Amanda167

[Amanda167]

59 minutes ago, Shep said:

One of the main problems with nausea is it makes it very hard to eat and this affects blood

Thanks Shep

 

I'm still eating. Too greedy not to and don't wish to lose weight.

 

Thanks for the information 

Been having ginger and drinking peppermint tea, not easing.

Using ice on neck plus water bottle on stomach, still not going.

Head hurts, head and chest feel weak.

Would it be advisable to not try and do anything,  like his this my body trying to heal??

Or should I keep trying to push through it???

I really dislike doing nothing as I'm such an active person.

Did you experience this at all?

 

Thanks so much

Amanda x

[Shep]

56 minutes ago, Amanda167 said:

I have Colpermin, do you think it would help?

 

I'm not familiar with Colpermin and I'm not finding it listed here on the forum. I did a quick google search and it sounds like it's a form of peppermint oil. Is that all that's in it?

 

56 minutes ago, Amanda167 said:

I also never had stomach issues during the WDs and they only started about 2/3 weeks ago.

 

Please update your signature to reflect the changes you've made since May.

 

Account - Setting - Create or Edit Your Signature

 

If this was 3 weeks ago, that was prior to your more recent Valium / Zopiclone change, wasn't it? Were there any other changes that you can think of? 

Edited August 5, 2019 by Shep
fixed typo

[Amanda167]

17 minutes ago, Shep said:

this was 3 weeks ago, that was prior to your more recent Valium / Zopiclone change, wasn't it? Were there any other changes that you can think of? 

Hi Shep

Yes, started a few weeks before the change.

Stomach bloating also which I never had. That's why I think it's the valium reduction that's causing problems (going from 5mg to 1mg in short period) because these are symptoms I never had in the initial Paxil withdrawal. 

26 minutes ago, Shep said:

Please update your signature to reflect the changes you've made since May.

Will do

 

Thanks for quick response.

 

So, should I try and just committ to resting or try and keep pushing on?

I hate this nausea, worse than pregnancy and that was horrible. X

21 minutes ago, Shep said:

not familiar with Colpermin and I'm not finding it listed here on the forum. I did a quick google search and it sounds like it's a form of peppermint oil. Is that all that's in it?

Yes, it's a peppermint oil treatment OTC for IBS. Side effects say nausea and sickness so a bit off putting.

Seems that big P-harma like to add alot of other ingredients to every medication. Why can't it simply be peppermint oil. Lol...So paranoid with all medications, always was but now even more so.

 

 

[Amanda167]

Hi Shep... or anyone able to answer please

 

Every article I read says to get off of Zopiclone before valium due to short half life.

This terrifies me because I had no idea that the sleep aid was basically a mini benzo.

As I have already tapered almost completely off the valium,  there is no way I'd ever reinstate to it or another benzo ever.

Will I have lots of problems trying to get off of the zopiclone without help? It's only been 12 weeks.

I'm even thinking now, the increased nausea could be due to the slight night reduction.

 

I've tried to see if others have come off without the aid of Benzos.  Hope it's possible. Am scared. 😢

 

Any thoughts appreciated x

[Amanda167]

Topic title:  Zopiclone withdrawal

 

Hi warriors

 

Has anyone successfully come off zopiclone without the aid of a benzo?

I've been on it for 12 weeks only but I'm concerned it's making me more sick during the days.

Any success stories on coming off?

I've already tapered valium so there's no way I'd go back on it again.

Feeling afraid and in need of advise x

 

Edited August 5, 2019 by ChessieCat
added topic title

[Amanda167]

5th August diary.

 

9am. .40 valium. 375mg Zoplicone. Awoke to nausea, tinnitus,  dizziness,  irritation prior to AM meds. Exhausted although slept well.

 

11am. Breakfast. Supplements 

 

Stay in my room as to sick.

 

13pm. Snack.

 

13pm to 7pm. Too sick to do anything.  Everytime I try, I get air hunger and crying fits.

My boy came home at 5 30pm... was so emotional, had panic attacks back to back as knew he'd been upset prior to coming home. 

 

7pm. Paxil 10mg quetiapine 4mg

 

7.30pm. Went downstairs,  managed to feed animals, prep my juices, wash up, etc.

 

8.30pm. 1st bath in 3 days.

9pm. .50 valium.

 

9.40. Took valium a little earlier as had to walk dog.

 

10.30pm. Cereal, washed hair.

 

Very sick most of day, bad head pain causing alot of dizziness and discomfort.  From 7.30, I felt a little better. X

[Shep]

19 hours ago, Amanda167 said:

Seems that big P-harma like to add alot of other ingredients to every medication. Why can't it simply be peppermint oil.

 

You can buy peppermint oil without other ingredients. No need to use a pharma pill. 

 

17 hours ago, Amanda167 said:

Every article I read says to get off of Zopiclone before valium due to short half life.

This terrifies me because I had no idea that the sleep aid was basically a mini benzo

 

We recommend coming off the drug that helps you sleep last. Preserving sleep is key. 

 

Benzos and z-drug withdrawal are no worse than antidepressant withdrawal for many people.  The withdrawal symptoms are very similar and the healing timeline also very similar. The key to an easier withdrawal journey is to come off the drug that helps you sleep last. 

 

19 hours ago, Amanda167 said:

Yes, started a few weeks before the change.

Stomach bloating also which I never had. That's why I think it's the valium reduction that's causing problems (going from 5mg to 1mg in short period) because these are symptoms I never had in the initial Paxil withdrawal. 

 

From your signature, you made a rapid reduction of quetiapine at the same time you reduced the Valium down to 1 mg, so it could be that change, as well. Or the combination. A lot of symptoms when dealing with polypharmacy are from the combination as much as individual changes. So it's very hard to parse through what is coming from what when you make multiple changes. 

 

 

10 hours ago, Amanda167 said:

13pm to 7pm. Too sick to do anything.  Everytime I try, I get air hunger and crying fits.

 

Some tips for handling air hunger:

 

Managing Shortness of Breath video (5 minutes)

 

Managing an acute episode of shortness of breath video (6 minutes)

 

You may also want to learn the 4-7-8 breathing technique:

 

4-7-8 Breathing: Health Benefits & Demonstration article and video (8 minutes)

 

And there's a cartoon version, too. 

 

4-7-8 Breathing Exercise by GoZen (video 3.5 minutes)

 

More techniques:

 

Breathing for mood and well being (yoga and other techniques)

 

This is a wonderful and easy-to-do yoga position that can help with many withdrawal symptoms, as it's very calming to the nervous system.

 

Legs Up The Wall - Foundations of Yoga video (7 minutes)

 

I would bring in one or two breathing techniques and the legs-up-the-wall technique several times throughout the day to help the nervous system heal. 

 

 

19 hours ago, Amanda167 said:

So, should I try and just committ to resting or try and keep pushing on?

 

Is your sleep better or worse now than before this most recent change? 

 

It takes 4 days for your nervous system to register a change and a week or longer for your brain/body to acclimate to this change, and it's only been 6 days, so you may want to hold for a couple of weeks and see if you can get a bit more stability. 

[Amanda167]

2 hours ago, Shep said:

your sleep better or worse now than before this most recent change? 

Hi Shep

 

Thanks for getting back.

 

My sleep is better lately apart from my dog waking me up.

The only thing is I'm so tired, no amount of sleep is changing this, I just want to Sleep.

 

Woke up the same again today, in sheer agony and very sick. Can't do much but get to the toilet as my head is so tense and everything is off balance,  I'm so fed up. Can't bring myself to even make a phone call. Even talking hurts and throws me off balance. Have i just reduced to much at Once, really afraid I'm never going to get better.

I can't stand another day like this being in constant pain and the nausea is constant.

 

Do you think I should increase the valium back to .50, maybe going from .60 to .40 at the AM dose was too much. I took the .375 zopiclone half hour before the .40 valium this morning to see if it helps. I'm just so sick. 😢

 

2 hours ago, Shep said:

So, should I try and just committ to resting or try and keep pushing on?

I meant should I keep trying to get up and do things or should I resign to the fact I'm to sick. Everytime I try, I just get airhunger, panic attacks and cry... I just want to cry all day as in terrible discomfort. 

 

2 hours ago, Shep said:

You can buy peppermint oil without other ingredients. No need to use a pharma pill. 

I will get some but can't get out at all.

 

Thanks for the techniques. I do most of these.

 

I really feel like giving up. My days are full of pain, fear, sickness and heartache. Im so low with waking up to this everyday. Surely there must be something I can do to make this a little easier.

 

I'm trying so hard to be positive,  Every night, I think I'm going to wake up and feel a bit better but I'm still in the same pain. 

 

What can I do. Sitting here with hot water on my stomach and ice on my neck as I do everyday. My head and heart feel so weak.

Sorry, really fed up... So grateful for your time.

 

Just wish I could sleep in the day too x

 

[Altostrata]

On 8/5/2019 at 8:38 AM, Amanda167 said:

Has anyone successfully come off zopiclone without the aid of a benzo?

 

Yes, we will help you taper off zopiclone, but as Shep says, we're mindful of the importance of keeping you sleeping. When we suggest a plan, there are good reasons why we choose the order of the drugs to taper. Please consider Shep's guidance.

[Amanda167]

3 minutes ago, Altostrata said:

Yes, we will help you taper off zopiclone, but as Shep says, we're mindful of the importance of keeping you sleeping. When we suggest a plan, there are good reasons why we choose the order of the drugs to taper. Please consider Shep's guidance.

Thanks Alto

Just your reassurance is enough.

 

I'm struggling with the depression really bad.

 

Any tips??

 

Does this phrase last long? 

 

Struggling to imagine normal living 

 

Thanks, Amanda x

[Altostrata]

How do you experience this "depression"?

 

Do you feel better or worse after you take each of your drugs?

 

Pardon if I've asked this before, why do you take Paxil, quetiapine, and Valium together in the evening? Drug Interaction Report

 

23 hours ago, Amanda167 said:

9pm. .50 valium.

 

9.40. Took valium a little earlier as had to walk dog.

 

Did you take an extra dose of Valium at 9:40? What is your usual drug schedule?

[Amanda167]

48 minutes ago, Altostrata said:

Did you take an extra dose of Valium at 9:40? What is your usual drug schedule?

Hi Alto 

Sorry,  that was meant to say zopiclone,  usually take at 10pm but went out with dog so took it slightly earlier.

50 minutes ago, Altostrata said:

How do you experience this "depression"?

 

Do you feel better or worse after you take each of your drugs?

I wake up with depression.

The only med that aids a little is the evening zopiclone.

 

During the day, I'm in mostly pain and am very depressed. After I take the Paxil and quetiapine,  im still not good,  the zopiclone helps a little lift my mood.

 

The Paxil doesnt seem to help.

 

The depression is scary, makes me want to hide from the world.. lack of interest, lack of feeling love for anything, lack of faith I'm never going to be the happy person I was 6 months ago. It's an underlying emotional pain that's hard to explain but very difficult to deal with. A very low hopelessness of ever being me again.

55 minutes ago, Altostrata said:

Pardon if I've asked this before, why do you take Paxil, quetiapine, and Valium together in the evening? Drug Interaction Report

No specific reason.

I always took my Paxil at bedtime but slowly moved them down because of the zopiclone.

I was wondering if I'd be better trying the Paxil as an AM dose?? Seems I'm taking all my meds from 7pm.

 

I especially feel low in the mornings. The valium doesn't seem to do anything.

 

Sometimes I wonder if it was wrong to updose from 7mg to 10mg 😓 It's certainly not taking away any low moods.

 

Any suggestions?

 

Many thanks for your help. X

 

Diary to follow...

 

 

[Amanda167]

Diary 7th Aug 19

 

Got woken at 5am by dog, anxious going back to sleep.

 

Awoke to bad head ache, tension in temples, muscle aches, nausea.

 

9am. .375 zoplicone 

9.30am. .40 valium

 

Got up 11.45am, still very tired although slept very well all week.

 

12pm. Ate cereal. Very sick and low mood.

 

2pm. Smoothie. Forced myself in the garden. Nausea let up after a bit which surprised me, head very tense, mood very low.

 

5.30pm. Dinner

6pm. Done chores, hoovered, etc

 

7pm. Paxil 10mg. Quetiapine 4mg

 

8pm. Still very bad head and low mood.

 

8.30pm Snacks.

 

9.30. Nipped to Sainsbury's and late night chemist.

 

Zopiclone 10pm  3.40mg 

 

Depression is bugging me the most. Using meditation,  EFT and breathing exercises.

 

Struggling to communicate with anyone period. 

 

Nausea eased today in afternoon. (1st time in 3 days) x

 

 

 

 

[Shep]

19 hours ago, Amanda167 said:

My sleep is better lately apart from my dog waking me up.

 

This speaks to stability. It's a good sign.

 

19 hours ago, Amanda167 said:

I took the .375 zopiclone half hour before the .40 valium this morning to see if it helps. 😢

 

8 hours ago, Amanda167 said:

9am. .375 zoplicone 

9.30am. .40 valium

 

What was the result of making this change?

 

Did the zopiclone on its own make you feel better, worse, or no different?

 

8 hours ago, Amanda167 said:

Nausea eased today in afternoon. (1st time in 3 days) x

 

Another good sign.

 

Please continue to do exactly what you're doing. Let us know how spacing the zopiclone apart from the Valium in the morning is working out. 

 

[Amanda167]

3 hours ago, Shep said:

What was the result of making this change?

 

Did the zopiclone on its own make you feel better, worse, or no different?

Morning Shep. X

 

I've not noticed a difference as yet.

All I know is my head tension is awful, the nausea and chest discomfort slightly reduced today but still present.

The low moods are the most distressing. They cause anxiety and terrify me that it won't ever leave... feel so flat and hopeless.

 

Please tell me this goes. I can't even handle any conversation, seems to stressful and agitated me. Is this normal?

 

Thank you kindly x

[Amanda167]

Hi

 

Can anyone help/advise please.

 

I'm in such a dark depression. I'm feeling so disconnected, lonely and sad. I feel like I'm on a different planet from everyone else and I've lost my life purpose.

I can't hold a conversation with anyone or any telephone conversations.

I'm so low and it's constant all day. I'm very afraid that this won't go away and cannot talk to anyone because my brain has so much tension and my ears hurt at any sound. I'm so off balance and NEVER felt so alone and lost.

 

I'm not fighting the feeling, I'm accepting it as part of withdrawal but I can't seem to see a way out. My heart hurts and I'm in so much emotional pain.

 

Why is this so bad????

Will I ever feel good again??? I was happy 7 months ago, now I feel lost, lonely and afraid.

 

I haven't gotten out in days only after my zopiclone to take my dog out.. I'm so lonely but can't connect. My family and friends have slowly disappeared.

 

Please guide me. 

Will this ever leave??? Will I find a purpose for living my life again???

I'm so terrified that these meds have taken everything from me.

 

Do i need to increase my antidepressant??? It isn't doing anything to help,  feel worse than ever... never felt this darkness before and can't even sleep to ease it. 😢

 

I've never been a negative person but very afraid of waking up feeling like this everyday.

 

Any advise appreciated greatly x

 

 

[Shep]

17 hours ago, Amanda167 said:

Any advise appreciated greatly x

 

Acceptance

 

Are We There Yet? How Long is Withdrawal Going to Take?

[Amanda167]

Thanks Shep

 

Struggling with acceptance.

I need to be able to work otherwise I'll lose my home.

 

So so sick again.

 

Haven't done anything all week up to 10pm. The zopiclone is the only med that helps.

 

Do you think I should bring my time down that I take the Paxil and quetiapine as it seems all my meds are taken close together in the evening.

 

Why am I not having windows,  only had that brief moment a few weeks back. I should of never fast tapered the valium and quetiapine whilst in Paxil withdrawal,  so scared I will never stabalise.

 

Sorry I didn't do my diary last night, was really bad. I slept to 1pm today as just soooo tired, I only awake to take meds. Hoping the sleep will promote more healing.

 

X

[Amanda167]

22 hours ago, Amanda167 said:

Sorry I didn't do my diary last night, was really bad. I slept to 1pm today as just soooo tired, I only awake to take meds. Hoping the sleep will promote more healing.

Sorry, didn't do diary again.

 

Much the same to report.

 

I'm really really tired lately.

 

Getting up late. I took my valium an hour late this morning as missed 2nd alarm, is this ok?

 

My main problem is the nausea and stomach cramps, it won't go and it's making me so agitated.

 

I had really bad DP yesterday evening. I forced myself on my 1st walk around the block in days at 8pm, my legs felt like they weighed 30 stone each, very weird feeling.

 

The head and ear pressure is still constant but bearable today.

 

I'll make a diary for this evening but was wondering why I'm so tired and should I try and sleep or force myself up? Does extra sleep mean extra healing?

 

Thoughts appreciated 

 

Hope you're well 

Amanda x

 

[Shep]

23 hours ago, Amanda167 said:

Haven't done anything all week up to 10pm. The zopiclone is the only med that helps.

 

Do you think I should bring my time down that I take the Paxil and quetiapine as it seems all my meds are taken close together in the evening.

 

No, please don't make any more changes right now. 

 

On 8/5/2019 at 5:15 AM, Amanda167 said:

If anything, the zoplicone used to help but doesn't seem to lesson the nausea like it used to.

 

A few days ago, you state that the zoplicone wasn't helping as much, but today, you say that the Zopiclone is helping. Do you feel that your symptoms are a bit better now when you dose Zopiclone? And is that just for the evening dose? 

 

[Amanda167]

26 minutes ago, Shep said:

few days ago, you state that the zoplicone wasn't helping as much, but today, you say that the Zopiclone is helping. Do you feel that your symptoms are a bit better now when you dose Zopiclone? And is that just for the evening dose? 

Hi Shep

 

I don't feel it's helping having the morning dose yet... Just constantly sick and agitated 

 

The evening dose still helps, I always feel much better after I take it 9 times out of 10. Hence it makes me stay up later as I can get a few bits done that I can't in the day. 

 

How long until the nausea goes.

Had it pretty sold for past 9 days apart from 1 day. I'm so agitated because I can't do barely a thing plus very dizzy and sensitive to noise.

 

Thanks, Amanda x

 

 

[Amanda167]

Morning Shep x

 

Diary for 9th Aug 2019

 

9am. .375 zoplicone 

10.30am. .040 valium ( late as overslept)

 

Got up at 11.30am. Usual nausea. Head tension was a little more bearable but still present.

 

12pm. Lunch 

 

1pm. Sat in garden learning music

3pm. Came out as very sick

 

5pm. Still nausea, not so low but still a bit down and agitated.

 

5.40pm. Dinner

Did some chores.

 

7pm. 4mg quetiapine.  10mg paxil 

 

9am. .50 valium

 

Went Sainsbury's and for a short walk.

 

10pm. 340mg zopiclone 

 

Did a few bits around the house.

 

12.30am bed.

 

Today has been better than past 3/4 days, not great, but definitely better. Fingers crossed. 

[Amanda167]

Hi anyone.

 

Hope you're well

 

Feeling very bad today

 

Just worked out that if I taper 1 med at a time at 10% PM that the quetiapine will take almost a year, the valium a year and a half and the zopiclone 2 years plus.

 

That's before I can even begin my Paxil taper.

 

The thought of waiting that long is terrifying and I'm still not stable.

 

Surely I can do it quicker. I dread thinking of another 10 years on these poisons 😭😭😭😭😭🙏

 

Because I've been on the others less time, wouldn't I be able to taper quicker? I know it's not even an option right now 😢

 

Please let me know your thoughts 

 

Amanda x

 

 

[Gridley]

1 hour ago, Amanda167 said:

Surely I can do it quicker. I dread thinking of another 10 years on these poisons 😭😭😭😭😭🙏

 

Because I've been on the others less time, wouldn't I be able to taper quicker?

 

I'm in a similar position.  It will take years and years for me to taper off my three drugs.  

 

Unfortunately, as has been shown time and time again on this website, attempts to speed up the process can end up with the taper taking even longer due to the necessity to updose/reinstate plus the time it takes to wait for stabilization after a too-fast taper.

 

The withdrawal time doesn't necessarily correlate with the time you were on the drug.  These drugs alter the architecture of the brain, and the time necessary to heal the brain and return to homeostasis is, unfortunately, impossible to predict. 

 

To give you a bit fuller picture, here is what Altostata, founder of the site, has written:

 

"Why decrease by such a small amount?

The risk of severe withdrawal is so great for some people, a very conservative approach to tapering to protect everyone is called for.

 

Do not assume you will be lucky, if your taper goes wrong, it can take a very long time for you to recover.

Many people seem to be able to taper off psychiatric medications in a couple of weeks or even cold-turkey with minor withdrawal symptoms perhaps for a month or so. Doctors therefore expect everyone can do this. However, it seems a minority, perhaps a large minority, suffer severe symptoms for much longer.

It is unknown how large or small this minority is. It could be 10%. It could be 25%. It could be 50%. You may very well be in it. You can't know how your nervous system will respond to a decrease in medication until you try it. If you've had withdrawal symptoms or adverse reactions before, you are likely to have them again. Be careful, because an injury to the nervous system is like any other injury -- it can take time to heal.

You won't know if you're in the unlucky minority until it's too late. It's a lot easier to taper slowly than to put your nervous system back together again after it's injured.

From reports of withdrawal syndrome all over the Web, those concerned about withdrawal syndrome have come to a consensus: Decreases of 25%, which are recommended by many doctors, are too large, with many people develop withdrawal syndrome. Thus, the recommendation of the more gradual 10% reduction.

But aren't withdrawal symptoms minor and transient?
Withdrawal symptoms represent neurological dysfunction. They are not normal and should not be ignored. Severe symptoms can be distressing, debilitating, or even disabling. If you get prolonged withdrawal syndrome, there is no known treatment or cure. You will have to cope with it until it goes away."

 

Edited August 10, 2019 by Gridley

[Amanda167]

Thanks Grindley

 

It's terrible that we're put on addition meds because of crashing. Been on the 1 med 22 years and now 4, so disheartening indeed

 

Big pharma know this, they like to get us all hooked on their poisons... just feeling deflated by it all and wish I never started the additional meds at least 😢

 

Wishing you success x

[ChessieCat]

It's understandable that you feel deflated by it.  However one way of looking at is that you are reducing the drug load, and will most probably start to feel "better" (less drugged) in yourself as you reduce your drugs, and you are doing it carefully.  It's a marathon, not a sprint.

[Amanda167]

16 hours ago, ChessieCat said:

It's understandable that you feel deflated by it.  However one way of looking at is that you are reducing the drug load, and will most probably start to feel "better" (less drugged) in yourself as you reduce your drugs, and you are doing it carefully.  It's a marathon, not a sprint.

 

I know.. but I'm on more now than the 22 years, that's what gets to me.

Going from 1 med to 4 and now having to get off those 1st 😢 x

 

 

[Shep]

On 8/9/2019 at 6:39 PM, Amanda167 said:

Today has been better than past 3/4 days, not great, but definitely better. Fingers crossed. 

 

This is a sign of stability.

 

Please continue with your drug and symptoms journal. It's important information. 

 

 

[Amanda167]

Hi Shep.

 

Not so good today. Very angry and frustrated 😢

 

Yesterday was slightly better.

 

I'll post my diary tonight.

 

Thanks xx

[Amanda167]

Mon 12th Aug diary.

 

Awoke to take meds only 

9am. .375 zoplicone 

9.30am. .40 valium

 

Got up 12.30pm. Bad stomach,  bloating,  nausea 5/10. Head temple weakness, heart weakness, feeling weird. 

1pm. Lunch

 

2pm. Went downstairs.  Very angry with being In  bed sick again so decided to get housework done regardless 

 

4.30pm. Sat down, 20 mins later, crying my eyes out for the sheer discomfort in my brain and neck and arm pain. Put on ice pack and went back to my room.

 

5.30pm. Dinner made by my Son 

 

7pm. 4mg quetiapine. 10mg Paxil 

 

7.30pm. Cleaned up again. Feeling low.

 

8.30pm. Took shower

 

9am. .60mg valium 

 

Walked dog.

 

10pm. 340mg zopiclone 

 

Done online shopping order. Head still bad. Praying for relief. It's actually scaring me.

 

X

[Altostrata]

Meant to post this up above

It could be your low mood is an adverse effect from Valium or your combination of drugs.

 

It sounds like something you're taking, or rebound from a drug, is upsetting your gut. What times of day is the queasiness worse, what times is it better? Do you vomit?

[Amanda167]

15 minutes ago, Altostrata said:

sounds like something you're taking, or rebound from a drug, is upsetting your gut. What times of day is the queasiness worse, what times is it better? Do you vomit?

Hi Alto

 

The upset gut and nausea is pretty much all day long, starts before I take the AM meds. I personally feel it's the valium but can't be certain of that. I never vomit, just feel sick and the head pressure is very severe.

I didn't get the stomach problems up until about 3 weeks ago, even though I was having lots of sxs, this one is new but heard it's common in benzo withdrawal x

[Amanda167]

Hi anyone out there 

 

I'm really struggling.

 

The sickness is sooo bad, it's been ages now and it's not letting up.

 

The head pressure,  tinnitus,  nausea, chest discomfort and really bad stomach cramps and diarreah daily... so bad, I can't do anything at all.

 

Please advise, is there ANYTHING I can do to stop this?? Even if it means increasing or decreasing something. I can't cope with it daily all day, just crying in pain and severe frustration. Surely it has to ease..  or could it be something else???

 

Getting desperate as this is extremely distressing for me.

Been practising acceptance, keep thinking tomorrow will be a better day and waking to the same.

 

Both the benzo and the quetiapine I have tapered fast but been holding for some while now. Could it be the Paxil even?? I just want it to stop. The head tension is so bad, I struggle to even talk.

 

Please let me know this is normal???? This is really bad and I've been struggling for 6 months now.

 

Thank you kindly for any input 

 

Amanda x

[Shep]

15 hours ago, Amanda167 said:

Awoke to take meds only 

9am. .375 zoplicone 

9.30am. .40 valium

 

How many hours are you sleeping?

 

How do you feel after you take Zopiclone? 

 

How do you feel after you take Valium? 

 

15 hours ago, Amanda167 said:

7pm. 4mg quetiapine. 10mg Paxil 

 

How do you feel before and after taking each of these drugs? 

 

1 hour ago, Amanda167 said:

Could it be the Paxil even??

 

 

After you stabilize enough to be able to handle a reduction, Paxil will likely be the first drug you'll want to taper. 

 

You are seeing improvements as you continue to hold. 

 

On 8/6/2019 at 8:13 AM, Amanda167 said:

My sleep is better lately apart from my dog waking me up.

 

On 8/6/2019 at 7:13 PM, Amanda167 said:

Nausea eased today in afternoon. (1st time in 3 days) x

 

On 8/9/2019 at 6:39 PM, Amanda167 said:

Today has been better than past 3/4 days, not great, but definitely better. Fingers crossed. 

 

On 8/12/2019 at 9:25 AM, Amanda167 said:

Yesterday was slightly better.

 

It's important to note these improvements because when you do feel worse, it's very hard to see outside of the storm. 

 

Please continue to hold and also, please include how you feel before and after each drug (is the nausea better, worse, the same? etc). This is very important information. 

[Amanda167]

35 minutes ago, Shep said:

How many hours are you sleeping?

 

Hi Shep

 

I'm sleeping much much better than ever. Barely awake during the night.

 

36 minutes ago, Shep said:

How do you feel after you take Zopiclone? 

 

How do you feel after you take Valium? 

 

Because I only awake to take these meds, I don't usually notice how I'm feeling prior, ive been so tired, I just try and rest.

 

Perhaps I should get up... pretty sure I awake with all these symptoms before the meds but I will try and make a conscious effect to see if the meds are contributing. 

 

Is it normal to feel sick ALL day??

 

It rarely leaves 😢

40 minutes ago, Shep said:

7pm. 4mg quetiapine. 10mg Paxil 

I usually don't get much relief, if any, it's usually after the zopiclone evening dose. 

 

42 minutes ago, Shep said:

After you stabilize enough to be able to handle a reduction, Paxil will likely be the first drug you'll want to taper. 

I think it would be better to lower my Paxil dose but really want rid of the other 3 first as these were the meds added to Paxil. I have a feeling the valium is causing the most distress.

 

I'm desperate to get off of these 1st as was never sick on Paxil prior to this 😢

 

If I'm having an adverse reaction, will I stabalise still? So fed up of being housebound, mainly bedridden in pain and frustration.

I have burning through my head, chest and throat and my jaw bone.

If I do to much, I get so dizzy and pay heavily the next day.

 

EG, if I do housework, like for 4 hours (a bit OCD) I seem to be in agony the next day. Is this usual? 

 

I miss exercise so bad. I miss life  so bad. Surely things must settle soon.

 

Thanks Shep... feeling hopeless and tearful x

[Amanda167]

PS, I had cortisol tests done, attached is my results x