Jump to content
DLB

DLB I guess it's my turn!!

Recommended Posts

DLB

Well, first I want to thank Alto for creating this site which helped immensely during those hard times (and there were many ) and also to all the members whom helped along the way. 

I finished my taper 4 years ago this month after I believe was 3 other month long tapers had failed. 

        This last time I started a 10% taper in December 2013 after being on mostly 10 mg . Paxil and a few runs of 20 mg. I finished my taper I believe April 15th 2015. The last 6 months of the taper which was basically dust particles of Paxil was brutal. 

The next year was pretty rough with anhedonia and being diagnosed with an autoimmune disease that I am certain ether Paxil or the antibiotic Levaquin caused (if you read my story you will find that Levaquin started this whole cascading process of decreasing health and medicines. Year two I was feeling better but still not myself. Not really interested in my prior hobbies. Year 3 is when I was really starting to change back to ME again and was interested in lots of things again. The only thin that has held me back is the physical pain from my autoimmune issues.

          I have considered myself healed for about a year now but it seems like there was even more to come, which is where I'm at now. Doing just great ,although I do have lower libido than I thought I would. Without TMI , was the equivalent of an 18 year old until about the time Paxil pooped out on me. I was 45 then and now 50 so I guess this might be considered normal aging but I will never know🙄. Anyway, all parts work but not as good as before and not as often, so for the PSSD people, it does get better, but at my age now I'm not sure how I'm supposed to be🤔.

         So there it is in a nutshell, things are really good, I'm in a shitload of pain from AI issues but life is still great. It's been a really long time since I have been on here and I don't visit too often at all anymore because I'm too busy at life. I'm going to post a link to my story so anyone interested can see how I was able to do it. If anyone has any questions, I will try to answer when I can because I'm so damn busy at life again.

 

 

Share this post


Link to post
Share on other sites
Hannahe

Thank you for posting. It helps us out a lot 🙏🏻

Share this post


Link to post
Share on other sites
puthappinessfirst

Winner winner chicken dinner! 

🎉

Share this post


Link to post
Share on other sites
1Day

Thank you so much DLB for coming back to post your success story.

 

In percentage terms, how back to normal would you say you are in respect of PSSD?  And you might improve further - I know of one person who recovered from PSSD but then continued to improve further over the next two or three years. 

 

Wish you all the best for the future. 

 

1Day

Share this post


Link to post
Share on other sites
RandyJames

I am so happy for you!  Thanks so much for posting.  It's really nice to hear that you are busy at life again!  We all need more success stories.  

 

I read in your timeline that you felt 85% better at .25mgs.  Did that not last as you said the last six months were brutal and the next year was rough as well?  I'm wondering because I am starting a 10% taper from 20 mgs of Lexapro tomorrow and am hoping so much that I will feel improvement on my way to 0 and not just increased symptoms.  

 

Best wishes to you and congratulations!!! 🎂

Share this post


Link to post
Share on other sites
DLB
On April 15, 2019 at 4:27 PM, 1Day said:

Thank you so much DLB for coming back to post your success story.

 

In percentage terms, how back to normal would you say you are in respect of PSSD?  And you might improve further - I know of one person who recovered from PSSD but then continued to improve further over the next two or three years. 

 

Wish you all the best for the future. 

 

1Day

Well, like I said in post, I'm not really sure where I should be at 50 being that this happened to me. It sure don't work like it did when 18 lol, or even ten years ago. I'm defiantly not what I was, but who is at 50. I actually have no problem with the workings( although it's harder to maintain) but the desire is a little off. One week I can't get enough and the next I don't really care...

Share this post


Link to post
Share on other sites
DLB
On April 18, 2019 at 7:17 PM, RandyJames said:

I am so happy for you!  Thanks so much for posting.  It's really nice to hear that you are busy at life again!  We all need more success stories.  

 

I read in your timeline that you felt 85% better at .25mgs.  Did that not last as you said the last six months were brutal and the next year was rough as well?  I'm wondering because I am starting a 10% taper from 20 mgs of Lexapro tomorrow and am hoping so much that I will feel improvement on my way to 0 and not just increased symptoms.  

 

Best wishes to you and congratulations!!! 🎂

I had no real problems until I hit 2.85 mg and it just sucked REALLY bad from there and then after my final dose it was a crappy year or so with some good days thrown in. 

Keep it slow and steady and just get through it by planning on letting yourself feel like crap for a year or so possibly.

Good luck.

Share this post


Link to post
Share on other sites
MRothbard

Thanks for posting DLB

Share this post


Link to post
Share on other sites
laydefish

congratulations! You are a true inspiration to us all- Thanks

Share this post


Link to post
Share on other sites
DLB

5 years out now and doing great. Just some painful autoimmune issues that is mostly under control. Good luck everyone, it really does get better....

Share this post


Link to post
Share on other sites
ResilienceandHope

Congratulations on your success!  I just read through your story and have a question.  You mentioned you had bad noise sensitivity.  Well, I feel like I can hear things 10 miles away.  Things that I never noticed before are now so loud in my house.  And now I'm obsessing over them.  How long did your noise issues last?  I know part of my problem is that I was on a benzo too, and those increase sensitivity. 

 

So glad you are enjoying your life!!

 

Share this post


Link to post
Share on other sites
Cocopuffz17

Hey, great to hear! Congrats this drug is a PITA. Glad you are doing well :) What is your autoimmune condition, if you don't mind me asking? I also developed a few while on paxil and they are reversing now that I am off it and have changed my nutrition :)

Share this post


Link to post
Share on other sites
DLB
On 4/16/2020 at 10:32 PM, ResilienceandHope said:

Congratulations on your success!  I just read through your story and have a question.  You mentioned you had bad noise sensitivity.  Well, I feel like I can hear things 10 miles away.  Things that I never noticed before are now so loud in my house.  And now I'm obsessing over them.  How long did your noise issues last?  I know part of my problem is that I was on a benzo too, and those increase sensitivity. 

 

So glad you are enjoying your life!!


Hi Hop, the noise thing was awful. What hurt most was putting forks and spoons away, I had to do it sooo carefully. That disappeared after about 8 months or a year, pretty hard to remember.

Keep going...

 

Share this post


Link to post
Share on other sites
DLB

Hi Coco, I have a form of psoriatic arthritis/ spondylarthritis. It mainly affects my tendons and muscles and no joints. This could have also started from Levaquin poisoning because that is what started this whole mess almost 17 years ago. It’s very possible the Paxil was just masking it because it always appeared when I tapered and disappeared when I reinstated. For the record NO ONE on any side of my family had this or psoriasis and I was fine until I took these meds. There is definitely a correlation. I’m now managing it with Humira because basically I can’t walk without it. It makes me about 90% better.

Share this post


Link to post
Share on other sites
Cocopuffz17
33 minutes ago, DLB said:

Hi Coco, I have a form of psoriatic arthritis/ spondylarthritis. It mainly affects my tendons and muscles and no joints. This could have also started from Levaquin poisoning because that is what started this whole mess almost 17 years ago. It’s very possible the Paxil was just masking it because it always appeared when I tapered and disappeared when I reinstated. For the record NO ONE on any side of my family had this or psoriasis and I was fine until I took these meds. There is definitely a correlation. I’m now managing it with Humira because basically I can’t walk without it. It makes me about 90% better.

 

Yes, I would say it definitely is caused by these medications. I to developed an autoimmune disease while on paroxetine. I have almost fully reversed my alopecia with changing my nutrition. It has been a long challenging journey, but every moment is worth it as I know it will get me to my goal!  It has reduced the inflammation in my body and allowed my body to continue to heal. I am glad you have found relief with humira. 

 

Actually one of the youtubers I found out about this lifestyle from is the reason I changed my nutrition lifestyle. I would of not been able to get off of this medication without it.  She actually had life crippling arthritis.  Here is the video if you are interested in taking a look 

 

Share this post


Link to post
Share on other sites
DLB
On 4/19/2020 at 9:05 PM, Cocopuffz17 said:

 

Yes, I would say it definitely is caused by these medications. I to developed an autoimmune disease while on paroxetine. I have almost fully reversed my alopecia with changing my nutrition. It has been a long challenging journey, but every moment is worth it as I know it will get me to my goal!  It has reduced the inflammation in my body and allowed my body to continue to heal. I am glad you have found relief with humira. 

 

Actually one of the youtubers I found out about this lifestyle from is the reason I changed my nutrition lifestyle. I would of not been able to get off of this medication without it.  She actually had life crippling arthritis.  Here is the video if you are interested in taking a look 

 

Thank you, I will look into it. I tried every possible diet and herbal remedy possible in 5 years. I’ll try anything...

Share this post


Link to post
Share on other sites
Cocopuffz17
14 minutes ago, DLB said:

Thank you, I will look into it. I tried every possible diet and herbal remedy possible in 5 years. I’ll try anything...

You are welcome! I to tried numerous different nutritional plans to try and help out my condition and not a single one has even come close to the results I have got from following The Plant Paradox. 

Share this post


Link to post
Share on other sites
DLB
On 4/20/2020 at 10:31 PM, Cocopuffz17 said:

You are welcome! I to tried numerous different nutritional plans to try and help out my condition and not a single one has even come close to the results I have got from following The Plant Paradox. 

I actually take Gundry’s  “Vital Reds” and it lowered my cholesterol pretty well. Been thinking about some of his other blends too.

Share this post


Link to post
Share on other sites
Cocopuffz17
5 minutes ago, DLB said:

I actually take Gundry’s  “Vital Reds” and it lowered my cholesterol pretty well. Been thinking about some of his other blends too.

Nice! I have been taking that supplement for around 8 months now. I take that and total restore! 

Share this post


Link to post
Share on other sites

Please sign in to comment

You will be able to leave a comment after signing in



Sign In Now

×
×
  • Create New...

Important Information

Terms of Use Privacy Policy