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thelegend: hoping to get there


thelegend

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Hi T.L. 

 

Burning sensations are something I have almost every day for at least some part of the day.  They are uncomfortable, but I know they are from WD.  This is something I experienced right from the start of taking generic Zoloft.  If you are concerned you could get it checked out by your doctor, but when I mentioned these sensations to a previous doctor of mine,  he said he didn't know what the cause could be.  I now KNOW what the cause is, at least in my case. 

 

Best wishes on your withdrawal journey!

2007 - 2008          Paxil and Klonopin

2008 - 2012           Mirtazapine following abrupt withdrawal from Klonopin/Paxil.  

2012                       Unsuccessful taper of mirtazapine; reinstated.     

7/2013 - 1/2014   Successfully tapered from 7.5 mg

 

7/19/17 ALPRAZOLAM 0.25 mg. - current  

                SERTRALINE  - 25 mg

Began taper Aug 4, 2017 - 25 mg;  Jan 1, 2018 - 12.5 mg;  Jan 16, 2019 - 2.6 mg;  Jan 5, 2020 - 1.0 mg;  Jan 3, 2021 - 0.27 Current dose:   Apr 21 - 0.110 mg;

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Hello guys, sorry to butt in, I'm stealing this idea...........a JOY vision board sounds wonderful.  

Hi there This is an encouraging post.   Anxiety and insomnia are from everything I have learned from members on the site are the 'last to go' in many or most instances.  When I look at

Sorry to hear another bad day. If it’s still the anxiety causing the problems it’s that amygdala of yours still not happy with how things are and trying to get back to how it should be. Try to remembe

  • Mentor
On 9/5/2019 at 7:46 PM, thelegend said:

Anyone with any thoughts, why would this come back after being gone for over a month? Does it mean I am going backwards? Am I just spinning my wheels with this and I will never stabilize?

 

I’ve Found that symptoms do go and come back seemingly without any reason. I think a lot of people experience that. Don’t worry, it doesn’t mean you’re going backwards or even spinning your wheels.

 = medication taken now

 

2007 quetiapine to March 2019 200mg

2019 quetiapine March to present 225mg 

2007 citalopram to present 40mg 
2018 March Abilify 5mg  
2019 Abilify February rapid taper over 3 weeks from 5mg to off

2019 March Clonazepam as required, taken very occasionally, then taken 0.5mg for 2 days 28th and 29th March, now phased out

2019 1st April reinstated Abilify 0.5mg / day 

2018 to present Liquid B12 2g twice daily (diagnosed B12 deficiency) 
 

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  • Mentor
1 hour ago, thelegend said:

I have started getting hot or burning sensations in my feet, with being on Zyprexa should I be concerned about diabetes? Kind of freaking me out to be honest.

 

‘Don’t worry, this is a common withdrawal symptom.

 

warmest wishes

 

Rich

 = medication taken now

 

2007 quetiapine to March 2019 200mg

2019 quetiapine March to present 225mg 

2007 citalopram to present 40mg 
2018 March Abilify 5mg  
2019 Abilify February rapid taper over 3 weeks from 5mg to off

2019 March Clonazepam as required, taken very occasionally, then taken 0.5mg for 2 days 28th and 29th March, now phased out

2019 1st April reinstated Abilify 0.5mg / day 

2018 to present Liquid B12 2g twice daily (diagnosed B12 deficiency) 
 

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On 9/8/2019 at 2:48 PM, RichT said:

 

I’ve Found that symptoms do go and come back seemingly without any reason. I think a lot of people experience that. Don’t worry, it doesn’t mean you’re going backwards or even spinning your wheels.

 

Thanks Rich, good to know, did you ever find yourself stuck trying to stabilize?

April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs).

April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to...

June 2018 - Novemeber 2019: Lexapro 10mgs

August 2018 - Current: Zyprexa added for early morning extreme anxiety

November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly.

New Doctor reinstated:

May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa 

 

 

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On 9/8/2019 at 2:49 PM, RichT said:

 

‘Don’t worry, this is a common withdrawal symptom.

 

warmest wishes

 

Rich

 

Sounds good, I’ll try not to worry. Haven’t really had it today which I would think would point to WD rather than some kind of nerve damage from diabetes.

April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs).

April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to...

June 2018 - Novemeber 2019: Lexapro 10mgs

August 2018 - Current: Zyprexa added for early morning extreme anxiety

November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly.

New Doctor reinstated:

May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa 

 

 

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On 9/8/2019 at 1:50 PM, Terry said:

Hi T.L. 

 

Burning sensations are something I have almost every day for at least some part of the day.  They are uncomfortable, but I know they are from WD.  This is something I experienced right from the start of taking generic Zoloft.  If you are concerned you could get it checked out by your doctor, but when I mentioned these sensations to a previous doctor of mine,  he said he didn't know what the cause could be.  I now KNOW what the cause is, at least in my case. 

 

Best wishes on your withdrawal journey!

 

Did you find it went away or got better?

What are everyone’s thoughts on probiotics? My gut is really bad every morning and I can’t help but think that fixing some of this may help me.

April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs).

April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to...

June 2018 - Novemeber 2019: Lexapro 10mgs

August 2018 - Current: Zyprexa added for early morning extreme anxiety

November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly.

New Doctor reinstated:

May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa 

 

 

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  • Moderator Emeritus

There are many existing topics on this site.  You can either use the site search function or a search engine and add survivingantidepressants.org the search term:

 

burning-skin-burning-feet

 

NEW!!!     INTERVIEW with Altostrata, SA's founder    NEW!!! 

 

Plodding along inch by inch:  12" = 1',  3' =  36 " or 1 yard,  1760 yards  = 63,360" or 1 mile

Current from 17 Apr 2021:  Pristiq 0.2665mg  now holding each dose for 3 weeks

ADs since ~1992:  25+ years - 1 unknown, Prozac (muscle weakness), Zoloft; citalopram (pooped out) CTed (very sick for 2.5 wks a few months after); Pristiq:  50mg 2012, 100mg beg 2013 (Serotonin Toxicity)  Tapering Oct 2015 

My tapering program   My Intro (goes to my tapering graph)  My website

PLEASE NOTE:  I am not a medical professional.  I provide information and make suggestions.

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18 hours ago, thelegend said:

Did you find it went away or got better?

Mine is with me every day, especially in the early morning hours.  It isn't severe, but it seems to be connected to my anxiety.

 

18 hours ago, thelegend said:

What are everyone’s thoughts on probiotics? My gut is really bad every morning and I can’t help but think that fixing some of this may help me.

I have recently started taking a probiotic.  After hearing how there is a connection between gut and brain health I thought it might be helpful for both.  I too have daily intestinal issues and hope for some help with the probiotic.  I'm sure it will take some time to see any real results.

2007 - 2008          Paxil and Klonopin

2008 - 2012           Mirtazapine following abrupt withdrawal from Klonopin/Paxil.  

2012                       Unsuccessful taper of mirtazapine; reinstated.     

7/2013 - 1/2014   Successfully tapered from 7.5 mg

 

7/19/17 ALPRAZOLAM 0.25 mg. - current  

                SERTRALINE  - 25 mg

Began taper Aug 4, 2017 - 25 mg;  Jan 1, 2018 - 12.5 mg;  Jan 16, 2019 - 2.6 mg;  Jan 5, 2020 - 1.0 mg;  Jan 3, 2021 - 0.27 Current dose:   Apr 21 - 0.110 mg;

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3 minutes ago, Terry said:

Mine is with me every day, especially in the early morning hours.  It isn't severe, but it seems to be connected to my anxiety.

 

I have recently started taking a probiotic.  After hearing how there is a connection between gut and brain health I thought it might be helpful for both.  I too have daily intestinal issues and hope for some help with the probiotic.  I'm sure it will take some time to see any real results.

Nutrition is number one for gut health. I used a probiotic BC30 by schiffs, it is encased in a protein that allows it to survive the stomach acid as a majority of OTC probiotics do not and get destroyed in the stomach. There 100% is a link between the gut and brain. I know my nutrition changes are the only reason I am still off of Paxil. 

I follow The Plant Paradox lifestyle by Dr.Gundry. This lifestyle has given me my life back and I feel better than I have ever felt in my life. It has enabled me to finally get off of this medication and truly live my life. Nutrition is the key to health!!!!! 

2008 to 2019  - 20 mg Paroxetine

Attempted 2 CT's around the 5-6 year mark. Were absolutely terrible and reinstated. Was never explained by the doctor the seriousness of the short half life of this drug. 

2017 - Attempted a tapered discontinuation of this drug and reinstated after being unsuccessful.

2019 - Feb. 12 - After a three month taper I am off of paroxetine. The 3 months were terrible, awful withdrawal feelings. I followed the doctors guidelines for the reduction of this drug and now know it was way too fast. 
2019 - Oct. 12 - 8 months off paroxetine. 75% improvement since coming off the drug. Definitely have had tons of challenges along the way. Let’s go!!!! 

2021 - Feb. 12 - 24 months off paroxetine. I have minor challenges now. Tinnitus/Headaches are still around but are reduced by a massive amount. 

 

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1 hour ago, Terry said:

Mine is with me every day, especially in the early morning hours.  It isn't severe, but it seems to be connected to my anxiety.

 

I have recently started taking a probiotic.  After hearing how there is a connection between gut and brain health I thought it might be helpful for both.  I too have daily intestinal issues and hope for some help with the probiotic.  I'm sure it will take some time to see any real results.

 

 

Where are you at in your journey? Stable, I have been in the “trying to get stable” phase for over a year now and am very very tired of it. 4 months and change into a hold of everything and still struggling. Usually get windows in the evening , but not 3 out of the last 4. This makes it really hard to get through the day, not knowing if it will ever get better.

1 hour ago, Cocopuffz17 said:

Nutrition is number one for gut health. I used a probiotic BC30 by schiffs, it is encased in a protein that allows it to survive the stomach acid as a majority of OTC probiotics do not and get destroyed in the stomach. There 100% is a link between the gut and brain. I know my nutrition changes are the only reason I am still off of Paxil. 

 

Good to know, thanks for the info!

April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs).

April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to...

June 2018 - Novemeber 2019: Lexapro 10mgs

August 2018 - Current: Zyprexa added for early morning extreme anxiety

November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly.

New Doctor reinstated:

May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa 

 

 

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1 hour ago, thelegend said:

 

Good to know, thanks for the info!

 

Not a problem! All the best to you! :)

I follow The Plant Paradox lifestyle by Dr.Gundry. This lifestyle has given me my life back and I feel better than I have ever felt in my life. It has enabled me to finally get off of this medication and truly live my life. Nutrition is the key to health!!!!! 

2008 to 2019  - 20 mg Paroxetine

Attempted 2 CT's around the 5-6 year mark. Were absolutely terrible and reinstated. Was never explained by the doctor the seriousness of the short half life of this drug. 

2017 - Attempted a tapered discontinuation of this drug and reinstated after being unsuccessful.

2019 - Feb. 12 - After a three month taper I am off of paroxetine. The 3 months were terrible, awful withdrawal feelings. I followed the doctors guidelines for the reduction of this drug and now know it was way too fast. 
2019 - Oct. 12 - 8 months off paroxetine. 75% improvement since coming off the drug. Definitely have had tons of challenges along the way. Let’s go!!!! 

2021 - Feb. 12 - 24 months off paroxetine. I have minor challenges now. Tinnitus/Headaches are still around but are reduced by a massive amount. 

 

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Not sure what to do guys, the last 3 weeks I feel like I am just getting worse and worse. 4 months into a hold, shouldn’t I be seeing some positive stuff happening. Honestly feel as bad as when I 1st reinstated too high an amount in May. I would have said I was slowly getting better, but the last 3 weeks everything has turned on me and it just keeps getting worse!

April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs).

April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to...

June 2018 - Novemeber 2019: Lexapro 10mgs

August 2018 - Current: Zyprexa added for early morning extreme anxiety

November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly.

New Doctor reinstated:

May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa 

 

 

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It has to get better at some point, right? Almost 2 years of this now and have never been stable the entire time. I just keep telling myself it can’t last forever and has to get better at some point.

April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs).

April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to...

June 2018 - Novemeber 2019: Lexapro 10mgs

August 2018 - Current: Zyprexa added for early morning extreme anxiety

November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly.

New Doctor reinstated:

May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa 

 

 

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  • Moderator Emeritus
1 hour ago, thelegend said:

just keep telling myself it can’t last forever and has to get better at some point.

Yes.

 

You are experiencing a wave. Please read this link:

https://www.survivingantidepressants.org/topic/82-the-windows-and-waves-pattern-of-stabilization/

 

2016 - Zoloft 50 mg for klonopin w/d

Approx. Nov 2017 - successful taper of klonopin; Approx. Jan. 2018 - rapid taper Zoloft over 2 wks - no w/d symptoms; May 2018 - Reinstate 50 mg Zoloft per doctor; Aug 2018 - Rapid taper Zoloft over 3-4 weeks - no w/d symptoms for 1 mo.; Late Oct 2018 - pdoc rx'd 5mg lexapro -took for 1 wk; Early Nov 2018 - Reinstate 25 mg Zoloft; updose to 37.5 on Nov 28, 2018; Nov 30 2018 - returned to 25mg Zoloft upon mod. advice; Dec 9 - Dec10 2018 - 12.5mg zoloft liquid+12.5mg zoloft pill; Dec 11 2018 - 25mg zoloft all liquid; Feb 14 2019 - updosed to 26.25 mg liquid; Mar 6 2019 - updosed to 26.88 mg liquid - new symptoms; Mar 13 2019 - back down to 26.25 mg per mod suggestion

Dose Changes: Dec 2 2019 - 5% to 25mg; Jan 14 2020 - 10% to 22.5 (increase in sxs all month); Mar 10-15? 2020,  accidental updose to 25mg; Mar 22 2020 - back down to 22.5mg; Apr 12 2020 - 2.5% to 21.94mg; Apr 19 2020 - 2.5% to 21.375mg (symptom increase); May 17 2020 - 2.5% to 20.625mg; May 24 2020 - 2.5% to 20.1mg - Jun 14 2020 - noticed uptick in symptoms settled 2 days later - July 10 2020 - onset of wave

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1 hour ago, Dejavu said:

Yes.

 

You are experiencing a wave. Please read this link:

https://www.survivingantidepressants.org/topic/82-the-windows-and-waves-pattern-of-stabilization/

 

 

Thanks, so you think it is just a wave and not something going wrong with my hold? Two most distressing things are 1st it started to not get better at night like it used to. As bad as the day was, I knew at some point it would get better, that hasn’t been the case the last few days. Also my arms feel “burning” in the morning. A symptom I had in May and June after my reinstatement, but went away for the most part in July, August and start of September. Has come back for the last week, was the one thing I could point to that showed definite improvement.

April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs).

April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to...

June 2018 - Novemeber 2019: Lexapro 10mgs

August 2018 - Current: Zyprexa added for early morning extreme anxiety

November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly.

New Doctor reinstated:

May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa 

 

 

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Things are still really tough! Not sure if it is a wave or if I just continue to spiral down and down. So crazy, when I was on vacation a month ago I thought stabilization was just around the corner and a matter of time. That seems like another time and place, and things just keep getting worse. I don’t know what to do!

April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs).

April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to...

June 2018 - Novemeber 2019: Lexapro 10mgs

August 2018 - Current: Zyprexa added for early morning extreme anxiety

November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly.

New Doctor reinstated:

May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa 

 

 

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  • Moderator Emeritus

I will answer your PM here in your thread.

 

Again, 4.5 months is not a long time in the world of withdrawal. You are experiencing windows and waves, which is to be expected while you await stabilization. You are letting your anxiety get the better of you. Please read

 

https://www.survivingantidepressants.org/topic/17909-are-we-there-yet-how-long-is-withdrawal-going-to-take/

 

And

 

We strongly encourage members to learn and use non drug coping techniques to help get through tough times.

 

Understanding what is happening helps us to not get caught up with the second fear, or fear of the fear.  This happens when we experience sensations in our body and because we don't understand them we are scared of them and then start to panic.

 

This document has a diagram of the body explaining what happens in the body when we become anxious:

 

https://www.getselfhelp.co.uk/docs/AnxietySelfHelp.pdf

 

 

Audio FEMALE VOICE:  First Aid for Panic (4 minutes)

 

Audio MALE VOICE:  First Aid for Panic (4 minutes)

 

Non-drug techniques to cope

 

dealing-with-emotional-spirals

 

Dr Claire Weekes suffered from anxiety and learned and taught ways of coping.  There are videos available on YouTube.

 

Claire Weekes' Method of Recovering from a Sensitized Nervous System

 

Audio:  How to Recover from Anxiety - Dr Claire Weekes

 

 
Resources:  Centre for Clinical Interventions (PDF modules that you can work through, eg:  Depression, Distress Intolerance, Health Anxiety, Low Self-Esteem, Panic Attacks, Perfectionism, Procrastination, Social Anxiety, Worrying)
 
  On 4/27/2017 at 1:03 PM, brassmonkey said:

 

AAF: Acknowledge, Accept, Float.  It's what you have to do when nothing else works, and can be a very powerful tool in coping with anxiety.  The neuroemotional anxiety many of us feel during WD is directly caused by the drugs and their chemical reactions in the brain.  Making it so there is nothing we can do about them.  They won't respond to other drugs, relaxation techniques and the like.  They do, however, react very well to being ignored.  That's the concept behind AAF.  Acknowledge, get to know the feeling involved, explore them.  Accept, These feelings are a part of you and they aren't going anywhere fast. Float, let the feeling float off as you get on with your life as best as you can.  It's a well documented fact that the more you feed in to anxiety the worse it gets.  What starts as generalized neuroemotinal anxiety can be easily blown into a full fledged panic attack just by thinking about it.

 

I often liken it to an unwanted house guest.  At first you talk to them, have conversations, communicate with them.  After a while you figure out that they aren't leaving and there is nothing you can do to get rid of them.  So you go on about your day, working around them until they get bored and leave.

 

It can take some practice, but AAF really does work.  I hope you give it a try.

2016 - Zoloft 50 mg for klonopin w/d

Approx. Nov 2017 - successful taper of klonopin; Approx. Jan. 2018 - rapid taper Zoloft over 2 wks - no w/d symptoms; May 2018 - Reinstate 50 mg Zoloft per doctor; Aug 2018 - Rapid taper Zoloft over 3-4 weeks - no w/d symptoms for 1 mo.; Late Oct 2018 - pdoc rx'd 5mg lexapro -took for 1 wk; Early Nov 2018 - Reinstate 25 mg Zoloft; updose to 37.5 on Nov 28, 2018; Nov 30 2018 - returned to 25mg Zoloft upon mod. advice; Dec 9 - Dec10 2018 - 12.5mg zoloft liquid+12.5mg zoloft pill; Dec 11 2018 - 25mg zoloft all liquid; Feb 14 2019 - updosed to 26.25 mg liquid; Mar 6 2019 - updosed to 26.88 mg liquid - new symptoms; Mar 13 2019 - back down to 26.25 mg per mod suggestion

Dose Changes: Dec 2 2019 - 5% to 25mg; Jan 14 2020 - 10% to 22.5 (increase in sxs all month); Mar 10-15? 2020,  accidental updose to 25mg; Mar 22 2020 - back down to 22.5mg; Apr 12 2020 - 2.5% to 21.94mg; Apr 19 2020 - 2.5% to 21.375mg (symptom increase); May 17 2020 - 2.5% to 20.625mg; May 24 2020 - 2.5% to 20.1mg - Jun 14 2020 - noticed uptick in symptoms settled 2 days later - July 10 2020 - onset of wave

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I had to go to the dentist today to get some fillings. I have read some people respond poorly to the numbing shot. How long does it take for this adverse effect to happen if it does? How long does it last?

April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs).

April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to...

June 2018 - Novemeber 2019: Lexapro 10mgs

August 2018 - Current: Zyprexa added for early morning extreme anxiety

November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly.

New Doctor reinstated:

May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa 

 

 

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  • Moderator Emeritus

How are you doing TL? Any uptick in symptoms from the dental work?

2016 - Zoloft 50 mg for klonopin w/d

Approx. Nov 2017 - successful taper of klonopin; Approx. Jan. 2018 - rapid taper Zoloft over 2 wks - no w/d symptoms; May 2018 - Reinstate 50 mg Zoloft per doctor; Aug 2018 - Rapid taper Zoloft over 3-4 weeks - no w/d symptoms for 1 mo.; Late Oct 2018 - pdoc rx'd 5mg lexapro -took for 1 wk; Early Nov 2018 - Reinstate 25 mg Zoloft; updose to 37.5 on Nov 28, 2018; Nov 30 2018 - returned to 25mg Zoloft upon mod. advice; Dec 9 - Dec10 2018 - 12.5mg zoloft liquid+12.5mg zoloft pill; Dec 11 2018 - 25mg zoloft all liquid; Feb 14 2019 - updosed to 26.25 mg liquid; Mar 6 2019 - updosed to 26.88 mg liquid - new symptoms; Mar 13 2019 - back down to 26.25 mg per mod suggestion

Dose Changes: Dec 2 2019 - 5% to 25mg; Jan 14 2020 - 10% to 22.5 (increase in sxs all month); Mar 10-15? 2020,  accidental updose to 25mg; Mar 22 2020 - back down to 22.5mg; Apr 12 2020 - 2.5% to 21.94mg; Apr 19 2020 - 2.5% to 21.375mg (symptom increase); May 17 2020 - 2.5% to 20.625mg; May 24 2020 - 2.5% to 20.1mg - Jun 14 2020 - noticed uptick in symptoms settled 2 days later - July 10 2020 - onset of wave

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On 9/18/2019 at 11:48 PM, Dejavu said:

How are you doing TL? Any uptick in symptoms from the dental work?

 

Thanks so much for checking on me! I don’t think so, Tuesday and Thursday were manageable days this week (I would t call them windows). Today has been a really tough slog from 1st thing this morning with anxiety, akathisia, IBS, and burning arms (a symptom that was gone for a month or so, but is now off and on). Now 4M and hasn’t been much of a let up. I think I am seeing more manageable times, but the bad times are still bad as ever unfortunately. 

April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs).

April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to...

June 2018 - Novemeber 2019: Lexapro 10mgs

August 2018 - Current: Zyprexa added for early morning extreme anxiety

November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly.

New Doctor reinstated:

May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa 

 

 

Link to post

Hi, thelegend,

 

I'm sorry to see you have been caught up in this disaster, too.  I can't read well enough right now to understand your medication, but you are on 50 mg of Zoloft trying to stabilize from a CT of 5 mg of Lexapro in February of 2019?  And you started the Zoloft in May?  

 

I'm glad to see you are getting some easier days.  You will stabilize eventually.  The key is to avoid as many changes as you can.  For some people certain changes are unavoidable, but you seem to be doing all right overall and getting some easier days.  be very, very strict about taking your medication every day at the same time.  That is extremely important.  I had no idea that was so important, and my failure to do that is what brought me here.  All the problems that I had from missing doses caused the doctor to keep increasing the dose.  Never, ever was there any discussion about the consistent dosing.  With cigarettes people get cravings.  Not so with these drugs.  The effect of withdrawal is not immediate for most people or at least they have no idea that what they are experiencing are symptoms of withdrawal.  Every time a dose is missed withdrawal gets worse.  Stabilization comes from recognizing that your body is dependent on that dose when it is needed every, single day.  The misery we would have been able to avoid if doctors took these drugs seriously as addictive substances that require very, very strict adherence to a schedule.  For one thing they would not be prescribed, but for those who are all ready suffering withdrawal an acceptance that there is a severe dependence and it just be respected would go a long way to letting people get their lives back.  "No more CTs" would be on my sign if I were to march in a protest!!

 

You are going to make it through this.  Hang in there!

 

Rosetta

 

Rosetta

 

 

https://www.survivingantidepressants.org/topic/16629-rosetta-ct-may-2011-too-fast-taper-feb-2017/?page=25

2001-2011 Celexa 10 mg raised to 40 mg then 60 mg over this time period

May 2011 OB Doctor's Cold switch Celexa 60 mg to 10 mg Zoloft sertraline (baby born)

2012-2016 - Doctors raised dose of Zoloft up to 150 mg

2016 - Xanax prescribed - as needed - 0.5 mg about every 3 days (bad reaction)

2016 - Stopped Xanax

Late 2016- Began (too fast) taper of Zoloft

Early 2017 - Trazodone prescribed for bedtime (doseage unknown)

Feb 2017 - Completed taper/stopped Trazodone

Drug free since Feb 2017

2017 - Unisom otc very rarely for sleep

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Thanks @Rosetta for you post and kind words. I hope your right and that I will be able to stabilize. Last couple of days have been really tough. 

April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs).

April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to...

June 2018 - Novemeber 2019: Lexapro 10mgs

August 2018 - Current: Zyprexa added for early morning extreme anxiety

November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly.

New Doctor reinstated:

May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa 

 

 

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I am really interested in this @brassmonkey slide I have been reading about as when I am ready to taper I think as gradual as possible is the way to go. Seems every time I have made any kind of change in this ordeal, I have gotten much worse, so I am for sure a little scared to taper and this slide seems like the way to go. Anyone with any info on this and what differences you can expect to feel using this method as opposed to the standard 10% rule?

April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs).

April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to...

June 2018 - Novemeber 2019: Lexapro 10mgs

August 2018 - Current: Zyprexa added for early morning extreme anxiety

November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly.

New Doctor reinstated:

May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa 

 

 

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  • Moderator

I highly recommend it. We have a good number of members including several of the moderators doing some version of it with great success.  It's entire purpose is to reduce the symptom load while maintaining a fairly rapid taper.  In it's original version a person would reduce by 2.5% a week for four weeks and then hold an additional two weeks.  This gives a total reduction of 10% every six weeks.  A bit longer than the recommended 10% every four weeks that we recommend as a baseline taper.  The thing is the baseline taper can be to harsh for many people and they end up going a lot slower.  If you do a 10% drop then there will be a big surge of symptoms a few days later that will take several weeks to resolve and settle back to your normal state.  With the Brassmonkey slide those symptoms are spread out over four weeks so they don't hit nearly as hard.  Then two additional weeks are used to help let things settle out before doing it all again.

 

Almost every one who has tried doing the slide method has reported a greatly reduced symptom load.  There have been a few for which the 2.5% a week was too much and they have opted for a lesser amount generally 1.25% and in some cases less.  Once the proper dosing was worked out things seem to be going smoothly.  The thing to remember is that every time you cut the dose in half you double the length of time it takes to complete the taper.  That length of time is something that shocks most people, as it can seem like it's very long.  The half life of an original Brassmonkey Slide is nine months. So if you are starting at 50mgai in nine months you will be at 25mgai and in a year and a half at 12.5mgai.  I tapered from 40mgai and it took me five and a half years to get to "0".  Starting at 50mgai you'd be looking at about the same time frame.

 

This isn't to say that you are looking at five plus years of acute symptoms.  Far from it.  As the drug load decreases and the body heals the symptom load decreases also.  There are usually some bumps along the way that can be seen as very frustrating, but they do resolve and often leave a person feeling better than before they hit.  For me the first several years of my taper were pretty tough as I was in severe poopout.  Once that resolved there was steady improvement month after month.  By the time I was ready to make the jump to "0" I was relatively symptom free.

 

Hopefully some more of our members will weigh in as I know there are some good stories out there.

 

 

20 years on Paxil starting at 20mg and working up to 40mg. Sept 2011 started 10% every 6 weeks taper (2.5% every week for 4 weeks then hold for 2 additional weeks), currently at 7.9mg. Oct 2011 CTed 15oz vodka a night, to only drinking 2 beers most nights, totally sober Feb 2013.

Since I wrote this I have continued to decrease my dose by 10% every 6 weeks (2.5% every week for 4 weeks and then hold for an additional 2 weeks). I added in an extra 6 week hold when I hit 10mg to let things settle out even more. When I hit 3mgpw it became hard to split the drop into 4 parts so I switched to dropping 1mgpw (pill weight) every week for 3 weeks and then holding for another 3 weeks.  The 3 + 3 schedule turned out to be too harsh so I cut back to dropping 1mgpw every 4 weeks which is working better.

Current dose 0.000mg 04-15-2017

 

"It's also important not to become angry, no matter how difficult life is, because you can loose all hope if you can't laugh at yourself and at life in general."  Stephen Hawking

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Thanks @brassmonkey, does it confuse things that I am on two meds? I think the slide seems like the right approach to me. Should I be concerned that I am almost 5 months from reinstatement and nowhere near stable? Is it common for it to take this long?

April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs).

April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to...

June 2018 - Novemeber 2019: Lexapro 10mgs

August 2018 - Current: Zyprexa added for early morning extreme anxiety

November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly.

New Doctor reinstated:

May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa 

 

 

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  • Moderator

As long as you taper only one medication at a time there should not be a problem.

 

Reinstatement is such a tricky and personal thing it's hard to put a schedule on it.  In general five months is not uncommon for reinstatement to take effect.  I would not get discouraged if it took several more months to settle down.

20 years on Paxil starting at 20mg and working up to 40mg. Sept 2011 started 10% every 6 weeks taper (2.5% every week for 4 weeks then hold for 2 additional weeks), currently at 7.9mg. Oct 2011 CTed 15oz vodka a night, to only drinking 2 beers most nights, totally sober Feb 2013.

Since I wrote this I have continued to decrease my dose by 10% every 6 weeks (2.5% every week for 4 weeks and then hold for an additional 2 weeks). I added in an extra 6 week hold when I hit 10mg to let things settle out even more. When I hit 3mgpw it became hard to split the drop into 4 parts so I switched to dropping 1mgpw (pill weight) every week for 3 weeks and then holding for another 3 weeks.  The 3 + 3 schedule turned out to be too harsh so I cut back to dropping 1mgpw every 4 weeks which is working better.

Current dose 0.000mg 04-15-2017

 

"It's also important not to become angry, no matter how difficult life is, because you can loose all hope if you can't laugh at yourself and at life in general."  Stephen Hawking

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52 minutes ago, brassmonkey said:

As long as you taper only one medication at a time there should not be a problem.

 

Reinstatement is such a tricky and personal thing it's hard to put a schedule on it.  In general five months is not uncommon for reinstatement to take effect.  I would not get discouraged if it took several more months to settle down.

 

Sounds good, I will try not to get discouraged by the timeline. What do you make of the fact that I get so much better on vacation? Is that common or something you have seen before?

April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs).

April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to...

June 2018 - Novemeber 2019: Lexapro 10mgs

August 2018 - Current: Zyprexa added for early morning extreme anxiety

November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly.

New Doctor reinstated:

May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa 

 

 

Link to post
5 minutes ago, thelegend said:

 

Sounds good, I will try not to get discouraged by the timeline. What do you make of the fact that I get so much better on vacation? Is that common or something you have seen before?

I’m curious if your sun exposure is way higher on vacation? Vitamin D IMO is huge. 

I follow The Plant Paradox lifestyle by Dr.Gundry. This lifestyle has given me my life back and I feel better than I have ever felt in my life. It has enabled me to finally get off of this medication and truly live my life. Nutrition is the key to health!!!!! 

2008 to 2019  - 20 mg Paroxetine

Attempted 2 CT's around the 5-6 year mark. Were absolutely terrible and reinstated. Was never explained by the doctor the seriousness of the short half life of this drug. 

2017 - Attempted a tapered discontinuation of this drug and reinstated after being unsuccessful.

2019 - Feb. 12 - After a three month taper I am off of paroxetine. The 3 months were terrible, awful withdrawal feelings. I followed the doctors guidelines for the reduction of this drug and now know it was way too fast. 
2019 - Oct. 12 - 8 months off paroxetine. 75% improvement since coming off the drug. Definitely have had tons of challenges along the way. Let’s go!!!! 

2021 - Feb. 12 - 24 months off paroxetine. I have minor challenges now. Tinnitus/Headaches are still around but are reduced by a massive amount. 

 

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@Cocopuffz17 - no real difference in sun exposure. They were mountain vacations, not beach vacations.

April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs).

April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to...

June 2018 - Novemeber 2019: Lexapro 10mgs

August 2018 - Current: Zyprexa added for early morning extreme anxiety

November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly.

New Doctor reinstated:

May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa 

 

 

Link to post
7 minutes ago, thelegend said:

@Cocopuffz17 - no real difference in sun exposure. They were mountain vacations, not beach vacations.

Interesting, higher altitudes give you more exposure to the sun. The closer you are the more vitamin d you produce in the same exposure time. I’d be very curious on that. Also a reduction in stress could also be why. 

I follow The Plant Paradox lifestyle by Dr.Gundry. This lifestyle has given me my life back and I feel better than I have ever felt in my life. It has enabled me to finally get off of this medication and truly live my life. Nutrition is the key to health!!!!! 

2008 to 2019  - 20 mg Paroxetine

Attempted 2 CT's around the 5-6 year mark. Were absolutely terrible and reinstated. Was never explained by the doctor the seriousness of the short half life of this drug. 

2017 - Attempted a tapered discontinuation of this drug and reinstated after being unsuccessful.

2019 - Feb. 12 - After a three month taper I am off of paroxetine. The 3 months were terrible, awful withdrawal feelings. I followed the doctors guidelines for the reduction of this drug and now know it was way too fast. 
2019 - Oct. 12 - 8 months off paroxetine. 75% improvement since coming off the drug. Definitely have had tons of challenges along the way. Let’s go!!!! 

2021 - Feb. 12 - 24 months off paroxetine. I have minor challenges now. Tinnitus/Headaches are still around but are reduced by a massive amount. 

 

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  • Moderator

It's something that several of our members have mentioned.  I think it has more to do with a break in routine and a change of scenery than anything else. Sort of the ultimate distraction.  There are some aspects of sub conscience self hypnosis that are involved.  Let's say you've been having heavy anxiety in the afternoons and evenings for several weeks and have sort of resigned yourself to it happening.  But today you've felt good all day and are all set to watch your favorite tv show. Just before the show starts you happen to glance at the clock beside the tv set. The glance is so quick you don't even remember it happening.  It's 8 pm, the middle of the evening.  Your sub conscience mind goes, "Oh no, I've been feeling great all day, but now its evening and I always feel bad in the evening".  So much for enjoying your tv show because with in a few minutes the anxiety hits like a ton of bricks.  These sorts of triggers are all around us and can play a big part in recurring and on going symptom patterns.  Go on vacation and you remove those triggers, come home again and there they are, just waiting for you. The same thing happens with day to day stress patterns caused by work, commuting, neighbors dogs barking and the like.  it's no wonder going on vacation is referred to as "getting away from it all".

20 years on Paxil starting at 20mg and working up to 40mg. Sept 2011 started 10% every 6 weeks taper (2.5% every week for 4 weeks then hold for 2 additional weeks), currently at 7.9mg. Oct 2011 CTed 15oz vodka a night, to only drinking 2 beers most nights, totally sober Feb 2013.

Since I wrote this I have continued to decrease my dose by 10% every 6 weeks (2.5% every week for 4 weeks and then hold for an additional 2 weeks). I added in an extra 6 week hold when I hit 10mg to let things settle out even more. When I hit 3mgpw it became hard to split the drop into 4 parts so I switched to dropping 1mgpw (pill weight) every week for 3 weeks and then holding for another 3 weeks.  The 3 + 3 schedule turned out to be too harsh so I cut back to dropping 1mgpw every 4 weeks which is working better.

Current dose 0.000mg 04-15-2017

 

"It's also important not to become angry, no matter how difficult life is, because you can loose all hope if you can't laugh at yourself and at life in general."  Stephen Hawking

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  • 2 weeks later...

Been a while since I posted. I thought I was doing a bit better though it was very up and down, but the last couple of days feel right back to the beginning of my reinstatement. Seems some things have gotten better: burning eyes and arms, IBS, but man the anxiety the last few days has been unrelenting. 5 months now into my hold, hoping for some lasting improvements.

April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs).

April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to...

June 2018 - Novemeber 2019: Lexapro 10mgs

August 2018 - Current: Zyprexa added for early morning extreme anxiety

November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly.

New Doctor reinstated:

May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa 

 

 

Link to post

Hi Legend,

 

Sorry to hear you are having some bad days. It does sound like you had some good days in there prior to this.  I would consider this an improvement since when you started you had nothing but bad days. Anxiety does indeed stink. 

 

Are you avoiding all caffeine including energy drinks? What about life stress, are you able to keep that to a minimum while you are going through this? I know it 's hard when one has a family but whatever you can do for yourself would be a good thing. Other than than I don't have a lot to suggest.

 

I know you are having a hard time of it but it does appear to me that you are improving.  Frustrating, I know. I hope you get another window again soon.

 

Warm wishes.

 

 

Find my story here:  http://survivingantidepressants.org/index.php?/topic/12649-rachelsusan-my-zoloft-story-on-off-reinstated-in-trouble/?hl=rachelsusan

HISTORY

Feb. 2016 to June 2016  - Was on 100mg to 150mg Zoloft. 

Quit Zoloft (Sertraline) June  2016,  reinstated 50mg of Zoloft July 2016.  From July 2016  to October 2016 went from 50 mg down 2.3 mg. I up-dosed in November 2016 to 12.5 mg. Held there until January 2017 when I started a much slower taper.

STARTING SENSIBLE  ZOLOFT TAPERING USING GUIDELINES FROM THIS SITE

Dec. 10 2016  - switched to Liquid Zoloft (Sertraline) @ 12.5 mg.   Jan. 4, 2020 1.875 mg (6.3%). Jan. 25, 2020 1.75 mgFeb. 29, 2020 1.625mg (7.10%).  Apr. 4, 2020 1.5 mg. May 9, 2020 1.375 mg. June 6, 2020 1.25 mg. (9.10%). July 4, 2020 1.125 mg. (10%).  August 15, 2020 1.0 mg.  Oct 24, 2020 .875 mg.  Nov. 28, 2020 .75mgJan 16, 2021 .685mg (8.7%).  Feb 13, 2021 .62mg. March 12, 2021 .56mg.

OTHER MEDICATION Gabapentin 900mg a day since July 2016, Prednisone 5mg a day and Qvar Inhalant since 2016. Vitamin D and fish oil.

   

 

 

 

 

 

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Legend. It sounds like you were doing better which is awesome. I’m sure this is just a little step back and you’ll be back better than ever very soon. Pretty sure windows and waves in reinstatement is completely normal and you’re probably just in a wave right before a big window! Hang in there!

Lexapro: 5/19: 10mg 5 weeks (adverse reaction)

6/19: 5mg 2 weeks (bad withdrawals);

7/19: 2.5 mg 2 weeks (bad withdrawals)

7/12/19 0mg Lexapro (hell)

Celexa RI:  8/14/19: 0.5mg (adverse reaction)

8/15/19: skipped

8/16/19:  0.25mg

8/17/19:  0.25mg

Lexapro RI:  9/14/19 - 10/12/19: 0.125mg-0.03mg (adverse reaction)

Ativan8/19/19- 9/10/19: took 0.5mg every 3-5 days to help with Lexapro WD.

9/10/19 - current: 0.5mg

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19 hours ago, RachelSusan said:

Hi Legend,

 

Sorry to hear you are having some bad days. It does sound like you had some good days in there prior to this.  I would consider this an improvement since when you started you had nothing but bad days. Anxiety does indeed stink. 

 

Are you avoiding all caffeine including energy drinks? What about life stress, are you able to keep that to a minimum while you are going through this? I know it 's hard when one has a family but whatever you can do for yourself would be a good thing. Other than than I don't have a lot to suggest.

 

I know you are having a hard time of it but it does appear to me that you are improving.  Frustrating, I know. I hope you get another window again soon.

 

Warm wishes.

 

 

 

 

Thanks Rachel, yes avoiding caffeine other than an occasional Diet Mt Dew! Maybe it is getting better, when I have a day as bad as yesterday it feels I am stuck and will never get better. I do think I am maybe getting more good times, but the bad times feel as bad as ever. I have dropped some of those physical symptoms so hopefully that is a good sign. I just wish I knew it would for sure get better after all this time.

April 2010 - January 2018: Zoloft 50-100 mgs (would go back and forth between these doses, mostly at 50mgs).

April - May 2018: Attempted to restart Zoloft for 6 weeks, made things worse so switched to...

June 2018 - Novemeber 2019: Lexapro 10mgs

August 2018 - Current: Zyprexa added for early morning extreme anxiety

November 2018 - February 2019: Lexapro 5mgs, then off since doctor said it “wasn’t working if still having anxiety.” Looking back I was probably stabilizing very slowly.

New Doctor reinstated:

May 1st, 2019 - Current - Zoloft 50mgs, 2.5mg Zyprexa 

 

 

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Hello T.L.

 

Welcome, hello and hope you and your family are enjoyiing the new puppy and he/she you. :)  

 

I'm sorry about the persistent waves (and glad you have windows which there are a few more of now?).  The many symptoms and patterns you have described are much like mine. I'm just a civilian here - but after a huge drop in my dose in December - following a reinstatement after a CT - I went through months of anxiety, panic, jitteriness, just hell. I had 1-2 months where I had a lot of good days. :) Then - I was hit with 2 nasty weeks. I thought I had fallen off the trolley. Recovered. 2.5 months they come back to roost for 10 days off and on. Seems to be a pattern that I see with other folks. Symptoms range the gamut - pins and needles, brain zaps, incapacitating dizziness and blurry vision, trouble typing, etc.

 

Well - could go on. I've seen a gradual improvement - since the major drop off in dosage in December.  It takes a while to stabilize - I held for 2.5 months before having the courage to make a little cut.

 

Stress - whether a social outing or other - is a trigger for a wave even if brief. Otherwise, waves can come and go as they please.

 

Well - just a quick hello. Ping me any time. Yes - we're all survivors here. And we're going to free ourselves from these damn drugs. Even it takes longer than we'd like - we'll eventually get there. :) 

 

G.

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