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gardenlady

Severe sleep disorder as in reversed circadian rhythm

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gardenlady

Chronic insomnia due to Cymbalta withdrawal caused me to stay awake all night and not fall asleep until morning.  Now, I'm unable to sleep at night at all, regardless of what time I go to bed or how tired I am.  Sleep hygiene suggestions are useless as my sleep is 180 degrees reversed.  Also, I continue to have times when I stay awake for 24-48 hours.  Even then, as exhausted as I am, my body will not sleep until morning.  

 

Does anyone know how to reset one's circadian rhythm when it's completely reversed?  I don't have sleep apnea, so don't need to go to a sleep lab.  My guess is that I need some kind of process to get me back on track, but I don't know what it is.  Additionally, I have severe depersonalization and derealization and a horrible sense of doom and dread that never leaves.  It's like being on a bad acid trip non-stop.

 

All this while doing a "slow, safe" taper of Cymbalta.  I am evidence that a slow taper doesn't mitigate horrible withdrawal symptoms.  Granted, I'm sure it would be even worse if I went faster, but it's been brutal nonetheless.   

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herod

Hello gardenlady, I'm pleased to find someone with this symptom. I have also on occasion been awake for 48 hours, not by choice. I just didn't fall asleep. Some days it got so bad that I was waking up at 10 PM.

I can't offer you advice because nothing I've tried has worked. It's like my brain knows when nighttime is, it has just decided to stay awake during that time. So any attempt to reverse my sleep schedule is fundamentally futile. Hope I'm wrong on this.

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drugged

A few years ago I had something similar happen. Even with all the CNS depressants I was on for sleep I started waking up around midnight/1 am and couldn't get back to sleep. I was wide awake and actually alert! The next day I'd be incredibly tired by mid-afternoon.  After trying to fight it for several weeks I finally gave in and decided to just give my body what it seemed to need.  With no job, no kids, just myself, my spouse, and our cat I could get away with it, thank God.  I started going to bed around 5 pm and would sleep until I woke up, usually around midnight or 1 am.  I just went with that and about a year ago my Circadian cycle started to shift back towards a more normal pattern.  

 

I still take two medications for sleep and thankfully they still seem to work so I usually get close to 7 hours.  

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DaisyBell

Maybe see a sleep specialist? I don’t know much but they could reset your circadian rhythm. I think sleep deprivation, but only under care of an expert, may help. Melatonin is  pretty good too.

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drugged
5 hours ago, DaisyBell said:

Maybe see a sleep specialist? I don’t know much but they could reset your circadian rhythm. I think sleep deprivation, but only under care of an expert, may help. Melatonin is  pretty good too.

Hi DaisyBell,

 

At this point I'm not suffering from sleep deprivation.  I get about 7 hours of sleep daily so that's excellent.  

 

Truthfully, I'm not bothered by my weird sleep cycle.  As long as my body gets enough sleep I'm fine with when that happens.  I just try to listen to my body.

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Onmyway

Hi drugged, you can usually reverse your circadian rythm by using melatonin. You have melatonin at the time you want to go to sleep and then stay in bright light when you are awake. Repeat every night. There are more elaborate plans online. 

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gardenlady

I've tried melatonin and it didn't work.

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drugged
12 hours ago, gardenlady said:

I've tried melatonin and it didn't work.

I tried 1 mg tablets of melatonin and it did seem to improve my sleep though it's hard to say for sure because I take other meds at bedtime.  I did get headaches everyday I took it though.  

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Shane88L

Hello,

 

This was essentially me up until recently. I had to force myself to stay awake during the morning and throughout the day and then  it started at 4pm. From 4pm until about 7pm, then awake.  Then I eventually managed some longer moments of sleep, increasing by an hour or so. Then, eventually, I managed changed those times to where it is a 10pm-11pm time to sleep and waking at 6am - 7am. This went on for about a month, of slowly trying to stay awake for longer and if I woke up, just try to relax and then fall asleep again. I had to quit caffeine and sugar at the same time. Never imagined I could sleep normally again (except for the vivid nightmares every night)

I really feel for you. It is a struggle to have a messed up sleep cycle, but it can be beaten.

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gardenlady
3 hours ago, Shane88L said:

I had to force myself to stay awake during the morning and throughout the day and then  it started at 4pm. From 4pm until about 7pm, then awake. 

What started at 4 pm?  Will you please clarify?  Your story is encouraging and the way you gradually got around to sleeping at night makes sense. 

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Valhalla

Cymbalta/duloxetine... the most awful drug.

 

I'm still awakening between 2-4am after being off the drug for one year and two months. I'm constantly sleep deprived during the day even after getting near six hours of sleep but not restorative sleep. The cortisol spikes during this time have not gotten any better. I'm considering having a sleep study done but unsure if this will ultimately give me answers. I think the only thing that may help is time. 

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gardenlady
1 hour ago, Valhalla said:

Cymbalta/duloxetine... the most awful drug.

 

I'm still awakening between 2-4am after being off the drug for one year and two months. I'm constantly sleep deprived during the day even after getting near six hours of sleep but not restorative sleep. The cortisol spikes during this time have not gotten any better. I'm considering having a sleep study done but unsure if this will ultimately give me answers. I think the only thing that may help is time. 

Wow, that is tough, Valhalla.  Sounds like you're in protracted Cymbalta withdrawal after a too-rapid taper.  I'm so sorry as I know what a rat poison of a drug it is.  Even doing a slow, steady taper is brutal....much longer and more drawn out than the benzo taper.  It's just as bad, but in different ways.  Sort of like equally bad but different LSD trips.  Yes, time is the only answer as there is absolutely nothing one can do about it.  My sympathy goes out to you.  

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Valhalla
13 minutes ago, gardenlady said:

Wow, that is tough, Valhalla.  Sounds like you're in protracted Cymbalta withdrawal after a too-rapid taper.  I'm so sorry as I know what a rat poison of a drug it is.  Even doing a slow, steady taper is brutal....much longer and more drawn out than the benzo taper.  It's just as bad, but in different ways.  Sort of like equally bad but different LSD trips.  Yes, time is the only answer as there is absolutely nothing one can do about it.  My sympathy goes out to you.  

Thanks, GL,

 

I did CT from 20mg of duloxetine. Worst mistake I ever made. I did a benzo taper as well and suffered withdrawal as well. 

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Shane88L

Ah, apologies for the vague description. From around 4pm, when I was beginning to try and make changes to my pattern of sleep, I would fall asleep and only remain asleep for a few hours at maximum. No matter how tired I was, I would wake up with only terrible dreams in my head. This continued for a over a month, where I would simply stay up all night and try to stay up throughout the morning and further into the day. Eventually, I stretched the time I could sleep, from 4pm to where I am now, which is usually 10pm-11pm. I do wake often in the night still, but there are occasions where my sleep is quite unbroken and I wake up at 6am or 7am. It feels wonderful when that happens.

I do still think I am healing, coming up on 15 months c/t off of that horror drug zyprexa, so it really is a matter of time I feel.

So, the most helpful thing for me regarding getting my sleep cycle back was to simply stay up throughout the morning and day for as long as possible (where my sleep was 1-3 hours at maximum), and continue this for a few months, which finally worked for me. The few hours turned in to an eventual ability to remain in the bed for 8 hours, even with some waking up throughout,

Hope I made things more clear.

Wishing you strength throughout this challenge,

Shane.

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