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Ocular migraine


Edmunds
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I’m withdrawing from both Effexor / venlafaxine and Wellbutrin / bupropion for 4.5 and 2.5 months respectively. I’ve had occasional ocular migraines for decades. Wedge-shaped visual disturbance that starts in center of my vision, then gets bigger as it moves off to the side and disappears in about 20 minutes. Sometimes a very minor headache follows but no pain otherwise. I’ve noticed that since the several withdrawal symptoms started, I’ve been having ocular migraines more frequently, though not every day. Doctors have always told me not to worry about them. But might the greater frequency be a known symptom pattern in withdrawal?

Fluoxetine 1997-2014, 2015, 10-40 mg. GAD and DR symptoms returned  April 2013.

Bupropion 2013-14, 4 mos; Lexapro 2014; Cymbalta 2014. Gabapentin 2014; Mirtazapene 2014. Buspirone 2015.

Venlafaxine Dec. 2015 – May 2019, 150 mg, tapered to 0 in 3 weeks, May-June 2019

Bupropion Mar 2017 – July 2019 300 mg, tapered to 0 in 3 weeks, July 2019

Fluoxetine/Prozac May 2019 – present, tapered from 20 mg started Jan 2020, linear 10% every 4 wks.; tapered 6 to 4 mg June, 2, 2020; 4 to 1.8 mg Aug. 26, 2020; updose from 1.8 mg to 2.0 Nov. 16, 2020. Holding at 2.0 mg as of Mar 14,2021. April 14, 2021 updosed to 2.5 mg.

D3 2,000 mg; Omega 3 360 EPA/240 DHA; Magnesium Chelate 250 mg; Inositol powder started Nov 12, 2020; Theanine 400 mg; cranial electrotherapy stimulation device, self-treatments started Mar 14, 2021.

 

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  • 4 weeks later...

I don't have an answer for you but I'll be following to see what you learn here.  I have a history of ocular migraines too - scared the @*#% out of me before I knew what they were but I've been reassured often that they're benign.  I hope you get some good feedback.  Wishing you much healing.

1991- 1999          Prozac, then Zoloft

1999- present      Celexa 20mg, 6/2019 increased to 40mg

1999- present      Wellbutrin (bupropion SR), reduced from 200mg to 100mg SR 

1/2019-present   Buspar (buspirone) 20mg; 6/2019 increased to 40mg

4/2018-6/2019   Ativan 1mg; 6/2019 switched to Klonopin

6/2019-9/2019   Klonopin 1mg; 5 week taper 

1/2020                 plan slow taper off bupropion; then taper doses of Celexa and buspirone.

 

11/2019 added magnesium and increased fish oil

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I haven't heard from anyone but you, Healingnow. I had a run of migraines every couple of days for maybe a week, then none for about 3 weeks until a couple of days ago. I ignore them. I'm still in withdrawal, though the anxiety symptom has decreased a lot in the past week. Maybe the ocular migraines are as well. Regarding vision, however, the heavy derealization continues to cause me to feel partially disconnected from the world in front of my eyes, and I have somewhat blurred vision, which is a known symptom of wd. On top of that I have esophoria, or double-vision, which thankfully is corrected if I have my glasses on, even though I have to have the prescription changed more than once a year. The esophoria has nothing to do with wd.

Fluoxetine 1997-2014, 2015, 10-40 mg. GAD and DR symptoms returned  April 2013.

Bupropion 2013-14, 4 mos; Lexapro 2014; Cymbalta 2014. Gabapentin 2014; Mirtazapene 2014. Buspirone 2015.

Venlafaxine Dec. 2015 – May 2019, 150 mg, tapered to 0 in 3 weeks, May-June 2019

Bupropion Mar 2017 – July 2019 300 mg, tapered to 0 in 3 weeks, July 2019

Fluoxetine/Prozac May 2019 – present, tapered from 20 mg started Jan 2020, linear 10% every 4 wks.; tapered 6 to 4 mg June, 2, 2020; 4 to 1.8 mg Aug. 26, 2020; updose from 1.8 mg to 2.0 Nov. 16, 2020. Holding at 2.0 mg as of Mar 14,2021. April 14, 2021 updosed to 2.5 mg.

D3 2,000 mg; Omega 3 360 EPA/240 DHA; Magnesium Chelate 250 mg; Inositol powder started Nov 12, 2020; Theanine 400 mg; cranial electrotherapy stimulation device, self-treatments started Mar 14, 2021.

 

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I'm sorry you're dealing with such unpleasant symptoms.  I recently tapered off Klonopin too fast and withdrawal symptoms were hellish. They're abating now. I'm wondering if you tapered off the lorazepam?  

I'm gearing up to taper off Wellbutrin (bupropion SR) in a couple of months.  I want to have a good taper plan in place.  

Self care and especially, getting enough sleep, seem to be paramount as we find our way through this challenge.

I hope your symptoms ease up soon.

 

1991- 1999          Prozac, then Zoloft

1999- present      Celexa 20mg, 6/2019 increased to 40mg

1999- present      Wellbutrin (bupropion SR), reduced from 200mg to 100mg SR 

1/2019-present   Buspar (buspirone) 20mg; 6/2019 increased to 40mg

4/2018-6/2019   Ativan 1mg; 6/2019 switched to Klonopin

6/2019-9/2019   Klonopin 1mg; 5 week taper 

1/2020                 plan slow taper off bupropion; then taper doses of Celexa and buspirone.

 

11/2019 added magnesium and increased fish oil

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Healing now,

I did not taper off lorazepam because I only took 4 or 5 pills over the course of a month or so. Now I’ve just discovered another friend who has been on an AD since 2000 and is afraid to go it   I don’t know which AD. 

Fluoxetine 1997-2014, 2015, 10-40 mg. GAD and DR symptoms returned  April 2013.

Bupropion 2013-14, 4 mos; Lexapro 2014; Cymbalta 2014. Gabapentin 2014; Mirtazapene 2014. Buspirone 2015.

Venlafaxine Dec. 2015 – May 2019, 150 mg, tapered to 0 in 3 weeks, May-June 2019

Bupropion Mar 2017 – July 2019 300 mg, tapered to 0 in 3 weeks, July 2019

Fluoxetine/Prozac May 2019 – present, tapered from 20 mg started Jan 2020, linear 10% every 4 wks.; tapered 6 to 4 mg June, 2, 2020; 4 to 1.8 mg Aug. 26, 2020; updose from 1.8 mg to 2.0 Nov. 16, 2020. Holding at 2.0 mg as of Mar 14,2021. April 14, 2021 updosed to 2.5 mg.

D3 2,000 mg; Omega 3 360 EPA/240 DHA; Magnesium Chelate 250 mg; Inositol powder started Nov 12, 2020; Theanine 400 mg; cranial electrotherapy stimulation device, self-treatments started Mar 14, 2021.

 

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Glad you don’t have to deal with benzo withdrawal.  Hope you and your friend can be positive support for one another. 

1991- 1999          Prozac, then Zoloft

1999- present      Celexa 20mg, 6/2019 increased to 40mg

1999- present      Wellbutrin (bupropion SR), reduced from 200mg to 100mg SR 

1/2019-present   Buspar (buspirone) 20mg; 6/2019 increased to 40mg

4/2018-6/2019   Ativan 1mg; 6/2019 switched to Klonopin

6/2019-9/2019   Klonopin 1mg; 5 week taper 

1/2020                 plan slow taper off bupropion; then taper doses of Celexa and buspirone.

 

11/2019 added magnesium and increased fish oil

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I started having ice pick headaches which I learned are a type of migraine a couple months ago.  I've been on venlafaxine/Effexor for 25 years, 300 mg at the highest dose but have tapered to a little over 75 mg.  I was finishing my taper off buspirone when these headaches began.  

1994  Venlafaxine XR 300mg, 2003 tapered, 2004 off briefly back to 37.5 then 75mg, held, June 2019 up to  150mg, Aug.12 tapered down to 112.5mgs, Oct. 21, 2019 96mg;  Dec. 8, 2019  90mg, Jan. 8 2020 81mg, Feb. 4, 75mg;

2003/2004? Diazepam 10mg/bedtime

2013 Lyrica 300mg to 25mg; April 6, 2020 17mg; April 28, <5mg; May 7, 2020 Lyrica 0 mg!

2013 Tramadol 50mg tablets, 200mg/day divided

2005? Trazodone 50mg bedtime, Feb. 12, 2020 40mg, March 7, 25mg; Oct 1 20mg

2009? Zolpidem 5mg at bedtime. Nov. 9, 2019 Zolpidem 0 mg! 

1990? Omeprazole 20mg in morning.

2010? Levothyroxine 75mcg morning

2011? Liothyronine 5mcg morning

1999? Buspirone 30mg twice a day  August 2019 15mg once a day,  Oct.21, 2019 2.5mg evening  Oct. 25, 2019 Buspirone 0 mg!

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I had never had ocular migraines but started to get the odd one here and there after withdrawal started up.

I am not a medical professional and nothing I say is a medical opinion or meant to be medical advice, please seek a competent and trusted medical professional to consult for all medical decisions.

 

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I had what I think you are talking about as a reaction to artificial sweeteners. I'm not the only one who has had this - I only worked out when I read about it in a magazine, so it was common enough knowledge 30 years ago to have hit the mainstream. Anyway, I mention it only because it was such an easy thing to avoid, and in case it's helpful.

2005 St John's Wort / 2006-2012 Lexapro 20mg, 2 failed attempts to stop, tapered over 4.5 months in early 2012

January 2013 started Sertraline, over time worked up to 100mg

July 2014 Sertraline dropped from 100mg to 75mg, held for six months, slower tapering until 2019 22 Dec 3.2mg

2020 Sertraline 19 Jan 3.1mg, 26 Jan 3.0mg; 1 Mar 2.9, 7 Mar 2.8, May (some drops here) 24 May 2.5, May 29 2.4, June 21 2.3, June 28 2.2mg,  July 4 2.1mg, July 24 (or maybe a bit before) 2mg, early Nov switched to home made suspension; 29 Nov 1.8mg; approx 25 Dec 1.6mg)

2021 Some time in about Jan/Feb realised probably on more like 1.8mg and poss mixing error in making suspension; doses after 10 Feb accurate; 10 Feb 1.6mg; 7 Mar 1.4, continued monthly

10% drops until 1mg, then dropped 0.1mg monthly.

May 2022,0.1mg, now dropping 0.01mg per week

My thread here at SA: https://www.survivingantidepressants.org/topic/1775-bubbles/page/18/

CurrentSertraline: 0.08mg / Armour Thyroid

 

 

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13 hours ago, drugged said:

I started having ice pick headaches which I learned are a type of migraine a couple months ago.  I've been on venlafaxine/Effexor for 25 years, 300 mg at the highest dose but have tapered to a little over 75 mg.  I was finishing my taper off buspirone when these headaches began.  

I was on venlafaxine/Effexor for about 3.5 years, plus bupropion/Wellbutrin most of that time. My psych tapered me off both of them, about two months apart, way too fast--3 weeks each. 3.5 years, however,  seems like a short time compared to your 25 years! I've been off the venlafaxine now for going on six months, the bupropion four months. The symptom of persistent, prolonged surges and spikes of anxiety (visceral, physical feelings, like my CNS has been in a struggle, which it has) receded a lot within the past two weeks, leaving a "low hum" of anxiety intermittently. The other main WD symptoms, aside from some less disturbing ones, are somewhat blurred vision, which might relate to both WD and the fact that I'm still on 20 mg of Prozac until I feel more fully stabilized. The other is derealization, the dissociative disorder that in my case takes only the form of a perceptual sensation of fogginess and disconnect from the world I'm looking out at, plus a feeling of my head being stuffed with cotton balls . I've had prolonged episodes of derealization in exactly this form since I was 19. But since the WD started it's been heavier and thicker. Shopping, driving very long distances, walking into a crowded room, most kinds of socializing are tough. In the past few weeks, I've had a couple of days when I thought the derealization might be receding, and those may have been early windows. I work with a good therapist doing Acceptance and Commitment Therapy (ACT) mostly. In your taper from venlafaxine, have you ever had derealization or depersonalization episodes or prolonged conditions?

Fluoxetine 1997-2014, 2015, 10-40 mg. GAD and DR symptoms returned  April 2013.

Bupropion 2013-14, 4 mos; Lexapro 2014; Cymbalta 2014. Gabapentin 2014; Mirtazapene 2014. Buspirone 2015.

Venlafaxine Dec. 2015 – May 2019, 150 mg, tapered to 0 in 3 weeks, May-June 2019

Bupropion Mar 2017 – July 2019 300 mg, tapered to 0 in 3 weeks, July 2019

Fluoxetine/Prozac May 2019 – present, tapered from 20 mg started Jan 2020, linear 10% every 4 wks.; tapered 6 to 4 mg June, 2, 2020; 4 to 1.8 mg Aug. 26, 2020; updose from 1.8 mg to 2.0 Nov. 16, 2020. Holding at 2.0 mg as of Mar 14,2021. April 14, 2021 updosed to 2.5 mg.

D3 2,000 mg; Omega 3 360 EPA/240 DHA; Magnesium Chelate 250 mg; Inositol powder started Nov 12, 2020; Theanine 400 mg; cranial electrotherapy stimulation device, self-treatments started Mar 14, 2021.

 

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@Edmunds

You describe the derealization very well.  I have had prolonged periods when I've felt that sense of disconnect starting before I was on any psych meds, when I was maybe 15 or 16, but most of the early episodes didn't involve the sensation of fogginess.  The foggy disconnect I feel now has been a constant for at least 6 or 7 years.  In that period of time I've become a virtual recluse, agoraphobic to a degree.  I understand that the diazepam I've been on aggravates that.  For me I think I've not focused so much on the derealization because I have a lot of muscle pain.  I was actually diagnosed with fibromyalgia/chronic myofascial pain 6 years ago.  From information on this forum I see now that the intense muscle pain is most likely due to the venlafaxine and my withdrawal from it.  

 

I've also had a terrible time with my vision.  Every year I get my eyes checked and am told my vision is 20/20 but I can barely see to read sometimes and my distance vision is bad enough that I became reluctant to drive anywhere.  My eyes are also very dry and very sensitive to light.  Eye pain has been a big source of despair for me these last few years.  

 

I take such a horrid cocktail of drugs that's it's difficult to say it's all down to the venlafaxine but most of the drugs I'm currently taking were initially prescribed to treat side effects of the venlafaxine.  To my way of thinking, if I hadn't been started on the AD I wouldn't be going through all this.  Just my own opinion.

1994  Venlafaxine XR 300mg, 2003 tapered, 2004 off briefly back to 37.5 then 75mg, held, June 2019 up to  150mg, Aug.12 tapered down to 112.5mgs, Oct. 21, 2019 96mg;  Dec. 8, 2019  90mg, Jan. 8 2020 81mg, Feb. 4, 75mg;

2003/2004? Diazepam 10mg/bedtime

2013 Lyrica 300mg to 25mg; April 6, 2020 17mg; April 28, <5mg; May 7, 2020 Lyrica 0 mg!

2013 Tramadol 50mg tablets, 200mg/day divided

2005? Trazodone 50mg bedtime, Feb. 12, 2020 40mg, March 7, 25mg; Oct 1 20mg

2009? Zolpidem 5mg at bedtime. Nov. 9, 2019 Zolpidem 0 mg! 

1990? Omeprazole 20mg in morning.

2010? Levothyroxine 75mcg morning

2011? Liothyronine 5mcg morning

1999? Buspirone 30mg twice a day  August 2019 15mg once a day,  Oct.21, 2019 2.5mg evening  Oct. 25, 2019 Buspirone 0 mg!

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6 hours ago, drugged said:

@Edmunds

You describe the derealization very well.  I have had prolonged periods when I've felt that sense of disconnect starting before I was on any psych meds, when I was maybe 15 or 16, but most of the early episodes didn't involve the sensation of fogginess.  The foggy disconnect I feel now has been a constant for at least 6 or 7 years.  In that period of time I've become a virtual recluse, agoraphobic to a degree.  I understand that the diazepam I've been on aggravates that.  For me I think I've not focused so much on the derealization because I have a lot of muscle pain.  I was actually diagnosed with fibromyalgia/chronic myofascial pain 6 years ago.  From information on this forum I see now that the intense muscle pain is most likely due to the venlafaxine and my withdrawal from it.  

 

I've also had a terrible time with my vision.  Every year I get my eyes checked and am told my vision is 20/20 but I can barely see to read sometimes and my distance vision is bad enough that I became reluctant to drive anywhere.  My eyes are also very dry and very sensitive to light.  Eye pain has been a big source of despair for me these last few years.  

 

I take such a horrid cocktail of drugs that's it's difficult to say it's all down to the venlafaxine but most of the drugs I'm currently taking were initially prescribed to treat side effects of the venlafaxine.  To my way of thinking, if I hadn't been started on the AD I wouldn't be going through all this.  Just my own opinion.

You may want to get checked by neuro Optometrist or Ophthalmologist. I am going through having severe eye problems from prozac. They are saying my eyes aren't moving correctly. I have some threads on here 

2005-2015 Fluoxetine 20mg (tried to get off it twice during that time) Had bad depression once, so was raised to 40mg. 
2016-June 2019  Fluoxetine 40mg Noticed tics, twitches and spasms in muscles right away, especially in face and behind eyes. Doctors blew it off. Noticed tremors and muscle weakness in arms developing over time, especially after dose increased to 40mg. Noticed nerve pain, parathesia, and muscle pain/stiffness, coordination issues with my hands starting around 2016. Eye pain and vision issues.

June 2019 Was prescribed prednisone 20mg for 3 days, for vaccine reaction. Had horrible reaction to it. Maybe combined with fluoxetine? Reaction included serotonin syndrome like symptoms - hyperreflexia, rigidity, tremor, etc. Doctor had me take it for 3 days even with symptoms. Have been ill ever since with continuing neurological problems, dizziness, nausea, rigidity, tremor, blepharospasm, balance and eye issues movement and vision issues, akathisia, sound sensitivity.
July 2019-August 2019 Fluoxetine Seemed to be causing movement disorder and tremors. Tapered off Fluoxetine. Was cut to 20 mg over a week period, then 10 over a week, then 5 for a week, then 5 every other day for a week. Felt withdrawal at month 2.
2006-2019 Alprazalom Have used sparingly over the years. Not currently using.

September 2019 Was prescribed Ativan for withdrawal symptoms and tremor. Did not help.

September 2019 Was prescribed Gabapentin for withdrawal symptoms and tremor. Scared to take it due to side effects and worried it will make things worse.

November 2019 Diazepam 2mg Took 2 doses, did not seem to help and caused leg cramps. Stopped Diazepam.

November 2019 Flexeril 5mg, taking 1.25 mg very sparingly when needed for rigidity and muscle cramping 

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I definitely need to have my eyes checked.  I can probably find an ophthalmologist locally but I don't know about a neuro ophthalmologist.  

 

1994  Venlafaxine XR 300mg, 2003 tapered, 2004 off briefly back to 37.5 then 75mg, held, June 2019 up to  150mg, Aug.12 tapered down to 112.5mgs, Oct. 21, 2019 96mg;  Dec. 8, 2019  90mg, Jan. 8 2020 81mg, Feb. 4, 75mg;

2003/2004? Diazepam 10mg/bedtime

2013 Lyrica 300mg to 25mg; April 6, 2020 17mg; April 28, <5mg; May 7, 2020 Lyrica 0 mg!

2013 Tramadol 50mg tablets, 200mg/day divided

2005? Trazodone 50mg bedtime, Feb. 12, 2020 40mg, March 7, 25mg; Oct 1 20mg

2009? Zolpidem 5mg at bedtime. Nov. 9, 2019 Zolpidem 0 mg! 

1990? Omeprazole 20mg in morning.

2010? Levothyroxine 75mcg morning

2011? Liothyronine 5mcg morning

1999? Buspirone 30mg twice a day  August 2019 15mg once a day,  Oct.21, 2019 2.5mg evening  Oct. 25, 2019 Buspirone 0 mg!

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