying to myself "you know the drill" over and over.

 

Hopefully dowtongirl will find her way over.  Vagus nerve?  Withdrawal symptoms are so much fun.

 

I don't have the answers but I've had most of the symptoms now.  Several times over.  Music is starting to help.  With earbuds.

Try sounds of the ocean it was the only thing that helped me early on. 


WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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crhawk

Have any of you felt a terrible internal trembling/shaking/vibrating? I feel like my whole body is shaking or shivering, but it's not visible on the outside...just internal.

 

I have had this on and off through this process, but usually wouldn't last more than an hour or so at a time.

 

I have found that for the last three days it's been almost constant. It's worse in my hands and arms, but I can feel it through my whole body.

 

I've read this can also be part of anxiety.

 

Is this just another "normal" part of the process?

 

Anyone else experience this? How long did it last for you?

 

It's driving me crazy and seems to be worse every day. Almost like I'm having or about to have convulsions.


History of Wellbutrin, Neurontin, Buspar, Paxil and others in 1990's - teenage years

Xanax .5 mg as needed 2010-2015

One injection of Haldol in ER 10/9/2015 - dystonic reaction (ongoing issues)

One 50 mg pill Zoloft 10/31/15 adverse reaction/s that are ongoing

Xanax .125 mg every 3 hours as needed, .25 mg at bedtime 1/8/16-1/21/16Xanax .25 mg every 3 hours (1.25 mg/day) 1/22/16 - 2/9/16Xanax .25 mg/5 times a day (1.25 mg/day) starting 2/10/16, then tried 6 times/day (2x.25, 4x.1875)Xanax .25 mg/6 times a day (1.5 mg/day) starting 2/19/16

Tapering off of Xanax, switching to Diazepam, starting June 29, 2016, then starting taper soon there after

Completed Xanax taper early Sept 2016, crossover to 20 mg/day Diazepam

Currently at 2 mg Diazepam/day = 1 mg bedtime, 1 mg morning

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Toulouse

I actually have just started getting this sensation about a week ago.  I feel vibrating/tremors/twitching in the muscles in my hands, forearms, and legs. It's not painful, but it is annoying.  I feel it on and off throughout the day, and sometimes its keeping me awake at night.  I am 6 mos off of Paxil, and this seems to be a late blooming WD symptom for me. Though I did feel some small tremors/internal vibrating under my ribs very early in my WD process, it went away for almost 6 months and only resurfaced just now. I have read it could be anxiety related or SSRI WD related. Other members have told me they have had similar experiences.


Been on Paxil 14 years. 40mg for the bulk of those.

20mg in 2014

10mg March of 2015 - then tapered to 5mg

Then to 2.5 to 1.5 - to 1mg, from Mar-August.

As of August 23 2015, I am flying without a net.  Paxil free!

WD symptoms since tapering mid- 2015:

Short temper, hostile. Brain zaps. Bruxism. Wild vivid dreams  Hives Food intolerance Lump in throat, . Joint pain. Knees, elbows.  Pain in feet. Numbness in hands. Shaking, like I'm cold. Trembling. Tremors, muscle twitches all over. Facial tics. Eye, lips. Head.  Floaters in my eyes. Severe Insomnia (between months 4-5)  then returned from March-October 2016. I'm sleeping better now. Dreams have returned to normal (month 7) High levels of anxiety when around large crowds or in large rooms. Intestinal spasms, heartburn.  Dizzy spells.  Panic/Anxiety Attacks suddenly developed months 8 out.  4 years out, 98% feeling back to normal.  (October 9 2019)

 

 

 

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Tamtam1

Does anyone know what causes this? I had it a lot in early withdrawal mostly at night while I was sleeping( would wake me out of a dead sleep) but during the day too sometimes. I only get it now when I am in a wave or get very hyper about something. If I get excited about something I will feel faintly, it doesn't stay around long but its there.

 

I also had a intermittent vibration in my leg which is gone now, I almost feel like it was a nerve rewiring itself it kept following the same path, but the path would get shorter and shorter every month until it was gone. like the nerve healed itself a little each time so the path to be healed got shorter and shorter until it was just my toe and then it stopped.


Took 20mg of Prozac from March 2005 until May 2014 with a couple of breaks in there, my last break was 6-7months in 2008.

Tapered every other day for a couple of weeks May 2014 and quit, only symptom was rage for a couple of weeks.

August 2014-major stress in life insomnia started, tried taking Prozac for 4 days and started twitching and moncylonic jerks. stopped taking it, wasn't my generic I thought that was the problem, my Prozac was unavailable for 6 weeks so I waited.

October 2014- took my generic Prozac for a couple of days, twitching and jerking starts again so I stopped.

November 2014-OCD make a very unwelcome appearance so I decide to start at 10mg of Prozac and it works for a couple of weeks, I am sleeping and feeling like me again, after 2 1/2 weeks insomnia kicks in and in the next couple of days the twitching and jerking start again. So I wean off in one week and that's when the problems begin.

December 2014-stop the Prozac, symptoms begin. waking between 3-4 every morning with panic, tremors in back of head, waking up to my entire body vibrating, suicidal, anxiety, eyes blurry, feeling off balance reacting to sleep aids.

February 2015-first window lasted a day.

May 2015- 2 week window (it was beautiful)

June 2015-became depressed, but lifted at the end of the month, had a couple mild waves, but can absolutely tell they are not as bad as 6 months ago.

 

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crhawk

Well, I'm glad to hear that I'm not alone...and it sounds as though it may continue to come and go?  It is incredibly disturbing.  Yes, wakes me up at night as well. 

 

I have read anxiety can cause it...that it is something muscular.  And like Toulouse said, can be SSRI WD/adverse reaction.  But the exact cause, what is going on inside to make it happen would be good to know.


History of Wellbutrin, Neurontin, Buspar, Paxil and others in 1990's - teenage years

Xanax .5 mg as needed 2010-2015

One injection of Haldol in ER 10/9/2015 - dystonic reaction (ongoing issues)

One 50 mg pill Zoloft 10/31/15 adverse reaction/s that are ongoing

Xanax .125 mg every 3 hours as needed, .25 mg at bedtime 1/8/16-1/21/16Xanax .25 mg every 3 hours (1.25 mg/day) 1/22/16 - 2/9/16Xanax .25 mg/5 times a day (1.25 mg/day) starting 2/10/16, then tried 6 times/day (2x.25, 4x.1875)Xanax .25 mg/6 times a day (1.5 mg/day) starting 2/19/16

Tapering off of Xanax, switching to Diazepam, starting June 29, 2016, then starting taper soon there after

Completed Xanax taper early Sept 2016, crossover to 20 mg/day Diazepam

Currently at 2 mg Diazepam/day = 1 mg bedtime, 1 mg morning

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Fresh

The sensation of internal vibration sounds like low-grade akathisia to me , and it can come and go

like other symptoms.

The vibration is often described as an electrical current. For some people it occurs only in the

legs and has been called Restless Leg Syndrome.

It started about 6 months off a too-fast taper for me.

Lol @ "late blooming WD symptom". For some reason , it often presents months after stopping ad's.

 

You might find relief by getting up and moving around. Sometimes pacing helps.

 

See http://survivingantidepressants.org/index.php?/topic/32-akathisia-vs-restlessness-anxiety-agitation/


1987-1997 pertofran , prothiaden , Prozac 1997-2002 Zoloft 2002-2004 effexor 2004-2010 Lexapro 40mg

2010-2012Cymbalta 120mg

Sept. 2012 -decreased 90mg in 6months. Care taken over by Dr Lucire in March 2013 , decreased last 30mg at 2mg per week over 3 months. July 21 , 2013- last dose of Cymbalta

Protracted withdrawal syndrome kicked in badly Jan.2014 Unrelenting akathisia until May 2014. Voluntary hosp. admission. Cocktail of Seroquel, Ativan and mirtazapine and I was well enough to go home after 14 days. Stopped all hosp. meds in next few months.

July 2014 felt v.depressed - couldn't stop crying. Started pristiq 50mg. Felt improvement within days and continued to improve, so stayed on 50mg for 8 months.

Began taper 28 Feb. 2015. Pristiq 50mg down to 45mg. Had one month of w/d symptoms. Started CES therapy in March. No w/d symptoms down to 30mg.

October 2015 , taking 25mg Pristiq. Capsules compounded with slow-release additive.

March 2016 , 21mg

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crhawk

The sensation of internal vibration sounds like low-grade akathisia to me , and it can come and go

like other symptoms.

The vibration is often described as an electrical current. For some people it occurs only in the

legs and has been called Restless Leg Syndrome.

It started about 6 months off a too-fast taper for me.

Lol @ "late blooming WD symptom". For some reason , it often presents months after stopping ad's.

 

Yes, Fresh, I do feel like I have akathisia...internally.  I do not have the physical feelings of constantly needing to move, but that is how I feel internally.  I have read a couple others post about this.  You think it is related to that?  It makes sense, as it does seem to accompany those feelings.

 

I have had other electrical current type feelings, which mostly originate in my hands and arms, but can be felt full body.  The internal shaking (like a shivering feeling) originates in the same way,

 

So has that symptom gotten better for you?


History of Wellbutrin, Neurontin, Buspar, Paxil and others in 1990's - teenage years

Xanax .5 mg as needed 2010-2015

One injection of Haldol in ER 10/9/2015 - dystonic reaction (ongoing issues)

One 50 mg pill Zoloft 10/31/15 adverse reaction/s that are ongoing

Xanax .125 mg every 3 hours as needed, .25 mg at bedtime 1/8/16-1/21/16Xanax .25 mg every 3 hours (1.25 mg/day) 1/22/16 - 2/9/16Xanax .25 mg/5 times a day (1.25 mg/day) starting 2/10/16, then tried 6 times/day (2x.25, 4x.1875)Xanax .25 mg/6 times a day (1.5 mg/day) starting 2/19/16

Tapering off of Xanax, switching to Diazepam, starting June 29, 2016, then starting taper soon there after

Completed Xanax taper early Sept 2016, crossover to 20 mg/day Diazepam

Currently at 2 mg Diazepam/day = 1 mg bedtime, 1 mg morning

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