Moderator Emeritus Sassenach Posted July 23, 2019 Moderator Emeritus Share Posted July 23, 2019 The number of drugs is not the issue because Shep is very well aware that you want off. He just wants to make sure it is done safely and the least possible side effects. When it's quiet tonight, sit back and relax and bring your dancing forward rerun in your mind until you can recall it as soon as you shut your eyes. Use as needed, no sell by date. View from window, which end is your crock of gold? Escitalopram 10mgs from mid 2007 ( can't remember exact date) to 11th Dec 2018 Fentanyl patches ( don't remember dose ) from Nov 2014 to 11 Dec 2018 Quit both cold turkey Dec 2018 Reinstated 3rd March 2019 2.5 mgs. Updosed 8March to 5mgs and holding 25/11/19 Started taper 4.5mgs and holding This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner If you are going through Hell, keep going. NCIS series 15, David MaCallum Link to comment
Amanda167 Posted July 23, 2019 Author Share Posted July 23, 2019 (edited) Thank you I'm in severe physical pain, never had this especially at night time. My whole body hurts so much. Have 3 ice packs on me and can't move... What's going on 😭 In agony. Do you think it has anything to do with my high sugar levels? I'm so scared this has messed up my health permanently Trying so hard not to stress myself but in agony.. both physically and mentally 😭 Didn't go doctors today because of how bad I am... he wanted me in to discuss results. Already told me my blood sugar were to high 😓 Don't even have sugar x Edited July 26, 2019 by ChessieCat removed quote 1987 20mg Paxil reduced to 10mg after a year, 15mg after 3 or 4 failed tapers Feb 2019-7mg, 29th April- 8.5mg, 07th May- 9.5mg, 14th May- 10.4mg 10mg-holding. May 2019 Valium 0.50mg daily to 5mg daily variable , 4th Jun 1mg and holding. 31/07/19. From .60 to 40mg 9am. From .40 to 50mg 9pm May 2019 Quietiapine 25mg tapered to 4mg and holding. May 2019 Zoplicone 3.75mg and hold. 31/07/19. Reduced to 3.40mg 10pm. .375mg 9am. 1000mg Vytox Krill oil with breakfast. 500mg with dinner. 400mg Doctors Best Magnesium split breakfast/dinner. 1000mg vit D3 after breakfast Link to comment
Amanda167 Posted July 23, 2019 Author Share Posted July 23, 2019 (edited) 23/07/19 10.00. Got up after sleepiness night... awoke to severe depression, bad dreams about family. Nausea, head pressure, etc 10.15. 0.60 valium 12pm. My Son made me food. Magnesium 250mg plus 1000mg krill oil. 12.30pm. Still extremely low, nausea and in a bad way. Crying. Pretty much continued all day. 6.30pm. Dinner cooked by my Son. 7pm. 4mg quetiapine 7pm. 10mg Paxil 7pm. 0.40 valium. 7pm. Very sick and in chronic physical and emotional stress. 3 ice packs and couldn't move. Bad body cramps, back aches, head pressure/ache. Crying. 9pm. Half of my 375mg Zopiclone as recommended by Seth. 10.30. Agony eases a little but didn't walk dog today as to sick. 20.35. Went to bed, praying I get some sleep. X Edited July 26, 2019 by ChessieCat removed quote 1987 20mg Paxil reduced to 10mg after a year, 15mg after 3 or 4 failed tapers Feb 2019-7mg, 29th April- 8.5mg, 07th May- 9.5mg, 14th May- 10.4mg 10mg-holding. May 2019 Valium 0.50mg daily to 5mg daily variable , 4th Jun 1mg and holding. 31/07/19. From .60 to 40mg 9am. From .40 to 50mg 9pm May 2019 Quietiapine 25mg tapered to 4mg and holding. May 2019 Zoplicone 3.75mg and hold. 31/07/19. Reduced to 3.40mg 10pm. .375mg 9am. 1000mg Vytox Krill oil with breakfast. 500mg with dinner. 400mg Doctors Best Magnesium split breakfast/dinner. 1000mg vit D3 after breakfast Link to comment
Moderator Emeritus Sassenach Posted July 23, 2019 Moderator Emeritus Share Posted July 23, 2019 Sleep well Escitalopram 10mgs from mid 2007 ( can't remember exact date) to 11th Dec 2018 Fentanyl patches ( don't remember dose ) from Nov 2014 to 11 Dec 2018 Quit both cold turkey Dec 2018 Reinstated 3rd March 2019 2.5 mgs. Updosed 8March to 5mgs and holding 25/11/19 Started taper 4.5mgs and holding This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner If you are going through Hell, keep going. NCIS series 15, David MaCallum Link to comment
Moderator Emeritus Shep Posted July 23, 2019 Moderator Emeritus Share Posted July 23, 2019 19 minutes ago, Amanda167 said: 9pm. Half of my 375mg Zopiclone as recommended by Seth. I hope I'm catching you before you go to bed, Amanda. Please don't cut your dose in half. We were still going back and forth with questions and answers. Please wait to make changes until we have time to discuss and make a game plan. Alto and I have been discussing your thread and this may be the best game plan for you. 1) Move the nighttime Valium later in the evening and increase it to 0.50mg while decreasing the morning Valium to 0.50mg. This will separate it from the Paxil and quetiapine and boost the benzo in the evening. 2) After stabilizing on the new schedule, taper off quetiapine. 3) Taper off zopiclone. Please post your thoughts. Let's get a game plan set up before you start making changes. Link to comment
Mentor RichT Posted July 23, 2019 Mentor Share Posted July 23, 2019 (edited) Hi Amanda, i’m sorry you’re suffering such physical and emotional pain. Thinking of you and hoping you get better soon. warmest wishes Rich Edited July 26, 2019 by ChessieCat removed quote ✅ = medication taken now 2007 quetiapine to March 2019 200mg 2019 quetiapine March to present 225mg ✅ 2007 citalopram to present 40mg ✅2018 March Abilify 5mg 2019 Abilify February rapid taper over 3 weeks from 5mg to off 2019 March Clonazepam as required, taken very occasionally, then taken 0.5mg for 2 days 28th and 29th March, now phased out 2019 1st April reinstated Abilify 0.5mg / day ✅ 2018 to 2020 Liquid B12 2g twice daily (diagnosed B12 deficiency) 2020 July reduced quetiapine to 200mg 2022 October began taper of Abilify Link to comment
Amanda167 Posted July 24, 2019 Author Share Posted July 24, 2019 6 hours ago, Shep said: I hope I'm catching you before you go to bed, Amanda. Please don't cut your dose in half. We were still going back and forth with questions and answers. Please wait to make changes until we have time to discuss and make a game plan. Alto and I have been discussing your thread and this may be the best game plan for you. 1) Move the nighttime Valium later in the evening and increase it to 0.50mg while decreasing the morning Valium to 0.50mg. This will separate it from the Paxil and quetiapine and boost the benzo in the evening. 2) After stabilizing on the new schedule, taper off quetiapine. 3) Taper off zopiclone. Please post your thoughts. Let's get a game plan set up before you start making changes. Hi Shep I already done as suggested 😓 Slept fine but woke up very agitated, just took 2nd half of Zopiclone and we try get back to sleep for a bit. Yes, I think the new plan is the better option. Move the valium to both 9am and 9pm at 0.50 1st then stabalise, then reduce quetiapine then zopiclone Really crappy still. Hope this hasn't complicated things... I think it proves I probably don't need it for sleep as slept on the quarter, just feeling very anxious now I'm awake x 1987 20mg Paxil reduced to 10mg after a year, 15mg after 3 or 4 failed tapers Feb 2019-7mg, 29th April- 8.5mg, 07th May- 9.5mg, 14th May- 10.4mg 10mg-holding. May 2019 Valium 0.50mg daily to 5mg daily variable , 4th Jun 1mg and holding. 31/07/19. From .60 to 40mg 9am. From .40 to 50mg 9pm May 2019 Quietiapine 25mg tapered to 4mg and holding. May 2019 Zoplicone 3.75mg and hold. 31/07/19. Reduced to 3.40mg 10pm. .375mg 9am. 1000mg Vytox Krill oil with breakfast. 500mg with dinner. 400mg Doctors Best Magnesium split breakfast/dinner. 1000mg vit D3 after breakfast Link to comment
Amanda167 Posted July 24, 2019 Author Share Posted July 24, 2019 7 hours ago, RichT said: Hi Amanda, i’m sorry you’re suffering such physical and emotional pain. Thinking of you and hoping you get better soon. warmest wishes Rich Thanks for your warm wishes. Appreciated x 1987 20mg Paxil reduced to 10mg after a year, 15mg after 3 or 4 failed tapers Feb 2019-7mg, 29th April- 8.5mg, 07th May- 9.5mg, 14th May- 10.4mg 10mg-holding. May 2019 Valium 0.50mg daily to 5mg daily variable , 4th Jun 1mg and holding. 31/07/19. From .60 to 40mg 9am. From .40 to 50mg 9pm May 2019 Quietiapine 25mg tapered to 4mg and holding. May 2019 Zoplicone 3.75mg and hold. 31/07/19. Reduced to 3.40mg 10pm. .375mg 9am. 1000mg Vytox Krill oil with breakfast. 500mg with dinner. 400mg Doctors Best Magnesium split breakfast/dinner. 1000mg vit D3 after breakfast Link to comment
Moderator Emeritus Sassenach Posted July 24, 2019 Moderator Emeritus Share Posted July 24, 2019 Morning Amanda Out and about at the moment. How are you feeling now Sassenach Escitalopram 10mgs from mid 2007 ( can't remember exact date) to 11th Dec 2018 Fentanyl patches ( don't remember dose ) from Nov 2014 to 11 Dec 2018 Quit both cold turkey Dec 2018 Reinstated 3rd March 2019 2.5 mgs. Updosed 8March to 5mgs and holding 25/11/19 Started taper 4.5mgs and holding This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner If you are going through Hell, keep going. NCIS series 15, David MaCallum Link to comment
Amanda167 Posted July 24, 2019 Author Share Posted July 24, 2019 (edited) Morning Extremely depressed. Nausea, bad stomach, chest and head discomfort... I don't want to get up to another day of this. The low mood and sickness is crippling me My car needs an MOT and I can't get out So sick of this. Does it ever end!!! Amanda x Edited July 26, 2019 by ChessieCat removed quote 1987 20mg Paxil reduced to 10mg after a year, 15mg after 3 or 4 failed tapers Feb 2019-7mg, 29th April- 8.5mg, 07th May- 9.5mg, 14th May- 10.4mg 10mg-holding. May 2019 Valium 0.50mg daily to 5mg daily variable , 4th Jun 1mg and holding. 31/07/19. From .60 to 40mg 9am. From .40 to 50mg 9pm May 2019 Quietiapine 25mg tapered to 4mg and holding. May 2019 Zoplicone 3.75mg and hold. 31/07/19. Reduced to 3.40mg 10pm. .375mg 9am. 1000mg Vytox Krill oil with breakfast. 500mg with dinner. 400mg Doctors Best Magnesium split breakfast/dinner. 1000mg vit D3 after breakfast Link to comment
Amanda167 Posted July 24, 2019 Author Share Posted July 24, 2019 2 hours ago, Sassenach said: Morning Amanda Out and about at the moment. How are you feeling now Sassenach I'm so sick Think I need hospital Something is very wrong Help please Am in a very bad way Cab I be having adverse reactions, 1987 20mg Paxil reduced to 10mg after a year, 15mg after 3 or 4 failed tapers Feb 2019-7mg, 29th April- 8.5mg, 07th May- 9.5mg, 14th May- 10.4mg 10mg-holding. May 2019 Valium 0.50mg daily to 5mg daily variable , 4th Jun 1mg and holding. 31/07/19. From .60 to 40mg 9am. From .40 to 50mg 9pm May 2019 Quietiapine 25mg tapered to 4mg and holding. May 2019 Zoplicone 3.75mg and hold. 31/07/19. Reduced to 3.40mg 10pm. .375mg 9am. 1000mg Vytox Krill oil with breakfast. 500mg with dinner. 400mg Doctors Best Magnesium split breakfast/dinner. 1000mg vit D3 after breakfast Link to comment
Moderator Emeritus Sassenach Posted July 24, 2019 Moderator Emeritus Share Posted July 24, 2019 Amanda It will be at least 3-4 hours before Shep is around. The symptoms you describe above are symptoms experienced in W/D I f you feel so ill you fear for your safety then you should call an ambulance, but only you can make that decision. If you decide to do so write down your drugd history so they know what meds you currently on. I feel helpless here but your safetycomes first. Please let me know what you decide. Good luck Sassenach Escitalopram 10mgs from mid 2007 ( can't remember exact date) to 11th Dec 2018 Fentanyl patches ( don't remember dose ) from Nov 2014 to 11 Dec 2018 Quit both cold turkey Dec 2018 Reinstated 3rd March 2019 2.5 mgs. Updosed 8March to 5mgs and holding 25/11/19 Started taper 4.5mgs and holding This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner If you are going through Hell, keep going. NCIS series 15, David MaCallum Link to comment
Moderator Emeritus Shep Posted July 24, 2019 Moderator Emeritus Share Posted July 24, 2019 22 minutes ago, Amanda167 said: I'm so sick Think I need hospital Something is very wrong 7 hours ago, Amanda167 said: Slept fine but woke up very agitated, just took 2nd half of Zopiclone and we try get back to sleep for a bit. This could be from this change in dosing the Zopiclone. It sounds like you woke up in zopiclone withdrawal. I'm glad you took the second half of your dose. Please work on your non-drug coping skills and using distraction. 7 hours ago, Amanda167 said: Move the valium to both 9am and 9pm at 0.50 1st then stabalise, then reduce quetiapine then zopiclone Yes, this sounds like a good plan. let's work on getting the Valium set up. This is about when you are currently taking your drugs: 10 am .60 mg Valium 7 pm quetiapine 4 mg, 10 mg Paxil, .40 mg Valium 10 pm 3.75mg Zopiclone Here are the steps to get your Valium moved and the dosage adjusted, doing so in a gradual manner. These gradual steps are gentlest on your nervous system - the recent problem with Zopiclone shows you likely are already dependent and your nervous system is hyper-reacting to changes. Today (Wednesday): 10 am .60 mg Valium 7 pm quetiapine 4 mg, 10 mg Paxil 8 pm .40 mg Valium 10 pm 3.75mg Zopiclone Thursday: 10 am .60 mg Valium 7 pm quetiapine 4 mg, 10 mg Paxil 9 pm .40 mg Valium 10 pm 3.75mg Zopiclone Friday: 9 am .60 mg Valium 7 pm quetiapine 4 mg, 10 mg Paxil 9 pm .40 mg Valium 10 pm 3.75mg Zopiclone Saturday - change the dose: 9 am .50 mg Valium 7 pm quetiapine 4 mg, 10 mg Paxil 9 pm .50 mg Valium 10 pm 3.75mg Zopiclone Please let us know how you're feeling. Link to comment
Amanda167 Posted July 24, 2019 Author Share Posted July 24, 2019 (edited) Hi Shep I'm feeling awful and in agony. Too weak to move. On standing I get severe palpatations, feels like I'm going to have a heart attack. So afraid what these drugs have damaged my CNS . I'm extremely hot but my temperature is low between 35 and 36. I'm so scared. Want to check in to hospital butso afraid they'll make things worse... please tell me goes away. What can I do??? I feel extremely stressed and nothing is helping me distract. Is this normal??? So worried x Edited July 26, 2019 by ChessieCat removed quote 1987 20mg Paxil reduced to 10mg after a year, 15mg after 3 or 4 failed tapers Feb 2019-7mg, 29th April- 8.5mg, 07th May- 9.5mg, 14th May- 10.4mg 10mg-holding. May 2019 Valium 0.50mg daily to 5mg daily variable , 4th Jun 1mg and holding. 31/07/19. From .60 to 40mg 9am. From .40 to 50mg 9pm May 2019 Quietiapine 25mg tapered to 4mg and holding. May 2019 Zoplicone 3.75mg and hold. 31/07/19. Reduced to 3.40mg 10pm. .375mg 9am. 1000mg Vytox Krill oil with breakfast. 500mg with dinner. 400mg Doctors Best Magnesium split breakfast/dinner. 1000mg vit D3 after breakfast Link to comment
Moderator Emeritus Sassenach Posted July 24, 2019 Moderator Emeritus Share Posted July 24, 2019 Amanda Every symptom you are currently feeling is parts of withdrawal I am still out but when I get back I will post you a link to McMullen symptom list. You have not permanently damaged your CNS. You are hot because you have temperature dysregulation. Palpitations are also a normal symptom in fact I have them right now now but I've learnt to ignore them. You need to believe that you will get better because you will. It does go away it does go away it does go away. Got to go now back between 5 and 7 Sassenach Escitalopram 10mgs from mid 2007 ( can't remember exact date) to 11th Dec 2018 Fentanyl patches ( don't remember dose ) from Nov 2014 to 11 Dec 2018 Quit both cold turkey Dec 2018 Reinstated 3rd March 2019 2.5 mgs. Updosed 8March to 5mgs and holding 25/11/19 Started taper 4.5mgs and holding This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner If you are going through Hell, keep going. NCIS series 15, David MaCallum Link to comment
Amanda167 Posted July 24, 2019 Author Share Posted July 24, 2019 (edited) Thank you Sorry to bug you. Feeling desperate What can I do to make it stop. I sitting frozen in fear. I can't live like this. I am a single mum. I have no help Cannot believe the level of pain and discomfort. My whole body is on fire. Palpatations are constant I thought things were slowly improving. I'm in despair Feel like giving up... can't seem to get out of this cycle of constant pain and mental torture. If the zopiclone is pooping out whilst I'm already in Withdrawals from 2 other meds, what can I do??? Shall I take more zopiclone??? So afraid as in so much pain x Edited July 26, 2019 by ChessieCat removed quote 1987 20mg Paxil reduced to 10mg after a year, 15mg after 3 or 4 failed tapers Feb 2019-7mg, 29th April- 8.5mg, 07th May- 9.5mg, 14th May- 10.4mg 10mg-holding. May 2019 Valium 0.50mg daily to 5mg daily variable , 4th Jun 1mg and holding. 31/07/19. From .60 to 40mg 9am. From .40 to 50mg 9pm May 2019 Quietiapine 25mg tapered to 4mg and holding. May 2019 Zoplicone 3.75mg and hold. 31/07/19. Reduced to 3.40mg 10pm. .375mg 9am. 1000mg Vytox Krill oil with breakfast. 500mg with dinner. 400mg Doctors Best Magnesium split breakfast/dinner. 1000mg vit D3 after breakfast Link to comment
Bellamy Posted July 24, 2019 Share Posted July 24, 2019 Hi Amanda, I too am in severe paroxetine withdrawal. Our timelines sound similar - I've been on it for 22 years and crashed massively this Feb after what was a very slow taper (this, I'm presuming, happened because my brain had been "kindled" following failed tapers in the past). I also, like you, up-dosed hoping for relief but this hasn't come yet and I'm pretty much in bed most of the day. I do hope you find relief soon, as I'm sure you will. The other night you seemed to have a very good window, even if this was short-lived - I haven't had one of those yet. My very best wishes, Bellamy May 1997 - Dec 1997 Paroxetine 40 mg, quit as doctor said "looks like your depression has resolved" Jan 1998 - Sept 1998 Paroxetine 40 mg - needed to go back on due to severe withdrawal, then tapered off more slowly Jan 1999 - Dec 2017 Paroxetine 40 mg, then in Dec 2017 reduced to 20 mg in one go - severe withdrawal symptoms May 2018 Up-dosed to 22.5 mg and symptoms abated and I began to feel better. Aug 2018 Started slow taper - 1 mg every six weeks. Crashed in Feb 2019 when down to 18 mg. Immediately up-dosed to 20 mg with no effect. Went up to 25 mg after six weeks out of desperation, then two weeks later went to 30 mg. May 2019 - 7.5 mg Mirtazapine for sleep. Link to comment
Amanda167 Posted July 24, 2019 Author Share Posted July 24, 2019 (edited) Hi Bellamy Thanks for responding to me... yes, I too crashed in February at 7mg and reinstated to 10mg in May. I went ER a few times and was given valium, quetiapine and zoplicone and since have tapered the valium from 4mg to 1mg and the quetiapine from 25mg to 4mg. I'm trying desperately to stabalise and have no idea if the reinstatement has done anything or if the tapering of the other meds are causing even further withdrawals but suspect they are as my nervous system was already Severly unstable. The other day was the 1st window I've had, it has been a constant continuous wave of absolute HELL ever since. If I didn't have my Son, I don't think I'd be here as I'm in alot of physical and mental pain. I have not been able to get outof bed again the past few days and I can't bare it. I'm so sorry we are all going through this hell, it really is overwhelmingly heartbreaking. I too have lost my job and will probably lose my home as I'm a single mother. I so wish I could be inspirational and be writing encouraging words. Everytime I have the slightest hope, i get bombarded by another wave. I see you are on something for sleep too. I'm on zoplicone and that's usually the only time I get some relief but now I feel that's pooping out on me too. How is the sleeping med helping you? I hope you're getting some relief. I'm so sorry that you haven't reached stability yet... hopefully it's just a time issue and we'll both be on the road to recovery soon. Thanks again for reaching out to me. What are your symptoms??? Amanda x I Edited July 26, 2019 by ChessieCat removed quote 1987 20mg Paxil reduced to 10mg after a year, 15mg after 3 or 4 failed tapers Feb 2019-7mg, 29th April- 8.5mg, 07th May- 9.5mg, 14th May- 10.4mg 10mg-holding. May 2019 Valium 0.50mg daily to 5mg daily variable , 4th Jun 1mg and holding. 31/07/19. From .60 to 40mg 9am. From .40 to 50mg 9pm May 2019 Quietiapine 25mg tapered to 4mg and holding. May 2019 Zoplicone 3.75mg and hold. 31/07/19. Reduced to 3.40mg 10pm. .375mg 9am. 1000mg Vytox Krill oil with breakfast. 500mg with dinner. 400mg Doctors Best Magnesium split breakfast/dinner. 1000mg vit D3 after breakfast Link to comment
Bellamy Posted July 24, 2019 Share Posted July 24, 2019 Hi Amanda, My worst symptom is akathisia, especially when it's accompanied by what I call "toxic depression" which comes on in waves. I also sometimes get very distressing out-of-body type feelings. I'm no longer taking the mirtazapine at night as I'm over-sleeping right now so insomnia isn't a problem, and in the evenings the more aggressive symptoms seem to leave me alone, though I still feel very down and have an inner restlessness. I occasionally take the mirtazapine in the daytime if my symptoms get really unbearable just because it knocks me out for a couple of hours and I get some relief from the akathisia for a few hours after that too. A few weeks ago I had pretty much given up on even trying to recover, but I have to keep reminding myself that the very few glimpses of partial normality that I have experienced over these months can come back. My big hope is that soon the withdrawal will ease and the up-dose will start to work for me, and for you too. Best wishes, Bellamy May 1997 - Dec 1997 Paroxetine 40 mg, quit as doctor said "looks like your depression has resolved" Jan 1998 - Sept 1998 Paroxetine 40 mg - needed to go back on due to severe withdrawal, then tapered off more slowly Jan 1999 - Dec 2017 Paroxetine 40 mg, then in Dec 2017 reduced to 20 mg in one go - severe withdrawal symptoms May 2018 Up-dosed to 22.5 mg and symptoms abated and I began to feel better. Aug 2018 Started slow taper - 1 mg every six weeks. Crashed in Feb 2019 when down to 18 mg. Immediately up-dosed to 20 mg with no effect. Went up to 25 mg after six weeks out of desperation, then two weeks later went to 30 mg. May 2019 - 7.5 mg Mirtazapine for sleep. Link to comment
Administrator Altostrata Posted July 24, 2019 Administrator Share Posted July 24, 2019 On 7/23/2019 at 10:14 AM, Amanda167 said: I just want my life back so much and my boy is my everything, my best friend and even though I have him, I'm not here... I'm heartbroken. Amanda, having a window is a good sign. I know you feel awful but there's more -- you are also tormenting yourself with feelings of guilt, regret, and fear for the future. It's hard, but you need to forgive yourself and stop this, these feelings are adding to your troubles. You're going through a rough patch with adverse drug reactions and you are doing the best you can. Please be aware that if you go to the hospital, you are likely to get much higher dosages of addiitional drugs. I believe we can work out the breakthough symptoms you are getting from the zopiclone wearing off overnight and you will feel somewhat better. Your getting these symptoms indicates you are already physiologically dependent on zopiclone. You are probably physiologically dependent on the Valium, definitely on the Paxil, and possibly on quetiapine. Please do not worry about this. Eventually, you will gradually taper off each one. Right now, we need to get the Valium and zopiclone dosing regularized so you don't have rebound symptoms and adverse effects from either. Hang in there, it will take a little time, but we often have people here with these complicated benzo problems and they work it out. In the meantime, please breath through your symptoms to manage your fear. Read Neuro-emotions Non-drug techniques to cope with emotional symptoms Easing your way into meditation for a stressed-out nervous system Music for self-care: calms hyperalertness, anxiety, aids relaxation and sleep Shame, guilt, regret, and self-criticism Ways to cope with daily anxiety Dealing With Emotional Spirals "Is it always going to be like this?" Deep emotional pain and crying spells, spontaneous weeping Paresthesia: Pins & Needles, Numbness, Tingling, Burning Sensations aka Neuropathy Apathy, anhedonia, emotional numbness, emotional anesthesia This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner. "It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein All postings © copyrighted. Link to comment
Amanda167 Posted July 24, 2019 Author Share Posted July 24, 2019 1 hour ago, Bellamy said: Hi Amanda, My worst symptom is akathisia, especially when it's accompanied by what I call "toxic depression" which comes on in waves. I also sometimes get very distressing out-of-body type feelings. I'm no longer taking the mirtazapine at night as I'm over-sleeping right now so insomnia isn't a problem, and in the evenings the more aggressive symptoms seem to leave me alone, though I still feel very down and have an inner restlessness. I occasionally take the mirtazapine in the daytime if my symptoms get really unbearable just because it knocks me out for a couple of hours and I get some relief from the akathisia for a few hours after that too. A few weeks ago I had pretty much given up on even trying to recover, but I have to keep reminding myself that the very few glimpses of partial normality that I have experienced over these months can come back. My big hope is that soon the withdrawal will ease and the up-dose will start to work for me, and for you too. Best wishes, Bellamy Hi Bellamy I replied but somehow didn't post. Do you get emotional outbursts too? I try to downstairs, get really agitated, frustrated at the nausea and dizziness and pain, end up crying in pain, having palpatations and end up back in my room trying to calm down whilst having intrusive thoughts. I think for me, it's the pain I feel when I know my Son is only staying home for me and I'm to scared to be alone. I feel immensely guilty and he's the best thing that's ever happened to me. I just hate him seeing me in so much pain. I've had every single symptom. The agitation, restlessness and internal vibrations from the akathisia is horrendous. Do you experience the emotional meltdowns? Do you have any support? I'm so scared and feel so alone. Pray every minute for things to improve x 1987 20mg Paxil reduced to 10mg after a year, 15mg after 3 or 4 failed tapers Feb 2019-7mg, 29th April- 8.5mg, 07th May- 9.5mg, 14th May- 10.4mg 10mg-holding. May 2019 Valium 0.50mg daily to 5mg daily variable , 4th Jun 1mg and holding. 31/07/19. From .60 to 40mg 9am. From .40 to 50mg 9pm May 2019 Quietiapine 25mg tapered to 4mg and holding. May 2019 Zoplicone 3.75mg and hold. 31/07/19. Reduced to 3.40mg 10pm. .375mg 9am. 1000mg Vytox Krill oil with breakfast. 500mg with dinner. 400mg Doctors Best Magnesium split breakfast/dinner. 1000mg vit D3 after breakfast Link to comment
Amanda167 Posted July 24, 2019 Author Share Posted July 24, 2019 24 minutes ago, Altostrata said: Eventually, you will gradually taper off each one. Right now, we need to get the Valium and zopiclone dosing regularized so you don't have rebound symptoms and adverse effects from either. Hi Alto. Thanks so much for responding Please can you explain how regulating the meds mentioned will stop rebound symptoms? If I'm going into withdrawal from the zoplicone already and I'm already in Withdrawals from the other meds, how can they be stopped? I'm so afraid as I don't know what's causing what. Could I still be unstable from the updose of Paxil too? All I know is I'm in hell and I'm aware, I'm not making things better by stressing but can't help feeling overwhelmed that my Son has also had his life taken away for almost 6 months too. Everytime I see his face, I feel overwhelmed with guilt because I love him so much and want our life back. I'm struggling with this immensely and have no other help. Been stuck in bed again since 6pm yesterday in hellish pain, it's driving me insane. I really am trying to be positive but even meditation is not reducing my pain and fear currently. This is pure torture to our souls. I read that people take years to feel better and worry that I can't cope with another day, let alone that length of time. I've completely forgotten how it feels to be normal. I hear others laughing in their garden and it's a constant reminder of us missing out on life due to these poisons. It hurts me so bad. On top of that, if I can't work, I'll lose the house and I can't even comprehend getting chucked out of my house when I can't even make a phone call or answer the door 99% of the time. I'm so sorry for being negative but it's so hard to see the light after all of this... I mean I'm traumatised by the whole experience, will I ever awake to a normal happy person again? Again, so sorry for being this way, am currently so stressed and it's making me turn into a desperate needy child. I do so much appreciate all of your continued support and time to help myself and others... So much Amanda x 1987 20mg Paxil reduced to 10mg after a year, 15mg after 3 or 4 failed tapers Feb 2019-7mg, 29th April- 8.5mg, 07th May- 9.5mg, 14th May- 10.4mg 10mg-holding. May 2019 Valium 0.50mg daily to 5mg daily variable , 4th Jun 1mg and holding. 31/07/19. From .60 to 40mg 9am. From .40 to 50mg 9pm May 2019 Quietiapine 25mg tapered to 4mg and holding. May 2019 Zoplicone 3.75mg and hold. 31/07/19. Reduced to 3.40mg 10pm. .375mg 9am. 1000mg Vytox Krill oil with breakfast. 500mg with dinner. 400mg Doctors Best Magnesium split breakfast/dinner. 1000mg vit D3 after breakfast Link to comment
Anthony75 Posted July 25, 2019 Share Posted July 25, 2019 Hi @Amanda167 Just stopped by to say hello. I hope since last time we talked you have gotten a break from your symptoms. I’m still here if you need to talk. Best wishes. Anthony 1993 - 2003 (Prozac 40mg) 2003 – 2/1/17 (Paxil 40mg) 4/10/18 – Present (Paxil 50mg) 1993 - Present (Klonopin 2mg) 1996 - Present (Levothyroxine 100mcg) 2/1/17 - Quit (Paxil 40mg) Cold Turkey 2/1/17 – 10/1/17 (No Paxil) Acute withdrawal 10/1/17 – Reinstated (Paxil 40mg) 4/10/18 – Up dosed to (Paxil 50mg) 4/10/18 - To present. Still in protracted withdrawals Supplements - Multivitamin, fish oil, vitamin d3, Magnesium Link to comment
Moderator Emeritus Shep Posted July 25, 2019 Moderator Emeritus Share Posted July 25, 2019 13 hours ago, Amanda167 said: Please can you explain how regulating the meds mentioned will stop rebound symptoms? Having the drugs evenly spaced will keep the levels of the drug in your bloodstream more even. You'll be less likely to have symptoms in between doses. 13 hours ago, Amanda167 said: I'm so afraid as I don't know what's causing what. Could I still be unstable from the updose of Paxil too? Yes, it can take a number of weeks or months for things to even out. Please see: Are we there yet? How long is withdrawal going to take? But also read the success stories. There are many stories of triumph after this ordeal. Pug has a really great thread where he shares his success. pug Your miracle is coming, hang on! 13 hours ago, Amanda167 said: I'm so sorry for being negative but it's so hard to see the light after all of this... I mean I'm traumatised by the whole experience, will I ever awake to a normal happy person again? There's no reason to think you won't recover, Amanda. Acceptance is key during withdrawal and can really help with distressed and panicky feelings. Acceptance Please also see the Relationship section, as others are also dealing with the loss of employment and are struggling to take care of children. It may help to know you're not alone. Relationships and social life The best thing you can do is learn how to feel safe inside your own brain/body. Many of us go on these drugs at a young age and never learn how to self soothe during times of stress and crisis. So when we get slammed with something like psychiatric drug withdrawal, which fuels all feelings of fear and even traumatic flashbacks, we don't know how to respond or how to cope. Learning how to self soothe is vital to this process of coming off these drugs. Mindfulness can help, along with acceptance. At times, you'll go into "survival mode" and simply getting through the next hour or even the next minute will take all of your energy. But there will be other moments when you'll get a breather from this. Enjoy the breathers (such as the window you had recently) and learn to cope when it's "survival mode" time again. You'll build up your muscles to do this over time. And then when you do get off these drugs and heal, you'll have an entire arsenal of coping strategies for whatever life sends your way. Keep in mind, while this is a traumatic ordeal and comes with a lot of collateral damage, it's only a phase in your life, yes, a difficult phase, but it's not your life's entirety. When you're deep in the storm, you can't see that and you can easily get trapped in a lot of tunnel-vision thinking. But the reality is, you will get better and you will go onto re-build your life. It's important to develop this mindset and let neuroplasticity work in your favor. Healing from antidepressants. How to speed up the recovery process video (5 minutes) Healing from antidepressants: The power of neuroplasticity video (7.5 minutes) Please work on strategies of coping because when you give into emotional spirals, you are repeatedly wiring your brain to go into dark spaces. This can create negative neuroplasticity. Norman Doidge - The Dark Side of Neuroplasticity video (2 minutes) The more you can do to learn to self soothe, the messages you send to your brain and nervous system that all is well. This will help tremendously, even if you have to "fake it to you make it" at times. Link to comment
Moderator Emeritus Sassenach Posted July 25, 2019 Moderator Emeritus Share Posted July 25, 2019 Hi Amanda. How are you feeling today? Escitalopram 10mgs from mid 2007 ( can't remember exact date) to 11th Dec 2018 Fentanyl patches ( don't remember dose ) from Nov 2014 to 11 Dec 2018 Quit both cold turkey Dec 2018 Reinstated 3rd March 2019 2.5 mgs. Updosed 8March to 5mgs and holding 25/11/19 Started taper 4.5mgs and holding This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner If you are going through Hell, keep going. NCIS series 15, David MaCallum Link to comment
Amanda167 Posted July 25, 2019 Author Share Posted July 25, 2019 (edited) Thanks Shep. I'm really struggling. The constant head pressure and discomfort is severe as is the upset stomach. I put ice packs on my head and neck. Is there anything else I can do to help it?? My arms also hurt alot! It's hard to distract when I'm in so much pain. I dreading thinking another day housebound and in pain constantly. I just feel sick 24/7 I've been practising acceptance but it's very difficult when I'm in this much pain and distress. There must be some way to lesson the pain. Thanks so much for the information, just struggling badly... maybe jumping around my living room 2 nights ago wasn't such a good idea. Amanda x Edited July 26, 2019 by ChessieCat removed quote 1987 20mg Paxil reduced to 10mg after a year, 15mg after 3 or 4 failed tapers Feb 2019-7mg, 29th April- 8.5mg, 07th May- 9.5mg, 14th May- 10.4mg 10mg-holding. May 2019 Valium 0.50mg daily to 5mg daily variable , 4th Jun 1mg and holding. 31/07/19. From .60 to 40mg 9am. From .40 to 50mg 9pm May 2019 Quietiapine 25mg tapered to 4mg and holding. May 2019 Zoplicone 3.75mg and hold. 31/07/19. Reduced to 3.40mg 10pm. .375mg 9am. 1000mg Vytox Krill oil with breakfast. 500mg with dinner. 400mg Doctors Best Magnesium split breakfast/dinner. 1000mg vit D3 after breakfast Link to comment
Amanda167 Posted July 25, 2019 Author Share Posted July 25, 2019 1 hour ago, Sassenach said: Hi Amanda. How are you feeling today? Morning Sassenach As just posted to Shep, not great. really struggling. The constant head pressure and discomfort is severe as is the upset stomach. I put ice packs on my head and neck. Is there anything else I can do to help it?? My arms also hurt alot! It's hard to distract when I'm in so much pain. I dreading thinking another day housebound and in pain constantly. I just feel sick 24/7 I've been practising acceptance but it's very difficult when I'm in this much pain and distress. There must be some way to lesson the pain. Thanks so much for the information, just struggling badly... maybe jumping around my living room 2 nights ago wasn't such a good idea. Amanda x 1987 20mg Paxil reduced to 10mg after a year, 15mg after 3 or 4 failed tapers Feb 2019-7mg, 29th April- 8.5mg, 07th May- 9.5mg, 14th May- 10.4mg 10mg-holding. May 2019 Valium 0.50mg daily to 5mg daily variable , 4th Jun 1mg and holding. 31/07/19. From .60 to 40mg 9am. From .40 to 50mg 9pm May 2019 Quietiapine 25mg tapered to 4mg and holding. May 2019 Zoplicone 3.75mg and hold. 31/07/19. Reduced to 3.40mg 10pm. .375mg 9am. 1000mg Vytox Krill oil with breakfast. 500mg with dinner. 400mg Doctors Best Magnesium split breakfast/dinner. 1000mg vit D3 after breakfast Link to comment
Amanda167 Posted July 25, 2019 Author Share Posted July 25, 2019 2 hours ago, Anthony75 said: Hi @Amanda167 Just stopped by to say hello. I hope since last time we talked you have gotten a break from your symptoms. I’m still here if you need to talk. Best wishes. Anthony Morning Anthony Thanks for caring. Still in a very bad way. Did you ever get the severe head pressure and chest weakness? I'm feeling very sick. Can't wait for this to go... So much discomfort, causing alot of anger Hope you're feeling good today Amanda x 1987 20mg Paxil reduced to 10mg after a year, 15mg after 3 or 4 failed tapers Feb 2019-7mg, 29th April- 8.5mg, 07th May- 9.5mg, 14th May- 10.4mg 10mg-holding. May 2019 Valium 0.50mg daily to 5mg daily variable , 4th Jun 1mg and holding. 31/07/19. From .60 to 40mg 9am. From .40 to 50mg 9pm May 2019 Quietiapine 25mg tapered to 4mg and holding. May 2019 Zoplicone 3.75mg and hold. 31/07/19. Reduced to 3.40mg 10pm. .375mg 9am. 1000mg Vytox Krill oil with breakfast. 500mg with dinner. 400mg Doctors Best Magnesium split breakfast/dinner. 1000mg vit D3 after breakfast Link to comment
Moderator Emeritus Shep Posted July 25, 2019 Moderator Emeritus Share Posted July 25, 2019 47 minutes ago, Amanda167 said: The constant head pressure and discomfort is severe as is the upset stomach. I put ice packs on my head and neck. Is there anything else I can do to help it?? My arms also hurt alot! It's hard to distract when I'm in so much pain. Here are several threads by GiaK, who also blogs on the site Beyond Meds. Non-drug techniques for dealing with body pain Adventures in healing pain, trauma, iatrogenic injury Yoga for symptom control (body pain, heart pain, palpitations, anxiety etc) Dyesthesias: abnormal pain from psych drug withdrawal (and info about other sorts of pains too) Link to comment
Anthony75 Posted July 25, 2019 Share Posted July 25, 2019 Hi Of course. Yes very bad head pressure and headaches. Chest weakness I personally did not have. But I definitely felt sick overall. I wish I could tell you how much longer because I was asking the same question. But I do know it gets easier. You’re a strong person with a lot of support on this forum. You will get there. Best wishes, Anthony 1993 - 2003 (Prozac 40mg) 2003 – 2/1/17 (Paxil 40mg) 4/10/18 – Present (Paxil 50mg) 1993 - Present (Klonopin 2mg) 1996 - Present (Levothyroxine 100mcg) 2/1/17 - Quit (Paxil 40mg) Cold Turkey 2/1/17 – 10/1/17 (No Paxil) Acute withdrawal 10/1/17 – Reinstated (Paxil 40mg) 4/10/18 – Up dosed to (Paxil 50mg) 4/10/18 - To present. Still in protracted withdrawals Supplements - Multivitamin, fish oil, vitamin d3, Magnesium Link to comment
Amanda167 Posted July 25, 2019 Author Share Posted July 25, 2019 (edited) Thanks Shep x Feeling very spaced out. I'm missing exercise badly, hopefully will get to walk the dog later but to anxious to go out yet. Is this normal too? Edited July 26, 2019 by ChessieCat removed quote 1987 20mg Paxil reduced to 10mg after a year, 15mg after 3 or 4 failed tapers Feb 2019-7mg, 29th April- 8.5mg, 07th May- 9.5mg, 14th May- 10.4mg 10mg-holding. May 2019 Valium 0.50mg daily to 5mg daily variable , 4th Jun 1mg and holding. 31/07/19. From .60 to 40mg 9am. From .40 to 50mg 9pm May 2019 Quietiapine 25mg tapered to 4mg and holding. May 2019 Zoplicone 3.75mg and hold. 31/07/19. Reduced to 3.40mg 10pm. .375mg 9am. 1000mg Vytox Krill oil with breakfast. 500mg with dinner. 400mg Doctors Best Magnesium split breakfast/dinner. 1000mg vit D3 after breakfast Link to comment
Amanda167 Posted July 25, 2019 Author Share Posted July 25, 2019 37 minutes ago, Anthony75 said: Hi Of course. Yes very bad head pressure and headaches. Chest weakness I personally did not have. But I definitely felt sick overall. I wish I could tell you how much longer because I was asking the same question. But I do know it gets easier. You’re a strong person with a lot of support on this forum. You will get there. Best wishes, Anthony Hi Anthony Thank you for your support I'm struggling so badly. Feeling horrid due to lack of exercise. Driving me insane as I'm a very active person. How are you doing today? Have you stabalised? X 1987 20mg Paxil reduced to 10mg after a year, 15mg after 3 or 4 failed tapers Feb 2019-7mg, 29th April- 8.5mg, 07th May- 9.5mg, 14th May- 10.4mg 10mg-holding. May 2019 Valium 0.50mg daily to 5mg daily variable , 4th Jun 1mg and holding. 31/07/19. From .60 to 40mg 9am. From .40 to 50mg 9pm May 2019 Quietiapine 25mg tapered to 4mg and holding. May 2019 Zoplicone 3.75mg and hold. 31/07/19. Reduced to 3.40mg 10pm. .375mg 9am. 1000mg Vytox Krill oil with breakfast. 500mg with dinner. 400mg Doctors Best Magnesium split breakfast/dinner. 1000mg vit D3 after breakfast Link to comment
Anthony75 Posted July 25, 2019 Share Posted July 25, 2019 Hi Amanda, You’re welcome. I’m sorry to hear you’re struggling. Hope you feel better soon. I’m doing ok. Thank you for asking. Just trying to take one day at a time. Unfortunately I haven’t stabilized yet. Hoping that day comes soon. Hope you feel some relief soon. Best wishes, Anthony 1993 - 2003 (Prozac 40mg) 2003 – 2/1/17 (Paxil 40mg) 4/10/18 – Present (Paxil 50mg) 1993 - Present (Klonopin 2mg) 1996 - Present (Levothyroxine 100mcg) 2/1/17 - Quit (Paxil 40mg) Cold Turkey 2/1/17 – 10/1/17 (No Paxil) Acute withdrawal 10/1/17 – Reinstated (Paxil 40mg) 4/10/18 – Up dosed to (Paxil 50mg) 4/10/18 - To present. Still in protracted withdrawals Supplements - Multivitamin, fish oil, vitamin d3, Magnesium Link to comment
Amanda167 Posted July 25, 2019 Author Share Posted July 25, 2019 (edited) Likewise... keep me updated Feel free to private message if you wish. Sitting outside today, Feeling crap and very dizzy and spaced out. Longing for a day where I can go outside but just to anxious at the moment. Hope things improve for you soon x Edited July 26, 2019 by ChessieCat removed quote 1987 20mg Paxil reduced to 10mg after a year, 15mg after 3 or 4 failed tapers Feb 2019-7mg, 29th April- 8.5mg, 07th May- 9.5mg, 14th May- 10.4mg 10mg-holding. May 2019 Valium 0.50mg daily to 5mg daily variable , 4th Jun 1mg and holding. 31/07/19. From .60 to 40mg 9am. From .40 to 50mg 9pm May 2019 Quietiapine 25mg tapered to 4mg and holding. May 2019 Zoplicone 3.75mg and hold. 31/07/19. Reduced to 3.40mg 10pm. .375mg 9am. 1000mg Vytox Krill oil with breakfast. 500mg with dinner. 400mg Doctors Best Magnesium split breakfast/dinner. 1000mg vit D3 after breakfast Link to comment
Amanda167 Posted July 25, 2019 Author Share Posted July 25, 2019 (edited) Hi I have severe DP today. Any tips on how to help this? I go from pain to panic to severe DP... like the DP always comes after severe stress and anxiety. It's like a constant cycle. Thanks, Amanda Edited July 26, 2019 by ChessieCat removed quote 1987 20mg Paxil reduced to 10mg after a year, 15mg after 3 or 4 failed tapers Feb 2019-7mg, 29th April- 8.5mg, 07th May- 9.5mg, 14th May- 10.4mg 10mg-holding. May 2019 Valium 0.50mg daily to 5mg daily variable , 4th Jun 1mg and holding. 31/07/19. From .60 to 40mg 9am. From .40 to 50mg 9pm May 2019 Quietiapine 25mg tapered to 4mg and holding. May 2019 Zoplicone 3.75mg and hold. 31/07/19. Reduced to 3.40mg 10pm. .375mg 9am. 1000mg Vytox Krill oil with breakfast. 500mg with dinner. 400mg Doctors Best Magnesium split breakfast/dinner. 1000mg vit D3 after breakfast Link to comment
Anthony75 Posted July 25, 2019 Share Posted July 25, 2019 Hi Amanda, Thank you same to you. Unfortunately I’ve had DP for most of my life. For me what helps is trying not to focus on the DP. I know it’s not easy. I just noticed I was always self checking myself to see if I still felt the DP. Especially in the morning when I first woke up. I believe that the more I would focus on the DP the worst it got. So with practice and trying not to be frightened by the DP I found it to get less intense and eventually go away. Also in my case the less anxious I was the DP got better on it’s own. I really hope this helps. Best wishes, Anthony 1993 - 2003 (Prozac 40mg) 2003 – 2/1/17 (Paxil 40mg) 4/10/18 – Present (Paxil 50mg) 1993 - Present (Klonopin 2mg) 1996 - Present (Levothyroxine 100mcg) 2/1/17 - Quit (Paxil 40mg) Cold Turkey 2/1/17 – 10/1/17 (No Paxil) Acute withdrawal 10/1/17 – Reinstated (Paxil 40mg) 4/10/18 – Up dosed to (Paxil 50mg) 4/10/18 - To present. Still in protracted withdrawals Supplements - Multivitamin, fish oil, vitamin d3, Magnesium Link to comment
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